Parental Coping Research Articles

Professionals’ perspectives on how to address persistent oral health inequality among young children: an exploratory multi-stakeholder analysis in a disadvantaged neighbourhood of Amsterdam, the Netherlands

BackgroundOral health promotion interventions have had limited success in reaching families in disadvantaged neighbourhoods resulting in persistent oral health inequality. This qualitative study provides insight into professionals’ perspectives on children’s poor oral health (≤ 4 years), their perceptions of the roles and responsibilities, and opportunities for child oral health promotion strategies.MethodsThirty-Eight professionals from different domains (community, social welfare, general health, dental care, public health, private sector) working in a disadvantaged neighbourhood in Amsterdam, the Netherlands, participated through 24 semi-structured (group) interviews. Transcripts and notes were analysed through thematic analysis.ResultsProfessionals indicate that unhealthy diet, children’s non-compliance, poor parental coping, parental low oral health literacy, parent’s negative attitude, family’s daily struggles, and insufficient emphasis on childhood caries prevention in dental practices, general healthcare and social welfare organisations, underlie poor oral health. They hold parents most responsible for improving young children’s oral health, but recognise that families’ vulnerable living circumstances and lack of social support are important barriers. Interestingly, non-dental professionals acknowledge their beneficial role in child oral health promotion, and dental professionals stress the need for more collaboration.ConclusionA broad child-, parental-, and societal-centred educational communication strategy is perceived as promising. Professionals working within and outside the dental sector acknowledge that local and collective action is needed. This involves a better understanding of family’s complex daily reality. Furthermore, intensifying child oral health knowledge in dental practices is essential in collaboration with families, general health and social welfare organisations.

A preliminary exploration of different coping strategies used by Korean immigrant parents of autistic children in high versus low family quality of life ratings.

The experiences of coping in parents of autistic children have been extensively studied in the literature. While this research has identified both effective and ineffective coping strategies used by caregivers, no studies to date have examined how coping strategies used by parents might be linked to family quality of life outcomes. Furthermore, few studies exist examining both coping strategies and family quality of life in culturally and linguistically diverse populations. Thus, this study aimed to address both limitations. A total of 12 Korean immigrant parents of autistic children, 6 representing the high family quality of life group and 6 representing the low family quality of life group, shared their experiences related to coping and managing stress. Responses fell under three broad categories (problem-focused, emotion-focused, and adjustment-focused) with differences observed when comparing the high versus low family quality of life groups. A better understanding of the link between coping strategies and family quality of life outcomes may help identify effective and culturally sensitive supports for caregivers and families to improve their quality of life and well-being.

Personal and Family Childhood Predictors of Functional Outcomes of Adolescents With Autism Spectrum Disorder.

The transition to adolescence can be challenging for children with autism spectrum disorder (ASD). The present study explored child and family variables that predict functional outcomes of adolescents with ASD in emotional/behavioral difficulties, socialization, daily living skills, and the transition to secondary education. Forty-five individuals with ASD, without intellectual disability, were assessed during childhood (aged 7-11) and almost five years later. Child measures (executive functions, theory of mind, autism symptom severity) and parent measures (parenting stress, social support, coping strategies) were collected. In adolescence, the predictive power of childhood executive functions was important for academic and behavioral/emotional indicators whereas theory of mind mainly predicted adaptive and behavior/emotional outcomes. ASD symptoms had predictive value in all outcome domains. Parental educational level, social support and parenting distress predicted socialization, while the engagement coping strategy had a significant role in daily living skills. The findings raise several clinical considerations related to assessment and intervention in autism. Executive functions and theory of mind programs could help to improve behavior/emotional, adaptive outcomes, and adjustment to school. In addition, the study indicates the need for family-centered interventions based on positive parenting practices and principles of behavioral analysis along with parental support, stress management and coping strategies.

Latent profiles of parent socialization of coping in emerging adulthood

Parent socialization of coping, a unique aspect of parenting that contributes to youth adjustment, has primarily been examined with variable-centered approaches. This study applied latent profile analysis (LPA), a person-centered approach, to identify distinct combinations of parent coping suggestions in two samples of emerging adults (Study 1: N = 179; Study 2: N = 190). LPA revealed five profiles of parent socialization of coping in both studies: Involved, Direct, Balanced, Indirect, and Uninvolved. In both studies, the Direct and Involved profiles demonstrated the most adaptive functioning, whereas the Uninvolved and Indirect profiles demonstrated heightened adjustment problems. This study provides novel evidence that examining variability in the co-occurrence of parent coping suggestions is a fruitful avenue of study in socialization of coping research.

