Palsy In Norway Research Articles

Practices in providing Ankle Foot Orthoses to Children with Cerebral Palsy in Norway

Practices in providing Ankle Foot Orthoses to Children with Cerebral Palsy in Norway

Provision of ankle foot orthoses for children with cerebral palsy in Norway.

Practice of ankle-foot orthoses (AFO) provision for ambulatory children with cerebral palsy is underreported and the literature is not consistent on choice of AFO-design. This study describes clinical practice of AFO provision for children with cerebral palsy and evaluates how clinical practice aligns with existing recommendations. An online, cross-sectional survey was conducted, inviting all Norwegian orthotists working with children with cerebral palsy. Orthotic practice was investigated using a self-reported survey design. From all eligible orthotists, 54% responded, revealing that AFO provision involves patients, physicians, and physiotherapists at different stages. Patient preference directly influenced the ultimate AFO-design. Shank vertical angle was evaluated by 79%. For children with crouch gait and those with short gastrocnemius, a majority preferred a combination of rigid and articulated/flexible AFO-designs. Instrumented gait analysis was conducted by 51% at AFO delivery stage. The findings show that AFO provision in Norway is collaborative, involving clinical team members and consideration of patient preferences. A discrepancy between clinical practice and existing recommendations for children with crouch gait and those with short gastrocnemius is observed.

The impact of longitudinal surveillance of individuals with cerebral palsy in Norway; a 20-year quality registry and follow-up program perspective

ABSTRACTThe Norwegian Quality and Surveillance Registry for Cerebral Palsy (NorCP) has systematically collecteddata on individuals with cerebral palsy (CP) and been a driver of knowledge dissemination for over 20 years.NorCP data have increased the competence of health professionals in both the municipal and specialisthealthcare services through publication of multiple scientific articles ranging from risk factors for CP tolifelong interventions, quality improvement projects, and training services. This has led to a streamlinedprocess in the diagnosis and follow-up of children and youths with CP in Norway to ensure that they receive"the right treatment at the right time," regardless of where they live using evidence-based interventions basedon needs that are revealed in the registrations.NORSK SAMMENDRAGNorsk kvalitets- og oppfølgingsregister for cerebral parese (NorCP) har systematisk samlet inn data ompersoner med cerebral parese og vært en pådriver for kunnskapsformidling i over 20 år. NorCP data har øktkompetansen til helsepersonell i både kommune- og spesialisthelsetjenesten gjennom publisering av flerevitenskapelige artikler om risikofaktorer for CP til livslange intervensjoner, kvalitetsforbedringsprosjektersamt kurs og kompetansetjenester. Dette har ført til økt kvalitet på diagnostisering og oppfølging av barn ogunge med CP i Norge, som sikrer at de får «riktig behandling til rett tid», uansett hvor de bor i landet medbruk av evidensbaserte intervensjoner basert på behov som avdekkes ved registreringene.

High occurrence of perinatal risk factors and more severe impairments in children with postneonatal cerebral palsy in Norway.

To describe causal events, perinatal risk factors and clinical characteristics in children with postneonatal cerebral palsy (PNCP). Population-based registry study of Norwegian children born 1999-2013. Prevalence, causal events and clinical characteristics of PNCP were described. The occurrence of perinatal risk factors for CP was compared with the general population. Among 1710 children with CP, 67 had PNCP (3.9%; 0.75 per 10,000 livebirths [95%CI: 0.59-0.96]). The prevalence of PNCP decreased during the study period. Leading causal events were cerebrovascular events (32.8%), head injuries/other accidents (22.4%), infections (19.4%) and hypoxic events (14.9%). Spastic hemiplegic (53.7%) or spastic quadriplegic/dyskinetic CP (31.3%) was more common in children with PNCP than non-PNCP (42.3% and 20.1%, respectively; p<0.001). Children with PNCP had more severe motor and associated impairments. Perinatal risk factors for CP were more common in children with PNCP than in the general population. The prevalence of PNCP among Norwegian children was low and decreasing. The main causes were cerebrovascular events and head injuries/other accidents. Although spastic hemiplegic CP was the dominating subtype, children with PNCP had more severe motor and associated impairments than children with non-PNCP, as well as a higher occurrence of perinatal risk factors than in the general population.

Decreasing prevalence and severity of cerebral palsy in Norway among children born 1999 to 2010 concomitant with improvements in perinatal health.

