Overall Quality Of Information Research Articles

Comparative Assessment of Online Written Health Information on Treatment of Erectile Dysfunction in English and Hindi Language Webpages

Objectives: To assess and compare the overall quality of online written information on the treatment of erectile dysfunction (ED) in English and Hindi language webpages. Also, correlates of the quality of online health information were explored. Methods: First 50 links obtained on Google search in both English and Hindi language were screened, and a total of 86 (45 English, 41 Hindi) webpages providing patient-oriented information on the treatment of ED were analysed. Content quality and reliability were assessed using the DISCERN scale and the JAMA benchmark criteria respectively. Additionally, aesthetics, interactivity, and readability were evaluated. Results: The DISCERN score indicative of content quality was significantly higher for English webpages compared to Hindi webpages. English webpages were more likely to meet disclosure and attribution JAMA criteria for the reliability of medical information. English webpages with HONcode certification were more likely to have better content quality than those without it. However, none of the Hindi web pages analyzed were HONcode certified. Conclusion: English language webpages provided better overall quality of information on treatment of ED as compared to Hindi language. HONcode label might be used as a proxy indicator of better content quality for online resources informing on ED treatment by laypersons. There is a need to develop and popularize the usage of HONcode or other similar online health information quality accreditation systems for webpages in non-English languages like Hindi.

Analysis of the quality information provided by “Dr. YouTube™” on premature ejaculation

ABSTRACT Background: YouTube™ is an important online resource to access health-related online information by the public worldwide. However, the quality of information available on it has not been adequately characterized. Aim: To assess the quality and reliability of information available on the treatment of premature ejaculation (PME) on YouTube™ in the Hindi and English language videos. Materials and Methods: A total of 151 (Hindi: 109, English: 42) YouTube videos were selected for assessment. The quality was evaluated using structured tools: Patient Education Materials Assessment Tool (PEMAT); and a 5-point modified DISCERN questionnaire (Range: 1-serious shortcomings; 5-minimal shortcomings). PEMAT assesses the understandability and actionability of video as separate percentages. Results: Three most common treatments suggested for PME were Kegel exercise (22.5%), start–stop technique (21.9%), and antidepressant medications (20.5%). Antidepressant medications, stop-squeeze techniques, and psychotherapy were more frequently suggested in English videos, whereas ayurvedic or herbal medicines were more frequently suggested in Hindi videos. About two-thirds of videos presented information in an easy-to-understand and actionable manner (PEMAT scores ≥70%). Only 6% of videos had a DISCERN score of ≥4, indicating good overall quality of information presented in them. Conclusion: People likely to encounter poor-quality information when seeking information for PME treatment on YouTube. A large number of videos suggested ineffective or unproven treatment strategies for PME. Healthcare professionals need to be mindful of this while counselling patients, and guide them regarding useful and reliable sources of health information available online.

Quality of Web-Based Sickle Cell Disease Resources for Health Care Transition: Website Content Analysis.

Adolescents and young adults with sickle cell disease (SCD) transitioning from pediatric to adult health care face a high-risk period associated with increased use of acute health care services and mortality. Although 59% of American citizens report using the internet for health care information, the quality of web-based, patient-facing resources regarding transition in SCD care has not been evaluated. This study aimed to evaluate the quality and readability of web-based health information on SCD, especially as it pertains to the transition to adulthood for inidividuals with SCD. The study also compared the readability and content scores of websites identified in 2018 to those from 2021 to assess any change in quality over time. Keywords representing phrases adolescents may use while searching for information on the internet regarding transition in SCD care, including "hydroxyurea" and "SCD transition," were identified. A web-based search using the keywords was conducted in July 2021 using Google, Yahoo, and Bing. The top 20 links from each search were collected. Duplicate websites, academic journals, and websites not related to SCD health care transition were excluded. Websites were categorized based on the source: health department, hospital or private clinician, professional society, and other websites. Websites were assessed using Health On the Net Foundation code of conduct (HONcode), Flesch Reading Ease (FRE), Flesch-Kincaid Grade Level (FGL), Ensuring Quality Information for Patients (EQIP), and a novel SCD content checklist (SCDCC). EQIP and SCDCC scores range from 0- to 100. Each website was reviewed by 2 research assistants and assessed for interrater reliability. Descriptive statistics were calculated. Of the 900 websites collected, 67 (7.4%) met the inclusion criteria: 13 health department, 7 hospital or private clinician, 33 professional society, and 14 other websites. A total of 15 (22%) out of 67 websites had HONcode certification. Websites with HONcode certification had higher FRE and EQIP scores and lower FGL scores than those without HONcode certification, reflecting greater readability. Websites without HONcode certification had higher SCDCC scores, reflecting greater clinical content. Only 7 (10%) websites met the National Institutes of Health recommendation of a seventh-grade or lower reading level. Based on EQIP scores, 6 (9%) websites were of high quality. The mean SCDCC score was 20.60 (SD 22.14) out of 100. The interrater reliability for EQIP and SCDCC ratings was good (intraclass correlation: 0.718 and 0.897, respectively). No source of website scored significantly higher mean EQIP, FRE, FGL, or SCDCC scores than the others (all P<.05). Although seeking health care information on the web is very common, the overall quality of information about transition in SCD care on the internet is poor. Changes to current web-based health care information regarding SCD care transitions would benefit transitioning youth by providing expectations, knowledge, skills, and tools to increase self-efficacy.

