Personal Uncertainty Research Articles

A “rotating menu” of medical uncertainty for families affected by telomere biology disorders: A qualitative interview study

BackgroundMedical uncertainty may cause distress and challenge medical decision-making for patients with rare diseases and their caregivers. Few studies have examined the experience and management of medical uncertainty in rare disease and the dynamics of multiple medical uncertainty sources, issues, and management strategies. ObjectiveWe explored the experience and management of uncertainty in individuals with telomere biology disorders (TBDs), a set of rare cancer-prone bone marrow failure syndromes, and their caregivers. DesignParticipants (N = 32) in this qualitative-descriptive study were individuals with a TBD (n = 17) and/or their caregivers (n = 15). We thematically analyzed transcripts to describe the presence and dynamics of medical uncertainty in TBDs using categories from a previously published taxonomy. ResultsIndividuals with TBDs and caregivers described medical uncertainty as a chronic burden embodied amidst a range of interrelated sources and issues. Scientific uncertainty included diagnostic and prognostic ambiguity. Practical uncertainty focused on logistical challenges of building and maintaining medical care teams. Personal uncertainty included difficulty realigning self-identity, goals, and relationship expectations post-diagnosis. Scientific, practical, and personal uncertainty issues were entangled. The rarity of TBDs resulted in limited scientific knowledge, which gave rise to practical and personal uncertainties affecting medical decision-making and relationship formation (e.g., creating trusted care teams where patient knowledge of TBDs may exceed that of clinicians). Participants used multiple strategies for uncertainty management, particularly information-seeking and community-building. However, these management strategies could intensify, rather than resolve, participants’ medical uncertainty. ConclusionIn TBDs, medical uncertainty manifests as a network of multiple, interrelated, sources and issues, which require evolving management strategies. Researchers must be mindful that complex, synergistic uncertainty networks contribute to psychosocial challenges in TBDs. Additional research is warranted to address scientific uncertainty in TBDs, including clinical manifestations and underlying biology, and to develop psychosocial interventions that recognize and anticipate evolving uncertainty.

The Enigma of Leibniz’s “Catholic” Writings of 1685

The focus of this paper is a suite of Latin papers from 1685, some of which are still unpublished, in which Leibniz writes in the guise of a Catholic in order to defend Catholicism and counter Protestant objections, and this despite him being a lifelong Lutheran. After providing an overview of these writings (which I refer to as Leibniz’s “Catholic” writings) and the grounds for dating them to May–June 1685, I consider their purpose, arguing against the claim that they were intended to support Church reunion and suggesting instead that they were apologetic in nature, intended as a reactivation or reimagining of Leibniz’s earlier “Catholic Demonstrations” project. I identify the patron Leibniz had in mind for these writings as Landgrave Ernst von Hessen-Rheinfels and support this by a detailed comparison of the “Catholic” writings with the Leibniz-Landgrave correspondence and the Landgrave’s still-unpublished essays. This reveals that the Protestant arguments Leibniz uses in the “Catholic” writings are the very ones that he himself used when writing to the Landgrave, and that the responses Leibniz gives to these arguments are the very ones that the Landgrave used. I also consider the context of the writings, suggesting they were crafted during a period of personal uncertainty for Leibniz and possibly aimed at securing a position under the Landgrave.

Социальная и личностная неопределенность как факторы социально-психологической устойчивости личности к вовлечению в террористическую организацию

Introduction. In the context of countering the ideology of terrorism, two main tasks are being solved: how to identify the most vulnerable social groups of the population to the perception of the ideas of terrorism and what preventive work should be carried out to weaken the effect of the ideology of terrorism. Theoretical analysis. It allows us to conclude that the degree of socio-psychological resistance of a person to involvement in a terrorist organization mainly depends on the recognition of the principles of national, political and religious doctrine by a person. The socio-psychological stability of a person to participate in terrorist acts is a personality quality consisting in a formed critical attitude towards terrorism, knowledge of the disastrous consequences of terrorism in society, and an active civic position, which includes rejection of terrorism. As a result, it can be argued that socio-personal uncertainty affects the socio-psychological stability of a person. Empirical analysis. Consideration of the problem of determining social and personal uncertainty on the socio-psychological stability of a person to involvement in terrorist activities has allowed us to conclude that socio-personal uncertainty affects the socio-psychological stability of a person. Conclusion social and personal uncertainty are a favorable environment for the formation of extremist views and justification of the ideology of violence, therefore it is necessary to introduce psychodiagnostic tools aimed at identifying the socio-psychological resistance of a person to involvement in terrorist activities.

