Participatory Design Workshops Research Articles

Co-Designing a Web-Based Decision Aid Tool for Employees Disclosure of Mental Health Conditions: A Participatory Study Design Using Employee and Organizational Preferences.

BackgroundDecisions of whether to disclose mental health conditions are extremely personal and require the consideration of multiple factors associated with the disclosure process (eg, weighing the risks and benefits). Decision aid tools help people make these complex decisions. Such an aid needs to be confidential, easily accessible, and easy to use with the potential to access the tool on multiple occasions. Web programs are well suited to meet these requirements and, if properly developed, can provide feasible, accessible, affordable, and effective workplace interventions.ObjectiveThis study aims to gain insights from potential end users, in this case both employees and organizations, into what type of components including language, style, and content would avoid potential stigma and ensure that elements of clear value for users would be built into a web-based decision aid tool that aims to assist employees in making decisions about the disclosure of their mental health condition at work.MethodsA participatory design approach was used to allow developers, researchers, experts, and end users to collaborate in co-designing the tool. During the user research phase of the development of the web-based tool, a participatory design workshop approach was selected as a part of a larger study of focus groups. Australian employees and managers in rural, suburban, and urban locations participated in an exploratory qualitative study involving participatory workshops designed to elicit their perspectives and preferences for a decision aid tool.ResultsA total of 2 workshops were conducted with 13 participants. The majority were from a transport company (9/13, 69%), male (8/13, 62%), and employed full time (11/13, 85%). Six employees had previous experience disclosing their own mental health condition, and 7 were in a supervisory role and had previously been disclosed to. In any co-design development, there are certain trade-offs that need to be made between the views of experts, developers, end users, and the available budget. In this specific instance of a very delicate, personal decision, the end users provided valuable design insights into key areas such as language, and they were very antipathetic to a key feature, the avatar, which was thought to be desirable by experts and developers. Findings including aspects of the tool where all stakeholders were in agreement, aspects where some stakeholders disagreed and adaptations were implemented, where disagreements could not be implemented because of financial constraints, and misalignment between stakeholders and how to decide on a balance were shared.ConclusionsThe co-design with a lived experience approach is useful for contributing much to the design, language, and features. The key in this study was balancing the needs of the workers and the potential impact for the managers and organizations, while ensuring legislation and regulation requirements were upheld.

Chatbot-based Emotion Management for Distributed Teams

Fueled by the pervasion of tools like Slack or Microsoft Teams, the usage of text-based communication in distributed teams has grown massively in organizations. This brings distributed teams many advantages, however, a critical shortcoming in these setups is the decreased ability of perceiving, understanding and regulating emotions. This is problematic because better team members? abilities of emotion management positively impact team-level outcomes like team cohesion and team performance, while poor abilities diminish communication flow and well-being. Leveraging chatbot technology in distributed teams has been recognized as a promising approach to reintroduce and improve upon these abilities. In this article we present three chatbot designs for emotion management for distributed teams. In order to develop these designs, we conducted three participatory design workshops which resulted in 153 sketches. Subsequently, we evaluated the designs following an exploratory evaluation with 27 participants. Results show general stimulating effects on emotion awareness and communication efficiency. Further, they report emotion regulation and increased compromise facilitation through social and interactive design features, but also perceived threats like loss of control. With some design features adversely impacting emotion management, we highlight design implications and discuss chatbot design recommendations for enhancing emotion management in teams.

Development of a Web-Based Resource for Parents of Young Children Newly Diagnosed With Autism: Participatory Research Design.

BackgroundThe internet provides an ideal avenue to share information, advice, and support regarding autism. However, many websites lack quality control and rarely provide a one-stop resource for families to access necessary, evidence-based information.ObjectiveThis study aims to use participatory action research (PAR) with end users (ie, parents) and clinicians to develop a web-based resource (Pathways Beyond Diagnosis) to improve timely access to quality, evidence-based information, and support for families after their child is diagnosed with autism.MethodsThe PAR approach involves 4 phases: (1) cooperative researcher-stakeholder planning, (2) cooperative researcher-stakeholder–based action, (3) stakeholder observation, and (4) cooperative researcher-stakeholder reflection. A total of 15 participants (parents, n=3; clinicians, n=9; and researchers, n=3) attended individual or group participatory design workshops. This was followed by the translation of knowledge and ideas generated during the workshops to produce mockups of webpages and content, rapid prototyping, and one-on-one consultations with end users to assess the usability of the website developed.ResultsA total of 3 participatory design workshops were held with the participants, each followed by a knowledge translation session. At the end of the PAR cycle, an alpha prototype of the website was built and a series of one-on-one end user consultation sessions were conducted. The PAR cycle revealed the importance of 6 key topic areas (understanding autism, accessing services, support, gaining funding, putting it all together, and looking into the future) associated with the time of diagnosis, which were incorporated into the beta version of the website.ConclusionsThe development of the Pathways Beyond Diagnosis website using PAR ensures that families have ready access to practical and evidence-based information following a young child’s diagnosis. The website guides families to access relevant, reputable, and evidence-based information in addition to summarizing key challenges encountered after diagnosis (ie, grief, sharing the diagnosis) and the importance of self-care.