RESEARCH ON THE DIRECTIONS OF MONITORING THE USE OF REAL ESTATE IN SETTLEMENTS

Monitoring real estate assets in settlements is pivotal in effective territorial management. Accurate information on the status and utilisation of these assets is essential for informed decision-making, resource allocation, and the sustainable development of lands within settlements. This research delves into the multifaceted methodologies used to achieve these objectives. The driving force behind this research is the demand for data-driven, geolocation-based decision-making. The precise evaluation of real estate assets within settlements is indispensable for efficient land use planning, infrastructure development, and the prudent management of natural resources. In the ever-evolving urban landscape, comprehending the dynamics of real estate assets is strategically imperative, facilitating optimal resource allocation and sustainable growth. Populated areas often present intricate, multi-layered geographical landscapes. Conventional real estate monitoring methods, such as manual inspections and paper documentation, often fall short of the required timeliness and accuracy for effective management. It is here that modern technologies step in, offering innovative solutions to augment the monitoring process. Geographic Information Systems (GIS) are at the forefront of this transformation. They enable the collection, analysis, and visualisation of spatial data, offering a multidimensional perspective on real estate assets. Through GIS, real-time insights into asset usage, condition, and their impact on the environment become attainable. Utilising GIS empowers decision-makers and stakeholders, aiding informed choices that facilitate sustainable urban planning and development. Furthermore, integrating remote sensing technology elevates the monitoring of real estate assets in settlements. Satellite imagery and aerial photography provide high-resolution data to detect changes and trends. That is particularly valuable for assessing urban expansion, environmental shifts, and the allocation of lands for agriculture, industry, or residential purposes. Ensuring data accuracy, accessibility, and confidentiality is a paramount aspect of efficient real estate monitoring. Advanced data analytics, machine learning algorithms, and blockchain technology can be leveraged to safeguard data integrity, ensure privacy, and enhance the overall quality of information. In summary, research on monitoring the use of real estate assets in settlements stands as a critical field with wide-reaching implications. The amalgamation of GIS, remote sensing technology, and advanced data analytics is reshaping our approach to comprehending, managing, and planning land usage in urban and rural contexts. By harnessing the capabilities of modern technology and data-driven insights, we pave the way for more sustainable and efficient territorial management. Keywords: spatial provision, monitoring, geoinformation system, land use, cadastral data, modelling.

Is YouTube a reliable source of information on chimeric antigen receptor T-cell therapy? An analysis.

486 Background: YouTube is an open-access source of information with more than 2.5 billion users. It plays an important role in disseminating information especially related to health, including cancer. Chimeric antigen receptor-T (CAR-T) cell therapy has significantly improved outcomes for hematologic malignancies over recent years. We aim to assess the quality and engagement parameters of the 100 most viewed videos on YouTube on CAR-T cell therapy. Methods: A systematic search was conducted on YouTube using the search terms (“CAR-T Cell therapy” AND “Cancer”). One hundred most viewed videos in English were selected. We utilized the already validated tools PEMAT and DISCERN to assess the quality of these videos on CAR-T. Additionally, we looked at the number of views, comments, and likes. Descriptive statistics and Pearson correlation tests were performed using R studio v2022.12.0-353. Results: The videos in our study had up to 3.4 million views (median number of views:19901), and the overall quality of information was fair (50%) by the DISCERN score. These videos were categorized into different sources academic (60%), media (22%), and industry (18%). The mean DISCERN score (44.27± 10.8), mean PEMAT actionability (47% ± 38%), mean PEMAT understandability (75.6% ± 15.5%). While benefits were mentioned by 67%, only 29% discussed the risks of CAR-T Cell therapy; 37% of videos promoted shared decision-making, and only 10% summarized the information at the end. There was no significant correlation between DISCERN and PEMAT scores with video engagement parameters, including likes, views, and comments. Interestingly, only 30% of videos discussed other treatment options except for CAR-T. While 88% of videos used everyday language, medical terminologies were defined by 73% of videos; 32 % of videos were broken into short sections with informative headers. Conclusions: This is the first study to our knowledge evaluating the quality of information on CAR-T therapy on YouTube. Compared to historical studies on YouTube 1, this study shows the quality of the information provided in these videos is valid and reliable. They also prove to be actionable and understandable; these videos focus on the benefits of CAR-T cell therapy and are less likely to discuss risks or shared decision-making. Contrary to previous studies2, we believe YouTube videos on CAR-T Cell therapy may serve as a supplementary source of providing information to patients wishing to learn more on this topic.

