Parents Who Research Articles

Parents Who Learn: Reconstructing the Discourse of School-Parents in the Age of Lifelong Learning

Parents Who Learn: Reconstructing the Discourse of School-Parents in the Age of Lifelong Learning

Trauma and Post-traumatic Growth: Spirituality and Self-compassion as Mediators Among Parents Who Lost Their Young Children in a Protracted Conflict.

The purpose of the present study was to expand the knowledge on trauma and post-traumatic growth (PTG) by exploring this relationship in parents who lost their children in Kashmir (India). The main aim of the present study was to examine whether spirituality and self-compassion mediate the relationship between trauma and PTG. Data were collected from 80 parents in the age range of 35-80years (Mean Age = 52.09). Traumatic Grief scale Prigerson et al. (in Am J Psychiatry 154:616-623, 1997), Daily Spirituality Scale (Underwood and Teresi, Ann Behav Med 24(1):22-33, 2002), Self-Compassion Scale (Raes et al., Clin Psychol Psychoth 18:250-255, 2011), and PTG Inventory (Tedeschi and Calhoun, J Trauma Stress 9(3):455-471, 1996) scales were used to measure trauma, spirituality, self-compassion, and PTG, respectively. Results of the study indicated the presence of average amount of spirituality and high amount of trauma among the participants. High level of self-compassion and post-traumatic growth was also found among the participants. The results showed that there is no significant direct relationship between trauma and PTG; however, both the indirect paths (trauma, spirituality, and PTG as well as trauma, self-compassion, and PTG) were found to be significant. The results of the present study supported serial mediation model of Trauma and PTG through spirituality and self-compassion. It implies that trauma would lead to spirituality which in turn would lead to self-compassion and which would finally result in PTG. The result provided another lens to see the relationship between trauma and PTG.

US Migration Status of Adult Children and Cognitive Decline Among Older Parents Who Remain in Mexico.

Low- and middle-income countries (LMICs) are experiencing rapid aging, a growing dementia burden, and relatively high rates of out-migration among working-age adults. Family member migration status may be a unique societal determinant of cognitive aging in LMIC settings. We aimed to evaluate the association between adult child US migration status and change in cognitive performance scores using data from the Mexican Health and Aging Study, a population-based, national-level cohort study of Mexico adults aged ≥50 years at baseline (2001), with 2-, 12-, and 14-year follow-up waves (2003, 2012, and 2015). Cognitive performance assessments were completed by 5,972 and 4,939 respondents at 11 years and 14 years of follow-up, respectively. For women, having an adult child in the United States was associated with steeper decline in verbal memory scores (e.g., for 9-year change in immediate verbal recall z score, marginal risk difference (RD) = -0.09 (95% confidence interval (CI): -0.16, -0.03); for delayed verbal recall z score, RD = -0.10 (95% CI: -0.17, -0.03)) and overall cognitive performance (for overall cognitive performance z score, RD = -0.04, 95% CI: -0.07, -0.00). There were mostly null associations for men. To our knowledge, this is the first study to have evaluated the association between family member migration status and cognitive decline; future work should be extended to other LMICs facing population aging.

Awareness About Abuse of Parents Who Have Children With Epilepsy

Awareness About Abuse of Parents Who Have Children With Epilepsy

Investigation of Physical Activity Enjoying And Quality of Life of Parents Who Have Mentally Disabled Children

In this study, it was aimed to investigate physical activity enjoying and quality of life of individuals with mentally disability children.. The study was to create by parents of female (N = 72) and male (N = 35) with mentally disability children in two special education center schools affiliated to the Ministry of National Education in Mersin. World Health Organization Quality of Life Scale-Short Form (WHOQOL-BREF) and Physical Activity Enjoyment Scale (PAES) were used to measure the quality of life of the parents. After the descriptive statistical procedures were applied in the analysis of the obtained data, t test and ANOVA and Mann - Whitney U and Kruskal Wallis tests were used to measure the differences between the variables. Significance was accepted as p <0.05 According to the findings; As a result of the comparison of the likelihood of physical activity of individuals with mentally retarded children according to gender, a high significant difference was found between women and men total score averages for women with negative thinking (p <0.05). In our study, there was a significant correlation (p <0,05, p <0,01) from physical activity likelihood of positive thinking subscale total scores and quality of life. Negative Thinking As a result of the relational analysis of total scores and quality of life levels, only low level of relationship with Psychological Health (p <0.05) was determined. As a result of examining the health-related quality of life levels of individuals with mentally disaibility children according to age, a significant difference was observed between the mean scores of the age groups (p <0.05). In conclusion, it can be said that the enjoyment of physical activity affects parents' health-related quality of life and there is a significant relationship between age and quality of life.