Designing Engagement in Local News: Using FOIA Requests to Create Inclusive Participatory Journalism Practices

ABSTRACT This study explores how an engaged journalism process supported by participatory design practices can impact attitudes and perceptions of audience engagement in local journalism. Using MuckRock’s Freedom of Information Act (FOIA) submission tool, journalists, journalism students, and community stakeholders engaged in participatory design workshops centered around pressing local issues and creative approaches to filing FOIA requests. This study re-imagines FOI requests not just as a way to locate source material for important local reporting, but as a visible process that invites the public to engage and understand how that reporting is done — and how anyone can use and benefit from the process. Findings show that design-driven engagement journalism practices can make public records culture more inclusive, engaging, and accessible, and support more collaborative and creative engagement between journalists and audiences.

Participatory design facilitation in career exploration processes for college students

Offering opportunities for students to collaborate and reflect through creative exploration and peer support, participatory design facilitation emerges as an innovative approach for interventions supporting career exploration in college. This paper presents a study developed within a summer internship program for undergraduate students at a North American university. Participatory design workshops discussed challenges, life goals and choices in career exploration. Findings related to individualized work-centered lifestyles, pressure for success, rich exchange of experiences, and increasing self-direction are presented. The study showed the potential of participatory design facilitation to open a space for dialogue and creative collaboration. The emerging themes allow for further investigation and innovative design interventions to support career decision-making in the transition to adulthood.

Supporting Storytelling With Evidence in Holistic Review Processes: A Participatory Design Approach

Review processes involve complex and often subjective decision-making tasks in which individual reviewers must read and rate submissions, such as a college application, along many relevant dimensions and typically with a rubric in mind. A common part of the work is committee review, where individual reviewers meet to discuss the merits of a particular submission in order to recommend an accept or reject decision. Prior work indicates that visualization and sensemaking support may be beneficial in such processes where reviewers must present the "story" of the applicant under question. We conducted a series of participatory design workshops with reviewers in the domain of holistic college admissions to better understand the challenges and opportunities regarding storytelling. Based on these workshops, we contribute a characterization for how reviewers in this domain construct visual stories, we provide guidance for designing for evidence capture and storytelling, and we draw parallels and distinctions between this domain and other reviewing domains.

How can mobile applications support suicide prevention gatekeepers in Australian Indigenous communities?

Suicide prevention training in Aboriginal and Torres Strait Islander communities is a national health priority in Australia. This paper describes a qualitative study to increase understanding of how a mobile application (app) could be used to support suicide prevention gatekeepers in Indigenous communities. We respectfully use the term Indigenous to refer to Australian peoples of Aboriginal and/or Torres Strait Islander descent. Two participatory design workshops were held with 12 participants who were either Indigenous health workers or community members. The workshops first explored what knowledge, skills, and support suicide prevention gatekeepers in Indigenous communities may require, as well as how technology, specifically mobile apps, could be used to support these needs. Qualitative analysis identified four themes related to perceptions of who gatekeepers are, their role requirements, technology and supporting resources, as well as broader community issues. Participants thought training programs should target key, accessible, and respected people from diverse, designated, and emergent groups in Indigenous communities to act as gatekeepers, but requested an alternative, more culturally appropriate term to 'gatekeeper' (e.g., responder). Training should prepare gatekeepers for multifaceted suicide prevention roles, including the identification and management of at-risk Indigenous persons, the provision of psychoeducation and ongoing support, as well as facilitate integrated care in collaboration with community services. A combination of multiple support resources was recommended, including multi-platform options in the technology (e.g., mobile applications, social media) and physical domains (e.g., wallet cards, regular meetings). Recommended app features included culturally appropriate refresher content on suicide intervention, training recall, integrated care, how to access gatekeeper peer support, and debriefing. Broader community concerns on gatekeeper support needs were also considered.