The aim of our study was to explore if the prevalence and clinical characteristics of cerebral palsy (CP), concomitant with perinatal health indicators in the general population, remained unchanged for children born in Norway between 1999 and 2010. This national multi-register cohort study included 711174 children recorded in the Medical Birth Registry of Norway. Among these, 707916 were born alive, and 1664 had a validated diagnosis of CP recorded in the Cerebral Palsy Registry of Norway and/or the Norwegian Patient Registry. Prevalence per 1000 live births as a function of birth year was analyzed using logistic regression with fractional polynomials to allow for non-linear trends. Chi-square statistics were used to estimate trends in proportions of clinical characteristics. The prevalence of CP in Norway decreased from 2.62 per 1000 live births in 1999 to 1.89 in 2010. The reduction was most evident among children with bilateral CP, in particular those with diplegia. During the study period, the proportions of children with severe motor impairments, epilepsy, intellectual impairment and reduced speech also decreased. At the same time, perinatal mortality has decreased in Norway, along with the proportion of women with preeclampsia, children born preterm or as a multiple. We observed a significant decrease in the prevalence and severity of CP subtypes and associated impairments among children with CP in Norway. This coincided with improvements in perinatal health indicators in the general population. These improvements are most likely explained by advancements in obstetric and neonatal care.

Comparison of young adults with cerebral palsy in Norway with and without epilepsy

Comparison of young adults with cerebral palsy in Norway with and without epilepsy

What is the ‘true’ prevalence of cerebral palsy in Norway?

What is the ‘true’ prevalence of cerebral palsy in Norway?

Descriptive analysis of a total population of children with dyskinetic cerebral palsy in Norway compared to children with spastic cerebral palsy

Descriptive analysis of a total population of children with dyskinetic cerebral palsy in Norway compared to children with spastic cerebral palsy

Five year multicenter follow-up study after single-event multilevel surgery in children and adolescents with Cerebral Palsy in Norway – A study protocol

Five year multicenter follow-up study after single-event multilevel surgery in children and adolescents with Cerebral Palsy in Norway – A study protocol

What is the prevalence of cerebral palsy in Norway?

What is the prevalence of cerebral palsy in Norway?

Cerebral palsy in Norway: Prevalence, subtypes and severity

Background/aim To describe prevalence, subtypes and severity of cerebral palsy (CP) in Norway using criteria proposed by the Surveillance of Cerebral Palsy in Europe (SCPE) network. Material All children in Norway with CP born in January 1996–December 1998 were registered in the Cerebral Palsy Registry of Norway. The Medical Birth Registry of Norway provided the perinatal data. Results A total of 374 children with CP were identified with a prevalence of 2.1 per 1000 live births. Detailed information was obtained from 294 (79%) children. Median age at clinical assessment was 6.9 years (range: 1.9–10.2 years). Thirty-three percent of the children had spastic unilateral CP, 49% spastic bilateral, 6% dyskinetic, 5% ataxic CP and 7% were not classified. Severely impaired vision and hearing were present in 5% and 4% of the children, respectively. Active epilepsy was present in 28%, mental retardation in 31% and severely impaired or no speech in 28% children. The most severe impairments in gross motor function were observed in children with low Apgar scores, and the most severe impairments in fine motor function in children born at term, with normal birth weight and low Apgar scores. Conclusion Compared with other populations, the prevalence of CP as well as the proportions of subtypes and gross motor impairments were similar, whereas fine motor impairments and associated impairments were more common. The classification of children with mixed forms of CP is still a challenge. Children were more severely affected if Apgar scores were low, and if they were born at term.

Fatigue in adults with cerebral palsy in Norway compared with the general population

Fatigue is commonly reported among adults with cerebral palsy (CP) and in the general population. The aim of this study was to examine the prevalence of perceived fatigue in adults with CP compared with the general Norwegian population. A multidimensional questionnaire, containing among other instruments the Fatigue Questionnaire, was sent to persons with CP aged 18 years or older with no intellectual disabilities documented in their medical records. Results were compared with recently published results of a study of fatigue in the general population in Norway. There were 406 respondents (209 males, 197 females; mean age 34 years, SD 11 years; age range 18 to 72 years). Distribution of the different types of CP coincided with international epidemiological studies on CP. Adults with CP reported significantly more physical, but not more mental fatigue, than the general population. The strongest predictors associated with fatigue were bodily pain, deterioration of functional skills, limitations in emotional and physical role function, and low life satisfaction. Fatigue was not significantly associated with type of CP but was most prevalent in persons with a self‐reported moderate grade of CP. Results of the present study indicate that physical fatigue is a pronounced problem in adults with CP, which has an impact on the preservation of functional skills and life satisfaction. Fatigue and factors related to fatigue should be addressed specifically in follow‐up programmes for persons with CP.

