International Network Research Articles

Charting the Ethical Frontier in Newborn Screening Research: Insights from the NBSTRN ELSI Researcher Needs Survey

From 2008 to 2024, the Newborn Screening Translational Research Network (NBSTRN), part of the National Institute of Child Health and Human Development (NICHD) Hunter Kelly Newborn Screening Program, served as a robust infrastructure to facilitate groundbreaking research in newborn screening (NBS), public health, rare disease, and genomics. Over its sixteen years, NBSTRN developed into a significant international network, supporting innovative research on novel technologies to screen, diagnose, treat, manage, and understand the natural history of more than 280 rare diseases. The NBSTRN tools and resources were used by a variety of stakeholders including researchers, clinicians, state NBS programs, parents, families, and policy makers. Resources and expertise for the newborn screening community in ethical, legal, and social issues (ELSI) has been an important area of focus for the NBSTRN and this includes efforts across the NBS system from pilot studies of candidate conditions to public health implementation of screening for new conditions, and the longitudinal follow-up of NBS-identified individuals to inform health outcomes and disease understanding. In 2023, the NBSTRN conducted a survey to explore ELSI issues in NBS research, specifically those encountered by the NBS community. Since NBS research involves collaboration among researchers, state NBS programs, clinicians, and families, the survey was broadly designed and disseminated to engage all key stakeholders. With responses from 88 members of the NBS community, including researchers and state NBS programs, the survey found that individuals rely most on institutional and collegial resources when they encounter ELSI questions. Most survey responses ranked privacy as extremely or very important in NBS research and identified the need for policies that address informed consent in NBS research. The survey results highlight the need for improved collaborative resources and educational programs focused on ELSI for the NBS community. The survey results inform future efforts in ELSI and NBS research in the United States (U.S.) and the rest of the world, including the development of policies and expanded ELSI initiatives and tools that address the needs of all NBS stakeholders.

Dry eye disease and spondyloarthritis: expanding the spectrum of systemic inflammatory disorders associated with ocular surface disease. Data from the international AIDA Network Spondyloarthritis Registry.

Dry eye disease (DED) is a condition associated with a myriad of systemic disorders. According to recent preliminary data, axial spondylarthritis (axial-SpA) could represent a new entity associated with DED. Therefore, this study aimed to assess DED in patients with axial SpA by performing quantitative and qualitative specific tests to investigate the potential association between DED and ocular surface damage in patients with axial-SpA and to identify potential variables associated with DED. A total of 71 patients with axial-SpA who fulfilled the Assessment of SpondyloArthritis International Society (ASAS) classification criteria and 19 healthy controls were enrolled in this study. Both the patients and the controls underwent a complete ocular assessment aimed at evaluating the tear film and ocular surface, which included the Schirmer test, tear break-up time (TBUT), fluorescein staining, and lissamine green staining. The Ocular Surface Disease Index (OSDI) questionnaire was administered to all patients. DED symptoms were reported in 46 (64.8%) patients and three (15.8%) healthy controls (p = 0.0004). The odds ratio for receiving a diagnosis of axial-SpA based on the presence of dry-eye-related symptoms was 9.2 (95% C.I. 2.72-42.52, p = 0.001). The Schirmer test values of < 6 mm/5 min were observed in 31 (43.7%) patients with axial-SpA and two (10.5%) healthy controls (p = 0.013); a TBUT of <5 s was observed in 34 (47.9%) patients with axial-SpA and six (31.6%) healthy controls. The median OSDI score was found to be 22.9 (IQR = 29.35) among the patients with axial-SpA and 0.0 (IQR = 4.69) among the healthy controls (p = 0.009). The fluorescein and lissamine green staining of the ocular surface indicated a significantly higher Oxford Grading Scale in the patients with axial-SpA than in the healthy controls. Patients with axial-SpA often complain of eye dryness, which may be quantified with the self-administered OSDI questionnaire and objectively assessed through the tests commonly used for the diagnosis of DED. Patients suspected of having axial-SpA should routinely be asked about dry eye symptoms and evaluated for potential corneal and conjunctival damage.

Practice review: Pharmacological management of severe chronic breathlessness in adults with advanced life-limiting diseases.

