Open Text Research Articles

Women’s experiences with using patient-reported outcome and experience measures in routine perinatal care in the Netherlands: a mixed-methods study

ObjectivesTo gain insight into the experiences of women with completing and discussing patient-reported outcome measures (PROM) and patient-reported experience measures (PREM), and tailoring their care based on their outcomes.DesignA mixed-methods...

The Poetry Of Birth

This is the first in a Maternity Voices series about those in the maternity space that have become published authors. I decided on this series as last year I became a published author of a book and it made me reflect on my journey to that point and wonder what other authors journeys have been like. I hope this series is inspirational for you all and maybe encourage you to also explore putting your experiences down on the page! I have a great line up of authors for you and we start with the story of Pixie Willo. Pixie is a mother and poet and published her first book of poetry in 2020. ‘In Clarity’s Absence’ Buy Book here Her next book of poetry based on open text comments from the Birth Experience Study national survey is due for release mid-2023.

Sustaining a New Model of Acute Stroke Care: A Mixed-Method Process Evaluation of the Melbourne Mobile Stroke Unit.

Internationally, Mobile Stroke Unit (MSU) ambulances have changed pre-hospital acute stroke care delivery. MSU clinical and cost-effectiveness studies are emerging, but little is known about important factors for achieving sustainability of this innovative model of care. Mixed-methods study from the Melbourne MSU (operational since November 2017) process evaluation. Participant purposive sampling included clinical, operational and executive/management representatives from Ambulance Victoria (AV) (emergency medical service provider), the MSU clinical team, and receiving hospitals. Sustainability was defined as ongoing MSU operations, including MSU workforce and future model considerations. Theoretically-based on-line survey with Unified Theory of Acceptance and Use of Technology (UTAUT), Self Determination Theory (SDT, Intrinsic Motivation), and open-text questions targeting barriers and benefits was administered (June-September 2019). Individual/group interviews were conducted, eliciting improvement suggestions and requirements for ongoing use. Descriptive and regression analyses (quantitative data) and directed content and thematic analysis (open text and interview data) were conducted. There were 135 surveys completed. Identifying that the MSU was beneficial to daily work (β=0.61), not experiencing pressure/tension about working on the MSU (β=0.17) and thinking they did well working within the team model (β=0.17) were significantly associated with wanting to continue working within the MSU model [R2=0.76; F(15, 60)=12.76, P<.001]. Experiences varied between those on the MSU team and those working with the MSU. Advantages were identified for patients (better, faster care) and clinicians (interdisciplinary learning). Disadvantages included challenges integrating into established systems, and establishing working relationships. Themes identified from 35 interviews were MSU team composition, MSU vehicle design and layout, personnel recruitment and rostering, communication improvements between organisations, telemedicine options, MSU operations and dispatch specificity. Important factors affecting the sustainability of the MSU model of stroke care emerged. A cohesive team approach, with identifiable benefits and good communication between participating organisations is important for clinical and operational sustainability.

Evaluation of an arts therapies approach to team development for non-acute healthcare teams in low control and high-pressure environments

Healthcare teams that experience substantial and multiple pressures and lack team social support are at an increased risk of depression, anxiety, compassion fatigue, and ultimately problems with staff retention and patient care. A team development arts therapies approach was developed and piloted to address this issue. Medical Research Council (MRC) guidance was used to design a mixed methods evaluation of the programme following the acute phase of COVID-19 pandemic. Two outcome measures were administered, and a qualitative open text survey underwent thematic analysis. We recruited 92 participants for the evaluation; 90 completed the open text survey and 42 participants completed the outcome measures. The qualitative analysis produced the following themes: Getting to Know the Team in a Meaningful Way; Creative Expression and Reflection; Communicating and Processing Difficult Feelings and Resistances; More Time For Processing; Practical Problems with Whole Team Engagement; Difficulty Engaging in Creative Exercises; Inclusivity and Equality; Psychological Safety. Quantitative results were significant with indications of changes to team social systems. The results of our study show good accessibility, acceptability and effectiveness.

