Knowledge Translation Research Research Articles

Practice variation in bilateral salpingo-oophorectomy at benign abdominal hysterectomy: a population-based study

Bilateral salpingo-oophorectomy at benign hysterectomy is not recommended in premenopausal women who are in the premenopausal stage because of its potential associations with increased all-cause mortality and cardiovascular disease; however, contemporary practice patterns are unknown. This study aimed to quantify between-surgeon variation in bilateral salpingo-oophorectomy and identify surgeon and patient characteristics associated with bilateral salpingo-oophorectomy to evaluate current quality of care and identify targets for knowledge translation and future research. We conducted a population-based retrospective cross-sectional study of adult women (≥20 years) undergoing benign abdominal hysterectomy from 2014 to 2018 in Ontario, Canada. Hierarchical multivariable logistic regression models, stratified by age group (<45, 45-54, ≥55 years), were used to model between-surgeon variation after multivariable adjustment for patient and surgeon characteristics. Cases of bilateral salpingo-oophorectomy were classified as potentially appropriate or potentially avoidable based on the presence or absence of diagnostic indications. Of 44,549 eligible women, 17,797 (39.9%) underwent concurrent bilateral salpingo-oophorectomy, and 26,752 (60.1%) did not. In all three age strata, the individual surgeon providing care was one of the strongest factors influencing whether patients received bilateral salpingo-oophorectomy (median odds ratio, 2.00-2.53). Surgeons accounted for more than 22% of the residual observed variation in bilateral salpingo-oophorectomy in women aged 45-54 years compared with 16% and 14% of the residual observed variation in bilateral salpingo-oophorectomy in women aged <45 and ≥55 years, respectively. Non-gynecologic patient factors, such as obesity (odds ratio, 1.33; 95% confidence interval, 1.17-1.52; P<.001) and residing in low-income regions (odds ratio, 1.34; 95% confidence interval, 1.16-1.55; P<.001), were also associated with bilateral salpingo-oophorectomy. Approximately 40% of patients who underwent bilateral salpingo-oophorectomy had no indication for the procedure in their discharge records. Marked between-surgeon variation in bilateral salpingo-oophorectomy rates, even after adjusting for patient case mix, suggests ongoing uncertainty in practice. Stronger evidence-based guidelines on the risks and benefits of salpingo-oophorectomy as women age are needed, particularly focusing on perimenopausal women.

Effectiveness of health consumer representative involvement in implementation of interventions to change health professional behaviour.

The adoption of research evidence to improve client outcomes may be enhanced using the principles of implementation science. This systematic review aimed to understand the effect of involving consumers to change health professional behaviours and practices. The barriers and enablers to consumer engagement will also be examined. We searched Medline, CINAHL, Embase, the Cochrane Central Register of Controlled Trials and PDQ-Evidence from 2004 to February 2019. Implementation studies involving consumers in at least one phase (development, intervention or facilitation) of an intervention that aimed to change health professional behaviour to align with evidence-based practice were included. Studies in the areas of paediatrics and primary care were excluded. Two review authors independently screened studies for inclusion, and one author extracted data and conducted quality assessments with review of a second author. Knowledge translation interventions were categorized using the Effective Practice and Organisation of Care taxonomy. The primary outcome was measures of change in health professional behaviour. Sixteen articles met the inclusion criteria. Meta-analysis of three studies found support for consumer involvement in changing healthcare professionals' behaviour (Hedges' g = 0.41, 95% CI [0.27, 0.57], P < 0.001). Most knowledge translation studies involved consumers during the development phase only (n = 12). Most studies (n = 9) included one type of knowledge translation intervention. Professional interventions (including education of health professionals, educational outreach, and audit and feedback) were described in 13 studies. Consumer involvement rarely moves beyond the design phase of knowledge translation research in healthcare settings. Further research of the barriers to and effect of increased consumer engagement across all stages of knowledge translation interventions is needed. PROSPERO CRD42019119179.

Breastfeeding and the origins of health: Interdisciplinary perspectives and priorities.

