Involvement Of Others Research Articles

Reinstating the artist’s voice: Artists’ perspectives on participatory projects

Claire Bishop argued that the ethical lens applied to socially engaged arts practice encourages ‘authorial renunciation’ in favour of collaboration and limits the opportunity to expose such practice to critical reception. This article responds to Bishop’s implicit call to envision an artist-centred framework for participatory arts by identifying the motivations and beneficial discoveries that artists make when they seek out the creative involvement of others. Based on interviews with Australian performing artists who have established socially engaged practices, the article aims to bring about a form of ‘authorial reinstatement’ into the value system around participatory arts practice. It identifies a range of motivations for artists who establish socially engaged or participatory practice, from self-developmental to altruistic; and from arts-focused to community- and society-focused. The article argues that using these motivations to inform indicators of achievement for participatory practice provides new opportunities for critical interrogation of those practices.

Development of a toolkit to enhance care processes for people with a long-term neurological condition: a qualitative descriptive study

ObjectiveTo (A) explore perspectives of people with a long-term neurological condition, and of their family, clinicians and other stakeholders on three key processes: two-way communication, self-management and coordination of long-term...

Involvement and Influence of Healthcare Providers, Family Members, and Other Mutation Carriers in the Cancer Risk Management Decision-Making Process of BRCA1 and BRCA2 Mutation Carriers.

Deciding between increased cancer screening or prophylactic surgery and the timing of such procedures can be a difficult and complex process for women with BRCA mutations. There are gaps in our understanding of involvement of others in the decision-making process for women with BRCA mutations. This study evaluated the management decision-making process of women with BRCA mutations, focusing on the involvement of others. Grounded theory was used to analyze and code risk management decision-making information from interviews with 20 BRCA mutation carriers. Unaffected at-risk participants with a BRCA mutation, those under age 40, and those with no children described having a difficult time making risk management decisions. Physicians were an integral part of the decision-making process by providing decisional support and management recommendations. Family members and other mutation carriers filled similar yet distinct roles by providing experiential information as well as decisional and emotional support for carriers. Participants described genetic counselors as short-term providers of risk information and management recommendations. The study findings suggest that unaffected at-risk women, women under 40, and those who do not have children may benefit from additional support and information during the decision-making process. Genetic counselors are well trained to help women through this process and connect them with resources, and may be under-utilized in long-term follow-up for women with a BRCA mutation.

A newly characterized vacuolar serine carboxypeptidase, Atg42/Ybr139w, is required for normal vacuole function and the terminal steps of autophagy in the yeast Saccharomyces cerevisiae.

Macroautophagy (hereafter autophagy) is a cellular recycling pathway essential for cell survival during nutrient deprivation that culminates in the degradation of cargo within the vacuole in yeast and the lysosome in mammals, followed by efflux of the resultant macromolecules back into the cytosol. The yeast vacuole is home to many different hydrolytic proteins and while few have established roles in autophagy, the involvement of others remains unclear. The vacuolar serine carboxypeptidase Y (Prc1) has not been previously shown to have a role in vacuolar zymogen activation and has not been directly implicated in the terminal degradation steps of autophagy. Through a combination of molecular genetic, cell biological, and biochemical approaches, we have shown that Prc1 has a functional homologue, Ybr139w, and that cells deficient in both Prc1 and Ybr139w have defects in autophagy-dependent protein synthesis, vacuolar zymogen activation, and autophagic body breakdown. Thus, we have demonstrated that Ybr139w and Prc1 have important roles in proteolytic processing in the vacuole and the terminal steps of autophagy.

Self- and Social-Regulation in Type 1 Diabetes Management During Late Adolescence and Emerging Adulthood.

This paper aims to examine how self-regulation (i.e., cognition, emotion) and social-regulation (i.e., parents, friends, romantic partners) are interrelated risk and protective factors for type 1 diabetes management during late adolescence and emerging adulthood. Problems in cognitive (e.g., executive function) and emotional (e.g., depressive symptoms) self-regulation are associated with poorer management, both at the between- and within-person levels. Better management occurs when parents are supportive and when individuals actively regulate the involvement of others (e.g., seek help, minimize interference). Friends both help and hinder self-regulation, while research on romantic partners is limited. Facets of self- and social-regulation are important risk and protective factors for diabetes management during emerging adulthood. At this time when relationships are changing, the social context of diabetes may need to be regulated to support diabetes management. Interventions targeting those with self-regulation problems and facilitating self- and social-regulation in daily life may be useful.

