Participatory Culture Research Articles

Evaluating public and patient involvement in interventional research-A newly developed checklist (EPPIIC).

Public and patient involvement (PPI) has been identified as an increasingly desired and, often, required component of trial methodology-leading to higher quality, more accessible and relevant clinical research, alongside increased recruitment, funding success and insight into research impact. However, despite the great variety of frameworks and checklists available for assessing PPI, most are limited with respect to important features (e.g. applicable in specific contexts only, fail to clarify what should be assessed and reported, lack the necessary comprehensiveness or are biased in favour of researcher reporting). Thus, the current research aimed to address such limitations through the development of a new checklist, the EPPIIC, through review, thematic analysis and 'meta-evaluation' in conjunction with PPI engagement. Upon completion of the EPPIIC, three thematic 'sub-scales' emerged: (1) Policy & Practice, (2) Participatory Culture and (3) Influence & Impact. All findings are presented and discussed in light of theory and research. Notably, findings recommend EPPIIC as a useful means of assessing PPI in future trials.

The Digital Superhero: Conspiracy and Convergence

ABSTRACT The superhero is a popular figure in contemporary media: not just single characters, plots and movies, but entire universes and ‘phases’ spread across multiple protagonists, narrative arcs, devices, mediums and formats, from films and television shows to video games and books. Across much content, a reliance on conspiracy is evident: to motivate characters, link together plots, and move them across time and space. This article articulates paranoia and conspiracy as an emergent aesthetic bound up with the affordances of digital technology. It thus articulates these aesthetic impulses as the outcome of a cultural logic of convergence embodied in the affordances and demands of digital technologies and ecosystems. Considering the three aspects of convergence culture identified by Henry Jenkins (technology, culture, participation), and how they operate within superhero media under the aegis of digitization, this article discusses their penumbra: conspiratorial technology, conspiratorial culture, and conspiratorial participation.

Exploring Culture and Sustainability: Community Participation in Indigenous Tourism in Malaysia

Nowadays, Indigenous tourism contributes to the conservation of cultural heritage and further supports sustainable development for Indigenous communities, which ultimately increases socio-economic well-being. By providing unique cultural experiences, Indigenous tourism gives greater recognition and respect for the culture while also economically benefiting. This paper aims to examine how such dynamics operate in the context of Indigenous tourism from the viewpoint and experiences of Indigenous community members who participated in tourism initiatives. Identifying culture as one of the crucial parameters that determine successful outcomes in this field, this study intends to explore how people participate in sustainable development through tourism and close important gaps using a cultural lens. Numerous databases containing scholarly research, including the Emerald Insights, Science Direct, and Web of Science, have been used in this study. As a response to the ever-growing call for inclusive and respectful tourism, this study aims to contribute valuable insights and geographical relevance to defining policy change, practice modifications, or academic pursuits of Indigenous tourism. The result of this study will fill crucial empirical research gaps in terms of how cultural restoration, tourism management, and community participation can be optimized for sustainable development with nuanced voices that are necessary to drive policy change as well as practice modifications.

Divine Medicine: Healing and Charity Through Spirit-Writing in China

This study traces the evolution of religious healing practices associated with divine presence in China, from pre-modern traditions to the modern use of spirit-writing for obtaining divine prescriptions. It examines the continuity and transformation of these practices from the late imperial period to contemporary times. It argues that healing through divine prescriptions obtained via spirit-writing challenges the perceived dichotomy between religion and science, demonstrating that they have complementary roles, rather than being strictly opposing categories. For members of Jishenghui 濟生會, a lay Buddhist charity devoted to the Buddhist god Jigong 濟公 in Republican China, religion and scientific medical practice were integrated as complementary elements of daily life, combining doctrinal beliefs, ritual practices, and moral self-cultivation. This study examines how Jishenghui used spirit-writing to obtain and distribute divine prescriptions and medicines, demonstrating that the organization’s philanthropic activities and social standing were enhanced by the integration of religious beliefs with medical and charitable practices during the Republican period. This study bridges existing research on the histories of spirit-writing and Chinese medicine, and the distinctions made between “Buddhist medicine” and “Daoist medicine”. The article contends that, for ordinary people, no strict distinction existed between Buddhist and Daoist healing practices; instead, a shared religious culture regarding illness and healing was predominant. By contextualizing key analytical concepts such as “divine medicine”, especially “divine prescriptions” (jifang 乩方 and xianfang 仙方) within the broader history of Chinese medicine and religious practices, this article demonstrates the social significance of spirit-writing as a ritual technique to provide healing and charity by lay Buddhists in Republican China, and its enduring relevance in contemporary Chinese societies.

