Nonprofit Partners Research Articles

Promoting clean energy transition and industry emergence: leveraging public funding for the commercialisation of fuel cell technologies

ABSTRACT The effectiveness of public funding in promoting clean energy transition through technology innovation and industry emergence is an important issue for policy making. This study examines the role of public funding in commercialising fuel cell technologies by considering different types of partners in publicly funded projects. Our findings, based on data from the U.S. Department of Energy’s hydrogen and fuel cell commercialisation program, suggest that publicly funded projects with non-profit partners have a lower likelihood of commercialisation compared to those with for-profit partners. However, the size of the public grant significantly impacts this trend: projects with non- profit partners are more likely to be commercialised if they receive larger grants, while the opposite is true for projects with for-profit partners. This study advocates for the proficiency of public grant programs with regard to their role in supporting private efforts in commercialising clean energy technologies and fostering industry emergence.

Pattern determination of the territory local factors influence on the land plots’ cadastral value of gardening and horticultural non-profit partnerships

In recent decades, the state has been tasked with the effective management of natural resources, among which land resources hold particular importance due to the necessity of their rational use and sustainable development. The value of land resources and their indispensable role in ensuring the socio-economic development of the country is most clearly reflected in the state’s tax policy, specifically in land taxation. The amount of land tax depends on the cadastral value, which is often subject to methodological shortcomings and challenges. This study, using the Belgorod Region as a case study, proposes an algorithm for determining the cadastral value of land plots within gardening and horticultural non-profit partnerships, taking local factors into account. To determine the specific indicator of cadastral value (SICV) of land plots, a linear regression model was developed. The results, tested for homoscedasticity, confirmed the model’s adequacy and reliability. The findings showed that the cadastral value decreased by an average of 12.2% compared to the current results of the state cadastral assessment in the Belgorod Region, highlighting the influence of local factors and the importance of considering them in the cadastral evaluation of the land plots in question.

Terminology of medicines used to control seizure disorders: 2024 ILAE Recommendations and profile of real-world term use

Background. The International League Against Epilepsy (ILAE) has provided recommendations on the terminology of medicines for control of seizure disorders, which should be adapted into different languages.Objective: to evaluate the usage profile of terms describing the effects of medicines used in patients with epilepsy.Material and methods. The search query analysis systems Google Trends and Yandex Wordstat as well as PubMed/MEDLINE, Google Scholar and eLibrary databases were used to evaluate the general public and professional usage profile, respectively.The following terms in Russian and English were studied: “antiepileptic”, “antiepileptic drug”, “antiseizure”, “antiseizure drug”. In order to ascertain a prevailing opinion within professional and patient communities, a questionnaire survey was conducted on the public online resources of the non-profit partnership “The Association of Epileptologists and Patients” carried out via the cloud-based cross-platform social media as well as instant messaging service Telegram and the social media platform VK.Results. In the English-speaking internet segment, the term “antiepileptic” is used more than 5 times frequently than “antiseizure” by the general public. Conversely, in the Russian-language segment, the term “antiseizure” is almost 2.5 times more common. The term “antiepileptic” is more prevalent in scientific community in both segments. This finding aligns with the profile of terminology usage observed among epileptologists and epilepsy patients. The questionnaire survey results revealed that 56.42% of 179 respondents were in favor of the terms “antiepileptic drug”, “AED” and “antiepileptic therapy”, whereas as few as 17.32% of those endorsed the ILAE-proposed terminology.Conclusion. In light of the established practice of terminology use in both professional scientific community and among practicing epileptologists and epileptic patients, as well as the differences in the semantics of English- and Russian-language terms and the identified lack of precision in the ILAE definition of epilepsy, it can be concluded that for the Russian-speaking population, the terms “antiepileptic drug”, “AED” are more preferable rather than the terms “antiseizure medication”, “ASM”. Additionally, it is preferable to use the terms “convulsive ictus” and “epileptic ictus” due to negative connotation with term “seizure” in Russian. The terms “antiseizure” and “antiepileptic” should not be regarded as mutually exclusive in the context of treatment that has a direct impact on epilepsy course. Finally, it is necessary to further refine epilepsy definition and classification.