Breastfeeding and human milk (HM) are critically important to maternal, infant and population health. This paper summarizes the proceedings of a workshop that convened a multidisciplinary panel of researchers to identify key priorities and anticipated breakthroughs in breastfeeding and HM research, discuss perceived barriers and challenges to achieving these breakthroughs and propose a constructive action plan to maximize the impact of future research in this field. Priority research areas identified were as follows: (1) addressing low breastfeeding rates and inequities using mixed methods, community partnerships and implementation science approaches; (2) improving awareness of evidence‐based benefits, challenges and complexities of breastfeeding and HM among health practitioners and the public; (3) identifying differential impacts of alternative modes of HM feeding including expressed/pumped milk, donor milk and shared milk; and (4) developing a mechanistic understanding of the health effects of breastfeeding and the contributors to HM composition and variability. Key barriers and challenges included (1) overcoming methodological limitations of epidemiological breastfeeding research and mechanistic HM research; (2) counteracting ‘breastfeeding denialism’ arising from negative personal breastfeeding experiences; (3) distinguishing and aligning research and advocacy efforts; and (4) managing real and perceived conflicts of interest. To advance research on breastfeeding and HM and maximize the reach and impact of this research, larger investments are needed, interdisciplinary collaboration is essential, and the scientific community must engage families and other stakeholders in research planning and knowledge translation.

A strategic initiative to facilitate knowledge translation research in rehabilitation

BackgroundWhile there is a growing body of literature supporting clinical decision-making for rehabilitation professionals, suboptimal use of evidence-based practices in that field persists. A strategic initiative that ensures the relevance of the research and its implementation in the context of rehabilitation could 1) help improve the coordination of knowledge translation (KT) research and 2) enhance the delivery of evidence-based rehabilitation services offered to patients with physical disabilities. This paper describes the process and methods used to develop a KT strategic initiative aimed at building capacity and coordinating KT research in physical rehabilitation and its strategic plan; it also reports the initial applications of the strategic plan implementation.MethodsWe used a 3-phase process consisting of an online environmental scan to identify the extent of KT research activities in physical rehabilitation in Quebec, Canada. Data from the environmental scan was used to develop a strategic plan that structures KT research in physical rehabilitation. Seven external KT experts in health science reviewed the strategic plan for consistency and applicability.ResultsSixty-four KT researchers were identified and classified according to the extent of their level of involvement in KT. Ninety-six research projects meeting eligibility criteria were funded by eight of the fourteen agencies and organizations searched. To address the identified gaps, a 5-year strategic plan was developed, containing a mission, a vision, four main goals, nine strategies and forty-two actions.ConclusionSuch initiatives can help guide researchers and relevant key stakeholders, to structure, organize and advance KT research in the field of rehabilitation. The strategies are being implemented progressively to meet the strategic initiative’s mission and ultimately enhance users’ rehabilitation services.

Global scientific research on social participation of older people from 2000 to 2019: A bibliometric analysis.

BackgroundSocial participation is an indicator of successful ageing and important determinant of health outcomes. As more studies have been conducted on social participation of older people, a comprehensive and quantitative analysis of the current literature will contribute to a better understanding of the main and novel issues and improve existing geriatric care services in this domain. However, limited bibliometric analysis was employed in this research field. Therefore, we conducted this study to investigate the research trend and quantitatively and comprehensively characterise the landscapes of publications on social participation of older people via bibliometric analysis methods.MethodsData were obtained from the Web of Science Core Collection in January 2020. CiteSpace 5.5.R2 and VOSviewer software packages were used to generate knowledge maps and analyse the publication outputs, countries/regions, institutions, journals, research hot spots and research frontiers.ResultsA total of 7,029 publications between 2000 and 2019 were retrieved, and the publication number per year continues to increase. The United States held a leading position in this research field, and Duke University was the most productive institution. Co‐cited reference cluster analysis and keyword co‐occurrence analysis showed that research hot spots contained factors of healthy ageing, quality of life, psychological problems and health status, especially dementia, function (including cognitive function) and frailty. Burst detection of keywords revealed that social participation, social support, instrumental activity, frailty and loneliness have been new research frontiers since 2015.ConclusionsBy analysing publications over the past 20 years, we found publication trends and characteristics in this field. These findings will hopefully provide new insight into the scientific landscapes and further directions in the study of social participation of older people.Implications for PracticeSocial participation is strongly associated with physical and psychological problems and the well‐being of older people. Related professionals, such as social workers, psychologists, nurses and many other health care practitioners, should raise widespread awareness and concern over research hot spots and frontiers on this topic to promote research knowledge translation and adoption into the practice of caring for older people.