Severe and refractory chronic breathlessness is a common and burdensome symptom in patients with advanced life-limiting disease. Its clinical management is challenging because of the lack of effective interventions. To provide practice recommendations on the safe use of pharmacological therapies for severe chronic breathlessness. Scoping review of (inter)national guidelines and systematic reviews. We additionally searched for primary studies where no systematic review could be identified. Consensus on the recommendations was reached by 75% approval within an international expert panel. Searches in MEDLINE, Cochrane Library and Guideline International Network until March 2023. Inclusion of publications on the use of antidepressants, benzodiazepines, opioids or corticosteroids for chronic breathlessness in adults with cancer, chronic obstructive pulmonary disease, interstitial lung disease or chronic heart failure. Overall, the evidence from eight guidelines, 14 systematic reviews and 3 randomised controlled trials (RCTs) on antidepressants is limited. There is low quality evidence favouring opioids in patients with chronic obstructive pulmonary disease, cancer and interstitial lung disease. For chronic heart failure, evidence is inconclusive. Benzodiazepines should only be considered for anxiety associated with severe breathlessness. Antidepressants and corticosteroids should not be used. Management of breathlessness remains challenging with only few pharmacological options with limited and partially conflicting evidence. Therefore, pharmacological treatment should be reserved for patients with advanced disease under monitoring of side effects, after optimisation of the underlying condition and use of evidence-based non-pharmacological interventions as first-line treatment.

Multilateral collaborative governance of Arctic shipping safety: Examining the impact of the Arctic Council via collaborative network analysis

Global climate change has dramatically reduced Arctic sea ice, opening new potential shipping routes, which has garnered international attention. This study explores the role of the Arctic Council in the collaborative governance network focused on Arctic shipping safety. For this purpose, a collection of 49 collaborative events initiated by international organisations and the Arctic Council was used as the data sample. These events are divided into two groups, one containing all the events and the other excluding those initiated by the Arctic Council. As a result, two collaborative networks are developed and evaluated based on network density, average path length, network transitivity, centrality indices (degree, closeness, betweenness), and clustering analysis. The results demonstrate that the Arctic Council significantly enhances the network density and transitivity of the international collaboration network, and reshapes core-periphery dynamics and cohesive subgroup structures. For instance, under the influence of the Arctic Council, Canada, France, and Japan surpass the United Kingdom in centrality (degree, closeness, betweenness). Results of the clustering coefficients reveal the Arctic Council's impact on connections among states, leading to shifts in collaboration patterns. Additionally, subgroup cohesion and density coefficients confirm the Arctic Council's role in promoting collaboration among states and restructuring governance networks.

Clinical practice guidelines and expert consensus statements on rehabilitation for patients with COVID-19: a systematic review

ObjectivesTo appraise the quality of clinical practice guidelines (CPGs) and expert consensus statements on rehabilitation for patients with COVID-19, summarise recommendations of rehabilitation assessments and interventions and evaluate the heterogeneity...

(Key1-001) congenital disorders of glycosylation: Glycobiology at the bedside.

Congenital disorders of glycosylation (CDG) are a group of rare monogenic human disorders caused by defects in the genes encoding the proteins that generate, attach, and modify glycans, thus disrupting cellular glycosylation machinery. Over 200 CDG caused by disruptions of 189 different genes are currently known. The multi-system disease manifestations of the CDG disorders highlight the importance of glycosylation across the organ systems. Clinical manifestations of CDG tend to group among genes contributing to the same glycosylation pathways, suggesting shared pathophysiology related to the glycosylation disruptions. However, the underlying glycosylation disruptions and pathophysiologic mechanisms responsible for specific CDG clinical manifestations have been determined for only a few hypoglycosylated proteins. The Frontiers in CDG Consortium (FCDGC) is an international network of clinical sites, laboratories, and patient advocacy groups established in 2019 to improve clinical symptoms, quality of life, and life expectancy for individuals with CDG. FCDGC seeks to answer decades of unresolved questions, address knowledge gaps, develop and validate new biochemical diagnostic techniques and therapeutic biomarkers, and explore novel therapeutic options for CDG. Over the past 5years, FCDGC has launched a Natural History Study with over 300 CDG patients, discovered novel biomarkers suggesting new mechanisms of disease, and launched clinical trials aiming to restore appropriate glycosylation and targeting newly identified potential mechanisms of disease. Technical advances in glycobiology are making it increasingly possible to comprehensively catalog glycoproteomic data and to probe functional impact of altered glycosylation. My laboratory applies glycoproteomic technologies to samples from human subjects and genetic model systems to identify glycosylation abnormalities and unlock new insights from translational glycobiology. Current findings and accomplishments highlight the ongoing bottlenecks and knowledge gaps at intersections of glycobiology and clinical care requiring further investigation.