Power Distribution Within Government–Nonprofit Partnerships and Individual Charitable Decisions

Power Distribution Within Government–Nonprofit Partnerships and Individual Charitable Decisions

A Coalition to Advance Treatments for Parkinson's Disease, Dementia with Lewy Bodies, and Related Disorders.

Parkinson's disease (PD) and dementia with Lewy bodies (DLB) share underlying neuropathology. Despite overlapping biology, therapeutic development has been approached separately for these clinical syndromes and there remains no treatment to slow, stop or prevent progression of clinical symptoms and development disability for people living with PD or DLB. Recent advances in biomarker tools, however, have paved new paths for biologic definition and staging of PD and DLB under a shared research framework. Patient-centered research funding organizations see the opportunity for a novel biological staging system for PD and DLB to accelerate and increase success of therapeutic development for the patient communities they serve. Amid growing momentum in the field to develop biological definitions for these neurodegenerative diseases, 7 international nonprofit organizations focused on PD and DLB came together to drive multistakeholder discussion and input on a biological staging system for research. The impact of these convenings to date can be seen in changes incorporated into a proposed biological staging system and growing alignment within the field to rapidly apply new scientific knowledge and biomarker tools to inform clinical trial design. In working together, likeminded nonprofit partners who were initially catalyzed by the significant potential for a biological staging system also realized the power of a shared voice in calling the field to action and have since worked together to establish a coalition to advance precompetitive progress and reduce hurdles to developing better treatments for PD, DLB and biologically related disorders.

Home Together: A Multi-Level Community-Based Health Promotion Program Supporting Families Experiencing Homelessness

Abstract: Home Together (HT) is a multi-level multi-component health promotion program, co-led by academic and non-profit partners in Arkansas that sought (1) to improve access to and family acceptance of social services and health care among women experiencing homelessness who have a diagnosed mental health condition and a child younger than six years and (2) to increase service provider capacity to engage with this population. A socioecological perspective was used to detail program components and lessons learned. Home Together enrolled 345 women representing unduplicated families. Of these, 214 completed six-month reassessments and 111 completed discharge assessments. Representative of the area and population served, most self-identified as belonging to racial minorities (87.0%), being younger than 35 years (80.1%), experiencing violence (76%), and being heterosexual (82%). Pre-post testing indicated positive changes for HT families, including improvements in mental health, health care access, and housing. Yet, even the most coordinated comprehensive programs are no substitute for policy-level changes that help families reach stability.

Challenges of EHR "Meaningful Use" in Rural Health Centers.

The Centers for Disease Control and Prevention (CDC) continues to promote the utilization of electronic health records (EHRs) to support population health management and reduce disparities. However, access to EHRs with capabilities to disaggregate data or generate digital dashboards is not always readily available in rural areas. With funding from CDC's DP-18-1815, the Division of Diabetes and Heart Disease Management (Division) at the South Carolina Department of Health and Environmental Control designed a quality improvement initiative to reduce health disparities for people with hypertension and high blood cholesterol in rural areas. With support from a nonprofit partner, the Division used qualitative evaluation methods to evaluate the extent to which practices were able to disaggregate data and report quality measures.

Understanding benefits of a college student-homebound adult partnership program to support aging in place: An exploratory study

The need for effective approaches to support aging and homebound adults is recognized internationally and domestically. This exploratory study sought to understand the proximal benefits of an intergenerational program in Delaware, USA that connected homebound individuals with college students. The primary goal was to describe program impacts on home-bound community residents to inform future research, program planning, and implementation. Outcomes of interest included quality of life, well-being, and independence. Semi-structured interviews were conducted with 19 participants recruited from a nonprofit partner. Findings yielded seven unique themes: emotional fulfillment, special feelings of support from a rare “unconditional” relationship, assistance with tasks, close connection with someone not ordinarily met, intergenerational understanding, someone to talk to, and appreciation. Additionally, the research team applied the RE-AIM (Reach, Effectiveness, Adoption, Implementation, Maintenance) framework, to contextualize the approach and findings. Results inform future evaluation efforts of homebound visiting programs, which may seek to incorporate outcome indicators aligned with these themes and serve as a foundation for future quantitative measures of impact.

