Involvement Of Community Members Research Articles

Promoting access equity and improving health care for women, children and people living with HIV/AIDS in Burkina Faso through mHealth.

ABSTRACTBackgroundIn Burkina Faso, access to health services for women, children and people living with HIV/AIDS (PLWHAs) remains limited. Mobile telephony offers an alternative solution for reaching these individuals. The objective of the study was to improve equity of access to health care and information among women and PLWHAs by reinforcing community participation.MethodsUsing a quasi-experimental approach, a mobile telephone system was set up at five health centres to provide an automated reminder service for health care consultation appointments. Performance evaluations based on key performance indicators were subsequently conducted.ResultsA total of 1501 pregnant women and 301 PLWHAs were registered and received appointment reminders. A 7.34% increase in prenatal coverage, an 84% decrease in loss to follow-up for HIV (P < 0.001) and a 31% increase in assisted deliveries in 2016 (P < 0.0001) were observed in intervention areas. However, there was no statistically significant difference between intervention site and control site (P= 0.451 > 0.05) at post-intervention. Efforts to involve community members in decision-making processes contributed to improved health system governance.ConclusionMhealth may improve maternal and child health and the health of PLWHAs. However, establishment of a mHealth system requires taking into account community dynamics and potential technological challenges.Keywordsaccess to care, Burkina Faso, equity, health system governance, mobile telephony, Nouna

A Seat at the Table: Designing an Activity-Based Community Advisory Committee With People Living With HIV Who Use Drugs.

Recently, scholars have begun to critically interrogate the way community participation functions discursively within community-based participatory research (CBPR) and raise questions about its function and limits. Community advisory committees (CACs) are often used within CBPR as one way to involve community members in research from design to dissemination. However, CACs may not always be designed in ways that are accessible for communities experiencing the intersections of complex health issues and marginalization. This article draws on our experience designing and facilitating Research Rec'-a flexible, and activity-based CAC for a project about the acute-care hospital stays of people living with HIV who use drugs. Using Research Rec' as a case study, we reflect on ethical, methodological, and pedagogical considerations for designing and facilitating CACs for this community. We discuss how to critically reflect on the design and facilitation of advisory committees, and community engagement processes in CBPR more broadly.

Increasing College-Going Rate, Parent Involvement, and Community Participation in Rural Communities

This study examined the perceptions of leaders of grant-supported projects aimed at increasing the college-going rate of high school students in rural Appalachian counties in Mississippi to determine which factors they felt most influenced the college-going rate, parental participation in school activities, and community participation. Analysis of the leaders’ responses to questions related to these items showed that college visits and ACT preparation workshops were perceived as having the greatest impact on increasing the college-going rate at the schools. No one factor was perceived as having the least impact on increasing the college-going rate at the schools. Factors influencing parental and community participation included events and workshops for parents, especially those which involved community members as mentors. Acknowledgement: This research was supported by Appalachian Regional Commission Grant MS-16115.

Faktor yang Mempengaruhi Keaktifan Kader Posyandu (Studi Di Puskesmas Bergas Kabupaten Semarang)

One of the efforts to realize a healthy society is to empower the community by involving community members or cadres willing to volunteer to engage in health issues. Posyandu is very dependent on the role of cadres. The activeness of these cadres is the determinant of the success of posyandu as the spearhead of health services. This research generally aims to analyze the factors that affect the activeness of posyandu cadres, so that can be used as a reference in determining the policy to be taken by Stakeholders. Specifically, the purpose of this research is to analyze the motivation of Posyandu cadres in implementing posyandu, to analyze the factors of reward system and to analyze the role of health workers to posyandu activities. This research was conducted at Puskesmas Bergas Kecamatan Bergas Kab Semarang by researching 50 cadres. In line with the objectives to be achieved in this research, which is analyzing the factors that influence the activeness of posyandu cadres, this study uses a corelative discriptive method. Data obtained then analyzed by descriptive analysis method and simple regression analysis using SPSS program. The results showed that there is a significant influence Motivation (X1), Awards (X2), and Performance Together Against the Activity of Posyandu Cadres at Puskesmas Bergas Semarang Regency. Suggestion It is expected that village midwives are more active in the implementation of posyandu and can do a good support to the cadre so that the cadre more spirit in the implementation posyandu.

Grappling With Complex Food Systems to Reduce Obesity: A US Public Health Challenge.

