Palliative Care Health Professionals Research Articles

Resilience in palliative healthcare professionals: a systematic review.

PurposeExposure to end-of-life and chronic illness on a daily basis may put palliative healthcare professionals’ well-being at risk. Resilience may represent a protective factor against stressful and demanding challenges. Therefore, the aim is to systematically review the quantitative studies on resilience in healthcare professionals providing palliative care to adult patients.MethodsA literature search on PubMed, Scopus, Web of Science and PsycINFO databases was performed. The review process has followed the international PRISMA statement guidelines.ResultsAt the initial search, a total of 381 records were identified. Twelve articles were assessed for eligibility and, finally, 6 studies met all the inclusion criteria. Of these, four researches were observational and two interventional pilot studies. From the systematic synthesis, palliative care providers’ resilience revealed to be related to other psychological constructs, including secondary traumatic stress, vicarious posttraumatic growth, death anxiety, burnout, compassion satisfaction, hope and perspective taking.ConclusionsThe current systematic review reported informative data leading to consider resilience as a process modulator and facilitator among palliative care professionals. A model on palliative healthcare providers’ experience and the role of resilience was proposed. Further studies may lead to its validation and implementation in assessment and intervention contributing to foster palliative healthcare professionals’ well-being.

Refractory psycho-existential distress and continuous deep sedation until death in palliative care: The French perspective.

Since February 2016, French Claeys-Leonetti law has recognized patients' right to confront incurable diseases with short-term prognosis and refractory physical or psychological or existential symptoms by requesting continuous deep sedation until death (CDSUD). Determining when psychological or existential distress is refractory and unbearable remains complex and controversial.This review provides a comprehensive thought on CDSUD for advanced incurable patients with refractory psychological and/or existential distress in palliative care settings. It offers guidance on psychiatric or psychological diagnosis for explaining patients' requests for CDSUD. A narrative literature review (2000-2019) was conducted on the MedLine search about the use of palliative sedation in cases of refractory psychological and/or existential distress. (1) Definitions of "refractory symptom," "refractory psychological distress," and "refractory existential distress" are inconsistent; (2) alternative diagnoses might obscure or be obscured by psycho-existential distress; and (3) criteria on meanings, reasons for requests, decision-making processes, and functions are evolving in practice. Before implementing CDSUD, palliative healthcare professionals should seek input from psycho-oncologists in palliative care. Mental health professionals should analyze and assess the reasons for psychological and/or existential distress, consider the intentionality processes of requests, and explore alternative diagnoses, such as depressive or adjustment disorders, demoralization syndrome, desire to hasten death, and desire for euthanasia. Therapeutic responses (e.g., pharmacological and psychotherapeutic) should be implemented before deciding that psycho-existential distress is refractory.

End of life in neonatology: experiences of health professionals in neonatal palliative care

espanolIntroduccion: Recientemente, se ha constatado que los profesionales que trabajan en las Unidades de Cuidados Intensivos Neonatales muestran un interes creciente por las decisiones tomadas al final de la vida y por la calidad de los cuidados prestados a los recien nacidos y sus familias. Objetivos: Comprender las vivencias de los profesionales de la salud en relacion con los cuidados paliativos neonatales. Metodos: Se utilizo la metodologia de investigacion cualitativa, exploratoria-descriptiva, de caracter fenomenologico. Resultados: se aplicaron y se analizaron cuestionarios a 15 profesionales para participar en una UCIN en el centro de Portugal. Los datos obtenidos revelan carencia de ensenanza e inexistencia de protocolos / pautas, asi como necesidad de soporte psicologico a profesionales y familia del RN. Conclusions: La formacion continua y especifica, el apoyo y acompanamiento psicologico de los profesionales y de las familias deben constituir el pilar de los cuidados paliativos neonatales. EnglishIntroduction: It has recently been shown that professionals working in the Neonatal Intensive Care Units show an increasing interest in decisions made at the end of life and in the quality of care provided to newborns and their families. Objetives: To understand the experiences of health professionals regarding neonatal palliative care. Methods: The research methodology was qualitative, exploratory-descriptive and phenomenological. Results: Questionnaires were applied and analyzed to 15 professionals working at a NICU in central Portugal. The data obtained show lack of teaching and lack of protocols/guidelines, as well as the need of psychological support to professionals and family of the NB. Conclusion: Continuous and specific training, support and psychological counseling of professionals and families should be the pillar of neonatal palliative care. portuguesIntroducao: Recentemente, tem-se constatado que os profissionais que trabalham nas Unidades de Cuidados Intensivos Neonatais mostram um interesse crescente pelas decisoes tomadas no final da vida e pela qualidade dos cuidados prestados aos recem-nascidos e suas familias. Objetivos: Compreender as vivencias dos profissionais de saude relativamente aos cuidados paliativos neonatais. Metodos: Utilizou-se a metodologia de investigacao qualitativa, exploratorio-descritiva, de cariz fenomenologica. Resultados: Foram aplicados e analisados questionarios a 15 profissionais a exercer numa UCIN do centro de Portugal. Os dados obtidos revelam carencia de ensino e inexistencia de protocolos/guidelines, bem como necessidade de suporte psicologico a profissionais e familia do RN. Conclusoes: A formacao continua e especifica, o apoio e acompanhamento psicologico dos profissionais e das familias devem constituir o pilar dos cuidados paliativos neonatais.