Cultural Engagement and Subjective Well-Being in the Cluj Metropolitan Area: An Exploration in Cultural Commoning and Collaborative Development

We explore cultural participation's impact on subjective well-being in Cluj Metropolitan Area. Using telephone surveys, we identify a positive correlation between cultural engagement and increased well-being, mediated by cultural appraisal. Three primary participation types—active, receptive, and entertainment-related—are identified. Active and entertainment-related activities indirectly enhance well-being through cultural appraisal, while receptive participation shows no significant direct or indirect effect. Controlling socio-economic factors, the mediation analysis underscores cultural practices’ significant impact on well-being. These findings support the “cultural commoning” hypothesis, indicating collective urban cultural engagement fosters shared values and improves subjective well-being.

Local Ventures’ Shared Leadership Persuasion: How Knowledge Sharing and Interactive Work Culture Influence Employees’ Innovation

This research investigates the effect of shared leadership on employee innovation and the mediating and moderating roles of knowledge-sharing and interactive work culture in the relationship between shared leadership and employee innovation. A total of 840 respondents from 120 local beverage companies in three provinces in Indonesia were selected using purposive sampling. The survey instruments were initially tested for validity and reliability as a preliminary analysis. Data obtained during the survey were then analyzed using the hierarchical regression method with Statistical Package for the Social Science (SPSS). This research reveals that shared leadership positively affects knowledge sharing and employee innovation. In addition, knowledge sharing partially mediates the relationship, while interactive work culture moderates the relationship between shared leadership and employee innovation behavior. This study is among the first to discuss the relationship between shared leadership and employees’ innovative behavior using knowledge sharing as a mediator and interactive work culture as a moderator in the context of local beverage companies in Indonesia.

Engaging the everyday: the concept and practice of ‘everyday heritage’

ABSTRACT In this paper, we explore what it means to link heritage to the everyday, how this has been framed in the field of heritage studies to date and how engagement with the everyday might generate future opportunities for heritage practice. We highlight distinctive aspects of everyday heritage, including its post-representative nature, the importance of urban activism, digital and historical forms of cultural participation, as well as its aesthetic re-framing of the ordinary. We conclude that while the term is often used to describe a non-hegemonic, unofficial form of heritage, everyday heritage tends to merge the authorised and the unauthorised. We finish by distilling our findings into a working manifesto for everyday heritage as a provocation for future discussion and debate on this topic.

Systematic Literature Review: The Effect of Quality of Work-Life Balance and Corporate Culture on Employee Engagement

This study explores the impact of work-life balance and organizational culture on employee engagement within an organization. As companies navigate the global market, human resources play a critical role in determining performance and competitive advantage. Organizational culture serves as a guiding framework that shapes employee behavior, while work-life balance directly influences employee well-being and productivity. Using a Systematic Literature Review (SLR) methodology, the study synthesizes findings from peer-reviewed publications indexed in Sinta, focusing on the relationships between these variables. The results indicate that both work-life balance and organizational culture significantly contribute to higher levels of employee engagement, enhancing motivation, commitment, and organizational performance. Employees in environments that prioritize work-life balance and foster open, participatory cultures tend to be more productive and loyal, reducing turnover rates. This research highlights the importance of creating policies that support a healthy work-life balance and positive work culture to improve employee engagement. Future research could examine these variables longitudinally, consider industry-specific dynamics, and incorporate qualitative methods for deeper insights.