Despite 2 decades of effort by the public health community to combat obesity, obesity rates in the United States continue to rise. This lack of progress raises fundamental questions about the adequacy of our current approaches. Although the causes of population-wide obesity are multifactorial, attention to food systems as potential drivers of obesity has been prominent. However, the relationships between broader food systems and obesity are not always well understood. Our efforts to address obesity can be advanced and improved by the use of systems approaches that consider outcomes of the interconnected global food system, including undernutrition, climate change, the environmental sustainability of agriculture, and other social and economic concerns. By implementing innovative local and state programs, taking new approaches to overcome political obstacles to effect policy, and reconceptualizing research needs, we can improve obesity prevention efforts that target the food systems, maximize positive outcomes, and minimize adverse consequences. We recommend strengthening innovative local policies and programs, particularly those that involve community members in identifying problems and potential solutions and that embrace a broad set of goals beyond making eating patterns healthier. We also recommend undertaking interdisciplinary research projects that go beyond testing targeted interventions in specific populations and aim to build an understanding of the broader social, political, and economic context.

Battling the Tides of Climate Change: The Power of Intangible Cultural Resource Values to Bind Place Meanings in Vulnerable Historic Districts

Climate change increases not only the vulnerability of cultural resources, but also the cultural values that are deeply embedded in cultural resources and landscapes. As such, heritage managers are faced with imminent preservation challenges that necessitate the consideration of place meanings during adaptation planning. This study explores how stakeholders perceive the vulnerability of the tangible aspects of cultural heritage, and how climate change impacts and adaptation strategies may alter the meanings and values that are held within those resources. We conducted semi-structured interviews with individuals with known connections to the historic buildings located within cultural landscapes on the barrier islands of Cape Lookout National Seashore in the United States (US). Our findings revealed that community members hold deep place connections, and that their cultural resource values are heavily tied to the concepts of place attachment (place identity and place dependence). Interviews revealed a general acceptance of the inevitability of climate impacts and a transition of heritage meanings from tangible resources to intangible values. Our findings suggest that in the context of climate change, it is important to consider place meanings alongside physical considerations for the planning and management of vulnerable cultural resources, affirming the need to involve community members and their intangible values into the adaptive planning for cultural resources.

Co-design of water services and infrastructure for Indigenous Canada: A scoping review

There is movement in engineering fields and in Indigenous communities for enhancement of local participation in the design of community infrastructure. Inclusion of community priorities and unique cultural, spiritual, and traditional values harmonize the appearance, location, and functionality of developments with the social and cultural context in which they are built and contribute to holistic wellness. However, co-design processes that align community values and the technical needs of water facilities are difficult to find. A scoping review was conducted to explore the state of knowledge on co-design of water infrastructure in Indigenous Canada to build a knowledge base from which practices and processes could emerge. The scoping results revealed that articles and reports emerged only in recent years, contained case studies and meta-reviews with primary (qualitative) data, and involved community members in various capacities. Overall, 13 articles were reviewed that contributed to understanding co-design for water infrastructure in Indigenous Canada. Barriers to co-design included funding models for Indigenous community infrastructure, difficulties in engineers and designers understanding Indigenous worldviews and paradigms, and a lack of cooperation among stakeholders that contribute to ongoing design failures. A working definition of co-design for Indigenous water infrastructure is presented.

Community-based participatory research (CBPR): Towards equitable involvement of community in psychology research.

Community-based participatory research (CBPR) answers the call for more patient-centered, community-driven research approaches to address growing health disparities. CBPR is a collaborative research approach that equitably involves community members, researchers, and other stakeholders in the research process and recognizes the unique strengths that each bring. The aim of CBPR is to combine knowledge and action to create positive and lasting social change. With its origins in psychology, sociology, and critical pedagogy, CBPR has become a common research approach in the fields of public health, medicine, and nursing. Although it is well aligned with psychology's ethical principles and research aims, it has not been widely implemented in psychology research. The present article introduces CBPR to a general psychology audience while considering the unique aims of and challenges in conducting psychology research. In this article, we define CBPR principles, differentiate it from a more traditional psychology research approach, retrace its historical roots, provide concrete steps for its implementation, discuss its potential benefits, and explore practical and ethical challenges for its integration into psychology research. Finally, we provide a case study of CBPR in psychology to illustrate its key constructs and implementation. In sum, CBPR is a relevant, important, and promising research framework that may guide the implementation of more effective, culturally appropriate, socially just, and sustainable community-based psychology research. (PsycINFO Database Record (c) 2018 APA, all rights reserved).

Are Lebanese schools adopting a health promotion approach in their curricula?

