Family Participation Research Articles

The effect of conjoint behavioral consultation on achieving communication skills in children with autism spectrum disorder.

This study, uniquely designed with tact and mand-modeling procedures presented through the Conjoint Behavioral Consultation (CBC) method, aims to evaluate the effects on the communication skills of preschool children with autism spectrum disorder (ASD) and the impact on disruptive behaviors (tantrums) at home. A pilot study with the families of three participants informed the adaptations for the main study, which was implemented with the families of nine participants. The research was conducted using an Embedded Mixed Methods Design, a distinctive approach that allowed for a comprehensive understanding of the outcomes. The primary research design was a single-subject research model with multiple probes across participants' designs, ensuring a thorough and individualized assessment. The study was carried out in both home and clinical settings, involving the participation of special education teachers and families. The findings indicate that the tact and mand-modeling procedures presented through the CBC method significantly improved the children's communication skills and led to substantial reductions in tantrum behaviors. All families indicated that the dependent variables held significant social importance. Significant enhancements were noted in the children's communication skills and social engagements after the intervention. The CBC intervention was determined to be feasible and feasible for families, with no additional expenses accrued. The long-term suitability and usefulness of the product in many environments increased its societal acceptance. This study revealed that the CBC approach had a favorable and reliable effect on academic and behavioral advancement.

Exploring the grief journey of bereaved spouses: Insights into the impact of sedation within palliative care

ABSTRACT Despite being the most susceptible to psychopathological consequences, bereaved cancer spouses remain a vastly understudied group. Addressing this gap, a dedicated French research team comprising clinical psychologists, philosophers, and physicians is conducting an ongoing study focused on the emotional and affective complexities experienced by bereaved spouses after the loss of a loved one due to oncological diseases within the realm of palliative care and Continuous Deep Sedation until Death (CDSD). The preliminary data presented below concern the analysis of nine semi-directed interviews analyzed using ALCESTE software, a tool for statistical analysis of textual data based on word co-occurrences. Analysis and comparison of the thematic categories that emerged showed that social support, deep loneliness, and the preservation of memories emerged as central elements of the marital bereavement experience. In addition, the study highlights the critical role of comprehensive palliative care in France and the delicate nature of sedation experiences, revealing intense emotions such as helplessness and anger. Clear communication and active family participation in end-of-life decisions emerged as crucial factors in alleviating the grieving process in spouses. These findings provide valuable insights for healthcare professionals and counselors and underscore the critical need for further research focused on sedation.

What is the meaning of family participation in schools? A multi-voice perspective

ABSTRACT Background Many studies show a positive link between student achievement and family participation in school. Family participation in school can also benefit the whole educational community, contributing to a shared community responsibility for education. Despite this, in many schools, family participation can be incidental or superficial. There are also different understandings of the role of families in schools, with the term ‘family participation’ being ambiguous and complex. Purpose This study aims to analyse how family participation in school is understood in one region of Spain. It explores different forms of family participation by giving voice to a range of different groups involved in students’ education – not just families and teachers. The questions guiding the study are as follows: 1) What role does communication play in family participation in schools?; 2) What are the actions taken by different stakeholders when participating?; 3) How do families approach their rights and duties when participating in school?; 4) What are the barriers to family participation?; and 5) what are the actions for improvement that favour a participatory culture? Method A qualitative, participatory methodology was used, drawing on data collected through semi-structured interviews, both group and individual, with 44 multi-stakeholder participants. A thematic content analysis was carried out using Maxqda22, a qualitative data-analysis programme. A deductive system that generated categories was combined with an inductive system that generated codes. Findings The key factor to achieving participation was effective communication. Sometimes, this was initiated by the school towards the family, and at other times, at the request of the family. In either case, the key to success lay in the design of communicative strategies that went beyond the transmission of information about urgent events occurring at school. Suggested solutions for improving family–school interaction included trusting in families, and training them, or providing them with the necessary tools to approach their participation. Conclusions Participation varies in its nature and occurs when there is a shared school-family project in which attitude and communication play an important role. Barriers to participation include ideological differences, and a lack of genuine awareness of the importance of the role that families can play in school. The main proposal to promote family participation is to find ways to overcome individualism through shared projects.

Individualized Mealtime Routines Support Family-Specific Feeding Goals

Abstract Date Presented 03/23/24 This study aimed to understand how family participation in a caregiver-mediated intervention, Engaged Eaters Program, affected mealtime experiences. Postintervention mealtime changes related to family goals were identified, with limited significance. Primary Author and Speaker: Karla Ausderau Additional Authors and Speakers: Hannah Laufenberg Contributing Authors: Brittany St John, Talia Joseph

Reigniting Intensive Care Unit Liberation.