Motivation of Individuals to Install Medical Applications: Analysis of the Open Text Data Using Machine Learning Methods

This paper describes the results of the open text data study, and on the basis of these data the features of the communicative interaction of individuals with mobile applications have been identified. Using the method of automatic data collection and analysis, 150 applications from the Google Store were analyzed in order to highlight the facts that motivate an individual’s entry into a communicative act with a mobile application. The article provides visualization of the text structures. Based on the data obtained, it was possible to identify the main characteristics of the communicative interaction of a user with the application; in particular, some hypotheses were put forward regarding the linearity of the communicative model used by individuals.

A role by any other name: A content analysis of digital asset management on library and archives job boards

A digital asset manager curates the sum of an institution’s knowledge in the form of digital assets. A cursory review of job advertisements reinforces the ubiquity of digital asset management (DAM) in library and archival contexts. However, it also reveals great variability in how this specialised work is articulated in advertisements, the credentials sought by employers and the salaries offered. This study assesses the state, scope and attributes of DAM positions using a content analysis of 98 unique job advertisements for DAM positions collected from library and archive job boards over a six-month period. Voyant, an open source text analysis tool, was utilised to yield word and phrase frequencies to aid interpretation of scope of work, position expectations and education requirements. The results provide insights to aid organisations in recruiting DAM librarians and archivists, guide students in forging career paths in DAM, and inform development of the DAM curriculum in higher education. To meet the needs of the field, the authors recommend clarity in DAM job scopes, developing technological and personnel capacity to support the work, and calibrating compensation among employment sectors to elevate the importance of the work and promote equity across the profession.

“Into the Widest Imagination”

“Into the Widest Imagination”

Critical Discourse Analysis on the Instagram Account Mubadalah.id from the Perspective of Islamic Feminism

This study aims to analyze the macro structure, super structure, and micro structure contained in the media text Mubilah.id. The research method used is descriptive qualitative method with Teun's perspective. A. Van Dijk. The data collection used in this study is the listening method with reading techniques and note taking techniques. The results of the data analysis in this study are (1) the macro structure depicts how the act of polygamy in Islam is not recommended; (2) the superstructure in the study shows that the data is preceded by the title, opening text, news content, and closing section; and (3) The micro structure in this study consists of semantics in which there is a background in the form of before marriage, details indicating media control or emphasis on decisions in an agreement made before marriage, the intent/implicature is that marital relations may not create domination of rights in one of them. between the two, and the presupposition that arises is that women have the full right to decide or refuse polygamy. Furthermore, the syntax which consists of coherence, cause and effect to get the dream marriage, namely by establishing communication by submitting conditions or prenuptial agreements and stylistics in the form of the right choice of words is marriage. All data contains views of Islamic feminism which are built not to favor only one gender. However, giving a broad view to glorify fellow human beings.&#x0D; Keywords : Acts of Violence, Agreement, Gender, Marriage, and Mubadalah.id

"I Don't Feel at Home in This World" Sexual and Gender Minority Emerging Adults' Self-Perceived Links Between Their Suicidal Thoughts and Sexual Orientation or Gender Identity.

To examine whether sexual and gender minority (SGM) emerging adults perceived their SGM status was linked to suicidal ideation, and to explore if their responses fell within tenets of the minority stress framework. Open text (survey) responses of Dutch and Flemish SGM emerging adults (n = 187) were thematically analysed using the constant comparative comparison method for qualitative analysis. We identified 8 themes in our qualitative analysis. Two themes fell within the scope of the minority stress framework that has received little attention: (1) concerns about relationships and family planning and (2) feeling different (internal stressor). Two additional themes emerged largely beyond the scope of existing minority stress framework studies on suicidality: (3) SGM-related questioning; (4) negativity in LGBT communities. Four established minority stress framework themes emerged: (5) gender identity stress; (6) victimization; (7) coming-out stress; (8) psychological difficulties linked to SGM status. Suicide prevention needs to focus on supporting SGM emerging adults who worry about feeling "different", or who have concerns over their romantic and family life, on reducing gender minority stress, as well as on caring for those who are victimized due to their sexual or gender identity.

What should a toolkit to aid the delivery of therapeutic exercise for hip and knee osteoarthritis look like? Qualitative analysis of an international survey of 318 researchers, clinicians, and consumers by the OARSI Rehabilitation Discussion Group.