HOLISTIC AND HUMANISTIC: AN ANALYSIS OF WOMEN HEALTH NARRATIVES IN RURAL INDIA

A female’s physical and psychological being is structured around the roles of belief systems and shared culture. The stigma around women’s health in India incorporates many factors, concepts, and theories. A woman’s diagnosis is seen as biologically biased and the medicine in itself is gender biased in practice. The reductionist approach explains an illness through the biological lens and not much favourable to women. Therefore, a holistic and humanistic approach recognises human illness as a whole concept with social, cultural, political, and personal factors. The medical humanities increase awareness of social, humanistic, and cultural dimensions around health. This paper studies two case study based out of rural India which speak comprehensively of possible prejudice and practices in the health sector. The research draws upon a conceptual study through medical humanities approach. Concluding upon the structures of biomedical discourses and how they can affect the agency of women’s bodies and being, and how gender and illness coalesce to reflect upon a woman’s suffering.

Inspiring Contributions: Fan Leaders’ Directives and Encouragement in the Chinese Online Celebrity Fan Community

Abstract In the neoliberal era, there is a new phenomenon where numerous fans follow fan leaders’ instructions to make tangible or intangible contributions to support celebrities, which has exacerbated economic polarization. Although past studies have explored fan empowerment in the Internet era, fan leaders’ promotion effect has remained unstudied. This study aimed to discover fan leaders’ role in guiding fans’ contributions in the Chinese fan community. By integrating a two-step flow model and participatory culture theory, it used qualitative content analysis to analyze 410 posts and 972 comments in the Chinese singer Song Yaxuan’s fan community from February 3 to 10, 2023. Through an inductive approach, four main themes were derived from results: (1) task delegation and empowerment; (2) user-friendly instructions and seamless communication; (3) highlighting a sense of crisis and putting pressure on fans; and (4) fostering a collective mindset. The findings revealed fan leaders use different techniques and the top-down structure in the community to encourage fans to give voluntary contributions of money or time to the celebrity’s development. Theoretically, this study showed internal operation logic in Chinese fan community. Practically, the study shed light on how to lessen the harmful consequences of neoliberalism’s features within the Chinese entertainment industry and realize healthy development.

Social Stratification on the Political Participation of Generation Z Women in Pantai Bahagia Village and Medalkrisna Village, Bekasi Regency

This study aims to understand the relationship between social stratification and the political participation of Generation Z women in Pantai Bahagia Village and Medalkrisna Village, Bekasi Regency. The method used was a mixed-methods approach that combines both quantitative and qualitative approaches. The political participation of Generation Z women was measured based on the forms of conventional, non-conventional, cultural, and digital participation. The research results indicate that there is variation in political participation based on social stratification, with the lower strata tending to be more active in conventional political participation, the middle strata being more active in digital political participation, and the upper strata being more involved in election administration. This study highlights the importance of creating an inclusive political environment to enhance young women’s political participation.

Disrupting harmful gender norms: Youth at the centre

Disrupting harmful gender norms: Youth at the centre Dr Claudia Mitchell, Director of the Participatory Cultures Lab, Department of Integrated Studies in Education (DISE). McGill University, tells us about the TRANSFORM project aimed at disrupting harmful gender norms and mobilizing for social change. Gender inequalities and discrimination persist glaringly around the globe. Gender-based violence stands out as one of the most widespread human rights violations. Forced and early marriage and female genital mutilation also continue to have an impact on the lives of young people. The United Nations has identified transforming harmful gender norms as a critical goal among its 17 Sustainable Development Goals for 2030.