The Society of Critical Care Medicine has established guidelines to manage pain, sedation, delirium, immobility, family participation, and sleep disruption in the intensive care unit, a set of interventions known as the intensive care unit liberation (ABCDEF) bundle. Adherence to these guidelines has shown positive results. In the intensive care units of a level I trauma academic teaching hospital in central Texas, the rate of bedside nursing staff adherence to the ABCDEF bundle was only 67.1% in January 2022. The aim of this quality improvement project was to improve adherence to the bundle. Knowledge gaps were found to be the driver of the low adherence rate. Two primary needs were identified: (1) education on the elements of the ABCDEF bundle and (2) increased awareness and recognition of incomplete and incorrect documentation. Interventions included focused education on intensive care unit liberation. From February to June 2022, overall adherence to the ABCDEF bundle increased from 67.1% to 95.3%, ventilator use decreased by approximately 10%, and restraint use dropped by about 9%. The incidence of delirium increased, but this increase was due to incorrect patient assessment before the interventions. The results of this project are consistent with literature demonstrating that a multifaceted approach to improving ABCDEF bundle adherence can produce sustainable improvement in patient outcomes. This report may help other organizations facing similar challenges improve adherence to the bundle in a postpandemic environment.

Impact of Sensory Integration Therapy on Family Participation & Dynamics

Abstract Date Presented 03/21/24 Sensory integration (SI) therapy is a common intervention used by OT practitioners. This qualitative study looks beyond the impact of SI on the child to examine how SI therapy affects family dynamics as a whole. Primary Author and Speaker: Brooklyn Osborne Additional Authors and Speakers: Aimee Piller, Jessica McHugh Conlin

Erratum to: Multi-Directional Mechanisms of Participation of the TRIM Gene Family in Response of Innate Immune System to Bacterial Infections.

Erratum to: Multi-Directional Mechanisms of Participation of the TRIM Gene Family in Response of Innate Immune System to Bacterial Infections.

Family-centered care for child cancer treatment in Ethiopia—A qualitative descriptive study

BackgroundFamilies are the primary source of support and strength in the care process of children with cancer. Family-centered care (FCC) is a healthcare delivery approach that considers parents as both partners and care recipients, characterized by providing care based on dignity and respect, information sharing, participation, and collaboration or partnership. AimThis study aimed to describe the delivery of care based on the family-centered care approach at the Tikur Anbessa Specialized Hospital pediatric cancer unit. MethodAn exploratory, descriptive qualitative study was conducted from March 2023 to August 2023. Eighteen participants (thirteen parents and five health care providers) were interviewed using a semi-structured interview guide. All interviews were audio-recorded, transcribed verbatim, and translated into English. The translated transcripts were used for inductive, data-driven thematic analysis. ATLAS.ti 9 software was used to assist the analysis process. ResultTwo themes have emerged during the analysis. These are (1) Information sharing, and (2) Enabling and partnership. Under the information sharing theme, we described parents' understanding of child cancer, parents' information-related expectations, the process of obtaining information, adequacy of information received, and factors inhibiting information sharing. Under the enabling and partnership theme, we presented family participation in childcare, discussion among parents, parents' communication with healthcare providers and psychosocial support. ConclusionSuboptimal implementation of family-centered care practice was identified at the pediatric oncology unit. Practice implicationsThe findings from this study indicate the need to strengthen the provision of child cancer-related information, improve communication, and strengthen family participation in childcare.

Gross Motor Family Report: Refinement and evaluation of psychometric properties.

To refine the Gross Motor Family Report (GM-FR) using parents' input and to evaluate its psychometric properties. In this measurement study, 12 parents of children and adolescents with cerebral palsy (CP), aged 2 to 18 years, classified in all levels of the Gross Motor Function Classification System (GMFCS), were interviewed about their experience completing the GM-FR (content validity). Parents' feedback was used to refine the measure which was then completed by 146 families to evaluate internal consistency, and discriminative and concurrent validity. Forty-six parents completed the GM-FR again, 7 to 30 days later, to evaluate test-retest reliability. GM-FR scoring, pictures, descriptions, and the total number of items were revised based on parents' feedback. The GM-FR version 2.0 demonstrated high internal consistency (Cronbach's α = 0.99), no floor/ceiling effects, and excellent test-retest reliability (intraclass correlation coefficient = 0.99). GM-FR scores discriminated between GMFCS levels (p < 0.05) and were strongly negatively correlated with GMFCS level (r = -0.92; p < 0.001). GM-FR scores correlated positively and strongly with the Gross Motor Function Measure-66 (r = 0.94; p < 0.001) and the Pediatric Evaluation of Disability Inventory - Computer Adaptive Test mobility domain (r = 0.93; p < 0.001). Active participation of families in the GM-FR's development facilitated creation of a family-friendly instrument. This study provides strong evidence of reliability and validity to support GM-FR use in clinical practice and research for assessing gross motor performance of children and adolescents with CP.