The significance of gratitude for palliative care professionals: a mixed method protocol

BackgroundIn palliative care (PC) patients and relatives (P/R) often show their gratitude to the healthcare professionals (HP) who care for them. HP appreciate these displays of gratitude, although the impact of the same has not been examined in detail. Publications analysed tell personal experiences in which HP say that displays of gratitude create sensations of well-being, pride and increased motivation to carry on caring. No systematic examination in PC was found. These aspects related to gratitude may be important in the field of PC, where there is constant exposure to suffering and the preoccupation which arises from wanting to help HP to go on with their work, but it needs closer study and systemisation. The purpose of this study is to understand the significance and the role of the gratitude received from P/R for palliative care health professionals (PCHP).MethodsA suitable mixed method will be used. The first phase will be quantitative and will consist of a survey, piloted by experts, whose goal is to explore the current situation in Spain as regards displays of gratitude received by HP at PC services. It will be sent by e-mail. The results from this part will be incorporated into the second part which will be qualitative and whose goal is to understand the significance of the experience of receiving displays of gratitude from the perspective of PCHP, using a phenomenological approach. Interviews will be undertaken amongst PCHP. The interview guide will be designed after taking the survey results into account. The project has been granted ethical approval.DiscussionThese results are set to provide a key contribution within the context of the growing preoccupation on how to care for HP, how to ensure retention and keep them from resigning, as well as preventing burnout, emotional fatigue and boosting their resilience. In order to do this, it is both interesting and ground breaking, to analyse the repercussion of spontaneous gratitude shown by P/R towards PCHP, to see if this is a useful resource to reduce these problems and to encourage the greater presence of dignity and humanisation, for both those receiving care and for those providing it. This gratitude may be one of these strategies.

Effects of Expressing Writing on organizational variables in Palliative Care health Professionals: an explorative study.

Background and aim: Healthcare professionals working in palliative care are exposed to emotionally intense conditions. Scientific literature suggests Expressive Writing as a valid tool for the adjustment to traumatic events. For health workers, EW represents an important support to prevent Compassion Fatigue and Burnout. As literature showed that Compassion Satisfaction, Group Cohesion and the Organizational Commitment are protective factors able to counter the onset of Compassion Fatigue and Burnout, the aim of this study is evaluating the effect of Expressive Writing protocol in Palliative Care workers on Compassion Satisfaction, Group Cohesion and Organizational Commitment. Methods: A quasi-experimental quantitative 2x2 prospective study was conducted with two groups and two measurements. 66 professionals were included. Outcome variables were measured using: Organizational Commitment Questionnaire, Compassion Satisfaction Rating Scale, ICONAS Questionnaire, Questionnaire for the evaluation of EW sessions. Results: The parametric analysis through Student t test did not show statistical significance within the experimental group and between the experimental and control groups. One significant difference in the pre-intervention assessment of Normative Commitment t (gl 64) = -2.008 for p< 0.05, higher in the control group, disappeared in the post intervention evaluation. An improvement trend in all variables within and between groups was present, with a positive assessment of utility from the participants. Conclusions: This intervention did not significantly impact outcome variables. It is however conceivable that by modifying the intervention methodology, it could prove effective. The positive evaluation by the operators, suggests to keep trying modelling a protocol tailored on Palliative Care professionals. (www.actabiomedica.it)