Infodemia and COVID-19: a text mining analysis

IntroductionCovid-19 epidemic lead a huge use of social media to comment and spread information from the widest sources. Infodemia looks at excessive amount of information circulating, which makes it difficult to orientate communities on a given topic due to the difficulty of identifying reliable sources. Using text mining analysis it is possible to identify what drives public conversation and impact of Covid-19.MethodsPublic perceptions in emergencies is traditionally measured with surveys. However, to have a global sight of the pandemia, Twitter represents a powerful tool which gives real-time monitoring of public perception. The study aimed to: 1) monitor the use of the terms “Covid-19” or “Coronarivus” over time; and 2) to conduct a specific text and sentiment analysis.ResultsBetween January 10 and May 8, 2020, over 600 million tweets were retrieved. Of those 600.000 tweets were randomly selected, coded, and analyzed. About 10% of cases were identified as misinformation. Public figures, experts in public health, and virologists represent the most popular sources in comparison to the official government and health agencies. There is a positive correlation between Twitter activity peaks and COVID-19 infection peaks. Text mining analysis was carried out, as well as a content analysis, also in order to identify changing emotions and sentiments during time. This analysis, particularly during the lockdown, clearly shows that participation on social media can potentially have an effect on building social capital and social support.ConclusionsThis study confirms that using social media to conduct infodemic studies is an important area of development in public health arena. COVID-19 tweets were primarily used to disseminate information from credible sources, but were also a source of opinions, emotion and experiences. Tweets can be used for real-time content analysis and knowledge translation research, allowing health authorities to respond to public concerns.Key messages Social media is crucial for health information.Infodemia as new way for study health.

New population health methods require innovative health information business models

Abstract Background InfAct is tackling the European Health Information (HI) sustainability. New population HI methods should be designed to be sustainable European-wide. Internet and digital health developments have also creating the need for innovative business model for the HI-RI that provides value to all involved stakeholders. Methods Leveraging from previous work and from a SWOT analysis, covering both market environment and health data opportunities, a set of health information services was designed. The evaluation of these services was done using Business Model Canvas (BMC), a strategic management template for developing new and innovative business models. Its visual chart was used for describing the services value proposition, infrastructure, customers, and finances. The usefulness of resources is paramount in healthcare. Therefore, it is important to assess the actual benefits obtained with the services. Results The SWOT analysis has shown the importance of addressing innovative HI business models to tackle the challenge of a healthcare sector more and more driven by information. Four main services were selected to support a European health information strategy: One-stop Shop, Innovation Research in HI (e.g. access to more updated HI), Capacity Building in HI (e.g., training support), and Knowledge translation research for decision-making (e.g., support policies with evidence-based). BMC analysis contributed to the identification of services value and innovative approach to the health data market. Moreover, from this analysis proper access to services required sophisticated HI infrastructure that should be able to brokering information in a competitive way. Conclusions Novel HI requires innovative business models services based on priority and planning for the next stages grounded on a sustainable roadmap towards the construction of a HI platform. BMC analysis provided the support for the prioritizations and helped designing the HI marketing and adoption strategy.