YouTube as a reliable source of information on bispecific antibodies (BsAbs): A qualitative analysis.

322 Background: YouTube is an open-access source of information. It has more than 2.5 billion users. It can play a pivotal role in educating or misinforming our cancer patients. Emerging therapeutics like BsAbs have changed the treatment paradigm for cancer over the past decade. There is scarce data to evaluate the quality of information on BsAbs uploaded on YouTube. We aim to assess the quality and engagement parameters of the most viewed videos on YouTube. Methods: A systematic search was conducted on YouTube using the search terms (“bispecific antibodies” AND “cancer”). The 70 most viewed videos were selected only in the English language. We utilized the already validated PEMAT and DISCERN tools to assess the quality of these videos on BsAbs. Additionally, we looked at the number of views, comments, and likes. Descriptive statistics and Pearson correlation tests were performed using R studio v2022.12.0-353. Results: The videos in our study had up to 50,000 views (, and the overall quality of information was poor (46.38%). These videos were categorized into different sources academic (61%), media (14.5%), and commercial (24.5%). Only 27.5% of videos discussed the benefits, 17% discussed the risks, 8.7% discussed the effect on the quality of life (QoL), and 11% discussed shared decision-making. Financial barriers were discussed only in 4% of the videos, whereas the availability of the drug was discussed in 11% of the videos. Regarding side effects, 32% of videos mention cytokine release syndrome, while 20% mention neurological toxicity. The mean DISCERN score for the videos was 41.2. A significant trend of increased DISCERN and PEMAT scores was noticed with the increasing length of the videos. Conclusions: This is the first study to evaluate the quality of information on BsAbs on YouTube. This study highlights the poor quality of information available on YouTube; these videos are less likely to discuss the risks, effects on QoL, and shared decision-making. Further efforts are needed to improve the quality and engagement of these videos based on the validated scales.[Table: see text]

Evaluation of the quality and reliability of anal cancer and its precancerous lesions-related content on YouTube: a cross-sectional study

ObjectivesThis research aims at evaluating the quality of anal cancer and its precancerous lesions-related videos on YouTube.DesignCross-sectional survey design.SettingUSA.ParticipantsThe top 150 videos on YouTube were selected for analysis based on...

Effect of Information Sources and their Characteristics on Knowledge and Adoption of Cultural Practices of the Domestic Floriculture Growers in the Central Province of Sri Lanka

Floriculture industry has become a high-income generating agribusiness today in Sri Lanka. It also brings a considerable amount of foreign exchange to the country annually, which is an important factor for the country’s economy. The climatic variation of the Central Province of Sri Lanka provides a suitable growing environment for different tropical and subtropical floriculture species. There are more than 700 floriculture nurseries in the province. They grow an array of popular floriculture varieties for the local market. The objectives of the research were to identify the information sources, their characteristics, and their effect on technical knowledge and adoption of grower’s cultural practices. Among the growers, 210 were randomly selected. A three-point scale was used to measure the levels of technical knowledge. Required primary data were collected through personal interviews with a pretested questionnaire. Data were analyzed using Statistical Package for Social Sciences (SPSS).&#x0D; Anthuriums, Orchids, Roses, Foliage, and Mixed flowers were the main floricultural crops grown by the growers in the province. Different percentages of respondents grow different types of floricultural crops (53.8% to 63.3%). The numbers of respondents showed that one grower might grow more than one type of crop. Higher numbers of the growers grow anthuriums (68.5%), mixed flowers (63.3), and foliage (59.0). These floricultural crops have high demands in the local market as well as in the foreign market. Television was partly helpful for the growers (78.8%) as an information source.&#x0D; The highest mean values of overall quality of information were for the information given by the botanic garden extension staff (16.45) and fellow growers (14.37). The majority of the respondents have received adequate (82%), fully trustworthy (84.1%), fully timely (73.4%), fully useful (81.7%) technical information from the Botanic Gardens extension staff. The fellow growers (43.1%) were also an important information source for the growers. Private companies (1.1%) and radio (1.1%) provided the least amount of information. The relationship between the overall technical knowledge and the overall information sources was significant (p value is 0.007). The relationship between the overall adoption and the overall information sources was also significant (p value is 0.007). Depending on the situation, different information sources provide the growers with trustworthy, useful and timely information. Growers receive quality information from the extension officers of the Department of National Botanic Gardens (DNBG) and the fellow growers. Therefore, it is recommended to provide necessary quality information to the growers through the DNBG.

