Informal Support Networks Research Articles

Mothers' perception of the care of newborn in the home environment.

to identify mothers' perceptions about caring for newborns in the home environment, from the perspective of complexity thinking. qualitative, exploratory and descriptive research, carried out between November/2022 and February/2023. Data were collected through individual interviews with 21 mothers from southern Brazil who cared for newborns at home and analyzed using the thematic analysis technique. the four thematic axes resulting from the data analysis: Living amidst order and disorder; embracing singularities; dealing with the certain and the uncertain; support network in the (re)organizing process demonstrate that the mother caring for a newborn in their home environment experiences a distinct and plural adaptive process, which must be welcomed and understood by health professionals who work within the family environment. the care of newborns in a home environment, in the perception of mothers, requires differentiated attention and a formal or informal support network that considers the unique specificities of each woman/mother in the personal, family and social spheres. Therefore, in addition to the social support network, it is important to rethink home intervention approaches.

“She’s Been a Rock”: The Function and Importance of “Holding” by Social Prescribing Link Workers in Primary Care in England—Findings from a Realist Evaluation

Social prescribing link workers are recently introduced roles in English primary care. One of their intended functions is to support patients with conditions influenced by the wider, social determinants of health. Their main purpose is to connect people to community resources to meet their nonmedical needs. However, our research reveals that link workers provide not only connections but also what we have described as “holding” for individuals with complex needs, who lack informal networks of support or who are waiting to access services. We explore the concept of holding, its meaning and significance in this context, and consider its consequences. As part of a realist evaluation, we observed seven link workers in GP practices in England during focussed ethnographies over a 3‐week period. We took field notes and interviewed 61 patients and 93 healthcare and voluntary sector professionals. Nine to twelve months later, we carried out follow‐up interviews with forty‐one patients, seven link workers, and a link worker manager. We identified four functions of holding: supporting patients waiting for services, sustaining patients as they prepare for change, reducing the emotional burden of primary healthcare professionals, and bearing witness to patients’ distress. Holding appears to be a vital but often overlooked aspect of social prescribing. Patients benefit from having a reliable and consistent person to support their emotional needs. However, similar to the impact of holding on other primary care professionals, there are unintended consequences: some link workers exceed their capacity, become overburdened, experience burnout, and leave their job. Recognizing the importance of holding and understanding its role in link workers’ primary care responsibilities are critical. If holding work is accepted as a role for link workers, providing training and support to them should be prioritised to ensure successful implementation and positive outcomes for patients, link workers, and primary healthcare staff.

Negotiating Social Protection and Care: A Study of First-Generation Older Turkish Community in London

Access to social protection in old age is crucial and yet contingent upon negotiations between the social structures of the welfare states and the personal networks within which individuals are embedded. International migration, changing family dynamics, and the transformation of care and other welfare policies in the global North make it challenging for older migrants to negotiate social protection. Drawing on 45 semi-structured interviews with first-generation older Turkish migrants in London and 13 semi-structured interviews with professional service providers for the community, the paper aims to investigate the assemblages of formal and informal social protection in the lives of older migrants. Findings indicate the complexity in accessing informal social protection and the navigation of formal care support in the UK for first generation older Turkish migrants and the contingency of access to formal care services on informal support networks for participants. It has been demonstrated that built infrastructure and policies aimed at older adults have great influence on assemblages of care, highlighting the need for more age-friendly and integrated policies to facilitate access to social protection for diverse groups of older adults.

P39: Predictors of loneliness in Chilean informal caregivers of people with dementia during the COVID-19 pandemic

Objective:The aim of this study was to determine the predictors of loneliness in informal caregivers of people with dementia in Chile during the Covid-19 pandemic.Methods:195 Chilean informal caregivers responded to an online or telephone survey. They were asked about sociodemographic aspects, clinical and caregiving changes experienced by them and the person with dementia during the pandemic, perceived psychosocial support and loneliness.Results:Less years of formal education, lower income, low level of support with care tasks, living with the person with dementia, low social support, high levels of burden and depressive and anxious symptomatology were significantly related to higher loneliness. In contrast, carrying out physical and mental activity was significantly associated with lower feelings of loneliness. Almost half of the variability of loneliness was explained by higher depressive and anxious symptomatology (β = 0.53), low psychosocial support (β = -0.29) and living with the person with dementia (β = 0.16) (adjusted R2 = 0.48).Conclusion:The risk of developing loneliness in informal caregivers of people with dementia is high. Special emphasis should be placed on developing interventions that improve the mental health of this group, as well as increasing their contact with formal and informal support networks. Thus, they would be able to cope with care tasks in a better way, reducing the likelihood of experiencing feelings of loneliness.