Introduction: The concept of the health promoting school offers a coherent approach to promoting health and well-being within a whole school community. This study sought to evaluate the health programmes and policies adopted by different Lebanese schools, and their appropriateness for this role as part of health promotion. Methods: Our research took the form of a prospective observational study involving 50 schools from different areas of Lebanon. Data were collected using a questionnaire based on the Health Assessment Tool for Schools (HATS). Data were analysed to describe school characteristics and to reveal differences in the health topics addressed. Results: Most of the schools included in the study came from Mount Lebanon (56%). Around 70% of the involved schools offered health-related courses in their curricula. Health-related seminars and workshops (60%) and health awareness campaigns took place at the studied schools, with 98% incorporating physical education into the curriculum. Dental health (74%), smoking cessation (72%) and physical activity (68%) were among other most addressed topics, while mental health was the least discussed (20%). The majority (70%) of schools had a shared vision of what promoting health involved and sought to promote the active involvement of community members in the life of the school (60%). Around two-thirds of the schools (66%) provided physical support and facilities, and had developed policies for health promotion. Less than half of these schools’ health committees, however, had developed plans to improve health promotion and review data to ensure the effectiveness of their programmes. Conclusion: The study findings suggest that despite weaknesses, the majority of the sampled schools had either implemented or were in the process of implementing a health promoting school programme to improve health education and students’ well-being.

Community participation in primary care: willingness to participate, a web survey in the Netherlands.

Community participation in primary care refers to involvement of community members in the organization, governance and policy making of primary care facilities. Due to demographic changes and changes in the role of patients and the community concerning health care, it becomes important to include the social environment of patients into healthcare. Community participation may help GPs to improving their practice and providing care according to the needs of the population. Interpreted this way, it may be an important contributor to quality of care. In 2016, a web questionnaire was send to 800 members of the Dutch Health Care Consumer Panel. The response rate was 34%. Willingness to participate was divided into perceived readiness, ability and time to participate. The data were analysed using frequency tables and linear regression analysis.FindingsHalf of the participants were ready to give their opinion on primary care and one-third reported willingness to participate in decision making. Participants were less optimistic about their ability to participate and the time they have available for participation. Readiness and perceived ability were mainly determined by the importance that the respondents attributed to participation. Participants with previous experience in volunteering appeared more willing to spend time on participation. This study showed that half of the respondents are willing to participate, but they are less sure about their ability to do so and that finding time to participate is seen as problematic. Future research should focus on which characteristics influence willingness. This knowledge might help primary care facilities to recruit people more easily and successfully.

Communitarianism and youth empowerment: Motivation for participation in a community-based substance abuse prevention coalition.

In recent years, collaborative efforts between universities and community-based coalitions have helped develop prevention-intervention efforts to decrease the prevalence of drug and alcohol use among youth in low-income, majority-minority urban areas. One theory often employed to understand the efficacy of community member involvement is McMillian and Chavis's (1986) sense of community (SOC) model. This model posits how 4 main tenants (i.e., sense of belonging, emotional connection, needs fulfillment, and influence) lead to increased empowerment. The present study examines how individual SOC affected substance abuse coalition members' (N=17) motivations for serving on a coalition. Findings explore how all four tenants of McMillian and Chavis's (1986) model influenced community members' involvement in the coalition, which have implications for prevention, policy, and further research.

BUILDING EVALUATION PARTNERSHIPS WITH TRIBAL COMMUNITIES FOR HOME VISITING.

The goal of this current descriptive study was to examine the roles and relationships of evaluators with the tribal communities in which they work. First, we describe a participatory community research model with a strong capacity-building component as the standard for assessing successful working partnerships between evaluators, programs, tribes, and tribal organizations. This model serves as a yardstick against which we examine the success and challenges of program-evaluation partnerships. Second, we report on a survey of tribal Maternal, Infant, and Early Childhood Home Visiting program leaders and outline their impressions of successes and challenges related to program-evaluation partnerships. Survey participants discussed the importance of working with evaluators who have deep investment in and understanding of the tribal community; respect for cultural relevance and honor for cultural ways; collaboration that includes transparency, trust, and translation of research for community leaders and members; a focus on strength-based design without losing the need to consider challenges; and relationships of mutual trust that can weather addressing stressors when issues of conflict, limited resources, and/or mixed expectations arise.