Readability and quality of online patient resources regarding knee osteoarthritis and lumbar spinal stenosis in Japan

BackgroundThis study aimed to quantify the readability and quality of online patient resources on knee osteoarthritis and lumbar spinal stenosis in Japan. MethodsThree search engines (Google, Yahoo, and Bing) were searched for the terms knee osteoarthritis and lumbar spinal stenosis. The first 30 websites of each search were screened. Duplicate websites and those unrelated to the searched diseases were excluded. The remaining 125 websites (62 on knee osteoarthritis, 63 on lumbar spinal stenosis) were analyzed. The text readability was assessed using two web-based programs (Obi-3 and Readability Research Lab) and lexical density. Website quality was evaluated using the DISCERN score, Clear Communication Index, and Journal of American Medical Association benchmark criteria. ResultsReadability scores were high, indicating that the texts were difficult to understand. Only 24 (19%) and six (5%) websites were classified as average difficulty readability according to Obi-3 and Readability Research Lab, respectively. The overall quality of information was low, with only four (3%) being rated as having sufficient quality based on the Clear Communication Index and Journal of American Medical Association benchmark criteria. None of the websites satisfied the DISCERN quality criteria. ConclusionsPatient information on Japanese websites regarding knee osteoarthritis and lumbar spinal stenosis were difficult to understand. Moreover, the quality of the websites was insufficient. Orthopaedic surgeons should contribute to the creation of high-quality easy-to-read websites to facilitate patient-physician communication.

How Industrial Internet Platforms guide high-quality information sharing for semiconductor manufacturing? An evolutionary game model

To keep up with the times, the semiconductor manufacturing industry needs to break down barriers to data transmission. Since the manufacturing process of semiconductor materials is expensive, the material suppliers need to obtain a large amount of measurement information to optimize it. Therefore, its data cooperation with semiconductor manufacturers is particularly important. This paper uses Athnia, a data sharing platform for semiconductor manufacturing, as an example to illustrate the positive impact of high-quality information on the industry. Based on a three-party evolutionary game model of Industrial Internet Platform, semiconductor manufacturer and material supplier, this paper analyzes the factors affecting the choice of tripartite information sharing strategies. The results confirm the important role played by the Industrial Internet Platform in information sharing and highlight how the platform should adjust its strategies in different situations. This paper also identifies a number of external factors that affect the overall quality of information sharing. These findings will facilitate data sharing in semiconductor manufacturing.

Quality assessment of information on chimeric antigen receptor T-cell therapy on YouTube: An analysis.