International social work as a human rights profession in the global society: Challenges and implications of the Sustainable Development Goals

This article discusses the importance of international social work in a global society. In an increasingly globalised world, we are interconnected in many ways and interdependent in a complex geopolitical (dis)order. This also applies to those involved in social work as a human rights profession. For a long time, the idea was that social workers had to act solely on a national level and that looking beyond one's own country could be refreshing but was unnecessary. However, we know how important international relationships, networks, and scientific exchanges are today. Geopolitical decisions often affect social work and its target groups at their core. Existential poverty and unemployment in countries of the Global South led to flight and migration to countries of the Global North. Crises such as wars or natural disasters have a wide range of effects on global value chains. The unequal distribution of poverty and wealth leads to asymmetrical power relations, which are not least the legacy of colonial and apartheid influence. This makes the Sustainable Development Goals (SDGs) set by the United Nations even more important. If, for example, the first goal in SDG 1 is formulated as "No poverty", then this poses numerous challenges for social work stakeholders in municipalities, states, and nations, to which they must find an answer. These challenge social work on several levels. The following article aims to discuss these challenges at macro-, meso- and micro levels and formulate mandates for action for international social work stakeholders. The aim is to contribute to forming a professional understanding that is defined beyond national structures and mandates.

Establishing the robustness of chip trade networks by dynamically considering topology and risk cascading propagation

Risk cascading propagation research mostly focuses on complex theoretical networks. Recently, the vulnerability of international chip supply has increased notably, and it is strategically important to explore how shortage risk affects the emergence dynamics of the real chip trade systems. This study abstracts the global chip trade relationship data for 2009–2021 into multiple asymmetrically weighted networks. Using macro-network and micro-node indicators, we explore the topological traits of international chip trade networks and their evolutionary laws. Accordingly, we propose risk cascading propagation models driven by node failure and edge restraint and further innovate to open up the research paradigm of focused-edge networks. Furthermore, a community infection-driven risk cascading propagation mechanism that incorporates community risk absorption capacity is introduced, considering both the propagation attenuation effects and the trade dependency degree. A multi-dimensional dynamic perspective reveals the hidden systemic risks in international chip trade. The main results are as follows: first, international chip trade networks are highly connected and cohesive, consistent with small-world characteristics. Second, the proportion of economies that collapse because of supply shortage risk shocks increases with the impact coefficient α/β\\documentclass[12pt]{minimal} \\usepackage{amsmath} \\usepackage{wasysym} \\usepackage{amsfonts} \\usepackage{amssymb} \\usepackage{amsbsy} \\usepackage{mathrsfs} \\usepackage{upgreek} \\setlength{\\oddsidemargin}{-69pt} \\begin{document}$$\\alpha /\\beta$$\\end{document}. The dominant power in chip crisis propagation has shifted from Europe and America to Asia, and mainland China’s risk penetration capacity has enhanced significantly. Third, focused-edge networks conform to a multi-hub radiation pattern. Before the COVID-19 pandemic, the degree of control and spillover effects of chip supply shortages in hub economies on the international trade was increasing progressively. Fourth, an increase in absorption capacity λ\\documentclass[12pt]{minimal} \\usepackage{amsmath} \\usepackage{wasysym} \\usepackage{amsfonts} \\usepackage{amssymb} \\usepackage{amsbsy} \\usepackage{mathrsfs} \\usepackage{upgreek} \\setlength{\\oddsidemargin}{-69pt} \\begin{document}$$\\lambda$$\\end{document} or attenuation factor γ\\documentclass[12pt]{minimal} \\usepackage{amsmath} \\usepackage{wasysym} \\usepackage{amsfonts} \\usepackage{amssymb} \\usepackage{amsbsy} \\usepackage{mathrsfs} \\usepackage{upgreek} \\setlength{\\oddsidemargin}{-69pt} \\begin{document}$$\\gamma$$\\end{document} consistently leads to a decline in avalanche scale, with λ\\documentclass[12pt]{minimal} \\usepackage{amsmath} \\usepackage{wasysym} \\usepackage{amsfonts} \\usepackage{amssymb} \\usepackage{amsbsy} \\usepackage{mathrsfs} \\usepackage{upgreek} \\setlength{\\oddsidemargin}{-69pt} \\begin{document}$$\\lambda$$\\end{document} exhibiting critical thresholds. These findings will help policymakers pursue efficient management strategies for chip trade, thereby improving supply stability and security.