Community, Socialisation, and Empowerment in Cultural Game Jams with Youth Citizens

This paper examines social and collaborative elements of Cultural Game Jams developed and implemented in the large-scale Europe Horizon research and innovation project, EPIC-WE: Empowered Participation through Ideating Cultural Worlds and Environments (2023-2026). The project explores and develops transdisciplinary collaboration and co-creation across cultural heritage institutions, creative industries, higher education institutions, and youth citizens (ages 16-25) towards Cultural Game Jam interventions across three European sites: Óbidos (Portugal), Hilversum (Netherlands), and Aarhus (Denmark). The Cultural Game Jams are held at cultural heritage sites and are aimed towards value-sensitive game design and youth empowerment. This paper explores Cultural Game Jams as a potential format for enabling and developing youths’ empowered participation, communality, and cultural socialisation by analysing the first Cultural Game Jam (2024). Framed by a Design-Based Research methodology and guided by experimental and short-term ethnography and design experiments, the analyses draw from qualitative empirical material, e.g., interviews, participatory observations, field notes, and the Cultural Game Jam participants' reflective process and design documentation. The analyses illustrate how co-creating games within cultural heritage contexts can develop youth perceptions of community, cultural socialisation processes, and individual/collective empowerment. Furthermore, the paper offers insights into the co-creation of games as new expressions of cultural heritage through epistemic collaboration and cultural participation in game jams while discussing possibilities for enabling new experiences of empowered participation, social learning, and community among youth citizens.

The Impact of Total Quality Management (TQM) on Innovation Performance with Knowledge Sharing and Organizational Culture as Intervening Variables: A Study on PT Pos Indonesia (Persero) Bandung

This study examines the effect of Total Quality Management (TQM) on innovation performance at the Main Branch Office of PT Pos Indonesia (Persero) Bandung, with knowledge sharing and organizational culture serving as intervening variables. The data was collected using a saturated sampling of 85 respondents and analysed using Structural Equation Modelling using SmartPLS. This research method is commonly used in quantitative research. Organisational culture, knowledge sharing, and innovation performance are all positively and significantly impacted by TQM, according to the findings. Furthermore, the connection between TQM and innovation performance is moderated to a large extent by both knowledge sharing and organisational culture. This research shows that TQM, supported by a values-driven culture and an emphasis on information sharing, is essential for encouraging innovation.

Co-creation of value in a cultural organizations’ ecosystem

From the perspective of Service Dominant Logic (Vargo and Lusch 2018), this research analyzes how co-creation of value develops in a Peruvian cultural ecosystem through analyzing its actor’s engagement, embeddedness, and value-in-context. The findings obtained aim to contribute to the dialogue between S-D logic and Arts Marketing, and to put light on the mechanisms that activate and restrict cultural participation in a service ecosystem. The research consists of a multiple case study which analyzes the Peruvian Puntos de Cultura Network (PPDCN) through 9 of its organizations. Participants include organizational leaders, users, and Network central headquarters’ managers. The instruments were an exploratory survey, semi-structured interviews, and a focus group. The analysis included codification, inter-rater reliability, ‘making-strange tool’ and a meta-matrix. Through the study of the co-creation of value in the PPDCN, findings revealed the following mechanisms for cultural participation: (1) Activation mechanisms: co-production between organizations and users; high leader engagement; cultural identity activities; educative, affective and entertainment-oriented activities. (2) Restriction mechanisms: different institutional logics at any level of interaction: organizations and Headquarters managers, organizations and socio-cultural environment, Headquarters managers and state actors; misalignment of platforms.

Blog Serials: Digital Literature, Seriality, Readerly Performativity

Abstract The 1990s and the first decade of the 2000s were a period that witnessed dramatic changes in the literary scene in South Korea. Literary production’s engagement with digital media was one of the major changes in this period, when the divide, collision, and merge between pre-digital and digital came to affect almost every aspect of the society. This article explores the divergent strands in the development of digital literature, the new affordances of the digital environment that affected the literary serial vis-à-vis the print serial, and a virtual and actual community that readers and writers created through their engagement with literary texts and beyond. Through close analysis of a blog serial of Hwang Sŏgyŏng’s Evening Star (February 27–July 21, 2008; 102 episodes in all), which represents one of the significant moments in the early digital serialization of South Korean literature, this article discusses various types of performativity and participatory culture generated by and connected to the blog serial and participants.

Family Involvement in Routine Services for Individuals With Severe Mental Illness: Scoping Review of Barriers and Strategies.