Public open space initiatives for healthier cities in Rwanda

With a population of close to 13 million, and an annual growth rate of 2.86 percent, Rwanda plans to position itself as a climate resilient, low carbon, low unemployment, reduced poverty country, with a strong services sector by 2050. Its projected increase in its urbanization rate from a current value of 18.4 percent to 35 percent by 2024 is driven by strong political will, significant investments in infrastructure, service provision, and human capital development. Rwanda’s secondary cities, identified as economic nodes of growth, are currently undergoing revision of their masterplans in consideration of climate change realities and the pressure on infrastructure and services due to rapid urbanization. Currently, cities in Rwanda do not yet have a system of public open spaces. Where available, such spaces are usually hardly accessible and need upgrading. To address this, the Ministry of Infrastructure, Rwanda Housing Authority, City of Kigali and six secondary cities have committed to deliver on public open space related activities and targets under the yearly performance contract ‘Imihigo’. The outcomes of their commitments support the climate-responsive revision of masterplans of the City of Kigali and six secondary cities. This paper presents public open space initiatives in Kigali and the results of the technical assessment of public open spaces and participatory planning and design workshop in Nyagatare, secondary city in Rwanda’s. It also discusses ongoing policy changes and initiatives that aim to promote public open spaces as crucial for urban public health.

Co-designing the InnoWell Platform to deliver the right mental health care first time to regional youth.

Building upon earlier research, a person-centred technology-enabled solution (the InnoWell Platform) is being co-designed and implemented into regional youth primary mental health services to improve clinical safety and service quality. Co-design methodologies of service pathway mapping and participatory design workshops as well as usability testing guide the development and implementation of the InnoWell Platform. headspace centres on the North Coast of New South Wales and their associated communities. Participation in co-design methodologies, implementation and uptake, identification of youth mental health care needs, and service provision. Nine service pathway mapping (N=81 participants) and 10 participatory design (N=48) workshops and usability testing sessions (N=30) with youth, their supportive others, health professionals, service managers and administrators have been conducted. Four headspace centres have implemented the InnoWell Platform. To date, 120 youth are using the platform and 96 have completed an initial multidimensional assessment. Of these, the majority reported moderate-to-high psychological distress and a quarter reported experiencing high suicidal thoughts and behaviours with subsequent earlier provision of care. Young people have independently commenced recommended online tools and collaborated on clinical care options with their health professionals. Preliminary findings support co-design methodologies for the development of person-centred technology-enabled solutions embedded within youth primary mental health services in regional Australia. The findings further demonstrate that such solutions may improve clinical safety and service quality, which in turn may facilitate the delivery of the right care, first time!

A Chatbot-Based Coaching Intervention for Adolescents to Promote Life Skills: Pilot Study.

BackgroundAdolescence is a challenging period, where youth face rapid changes as well as increasing socioemotional demands and threats, such as bullying and cyberbullying. Adolescent mental health and well-being can be best supported by providing effective coaching on life skills, such as coping strategies and protective factors. Interventions that take advantage of online coaching by means of chatbots, deployed on Web or mobile technology, may be a novel and more appealing way to support positive mental health for adolescents.ObjectiveIn this pilot study, we co-designed and conducted a formative evaluation of an online, life skills coaching, chatbot intervention, inspired by the positive technology approach, to promote mental well-being in adolescence.MethodsWe co-designed the first life skills coaching session of the CRI (for girls) and CRIS (for boys) chatbot with 20 secondary school students in a participatory design workshop. We then conducted a formative evaluation of the entire intervention—eight sessions—with a convenience sample of 21 adolescents of both genders (mean age 14.52 years). Participants engaged with the chatbot sessions over 4 weeks and filled in an anonymous user experience questionnaire at the end of each session; responses were based on a 5-point Likert scale.ResultsA majority of the adolescents found the intervention useful (16/21, 76%), easy to use (19/21, 90%), and innovative (17/21, 81%). Most of the participants (15/21, 71%) liked, in particular, the video cartoons provided by the chatbot in the coaching sessions. They also thought that a session should last only 5-10 minutes (14/21, 66%) and said they would recommend the intervention to a friend (20/21, 95%).ConclusionsWe have presented a novel and scalable self-help intervention to deliver life skills coaching to adolescents online that is appealing to this population. This intervention can support the promotion of coping skills and mental well-being among youth.