Hubungan Sikap, Sosial Budaya, Dan KIE (Komunikasi, Informasi, Edukasi) Terhadap Keikutsertaan Ibu Dalam Mengikuti Program KB IUD Di Wilayah Puskesmas Jatirahayu Bekasi Jawa Barat

Introduction: An Intra-Uterine Device (IUD) is a long-term non-hormonal contraceptive that is inserted in the uterus and is made of a plastic/copper-like material and has various shapes. Participation in IUD KB is the behavior of women in following all procedures for using IUD contraception, such as the initial examination before installation, the installation procedure, and the examination after installation. This study aims to determine the relationship between attitude, socio-culture, and KIE on the participation of mothers in the IUD family planning program in the Jatirahayu Health Center area. Methods: Using descriptive analytics with a cross-sectional approach. The sampling technique used was total sampling with a total of 33 respondents. Results: The results showed that there was a relationship between attitudes towards participation in the IUD family planning program, which obtained a p-value of 0,039; but there was no relationship between socio-culture and participation in the IUD family planning program p-value of 0,425; and KIE towards participation in the IUD family planning program p-value 1,000. Discussion: This study concludes that there is a relationship between attitudes towards participation in the IUD family planning program and no relationship between socio-culture and KIE towards participation in the IUD family planning program for mothers in the working area of the Jatirahayu Health Center in 2023. Suggestions for prospective family planning acceptors are expected to increase knowledge of the benefits and effectiveness of IUD family planning to foster trust and motivation to participate in the IUD family planning program.

Investigating how parental participation shapes the educational attainment of Indian children

Although greater participation from parents is preferred, it does not always translate into better outcomes. Examining the link between parental involvement in the home and academic achievement is the goal of this study. Data were collected from 337 students at Chandigarh University (CU) in India. The researcher gathered the primary dataset from two nations during the academic year. How this study develops the concept of feature aggregation significantly increased the age group of students' prediction accuracy. Compared to students from more distant or indirect profiles of family participation, students from households with aggressive parenting approaches frequently underperformed. Even after the impacts of context or background variables have been considered, parental participation patterns continue to affect learning outcomes at the level of each kid and the school. Schools should consider parental engagement when creating family knowledge and teaching programs since it is crucial for student success. At schools with more open family ideologies, there is less intra school diversity in student academic success.

NREM parasomnia-related behaviors and adverse childhood experiences

PurposeTo assess the prevalence, types, sociodemographic factors, and reported dangerous activities of sleep-related behaviors likely representing NREM parasomnia episodes, as well as their association with adverse childhood experiences in Hungary. MethodsCross-sectional survey of 1000 adults (aged ≥18 years) representing the Hungarian population, using a non-probability quota sampling with a random walk method and a structured face-to-face interview. A multi-criterion weighting procedure was applied to correct bias along the main sociodemographic variables to the data available. Binary logistic regression estimated the odds of NREM parasomnia-related behaviors associated with sociodemographic factors and adverse childhood experiences. ResultsThe prevalence of NREM parasomnia-related behaviors was 2.7 %, and self-reported sleep-eating was 0.1 % of the population (4.6 % of parasomnia-like activities). For middle-aged adults, the odds of sleep ambulation were significantly lower than for younger adults (OR 0.3; P = 0.03). A participant's family occurrence of reported parasomnia-like activity increased their odds of having it by more than 7 times (OR 7.1; P < 0.001). Nine participants out of those 27 people reporting NREM parasomnia-related behavior episodes, reported childhood adverse experiences, increasing the odds of parasomnia-related behavior by more than six times (OR 6.2; P < 0.001) compared to those not reporting it. ConclusionThis is the first population survey in Hungary on adult sleep-related behaviors likely representing NREM parasomnia episodes and the potential association with childhood traumatic events preceding them. The related dangerous behaviors call for safety measures and prevention. The significant association between adverse childhood events and NREM parasomnia-related behaviors needs further analysis.