The authors investigated barriers to practices that promote family involvement in mental health services, focusing on individuals with severe mental illness, their families, and mental health providers. Additionally, the authors sought to identify strategies to facilitate family involvement in mental health provision to highlight the engagement process in routine practice and propose future directions for organizations to establish a family-friendly environment. Systematic searches for literature published from January 1990 to March 2023 were conducted in PsycInfo, PubMed, CINAHL, Sociological Abstracts, and Scopus databases. Gray literature searches and backward and forward snowballing strategies were also used. Forty-six articles were reviewed, revealing contextual backgrounds and engagement practices that hindered family involvement. Inconsistencies in family involvement stemmed from organizational culture, societal attitudes, and providers' negating of family expertise. Uncertainty regarding confidentiality policies and the absence of practice guidelines posed challenges for providers. Negative experiences of families within the mental health system along with variable commitment also hampered involvement. Some service users declined family involvement because of privacy concerns and differing expectations regarding the extent of involvement. Promoting a shared culture of family work, integrating practice standards, and engaging in professional development activities emerged as key strategies. A gap exists between implementing policies and practices for family involvement in mental health treatment. Without cultural and organizational shifts in support of working with families, the uptake of family involvement practices will remain inadequate. Each stakeholder has different perceptions of the barriers to family involvement, and family involvement will remain elusive without a shared agreement on its importance.

Health Advice from Instagram Influencers on Polycystic Ovary Syndrome (PCOS): Their Strategies to Establish and Manipulate Credibility

ABSTRACTIndividuals with polycystic ovary syndrome (PCOS) turn to Instagram influencers as an alternative or complementary PCOS information source to their physicians. However, the ambiguous qualifications of influencers, and contradicting claims regarding how to manage PCOS, make it difficult to identify credible sources. Using a directed qualitative content analysis, we examined the range of strategies that 10 Instagram PCOS influencers used to signal credibility. We found that influencers utilized a range of pseudo‐credibility strategies. Another key contribution of the study is a description of how PCOS influencers reference sources to signal credibility. We also found that Instagram PCOS influencers discuss what it means to be healthy with PCOS, and we describe how they contribute to a wider cultural participation in healthism. The findings build upon the source credibility literature to identify novel credibility cues used by influencers as social media platforms evolve, and further, reveal the underlying healthism‐centric discourse of PCOS influencers.

THE ROLE OF CALDERA GEOPARK IN TOURISM DEVELOPMENT OF LAKE TOBA SUPER PRIORITY DESTINATIONS, INDONESIA

This study aimed to analyze the role of the Toba Caldera Geopark as a mediating variable in the development of the Lake Toba area using the SEM-PLS data analysis technique. The research method using SEM-PLS analysis consists of submodels, namely measurement and structural models or external and internal models. The convergent validity of the PLS with reflective indicators is assessed based on the loading factors of the indicators. The results demonstrate that the Toba Caldera Geopark can accelerate the role of tourism variables such as attractions, amenities, and ancillaries in enhancing the development of the Lake Toba area. However, development has not increased the influence of tourism accessibility in the Lake Toba area. The integrated management of Caldera Geopark with tourism development is recommended as an effective approach to expedite the development of Lake Toba area. Tourist destinations were reported to significantly influence the development of the Lake Toba area, and the Caldera Toba Geopark mediated efforts to develop the tourism sector. Factors related to tourist destinations, such as attractions, amenities, and ancillaries, played a significant role in the development of the Lake Toba area. Accessibility did not have a significant influence on the development of the area, either directly or indirectly, through the Geopark. Development was required, including improving attractions, amenities, and ancillaries, using the Caldera Toba Geopark as an approach for management, utilization, and development. Collaboration between the government, private sector, and local and international communities creates sustainable tourism development programmes. Meanwhile, attention to environmental sustainability, local culture, and community participation was important for managing the UNESCO Global Geopark.

Animation Secondary Creation in the Context of Participatory Culture : Focussing on the Development and Transformation of MAD in the 1970s-2000s

Animation Secondary Creation in the Context of Participatory Culture : Focussing on the Development and Transformation of MAD in the 1970s-2000s