Critical considerations for the practical utility of health equity tools: a concept mapping study

BackgroundPromoting health equity within health systems is a priority and challenge worldwide. Health equity tools have been identified as one strategy for integrating health equity considerations into health systems. Although there has been a proliferation of health equity tools, there has been limited attention to evaluating these tools for their practicality and thus their likelihood for uptake.MethodsWithin the context of a large program of research, the Equity Lens in Public Health (ELPH), we conducted a concept mapping study to identify key elements and themes related to public health leaders and practitioners’ views about what makes a health equity tool practical and useful. Concept mapping is a participatory mixed-method approach to generating ideas and concepts to address a common concern. Participants brainstormed responses to the prompt “To be useful, a health equity tool should…” After participants sorted responses into groups based on similarity and rated them for importance and feasibility, the statements were analyzed using multidimensional scaling, then grouped using cluster analysis. Pattern matching graphs were constructed to illustrate the relationship between the importance and feasibility of statements, and go-zone maps were created to guide subsequent action.ResultsThe process resulted in 67 unique statements that were grouped into six clusters: 1) Evaluation for Improvement; 2) User Friendliness; 3) Explicit Theoretical Background; 4) Templates and Tools 5) Equity Competencies; and 6) Nothing about Me without Me- Client Engaged. The result was a set of concepts and themes describing participants’ views of the practicality and usefulness of health equity tools.ConclusionsThese thematic clusters highlight the importance of user friendliness and having user guides, templates and resources to enhance use of equity tools. Furthermore, participants’ indicated that practicality was not enough for a tool to be useful. In addition to practical characteristics of the tool, a useful tool is one that encourages and supports the development of practitioner competencies to engage in equity work including critical reflections on power and institutional culture as well as strategies for the involvement of community members impacted by health inequities in program planning and delivery. The results of this study will be used to inform the development of practical criteria to assess health equity tools for application in public health.

Supporting strong families and capable communities through cross-national research

# Background Mental and behavioral ill-health are growing global problems and while there are promising evidence-based approaches aimed at reducing their impact, availability of services varies greatly, not only across nations, but also between urban, regional, and remote locations. Rural areas face accessibility and acceptability challenges related to mental health services that are similar to barriers experienced in developing countries. Initiatives to address mental health challenges in under-served rural areas can inform global mental health strategies. # Methods Using a public health approach, we illustrate how innovations in rural communities build community capacity and capability in areas that are currently, and are likely to remain, under-served by specialist mental health services. We provide examples of initiatives and key principles of action from three locations in Nebraska, United States of American and New South Wales, Australia to highlight similarities of context and practice. # Results While each of the initiatives was developed independently, there are striking similarities across them. Similarities in initiatives include: a) recognition that solutions developed in urban settings are not necessarily the most effective in under-served rural areas, b) engagement of community members is needed to ensure acceptance of initiatives in target communities, c) each initiative involved community members acting on their own behalf with an emphasis on prevention and early intervention, and d) research is a key aspect that informs practice and has local relevance. Commonalities of contexts and environments may have played an important role in the similarities. # Conclusions Linking initiatives within and between countries can expand local, national, and global reach and impacts. If we are to meet lofty global goals related to health and wellbeing, cross-national collaborations are needed to share resources, expand expertise, and stimulate ideas necessary to develop and enhance local and global initiatives. High-income country partnerships addressing mental health in under-served areas, such as rural communities, can play a vital role in contributing to global mental health solutions.

The vulnerability of peri-urban farm households with the emergence of land Markets in Accra

Accra, the capital of Ghana, is a fast-growing African city. Its growth has brought in its wake an ever-increasing demand for land, which has in turn led to the emergence of a land market that is increasingly supplanting the age-old customary land tenure system. The customary land tenure system is based on communal, rather than individual ownership of land. However, over the last few decades, the system has come under pressure from the forces of rapid urbanization, city expansion and increasing demand for land for urban development. The purpose of this paper was to examine the vulnerability of residents of indigenous communities in peri-urban Accra due to the emerging urban land market. The case study approach has been used to explore vulnerability among residents of two indigenous communities in peri-urban Accra in respect of their ability to access land. Household surveys, focus group discussions and key informant interviews involving community members, leaders and municipal officials were the main techniques used to collect data. The study revealed that indigenous and long-term residents had their farmlands converted to urban development without any measures in place to protect them from the collapsing customary land tenure system and the evolving urban land market. This has negatively impacted their quality of life, especially with respect to livelihoods. There is therefore the need for municipal assemblies to include the preservation of farmlands in the management of physical growth and land use so as to minimize the rate at which farmlands are being converted to urban development. Measures should also be put in place to restore farm households that have lost their land to urban development in the form of compensation and provision of alternative livelihoods. Keywords: Vulnerability; customary; land tenure; urban growth; land market