SCOPEOUT: sustainability and spread of quality improvement activities in long-term care- a mixed methods approach

BackgroundInterventions to improve quality of care for residents of long-term care facilities, and to examine the sustainability and spread of such initiatives, remain a top research priority. The purpose of this exploratory study was to assess the extent to which activities initiated in a quality improvement (QI) collaborative study using care aide led teams were sustained or spread following cessation of the initial project and to identify factors that led to its success.MethodsThis study used an exploratory mixed methods study design and was conducted in seven residential long-term care facilities in two Canadian provinces. Sustainability and spread of QI activities were assessed by a questionnaire over five time points for 18 months following the collaborative study with staff from both intervention with non-intervention units. Semi-structured interviews were conducted with care managers at six and 12 months. QI team success in applying the QI model was ranked as high, medium, or low using criteria developed by the research team. Descriptive statistics, bivariate analyses, and General Estimating Equations were used to analyze the data. Interview data were analyzed using thematic analysis.ResultsIn total, 683 surveys were received over the five time periods from 476 unique individuals on a facility unit. Seven managers were interviewed. A total of 533 surveys were analyzed. While both intervention and non-intervention units experienced a decline over time in all outcome measures, this decline was significantly less pronounced on intervention units. Facilities with medium and high success ranking had significantly higher scores in all four outcomes than facilities with a low success ranking. Care aides reported significantly less involvement of others in QI activities, less empowerment and less satisfaction with the quality of their work life than regulated care providers. Manager interviews provided evidence of sustainability of QI activities on the intervention units in four of the seven facilities up to 18 months following the intervention and demonstrated the need for continued staff and leadership engagement.ConclusionSustainability of a QI project which empowers and engages care aides is possible and achievable, but requires ongoing staff and leadership engagement.

ANALISIS VARIABEL INTERNAL DAN EKSTERNAL DALAMPENGELOLAAN ZAKAT PADA BAZNAS KABUPATEN/KOTA DI SUMATERA BARAT

The purpose of this study is to determine the strengths, weaknesses, opportunities, and obstacles BAZNAS district / city in West Sumatra in the management of zakat. The research design used is descriptive qualitative. Sources of research data consisted of district / municipality BAZNAS administrators, provincial BAZNAS administrators, local government authorities, and related documents. Data were collected through interview and documentation techniques. The data obtained were analyzed using SWOT analysis. The results show that the strength of BAZNAS districts in West Sumatera is the commitment of management, management autonomy, UPZ formation, continuous socialization, volunteer zakat, zakat fund transparency and program innovation. The weakness of the BAZNAS is insufficient SDM, double positions, lack of muzaki and mustahik databases, the role of UPZ is not optimal yet, the collection is still focused on Zakah on the profession of civil servants, the distribution of consumptive zakat is still dominant, and infrastructure facilities are inadequate. BAZNAS's opportunities are regional regulation, enormous zakat potential, cooperation with religious organizations, public trust, increased civil servant salary / allowances and rapidly growing information technology. The obstacles faced by BAZNAS are the area of work of BAZNAS is very broad, operational budget is minimal, rejection from some scholars and community leaders, direct distribution of zakat, and involvement of others in socialization is still lacking.

Risk as a relational phenomenon: a cross-cultural analysis of parents’ understandings of child food allergy and risk management

Western culture can be seen as permeated by risk-consciousness. In particular, parents are under scrutiny in their roles as risk managers. In this article, we address parental experiences of children more at risk than other children, children with food allergy, and the management of allergy risk in everyday life. Drawing on a notion of risk as ‘situated’ in local everyday life, we argue that a further exploration of parental understandings of child food allergy risk would benefit from an analysis of studies across different local contexts. In this article, we draw on a secondary qualitative cross-cultural analysis of interview data from several studies of parents in Sweden and Scotland through 2006–2010, which focused on parents’ understandings of the nature of food allergy and the children’s management of the allergy risk. We found some common themes in the different data sets. First, parents depicted food allergy as life-threatening, a ‘death risk’ lurking in the background, more or less constantly present in different everyday situations, amounting to an existential condition in parenting. Second, they talked about food allergy risk as a relational phenomenon, meaning that the risk emerged in the encounter between the young person’s individual competence to manage allergy risk and the understandings of allergy risk in others – thus depending on contexts and interaction between several actors. Finally, the analysis showed that unpredictability and risk in constant flux are the prominent aspects of living with food allergy. We also discussed the ways risk and trust are related, as well as how the involvement of others can be seen as both a risk and a safeguard.

So Gross and Yet so Far Away

People morally evaluate norm violations that occur at various distances from the self (e.g., a corrupt politician vs. a cheating spouse). Yet, distance is rarely studied as a moderator of moral judgment processes. We focus on the influence of disgust on moral judgments, as evidence here has remained inconclusive. Based on feelings as information theory and the notion that disgust evolved as a pathogen avoidance mechanism, we argue that disgust influences moral judgment of psychologically distant (vs. near) norm violations. Studies 1 and 3 show that trait disgust sensitivity (but not trait anger and fear) more strongly predicts moral judgment of distant than near violations. Studies 2 and 4 show that incidental disgust affects moral judgment of distant (vs. near) violations and that the moderating role of distance is mediated by involvement of others (vs. the self) in the evaluator’s conceptualization of the violation.