e13633 Background: YouTube is an open-access source of information with more than 2.5 billion users. It plays an important role in disseminating information especially related to health, including cancer. Chimeric antigen receptor-T (CAR-T) cell therapy has significantly improved outcomes for hematologic malignancies over recent years. We aim to assess the quality and engagement parameters of the 100 most viewed videos on YouTube on CAR-T cell therapy. Methods: A systematic search was conducted on YouTube using the search terms (“CAR-T Cell therapy” AND “Cancer”). One hundred most viewed videos in English were selected. We utilized the already validated tools PEMAT1 and DISCERN2 to assess the quality of these videos on CAR-T. Additionally, we looked at the number of views, comments, and likes. Descriptive statistics and Pearson correlation tests were performed using R studio v2022.12.0-353. Results: The videos in our study had up to 3.4 million views (median number of views:19,901), and the overall quality of information was fair (50%) by the DISCERN score. These videos were categorized into different sources academic (60%), media (22%), and industry (18%). The mean DISCERN score (44.27± 10.8), mean PEMAT actionability (47% ± 38%), mean PEMAT understandability (75.6% ± 15.5%). While benefits were mentioned by 67%, only 29% discussed the risks of CAR-T Cell therapy; 37% of videos promoted shared decision-making, and only 10% summarized the information at the end as per the DISCERN criteria. There was no significant correlation between DISCERN and PEMAT scores with video engagement parameters, including likes, views, and comments. Furthermore, only 30% of videos discussed other treatment options except for CAR-T. While 88% of videos used everyday language, medical terminologies were defined by 73% of videos; 32 % of videos were broken into short sections with informative headers as per the PEMAT criteria. Conclusions: To the best of our knowledge, this is the first study evaluating the quality of information on CAR-T cell therapy on YouTube. In comparison to previous studies using YouTube 3,4, this study shows the quality of the information provided in these videos is valid and reliable. They also prove to be actionable and understandable; these videos focus on the benefits of CAR-T cell therapy and are less likely to discuss risks or shared decision-making. We believe YouTube videos on CAR-T Cell therapy may serve as a supplementary source of providing information to patients wishing to learn more on this topic. 1) Shoemaker SJ et al. The Patient Education Materials Assessment Tool (PEMAT) and User’s Guide. 2) Charnock D et al. DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. 3) Steinberg et al. YouTube as Source of Prostate Cancer Information, Urology. 4) Di Bello et al. Immunotherapy for Urological Tumors on YouTube: An Information-Quality Analysis, Vaccines.

Abstract 4399: Can technology improve the quality and efficiency of multidisciplinary cancer conferences

Abstract Background: The use of multidisciplinary cancer conferences (MCCs) in cancer patient management is known to lead to improved quality of care and patient outcomes. Applying technology to MCCs may serve to optimize the process and enhance its contribution to patient care. The purpose of this study is to evaluate the impact of a tumor board technology platform on the quality of MCCs. Methods: Data was collected prospectively from Thoracic, Gynecology (GYN) and Breast Cancer MCCs, September 2020 to February 2022, at a comprehensive cancer center using an MCC performance assessment tool and a self-administered survey. The Mann Whitney U and X2 tests were used as appropriate, to compare the quality of information presented and discussed, time per case reviewed, and consensus before and after implementation of the NAVIFY® Tumor Board Solution. Weighted composite scores of 11 of the variables were calculated and averaged between observers. Higher mean scores reflect higher quality and vice versa. Results: Pre and post NAVIFY® data were collected from 249 and 289 cases, respectively. The overall quality of information presented increased after NAVIFY® implementation (Table 1). This increase was maintained within the Thoracic, Breast and GYN MCC subgroups (mean composite scores: 63.9 vs 82.9; p &amp;lt; .001, 63.4 vs 72.3; p &amp;lt; .001, and 59.8% vs 63.5%; p = 0.009 respectively). Increased participation by surgical, medical and radiation oncologists was also documented for the MCCs (mean score: 3.9 vs 4.1; p &amp;lt; .001, 3.4 vs 3.9; p &amp;lt; .001, and 3.5 vs 3.6; p = 0.035 respectively) as well as increased frequency of consensus (85.9% to 95.5%; p = 0.001). No change in discussion time was seen. Pathologists/radiologists surveyed reported greater ease of finding information they needed to prepare for the MCC (76.1% vs 96.7%; p = 0.048). Conclusions: Using technology to organize and convey data at MCCs improves quality of information presented and discussed, clinician participation and the ability to reach a consensus. Table 1. Comparison of Observational Measures Before and After NAVIFY® Platform Introduction Baseline Period Post Period P-value Total Observed Cases N 250 (46.4%) 289 (43.6%) Observed Cases By MCC Thoracic 156 (62.4%) 177 (61.2%) 0.963 Breast 42 (16.8%) 50 (17.3%) GYN 52 (20.8%) 62 (21.5%) All MCCs Composite Score Mean/SD 62.9/7.7 76.9/10.6 &amp;lt;.001 Composite Score Breakdown &amp;gt;= 90 - 26 (9.0%) &amp;lt;.001 80-90 9 (3.6%) 100 (34.6%) 70-80 28 (11.2%) 84 (29.1%) 60-70 132 (52.8%) 57 (19.7%) &amp;lt; 60 81 (32.4%) 22 (7.6%) Surgical Oncologist Contribution Mean/SD 3.9/0.8 4.1/0.7 &amp;lt;.001 Medical Oncologist Contribution Mean/SD 3.4/1.0 3.9/1.0 &amp;lt;.001 Radiation Oncologist Contribution Mean/SD 3.5/0.9 3.6/1.2 0.035 Discussion Time (minutes) Mean/SD 10.2/4.4 10.3/4.3 0.605 Consensus Reached Yes 213 (85.9%) 276 (95.5%) 0.001 Citation Format: Opuruiche Ibekwe, Carmelo Gaudioso, Kristopher M. Attwood, Ellis G. Levine, Stephen B. Edge, Chukwumere E. Nwogu. Can technology improve the quality and efficiency of multidisciplinary cancer conferences. [abstract]. In: Proceedings of the American Association for Cancer Research Annual Meeting 2023; Part 1 (Regular and Invited Abstracts); 2023 Apr 14-19; Orlando, FL. Philadelphia (PA): AACR; Cancer Res 2023;83(7_Suppl):Abstract nr 4399.