Modeling the Cadastral Value of Land Plots of Gardening and Horticultural Non-Profit Partnerships Taking into Account the Influence of Local Factors of the Territory

Concerning the dependence of land taxation on the cadastral or market value of lands in developed and developing countries, the role of land resources in the system of socio-economic development is quite high. World studies show the presence of methodological problems related, among other things, to the composition of price-forming factors of mass assessment. In relation to garden and vegetable garden lands, the issue of taking into account factors related to the immediate environment and soil quality is especially relevant, which is associated with the social justice of land taxation. The current paper aims to determine the influence of factors of the immediate environment and soil fertility on the cadastral value of the lands under consideration by determining which methodological apparatus has been built. Modeling of the specific indicator of cadastral value (SICV) of land plots is performed on the example of five gardening and vegetable gardening partnerships of the Belgorod district, where 79% of the territory is occupied by agricultural lands, which are quite diverse in soil composition, relief, and other studied factors. A linear model of dependence between local factors and the UPCS is proved. The reliability of the model is confirmed by testing for homoscedasticity, autocorrelation, and statistical significance of factors. The results of determining the cadastral value demonstrated an average change of 10%.

The imperative of the child life profession in KSA in transforming the quality of pediatric healthcare

Saudi Arabia has made substantial advancements in its pediatric healthcare infrastructure. However, substantial gaps persist in addressing hospitalized children's emotional safety, and psychosocial and developmental needs. Internationally, the child life profession has evolved over decades to specifically address these needs, through interventions such as therapeutic play, age-appropriate patient education, and family support.This article evaluates the imperative for integrating the child life profession into healthcare services in Saudi Arabia to transform the quality of pediatric healthcare. An analysis of the current landscape revealed gaps in pediatric psychosocial care. These gaps are listed as national priorities in the health transformation program aimed at improving healthcare quality and enhancing well-being. Integrating the child life profession can help achieve these objectives for children and families in Saudi Arabia.This article highlights the multifaceted benefits of the child life profession in improving patient experiences, healthcare delivery efficiency, pediatric healthcare quality, and the overall well-being of children and families. Strategies for phased implementation, involving healthcare institutions, academic partners, relevant non-profit partners, and policymakers, are proposed.

Exploring nonprofit perspectives on CSR: The emergence of retail corporate volunteerism

AbstractCorporate social responsibility (CSR) has predominantly been examined from a business standpoint, yet its implementation often involves the active participation of nonprofit organizations. While corporations may engage in CSR activities with the ultimate goal of business gain, questions arise regarding how these initiatives are perceived and utilized by their nonprofit partners to fulfill their missions. Surprisingly, limited research exists that explores CSR from the nonprofit standpoint. This study aims to bridge this gap by investigating the perspectives of nonprofits in relation to CSR initiatives, focusing on a case study of three nonprofit organizations operating in the Australia food rescue sector. By examining corporate volunteering programs as a specific CSR initiative, the study identifies both instrumental CSR and strategic CSR within nonprofits' perceptions of their CSR partnerships. Moreover, the study uncovers nuanced differences between nonprofits that choose to adopt retail corporate volunteerism—commercialize their corporate volunteering programs and those that reject such commercialization. These differences manifest in the form of strategic transactional CSR versus strategic relational CSR mindsets, as elucidated by Mirvis' (2012) CSR framework. This research contributes to the CSR literature by offering valuable insights from the nonprofit perspective. It also sheds light on the emerging phenomenon of retail corporate volunteerism and possible CSR motivations for its occurrence.