Revenge among Parents Who Have Broken up Their Relationship through Family Law Courts: Its Dimensions and Measurement Proposal

This work analyzes inter-parental revenge after a breakup process, as it relates to the dark triad of personality, moral disengagement, and sex role ideology. Our objective was to test a predictive model for revenge based on these variables. Additionally, a scale to measure revenge among parents was developed. A sample of 384 participants who had minor children, had broken up their relationship, and had undergone or were undergoing problematic judicial procedures regarding their children completed a survey. They answered to measures of the dark triad of personality (Machiavellianism, narcissism, psychopathy); moral disengagement strategies; sex role ideology, and revenge. An instrument (the R scale), with adequate reliability and validity was developed to test revenge. Results show that revenge behaviors are perpetrated by 1 to 5% of participants. Revenge has three components: revenge through the child, revenge through economic manipulation, and revenge by cutting off communication. Results also show that for males, but not for females, sex role ideology mediates the relationship between the components of the dark triad, moral disengagement, and revenge. This paper aims at providing some insight for the protection of minors from manipulation by means of the Family Courts.

Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study.

BackgroundUsing social media for research purposes is novel and challenging in terms of recruitment, participant knowledge about the research process, and ethical issues. This paper provides insight into the recruitment of European parents of children with specific congenital anomalies to engage in coproduction research by using social media. Secret Facebook groups, providing optimal security, were set up for newly recruited research-aware parents (RAPs) to communicate privately and confidentially with each other and for the research team to generate questions and to interpret findings.ObjectiveThis study aimed to use social media for the recruitment and engagement of parents in research and to determine the research priorities of parents who have children with Down syndrome, cleft lip with or without cleft palate, congenital heart defects, and spina bifida.MethodsThe design was exploratory and descriptive with 3 phases. Phase 1 included the recruitment of RAPs and generation of research questions important to them; phase 2 was a Web-based survey, designed using Qualtrics software, and phase 3 included analysis and ranking of the top 10 research questions using an adapted James Lind Alliance approach. Simple descriptive statistics were used for analysis, and ethical approval was obtained from the Ethics Filter Committee of the Institute of Nursing and Health Research, Ulster University.ResultsThe recruitment of 32 RAPs was a sensitive process, varying in the time taken to consent (mean 51 days). However, parents valued the screening approach using the State-Trait Anxiety Inventory as a measure to ensure their well-being (mean 32.5). In phase 1, RAPs generated 98 research questions. In phase 2, 251 respondents accessed the Web-based survey, 248 consented, and 80 completed the survey, giving a completeness rate of 32.3% (80/248). Most parents used social media (74/80, 92%). Social media, online forums, and meeting in person were ranked the most preferable methods for communication with support groups networks and charities. Most respondents stated that they had a good understanding of research reports (71/80, 89%) and statistics (68/80, 85%) and could differentiate among the different types of research methodologies (62/80, 78%). Phase 3 demonstrated consensus among RAPs and survey respondents, with a need to know the facts about their child’s condition, future health, and psychosocial and educational outcomes for children with similar issues.ConclusionsSocial media is a valuable facilitator in the coproduction of research between parents and researchers. From a theoretical perspective, ocularcentrism can be an applicable frame of reference for understanding how people favor visual contact.

Parents Need More Support: A Qualitative Study of the Experiences of Australian Parents Who Are Waiting for Surgical Intervention for Their Children With Otitis Media.

Objective:To explore the experiences, expectations, and motivations of parents/caregivers of children with otitis media who were booked to undergo tympanostomy tube insertion.Method:A cross-sectional cohort study was conducted using semistructured interviews with 39 parents. Interviews were conducted via telephone and analyzed for key themes.Results:Three themes emerged that incorporated a range of subthemes: (1) the impact of the child’s underlying condition on the family, (2) the cues and prompts that influenced parents to seek intervention, and (3) the parents’ expectations of the health-care system. The child’s otitis media disrupted the day-to-day functioning of the family and the child’s well-being, but despite this, the families found ways to adapt and cope. Parents were influenced by their friends, family, and medical practitioners when making treatment decisions and had differing expectations of the health-care system.Conclusion:Parents need support during their child’s illness to help with pressures placed on the family and also in making health-care decisions for their child. Clinicians should consider these issues when discussing treatment options with parents.

“Mom, When Are You Coming Home?”: Family Literacy for Parents Who Are addicted, Incarcerated, and/or Homeless

We describe a program for mothers separated from their children to advance definitions of family literacy that are inclusive of relationships that transcend the “home.”