Parental coping with uncertainties along the severe combined immunodeficiency journey

BackgroundSevere combined immunodeficiency (SCID) is a group of rare genetic disorders that cause disruption in immune system functioning. Parents of children with SCID experience many uncertainties related to their child’s diagnosis, treatment, recovery, and quality of life. To fully understand parents’ experiences throughout their SCID journey, it is important to explore the stressors generated by such uncertainties and how parents cope with these stressors.MethodsWe conducted 26 in-depth interviews with parents whose child was diagnosed with SCID or a SCID-like condition through newborn screening. The interviews explored uncertainties related to their child’s diagnosis and how parents coped with these uncertainties. Transcripts were generated from the interviews and analyzed using an inductive content analysis approach which included data immersion, generation and assignment of codes, and interpretation.ResultsParents used a variety of behavioral, cognitive, and affective coping strategies which evolved throughout their SCID journeys. Some parents reported coping by playing an active role in their child’s treatment, which included reaching out to other SCID parents or seeking second medical opinions. Other types of coping included establishing house hygiene rules, thinking positively about the child’s treatment progress, and relying on family members for help. These coping strategies were both deliberate and intuitive. Participants also described their struggles in coping with stressors related to their child’s health and survival. They reported difficulty in processing their emotions and experiencing denial and guilt related to their child’s diagnosis. Some parents adapted to ongoing uncertainties through such strategies as positive thinking, self-reflection, and relying on family and community. With successful adaptation, parents emphasized that they continue to use these strategies today.ConclusionOur assessment revealed that parents of children diagnosed with SCID use a variety of behavioral, cognitive, and affective approaches to cope with SCID uncertainties. Although parents reported challenges in coping with SCID uncertainties, they also reported finding ways to overcome these stressors and establish patterns of effective coping. Findings from our study can serve as a guide for parents whose child was newly diagnosed with SCID and for providers such as social workers, genetic counselors, and psychologists.

Digital coping of parents in conflict-affected communities: a path to maintain health and well-being

Abstract Background Mobile apps such as WhatsApp have become significant resources for information and social support in times of crisis. Little is known about the role WhatsApp groups play in the context of living in conflict-affected regions. Living in such areas is associated with myriad mental health impacts, and recent studies have identified parents of young children as highly vulnerable in this regard. The study’s aim was to examine parents’ digital coping with political violence in southern Israel. Methods In-depth interviews were conducted with 21 parents of young children (<17) residing in communities near the Israel-Gaza border and who are members of local online parents’ groups on WhatsApp. Data were analyzed to answer questions regarding the benefits and disadvantages that parents assign to online groups; and regarding the role of digital communication in maintaining health and well-being. Results The findings reveal that online groups are often discussed as a shared and ubiquitous coping resource that supports mental health and well-being. Parents report they use the group to share ways to deal with the situation effectively and exchange social support, and as a space that facilitates community cohesion. Furthermore, during escalations, members perceived the group as the most trustworthy source of information. The groups’ continuous availability had drawbacks as well. Some participants pointed to digital stress caused by the fear of missing out on information, or by information overload. Conclusions Our results demonstrate the effectiveness of digital environments in helping parents cope with a collective stressor: a particularly worthy goal given that social media apps now constitute the primary online connection for most individuals. This has broad impacts on health promotion efforts for mental health issues related to political violence as well as other large-scale health crises such as the COVID-19 pandemic. Key messages • Digital environments can serve as a platform for successful coping with collective stressors. • Health practitioners should consider drawbacks when planning digital support efforts.