Living alongside military PTSD: a qualitative study of female partners’ experiences with UK Veterans

Introduction: An increased risk of emotional burden in partners of military Veterans with mental health difficulties has been observed. This study aimed to explore the experiences and needs of female partners of Veterans seeking help. Methods: Our sample of eight female partners was drawn from a population of help-seeking Veterans who had received treatment for PTSD. Qualitative data were collected using a semi-structured interview schedule. Results: Super-ordinate themes of challenges faced, desired type of support, and barriers to support were each described by a set of sub-themes. Challenges faced were described with the themes of inequality in relationship, loss of congruence with own identity, volatile environment, and emotional distress and isolation. Desired type of support was described by the themes of practical focus on improving, sharing with fellow experts, and support tailored to the partner. Barriers to support were described by the themes feeling restricted by practical barriers and ambivalence about the involvement of others. Discussion: Interventions to support partners of Veterans with mental health difficulties need to address their individual needs, focus on practical techniques, and consider practical limitations.

Involvement of Family Members and Professionals in Older Women’s Post-Fall Decision Making

ABSTRACTThis exploratory, descriptive study examined involvement of family members and professionals in older women’s post-fall decision making. We conducted semistructured interviews with 17 older women who had recently fallen and 11 individuals these women identified as being engaged in their post-fall decision-making processes. Qualitative data analysis involved open and axial coding and development of themes. After experiencing a fall, these older women’s openness to others’ opinions and advice; their assessments of types and credibility of potential information sources; and the communication practices they established with these sources influenced how they accessed, accepted, or rejected information from family members and professionals. Increased awareness of the involvement of others in post-fall decision making could enhance communication with older women who fall. Developing and implementing practical strategies to help family members and professionals initiate and engage in conversations about falls and their consequences could lead to more open decision making and improved post-fall quality of life among older women.

Critical reflection: scaffolding social responsiveness for first-year students

The teaching and assessment of socially responsive critical reflection in higher education is challenging, especially when learning does not take place in wider social or practice-based contexts. For many students, learning to reflect on others’ experiences in a socially responsive way requires scaffolding. This paper reports on discourses of self and other in the guided summative reflections of first-year non-clinical health students (n = 23) undertaking activities aimed at increasing social responsiveness. The reflections predominantly featured discourses of self, and the corresponding discourse of others as similar to self. Critical reflection, while infrequent, was usually associated with the less common discourse of others as unlike self. Social responsibility, an even less frequent discourse, was unrelated to self. The findings confirm the need for scaffolding of critical reflection, but also suggest that more course content involvement in others’ lived experiences is pivotal to socially responsive reflection. Further research on effective socially responsive learning and whether it influences later practice is needed.

Drawing Upon Lessons Learned

Javits Gifted and Talented Education Program has provided a wealth of knowledge on culturally and linguistically diverse (CLD) gifted learners and how to support teachers in their work with CLD students. This study examined five impactful Javits projects through qualitative inquiry centered on how innovative practice takes root or not. Using grounded theory tradition, examination of Javits project participation enabled insight into how educators act and react to innovation as well as their perceptions of CLD student impacts. Data sources (documents, conversations with principal investigators, and interviews with 14 educators) provide evidence for what sustains effective, research-based practices and explores continued student benefits. Major findings are (a) context matters in sustaining innovation, (b) powerful curriculum and instruction can transform teaching and teachers, and (c) student impacts continue. Data point to leadership as an underlying element in sustaining innovation. Leaders ensure that innovation extends from broad-based goals; they develop innovation through scale-up and involvement of others; they purposefully track results. Growing effective approaches is critical to access and opportunity and CLD-gifted learners’ talent development.

Views of learning and a sense of community among students, paraprofessionals and parents in developing a school culture towards a professional learning community

In schools the participation of students, parents and paraprofessionals is important because it increases ownership and improves performance. Here the focus is on students’ and paraprofessionals’ learning and a sense of community when leaders try to develop a professional learning community in a new school in Iceland. An action research project lasting three-and-a-half years was used in the school. The researcher worked closely with two school leaders. Data were acquired through interviews, observations and reflections and from national assessments. Teachers and school leaders dominate the community but results show signs of the involvement of others in the school. Teachers take responsibility, seldom consulting with paraprofessionals. The students have a choice on ‘how’ and ‘when’ in learning while teachers decide ‘what’ they learn. The leaders should find a structure to involve the school aides in the teams to promote team diversity. The leaders and teams have to explore collaboration and discussion, not least with students. Leaders should involve parents in critical reflection on the school policy and increase structured and formal paths for their participation. The involvement of students in the development of the professional learning community was strengthened by the ‘Positive Discipline’ approach, which gave them an opportunity to discuss learning in a safe environment.