A deathly silence: why has the number of people found decomposed in England and Wales been rising?

The number of deaths occurring in private homes in England and Wales had been rising for years, increasingly rapidly from 2020. Media stories and research linked decomposing bodies found in private homes with pandemic-related social isolation. We aim to explore whether these incidents are one-offs or part of a wider trend. Descriptive analysis of publicly available Office for National Statistics (ONS) data. England and Wales. All residents of England and Wales, 1979 to 2020. Using data from the Office for National Statistics, we calculate European Age Standardised Rates for deaths coded as R98 ('unattended death') and R99 ('other ill-defined and unknown causes of mortality') in the 10th version of the International Classification of Diseases (ICD-10), and the corresponding codes in ICD-9, by sex and age group from 1979 (when ICD-9 began) to 2020. These are proxy markers for deaths where decomposition precludes attribution of a specific cause at postmortem. While mortality from all other causes decreased from 1979 to 2020, the opposite was seen for deaths from R98 and R99 (or 'undefined deaths'), with men more affected than women. There was a sharp rise in these deaths in both sexes but in men particularly in the 1990s and 2000s, coinciding with a time when overall mortality was rapidly improving. The increase in people found dead from unknown causes suggests wider societal breakdowns of both formal and informal social support networks. They are concerning and warrant urgent further investigation. We call on national and international authorities to consider measures that would make it possible to identify these deaths more easily in routine data.

Resource Hopping: Examining the Policy Barriers Faced and Strategies Used to Establish Partnerships for Students Experiencing Homelessness

Effective support for students experiencing homelessness requires collaboration and coordination within and between agencies. However, this can be difficult for communities with limited resources and majority Black and Latino populations. This article explores the challenges faced by a divested urban school district in establishing meaningful community partnerships for supporting homeless students. Using an anti-deficit achievement framework and structural racism lens, interviews with district personnel, city and county government, and community-based organizations illustrate how homeless liaisons overcame structural and political barriers by seeking informal support networks outside their city and partnering with organizations beyond their immediate jurisdiction to better serve students experiencing homelessness. Building upon recent discourse on how to best support students experiencing homelessness, this article offers a much needed examination of the role of homeless liaisons in implementing MVA.

Gender Differences in Social Support Vary by Environment Among Older People With HIV in South Africa and Uganda.

Sub-Saharan Africa is home to 3.7 million older adults living with HIV, who experience high rates of comorbid conditions. Formal services other than HIV clinical care are largely unavailable. Overall, women are the mainstay of informal social support networks, and older women with HIV may face burdens due to family caregiving expectations. Thus, it is important to understand the extent of informal support provided to older adults living with HIV, and how this is affected by gender. We examined differences in social networks, needs, social support and caregiving, and perceptions of support adequacy among women and men aged 50 and older living with HIV in Uganda (n = 101) and South Africa (n = 108), mostly rural and suburban populations, respectively. We used multiple regression to determine whether there was an association between gender and the amount of social support received and whether that varied by research site. Men were more likely than women to receive support from a partner. Women were more likely to live with offspring, both providing and receiving care. In South Africa but not Uganda, women received more help from family than men did. There was no gender difference in getting help from friends, but it was more common in Uganda. Living alone was strongly associated with less family help and more help from friends. Older women with HIV in sub-Saharan Africa tend to be more heavily involved in social support exchanges-both providing and receiving care-than their male peers, but place matters. Interdependence is high in rural Uganda, where formal services are scarce and needs exceed resources. Given the projected growth in this population, stronger formal supports are needed for communities and older people with HIV, especially those who live alone.

Economic disadvantage and depressive symptoms among Arab and Jewish women in Israel: the role of social support and formal services

ABSTRACT Objectives Depression is a major public health concern due to its high prevalence and association with functioning. Ethnic minorities in Western countries are more likely to experience economic disadvantage and exposure to stressors that may put them at higher risk of developing depression. One major protective factor associated with reduced depressive symptoms is an existing support network. This study examined the associations between economic disadvantage, formal and informal social support, and depressive symptoms among two ethnicity groups in Israel: Arab and Jewish mothers of young children, as well as the potential mediating role of formal and informal social support in the associations between economic disadvantage and depressive symptoms. Design We recruited a representative sample of 837 Jewish and Arab mothers of children aged 2–6 years. We collected data via structured face-to-face interviews following approval of the university ethic committee. We used the Center for Epidemiologic Studies Depression Scale (CES-D), the Medical Outcomes Study (MOS) scale to measure maternal perceived social support, and a measure designed for this study to quantify formal social support. Results Compared to the Jewish mothers, Arab mothers reported more depressive symptoms, greater economic disadvantage, and fewer informal and formal support networks. Economic disadvantage was negatively associated with informal support but positively associated with formal support among both Jewish and Arab mothers. Results further revealed that informal and formal social support mediated the associations between economic disadvantage and symptoms of depression. Conclusions More attention should be paid to the associations between social determinants and mothers’ mental health, with a possible shift of focus to macro-level factors, such as economic inequality and minority status.

