Abstract Background The chronic nature of Inflammatory Bowel Disease (IBD) necessitates ongoing engagement between the healthcare team and patients with IBD. Dedicated nurse led helplines have been demonstrated to improve access to care, reduce healthcare costs and utilisation, and improves satisfaction. IBD nurses and helplines may not be widely available subject to resourcing. We analysed real world IBD-helpline usage across 10 Australasian sites to determine current trends. Methods Crohn’s Colitis Care (CCCare) is a cloud-based IBD-specific electronic medical record used increasingly in Australasia. The inclusion of a helpline augments the service through enabling encounter related documentation. De-identified data is made available from an associated, clinical quality registry (CQR). Helpline-associated data prospectively entered from September 2023 to September 2024 were analysed. Results In our cohort (n=7,493), 55.8% (n=4,181) had Crohn’s Disease (CD), 41.4% (n=3,101) had Ulcerative colitis (UC) and 2.8% (n=211) had IBD-Unclassified (IBDU). The median age was 42 years (IQR 31–56) and the cohort was evenly distributed in gender (49.0%, n=3,670 male). All patients resided in either Australia (73.1%, n=5,478) or New Zealand (23.6%, n=1,477). Three-quarters (75.2%) lived in metropolitan regions compared to regional/rural areas (24.8%). A total of 10,673 helpline encounters were documented, 75.5% (n=8,078) by email and 24.5%, (n=2,622) by phone. Email remained the predominant modality of communication across all age groups except those under 16. Those receiving advanced therapy (biologic or novel small molecule) formed 60% (n=3876) of the cohort but comprised 81.9% of the helpline utilisation likely reflecting increased complexity associated with their care. The most common reasons for helpline encounters related to administrative tasks (33.3%), medication-related issues (24.0%), and investigations/results (14.3%). Clinical concern and care only formed 14.3% of helpline contact encounters. This was consistent across most age groups, however a greater proportion of encounters were related to clinical concern or care in those under 18 (>30%) and over 80 (>20%). Conclusion IBD helplines play an essential role in augmenting the routine care provided to people with IBD, however it is limited by resource allocation, along with the burden of non-clinical and administrative tasks. Digital delivery of the IBD nursing helpline is utilised preferentially across all demographics in our cohort and signals an opportunity for innovative digital solutions to streamline care, reduce administrative burden, and improve overall patient care and satisfaction. Figure 1. Helpline encounter reasons by age groups.
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