Coordination of Care Within a Mobile Palliative Care Team and Organization of a Continuing Education Program for Health Professionals in Palliative Care

Background: In DR Congo (DRC), many cancer patients in the terminal phase of their condition have minimal access to palliative care. There is a combined effect of poverty, the deterioration of the health system and the absence of a well-defined national policy on palliative care. Patients are for the most part abandoned to the care of inexperienced family members. Founded in 2009, Palliafamilli aims to improve the quality of life of patients requiring palliative care in the DRC by providing visits and care for patients, by striving to increase access to palliative care in the region and by informing, raising awareness and mobilizing key national stakeholders. In September 2018, Palliafamilli will launch a mobile palliative care team (MPCT) in partnership with the general hospital of Ndjili in Kinshasa. The MPCT is an interdisciplinary team consisting of physicians, nurses, a psychologist and a project manager; all experienced in accompaniment, symptom management and palliative emergency. It has a consultancy role for professionals, patients and their caregivers. Aim: Through a African Cancer Fellowship award, I will visit a mobile team of palliative care from CHRU Besançon, France, for one month in May 2018 to gain experience in designing and implementing best practices for a mobile palliative care team. Methods: I will work closely with the mobile palliative care team of the Besançon Regional Hospital Center to gain experience regarding the coordination and care administration of palliative care within a mobile team. I will also learn about the different programs of continuing education for health professionals, make comparisons and adapt the programs to the reality of DR Congo. Results: With a view to promoting access to palliative care patients, I intend to learn from the host organization the best practices that they apply to overcome communication difficulties with the patient and their relatives which can constitute delays to access to adequate care. This delay is more marked for patients suffering from cancer because the evolution of their pathology is unpredictable. The main barriers are the insufficient knowledge of patients' needs and the opportunities offered by palliative care. Upon my return, I will adapt the best practices learned in France to the DRC context during the launch of the new mobile palliative care team. Conclusion: In Congo, a cross-cutting approach is required to provide patients with palliative care and pain relief, as resources are limited, many people are in need of care, and there are few nurses and doctors empowered to provide care. An effective approach is to involve community or volunteer caregivers supervised by health professionals, and Palliafamilli is successful due in its multidisciplinary and multisectoral approach, with adaptation to cultural, social and economic specificities and its integration with existing health systems, focusing on primary health care and community and home care.

Burnout and executive functions in Palliative Care health professionals: influence of burnout on decision making

Health professionals show a high prevalence of burnout syndrome. This syndrome could be involved in the alteration of higher cognitive functions in the clinical setting. The aim of this study is to evaluate whether burnout is related to the executive functions of inhibition, working memory, decision-making, and cognitive flexibility in palliative care health professionals. Degree of burnout was evaluated in seventy-seven health professionals from palliative care units by the Maslach Burnout Inventory (MBI-HSS), while executive functions were evaluated by Stroop test (inhibition), Letter-Number Sequencing (working memory), Iowa Gambling Task (decision-making) and Trail Making Test (cognitive flexibility). The total sample was classified in relation to both degree of burnout (low, medium, high) in each subscale of MBI-HSS (emotional exhaustion, depersonalization, and reduced personal accomplishment), and the number of dimensions altered (high levels in none, one or more than one). Burnout syndrome was present in 54.5% of palliative care health professionals, 15.6% of them with more than one dimension altered; these professionals showed significantly lower scores than professionals without burnout in the Stroop test, the Letter-Number Sequencing and the Iowa Gambling Task. Higher levels of emotional exhaustion and depersonalization were associated with significantly lower scores in the Iowa Gambling Task for assessing decision-making. The results showed that palliative care health professionals with a higher level of burnout have an alteration of inhibition, working memory and decision-making. These executive functions can be relevant in the clinical setting since they could be related to the cognitive thinking required for correct clinical reasoning by health professionals.