Being the Parent of a Child Who Had Surgery in the Covid-19 Pandemic: Qualitative Study

Araştırma, Covid-19 pandemisinde ameliyat olan çocukların ebeveynlerinin deneyimlerini belirlenmek amacıyla yapılmıştır. Nitel çalışma olarak yürütülen araştırmanın örneklemini Kasım-Aralık 2021 tarihleri arasında 14 ebeveyn oluşturmaktadır. Veriler, yüz yüze bireysel görüşme tekniği ile yarı yapılandırılmış soru formu kullanılarak toplanmıştır. Ses kayıt cihazı kullanılarak kaydedilen görüşmeler yazıya aktarılmıştır. Çalışmayı yapılandırmak ve raporlamak için Niteliksel Araştırm yaş ortalaması 32 (SS=4.7) yıldır. Apendektomi (n=4), kasık fıtığı onarımı (n=4), orşiopeksi (n=2) ve VUR tedavisi (n=4) için çocukların sevise yatışı yapılmıştır. İçerik analizi sonucuna göre iki ana tema ve altı alt tema belirlenmiştir. “Covid-19 ve Hastanede Yatmaya İlişkin Duygular” ana temasının alt temaları “yalnızlık”, “korku”, “öfke” ve “umutsuzluk”, “Baş etme” ana temasının alt boyutları ise “olumlu klinik atmosfer”, “aile desteği” ve “diğer ebeveynlerin deneyimleri” dir. Sağlık profesyonellerinin çocuk ve ebeveynlerine yönelik destekleyici yaklaşımları, benzer deneyime sahip ebeveynlerin paylaşımları ve aile üyelerinin iletişiminin devam etmesi ebeveynlerin stresle baş etmede algıladıkları destek kaynakları olarak tespit edilmiştir.

Predictors of burnout and distress in parents of children with autism spectrum disorder during COVID-19 home confinement

ABSTRACT The study’s purpose was to investigate the mental health and related variables of parents with an autism spectrum disorder (ASD) child during COVID-19 home confinement. The study data is based on the evaluation of online self-report questionnaires that assess parental distress, burnout, and coping levels, as well as parent-proxy reports of autism severity and related behavioral issues, as described by the parents of 79 children with ASD and their 83 typically developing age- and sex-matched opponents. The burnout and adaptive coping levels of the parents with ASD children were greater than those of the controls. However, there was no significant difference in terms of general distress levels. Increased irritability was the most commonly reported symptom among children with ASD. However, behavioral issues in children were the strongest predictor of parental burnout, whereas maladaptive coping skills were linked to general distress. This study emphasizes the significance of treating the behavioral issues of children with ASD and the coping strategies of their parents for the mental well-being of this vulnerable population and their parents during home confinement.

Meeting Parents' Needs for Education and Preparation following Congenital Heart Disease Diagnosis: Recommendations from a Crowdsourced Study.

This article characterizes the educational needs of parents following fetal or neonatal congenital heart disease (CHD) diagnosis and generates recommendations for meeting these needs. Online crowdsourcing methods were used to collect qualitative data from 95 parents of children with CHD regarding their needs for education and preparation following fetal or neonatal diagnosis. Data were analyzed using qualitative methods and themes were organized around the substructure of met and unmet needs. Two themes represented consistently met needs, whereas 10 themes represented needs that were either inconsistently met or consistently unmet. Parents reported needing more information about social, emotional, and financial supports, preparation for long-term care, and guidance toward reputable online resources. Parents also provided recommendations for meeting these needs. Parents' needs for education and preparation following CHD diagnosis are much broader in scope than what they currently receive. Addressing these may support parental coping and active participation in medical decision-making. · CHD counseling after diagnosis may provide opportunities to promote parents' mental health.. · Guidelines recommend that this counseling should include emotional and decision-making support, however, it is unclear what parents actually receive.. · This study found that parents' needs for education and preparation following CHD diagnosis are much broader in scope than what they currently receive..

Associations Between Children's Emotion Regulation, Mindful Parenting, Parent Stress, and Parent Coping During the COVID-19 Pandemic.