The Assessment of TikTok as a Source of Quality Health Information on Varicoceles

ObjectiveTo evaluate the quality of varicocele information on TikTok, a popular video platform that adolescent patients are now turning to as a source of medical information before visiting a doctor. MethodsUsing the key word “varicocele,” we retrieved the top 225 videos listed on TikTok in May 2022. We extracted general video and engagement data. Video information was coded and analyzed for the completeness of different types of content (definition, symptoms, evaluation, management, and outcomes). The quality of consumer health information was rated using the DISCERN instrument. ResultsThirty-six videos met inclusion criteria; 17 were created by general users, 16 by healthcare professionals or systems (2 by urologists), and 3 by scientific communities. Healthcare professionals had more views than non-healthcare (P = .05). The quality of health information using the DISCERN instrument was “poor” from health care professional videos and “very poor” from non-health care professionals. However, the quality of information provided by healthcare professionals was statistically better than that of non-healthcare (P< .05). Video content mainly focused on symptoms: 50% of videos from healthcare providers had some or extensive content and 41% of non-healthcare had some content. 23% of videos had misinformation. ConclusionThe overall quality of information for varicoceles on TikTok is not acceptable and does not meet patient needs. It is imperative that urologists create robust, accurate content, and partner with these platforms to connect users with higher quality information. TikTok users should also be mindful that information may not be medically accurate.

Pregnant and Breastfeeding Women's Attitudes and Fears Regarding COVID-19 Vaccination: A Nationwide Cross-Sectional Study in Saudi Arabia.

Contracting coronavirus disease (COVID-19) during pregnancy has been linked to an increased risk of severe maternal and fetal complications. Mass vaccination is considered a promising solution to successfully combat the COVID-19 pandemic. It includes vaccinating of pregnant and breastfeeding women. The success of a vaccine is determined not only by its efficacy, but also by its acceptability. Therefore, our study aimed to explore the acceptability and reluctance of pregnant and breastfeeding women to receive COVID-19 vaccination in Saudi Arabia. This cross-sectional study was conducted in Saudi Arabia from March 2022-beginning to June 2022-end. Using an online self-administered questionnaire with a convenience sampling technique, we assessed women for pregnancy, gravidity, parity, high-risk pregnancy, trimester of pregnancy, and current or planned breastfeeding. Furthermore, we assessed patients with preexisting chronic illnesses. The questionnaire comprised sociodemographic data and items drawn from Goncu Ayhan et al, including vaccination history, perception of risk related to the COVID-19 pandemic, impact of the COVID-19 pandemic, and acceptance and attitude toward future COVID-19 vaccination. A total of 854 women (615 pregnant and 192 breastfeeding women) were included. Predictors of COVID-19 vaccination acceptance were found in women with a high level of education, those who lived with an elderly family member, and had close contact with a COVID-19-positive person. The reasons for declining vaccination included COVID-19 diagnosis during pregnancy and concerns about side effects of COVID-19 vaccines. A total of 503 (58.9%) women believed that COVID-19 vaccines had the potential to harm their babies. Only 415 (48.6%) agreed they would take the COVID-19 vaccine if it were recommended for pregnant women. Pregnant and breastfeeding women fear COVID-19 vaccination due to safety concerns for their babies. COVID-19 vaccine acceptance varies among pregnant and breastfeeding women, regardless of whether they receive the COVID-19 vaccine. Our study underlines the importance of public education campaigns to improve the overall quality of information on COVID-19 vaccination, particularly among pregnant and breastfeeding women.