Re-Designing the Design Brief as a Digital Learning Tool with Participatory Design Approach

Today, industrial design education is faced with a new group of students who have met daily life technologies from a very early age. The transformations in educational environments are becoming more and more important for project-based and student-centered design education model. Understanding the needs and expectations of the changing student profile has become essential for design education, which puts new and original outputs as the main objective. Students’ expectations of having a say in their own learning environments also provide an important opportunity for them to play an active role in the focus of this change. The aim of this study is to determine the design criteria of a new learning tool in line with the needs and expectations of the new generation industrial design students with a student-oriented approach. Participatory Design workshops were organized to expose expectations of the current learners about a new Design Brief in a digital and online medium. In this qualitative study conducted with participatory design method, gamification elements were used to increase students’ motivation, interest, and participation. Design criteria for a new generation design brief have been introduced with participatory design method. All suggestions were found to indicate a more interactive structure depending on the variable and cyclical structure of the design.

Pebble in the pond : The socio-spatial effects of a participatory landscape design project in Budapest

Architecture is an intervention in the existing socio-spatial dynamics of a given society. This intervention can strengthen the status quo or create a new social order by triggering social relations and conflicts, which empowers one social group while oppressing others. This paper offers a deeper insight into the impact of this intervention by analysing a participatory landscape design project in Budapest and the surrounding discourses. The participatory landscape design project of Teleki Square in the 8th district of Budapest was carried out in 2013 with the involvement of local residents. The project was hailed as a success by the field of architecture, the media, and the local council. However, critical voices drew attention to the fact that the marginalized people of the neighbourhood were not present in the design process and only a quasi-homogenous and relatively more affluent group of people attended the design workshops. While the participating group has been empowered by the participatory design project, the group gained de facto the right to control the accessibility of Teleki Square. In this context the participatory landscape design project can be seen as a struggle for the urban space, where the lay participants circumstantially became the supporters of the ongoing local council-led gentrification in the neighbourhood. To understand this struggle and the dynamism that the participatory design brought in the socio-spatial conditions of the neighbourhood, this paper uses relational analysis. As opposed to choosing the stakeholders of the design project as fixed analytical units for a starting point of the analysis, the author builds on a relational framework that enables one to grasp the emerging and disappearing circumstantial coalitions between the stakeholders. Looking at the participatory landscape design project as a field of forces nested within the field of the gentrification, the position of the stakeholders can be defined by the different types of capital they possess. This analysis builds on interviews with four stakeholder groups of the participatory landscape design project (local council, architects, ‘Partners for the Teleki Square Association’ and ‘critical intellectuals’), videos of the participatory design workshops and local council documents. The empirical data was collected in 2016–2017.

Development of a Mobile Game to Influence Behavior Determinants of HIV Service Uptake Among Key Populations in the Philippines: User-Centered Design Process.

BackgroundOpportunities in digital distribution place mobile games as a promising platform for games for health. However, designing a game that can compete in the saturated mobile games market and deliver persuasive health messages can feel like an insurmountable challenge. Although user-centered design is widely advocated, factors such as the user’s subject domain expertise, budget constraints, and poor data collection methods can restrict the benefits of user involvement.ObjectiveThis study aimed to develop a playable and acceptable game for health, targeted at young key populations in the Philippines.MethodsAuthors identified a range of user-centered design methods to be used in tandem from published literature. The resulting design process involved a phased approach, with 40 primary and secondary users engaged during the initial ideation and prototype testing stages. Selected methods included participatory design workshops, playtests, playability heuristics, and focus group discussions. Subject domain experts were allocated roles in the development team. Data were analyzed using a framework approach. Conceptual frameworks in health intervention acceptability and game design guided the analysis. In-game events were captured through the Unity Analytics service to monitor uptake and game use over a 12-month period.ResultsEarly user involvement revealed a strong desire for online multiplayer gameplay, yet most reported that access to this type of game was restricted because of technical and economic constraints. A role-playing game (RPG) with combat elements was identified as a very appealing gameplay style. Findings guided us to a game that could be played offline and that blended RPG elements, such as narrative and turn-based combat, with match-3 puzzles. Although the game received a positive response during playtests, gameplay was at times perceived as repetitive and predicted to only appeal to casual gamers. Knowledge transfer was predominantly achieved through interpretation of the game’s narrative, highlighting this as an important design element. Uptake of the game was positive; between December 1, 2017, and December 1, 2018, 3325 unique device installs were reported globally. Game metrics provided evidence of adoption by young key populations in the Philippines. Game uptake and use were substantially higher in regions where direct engagement with target users took place.ConclusionsUser-centered design activities supported the identification of important contextual requirements. Multiple data collection methods enabled triangulation of findings to mediate the inherent biases of the different techniques. Game acceptance is dependent on the ability of the development team to implement design solutions that address the needs and desires of target users. If target users are expected to develop design solutions, they must have adequate expertise and a significant role within the development team. Facilitating meaningful partnerships between health professionals, the games industry, and end users will support the games for health industry as it matures.

