Keywords: Alzheimer's disease; dementia; Medicare; home health care; hospice In a recent study, 33 nurses and 39 social workers from 32 different Medicare-certified home care agencies characterized patients with Alzheimer's disease (AD) as victims of designed neglect and ghosts of home care (Cabin, 2009). These providers described the ghost as being the psychosocial being of the patient, lingering in the background and haunting both them and the patient. They said that the haunting presence was always there but that they never could unleash its being in the reality of care because of Medicare's focus on acute, physical problems. They discussed the unmet patient and caregiver needs created by a purposely designed acute care medical model that neglects the issue of preventive care, chronic care, and psychosocial care for the elderly. To them, the AD patients and their caregivers were the most emblematic of these unmet needs. The Medicare program's failure to address cost effectively the quality-of-life (QOL) issues of another group, end-of-life cancer patients and their caregivers, was recognized by the government and several private foundations in the late 1970s. The result was a national hospice demonstration project, leading to passage of the Hospice Medicare Benefit in 1982. This article explores the Alzheimer's problem further, examining how a national demonstration project similar to the Medicare Hospice demonstration project is much overdue and yet imminently feasible, particularly in a time of cost-effectiveness in health care. THE PROBLEM The problem is that AD is a significant and increasing cause of medical, psychological, physical, and financial burden to persons with the disease and their caregivers, who provide most of their care at home without any significant eligibility or coverage under Medicare or Medicaid, let alone the $15 billion annual Medicare home health benefit. This situation also creates a significant cost burden to employers through lost work and productivity of caregiver employees and to the government through increased Medicare and Medicaid hospital and nursing home costs. The remainder of this section details the nature and significance of the Alzheimer's problem. The following section details how current home care policy exacerbates the problem. AD is a major and increasing cause of illness and death in the United States, a disorder that grows along with the aging process. Symptoms include a gradual and steady decline in orientation, a decrease in memory and ability to participate in everyday activities, and personality changes. AD is the most common type of dementia identified in the United States, with over 5 million persons estimated to have the disease in 2007, including 4.9 million over age 65 (Alzheimer's Association, 2007a, 2007b; U.S. Department of Health & Human Services, 2008). It is the fourth-leading cause of death for Americans aged 65 and older, exceeded only by cardiovascular disease, cerebrovascular disease, and cancer. Care for persons with AD in the United States costs about $100 billion annually (Centers for Disease Control and Prevention, 2007; McConnell, 2004; Rice, et al., 2001; Sadick & Wilcock, 2003). The number of such persons in the United States is projected to increase to 14million to 16 million by 2050, with an annual cost of care about $300 billion. International projections are at 18 million individuals today and upward of 80 million by 2050 (Whitehouse, 2008; World Health Organization, 2008). Caregiver burden is a major issue for those who serve AD patients and others with dementias (Dartmouth Atlas Project, 2006; Kennet, Burgio, & Schulz, 2000; Levine, 2000, 2003; Levine & Murray, 2004; O'Brien, 2004; Robert Wood Johnson Foundation, 1996, 2001). An estimated 70% of Alzheimer's patients live at home, where approximately 75% of care is provided by family members and /or significant others (Leland, 2008; McConnell & Riggs, 1999). …
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