Stress among parents has increased during the COVID-19 pandemic. Research prior to the pandemic indicates that parents of children who struggle with emotion regulation (ER) and who themselves are less mindful report more stress and diminished coping abilities. We know little, however, about these associations in the context of COVID-19. To prevent COVID-related deteriorations in parent well-being and child outcomes and to support parents during this potentially challenging time, it is important to understand the factors that are associated with increased stress as well as adaptive coping. This paper discusses the association between children's ER, mindful parenting (MP), parent stress, and parents’ coping with parenting during the pandemic in a sample of 217 caregivers of school-aged children (91.0% mothers). Results indicated that children's ER was associated with parents’ self-reported coping with parenting in the pandemic but was not associated with increased stress. Further, MP moderated the association between children's ER and coping, such that parents who were the most mindful and had children with better ER skills reported significantly greater ability to cope with pandemic parenting. Coping was lower for other combinations of ER and mindful parenting. These findings contradict those from before COVID, suggesting the relationship between children's ER and parent outcomes may differ in the COVID-19 context, and offering insights into which parents may be most likely to struggle with coping with pandemic parenting.

Factors associated with parental burden among parents of children with food allergies in China: a cross-sectional study

ObjectiveThis study aimed to investigate the factors associated with parental burden among parents of children with food allergies (FA) in China.DesignCross-sectional study.SettingThe participants were recruited through the internet and one...

Resilience in mothers during the COVID-19 pandemic.

The coronavirus disease (COVID-19) pandemic has brought immense psychological pressure and disruptions to daily life for all individuals, and particularly children, parents, and families. Despite these difficulties, parents are able to show resilience through adaptive coping and positive parenting behaviors. Although there is robust research on resilience in children, very little research has tested predictors of parental resilience. The present study presents descriptive information about mothers' pandemic-related stressors and positive changes and then tests whether prepandemic maternal well-being and child effortful control predicted mothers' resilient parental outcomes (positive behavior and coping) through the mediators of maternal self-compassion, adherence to family routines, and child coping. The sample comprised 95 mothers (95.38% European American, 3.2% African American, and 1.1% Asian American) with a mean age of 38.21 years (SD = 5.71 years, Range = 25.72-51.60 years) and education ranging from a high school to an advanced degree (M = 16.26 years, SD = 2.28 years, Range = 12-21 years). Results revealed that prepandemic maternal well-being predicted adaptive coping both directly and indirectly through self-compassion. Children's effortful control predicted maternal adaptive coping indirectly through children's own adaptive coping, and predicted mothers' positive parenting behaviors directly. Posthoc models revealed adherence to routines to be a correlate and outcome, rather than predictor, of positive parenting and bidirectional relations between parent and child coping. This study provides evidence for parent, child, and family-level factors related to parental resilience during the COVID-19 pandemic. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

Little time, lasting impact: Bereaved caregiver perceptions of legacy in perinatal and infant loss.

Legacy interventions are standard in most children's hospitals, but little is known about how bereaved parents understand and describe the concept of legacy that these interventions are designed to Address. The aim of this qualitative study was to understand the legacy experiences and perceptions of parents who have experienced perinatal or early infant (less than three months of age) loss. Grounded in constructionist epistemology and phenomenological qualitative traditions, ten bereaved parents completed an in-depth phenomenological interview regarding their perceptions of and experiences with the legacy of their deceased child. Interviews were transcribed verbatim and analyzed using an open, inductive coding process to illuminate the essence of participants' experiences. Three themes were identified: 1) legacies are composed of memories and experiences that have a lasting effect on others; 2) healthcare experiences both generate and participate in infants' legacies; and 3) parents' legacy perceptions are shaped by cultural conceptions, spiritual beliefs, and grief experiences. Parents described experiences and interactions with community members and healthcare providers that honored or challenged their perceptions of their child's unique legacy. In the context of perinatal or early infant loss, bereaved parents describe legacy as enduring, unique to each child and family, and heavily influenced by healthcare experiences and staff relationships. Parent-led, legacy-oriented interventions are needed in maternal/fetal, labor/delivery, and neonatal intensive care settings to support parent coping with loss.