Financial market participation, household asset choices, and resident well-being: An empirical analysis of China family panel studies data

As a fundamental unit of economic society, family participation is crucial for promoting financial market development and social progress. This study empirically tested the impact of residents’ household financial market participation on their well-being using Chinese micro-household data. The findings show that residents’ participation in financial markets can significantly enhance their well-being. The choice of household assets played a significant positive moderating role in financial market participation on residents’ well-being. Further analysis indicates that marketization and urban residency positively mediated the effects of financial market participation on residents’ well-being.

A Different Look at the Family in the Family Participation Program in the ICU Is One of the Factors Influencing the Psychological Outcomes.

A Different Look at the Family in the Family Participation Program in the ICU Is One of the Factors Influencing the Psychological Outcomes.

Factors Influencing Post-Traumatic Stress Disorder in Hospital Clinical Nurses during COVID-19 in Korea: Resilience, Social Support, and Professional Pride in Nursing.

During the COVID-19 pandemic, clinical nurses in hospitals in South Korea were exposed to extreme stress, and many continue to suffer from post-traumatic stress disorder (PTSD). This study explores the factors influencing PTSD among hospital clinical nurses during COVID-19. In total, 121 hospital clinical nurses participated in 2022, providing demographic information and completing surveys designed to measure PTSD, resilience, social support, professional pride in nursing (PPN), and variables related to COVID-19. We observed statistically significantly higher levels of resilience (91.48 vs. 70.00), social support (47.37 vs. 35.41), and PPN (88.36 vs. 68.06) in the low-risk PTSD group compared with the high-risk PTSD group. Resilience was associated with a reduced risk of PTSD (OR, 0.91; 95% CI = 0.84-0.98). The subfactors of control (OR = 0.60; 95% CI = 0.43-0.86) and sociability (OR = 0.68; 95% CI = 0.44-0.97) decreased PTSD risk. Among the social support subfactors, family support had an OR of 0.47 (95% CI = 0.26-0.86) for reducing PTSD risk. Programs involving family participation that enhance resilience and provide psychological support can help hospital nurses affected by the COVID-19 pandemic manage their PTSD. Our findings serve as foundational data to develop interventions on psychological well-being for nurses dealing with new infectious diseases.

Applying a User-Centered Design Framework to Develop a Remote Research Assessment Protocol for a Randomized Clinical Trial for Toddlers with Early Autism Characteristics.

COVID-19 required many research teams to shift from in-person to remote assessments, which posed both procedural and theoretical challenges. While research has explored the utility of remote assessments for autism diagnosis from the perspective of families and clinicians, less is known about their application in clinical trials. This paper describes the development of a remote research assessment protocol for a randomized clinical trial focusing on the implementation of reciprocal imitation teaching (RIT) with toddlers in Part C early intervention. This project spans two phases. For Phase 1, our team developed and documented a series of steps utilizing user-centered design (UCD) strategies (e.g., recruiting potential users, creating a prototype, engaging in iterative development) for the purpose of redesigning an assessment protocol for a remote environment. For Phase 2, we examined preliminary outcomes of the redesign process. Primary end users (assessors) rated post-redesign usability and acceptability, while acceptability was examined using attrition data from secondary end users (family participants). Preliminary fidelity of implementation was also examined. The iterative redesign process allowed the research team to refine aspects of the assessment that ultimately led to promising preliminary ratings of usability, acceptability, and feasibility, as well as high fidelity. Preliminary data suggest that the redesigned assessment appears to be an acceptable, feasible, and usable tool for autism clinical trial research and that assessors can use it with fidelity. Further research is needed to examine the reliability and validity of the assessment, as well as implementation characteristics on a larger scale.

Patient Participation in Multidisciplinary High-Risk Surgery Discussions: A Pilot Study.

Objective: Our medical center implemented a multidisciplinary team to improve surgical decision making for high-risk older adults. To make this a patient-centric process, a pilot program included the patient and their family/caregiver(s) in these conversations. Our hypothesis is that multidisciplinary team discussions can improve difficult surgical decision making. Methods: From January to June 2022, we offered patients and their family participation in multidisciplinary discussions at a Veterans Affairs medical center. Semistructured interviews were conducted 1-6 days after the meeting. Interview transcripts were analyzed with qualitative mixed-methods approach. Results: Six patients and caregivers participated in the interviews. They found the discussion helpful for improving their understanding of the surgical decision. Out of these, 50% (3 of 6) of the patients changed their decision regarding the planned operation based on the discussion. Conclusion: Including patients and caregiver(s) in multidisciplinary surgical decision-making discussions resulted in half of the patients changing their surgical plans. This pilot study demonstrated both acceptance and feasibility for all participants.