Network portfolio diversity and social innovation: An egocentric approach to cross-sector partnerships

The culmination of network and organization research suggests diverse network ties bolster innovation. Extending this line of research, this study examines how three distinct dimensions of network portfolio diversity—duration, tie strength, and collaboration type—are related to organizational innovation. Survey, ego network, and expert evaluation data on 258 U.S. social ventures suggest that these different dimensions have differential impact on the novelty of ideas organizations develop to tackle social issues (i.e., social innovation). Specifically, while diversity in relationship duration with nonprofit partners had an inverted U-shaped curvilinear relationship with social innovation, diversity in collaboration type with business partners and diversity in tie strength with government partners each had a U-shaped curvilinear relationship. These results highlight that the relationship between network diversity and organizational innovation is contingent on the network portfolio dimension, as well as the partner sector. This research contributes to theorizing on social and interorganizational networks, cross-sector partnerships, and social innovation. Findings also have implications for organizational leaders as they configure heterogeneous ego network portfolios to boost innovation for social impact.

Identifying and Validating Alcohol Diagnostics for Injury-Related Trauma in South Africa: Protocol for a Mixed Methods Study.

The burden of alcohol use among patients with trauma and the relative injury risks is not routinely measured in South Africa. Given the prominent burden of alcohol on hospital trauma departments, South Africa needs practical, cost-effective, and accurate alcohol diagnostic tools for testing, surveillance, and clinical management of patients with trauma. This study aims to validate alcohol diagnostics for injury-related trauma and assess its use for improving national health practice and policy. The Alcohol Diagnostic Validation for Injury-Related Trauma study will use mixed methods across 3 work packages. Five web-based focus group discussions will be conducted with 6 to 8 key stakeholders, each across 4 areas of expertise (clinical, academic, policy, and operational) to determine the type of alcohol information that will be useful for different stakeholders in the injury prevention and health care sectors. We will then conduct a small pilot study followed by a validation study of alcohol diagnostic tools (clinical assessment, breath analysis, and fingerprick blood) against enzyme immunoassay blood concentration analysis in a tertiary hospital trauma setting with 1000 patients. Finally, selected alcohol diagnostic tools will be tested in a district hospital setting with a further 1000 patients alongside community-based participatory research on the use of the selected tools. Pilot data are being collected, and the protocol will be modified based on the results. Through this project, we hope to identify and validate the most appropriate methods of diagnosing alcohol-related injury and violence in a clinical setting. The findings from this study are likely to be highly relevant and could influence our primary beneficiaries-policy makers and senior health clinicians-to adopt new practices and policies around alcohol testing in injured patients. The findings will be disseminated to relevant national and provincial government departments, policy experts, and clinicians. Additionally, we will engage in media advocacy and with our stakeholders, including community representatives, work through several nonprofit partners to reach civil society organizations and share findings. In addition, we will publish findings in scientific journals. DERR1-10.2196/52949.

Research with Refugees: Working with Ethnic Community-Based Organizations

ABSTRACT The U.S. Refugee Admissions Program (USRAP) has functioned as a partnership between the federal government and a number of nonprofit partners for more than four decades. Yet resettlement is dependent on more than these particularly visible actors, and also includes states, municipalities, and a range of other organizations. In this paper I look at one part of the resettlement assemblage in the United States—ethnic community-based organizations (ECBOs)—from my own perspective as a researcher who has collaborated with one such entity over a number of years. Focusing on the shifting sands of refugee resettlement and drawing on research with staff at this agency, I examine some of the possibilities and pitfalls of engaging in praxis-oriented refugee research, especially at the local level. I suggest that the particular nuances and context of the ECBO is central to our understanding of contemporary resettlement practice in the United States.