94 Using Research Priority Setting to Investigate Special Education in British Columbia

Abstract Background In a recent school year, nearly 58,000 (10.5%) Kindergarten-Grade 12 students in British Columbia had a special needs designation, according to the BC Ministry of Education (BC MED) Student Statistics 2015/2016. Despite these considerable numbers, we know little about the educational journeys of students with special needs. To help set a research agenda in this area, we undertook a Research Priority Setting (RPS) study, which is an approach used in knowledge translation and exchange research. RPS is a relatively new approach, particularly in educational research, and is used to involve knowledge users early in the research process. It can include a diverse range of methods including surveys, workshops, and Delphi studies. As part of a larger research program to investigate the population-level educational journeys of students with special needs, we employed RPS. Objectives The purpose of this study was to explore educational leaders’ perspectives on research priorities in special education. The specific research questions were: 1. Given a pre-determined set of research areas based upon available population-level administrative data, what are educational leaders’ research priorities? 2. Which specific special education student groups (here, called designations) are educational leaders most interested in learning about through population-based research? 3. Beyond the available administrative data, what additional population-level research priorities do educational leaders identify? Design/Methods We employed a cross-sectional survey design. In December, 2017, we invited public school districts to participate in a survey we created to help us identify research priorities related to the educational journeys of students with special needs and disabilities. The specific needs the BC MED routinely tracks are presented with their respective designation codes in Table 1. The survey invited participants to rank eight specific research areas in order of perceived importance. Then, they were asked to indicate which of the 12 special needs designations were of most interest in relation to the research areas. Finally, the survey included an open-ended question inviting participants to suggest further areas for research. Quantitative results were analyzed using descriptive analyses, including frequency tables, cross-tabulations, and histograms. Qualitative data from the open-ended question was analyzed using content analysis. Results We asked a wide range of education professionals to complete this survey, including: district administrators, district learning support service providers, and school staff. In total, 71 participants volunteered to complete our survey, representing 43 of BC’s 60 public school districts. The average participant had: a master’s degree; a district administrator position; and between 20 and 29 years of educational experience. The majority of participants were experienced in special education. Overall, survey participants agreed on three specific priorities for future research on the educational journeys of students with special needs and disabilities: We then used approved BC MED data to prepare district-specific reports for each of these three topics, with province-wide data included for comparison. In each report, we break down students’ results by their BC MED special needs designation. Conclusion This study is an important step forward in our knowledge about the educational journeys of students with special needs. The results can be useful in guiding policy and program development, both here in British Columbia and beyond. Healthcare providers in pediatrics are in key roles to advocate for supports and resources for this population on their educational journeys.

Exploring the knowledge translation of domestic violence research: A literature review.

There is growing recognition of the links between knowledge translation, policy and practice, particularly in the domestic violence research area. A literature review applying a systematic approach with a realist lens was the preferred methodology. The review answered the following question: What are the mechanisms of change in research networks which 'work' to support knowledge translation? A search of eight electronic databases for articles published between 1960 and 2018 was completed, with 2,999 records retrieved, 2,869 records excluded and 130 full-text articles screened for final inclusion in the review. The inclusion criteria were purposefully broad, including any study design or data source (including grey literature) with a focus on domestic violence knowledge translation. The analysis of included studies using a realist lens identified the mechanisms of change to support knowledge translation. A disaggregation of the included studies identified five theories focused on the following outcomes: (1) develop key messages, (2) flexible evidence use, (3) strengthen partnerships, (4) capacity building and (5) research utilisation. This review adds to our understanding of knowledge translation of domestic violence research. The mechanisms of change identified may support knowledge translation of research networks. Further research will focus on exploring the potential application of these program theories with a research network.

Disseminating the Foundations of Knowledge Translation and Patient Engagement Science Through the KnowledgeNudge Blog and Twitter Profile: Quantitative Descriptive Evaluation.

BackgroundThere is a documented need to build capacity for theory- and evidence-informed knowledge translation (KT) and patient engagement (PE) practice in health research. Dissemination of foundational content online coupled with social media promotion may build capacity by increasing awareness, knowledge, and positive attitudes.ObjectiveThis retrospective study sought to (1) describe exposure and engagement of the KnowledgeNudge KT and PE dissemination strategy (online blog and Twitter profile) over 2 years and (2) identify and compare characteristics of individual posts with the most and least exposure and reach.MethodsExposure was assessed by blog site views per month and Twitter profile impressions per month. Engagement was assessed by Twitter profile interactions per month. Descriptive statistics were calculated for 6-month blocks and compared using one-way analysis of variance or Student t test. Individual post exposure was assessed by average post views per week. Individual post reach was assessed by average post reads per week. High- and low-profile blog posts with the highest and lowest 10th percentile for exposure and reach were identified.ResultsA total of 99 posts and 755 tweets were published during the study period. There was a significant increase in exposure (P=.004) and reach (P<.001) during the final 6 months. Seven high-profile and 6 low-profile posts were identified. High-profile posts had a significantly greater average word count than low-profile posts (P=.003). There were no other significant differences between posts.ConclusionsThe increases in KnowledgeNudge exposure and engagement offer preliminary evidence in support of this dissemination strategy for the practice of KT and PE. Variation in individual post exposure and reach warrants further exploration to tailor content to user needs. Future work will include a prospective evaluation strategy to explore the effect of KnowledgeNudge on awareness, knowledge, attitudes, and behavior.

The use of digital storytelling as an approach to translating research knowledge: A scoping review (Preprint)

The use of digital storytelling as an approach to translating research knowledge: A scoping review (Preprint)

Variability in deceased donor care in Canada: a report of the Canada-DONATE cohort study.