Exploring Older Adults' Beliefs About the Use of Intelligent Assistants for Consumer Health Information Management: A Participatory Design Study.

BackgroundIntelligent assistants (IAs), also known as intelligent agents, use artificial intelligence to help users achieve a goal or complete a task. IAs represent a potential solution for providing older adults with individualized assistance at home, for example, to reduce social isolation, serve as memory aids, or help with disease management. However, to design IAs for health that are beneficial and accepted by older adults, it is important to understand their beliefs about IAs, how they would like to interact with IAs for consumer health, and how they desire to integrate IAs into their homes.ObjectiveWe explore older adults’ mental models and beliefs about IAs, the tasks they want IAs to support, and how they would like to interact with IAs for consumer health. For the purpose of this study, we focus on IAs in the context of consumer health information management and search.MethodsWe present findings from an exploratory, qualitative study that investigated older adults’ perspectives of IAs that aid with consumer health information search and management tasks. Eighteen older adults participated in a multiphase, participatory design workshop in which we engaged them in discussion, brainstorming, and design activities that helped us identify their current challenges managing and finding health information at home. We also explored their beliefs and ideas for an IA to assist them with consumer health tasks. We used participatory design activities to identify areas in which they felt IAs might be useful, but also to uncover the reasoning behind the ideas they presented. Discussions were audio-recorded and later transcribed. We compiled design artifacts collected during the study to supplement researcher transcripts and notes. Thematic analysis was used to analyze data.ResultsWe found that participants saw IAs as potentially useful for providing recommendations, facilitating collaboration between themselves and other caregivers, and for alerts of serious illness. However, they also desired familiar and natural interactions with IAs (eg, using voice) that could, if need be, provide fluid and unconstrained interactions, reason about their symptoms, and provide information or advice. Other participants discussed the need for flexible IAs that could be used by those with low technical resources or skills.ConclusionsFrom our findings, we present a discussion of three key components of participants’ mental models, including the people, behaviors, and interactions they described that were important for IAs for consumer health information management and seeking. We then discuss the role of access, transparency, caregivers, and autonomy in design for addressing participants’ concerns about privacy and trust as well as its role in assisting others that may interact with an IA on the older adults’ behalf.International Registered Report Identifier (IRRID)RR2-10.1145/3240925.3240972

User-Centered Design Approaches to Integrating Intellectual Property Information into Early Design Processes with a Design Patent Retrieval Application

ABSTRACTThe relationship between intellectual property rights (IPRs) and the development of creativity is always a controversial topic. However, it has seldom been explored from the user-centered design (UCD) perspective. This paper describes how the UCD approach has been employed to develop Design Patent Retrieval Application (acronym: DsPLAi), a mobile app aimed to integrate IPRs related information into early design processes to enhance designers’ IP practice and to facilitate the creative process. Interview studies were first conducted to identify end-users’ understanding of IPRs and related practices. Next, participatory design workshops with designers and IP processionals were organized to understand the interaction between the two parties and their needs, thereby deriving requirements for DsPLAi. A prototype of the app was developed and evaluated with ten industrial designers. The prototype received positive feedback in the usability evaluation. The empirical results showed that the provision of IPRs related information at an early stage could be helpful to the design process and that the designers were positive about the use of DsPLAi in their daily design routines.