Building resilience to misinformation in communities of color: Results from two studies of tailored digital media literacy interventions

Interventions to build resilience to misinformation should consider the needs of communities of color, who experience (mis)information in unique ways. We evaluated digital media literacy interventions to improve misinformation resilience among four communities of color in the United States (Black, Latino, Asian American/Pacific Islander, Native American), which were designed by the nonprofit PEN America and community partner organizations. We assessed intervention efficacy in two studies: (1) a quasi-experimental field study among diverse participants recruited via community outreach and (2) a randomized controlled trial among Latinos recruited via a survey company (total N = 370). Results indicated that participants in both studies improved their comprehension of digital media literacy skills after taking the intervention. However, only those recruited via community outreach improved their ability to accurately identify true and false online news in a behavioral detection task. Our findings highlight the need to consider heterogeneous treatment effects in misinformation interventions, particularly across different communities and intervention contexts.

Перспективы производства овощей в садоводческих некоммерческих товариществах граждан

Abstract. The article is devoted to the issues of assessing the prospects for the development of horticultural non-profit partnerships of citizens. Including the identification of opportunities to increase the production of vegetables from this category of agricultural producers to meet the needs of their families and the sale of existing surpluses of certain types of these products. The purpose of the study is to develop a methodological approach to assessing the prospects of vegetable growing in horticultural non-profit partnerships of citizens and its testing in the conditions of the region to identify the possibility of its use in other territories. Methods. In the course of the study, methods of comparison, statistical and economic, sociological research, analysis and synthesis were applied. The scientific novelty of this study lies in the development of a methodological approach to assessing the prospects of vegetable production in horticultural non-profit partnerships of citizens. As a research tool, we have developed a questionnaire for interviewing members of horticultural non-profit partnerships. The scientific result is the testing of the developed methodological approach on the materials of the Irkutsk region, which made it possible to identify factors hindering the growth of vegetable production in the studied category of agricultural producers: insufficient support of horticultural associations from the authorities, poor quality of seed material, zoning to the climatic conditions of the region, difficulties in selling surplus products. In addition, based on the results of the approbation, recommendations have been developed aimed at increasing the production of vegetables in horticultural associations. The study was conducted within the framework of the scientific laboratory “Economic Research” on the basis of the Department of Economics and Accounting of the Irkutsk State Agrarian University named after A. A. Ezhevsky. The methodological approach can be used in other regions. The article may be useful to authorities at all levels when developing programs to support this category of agricultural producers.

Community-Based Organizations Leading Research Efforts: Preliminary Findings from the Chicagoland CEAL Program's COVID-19 Vaccine Uptake and Intention Survey.

To foster community engaged research in the communities most impacted by COVID-19, the National Institutes of Health (NIH) formed 21 teams of Community Engagement Alliance Against COVID-19 Disparities (CEAL). The national CEAL initiative developed a Common Survey to investigate attitudes and behaviors to the COVID-19 vaccine and clinical trials. This article describes survey implementation at the Chicagoland CEAL Program (CCP). This community-based participatory research project was the result of a strong collaboration between academic institutions, and a community-based non-profit health equity-focused partner organization. The survey implementation was developed and refined with strong input from CHWs, participants, and staff in the partner organizations and institutions. Survey data were collected with Qualtrics, a web-based survey tool. Survey implementation resulted in data collection for 852 participants during the period 12/18/2021-02/18/2023. Excluding participants on the basis of missing data resulted in a sample of 690, 601 of which (87.10%) indicated that they had received at least one dose or intended to get vaccinated. Overall, 54 (7.83%) respondents reported that they had not received the vaccine and were not planning to. Hard to reach populations present two unique challenges in emerging infectious disease events. Reaching populations vulnerable to poor outcomes with vaccines was essential to addressing the COVID-19 pandemic. Additionally, learning about barriers and hesitancy toward vaccine uptake is difficult in these communities. CCP's partnership of five academic institutions, a community research center, and a community-based non-profit health equity-focused organization shows what is possible when traditional models of research and inquiry are reconsidered for community-based participatory research. Results shown here are drawn from a collaboratively designed and implemented survey, collected in person, with over 90% completion.

Homelessness Among Acute Care Patients Within a Large Health Care System in Northern California.