Canadian donor management practices have not been reported. Our aim was to inform clinicians and other stakeholders about the range of current practices. This prospective observational cohort study enrolled consecutive, newly consented organ donors from August 1 2015 to July 31 2018 at 27 academic and five community adult intensive care units in British Columbia, Alberta, Ontario, and Quebec. Research staff prospectively recorded donor management data. Provincial organ donation organizations verified the organs donated. We formally compared practices across provinces. Over a median collection period of eight months, 622 potential donors were classified at baseline as having neurologic determination of death (NDD donors; n = 403) or circulatory death (DCD donors; n = 219). Among NDD donors, 85.6% underwent apnea testing (rarely with carbon dioxide insufflation), 33.2% underwent ancillary testing, and subsequent therapeutic hypothermia (34-35°C) was rare. Neurologic determination of death donors were more hemodynamically unstable with most having received vasopressin and norepinephrine infusions, with a large majority having received high-dose corticosteroids and intravenous thyroxine. Among DCD donors, 61.6% received corticosteroids, and 8.9% received thyroxine. Most donors did not receive lung-protective ventilation strategies. Invasive procedures after donation consent included bronchoscopy (71.7%), cardiac catheterization (NDD donors only; 21.3%), and blood transfusions (19.3%). Physicians ordered intravenous antemortem heparin for 94.8% of DCD donors. The cohort donated 1,629 organs resulting in 1,532 transplants. Case selection, death determinations, and hormone, nutrition and heparin practices all varied across provinces. These study findings highlight areas for knowledge translation and further clinical research. Interprovincial discrepancies will likely pose unique challenges to national randomized trials. www.clinicaltrials.gov (NCT03114436); registered 10 April, 2017.

Research to Integrate Services for Individuals with Traumatic Brain Injury, Mental Health, and Addictions: Proceedings of a MultiDisciplinary Workshop

We present the findings from a one-day, multidisciplinary meeting to gather feedback for an integrated knowledge translation research project addressing the integration of health services and supports for individuals with traumatic brain injury, mental health, and/or addictions; especially those who experience homelessness/vulnerably housed, intersect with the criminal justice system, and are survivors of intimate partner violence. This meeting brought together persons with lived experience, service providers, decision makers, and researchers, who provided feedback that further refined the research methodology and highlighted existing gaps. This event was successful in inviting collaboration, knowledge exchange and dissemination, and advancing an important knowledge-to-action cycle for this research.

Assessing the quality of health research from an Indigenous perspective: the Aboriginal and Torres Strait Islander quality appraisal tool

BackgroundThe lack of attention to Indigenous epistemologies and, more broadly, Indigenous values in primary research, is mirrored in the standardised critical appraisal tools used to guide evidence-based practice and systematic reviews and meta-syntheses. These critical appraisal tools offer no guidance on how validity or contextual relevance should be assessed for Indigenous populations and cultural contexts. Failure to tailor the research questions, design, analysis, dissemination and knowledge translation to capture understandings that are specific to Indigenous peoples results in research of limited acceptability and benefit and potentially harms Indigenous peoples. A specific Aboriginal and Torres Strait Islander Quality Appraisal Tool is needed to address this gap.MethodThe Aboriginal and Torres Strait Islander Quality Appraisal Tool (QAT) was developed using a modified Nominal Group and Delphi Techniques and the tool’s validity, reliability, and feasibility were assessed over three stages of independent piloting. National and international research guidelines were used as points of reference. Piloting of the Aboriginal and Torres Strait Islander QAT with Aboriginal and Torres Strait Islander and non-Indigenous experts led to refinement of the tool.ResultsThe Aboriginal and Torres Strait Islander QAT consists of 14 questions that assess the quality of health research from an Aboriginal and Torres Strait Islander perspective. The questions encompass setting appropriate research questions; community engagement and consultation; research leadership and governance; community protocols; intellectual and cultural property rights; the collection and management of research material; Indigenous research paradigms; a strength-based approach to research; the translation of findings into policy and practice; benefits to participants and communities involved; and capacity strengthening and two-way learning. Outcomes from the assessment of the tool’s validity, reliability, and feasibility were overall positive.ConclusionThis is the first tool to appraise research quality from the perspective of Indigenous peoples. Through the uptake of the Aboriginal and Torres Strait Islander QAT we hope to improve the quality and transparency of research with Aboriginal and Torres Strait Islander peoples, with the potential for greater improvements in Aboriginal and Torres Strait Islander health and wellbeing.