‘Death is difficult in any language’: A qualitative study of palliative care professionals’ experiences when providing end-of-life care to patients from culturally and linguistically diverse backgrounds

Background: Ethnic minority patients have unique challenges in accessing health services. These include language difficulties, unfamiliarity with the health system, lower rates of cancer screening and survival, higher rates of reported side effects from cancer treatment and poorer quality of life. Little is known about this patient group when transitioning to palliative care. Aim: To elicit the experiences of palliative care health professionals when providing care for patients from culturally and linguistically diverse backgrounds which differ from mainstream Australian language and culture. Design: An emergent qualitative design, informed by theoretical and procedural direction from grounded theory research. Setting/participants: Four focus groups held with palliative care staff (n = 28) in a single specialist palliative care service in Australia. Results: The following themes emerged: (1) determining the rules of engagement around discussion of diagnosis and prognosis, (2) navigating the challenge of language to patient understanding, (3) understanding migration experiences to establish trust, (4) maintaining the balance between patient safety and comfort care, (5) providing a good death experience through accommodation of beliefs, and (6) navigating the important role of family members while privileging patient preferences. Conclusion: Underlying provider perceptions of caring for patients was that death is difficult in any language. Care was conceptualised as considering cultural and linguistic backgrounds within individualistic care. Understanding the migration experience and building trust were key elements of this individualised approach. Acknowledgement of the key role played by families in patient care and safety are strategies to minimise barriers and understand the concerns of this patient group.

"You either need help…you feel you don't need help…or you don't feel worthy of asking for it:" Receptivity to bereavement support.

Although the needs of the bereaved have been identified widely in the literature, how these needs translate into meaningful, appropriate, and client-centered programs needs further exploration. The application of receptivity to support is a critical factor in participation by the bereaved in palliative care bereavement programs. Receptivity is a complex multifactorial phenomenon influenced by internal and external factors that ultimately influences engagement in psychosocial support in bereavement. This study explored factors that influence receptivity to bereavement support from palliative care services in rural, regional, and remote Western Australia. The study comprised a qualitative descriptive research design using semistructured interviews with 24 bereaved individuals, nine palliative care health professionals, and four Aboriginal Health Professionals. Participants were recruited via palliative care services in country Western Australia. Interviews were transcribed verbatim and thematically analyzed. Findings revealed that a range of individual, social, and geographical factors influence receptivity to bereavement support and can impact on utilization of bereavement support services. Receptivity provides a frame of reference to enhance understanding of factors influencing engagement in psychosocial support in bereavement. Receptivity promotes a shift of service provider perspectives of effective supportive care to consumer-centric reasons for engagement.

Influence of sociodemographic, occupational and life style factors on the levels of burnout in palliative care health professionals

Palliative care health professionals have reported high levels of burnout. An understanding of factors associated with this syndrome in this population could foster new prevention and intervention strategies. The objectives were to evaluate the levels of burnout in each of its dimensions in a sample of palliative care health professionals and to analyze the relationship between levels of burnout and sociodemographic, occupational and lifestyle characteristics in this sample. The total sample was composed of 92 palliative care health professionals. Sociodemographic, occupational and lifestyle characteristics were registered. The levels of burnout syndrome were evaluated by the Maslach Burnout Inventory - Human Services Survey (MBI-HSS). The total sample was divided into three groups, depending on the level of burnout (non-burnout group, burnout group meeting one criterion, and burnout group meeting two or three criteria). Comparisons were performed amongst groups for all characteristics evaluated. The non-burnout professionals were significantly older and slept more than the professionals with more than one altered dimension; in addition, they had greater job seniority in the unit than those with a single altered dimension and did physical exercise more frequently than either of the burnout groups. The younger professionals, with more job seniority in the units of palliative care, and less hours of sleep and physical activity showed higher levels of burnout. Therefore, these factors should be considered for enhancing prevention and intervention strategies for these health professionals.

Self-management toolkit and delivery strategy for end-of-life pain: the mixed-methods feasibility study.