We aimed to identify important components of, and practical resources relevant for inclusion in, a toolkit to aid exercise delivery for people with hip/knee osteoarthritis. An online international multi-disciplinary survey was conducted across 43 countries (139 clinicians, 44 people with hip/knee osteoarthritis and 135 osteoarthritis researchers). Participants were presented with the seeding statement 'Practical resources to aid the implementation of exercise for people with hip/knee osteoarthritis should…' and asked to provide up to 10 open text responses. Responses underwent refinement and qualitative content analysis to create domains and categories. Refinement of 551 open text responses yielded 72 unique statements relevant for analysis. Statements were organised into nine broad domains, suggesting that resources to aid exercise delivery should: (1) be easily accessible; (2) be of high quality; (3) be developed by, and for, stakeholders; (4) include different ways of delivering information; (5) include different types of resources to support exercise and non-exercise components of self-management; (6) include resources on recommended exercises and how to perform/progress them; (7) include tools to support motivation and track progress; (8) include resources to enable tailoring of the programme to the individual and; (9) facilitate access to professional and peer support. Our findings identified important components of, and practical resources to include within, a toolkit to aid delivery of exercise for people with hip/knee osteoarthritis. These findings have implications for exercise providers and lay the foundation for the development of a toolkit to help ensure exercise provision aligns with current international recommendations.

Perceptions of social media challenges and benefits during the Covid-19 pandemic: Qualitative findings from a cross sectional international survey.

Since the beginning of the Covid-19 pandemic in January 2020 the need for rapid information spread grew and social media became the ultimate platform for information exchange as well as a tool for connection and entertainment. With the rapid information spread along came the various public misconceptions and misinformation which consequently influenced perceptions and behaviors of the public towards the coronavirus pandemic. Thus, there was a need for identification and collation of public perceptions information to address future public health initiatives. This cross-national study aimed to examine the challenges and benefits of using social media during the Covid-19 pandemic outbreak. This study was a content analysis of the open-ended questions from a wider cross-sectional online survey conducted in Norway, UK, USA, and Australia during October/November 2020. 2368 participants out of 3474 respondents to the survey provided the open text responses included in the qualitative analysis. Thematic analysis was conducted independently by two researchers. All statements were coded to positive and negative sentiments. Three overarching themes were identified: 1. Mental health and emotional exhaustion 2. Information and misinformation; 3. Learning and inspiration.While providing a powerful mode of connection during the pandemic, social media also led to negative impact on public perceptions, including mistrust and confusion. Clarity in communications by institutions and education about credible information sources should be considered in the future. Further research is required in exploring and documenting social media narratives around COVID-19 in this and any subsequent incidents of pandemic restrictions. Understanding the public perceptions and their social narratives can support the designing of appropriate support and services for people in the future, while acknowledging the uncertainty and overwhelming impact of the pandemic that may have skewed the experiences of social media.

Experiences of the International In-Training Examination (I-ITE) by Rwandan pediatric residents – a survey-study describing candidate feedback

Background: The University of Rwanda is the only African residency to have implemented the pediatric International In-Training Examination (I-ITE) as a tool to monitor resident knowledge acquisition. The objective of this study was to better understand the acceptance and relevance of this exam to residents from this setting and their perceptions regarding this assessment tool. Methods: A retrospective, survey-study was undertaken to describe candidate feedback. Immediately on completing the I-ITE residents provided feedback by filling in an electronic questionnaire comprised of four closed Likert questions and an open text box for free-text feedback. Participants were pediatric residents from the University of Rwanda, the only university in Rwanda with a pediatric residency program. Quantitative analysis of the Likert questions was undertaken descriptively using SPSS. Free-text feedback was coded and analysed employing a phenomenological approach, with coding and analysis undertaken by two researchers. Results: Eighty-four residents completed a total of 213 I-ITE sittings during the five exam cycles undertaken during the study period. The survey was completed after 206 of the 213 exam sittings, giving a response rate of 97%. Five themes emerged from the qualitative analysis; 1) undertaking the I-ITE was a positive experience; 2) exam content; 3) formative nature of the assessment; 4) challenges to completing the exam; 5) practicalities to undertaking the exam. Conclusion: Qualitative feedback demonstrates that the I-ITE, a standardized, and independent exam, produced by the American Board of Pediatrics, was valued and well accepted by Rwanda pediatric residents. Its formative nature and the breadth and quality of the questions were reported to positively contribute to the residents' formative development.

Young people’s access to sexual and reproductive health prevention services in South Africa during the COVID-19 pandemic: an online questionnaire

IntroductionThe South African government responded swiftly to the first wave of novel coronavirus (SARS-CoV-2) with a nationwide lockdown. Initial restrictions from March–July 2020 required people to stay at home unless...