International Network for Epidemiology in Policy: Past, Present, and Future

International Network for Epidemiology in Policy: Past, Present, and Future

Gian Giacomo Poldi Pezzoli’s international network and models for a modern museum

Gian Giacomo Poldi Pezzoli’s international network and models for a modern museum

An Inventory of Rare Disease Registries in the Canadian Landscape

What Was the Question? There is a lack of centralized information about rare disease registries (RDRs) in Canada. To address this, we created an inventory of RDRs in Canada and international RDRs that include patients living in Canada. What Did We Do? Information about RDRs was identified through a search of published literature, grey literature, consultations with members of the rare disease community, and a survey with the registry holders. What Did We Find? We identified 148 RDRs, of which 66 are RDRs in Canada and 82 international RDRs. In total, 21% of RDRs in Canada and 11% of international RDRs capture rare cancer(s). About a half of RDRs in Canada (53%) and international RDRs (46%) collaborate with other national or international registries or networks. Most RDRs in Canada (73%) and international RDRs (86%) identify patients for RDR enrollment through health care provider referrals. Electronic medical records (68%), clinician-reported data (68%), and medical chart abstraction (60%) are the most common sources of data for RDRs in Canada compared to international RDRs, for which patient (79%) and caregiver (61%) surveys are most common. Most RDRs in Canada collect clinical data (95%), laboratory and diagnostic data (85%), health outcomes data (83%), and treatment data (78%), and less commonly patient-generated data (55%) and caregiver data (15%). What Does This Mean? The information in the inventory will help guide future initiatives for improving the RDR landscape in Canada. Most RDRs in Canada source data from electronic health records, clinician-reported data, and medical charts. Fewer RDRs in Canada implement patient and caregiver surveys. RDRs in Canada include information relevant to decision-makers as most collect clinical data, health outcomes data, and treatment data, and about half collect health resource utilization data. This inventory will support future initiatives to assess the suitability of RDRs for generating decision-grade real-world evidence.

Achievements of international rare cancers networks and consortia in the neuro-oncology field.

In this review, we investigated the role of European oncological networks on management and care of patients with central nervous system (CNS) malignancies. Within this universe of tumors, malignancies of the central nervous system (CNS) malignancies represent a challenge because of several reasons such as biological complexity, the need of dedicated experienced physicians (surgeons, pathologists, radiologists and neuro-oncologists) and tertiary healthcare providers. Limits to the development of effective and innovative care are represented by the rarity of these tumors and their extreme heterogeneity in terms of clinical presentation, course of the disease, genetic assessments and site of presentation. The oncological networks are societies or associations, which make possible to connect patients, scientists, doctors and researchers together allowing to obtain several improvements. Oncological networks can cooperate to increase accrual rate and speed in clinical trials, share data about CNS malignancy management and improve knowledge toward this class of tumors within patients and health operators promoting equity and high standard of care.

Proceedings: Sixth International Futures of Aviation Medicine Symposium

In June 2024, leaders in aviation medicine from across the United States, Canada, and Europe met for the sixth Leonardo Helicopters/Association of Critical Care Transport: The Path to High Reliability Futures of Aviation Medicine Symposium in Miami, FL. The symposia, now held every few years, grew from the 2003 Air Medical Leadership Congress: Setting the Healthcare Agenda for the Air Medical Community. The meetings’ goal is to gather leaders to distill, debate, and synthesize the state of the science while identifying, refining, and outlining conditions facilitating favorable evolution in civilian aviation medicine. Structured as thematic panel presentations followed by interactive all-attendee roundtable discussions, the gatherings build and expand an international network of thought leaders and proven doers. Meeting attendees have a common goal—accelerating learning and practice among early and developed systems moving toward a shared worldwide agenda for the future of aviation transport medicine.

Hizbut Tahrir's Political and Legal Movement in Indonesia During the Reformation Period

This research tries to explain and describe the political movement of Hizbut Tahrir in Indonesia. By using qualitative methods through literature studies, this research produces the conclusion that Hizbut Tahrir Indonesia is one of the most solid, neat and efficient sharia enforcement movements. has an international network. In fact, Hizbut Tahrir Indonesia is also known to be the most radical, in the sense that it does not just fight upholding Islamic law but more than that also establishing an Islamic caliphate because according to Hizbut Tahrir Indonesia, the application of Islamic law is absolutely impossible applied except within the framework of the caliphate. One of the strategies used by Hizbut Tahrir Indonesia in spreading ideas, by controlling strategic arenas in the middle public.