Abstract B163: Researcher, Clinician, and Community Focus Groups to Inform an Understanding of Cancer Disparities in the Transgender and Gender Diverse

Abstract Background: A growing number of Americans identify as transgender or gender diverse (TGD). This population experiences barriers and challenges across to socio-ecological spectrum including healthcare. Simultaneously, there is limited data on cancer in TGD persons. While advances in data-capture provide promising opportunity for future research, a comprehensive understanding of cancer disparities for the TGD community is needed to inform clinically and socially relevant research questions – particularly on cancer prevention, risk, screening, and treatment. Our study aimed to develop a transdisciplinary (TDS) academic-community team to create a shared understanding of factors associated with cancer disparities in the TGD population with aid from discussion sessions and interviews with researchers, clinicians, and community members. Methods: The TDS team engaged in literature reviews and discussion to ground their collective understanding. The team also conducted focus groups and interviews with researchers, clinicians, and community members (N=55) to enrich the team’s understanding of factors associated with cancer disparities. Data were summarized and thematized and groups were compared. Results: Community organizations/members noted systemic issues such as insufficient training of healthcare providers and staff, individual mistrust, and not believing they would live long enough to worry about cancer development. Providers identified personal uncertainty working with TGD patients, knowledge of appropriate recommendations for cancer screening, and individual risk behaviors (i.e. tobacco and alcohol use) as potential causes for cancer disparities. Researchers indicated they had not considered including TGD individuals as a specific subject population, were unsure how to study given lack of mouse models for early-stage research and acknowledged the opportunity for future study inclusion. Further, community members discussed the persistent stress of existing as a TGD person during a time of increasingly aggressive anti-TNB legislation and social attitudes. Healthcare providers and researchers reflected on the behavioral and physiological impact of stress on an individual’s health and cancer risk. Conclusion: The findings from our focus groups elucidated areas of shared understanding between the three different audiences; however, they also highlighted concepts that were not shared which offer opportunities for further collaboration and learning by key stakeholders. Through our TDS and collaborative approach, we will continue deep learning between team members to identify specific research questions to address the root causes of TGD cancer disparities through TDS collaboration and innovative research. Citation Format: Tobi Cawthra, Chandler Cortina, laura Pinsoneault, Michael Munson, Andrew Petroll, Melinda Stolley. Researcher, Clinician, and Community Focus Groups to Inform an Understanding of Cancer Disparities in the Transgender and Gender Diverse [abstract]. In: Proceedings of the 17th AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2024 Sep 21-24; Los Angeles, CA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2024;33(9 Suppl):Abstract nr B163.

High Process Fairness Reduces Self-Handicapping in the Face of Greater Personal Uncertainty

High Process Fairness Reduces Self-Handicapping in the Face of Greater Personal Uncertainty

“Don’t worry, be happy (and the vote out the incumbent): economic anxiety and incumbent support”

ABSTRACT In recent years, there has been a substantial upsurge in the cost of living and income inequality across established democracies. These shifts, intensified by recent public health crises and growing political instability, have subjected voters to an extraordinary mix of social, political, and economic uncertainty. Despite widespread doubt about the future, a consistent finding in the economic voting literature highlights that voters’ evaluation of the past economy strongly influences their decision to either reward or penalize incumbents. Additionally, these studies find that voters’ forward-looking evaluations of personal economic conditions and general economic expectations often yield weak or negligible effects. These patterns motivate an important empirical question – why do future-oriented economic evaluations fall short in yielding a more substantial effect on incumbent support amid considerable personal struggle and uncertainty about economic conditions ahead? Grounded in appraisal theories of emotion, our study suggests that these consistent results may stem from existing measures inadequately capturing the multi-dimensional and affective nature of voters’ future economic concerns. Using data from the Canadian province of Ontario, we explore the extent of voters’ economic anxiety, identify the factors influencing these sentiments, and show that economic anxiety weakens support for incumbents in provincial and municipal elections.