Co-Designing a Citizen Science Program for Malaria Control in Rwanda

Good health and human wellbeing is one of the sustainable development goals. To achieve this goal, many efforts are required to control infectious diseases including malaria which remains a major public health concern in Rwanda. Surveillance of mosquitoes is critical to control the disease, but surveillance rarely includes the participation of citizens. A citizen science approach (CSA) has been applied for mosquito surveillance in developed countries, but it is unknown whether it is feasible in rural African contexts. In this paper, the technical and social components of such a program are described. Participatory design workshops were conducted in Ruhuha, Rwanda. Community members can decide on the technical tools for collecting and reporting mosquito species, mosquito nuisance, and confirmed malaria cases. Community members set up a social structure to gather observations by nominating representatives to collect the reports and send them to the researchers. These results demonstrate that co-designing a citizen science program (CSP) with citizens allows for decision on what to use in reporting observations. The decisions that the citizens took demonstrated that they have context-specific knowledge and skills, and showed that implementing a CSP in a rural area is feasible.

Acceptability and feasibility of using digital vending machines to deliver HIV self-tests to men who have sex with men

ObjectiveTechnology-based approaches to distribute HIV self-tests (HIVST) have the potential to increase access to HIV testing in key populations. We evaluate the acceptability and feasibility of using vending machines (VMs)...

Deconstructing Community-Based Collaborative Design

Participatory Design (PD) is envisioned as an approach to democratizing innovation in the design process by shifting the power dynamics between researcher and participant. Recent scholarship in HCI and design has analyzed the ways collaborative design engagements, such as PD situated in the design workshop can amplify voices and empower underserved populations. Yet, we argue that PD as instantiated in the design workshop is very much an affluent and privileged activity that often neglects the challenges associated with envisioning equitable design solutions among underserved populations. Based on two series of community-based PD workshops with underserved populations in the U.S., we highlight key areas of tension and considerations for a more equitable PD approach: historical context of the research environment, community access, perceptions of materials and activities, and unintentional harm in collecting full accounts of personal narratives. By reflecting on these tensions as a call-to-action, we hope to deconstruct the privilege of the PD workshop within HCI and re-center the focus of design on individuals who are historically underserved.

Co-creating a web-based visual representation model for authoring blended learning designs

This paper reports the co-creation process carried out during the development of a web-based visual representation model for authoring blended learning designs. The results of several participatory design workshops with high school teachers of two school communities have allowed to advance the development process through iterative cycles of refinement and improvement. The authoring tool resulting from the co-creation process supports teachers in the planning and visualization of complex blended learning scenarios (including hybrid massive online courses, flipped classroom and problem-based learning designs). Our experience contributes to the research community with a case study on using co-creation in technology-enhanced learning, where we discuss the challenges and opportunities found during the implementation process of this collaborative and participatory approach.

Technology-Enabled Mental Health Service Reform for Open Arms - Veterans and Families Counselling: Participatory Design Study.

BackgroundThe impact of mental ill-health on every aspect of the lives of a large number of Australian Defence Force (ADF) personnel, their partners, and their families is widely recognized. Recent Senate inquiries have highlighted gaps in service delivery as well as the need for service reform to ensure appropriate care options for individuals who are currently engaged with mental health and support services as well as for those who, for a variety of reasons, have not sought help. To that end, successive Australian governments generally and the Department of Veterans’ Affairs specifically have prioritized veteran-centric reform. Open Arms is an Australia-wide service that provides counseling and support to current and former ADF personnel, and their family members, for mental health conditions.ObjectiveThe aim of this study was to develop and configure a prototypic Web-based platform for Open Arms – Veterans & Families Counselling (formerly Veterans and Veterans Families Counselling Service) with the Open Arms community to enhance the quality of mental health services provided by Open Arms.MethodsThe study aimed to recruit up to 100 people from the Open Arms community (current and former ADF personnel and their families, health professionals, service managers, and administrators) in regions of New South Wales, including Sydney, Canberra, Maitland, Singleton, and Port Stephens. Participants were invited to participate in 4-hour participatory design workshops. A variety of methods were used within the workshops, including prompted discussion, review of working prototypes, creation of descriptive artifacts, and group-based development of user journeys.ResultsSeven participatory design workshops were held, including a total of 49 participants. Participants highlighted that the prototype has the potential to (1) provide the opportunity for greater and better-informed personal choice in relation to options for care based on the level of need and personal preferences; (2) ensure transparency in care by providing the individual with access to all of their personal health information; and (3) improve collaborative care and care continuity by allowing information to be shared securely with current and future providers.ConclusionsOur findings highlight the value of actively engaging stakeholders in participatory design processes for the development and configuration of new technologies.