Spirituality, a Path to Peace: The Experiences of Parents Who Have Children with Phenylketonuria

Having a child with phenylketonuria is extremely stressful for the parents. These parents always look for solutions for negative effects of their child's disease. Parents' strategies are affected by various background factors and vary according to parents' culture, religion, education, etc. The present study was aimed at assessing the effect of spirituality on the life of parents with a PKU child, and the effect of child disease on the parents' spirituality. The study was conducted in Kerman, Iran, in 2018; 21 participants (14 mothers, 6 fathers with PKU children, and one nurse) were selected using purposive sampling. A semi-structured in-depth interview was conducted with the selected participants. The transcribed interviews were analyzed using conventional qualitative content analysis. One main theme and two categories emerged from the analyzed data. The main theme of the supportive role of spirituality consists of two categories: spiritual growth and grabbing to the string of spirituality. The first levels of spiritual growth include Modeling and considering Imams' lives, the increase in trust in God, the increase in mental and spiritual tolerance, and being close to God. The levels of Achieving spirituality include the remembrance of God, Thanking God, and giving donations. According to the results of this study, providing spiritual care by the nurses for the patient and their family is important. Nurses should pay attention to this subject because the patients and their family can achieve more relaxation and increased tolerance and higher satisfaction.

Occupational Therapy and Parents Who Have Physical Impairments: Current Practice and Needs of Practitioners

Abstract Date Presented 04/04/19 OT practitioners may help parents with physical impairments complete activities of parenting. The purpose of this survey study was to identify the scope of practice and determine knowledge, information, and resources needed by practitioners providing services to parents with physical impairments. Results suggest practitioners are providing services and have a good foundation of knowledge. However, there is a need for more information and resources. Primary Author and Speaker: Angela Lampe Contributing Authors: Linda Gabriel

Burnout of Parent Who Have Children with Cerebral Palsy Disability in Bandung City


 
 
 Burnout refers to feelings of physical, emotional and mental exhaustion of parents who have children with cerebral palsy disabilities. The purpose of the research was to examine: 1) Characteristics of the subject, 2) Feelings of physical fatigue, 3) Feelings of emotional fatigue, and 4) Feelings of mental fatigue. The method used was descriptive qualitative method. The data sources used are primary and secondary data sources. The technique of determining the informants used was purposive. Data collection techniques used were in-depth interviews, participatory observation, and documentation study. The criteria for checking data validity used credibility test, transferability test, dependability test, conformbility test with the technique of extending participation, observation persistence, and triangulation. Data analysis techniques used qualitative data analysis techniques. The results showed that parents who have cerebral palsy children experience burnout characterized by feelings of physical, emotional and mental fatigue. However, feelings of physical and emotional exhaustion can still be overcome properly, only the feeling of mental fatigue cannot be overcome.
 
 

Sex Education through a Trauma-Informed Lens: Do Parents Who See Trauma as a Problem for Youth Support Trauma-Informed Sex Education?

Trauma-informed sex education is sensitive to students’ traumatic life experiences. Internet panel data for 600 Louisiana parents/caregivers of school-age youth were used to examine parental support for trauma-informed school-based sex education, and parental characteristics associated with supporting trauma-informed sex education. Nearly three-quarters (71%) of parents agreed that youth are exposed to high levels of trauma, and 86% reported interest in school-based sex education that supports emotional wellness. Of all parental characteristics, the perception that youth are exposed to high levels of trauma was most strongly associated with endorsement of trauma-informed sex education. Louisiana parents recognize the influence of emotional wellness on youth sexual health and support trauma-informed school-based sex education, which is becoming the new standard for youth sex education services.

Online Peer Support Programs for Young People with a Parent Who has a Mental Illness: Service Providers’ Perspectives

ABSTRACTYoung people with a parent or parents who have mental illness are at a higher-than-average risk of experiencing emotional and behavioural difficulties. Notwithstanding the difficulties experienced by these young people, opportunities to interact with and obtain support from peers living in similar families can be beneficial. While young people face several barriers to participating in face-to-face peer support programs, online approaches potentially provide a different way of obtaining peer support. This paper aims to explore service providers’ perspectives on current Victorian peer support programs, as well as the strengths and weaknesses of online approaches to peer support. Semistructured interviews were conducted with 17 mental health professionals who work with families affected by parental mental illness. Participants recognised that many young people miss out on face-to-face peer support programs, and were highly supportive of the idea of online programs. This study suggests that online peer support programs for young people could occupy an important position in the evolving suite of services for Australian families affected by mental illness.