Differentiation, Affected Temporalities and the Politics of Inclusion and Exclusion of the Border Regime

ABSTRACT This article addresses the question of how differentiation functions as a fundamental criterion for the global border regime. Drawing on qualitative fieldwork in Finland and Mexico, we show how differentiation is instrumentalized by states and enables a complicated process of inclusion and exclusion that in some cases continues even after migration ends. We argue that differentiation is a precondition of the border regime, influencing the entire temporal experience of migration and its consequences and creating a persistent hierarchization of different social groups. As such, it sustains a variety of practices of border control and has a direct impact on the experiences and temporalities in the context of human mobility. In the analysis, attention is paid to how criteria such as racialization and country of origin are enforced and impact temporalities. In the case of our participants, differentiation relates to personal and social uncertainty at different stages and a contradictory sense of belonging.

An Examination of Visually Impaired Individuals’ Uncertainty Management

ABSTRACT Being visually impaired or legally blind (having vision that is uncorrectable or cannot be corrected to a legally acceptable level) is inherently uncertain. Although uncertainty can result in positive, negative, or neutral consequences, little is known about how uncertainty is experienced and negotiated in this understudied population. Thus, through in-depth, semi-structured interviews of 24 individuals with a visual impairment, we apply uncertainty management theory (UMT) to examine the communication strategies visually impaired individuals used to manage the personal, vision-related, and social uncertainty they experienced. Many participants appraised the uncertainty negatively and consequently aimed to reduce it by seeking social support and information, using instrumental strategies, and proactively disclosing their visual impairment. Interviewees who preferred to remain uncertain maintained it by avoiding thinking about their visual impairment or worsening vision and/or by concealing their low vision and passing as sighted. Last, some participants, particularly those who were born with low vision or had been visually impaired longer, learned to adapt to the uncertainty through reframing and accepting, self-care, and by turning to God. The study also uncovered that some participants’ uncertainty management was limited by ableist constraints, such as inadequate support systems, systemic barriers, and stigma. The study also underscores the universal and fluid nature of uncertainty and uncovers tangible ways individuals with visual impairment can navigate uncertainty within a pervasive cultural biomedical model of disability.

In Case You Haven't Heard…

In a poll fielded last December by the American Psychiatric Association (APA), most adults said they were anxious about their personal finances (59%) and uncertainty for the new year (54%). The Healthy Minds Monthly poll found that more than one‐third (38%) were anxious about their mental health — a trend consistent with the prior year's polling. Just under half (44%) of adults said they anticipate experiencing the same level of stress at the start of 2024 as they did at the start of 2023, while one in four said they expect more stress. The poll was fielded by Morning Consult from Dec. 2–4, 2023, among 2,202 adults. The polls run each month throughout the year, tracking information on mental health and anxiety. Over the past year, adults have remained the most anxious about inflation, a recession and gun violence. During this period, adults have consistently been least anxious about the COVID‐19 pandemic. Other topics about which Americans have been anxious have included hate speech and hate crimes, which peaked at 67% in November; and international conflict, which also peaked in November at 70%. Worries about artificial intelligence, while on the minds of many Americans, stayed relatively flat at about 55% since August 2023.

Personal Identity and Uncertainty in the Everett Interpretation of Quantum Mechanics

The deterministic nature of EQM (the Everett Interpretation of Quantum Mechanics) seems to be inconsistent with the use of probability in EQM, giving rise to what is known as the “incoherence problem”. In this paper, I explore approaches to solve the incoherence problem of EQM via pre-measurement uncertainty. Previous discussions on the validity of pre-measurement uncertainty have leaned heavily on intricate aspects of the theory of semantics and reference, the embrace of either four-dimensionalism or three-dimensionalism of personhood, or the ontology of EQM. In this paper, I argue that, regardless of the adoption of three-dimensionalism or four-dimensionalism of personhood, the overlapping view or the divergence view of the ontology of EQM, the pre-measurement uncertainty approach to the incoherence problem of EQM can only achive success while contradicting fundamental principles of physicalism. I also use the divergence view of EQM as an example to illustrate my analyses.

Racial and Ethnic Disparities in Genomic Healthcare Utilization, Patient Activation, and Intrafamilial Communication of Risk among Females Tested for BRCA Variants: A Mixed Methods Study.