Perceived Facilitators and Barriers to Exercise Among Older Adults With Mild Cognitive Impairment and Early Dementia.

Persons with mild cognitive impairment (MCI) and early dementia are often physically inactive, despite associated benefits. This study explored the barriers, facilitators, and preferences for exercise among persons living with MCI/early dementia. The authors conducted 2 focus groups among persons living with MCI/early dementia (n = 4, 6 participants) and 2 focus groups among care partners (n = 3, 4 participants). The transcripts were analyzed using thematic analysis, guided by the social-ecological model. Three themes emerged, reinforcing motivation to exercise, managing changes to cognitive and physical health, and variable perceptions of dementia, each with influences from individual, care partner, and community levels. Low intrinsic motivation, poor physical/cognitive health, and stigma restricted the exercise among persons living with MCI/early dementia. The care partners motivated their partners and provided company and transportation to exercise. People with MCI/early dementia also indicated poor access to exercise providers and exercise opportunities that met their needs and preferences was a barrier to exercise participation. Knowledge translation research should develop exercise interventions at the individual, social, and community levels.

How does integrated knowledge translation (IKT) compare to other collaborative research approaches to generating and translating knowledge? Learning from experts in the field

BackgroundResearch funders in Canada and abroad have made substantial investments in supporting collaborative research approaches to generating and translating knowledge as it is believed to increase knowledge use. Canadian health research funders have advocated for the use of integrated knowledge translation (IKT) in health research, however, there is limited research around how IKT compares to other collaborative research approaches. Our objective was to better understand how IKT compares with engaged scholarship, Mode 2 research, co-production and participatory research by identifying the differences and similarities among them in order to provide conceptual clarity and reduce researcher and knowledge user confusion about these common approaches.MethodsWe employed a qualitative descriptive method using interview data to better understand experts’ perspectives and experiences on collaborative research approaches. Participants’ responses were analysed through thematic analysis to elicit core themes. The analysis was centred around the concept of IKT, as it is the most recent approach; IKT was then compared and contrasted with engaged scholarship, Mode 2 research, co-production and participatory research. As this was an iterative process, data triangulation and member-checking were conducted with participants to ensure accuracy of the emergent themes and analysis process.ResultsDifferences were noted in the orientation (i.e. original purpose), historical roots (i.e. disciplinary origin) and partnership/engagement (i.e. role of partners etc.). Similarities among the approaches included (1) true partnerships rather than simple engagement, (2) focus on essential components and processes rather than labels, (3) collaborative research orientations rather than research methods, (4) core values and principles, and (5) extensive time and financial investment. Core values and principles among the approaches included co-creation, reciprocity, trust, fostering relationships, respect, co-learning, active participation, and shared decision-making in the generation and application of knowledge. All approaches require extensive time and financial investment to develop and maintain true partnerships.ConclusionsThis qualitative study is the first to systematically synthesise experts’ perspectives and experiences in a comparison of collaborative research approaches. This work contributes to developing a shared understanding of collaborative research approaches to facilitate conceptual clarity in use, reporting, indexing and communication among researchers, trainees, knowledge users and stakeholders to advance IKT and implementation science.

Parental Perspectives about Research and Knowledge Translation in Juvenile Idiopathic Arthritis.

ObjectiveTo identify barriers and facilitators to the uptake of information from research by parents of children with juvenile idiopathic arthritis (JIA).MethodsParents of children with JIA participated in focus group and telephone interviews at four Canadian pediatric rheumatology centers. The semistructured interviews focused on perceptions about JIA research, how new information about JIA was obtained and used, and what information was of most interest. Transcripts were analyzed using a general inductive approach.ResultsTwenty‐eight parents participated in the study. Parents were very interested in research that addresses the outcomes of JIA and side effects of medications. Parents communicated an expectation that information from research be communicated to them by their child's pediatric rheumatologist as part of clinical care. Parents felt that it would be helpful to have information available to them in a variety of formats including written, video, and online. The timing of information delivery is an important factor, with parents being most interested and engaged in learning about new information about JIA at diagnosis and disease flares. We found that parents were overall unaware of new findings from JIA research and therefore may not be optimally utilizing this potentially helpful information in the care of their children.ConclusionThis study has led to an understanding of Canadian parents’ perceptions about research and existing gaps in the translation of research knowledge. This information will facilitate the development, implementation, and evaluation of future knowledge translation interventions aimed at improving the uptake of research information in the care of children with JIA.