The Journey to Early Identification and Intervention for Children with Disabilities in Fiji.

Early identification of developmental delay or disability and access to early intervention improves outcomes for children with disabilities and their families. However, in many low- and middle-income countries, services and systems to enable timely, co-ordinated care and support are lacking. The aim of this research was to explore the experiences of families of children with developmental disabilities in Fiji in accessing services for intervention and support across sectors. This qualitative study involved conducting interviews with caregivers of children with disabilities (n = 12), and relevant key stakeholders from health, education, disability, and social support sectors (n = 17). We used journey maps to identify key stages of the families' journeys, identify key barriers and enablers at each stage, and provide multi-sectoral recommendations for each stage. Enablers include proactive help seeking behaviours, the use of informal support networks and an increasingly supportive policy environment. Barriers to identification include a lack of awareness of developmental disabilities and the benefits of early intervention among service providers and the community. A lack of service availability and capacity, workforce issues, family financial constraints and a lack of collaboration between sectors were barriers to intervention once needs were identified, resulting in significant unmet needs and impacting inclusion and participation for children with disabilities. Overcoming these challenges requires a multi-sectoral approach.

Aspects of Selective Sexual Assault Disclosure: Qualitative Interviews With Survivors and Their Informal Supports.

Two-thirds of survivors typically disclose their experience to informal supports (e.g., friends, family, partners) at some point following sexual assault, but little in-depth research has addressed specific aspects of disclosure. In the current study, a diverse sample of 45 sexual assault survivors and their informal support providers (SP; e.g., family, friends, romantic partners) were interviewed separately about experiences of disclosure, social reactions, and help-seeking following the assault. Narrative data on the overarching thematic category of selective disclosure were analyzed using thematic analysis methods. Several subthemes emerged specific to (a) the circumstances of disclosure (prompted or coerced), (b) withholding details (framing disclosures to avoid rape myths and blame, strategic use of language, protecting others by not disclosing or limiting details), and (c) sharing details (selecting who was told, selecting trusted others for disclosure, selective details told to specific people, sharing with strangers easier). Implications are drawn for future research on aspects of selective disclosure of sexual assault and clinical practice implications for supporting survivors and their informal support networks.

Stigma, Self-Care, and Intuitive Eating in Black Americans with Type 2 Diabetes.

Type 2 diabetes is prevalent among Black Americans. Stigma associated with type 2 diabetes, both in general and specific to weight, is damaging to self-care, which is crucial for the effective management of diabetes. Family relationships may buffer the negative impact of stress, especially among Black Americans who have historically relied on informal support networks. Our goal was to investigate how type 2 diabetes stigma (H1) and weight stigma (H2) were related to self-care and intuitive eating - a non-restrictive approach to nutrition; H3 predicted that family relationship satisfaction would moderate the relationships predicted in H1 and H2. Black Americans diagnosed with type 2 diabetes (N = 225) were recruited via Qualtrics panels to complete an online survey of self-report measures. We used multiple linear regression to test our hypotheses. Both chronic illness and weight stigma were related as predicted to one subscale of intuitive eating (eating for physical hunger). Our moderation analyses revealed that family relationship satisfaction was protective against the harms of stigma at moderate to high levels. Intuitive eating is a promising non-restrictive treatment option for type 2 diabetes.

Theology and Women’s Agency in the Context of Intimate Partner Violence in Ghana

Intimate partner violence (IPV) is a growing problem in sub-Saharan Africa that limits women’s agency. Various studies have found that cultural norms and religion sustain women’s experiences of IPV, inspiring various theories among feminist scholars and within religion on women’s agency. This study determines whether and how theology contributes to the agency of IPV survivors. I draw upon constructivist grounded theory to inductively analyze the stories of thirteen abused Christian women in a mainline church in southern Ghana. My findings indicate that multiple systems, including informal social support networks, constrain survivors while simultaneously serving as conditions for their personal faith and individually constructed theologies. Indeed, these serve as catalysts to their self-enactments and emerging agency. These findings provide nuance to existing (and contested) conceptions of agency.