Towards inclusive collaboration in volcanology: guidelines for best-engagement protocols in international collaboration

The International Network for Volcanology Collaboration (INVOLC) is a network formalised by the International Association of Volcanology and Chemistry of the Earth’s Interior (IAVCEI) with the specific ambition to enhance volcanology globally through improved international collaboration. IAVCEI-INVOLC was created with a focus on volcano scientists working in resource-constrained contexts, including those based in low- or middle-income countries. After a community-wide online survey and inaugural workshop during which INVOLC’s ambitions were discussed, a series of challenges, as commonly experienced by those working in resource-constrained settings, were identified. These challenges may present barriers to participation in volcano science in an international context and are related to both organisational resources (financial, human, technical) and inclusion in research collaborations. In this perspectives paper, we present a series of 15 guidelines for best-engagement protocols in international collaboration in volcanology that may be adopted during times of quiescence, volcanic unrest and/or an eruption and its aftermath. Our aspiration is that these guidelines will help build more respectful, equitable and sustainable partnerships that will ultimately advance the science of volcanology.

Comparative Effects of GLP-1 Receptor Agonists and Metformin on Glaucoma Risk in Type 2 Diabetes Patients

PurposeTo compare effects of glucagon-like peptide-1 (GLP-1) receptor agonists and metformin on the risk of primary open-angle glaucoma (POAG), ocular hypertension, and the need for first-line glaucoma treatments in patients with type 2 diabetes. DesignA retrospective cohort study was conducted using electronic medical records (EMR) data from the from an international electronic health record network, covering a period from May 2006 to May 2024. ParticipantsPatients diagnosed with type 2 diabetes mellitus (T2DM) who were treated with either GLP-1 receptor agonists or metformin. MethodsData from 120 healthcare organizations across 17 countries were analyzed. Patient outcomes were assessed at 1, 2, and 3 years. Propensity score matching (PSM) was used to balance covariates such as demographics, comorbidities, and medication usage. Risk ratios (RR) with 95% confidence intervals (CI) were calculated. Main Outcome MeasuresIncidence of POAG, ocular hypertension, and the need for first-line treatments including beta-blockers, prostaglandin analogues, brimonidine, brinzolamide, dorzolamide, netarsudil, and laser trabeculoplasty. ResultsAfter PSM, both groups included 61,998 patients at the 1-year follow-up, 27,414 at the 2-year follow-up, and 14,100 at the 3-year follow-up. Patients treated with GLP-1 receptor agonists had a significantly decreased risk of developing POAG compared to those on metformin at 1 year (RR 0.59, 95% CI 0.39-0.88), 2 years (RR 0.50, 95% CI 0.32-0.78), and 3 years (RR 0.59, 95% CI 0.37-0.94). Similar protective effects were observed for ocular hypertension with risk reductions of 56% at 1 year (RR 0.44, 95% CI 0.31-0.62), 57% at 2 years (RR 0.43, 95% CI 0.30-0.62), and 49% at 3 years (RR 0.51, 95% CI 0.34-0.75). The risk of first-line therapy initiation was also lower in the GLP-1 receptor agonists group at 1 year (RR 0.63, 95% CI 0.53-0.74), 2 years (RR 0.71, 95% CI 0.59-0.85), and 3 years (RR 0.75, 95% CI 0.62-0.91). ConclusionsGLP-1 receptor agonists are associated with a significantly lower incidence of POAG, ocular hypertension, and the need for first-line glaucoma treatments compared to metformin in patients with type 2 diabetes. These findings highlight the potential ocular benefits of GLP-1 receptor agonists and their expanding role in the clinical management of diabetic patients.

Management of acute myocarditis: a systematic review of clinical practice guidelines and recommendations.