Fatigue in adults with cerebral palsy in Norway compared with the general population.

Fatigue is commonly reported among adults with cerebral palsy (CP) and in the general population. The aim of this study was to examine the prevalence of perceived fatigue in adults with CP compared with the general Norwegian population. A multidimensional questionnaire, containing among other instruments the Fatigue Questionnaire, was sent to persons with CP aged 18 years or older with no intellectual disabilities documented in their medical records. Results were compared with recently published results of a study of fatigue in the general population in Norway. There were 406 respondents (209 males, 197 females; mean age 34 years, SD 11 years; age range 18 to 72 years). Distribution of the different types of CP coincided with international epidemiological studies on CP. Adults with CP reported significantly more physical, but not more mental fatigue, than the general population. The strongest predictors associated with fatigue were bodily pain, deterioration of functional skills, limitations in emotional and physical role function, and low life satisfaction. Fatigue was not significantly associated with type of CP but was most prevalent in persons with a self-reported moderate grade of CP. Results of the present study indicate that physical fatigue is a pronounced problem in adults with CP, which has an impact on the preservation of functional skills and life satisfaction. Fatigue and factors related to fatigue should be addressed specifically in follow-up programmes for persons with CP.

Cerebral Palsy in Norway

Cerebral Palsy in Norway

Book Reviews

Book reviewed in this article:Survey of Research in Gestation and the Developmental Sciences By JACK DaviesAn Outline of Chemical Genetics By BERNARD S. STRAUSSInborn Errors of Metabolism By DAVID YI‐YUNG HSIAPolysaccharides in Biology: Transactions of the Fifth Conference Edited by GEORGE F. SPRINGERExperimental Allergic Encephalomyelitis and the ‘Auto‐Allergic’ Diseases By BYRON H. WAKSMANRapid Statistical Calculations By M. H. QuenouilleClinical Management of Behaviour Disorders in Children By H. AND Ruth M. BakwinSir Geoffrey Jefferson's Selected Papers Springfield, Illinois: Charles C. ThomasDer Liquor cerebrospinalis im Kindesalter. (In German) By D. H. SchonenbergInfectious Diseases of Children By Saul Krugmanand Robert WardBlood Diseases of Infancy and Childhood By Carl H. SmithTreatment of Cerebral Palsy in Norway By Bjarne AndersenAn Annotated Bibliography of Selected References in Cerebral Palsy for Professional Personnel and Parents By L. L. Reid, M. M. Miller AND W. G. WolfeDevelopment of the Perceptual World By C. M. Solley AND G. MurphyThe Child's Conception of Geometry By Jean Piaget, B. Inhelder AND A. SzeminskaSpace and Sight: The Perception of Space and Shape in Congenitally Blind Patients, before and after Operation By M. Von SendenIntelligence and Attainment Tests By P. E. VernonMental Subnormality By W. Alan Heaton‐Ward

The treatment of cerebral palsy in Norway.

The treatment of cerebral palsy in Norway.

Incidence of Cerebral Palsy in Norway and Some C.P. Problems

Acta PaediatricaVolume 44, Issue s103 p. 22-22 Incidence of Cerebral Palsy in Norway and Some C.P. Problems BJARNE ANDERSEN, BJARNE ANDERSEN NorwaySearch for more papers by this author BJARNE ANDERSEN, BJARNE ANDERSEN NorwaySearch for more papers by this author First published: July 1955 https://doi.org/10.1111/j.1651-2227.1955.tb17331.xCitations: 2AboutPDF ToolsRequest permissionExport citationAdd to favoritesTrack citation ShareShare Give accessShare full text accessShare full-text accessPlease review our Terms and Conditions of Use and check box below to share full-text version of article.I have read and accept the Wiley Online Library Terms and Conditions of UseShareable LinkUse the link below to share a full-text version of this article with your friends and colleagues. Learn more.Copy URL Share a linkShare onFacebookTwitterLinked InRedditWechat No abstract is available for this article.Citing Literature Volume44, Issues103July 1955Pages 22-22 RelatedInformation