Pain affects most people approaching the end of life and can be severe for some. Opioid analgesia is effective, but evidence is needed about how best to support patients in managing these medicines. To develop a self-management support toolkit (SMST) and delivery strategy and to test the feasibility of evaluating this intervention in a future definitive trial. Phase I - evidence synthesis and qualitative interviews with patients and carers. Phase II - qualitative semistructured focus groups and interviews with patients, carers and specialist palliative care health professionals. Phase III - multicentre mixed-methods single-arm pre-post observational feasibility study. Phase I - six patients and carers. Phase II - 15 patients, four carers and 19 professionals. Phase III - 19 patients recruited to intervention that experienced pain, living at home and were treated with strong opioid analgesia. Process evaluation interviews with 13 patients, seven carers and 11 study nurses. Self-Management of Analgesia and Related Treatments at the end of life (SMART) intervention comprising a SMST and a four-step educational delivery approach by clinical nurse specialists in palliative care over 6 weeks. Recruitment rate, treatment fidelity, treatment acceptability, patient-reported outcomes (such as scores on the Brief Pain Inventory, Self-Efficacy for Managing Chronic Disease Scale, Edmonton Symptom Assessment Scale, EuroQol-5 Dimensions, Satisfaction with Information about Medicines Scale, and feasibility of collecting data on health-care resource use for economic evaluation). Phase I - key themes on supported self-management were identified from evidence synthesis and qualitative interviews. Phase II - the SMST was developed and refined. The delivery approach was nested within a nurse-patient consultation. Phase III - intervention was delivered to 17 (89%) patients, follow-up data at 6 weeks were available on 15 patients. Overall, the intervention was viewed as acceptable and valued. Descriptive analysis of patient-reported outcomes suggested that interference from pain and self-efficacy were likely to be candidates for primary outcomes in a future trial. No adverse events related to the intervention were reported. The health economic analysis suggested that SMART could be cost-effective. We identified key limitations and considerations for a future trial: improve recruitment through widening eligibility criteria, refine the SMST resources content, enhance fidelity of intervention delivery, secure research nurse support at recruiting sites, refine trial procedures (including withdrawal process and data collection frequency), and consider a cluster randomised design with nurse as cluster unit. (1) The recruitment rate was lower than anticipated. (2) The content of the intervention was focused on strong opioids only. (3) The fidelity of intervention delivery was limited by the need for ongoing training and support. (4) Recruitment sites where clinical research nurse support was not secured had lower recruitment rates. (5) The process for recording withdrawal was not sufficiently detailed. (6) The number of follow-up visits was considered burdensome for some participants. (7) The feasibility trial did not have a control arm or assess randomisation processes. A future randomised controlled trial is feasible and acceptable. This study is registered as PROSPERO CRD42014013572; Current Controlled Trials ISRCTN35327119; and National Institute for Health Research (NIHR) Portfolio registration 162114. The NIHR Health Technology Assessment programme.

Mainstreaming genetics in palliative care: barriers and suggestions for clinical genetic services.

Palliative healthcare professionals (PHCPs) frequently do not refer their eligible patients for genetic testing. After the death of the affected individual, clinically relevant information for family members is lost. In previous research, PHCPs stated that the end-of-life setting is not appropriate to discuss genetic issues. It is unclear if this has changed due to increasing awareness of genetics in the media and efforts to mainstream genetic testing. Semi-structured interviews of PHCPs were analysed by thematic analysis. Seven PHCPs (four nurses, two consultants, and one clinical psychologist) were interviewed. Participants reported feeling unfamiliar with the role of clinical genetics services, and did not feel confident in addressing genetic issues with their patients. A lack of scientific knowledge and unawareness of existing infrastructure to support their patients were cited. Many stated that palliative patients are interested in exploring a potential hereditary component to their disease, and acknowledged the potential for psychological benefit for their patients and their families. Most stated that addressing genetics fits within their skill set, but expressed concern about issues of consent, logistical difficulties, and ethical dilemmas. These perceptions differ considerably from those reported in existing literature. Importantly, each participant stated that the potential benefits of addressing genetic issues outweighed the potential for harm in most cases. These results suggest a need for clinical genetics staff to develop closer links with their local PHCPs and to provide education. Clinical psychologists may also be a helpful resource to address PHCPs' concerns.