Mothers Doing Friendship in a Hostile Environment: Navigating Dialectical Tensions and Sharing Support

Increasingly hostile immigration policies in the UK produce insecure immigration statuses and exclusion from public services and mainstream welfare benefits. Little is known about how this precaritization affects racially minoritized mothers with insecure immigration statuses and ‘no recourse to public funds’. The ethnographic study on which this article is based explored the impact of hostile policies on mothering, and found that precaritization increases the significance of mothers’ informal support networks, including friendships. I show how hostile policies constrain mothers’ friendship practices, shaping access to support. I argue that while mothers share diverse forms of support through their everyday friendship practices, they have to navigate dialectical tensions (contradictions) that play out in ways specific to their precarious legal and financial positioning. Applying theories of friendship and relational dialectics, I highlight the importance of safe, sociable spaces and sustained ‘friendship work’ to navigate tensions and nurture friendships as sites of support.

How Streamers Foster Consumer Stickiness in Live Streaming Sales

Streamers play a critical role in fostering consumer stickiness in live streaming sales. Thus, it is necessary to make clear the mechanism of how streamers influence consumer stickiness. Based upon the theories of social support, social identification and consumer stickiness, this study investigates the effects of consumers’ perceived emotional support, informational support, financial support, affectionate support and social network support from streamers on consumer–streamer identification, which in turn affects consumer–streamer stickiness and consumer–brand stickiness in live streaming sales settings. Based on the structural equation modeling analysis of 280 online questionnaires, using the software of Smart PLS 3.0, the results demonstrate that perceived emotional support, perceived informational support, perceived financial support and perceived affectionate support enhance consumer–streamer identification, thereby enhancing consumer–streamer stickiness and consumer–brand stickiness, and thus, consumer–streamer stickiness also enhances consumer–brand stickiness. This study not only extends the theories of live streaming sales, but also provides practical implications for enterprises’ improving consumer–streamer stickiness and consumer–brand stickiness in live streaming sales.

Negotiating Cancer and Masculinities in Dance Education: Narratives of Discovery from Recovery

ABSTRACT This collaborative duoethnography explores autobiographical accounts of two male-identifying dance educators living with/through cancer. The authors generate and analyze two dominant themes—of cancer-specific recovery and life-centered discovery—in relation to their embodied and discursive constructions of masculinity and their shifting identities as male dance educators confronting and resisting societal gender norms. These shifts include the recovery of health and the recovery of perspective in which the authors also elucidate the discovery of previously unacknowledged and unknown aspects of self, the discovery of new avenues of professional fulfillment, and the adaptation of working practices. The article reveals that male dance educators engage in a range of complex negotiations with their masculinity, which is variously shown to be, at times, diminished, fragile, reproductive, recuperative, and subverted, as well as contextually contingent. Calls are made for greater support for dance educators living with/through cancer from formal institutional assistance provided by conservatories, universities, dance studios, and organizations, as well as informal networks of well-being support from the dance education profession itself.

Impact of the COVID-19 pandemic on health care and daily life of patients with rare diseases from the perspective of patient organizations – a qualitative interview study

BackgroundDuring the COVID-19 pandemic people affected by rare diseases (RD) or caregiver of affected children have faced additional challenges. The pandemic has affected physical and mental health, social life and has led to financial consequences. Our objectives were to identify the impact of COVID-19 (1) on health care and (2) on daily life and participation of patients with RDs or caregivers from the perspective of representatives of patient organizations. Moreover, we explored their perspective on experiences of pandemic stress and resources during the pandemic.ResultsWe conducted 18 semi-structured interviews with representatives of patient organizations (e.g. chairperson, members of the steering committee), who were asked about the experiences of their members. The interviews were transcribed verbatim and analyzed using the framework approach. We contextualized our findings on the basis of the International Classification of Functioning, Disability and Health (ICF) model and adapted it according to identified subthemes. Patients and caregivers were confronted with aspects of pandemic stress such as lack of information, access and information regarding vaccination and being a risk group for COVID-19 infection. Physical and mental functioning was reported to be negatively impacted. Lock downs and contact restrictions led, e.g., to increasing lack of nursing services or lack of necessary informal support. Participation e.g. in social life and work was reduced. Health care services including medical care and supportive care as well as additional therapies were disrupted and greater effort was necessary to organize care. According to participants, central resources were informal support networks, digitalization, patient organizations and individual characteristics.ConclusionsOur study highlights the consequences of the COVID-19 pandemic on the situation of people affected by RDs and caregivers. Contextualization of the results into the biopsychosocial model reinforces the impact of the pandemic on health care as well as daily life and participation. Major challenges and difficulties were experienced during lockdowns and contact restrictions. Depending on the risk of an infection with COVID-19, certain patient groups were still isolated and reduced social contacts or still followed strict hygienic measures (e.g., wearing medical masks). Future pandemic control measures, e.g. on lockdowns and closing facilities, should consider the challenges of people with RDs and caregivers of affected children.