Relationship Between Knowledge, Attitude, and Family Support with Exclusive Breastfeeding

The effort to improve the quality of human resources (HR) begins from infancy in the womb. One of the efforts to ensure a well-growing and developing baby is by providing Exclusive Breastfeeding (EBF). Globally, the provision of EBF is lower than needed. This study aims to determine the relationship between knowledge, attitude, and family support towards the provision of exclusive breastfeeding in the working area of UPTD Puskesmas Plaosan Magetan. Method : This research is an analytical survey study with a cross-sectional design. The research sample was taken using Simple Random sampling technique, amounting to 37 mothers with infants aged 0-6 months. The independent variables are knowledge, attitude, and family support, and the dependent variable is the provision of Exclusive Breastfeeding. Data collection was conducted using questionnaires and baby register books. To analyze the relationship between knowledge, attitude, and family support, Bivariate analysis was used, and the tests used were chi-square or fisher exact tests. Result : The results showed that there was no relationship between knowledge and the provision of Exclusive Breastfeeding (p-value = 0.447), there was a relationship between attitude and the provision of Exclusive Breastfeeding (p-value = 0.005), and there was a relationship between family support and the provision of Exclusive Breastfeeding (p-value = 0.002). Discussion : Based on the results of the study, it is concluded that the success of Exclusive Breastfeeding is related to attitude and family support; however, attitude and family support are formed from good knowledge and a positive mindset. Suggestion : Therefore, it is recommended for UPTD Puskesmas Plaosan to develop educational programs involving family participation and community leaders, as well as to improve health services.

Multi-Directional Mechanisms of Participation of the TRIM Gene Family in Response of Innate Immune System to Bacterial Infections.

The multigene TRIM family is an important component of the innate immune system. For a long time, the main function of the genes belonging to this family was believed to be an antiviral defense of the host organism. The issue of their participation in the immune system response to bacterial invasion has been less studied. This review is the first comprehensive analysis of the mechanisms of functioning of the TRIM family genes in response to bacterial infections, which expands our knowledge about the role of TRIM in the innate immune system. When infected with different types of bacteria, individual TRIM proteins regulate inflammatory, interferon, and other responses of the immune system in the cells, and also affect autophagy and apoptosis. Functioning of TRIM proteins in response to bacterial infection, as well as viral infection, often includes ubiquitination and various protein-protein interactions with both bacterial proteins and host cell proteins. At the same time, some TRIM proteins, on the contrary, contribute to the infection development. Different members of the TRIM family possess similar mechanisms of response to viral and bacterial infection, and the final impact of these proteins could vary significantly. New data on the effect of TRIM proteins on bacterial infections make an important contribution to a more detailed understanding of the innate immune system functioning in animals and humans when interacting with pathogens. This data could also be used for the search of new targets for antibacterial defense.

Post-COVID-19 internet addiction, depression, and pornography addiction among adolescents: Findings from a nationwide study in Bangladesh.

Regulations response to COVID-19 has increased internet addiction (IA), depression, and pornography addiction (PA) among adolescents worldwide. The objective of this nationwide study was to assess the current prevalence rate of IA, depression, and PA after the post-COVID-19 period among school-going adolescents in Bangladesh. A total of 8832 male and female adolescents participated in this research. The cross-sectional study was conducted online using a simple random sampling method. Including the sociodemographic variables, Young's IA Test (IAT-20) Scale, Patient Health Questionnaire (PHQ-9), and Pornography Craving Questionnaire (PCQ-12) were used to measure IA, depression, and PA. By SPSS version 25.0, the prevalence and correlation between IA, depression, and PA were analyzed using the Chi-square test, binary logistic regression, and a bivariate co-relation matrix. Sixty-three percent, 76.6%, and 62.9% of the students were suffering from IA, depression, and PA respectively. Depressive and anxious symptoms were significantly associated with IA. Female students were more depressed than males. Males were more addicted to pornography than females. Students who utilized social media but didn't exercise had greater depression and PA. IA, depression, and PA were correlated. The research emphasizes the need for comprehensive mental health treatments, digital literacy programs, and family and teacher participation to reduce IA, depression, and PA among adolescents post-COVID-19. Promotion of physical exercise and supporting policies to build safer online settings for adolescents are also encouraged.