The impacts of homelessness on health and health care access are detrimental. Intervention and efforts to improve outcomes and increase availability of affordable housing have mainly originated from the public health sector and government. The role that large community-based health systems may play has yet to be established. This study characterizes patients self-identified as homeless in acute care facilities in a large integrated health care system in Northern California to inform the development of collaborative interventions addressing unmet needs of this vulnerable population. The authors compared sociodemographic characteristics, clinical conditions, and health care utilization of individuals who did and did not self-identify as homeless and characterized their geographical distribution in relation to Sutter hospitals and homeless resources. Between July 1, 2019 and June 30, 2020, 5% (N = 20,259) of the acute care settings patients had evidence of homelessness, among which 51.1% age <45 years, 66.4% males, and 24% non-Hispanic Black. Patients experiencing homelessness had higher emergency department utilization and lower utilization of outpatient and urgent care services. Mental health conditions were more common among patients experiencing homelessness. More than half of the hospitals had >5% of patients who identified as homeless. Some hospitals with higher proportions of patients experiencing homelessness are not located near many shelter resources. By understanding patients who self-identify as homeless, it is possible to assess the role of the health system in addressing their unmet needs. Accurate identification is the first step for the health systems to develop and deliver better solutions through collaborations with nonprofit organizations, community partners, and government agencies.

LESSONS LEARNED FROM DIGITAL EQUALITY RESEARCH WITH COMMUNITY PARTNERS

Abstract Despite strong interest among policymakers and service providers and a pipeline of Federal funding for programs that address digital inequalities in older adults, there is limited research on the challenges and outcomes of programs designed to reduce the digital divide. To better understand these issues, we compared and contrasted challenges and lessons learned administering digital inclusion projects in California and Rhode Island. In California, challenges included the complexity of state and local interface, managing public-private partnerships, and deciding on and communicating roles and responsibilities through the required formal channels. In Rhode Island, timing and communication were challenging because universities and community partners operate on different calendar systems and cater to different demands. For both programs, ensuring that training and technical support were available, accessible, and appropriate for diverse populations of older adults was a challenge. However, the training and support approaches were different as California leveraged private and non-profit partnerships while Rhode Island used university student mentors. Further, the rollout and data collection needed to evaluate the programs created barriers and slowed the process, including partners’ language capabilities not matching the participants’ and the time-consuming nature of data collection via telephone. Nevertheless, in both states, research opportunities afforded by collaborating with state and local agencies and private sector providers were invaluable. Partnerships allowed older adults to participate in research via a trusted organization with linguistic and cultural sensitivity, and researchers accessed underserved populations less likely to participate in research.

RECRUITING THE MINORITIZED: AFRICAN AMERICAN BEREAVED DEMENTIA CAREGIVERS

Abstract Central to this project was recruiting and learning from African American people, who are underrepresented in Bereaved Dementia Caregiver research. Initially this project was conceptualized with the intent of recruiting a wide range of people of African or Caribbean descent, given the geographic presence of large contingents of African Immigrants in the Twin Cities of Minnesota. In talking to our community partners prior to launch, we elected to restrict participation to those who identified as, or identified as serving, African Americans specifically. Our recruitment strategies were largely informed by deep community engagement built through academic, personal, and non-profit partnerships over several years. We also sought to synergize recruitment efforts for this project with another effort targeting augmentations of dementia friendliness in local African American churches. In discussing recruitment strategies we also sought to hear from those who may not be those traditionally heard from. For instance, to include younger individuals, we recruited contacts through our local Alzheimer’s Association chapter’s Young Champions group. Likewise, because churches are often a major source of African American participant recruitment, we contacted individuals at the Volunteers of America to recruit. Finally, we intentionally broke our recruitment plan into stages (recruiting a handful of individuals at a time) to ensure that participants could nominate those they thought might be most important to hear from within their own communities. This intellectual humility was essential to doing this work properly and maximizing the potential of our results to help African American Bereaved Dementia Caregivers.