This study aimed to gain a deeper understanding of genomic healthcare utilization, patient activation, and intrafamilial risk communication among racially and ethnically diverse individuals tested for BRCA variants. We employed an explanatory, sequential, mixed-methods study guided by the Theory of Planned Behavior. Participants completed an online survey, including sociodemographic, medical history, and several validated instruments. A subset of participants participated in in-depth, semi-structured interviews. A total of 242 women were included in the quantitative analyses. The majority of survey participants identified as non-Hispanic white (NHW) (n = 197, 81.4%) while 45/242 (18.5%) identified as black, Indigenous, and people of color (BIPOC). The NHW participants were more likely to communicate genetic test results with healthcare providers, family, and friends than BIPOC participants (p < 0.05). BIPOC participants had lower satisfaction with testing decisions and significantly higher ratings of personal discrimination, fatalism, resilience, uncertainty, and lower patient activation scores (p < 0.05). Participants with higher education, greater satisfaction with testing decisions, and lower resilience are more likely to communicate BRCA test results with family members through the mediating effect of patient activation. Bridging disparities to ensure that genomic healthcare benefits all people may demand theory-driven, multi-level interventions targeting the individual, interpersonal, and healthcare system levels.

The Existential Challenge of Religious Pluralism: Religion, Politics, and Meaning in Life

ABSTRACT Three studies tested the hypothesis that exposure to pluralistic (vs. non-pluralistic) attitudes about religion would enhance mood but lower meaning in life. Studies 1 (N = 827) and 2 (N = 852) showed that pluralistic attitudes about Christianity (Study 1) and Islam (Study 2) led to better mood but lower meaning in life than non-pluralistic and control passages. In both studies, condition effects were stronger among those low on conservatism. Study 3 (N = 1043) directly replicated Study 1 and showed that the existential threat of pluralism is mediated by personal uncertainty, particularly for those who are less conservative. Religious pluralism is important to a healthy, functioning society, yet threatens the experience of meaning in life by enhancing personal uncertainty. Interventions to overcome this psychological hurdle are discussed.

Is the uncertain self good at detecting lies? The influence of personal uncertainty on deception detection

AbstractFive experiments (total number of judging participants = 1309, four different kinds of stimulus materials with a total of 464 messages, total number of judgements = 19,634) investigated the influence of personal uncertainty on the process of lie detection in social relationships. Building on and extending basic assumptions of uncertainty management models, we reasoned that uncertainty about themselves motivates people to evaluate the quality of their relationships. A crucial aspect of the quality of relationships with other people is the truthfulness with which they communicate verbally with you and anyone else. We proposed that if these assumptions are valid, reminding people of their personal uncertainties should lead them to use valid verbal cues in veracity judgements more. This enhanced usage of valid verbal cues should result in better accuracy in deception detection. An internal meta‐analysis of the five experiments reveals only a small, not significant, overall effect of uncertainty salience on detection accuracy with larger effect sizes for experiments conducted in the laboratory than for those conducted online. Hence, if personal uncertainty plays a role in the process of deception detection, it seems to be subject to moderators such as methodological or motivational factors.

Navigating the Role of LGBTQ+ Identity in Self-Disclosure and Strategies Used for Uncertainty Reduction in Online Dating

ABSTRACT Online dating platforms pose novel challenges for personal privacy, self-disclosure, and uncertainty management. Emerging evidence suggests that LGBTQ+ users may be especially impacted by issues like personal privacy and misrepresentation online. LGBTQ+ identity disclosure is often fraught with pressures related to stigma, fear of accidental disclosure to unintended, undesired audiences, and the possibility of facing harassment and violence. How these identity concerns may manifest in uncertainty reduction strategies in online dating contexts has not yet been examined. To understand this relationship, we replicated and extended precious work examining self-disclosure concerns and uncertainty reduction strategies when online dating with a focus on LGBTQ+ users. Participants were surveyed on the amount of personal information they disclosed, the uncertainty reduction strategies they used, and concerns about disclosure. We found that use of uncertainty reduction strategies was predicted by concerns of personal security, misrepresentation of communication partners, and the possibility of being recognized. We also found that using these strategies predicted the frequency of specific self-disclosure in online dating situations. These findings support the value in continuing to understand the ways in which online information sharing and relationship development are influenced by social identity.