ANEC: An Amharic Named Entity Corpus and Transformer Based Recognizer

Named Entity Recognition is an information extraction task that serves as a pre-processing step for other natural language processing tasks, such as machine translation, information retrieval, and question answering. Named entity recognition enables the identification of proper names as well as temporal and numeric expressions in an open domain text. For Semitic languages such as Arabic, Amharic, and Hebrew, the named entity recognition task is more challenging due to the heavily inflected structure of these languages. In this study, we annotate a new comparatively large Amharic named entity recognition dataset and make it publicly available. Using this new dataset, we build multiple Amharic named entity recognition systems based on recent deep learning approaches including transfer learning (RoBERTa), and bidirectional long short-term memory coupled with a conditional random fields layer. By applying the Synthetic Minority Over-sampling Technique to mitigate the imbalanced classification problem, our best performing RoBERTa based named entity recognition system achieves an f1-score of 93%, which is the new state-of-the-art result for Amharic named entity recognition.

The upper extremity postthrombotic syndrome score: an international Delphi consensus study to determine the score’s functional disability component

BackgroundIn upper extremity thrombosis research, the occurrence of upper extremity postthrombotic syndrome (UE-PTS) is commonly used as the main outcome parameter. However, there is currently no reporting standard or a validated method to assess UE-PTS presence and severity. In a recent Delphi study, consensus was reached on a preliminary UE-PTS score, combining 5 symptoms, 3 signs, and the inclusion of a functional disability score. However, no consensus was reached on which functional disability score to be included. ObjectivesThe aim of the current Delphi consensus study was to determine the specific type of functional disability score to finalize UE-PTS score. MethodsThis Delphi project was designed as a three-round study using open text questions, statements with 7-point Likert scales, and multiple-choice questions. The CREDES recommendations for Delphi studies were applied. In this context, a systematic review was conducted before the start of the Delphi rounds to identify the available functional disability scores as available in the literature and present these to the expert panel. ResultsThirty-five of 47 initially invited international experts from multiple disciplines completed all the Delphi rounds. In the second round, consensus was reached on the incorporation of the quick disabilities of the arm, shoulder, and hand (QuickDASH) in the UE-PTS score, rendering the third round obsolete. ConclusionConsensus was reached that the QuickDASH should be incorporated in the UE-PTS score. The UE-PTS score will need to be validated in a large cohort of patients with upper extremity thrombosis before it can be used in clinical practice and future research.

AI4PCR: Artificial intelligence for practicing conflict resolution

The ability to resolve conflict while preserving relationships is ever more vital in our divisive, global society. Traditional conflict-resolution training is mostly delivered in one-off sessions with practice opportunities limited to a fixed number of pre-defined role play scenarios. This is insufficient for acquiring the notoriously difficult skill of communicating effectively amidst conflict. We present a new web application that teaches relationship-preserving language for conflict resolution. Our system uses artificial intelligence (AI) to provide automated feedback to open text, natural language input, alerting users to language that may sound judgmental or be otherwise ineffective for resolving conflict. Our application prompts users to respond to scenarios of workplace conflict while receiving feedback from the AI. We conducted qualitative interviews with 13 participants and explore a range of themes relevant to our users’ experiences. We discuss design implications of our results through the cognitive, active, affective and relational dimensions of experiential design.

Team Dynamics and Nontechnical Skills Perception During the Disaster Response in Mozambique in 2019: A Survey Study Among the Italian Emergency Medical Team.

Team dynamics and nontechnical skills in general are crucial for emergency medical teams (EMT). No study has ever examined these important issues during a real mission in the field. This study aimed to better investigate team dynamics and nontechnical skills for EMTs; it tried to understand if a real mission, when the people are obliged to work together for the first time, without a prior specific training focused on teamwork, is enough or not to work as an effective team in the field. The study is designed as a pre-test/post-test survey study, and it collected data from 51 people deployed to Mozambique in 2019. Three indexes (the self-efficacy (SE), the teamwork (TW), and the overall team's performance (TW12))were calculated as the average value of the rating given by all the participants. Open text feedback was also collected. A positive trend was observed comparing the "post" data to the "pre" data, but results did not show a statistical significance, with the only exception of stratified analyses showing a P-value less than 0.05 for SE and TW12 for some categories. According to the study findings, humanitarian workers feel good but not at their best; training programs focused on team dynamics can be really useful to improve self-confidence of people leaving for a mission.