Participatory Communication, Theatre and Peace: Performance as a Tool for Change at the End of Conflict

ABSTRACTThis article presents insights on a participatory theatre initiative implemented in Kenya, with the aim of understanding the changes that were initiated towards the re-establishment of peace between communities. The project was carried out in the aftermath of the post-election violence that took place in the country between 2007 and 2008. Amani People’s Theatre organised a number of theatre-based activities adopting a participatory approach, which ensured the involvement of community members from different tribes. Participants used the plays to re-enact the events, experienced during the conflict and the issues that still affected their communities as a result of those events, and worked together on finding solutions. The article begins with a literature review on Theatre for Development and its progress towards a more participatory approach. This is followed by an introduction of the project and the context in which it took place. The study design and Theory of Change developed for the analysis are then presented, opening the path to a discussion of the findings generated through that framework. Lastly, final reflections bring to light a number of issues that must be considered when working with participatory theatre in peace interventions.

Youth ADAPT NC: A Participatory Action Research Project With Hispanic Youth Aimed at Enhancing Career Opportunities

Participatory action research (PAR) involves community members as co-researchers throughout the research process and takes collective action on the knowledge produced. This article covers an application of PAR in a study about job access for Hispanic immigrant youth in Charlotte, North Carolina, an emerging immigrant gateway. I offer practical and detailed advice on structuring PAR projects and working with youth groups and community partners, with the hope of helping others implement similar projects in research, educational, and practice settings. Both process and outcomes can be beneficial for participants and researchers, and advance scientific knowledge and social change.

Counternarratives of Community-Based Advocacy as Sources of Knowledge for Urban Planning

Informed by the deliberate work of advocates to address the positioning of community voices as subaltern, the last three decades have seen a growing push for alternative approaches to urban planning. In order to foster the culturally competent use and development of public space in the United States, urban planning education must include a focus on the centrality and persistence of racist ideologies and the current fueling of anti-immigrant sentiments that challenge the idea of who “belongs” in communities. Even planners informed by critical theories of participatory practice face challenges working within systems based on positivist and Western-dominant epistemologies. In this article, the authors present three examples of how typically invisibilized voices in communities can be centered in urban planning and design processes, with the goal of informing and expanding preparatory curricula in more culturally sustaining ways. Specifically, the authors employ the concept of counternarratives from critical race theory to present perspectives that challenge dominant practices and understandings. The counterstories presented here document ways that activists of color have involved community members in documenting their experiences in public spaces and used these insights to promote change. The authors apply an asset-oriented perspective that aims to incorporate overlooked sources of knowledge and expertise in communities in order to imagine new possibilities and futures in shared urban spaces by changing planning processes.

Disseminating the Results of a Depression Management Study in an Urban Alaska Native Health Care System.

Increased attention to diagnostic accuracy in depression screening and management within primary care has demonstrated inadequate care when patients prematurely discontinue recommended treatments such as medication and counseling. Decision-support tools can enhance the medical decision-making process. In 2010, the Southcentral Foundation (SCF) Research Department developed a stakeholder-driven decision support tool to aid in depression management. This paper describes feedback from attendees at SCF's 2016 Alaska Native Health Research Forum (Forum) regarding a dissemination product highlighting the aforementioned study. Forum attendees participated in a small group discussion and responded to a brief survey using the audience response system. Thematic analysis was conducted on data from the small group discussion. Overall, Forum attendees responded favorably to the dissemination product. Most agreed the presentation was clear, the amount of information presented was appropriate, and that results were presented in an interesting way. Small group discussion participants provided constructive feedback about why depression-related research results should be shared; how they believed results should be best shared; who results should be shared with; when and where results should be shared; and what level of research results should be shared. The stigma associated with depression treatment may be assuaged if results are shared in a way that normalizes support for depression treatment. Community member involvement in disseminating results has potential to make information more acceptable and meaningful.

“All Voices Matter”: Perspectives on Bridging the Campus-to-Community Gap

Project Sharing Opinions and Advice about Research in the Deep South (SOAR) aims to increase the involvement of community members to enhance the importance, relevance, and cultural appropriateness of disease research and interventions offered in the Deep South. SOAR recruits and trains community partners to include them in conversations about how best to identify and address mental and physical health disparities. Additionally, SOAR underscores the importance of addressing issues faced by ethnically diverse and underserved community members.