Facilitators of Sexual Assault Disclosure: A Dyadic Study of Female Survivors and Their Informal Supports

ABSTRACT Two-thirds of survivors typically disclose their experience to others at some point following sexual assault, but little in-depth research has addressed factors facilitating disclosure. In the current study, a diverse sample of 45 female sexual assault survivors (75% racial/ethnic minorities) and their 45 informal support providers (SP; e.g., family, friends, romantic partners) were interviewed separately about experiences of disclosure, social reactions, and help-seeking following assault. Disclosure facilitation was expressed by 40 survivors and 31 SPs, of which 28 were matched S/SP dyadic pairs. Narrative data on the overarching thematic category of sexual assault disclosure facilitation was analyzed using descriptive thematic analysis methods. Several themes emerged from the analysis of quotes specific to the facilitation of disclosure, including: individual (e.g., survivor psychological, behavioral, and disclosure recipient factors), interpersonal (e.g., SP-solicited disclosures, helping others, mutual disclosures), and societal (e.g., lack of barriers, formal supports, media). Implications are drawn for future research on facilitators of sexual assault disclosure. Clinical practice implications are provided for professionals supporting survivors and their informal support networks.

Individualism reduces borrower discouragement

Borrower discouragement contributes to reducing access to credit worldwide. In this study, we examine whether individualism influences the discouragement of borrowers. We used data on borrower discouragement and individualism at the firm level for a large dataset of 31,000 firms from 57 countries. We find that firms in individualistic countries are less likely to be discouraged from applying for loans. Furthermore, individualistic norms reduce borrower discouragement through their impact on lower corruption in lending and weak informal support networks. Our results hold after controlling for other cultural dimensions, addressing potential endogeneity and sample selection issues. Thus, our findings indicate that individualism reduces borrower discouragement, thereby improving access to credit of firms.

Coming back from war: psychosocial support for veterans and their family members

The Russian-Ukrainian war, which escalated in connection with the full-scale invasion of the aggressor country in February 2022 and the occupation of a large part of the territory of Ukraine, led to an increase in the number of veterans who suffered the trauma of a high degree of intensity due to participation in armed conflicts. The article examines the specifics of the veteran community as a category of social work clients and reveals the methods of providing social support based on an approach focused on clients' strengths. The main stages of veteran psychosocial support inherent in this approach have been determined (1) the mobilization phase; (2) the stage of being in the zone of armed conflicts and hostilities; (3) stage of demobilization, returning home; (4) the stage of reintegration into the community and family, building of formal and informal support networks; (5) the stage of considering new life meanings , taking care of one's own "I", searching for oneself; (6) the stage of normalization of life situation: restoration of routine, activity, return to usual activities. Since traumatic experiences affect not only veterans but also members of the family system as the immediate environment, the psychosocial services provided must be family-oriented and consider the family context as a resource environment that can influence the adaptation process of veterans to peaceful life and return to the family. It is advisable for social workers to choose tools for working with veterans that are not capable of harming their clients and that rely on activating the strengths of individuals and families, to observe the general principles of the strengths-based approach. Ethical risks and obstacles that may arise in the work of a social work specialist, taking into account the specific experience of veterans and complicating the process of applying the strengths perspective, are analyzed.

Sexual harassment disproportionately affects ecology and evolution graduate students with multiple marginalized identities in the United States

Abstract Sexual harassment within academic institutions has profound impacts that may lead to the attrition of groups historically excluded from the biological sciences and related disciplines. To understand sexual harassment's effects on vulnerable communities within academia, we examined graduate student experiences with sexual harassment. In a survey of ecology and evolutionary biology programs across the United States, we found that 38% of the graduate student respondents were sexually harassed during their time in these programs. Sexual harassment disproportionately affected graduate students with multiple intersecting marginalized identities, and these experiences led to delays in completing graduate programs and shifts away from their desired careers. Our research highlights the need for academic institutions, and science more broadly, to make widespread changes to sexual harassment policies, including treating sexual harassment as scientific misconduct and creating resources for individuals within students’ informal support networks, in tandem with efforts to dismantle barriers to advancing diversity, equity, and inclusion.