Self-management support at the end of life: Patients’, carers’ and professionals’ perspectives on managing medicines

BackgroundPain is a frequently reported symptom by patients approaching the end of life and well-established that patients and carers hold fears relating to opioids, and experience side effects related to their use. The management of medicines is intrinsic to achieving effective pain relief. The concept of self-management support whilst well characterised in the context of chronic illness has not been elaborated with respect to end of life care. AimTo identify patient, carer and professional views on the concept of self-management support at end of life, specifically in relation to analgesia and related medicines (for side-effect management) in order to describe, characterise and explain self-management support in this context. Methodology & methodsQualitative design, data collection methods involved focus groups and interviews. Topics included the meaning of self-management support in this context, roles and behaviours adopted to manage pain-related medicines, and factors that influence these. A largely deductive approach was used, involving verification and validation of key frameworks from the literature, but with capacity for new findings to emerge. SettingParticipants were drawn from two different localities in England, one North, the other South. Interviews with patients and carers took place in their own homes and focus groups with healthcare professionals were held at local hospices. Participants38 individuals participated. 15 patients, in the last year of life, and 4 carers under the care of community-based specialist palliative care services and 19 specialist palliative care health professionals (predominantly community palliative care nurses). FindingsThe concept of self-management support had salience for patients, carers and specialist nurses alongside some unique features, specific to the end of life context. Specifically self-management was identified as an ever-changing process enacted along a continuum of behaviours fluctuating from full to no engagement. Disease progression, frequent changes in symptoms and side-effects, led to a complex web of roles and behaviours, varying day by day, if not hour by hour. Data confirmed previously proposed professional roles were enacted to support self-management. Furthermore, as patients, carers and clinical nurse specialists worked together to achieve effective pain management, they enacted and inter-acted in the roles of advocate, educator, facilitator, problem solver, communicator, goal setter, monitor and reporter. ConclusionsThe study has demonstrated what self-management support at end of life entails and how it is enacted in practice.

A pilot study of interprofessional palliative care education of medical students in the UK and USA

BackgroundEducating medical students to care for patients at the end-of-life is increasingly recognised as an essential component of training. Traditionally, medical student programmes are run by doctors, but patient care...

Distance learning for updating health professionals in palliative care: a systematic review

ObjectivesTo review literature regarding online educational initiatives in palliative care which are targeted to update health professionals and prepare distance courses suitable for a Brazilian context.Methods7 databases (PubMed, Cochrane Library,...

Investigación cualitativa en Cuidados Paliativos. Un recorrido por los enfoques más habituales

The use of qualitative research in Palliative Care (PC) is increasing, probably because PC and qualitative methodology have many things in common. Both focus on the person and his or her environment, and they are particularly interested in human experience. The aim of this paper is to present some of the most often used qualitative research approaches in health science, providing examples of PC studies. The aim is to help beginners to explore the possible approaches that they could use to carry out research in PC. The armchair walk-through exercise, which helps to specify key aspects in research, is developed for each of the approaches: ethnography, phenomenology, personal narrative, and grounded theory. Becoming familiar with qualitative methodology and some of the approaches will help PC health professionals to raise new questions and address new challenges with rigorous research.

Metaphors for ‘good’ and ‘bad’ deaths

This paper discusses the metaphors used by sixteen palliative healthcare professionals from around the United Kingdom in semi-structured interviews to describe what they see as ‘good’ and ‘bad’ deaths. The interviews, conducted for the large-scale “Metaphor in End-of-Life Care” project, are set against the background of contemporary practices and discourses around end-of-life care, dying and quality of death. To date, the use of metaphor in descriptions of different types of deaths has not received much attention. Applying the Metaphor Identification Procedure (Pragglejaz Group, 2007) we find that the difference between good and bad deaths is partly expressed via different frequencies of contrasting metaphors, such as ‘peacefulness’ and ‘openness’ as opposed to ‘struggle’ and ‘pushing away’ professional help. We show how metaphors are used to: evaluate deaths and the dying; justify those evaluations; present a remarkably consistent view of different types of deaths; and promote a particular ‘framing’ of a good death, which is closely linked with the dominant sociocultural and professional contexts of our interviewees. We discuss the implications of these consistent evaluations and framings in broader end-of-life care contexts, and reflect on the significance of our findings for the role of metaphor in communication about sensitive experiences.