Supporting Adolescent Daughters as They Come of Age: Latina Mothers’ Reflections and Recommendations

The current project describes themes emerging from a set of focus groups with 20 Latina mothers (aged 25 to over 45) who reflected on the transition to adulthood for their daughters. As community stakeholders residing in a large city in the Southern USA, these mothers shared their perspectives and advice on supporting adolescent girls during the transition to adulthood. Qualitative coding revealed four key aspects of the transition that were important to these mothers: ethnic identity, involvement of others, communication with daughters, and individual personality characteristics. We discuss their reflections with regard to the development of more culturally relevant programs for Latina girls coming of age within the USA context.

Qualitative accounts of teenage and emerging adult women adjusting to motherhood

Objective: The aim of this study was to better understand how young women in their early 20s transition and adjust to motherhood in the first year postpartum, compared to teenage mothers. Background: A body of research suggests that teen mothers have unique challenges and experiences adjusting to motherhood. However, less research has focussed on mothers in their early 20s, who have increasingly become a minority in Western countries, and are supposedly adjusting to motherhood in a new developmental period characterised by self-focussed identity exploration and individual freedom. Method: Using a semi-structured interview format, 12 Australian women (mean age 20.5 years; mean baby age 6.5 months) were interviewed, and verbatim transcriptions analysed with thematic analysis. Results: Two broad themes identified were Change within the self and Involvement of others. Some of the early 20s women reported more difficulties with identity adjustment compared to that of teen women, and this appeared primarily related to women’s background and circumstance. Social support was important for all women, while experiences of stigma were common and negatively impacted on women’s adjustment to motherhood. Conclusions: The extent to which first-time mothers in their early 20s experience conflict between responsibilities of motherhood and self-focussed identity exploration appeared to be largely dependent on background and prior circumstances, suggesting that emerging adulthood norms do not consistently apply to these women.

The Map, the Other and the public visual image

This article explores the connection between Cartography and Otherness, and intersects map and visual studies with the question of racial/ethnic identity. With the aim of making arguments through images, a visual/verbal text is staged to reflect on the ‘Map-Other’ connection in past and present times. Inspired by the epistemological turn from representation towards practice currently experienced within map theory, the article interrogates the various creative ways in which art, advertising, public communication and related fields enable post-representational ways of portraying maps. Public visual images of cartography can be read not only as an exposure of the firm, ideological meaning of maps, but also as illustrations of how maps work as shared, embodied and empowering objects. The treatment of maps as socialised, performed and relational thereby results in an involvement of Others as protagonists rather than subjects.

Variation in local trust Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) policies: a review of 48 English healthcare trusts

ObjectivesTo explore Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) policies from English acute, community and ambulance service Trusts for evidence of consistency and variation in implementation of national guidelines between healthcare...

Insulin pump therapy is perceived as liberating, but to many it can imply a sense of the diabetes made visible

AbstractThis study describes how adults with type 1 diabetes experience the transition from multiple daily injections (MDI) to continuous subcutaneous insulin infusion (CSII or ‘insulin pump’). The study is based on interviews in focus groups, with 11 persons with type 1 diabetes who had had CSII for at least one year, which were analysed using qualitative content analysis. The analysis resulted in three categories: life and health; involvement of others; and technology dependence. Participants’ experiences are summarised in the theme ‘CSII is perceived as liberating, but also implies a sense of the diabetes made visible’. The transition resulted in changed life and health with greater freedom and flexibility, particularly in meal situations. The participants felt that their blood glucose was easier to control. Those around them reacted with curiosity, but some participants felt compelled to tell others that they had diabetes since the pump could be seen or heard. The participants found that coping with C...

A qualitative exploration of service users' information needs and preferences when receiving a serious mental health diagnosis.

Helpful strategies for communicating news of a serious mental health diagnosis are poorly understood. This study explored service users' preferences for how they would like clinicians to deliver such news when a diagnosis of mental illness is made. Qualitative interviews were conducted with forty-five individuals identifying with serious mental illness in eleven community based mental health facilities. Inductive thematic analysis resulted in eight primary themes. Five themes related to the structure and content of the discussion; including a focus on information exchange, using an individualized collaborative partnership paradigm, addressing stigma, balancing hope with realism, and recognizing the dynamic nature of diagnosis. The remaining themes related to the involvement of others; including the importance of clinicians' communication and relationship skills, involvement and education of carers, and offering an opportunity for peer support. The product of the synthesis of themes is a step-wise model for communicating news of mental health diagnosis.