A Brief Measure of Fidelity for Mindfulness Programs: Development and Evaluation of the Concise Fidelity for Mindfulness-Based Interventions Tool.

Mindfulness research and clinical programs are widespread, and it is important that mindfulness-based interventions are delivered with fidelity, or as intended, across settings. The MBI:TAC is a comprehensive system for assessing teacher competence, yet it can be complex to implement. A standardized, simple fidelity/engagement tool to address treatment delivery is needed. We describe the development, evaluation, and outcomes of a brief, practical tool for assessing fidelity and engagement in online mindfulness-based programs. The tool contains questions about session elements such as meditation guidance and group discussion, and questions about participant engagement and technology-based barriers to engagement. The fidelity rating tool was developed and tested in OPTIMUM, Optimizing Pain Treatment in Medical settings Using Mindfulness. The OPTIMUM study is a 3-site pragmatic randomized trial of group medical visits and adapted mindfulness-based stress reduction for primary care patients with chronic low back pain, delivered online. Two trained study personnel independently rated 26 recorded OPTIMUM sessions to determine inter-rater reliability of the Concise Fidelity for Mindfulness-Based Interventions (CoFi-MBI) tool. Trained raters also completed the CoFi-MBI for 105 sessions. Raters provided qualitative data via optional open text fields within the tool. Inter-rater agreement was 77-100% for presence of key session components, and 69-88% for Likert ratings of participant engagement and challenges related to technology, with discrepancies only occurring within 2 categories: 'very much' and 'quite a bit'. Key session components occurred as intended in 94-100% of the 105 sessions, and participant engagement was rated as 'very much' or 'quite a bit' in 95% of the sessions. Qualitative analysis of rater comments revealed themes related to engagement challenges and technology failures. The CoFi-MBI provides a practical way to assess basic adherence to online delivery of mindfulness session elements, participant engagement, and extent of technology obstacles. Optional text can guide strategies to improve engagement and reduce technology barriers.

A wailing wall in cyberspace: Loneliness, censorship, and collective memory – in memory of Dr. Li Wenliang, the whistle blower

As the whistle blower of the outbreak of Covid-19 in Wuhan, Dr. Li Wenliang was dismissed as the spreader of rumors and punished by the authorities. His later death from the coronavirus outraged the netizens in China on various social platforms. His post on Weibo, written by Dr. Li on the day he was finally diagnosed as infected, has thus become a wailing wall in cyberspace. It has invited millions of Weibo comments below, both from those who lost their loved ones in the outbreak and netizens in general. The post functions as a monument in cyberspace for people to commemorate the bereft in the coronavirus outbreak in Wuhan, the first place where Covid-19 was reported. Considering the transmediality of cyberspace of our modern times, the phenomenon of online mourning urges a semiotic explanation, especially when it concerns a figure who only became famous after his death. The study aims to conceptualize the dynamics of collective memory with the monument in cyberspace following the insights of Eco’s concept of “the open text”. The wailing wall in cyberspace functions as a mnemonic text for members of society, which interacts with the collective memory restored in the social sphere. Moreover, censorship also played an important role in the formation of the wailing wall. All these features are brought together to make the wailing wall in the cyberspace a unique spectacle in online culture, which paves the way for further discussions in the future.

Investigating the Effects of Computer-Generated Contextual Landmarks on Short-Term Recall of E-Texts

E-texts have many advantages over their paper counterparts, especially when they are reflowable and available as open educational resources (OERs). Unfortunately, research suggests that e-texts are, on the whole, less memorable than p-texts, in part due to their relative lack of visual navigational landmarks that help to anchor recall. The Landmarks project team is, therefore, building an application that inserts computer-generated artificial imperfections – abstract or representational landmarks – into the display of e-texts, that remain consistently associated with text passages even when documents are reflowed or reformatted. We hypothesize that it may consequently be easier to recall the associated contents. The application is designed to provide the means to present modified open texts using a range of generated landmarks and variations on them, and to test recall of the content. In this initial pilot study, results of tests for readers receiving different landmarks will be compared, with the intent of identifying promising approaches to use for future studies.