Is targeting the solution? Evidence from an experiment on radon risk communication

While prolonged exposure to radon is one of the most significant risk factors for lung cancer, public awareness and willingness to mitigate the risk are typically low, even in regions with high radon concentrations. Given this, it has been voiced that health protection agencies should follow a more targeted risk communication approach (Perko & Turcanu, 2020). While targeted and tailored risk communication approaches have been shown to be successful, especially regarding so-called lifestyle risks (smoking, unhealthy diet, etc.), the effects of targeted radon risk communication from a health protection agency perspective have not been analyzed thus far. To this end, we conducted an online experiment. Four web pages were created targeting four stakeholder groups: (1) tenants and (2) house owners in municipalities with high radon concentrations, (3) tenants and (4) house owners in areas adjacent to municipalities with high radon concentrations. The content of the web pages was designed based on the German Federal Office for Radiation Protection’s (BfS) materials. Participants (n = 293 valid cases) were randomly assigned either to the experimental or control group. We assessed differences between the stakeholder groups regarding information comprehension, risk perception, behavioral intention, perceived efficacy of measures against radon, and (personal) uncertainty regarding radon. In a MANOVA including all five dependent variables, the null hypothesis that there are no differences regarding these variables between the stakeholder groups could not be rejected (Wilk’s Λ = 0.9980, p = .99). Given an achieved statistical power of 1-β = .93 for effects of medium size according to Cohen, it is quite unlikely that medium or large effects can be achieved by targeting risk communication to the stakeholder groups described above, given our data. As the statistical power to detect small effects was low (1-β = .21), these cannot be precluded. Potential reasons for this finding and implications for risk communication practice are discussed.

Impact of Covid-19 Pandemic on Mental Wellbeing of Healthcare Professionals: A Cross-Sectional Study

BACKGROUND&#x0D; COVID 19 pandemic posed a varied group of challenges to health care workers (HCWs) like new disease with no treatment, less treatment options available, worry for infection to family members, shortage of personal protective equipment (PPEs), uncertainty, and stress associated with lockdowns. HCWs are highly vulnerable to negative mental distress; this psychological distress varies in different group of HCWs and also on different psychological domains. In this study, we wanted to assess the impact of COVID 19 on the psychological well-being of health care professionals when providing care to COVID-19 patients.&#x0D; METHODS&#x0D; A cross-sectional observational study was conducted on doctors providing care to COVID -19 patients at King George Hospital, Visakhapatnam, during the second wave of COVID from March 2021 to December 2021. The questionnaire included three domains – Personal questions, work related questions, and pandemic related questions. The response to the questions was recorded in Likert’s scale.&#x0D; RESULTS&#x0D; 50 (50.00 %) were sometimes physically exhausted, 49 (49.00 %) participants were sometimes emotionally exhausted, and 46 (46.00 %) participants reported that sometimes they felt worn out (extremely tired). 54 (54.00 %) participants reported that sometimes they were frustrated with their work, and 46 (46.00 %) participants reported sometimes feeling burnt out because of the work. 48 (48.00 %) participants reported sometimes feeling depressed, 38 (38.00 %) participants stated sometime having a fear of catching COVID-19 infection, and 44 (44.00 %) participants reported consistently having to fear of family members getting infected due to the exposure in work environment.&#x0D; CONCLUSIONS&#x0D; In total, COVID-19 had a negative effect on psychological well-being of the HCWs, but that was not severe to cause any specific psychological disorders. There was no significant difference in mental health impact between the genders and age groups of the participants.

"Preparing them for the profession": An interpretative phenomenological analysis of anatomy educators coping with complexity in the United Kingdom curriculum.

Efforts to integrate the basic sciences into the ever-changing curriculum are a trending area of research in health professions education. Low-stakes, high-frequency assessment methods such as the progress test are now widely implemented in the United Kingdom and Northern Ireland as a means of furthering curricular integration toward contemporary goals of competency and professional identity formation. The anatomy educator's experience vis-à-vis these curricular changes is not well understood. This study aimed to explore how anatomy educators make sense of the shifting demands of their role. The interviews were semi-structured, particularly concerned with the phenomenon of teachers adapting to the complexity of their learning environment. The study used interpretative phenomenological analysis (IPA) to focus on the lived experiences of participants coping with the phenomena in question: how do anatomy educators make sense of the learning environment in the United Kingdom? Interviews were transcribed verbatim and interpreted inductively, identifying four key themes: confidence through connectedness, variations in appraisals of curricular integration, managing expectations to perform in paradoxical situations, and the emergence of innovative teaching. Results point to the learning environment as a complex system and highlight the importance of feeling support from and connection to colleagues, enabling individual educators to develop confidence, meet the top-down demands of changing curricula, and experience personal identity development and uncertainty tolerance within their role. This IPA study offers insight into the lived experiences of anatomy educators whose experiential interpretations of a complex and changing curriculum can uniquely inform stakeholders in health professions education.