The management of acute myocarditis (AM) is addressed in multiple clinical guidelines. We systematically reviewed current guidelines developed by national and international medical organizations on the management of AM to aid clinical practice. Publications in MEDLINE, EMBASE and Cochrane were identified between 1 January 2013 and 12 April 2024. Additionally, the websites of relevant organizations and the Guidelines International Network, Guideline Central, and NHS knowledge and library hub were reviewed. Two reviewers independently screened titles and abstracts, two reviewers assessed the rigour of guideline development, and one reviewer extracted the recommendations. Two of the three guidelines identified showed good rigour of development. Those rigorously developed agreed on the definition of AM, sampling serum troponin as part of the workflow for AM, testing for B-type natriuretic peptides in heart failure, key diagnostic imaging in the form of cardiovascular magnetic resonance, coronary angiography to exclude significant coronary disease, indications for endomyocardial biopsy (EMB), and indications for immunosuppression and advanced treatment options. Discrepancies exist in sampling creatine kinase-myocardial bound as a marker of myocardial injury, indications for EMB, and indications for immunosuppression and treatment of uncomplicated AM. Evidence is lacking for the use of 18F-Fluorodeoxyglucose Positron Emission Tomography for myocardial imaging, exercise restriction, follow-up measures and genetic testing, and there are few high-quality randomized trials to support treatment recommendations. Recommendations for management of AM in the guidelines have largely been developed from expert opinion rather than trial data.

They returned to the Chinese mainland, and what? A collaborative autoethnographic study on the career transitions of Chinese international doctorates from the West to the east

ABSTRACT The purpose of this study is to analyse the approaches of three Chinese international doctoral degree holders who received their doctoral education in the West in tackling the challenges of relocation and career transition to the East after completing their doctoral degrees. Through a collaborative autoethnographic research from June 2020 to December 2022, from the theoretical perspectives of institutional theory, the study reveals four tactics of institutional arbitrage, driven by resources, purpose, practice, and legitimacy, allowed the Chinese international doctoral degree holders to extend their international academic networks to the local context, adapt research purposes to fit national needs, introduce effective practices from the international academic community to local institutions, and advocate for the legitimacy of cutting-edge research in the local academic community. Through these tactics, the multiple logics of profession, corporation, market, and state were found to be strengthened in the institutional environment, thus supporting their career development. The study further proposes to view Chinese international doctoral degree holders’ relocation to China as an important component of the international mobility of knowledge workers, contributing to the formation of global scholarship, rather than a simple return journey to their homeland.

Trends in scientific production in telecommunications (1981–2023): a bibliometric study

Purpose: Telecommunications have evolved in response to technological advancements and regulatory changes established in law. There remains a research gap concerning universal access to communication rights, which can be addressed through a bibliometric analysis of the scientific literature. This study aimed to identify trends in telecommunications research. Accordingly, it analyzed annual scientific output, determined the most representative journals, examined prevalent keywords, highlighted the most productive authors, and identified key articles in the field.Methods: Scientific production was analyzed using the Scopus database. Documents published between 1981 and 2023 in English were included, while those not relevant to the study topic were excluded. A total of 237 documents were analyzed using the Biblioshiny interface and Microsoft Excel.Results: Annual scientific output peaked in 2021, with an annual growth of 2.91%. The most representative journal was &lt;i&gt;Telecommunications Policy&lt;/i&gt;. The consolidated keywords were “communication rights,” “public service media,” “media policy,” “regulation,” and “telecommunications.” The most productive authors were Amy Sanders and Pradip Thomas. The most cited article addressed the institutional foundations of telecommunications regulation.Conclusion: There was evidence of growing scientific production in telecommunications, published in high-impact journals with an interdisciplinary approach. The main topics related to telecommunications were communication rights, regulation, and internet governance. Despite the presence of prolific authors, a need for greater collaboration in the formation of international research networks was identified.

Microbial culture collections: Stanley Morris Martin, the first international conference (Ottawa 1962), and beyond.

Culture collections originated in the 19th century, but it was not until 1962 that the first international conference was held at the National Research Council in Ottawa, Canada. Microbes-like epidemics-know no borders. Collectors were concerned with public health as well as science. For the 1962 meeting, 266 scientists came from 25 countries. They recommended a special section for collections within the International Association of Microbiological Societies. By 1970, it became the World Federation of Culture Collections, which still coordinates collections worldwide. Canadian microbiologist Stanley Morris Martin (1920-2007) who had handled local arrangements for the Ottawa meeting became the inaugural president, serving from 1970 to 1976. Originally an expert on enzymes, Martin embraced his role within the international network and championed peaceful uses of microbes and the establishment of collections in developing countries. But after his retirement, he seemed to disappear. Drawing upon scientific contributions, newspapers, and interviews, this article explores the conference, its programme, challenges, and legacy. It also tracks the long-forgotten career of Stanley Martin.