Evaluation of ICU end-of-life and bereavement care by relatives of deceased ICU patients

IntroductionThe aim of the study was to evaluate the quality of ICU ‘end-of-life care’ as well as the current bereavement support strategies in a large tertiary hospital, reported by bereaved family members of patients who were admitted to ICU who received bereavement support. MethodsA cross-sectional single site study was conducted, in which two (online) questionnaires (euroQ2 and a customized version of the ARREVE questionnaire) were sent to relatives of deceased ICU patients at one timepoint, ranging from 1 week to ± 16 months after a follow-up phone call, which is part of the standard care procedure. ResultsWe sent 139 questionnaires and 95 questionnaires were returned (response rate 68.3%). Overall, the quality of care was rated as good, with excellence in ‘concern and caring by ICU staff’ towards the patient, consideration of the needs of the family members, ease of getting information and the completeness of information about what is done. Points for improvement include the presence at bedside, consistency of information and the overall quality of information given by the physicians. The follow-up call 2–3 months after the loss was appreciated and beneficial for the family members. Point of improvement was asking if they wanted to have a scheduled phone call or a spontaneous one at the beginning of the follow-up call, since participants can have a preference for a planned (22.4%) or unplanned (28.2%) call. However, 49.4% of the participants had no preference. ConclusionIn general, the quality of care, and ‘end-of-life care’ in the ICU was good, as assessed by relatives of deceased ICU patients. To optimize the ‘quality of end-of-life care’ in the ICU, improvements in terms of information provision and possibilities to visit the patient can be made.

Assessment of the quality of multidisciplinary cancer conferences: A prospective observational study.

e13548 Background: Multidisciplinary cancer conferences (MCCs) serve as venues for input from a variety of clinicians in patient management. Research suggests that leveraging technology improves efficiency and effectiveness of MCCs. This study examined the current state of practice in three specialized MCCs before the implementation of a tumor board technology solution. Methods: A single-site prospective observational study was conducted at a comprehensive cancer center. A validated tool was adapted to evaluate the quality of information and discussion at the MCCs. Variables were scored on a 1-5 rating scale (poor to excellent). Audio recordings supplemented the observational data collection. Surveys were also administered to assess participants’ satisfaction with the process and case discussions. Endpoints of interest included time and quality of case preparation, presentation and discussion, and rate of clinical trials consideration. Descriptive statistics were used to summarize the demographic/clinical characteristics of patients and calculate overall scores for the MCC performance. Results: From September 2020 to March 2021, a total of 257 patients were presented at the three MCCs with a median age of 66 years. The distribution of clinical stages (AJCC)1-4 was 30.5%, 11.6%, 17.2% and 7.7%, respectively with 33.0% of the values missing. The overall quality of information presented, and the discussion was deemed average. However, presentation of patient views, case history and MCC chair contribution were considered poor, above average, and excellent, respectively (median scores = 1.0, 3.5 and 5.0). The median time per case presentation and discussion was 9.0 minutes. The median time per case preparation by the radiologist and pathologist was 8.6 and 12.0 minutes, respectively. Two hundred and eighty-three surveys were completed by attending physicians. 77.5% of them agreed that the case discussions were insightful and helped change their minds about the cases discussed and 91.2% were satisfied with the depth of case discussion. The rate of clinical trial consideration was 10.8%. Conclusions: These findings demonstrate various strengths and weaknesses of a conventional approach to MCCs in three disease sites – thoracic, breast and gynecology. A comparison of relevant parameters when a tumor board technology platform is utilized is ongoing. This may address some of the weaknesses identified in our study and extend the benefits of MCCs to more patients.

Assessing the Quality, Reliability, and Readability of Online Information on Dry Eye Disease.

Purpose:The purpose of this study was to assess the quality, reliability, readability, and technical quality of web sites relating to dry eye disease.Methods:A cross-sectional study was conducted that evaluated the first 75 web sites on a Google Search by using the keyword “dry eyes.” Each web site was evaluated by 2 independent reviewers using the DISCERN, HONcode, and JAMA criteria to assess quality and reliability. Interrater reliability was also analyzed. Readability was assessed using the Flesch–Kincaid readability tests and the Gunning fog, Simple Measure of Gobbledygook, Coleman–Liau, and automated readability indices. Technical quality was determined by the presence of 10 specific features. Web sites were further categorized into institutional (academic centers, medical associations, and government institutions) and private (private practices) categories.Results:There was no significant difference in scoring observed between the 2 reviewers. The overall mean DISCERN score ± standard error (SE) was 3.2 ± 0.1, the mean HONcode score (±SE) was 9.3 ± 0.3, and the mean JAMA score (±SE) was 1.9 ± 0.1. Institutional web sites had a higher DISCERN score (3.4 ± 0.1 vs. 3.1 ± 0.1; P < 0.05) and HONcode score (10.3 ± 0.5 vs. 8.8 ± 0.4; P < 0.05) than private sites. Technical quality was higher in institutional web sites compared with private web sites (P < 0.05). Readability was poor among all web sites, with most web sites not achieving below a ninth grade reading level.Conclusions:Quality, reliability, and readability scores were low for most web sites. Although institutional web sites achieved higher scores than private web sites, revision is warranted to improve their overall quality of information and readability profile.