Towards an Understanding of FinTech Users’ Adoption: Intention and e-Loyalty Post-COVID-19 from a Developing Country Perspective

Earlier literature has shown that the implementation of FinTech innovations is not only determined by banks, financial institutions, or government support, but also by the perception and experiences of FinTech users. FinTech research has shown encouraging findings from scholars in developed countries. However, little is known about the users’ acceptance and use of FinTech in Jordan. The aim of this study is to investigate the determinants of users’ intentions and e-Loyalty toward FinTech adoption in Jordan post the COVID-19 era. A conceptual framework was developed by integrating the four original constructs of the unified theory of acceptance and use of technology (UTAUT), namely performance expectancy (PE), effort expectancy (EE), social influence (SI), and facilitating conditions (FC), with three additional factors: personal innovativeness (PI), financial literacy (FL), and uncertainty avoidance (UA). In addition, the proposed model considered the e-Loyalty of FinTech users as a consequence of having a good FinTech experience. A quantitative approach using a cross-sectional online questionnaire was applied to collect data from 423 FinTech users. Data were analyzed utilizing structural equation modeling (SEM) based on AMOS 26.0 software package. The findings revealed that UA has a moderating effect on the relationship between FC and users’ intentions. Also, PI has a significant impact on PE and EE. While PE, SI, and FC are factors that enhance behavioral intentions. In return, it builds users’ e-Loyalty toward FinTech services and is deemed a new normal behavior. This study may help FinTech service providers and policymakers better understand the, currently relatively low, usage rate of FinTech, and how it contributes to the development of strategies that boost the acceptance and e-Loyalty of FinTech by Jordanian users after the COVID-19 era, where FinTech is still considered an innovation.

Uncertainty and disaster recovery: an analysis of victim perceptions utilizing the problematic integration theory

Guided by the problematic integration theory, the purpose of this study was to determine what probabilistic and evaluative orientations were formed during post-disaster decision-making following the 2010 Deepwater Horizon oil spill, the 2011 Tuscaloosa Tornado, the 2011 Mississippi Delta flooding, and a pair of tornados in Hattiesburg Mississippi in 2013 and 2017. A series of focus groups were conducted in communities impacted by these disasters. Five different themes emerged when coding the focus group data for probabilistic and evaluative orientations formed: (1) Distrust, (2) Disorientation, (3) Desperation, (4) Disparity, and (5) Disconnection. The broader implications of this study shed light on how people handle personal uncertainty, especially in situations where their lives have been dramatically shifted in a negative way.

Up to the Challenge: Adapting Pediatric Intensive Care During a Global Pandemic.

BackgroundThe COVID-19 pandemic has strained health systems world wide. In our region, surging numbers of critically ill adult patients demanded urgent system-wide responses. During the peak of the pandemic, our Pediatric Intensive Care Unit (PICU) team redesigned the existing educational resources and processes of care to ensure for adult patients for the first time in the hospital’s history.AimDescribe the experiences and impacts of the rapidly initiated Adult COVID-19 Program on health care providers (HCP) and family members. Havelock’s Theory of Change framed the examination of Adult COVID-19 Program participant experiences and surfaced lessons learned.Materials and MethodsA quality improvement review was employed to collect feedback about the program experience from the health care team and patient’s family members. HCP completed a questionnaire 10 months following the implementation of the program and feedback from family members was provided during the program was obtained. Havelock’s Theory of Change was used to explore trends and frame participants’ experiences.ResultsPediatric Intensive Care Unit bedside team members and clinical leaders (n = 17), adult hospital partners (n = 3), and family members (n = 8) participated. HCP describe; motivation and readiness; concern for personal safety and uncertainty experienced in the early program phases; the importance of supports and resources; use of relationships and collaboration to facilitate change; the emotional impacts of this unique experience; and opportunities for individual and team growth. An overarching theme of ‘doing our part to help’ emerged. Family members described the positive impacts of family-centered interventions offered, individualized care, and shock at their family member’s illness.ConclusionThe PICU team rapidly adapted to provide care for adults at the peak of the pandemic. Family members expressed feeling grateful for the care their loved ones received in the pediatric setting. The experience of caring for adult patients with COVID-19 was a source of tension, personal growth, and meaning for the pediatric intensive care team.