Chapter 7 - Brain-computer interfaces for communication

Locked-in syndrome (LIS) is characterized by an inability to move or speak in the presence of intact cognition and can be caused by brainstem trauma or neuromuscular disease. Quality of life (QoL) in LIS is strongly impaired by the inability to communicate, which cannot always be remedied by traditional augmentative and alternative communication (AAC) solutions if residual muscle activity is insufficient to control the AAC device. Brain-computer interfaces (BCIs) may offer a solution by employing the person's neural signals instead of relying on muscle activity. Here, we review the latest communication BCI research using noninvasive signal acquisition approaches (electroencephalography, functional magnetic resonance imaging, functional near-infrared spectroscopy) and subdural and intracortical implanted electrodes, and we discuss current efforts to translate research knowledge into usable BCI-enabled communication solutions that aim to improve the QoL of individuals with LIS.

University Curricula in Evidence-Informed Decision Making and Knowledge Translation: Integrating Best Practice, Innovation, and Experience for Effective Teaching and Learning.

As attention to Evidence Informed Decision Making (EIDM) and Knowledge Translation (KT) in research, policy and practice grows, so does a need for capacity enhancement in amongst evidence producers and evidence users. Recognizing that most researchers enter the professional sphere with little or no appreciation of the importance and power of EIDM, the Centre for Evidence-based Health Care at Stellenbosch University, South Africa, spearheaded the development and accreditation of a foundational course titled Evidence-Informed Decision making: The Art, Science and Complexity of knowledge translation. The curriculum draws on the principles of adult learning and effective teaching that includes integrating seven key aspects: (1) extraction of intuitive and tacit knowledge (2) autonomous knowledge generation (3) diverse perspectives (4) learning by doing (5) peer-support and critique (6) facilitator coaching and (7) constant reflection. In this paper, we reflect on these techniques in enhancing understanding and utilization of KT in advancing EIDM. The in-person short course has been offered 5 times since its launch in September 2017 with attendance by ~85 senior researchers and government officials—each of whom left the workshop with three completed outputs: a stakeholder matrix, an engagement strategy for their chosen stakeholder and a plan for evaluating the impact of their KT strategy. Interest in the course has grown considerably: (a) Requests from local institutes of research for dedicated training to their staff; (b) Incorporation into international program partner capacity enhancing strategies; (c) Publication of a book chapter designed using course content; (d) Adaptation and utilization of the templates and tools as teaching resources (e) Informing organizational stakeholder engagement strategies (f) Adaptation of the modules for conference capacity building workshops. In summary, designing courses that take into consideration adult principles of learning is not a new concept. However, effective delivery of such courses is still nascent. We found that integrating the seven aspects mentioned above, including researchers together with decision-makers in the workshops, and having an experienced facilitator is critical for effective learning. Enhancing knowledge and skills “just in time” rather than “just in case” has demonstrated increased potential for immediate relevance, uptake and sustainability.

Assessing parenting in potentially abusive parents: A qualitative evaluation of practitioner responses to the Parenting Role Interview

The Parenting Role Interview (PRI) is a research tool which has been introduced into a res-idential assessment home for parents referred for difficulties in interacting with their chil-dren, potential neglect/abuse issues and previous trauma. Staff were trained in the PRI to be used as part of their standard assessment procedure of parenting competence. This study describes a qualitative evaluation, through interviews and focus groups, of practitioner re-sponses to the PRI in a voluntary agency service setting. Transcripts from the interviews and focus groups were analysed qualitatively using thematic analysis. Two main themes were drawn out from the data. The first theme revolved around the mainly positive impact of the PRI within the assessment service including the impact on staff, service users, the service as a whole and court reporting. The second theme focused on the applicability of the PRI to the service users focusing on the difficulty of fitting the measure around service us-ers' experience of parenting and complex needs. Findings showed a number of key benefits from using the PRI within the overall assessment process particularly with regard to the objective nature of the measure and its ability to bring concrete examples. Limitations of the approach included time constraints and adaptations needed for the measure within this ser-vice user group. Overall the approach showed successful translation of research knowledge and methods in an assessment service.