Identifying Parental Needs When Caring for a Child or Adolescent With Cancer: Participatory Design Study

Background Survival possibilities among children and adolescents (referred to as “children”) with cancer have increased, resulting in more children and parents living with sequelae and psychological distress, respectively. Childhood cancer treatment is intensive and long term and affects the everyday life and functioning of the whole family, including daily and social life restrictions and hospitalizations, which force the parents to split up between the hospital and home to care for both the ill child and siblings and manage their jobs and homelife routines. Adequate parental coping strategies are essential for family adjustment and the child’s coping ability. Parenting a child with cancer, however, is challenging and stressful. Objective This study aimed to identify parental needs when caring for a child with cancer. Methods Using a participatory design approach, we generated data through field studies and semistructured interviews with parents of children receiving treatment at Odense or Aarhus University Hospital and focus group interviews with parents of children who have completed treatment within the past 2 years. Results The parents felt trapped in an endless, emotional roller-coaster ride of fear, hope, grief, and mental and emotional exhaustion and had very limited resources for self-care. The presence of support from peers, health care providers, and relatives was a facilitator of successfully coping with the illness. In contrast, full-time isolation in the hospital, due to COVID-19 restrictions, was a barrier and linked with feelings of loneliness. Loneliness was also experienced as navigating difficult emotions when responding differently from the spouse or not feeling understood by relatives. Conclusions Parents of children with cancer face many stressors that may become a psychological burden. New innovative approaches to provide psychosocial support, taking into account that the families are periodically isolated, are needed. For this goal, technological solutions may be useful and should be the focal point of this study’s experimental design phase.

Posttraumatic Growth and its Correlates Among Parents of Children With Cleft Lip and/or Palate.

This study examined the posttraumatic growth (PTG) about parents of children with cleft lip and/or palate (CL/P) and the correlates of PTG. A cross-sectional study. Parents (N = 388) of children with isolated CL/P (ages 3 months-18 years) who had at least one cleft surgery within an oral and maxillofacial surgery department of a university-affiliated tertiary hospital in a provincial capital in southwest China. Demographic information questionnaire, The Posttraumatic Growth Inventory, Simplified Coping Style Questionnaire, and Social Support Rating Scale were used for data collection. Parents’ mean PTG score was in the moderate range (M = 65.7, SD = 13.73). PTG differed regarding the participants’ sex, ethnicity, and educational background. Pearson's correlation analysis revealed that positive coping ( r = 0.43, P < .01), negative coping ( r = 0.13, P < .01), and social support ( r = 0.26, P < .01) were positively correlated with PTG. Multiple regression model showed that 20.6% ( P < .001) of the variance in PTG was explained by higher positive coping (β = 0.35, P < .001), greater social support (β = 0.13, P = .01), and for cleft lip compared to cleft palate (β = −0.14, P ≤ .01), with no variance difference for cleft lip and palate. Parents of children with CL/P had moderate PTG. Potentially modifiable correlates of PTG suggest interventions to enhance parental positive coping and social support may increase PTG. Further studies are needed to confirm the PTG level and its affecting factors of parents of children with CL/P.

Sociodemographic Variation in Children's Health Behaviors During the COVID-19 Pandemic.

Background: Societal changes during the COVID-19 pandemic may affect children's health behaviors and exacerbate disparities. This study aimed to describe children's health behaviors during the COVID-19 pandemic, how they vary by sociodemographic characteristics, and the extent to which parent coping strategies mitigate the impact of pandemic-related financial strain on these behaviors. Methods: This study used pooled data from 50 cohorts in the Environmental influences on Child Health Outcomes Program. Children or parent proxies reported sociodemographic characteristics, health behaviors, and parent coping strategies. Results: Of 3315 children aged 3-17 years, 49% were female and 57% were non-Hispanic white. Children of parents who reported food access as a source of stress were 35% less likely to engage in a higher level of physical activity. Children of parents who changed their work schedule to care for their children had 82 fewer min/day of screen time and 13 more min/day of sleep compared with children of parents who maintained their schedule. Parents changing their work schedule were also associated with a 31% lower odds of the child consuming sugar-sweetened beverages. Conclusions: Parents experiencing pandemic-related financial strain may need additional support to promote healthy behaviors. Understanding how changes in parent work schedules support shorter screen time and longer sleep duration can inform future interventions.