Investigation of Life Satisfaction of The Parents Who Have Children With Special Needs in Terms of Their Compassion and Self-Understanding Levels

Bu araştırmada, özel gereksinimli çocuğa sahip anne babaların, yaşam doyumları-nın öz-anlayış ve merhamet düzeyleri açısından incelenmesi amaçlanmıştır. Araştırmanın ana değişkenleri olan öz-anlayış, merhamet ve yaşam doyumları tek tek ele alınmıştır. Verilerin anali-zinde aritmetik ortalama, ağırlıklı ortalama, t testi, F testi, Pearson korelasyon katsayısı ve Stepwise Regresyon analizi teknikleri kullanılmıştır. Araştırmanın grubunu, 2016 yılında Konya’da bulunan kaynaştırma, alt sınıf, eğitim uygulama okulu ve rehabilitasyon merkezine devam eden özel gereksinimli çocuğa sahip 188 anne ve 113 baba olmak üzere toplam 301 ebeveyn oluşturmuştur. Araştırma bulgularına göre, özel gereksinimli çocuğa sahip anne babaların öz anlayışları, merhamet düzeyleri ve yaşam doyumları arasında anlamlı ilişkiler bulunmuştur. Anne-babaların merhamet düzeyi alt boyutlarında sevecenlik, umursamazlık, paylaşımların bilincinde olma, bağlantısızlık, ilişki kesme puanları, yaşam doyumuyla anlamlı düzeyde ilişkilidir. Merhamet ölçeğinin olumsuz boyutları olan umursamazlık, bağlantısızlık ve ilişki kesme boyutları yaşam doyumuyla ters yönlü bir ilişki göstermişken olumlu boyutları olan sevecenlik, paylaşımların bilincinde olmada fazla puanlar alan anne babaların ise yaşam doyumlarının daha yüksek olduğu bulunmuştur. Öz-anlayış ve merhamet düzeylerinin yaşam doyumu anlamlı düzeyde yordadığı saptanmıştır. Araştırma bulgularına göre özel gereksinimli çocuğa sahip anne babaların yaşam doyumlarını artırıcı öz-anlayış ve merhametli tutumlarını artırıcı psikolojik danışma ve rehberlik hizmetleri verilebilir.

Investigation of Social Support Perception and Self-Esteem as Predictors of Psychological Resilience of Parents Who Have Children with Special Educational Needs

This study was conducted to examine the perceived social support and self-esteem as predictors of the psychological resilience of the parents who have children with special educational needs. This study aimed to reveal the relationship between the psychological resilience of the parents who had children with special educational needs and the level of social support they perceived and their self-esteem levels. This research is a correlation study in relational screening model. 235 parents (205 females and 30 males) participated in this study. Personal Information Form, Resilience Scale for Adults, Arıcak Self-Esteem Scale and Revised Parental Social Support Scale were used as data collection instruments. In the evaluation of the data number, percentage, mean and standard deviation were used as descriptive statistical methods. The t-test was used to compare quantitative continuous data between two independent groups, and one way Anova test was used to compare quantitative continuous data between more than two independent groups. Scheffe test was used as a complementary post-hoc analysis to determine the differences after the Anova test. According to the research results, there is a significant relationship between psychological resilience, perceived social support and self-esteem. Perceived social support and self-esteem variables predicted the psychological resilience. The results of the research were discussed in the relevant literature.

Dark Parenting: Parents Who Score as High in the Dark Triad Demonstrate Sub-Optimal Parenting Styles

Dark Parenting: Parents Who Score as High in the Dark Triad Demonstrate Sub-Optimal Parenting Styles

Kanser Tanısı Konmuş Çocuğa Sahip Olan Ebeveynlerin Bakım Yükleri ile Anksiyete Düzeyleri Arasındaki İlişki

Kanser Tanısı Konmuş Çocuğa Sahip Olan Ebeveynlerin Bakım Yükleri ile Anksiyete Düzeyleri Arasındaki İlişki

增能视角下失独群体自组织的功能研究

增能视角下失独群体自组织的功能研究

The Correlation Between Coping Strategy and Stress of Parents Who Have Children with Autism

Autism was a very complex neurobiological developmental disorder. Parents with autistic children have a higher stress level than parents who have normal children, so use the effective coping strategy for parents who had an autistic child would make them prevented the excessive stress. Aim of the research was to find out relation of coping strategy and parents’ stress who had an autistic children. The research design was correlational design with a cross-sectional approach. Data collection used a questionnaire of the Coping Health Inventory for Parents and Parental Stress Scale. Result of study showed that coping strategy and parents’ stress who had an autistic child were mostly at range of medium coping strategy (57.7%) and moderate stress (76.9%). Result of Spearman’s Rank correlation test showed a negative relation between coping strategy and parents’ stress (r=0.699; p=0.000). There was a correlation between coping strategy and parents’ stress who had an autistic child in this research, which meant the better coping strategy the lower parents’ stress who had an autistic child. Based on these results, autistic agencies should be better able pay attention to improve ability of parents’ coping strategy who had autistic children.