In a recent article, Senior Australian of the Year 2013, Professor Ian Maddocks suggested a new way of caring for older people via ‘community hubs’ that would be located in Residential Aged Care facilities and will provide a range of support and services including palliative care.1 The idea is not unreasonable, reflecting principles of community-based care seen in the UK and USA, and inclusive of a wide-ranging multidisciplinary team including pharmacists. However, disappointingly, Professor Maddocks glosses over how some aspects of the model such as pharmacy services, and allied health could be funded while being clear on how funding for doctors and nurses to work in these hubs could be found. This lack of clarity may reflect the complex nature of pharmacy funding in Australia. In the near future, clinical pharmacy services such as medication reviews for non-admitted and community-based patients may have funding streams. However the pharmacy profession must continue to strive for a funding mechanism that is fully inclusive of all aspects of pharmaceutical care, not just intermittent medication reviews, and allows pharmacists to individualise each and every patients care. Without this, pharmacy aspects of care models may be applied in an ‘over-simplified’ or ‘tick-box’ fashion. Lessons about over-simplification of care models can be acquired from system break-downs in other healthcare jurisdictions. An example of this is the case of the Liverpool Care Pathway (LCP) experience in the UK. Developed from a model of care successfully used in hospices, the LCP for the Dying Patient was a generic guideline to care for the dying, intended to ensure that uniformly good care was given to everyone thought to be dying within hours or within 2 or 3 days, whether they were in hospitals, nursing homes or in their own homes. When used appropriately, the LCP or similar models of care provided excellent support for decision making and care of dying patients. However the LCP started to come under scrutiny when it was identified that patients had been put on the pathway inappropriately without full discussion with the patient or carers. The LCP it appears was being used by some clinicians, possibly due to lack of understanding of the pathway or due to lack of supportive resources put in place to ensure good use of the pathway, as a protocol to be followed, rather than as a set of alerts and a guideline for good practice (as it was intended). The LCP thus became a ‘tick-box’ exercise. In 2013, an Independent review recommended that the LCP be phased out and replaced by ‘individual patient care plans’.2 Lessons such as this need to be heeded and applied to everything we do in caring for dying patients and their families. Palliative care is based on individualised care of the terminally ill patient and their carers. Treatment focus is on symptom-management not on cure; goals are often short-term in nature and patients are encouraged to define those goals when possible. Many non-palliative care staff struggle with this concept of care compared to experience in other specialties. But specialist staff cannot see every patient in need of palliative care and so other teams need take some of the burden, as many already do. In practice, much of the support that palliative care can give has to be via written guidelines – what must be done is to continually reinforce the message that guidelines must be applied with consideration for each and every individual patient context. Pharmacy has come a long way in the past 30 years, but pharmacists still need to continually strive for recognition, both in terms of communicating our role each day to our patients and colleagues, and also as a profession in terms of making a case for adequate resourcing so that we can play that role well. In doing that, we have a responsibility to guarantee that for every patient's care we contribute to, we don't just ‘tick the boxes’ and move on, but that we reflect on our practice to ensure that we provide individualised care. If successful, we can help make new models of care such as ‘community hubs’ an effective way of spreading resources more widely for our ageing population.
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