IQiYi Video as a Source of Information on COVID-19 Vaccine: Content Analysis.

This study aims to assess the contents of COVID-19 vaccine related videos available on iQiYi, which is a popular video website in mainland China. The phrases ""(COVID-19 vaccine) and ""(the abbreviation of "" according to Chinese habits) were searched separately on iQiYi on July 1, 2021. The 200 most popular videos of each search were screened. Video content and characteristics were identified, extracted and independently rated against Global Quality Scale (GQS), Health on the Net Foundation Code of Conduct (HONCode) and DISCERN principle by two authors. Ninety videos, with a total of 1165596 views, 14498 likes, and 1450 forwards as well as 95 comments at the time of data collection were included in the study. The channels, sources, topics and formats of the videos were diversified. The majority of videos received high scores on GQS and all the videos partly adhere to HONCode and DISCERN principle. Overall quality of information on iQiYi regarding COVID-19 vaccines remains good. However, existing evaluation tools cannot reflect the complexity of video websites. New and more effective tools or standards should be developed to help people understand the modern landscape of health communication better.

Assessing the quality and reliability of patient information regarding aesthetic fat grafting on YouTube

PurposePatients increasingly consult social media regarding aesthetic surgery. Given the popularity of fat transfer operations, this study assesses the quality and reliability of patient information available on YouTube regarding aesthetic fat grafting. MethodsThe terms “fat grafting” and “fat transfer” were searched on YouTube with respect to the terms “face”, “breast”, “buttock”, and “Brazilian butt lift”. Filtered by view count, the top 20 unique, English language, aesthetic surgery-related videos for each search combination were reviewed by three independent reviewers for demographic and descriptive characteristics. Videos were rated for information reliability and quality using the modified DISCERN (MD) tool (1 = low, 5 = high) and global quality scale (GQS) (1 = poor, 5 = excellent). ResultsOut of 80 total videos, 76% were authored by physicians and 24% by laypersons. The overall mean MD score was 1.5 and the mean GQS was 2.6. Videos authored by physicians outscored those by non-medical authors (MD: 1.6 vs. 1.3; GQS 2.7 vs. 2.2). Board-certified plastic surgeon videos (N = 30) scored higher on both the MD (1.7 vs 1.3) and GQS (3.1 vs 2.2) than those of non-medical authors. On the contrary, videos by laypersons and non-plastic surgeons had 40% more views, twice as many “likes” and nearly double as many subscribers. ConclusionThe overall quality of information presented in aesthetic fat grafting procedures videos on YouTube is low and from unreliable sources. Surgeons should educate patients regarding potentially inaccurate information, and professional societies should disseminate high-quality media.

The quality of information available about Ephedra sinica on online vendor websites: The Canadian consumer experience

BackgroundEphedra sinica (ES) is a natural health product used to promote weight loss, enhance athletic performance, and treat common ailments such as the common cold or flu. Due to restrictions within Canada, Canadians interested in purchasing this product turn to online vendors for the ease and discrete nature of online transactions. However, the information available on these websites for consumers looking to purchase the substance is variable. This study investigated the quality of information about ES available to Canadian consumers on the websites of these online vendors. MethodsFollowing searches on Google.ca, eligible websites were assessed using the DISCERN instrument, a tool consisting of 16 questions, each rated on a five-point Likert scale, to assess the quality of health information about a treatment choice. The data was used to determine the overall quality of information about ES available to consumers on these websites. ResultsA total of 660 webpages were identified, of which 28 websites were found to be eligible. It was determined that the overall quality of information of websites selling ES products online was poor, as 79 % of online vendors received an average score of 2 or below. ConclusionConsumers looking to purchase ES online are lacking critical information about this herbal product that is necessary to make an informed decision about its use. This study's findings can be used by clinicians and researchers to inform patients about the poor quality of information about ES on these websites and help them identify quality sources of information.