Why the Interdisciplinary Team Approach Works: Insights from Complexity Science.

Although an interdisciplinary approach is considered best practice for caring for patients at the end of life, or in need of palliative care (PC) services, there is growing tension between healthcare organizations' need to contain costs and the provision of this beneficial, yet resource-intensive service. To support the interdisciplinary team (IDT) approach by recognizing organizations, teams, patients, and families as complex adaptive systems, illustrated by a qualitative study of the experiences, roles, and attributes of healthcare professionals (HCPs) who work with patients in need of PC services. In-depth, semi-structured interviews of PC health professionals were conducted, transcribed, and independently reviewed using grounded theory methodology and preliminary interpretations. A combined deductive and inductive iterative qualitative approach was used to identify recurring themes. The study was conducted in a physician-led, not-for-profit, multispecialty integrated health system serving three large, Western, rural states. A purposive sample of 10 HCPs who regularly provide PC services were interviewed. A positive team/patient experience was related to individual attributes, including self-awareness, spirit of inquiry, humility, and comfort with dying. IDT attributes included shared purpose, relational coordination, holistic thinking, trust, and respect for patient autonomy. Professional and personal motivations also contributed to a positive team/patient experience. Interdisciplinary PC teams have the potential to significantly impact patient and team experiences when caring for seriously ill patients. Findings from this study support interventions that focus on relationship building and application of a complex systems theory approach to team development.

Providing palliative care for cardiovascular disease from a perspective of sociocultural diversity: a global view.

This article discusses the available information on providing palliative care for cardiovascular disease (CVD) for individuals from culturally and linguistically diverse populations, and argues the need for cultural competence and awareness of healthcare providers. The burden of CVD is increasing globally and access to palliative care for individuals and populations is inconsistent and largely driven by policy, funding models, center-based expertise and local resources. Culture is an important social determinant of health and moderates health outcomes across the life trajectory. Along with approachability, availability, accommodation, affordability and appropriateness, culture moderates access to services. Health disparities and inequity of access underscore the importance of ensuring services meet the needs of diverse populations and that care is provided by individuals who are culturally competent. In death and dying, the vulnerability of individuals, families and communities is most pronounced. Using a social-ecological model as an organising framework, we consider the evidence from the literature in regard to the interaction between the individual, interpersonal relationships, community and society in promoting access to individuals with cardiovascular disease. This review highlights the need for considering individual, provider and system factors to tailor and target healthcare services to the needs of culturally diverse populations. Beyond translation of materials, there is a need to understand the cultural dimensions influencing health-seeking behaviors and acceptance of palliative care and ensuring the cultural competence of health professionals in both primary and specialist palliative care.

Responding to Urgency of Need in Palliative Care: Initial Stage of Development of a Decision Aid for Palliative Care Triage (S783)

•Comprehend the factors that indicate urgency of palliative care needs.•Articulate the challenges and barriers associated with the triage process in palliative care. Demand for inpatient and community-based palliative care (PC) is growing. This trend is due to an aging population, earlier integration of PC in cancer care, increasing involvement of PC in non-malignant disease, and increasing community awareness of palliative care. Thus a diverse patient population referred from a variety of sources must be triaged for allocation of limited clinical resources. The aim of this study was to explore the experience of health professionals when triaging PC needs as an initial step in developing a decision aid that can facilitate the equitable, efficient and transparent allocation of PC services by urgency of need. Twenty purposive-sampled general and specialist PC health professionals (medical n=9, nursing n=9, allied health n=2) from metropolitan and regional locations across Victoria, Australia participated in focus groups or individual interviews. A semi-structured interview guide sought to explore perspectives on indicators of urgency and facilitators and barriers to implementation. Transcripts were subjected to deductive thematic analysis by two researchers. Health professionals shared commonality in the factors they found useful to determine urgency, such as current or impending mismatch between care needs and care environment. Performance status was reported to be less important when considered in isolation. Interpersonal and ethical challenges associated with the triage process and systemic barriers for implementing a decision aid were highlighted. Indicators of urgent PC needs are complex, dynamic and often inter-related, but are useful for PC health professionals undertaking the difficult task of triage. The results of this study will form the basis of a future discrete choice experiment to determine the relative importance of each triage factor.