The loss of a grandchild during pregnancy: an exploration of long-term outcomes for grandparents and their families

ABSTRACT Inquiry focussing on grandparents’ experiences following a child’s pregnancy loss has concentrated on shorter-term grief and support outcomes. We aimed to understand longer-term wellbeing impacts exploring outcomes 10–20 years after the loss of a grandchild/ren during pregnancy. Our study addressed the questions: what are the longer-term outcomes for grandparents experiencing the loss of a grandchild in pregnancy?; what factors contribute to reduced grandparent/family coping or increased family distress?; what supports could be of benefit to grandparent wellbeing and family coping? We used thematic analysis to analyse interviews with 12 grandparents from Australia and the United States of America. Four themes resulted: The grief is ongoing, the support continues; Subsequent pregnancies: joyful anticipation has changed to anticipatory fear; Adjustment: Our lives, our family, and our wellbeing changed, and; Reflecting on these changes, how did our family cope? These findings confirm those of shorter-term studies but indicate that grandparents’ grief and the support they provide to their children are ongoing and, therefore, grandparents may require information and support for many years following loss. In addition, grandparent coping is influenced by parent coping. Therefore, interventions that focus on family adaptation to loss may also benefit families experiencing multiple losses or continued relationship disruption.

“I need to just have a couple of White claws and play animal crossing tonight”: Parents coping with video games during the COVID-19 pandemic.

The COVID-19 pandemic was an incredibly stressful time for parents of school-age children. Supervising remote schooling while also balancing work and life demands, in addition to health concerns, demanded much from parents. This study considers how parents used the video game Animal Crossing: New Horizons to cope with pandemic-related stress. Using Reinecke and Rieger's (2021) recovery and resilience in entertaining media use model as a theoretical framework, this interview study of 33 parents from 27 families found that parents psychologically detached from their pandemic-stress laden worlds with the game, used the game to relax, found a sense of accomplishment through achieving goals via mastery experiences in the game, and appreciated the sense of control that the game afforded. An emergent code was found in that the game facilitated much-needed social connections for parents, which was part of their pandemic-stress coping. This study provides further evidence for video games as coping tools, with a specific focus on parental pandemic stress. (PsycInfo Database Record (c) 2021 APA, all rights reserved) Impact Statement This interview study looks at how parents used the video game Animal Crossing: New Horizon to cope with COVID-19 pandemic-related stress. Parents used the game to detach, relax, find a sense of accomplishment and control as well as facilitate social connections. (PsycInfo Database Record (c) 2021 APA, all rights reserved)

Parental Criticism and Depressive Symptoms: The Contribution of Active Coping Among African American Adolescents : Prairie View A&M University.

The present study examined whether parental criticism, active coping, and peer support associated with depressive symptoms. Then using two mediation models, this study explored whether parental criticism related to depressive symptoms through active coping while controlling for peer support among African American Adolescents (N = 883). Results from a multiple regression analysis revealed that maternal and paternal criticism positively associated with depressive symptoms in contrast to active coping and peer support. In the first mediation analysis, active coping explained the relationship between maternal criticism and depressive symptoms. In the second mediation analysis, active coping did not explain the relationship between paternal criticism and depressive symptoms. These results suggest that mental health practitioners should consider incorporating coping techniques in therapy, specifically while treating African American adolescents. Clinical, family, and community implications are discussed.

Exploring the Barriers and Motivators to Dietary Adherence among Caregivers of Children with Disorders of Amino Acid Metabolism (AAMDs): A Qualitative Study.

Dietary intervention is generally accepted as the mainstay of treatment for patients with disorders of amino acid metabolism (AAMDs). However, dietary adherence to a low-protein diet is always reported as a common challenge among these patients. This study explored the perception of barriers and motivators to dietary adherence among caregivers of AAMD patients in Malaysia. Twenty caregivers of children with AAMDs receiving ongoing treatment at the genetic clinic participated in an online focus group discussion from November to December 2021. Findings showed a total of five interrelated main themes identified from focus group discussion (FGD) exploring parents’ experiences related to the management of their child’s daily diet. The barriers to dietary adherence were burden of dietary treatment, diet and dietary behavior, parenting challenges, limited knowledge related to dietary treatment, and challenges in healthcare system delivery. Key factors facilitating good dietary adherence include good knowledge of dietary treatment, parental coping strategies, social coping, and dietary behavior. In conclusion, despite the existence of several barriers to the implementation of dietary treatment, caregivers managed to use a wide range of coping strategies to overcome some, if not all, of the challenges. The important next step is to develop, in conjunction with multidisciplinary healthcare professionals, feasible implementation strategies that could address these barriers and at the same time improve the quality of life of caregivers.