Field Of Disabilities Research Articles

Resilience and Coping by Parents of Children with Intellectual Disability in Kerala, South India

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

Access to Public Healthcare Rehabilitation Services by Persons with Disabilities in South Africa: a Scoping Review

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

Hearing, Speech and Language Outcomes in Children with Cochlear Implants: a Comparison between ADIP Scheme and Self-Financed Scheme

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

Verticalisation ou mise en charge adaptée : réflexions et perspectives dans la Paralysie Cérébrale - Étude de cas

Gravity has captured the attention of thinkers since Aristote. Scientists are always trying to more understand the physical mechanisms and their impacts on terrestrial and extraterrestrial life. Despite all the progress in scientific and clinical research, we still don’t know certain mechanisms of functions and the extraordinary powers of this gravity. Moreover, man is one of the living beings that is directly linked to this gravity. Scientific studies prove the impact of this gravity on height and weight development, the functions of vital organs due to inactivity, and the socio-cultural behavior of human beings. From the neurophysiological point of view, the biomechanics of man in connection with the sensory-motor vectors are intimately linked to the vector of the vertical. This vector is in perpetual change during the passage of the man from the lying position to the standing one and obviously during the walk-in order to build a trajectory and a direction to the movement. However, little scientific and clinical evidence has been revealed on the effect of gravity in the field of Cerebral Palsy and in particular that of multiple disabilities. The complex and heterogeneous clinical picture raises the limits of research in the field of multiple disabilities. However, international consensus and studies are gradually emerging trying to better understand the importance of this severity on the health of people with multiple disabilities. This case study of a child with multiple disabilities highlights the news in the literature review. The Physiotherapist evokes this clinical and scientific problem of the device and its link with gravity by proposing an installation which he calls “MOBIVERT” to put the child in charge in a course of listening, observation and sharing. of experience with the medical, paramedical, psycho-educational and social fields.

Christy Brown's 'My Left Foot': An insider's insights into growing up with cerebral palsy.

The field of childhood disability has undergone a sea-change in the past two decades. Remarkably, 70 years ago, the ideas now taking root were expressed with poignant clarity by Ireland's Christy Brown, providing lessons that were there to be learned, illustrating why 'My Left Foot' remains a singular contribution to the literature about child development and disability. The World Health Organization's 2001 reconsideration of 'disability' (the International Classification of Functioning, Disability and Health or ICF) has spawned considerable uptake and adaptation of contemporary concepts, notably with the 'F-Words for Childhood Disability' (now the 'F-words for Child Development'). Published in 1954, Christy Brown's ground-breaking poetic autobiography 'My Left Foot' resonates today with messages that bring the ICF to life vividly and memorably. The author, a developmental paediatrician, has refracted the themes of 'My Left Foot' through an ICF lens to illustrate that concepts now considered modern have long been in plain sight, but sadly ignored. Christy Brown's first-person narrative animates ideas and messages for all who work in the field of childhood disability. This essay is a personal reflection that draws together both contemporary 21st century concepts and ideas from the time that Christy Brown was a young author reporting his perspectives and perceptions on living with 'disability'. The lessons Christy Brown generously shared 70 years ago should be heeded today. In the context of modern thinking and action regarding 'childhood disability', we need an approach to all we do that sees and respects children with 'disabilities' as whole people, that situates them in the context of family and community, that identifies and promotes their strengths and aspirations within both the health professional community and the community at large and enables them to 'become' and to 'belong'.

Developing visual tangible artefacts as an inclusive method for exploring digital activities with young people with learning disabilities

AbstractBackgroundYoung people with learning disabilities use many digital technologies to undertake meaningful and social activities in their everyday lives. Understanding these digital activities is essential for supporting their digital participation. Including them in exploring their digital activities can be challenging with conventional qualitative research methods, because digital activities are a complex and abstract topic to discuss, particularly for people with learning disabilities. In this paper, we present the rationale for developing and using visual tangible artefacts (VTAs) to include young people with learning disabilities in exploring their digital activities.MethodsWe devised a suite of VTAs to engage young people (aged 14–27 years) with learning disabilities in exploring their digital activities via interviews, diaries, and workshops. The VTAs comprised Talking Mats (TMs), probing with technology, digital snapshots and inspiration cards.FindingsOur significant methodological findings were that VTAs are useful for exploring digital activities with young people with learning disabilities. TMs and probing with technology can engage participants to map, recall and explain their digital activities. Digital snapshots are valuable for validating findings with participants, and inspiration cards aid perspectives about digital aims. Although communication and abstract representations can be challenging for people with learning disabilities, VTAs that combine familiar, simple, intuitive, individualised, rewarding elements and collaboration with participants proved valuable for exploring their digital activities.ConclusionWe concluded that VTAs are inclusive tools for exploring the digital activities of and with young people with learning disabilities. The VTAs allowed access to conversations, information and insights that are not obtainable otherwise. As such, the VTAs may be regarded as a new model for inclusive research in the field of disability and technology studies.

Configurations of atypical parenting activism in disability and chronicity.

This article aims to reflect on the configurations of atypical parenting in the field of disability and chronicity. The atypical emic category composes with these fields. Associative symbolicities are explored with an ethnography in social media and interviews with activists. We indicate ongoing processes in the anticapacitist struggle that dialogue with agendas of Politics as Care. We conclude that "atypical activist parenting" operates with meanings and learnings of living and being familiar with disability/chronicity/rarity in proximity to a son/daughter, not being restricted to biographical ruptures.

Configurações do ativismo da parentalidade atípica na deficiência e cronicidade

Abstract This article aims to reflect on the configurations of atypical parenting in the field of disability and chronicity. The atypical emic category composes with these fields. Associative symbolicities are explored with an ethnography in social media and interviews with activists. We indicate ongoing processes in the anticapacitist struggle that dialogue with agendas of Politics as Care. We conclude that “atypical activist parenting” operates with meanings and learnings of living and being familiar with disability/chronicity/rarity in proximity to a son/daughter, not being restricted to biographical ruptures.

Inequities in obesity: Indigenous, culturally and linguistically diverse, and disability perspectives.

Population groups, including Aboriginal and Torres Strait Islander peoples, people with disability, and people from culturally and linguistically diverse communities (CALD) experience health inequity and resulting disparities in disease rates. These include higher rates of obesity and associated chronic diseases. This paper brings together three perspectives by researchers in the fields of Indigenous health, disability and CALD health to examine how overweight and obesity impact these populations in Australia and to put forward ways of addressing the problem. The authors urge investment in research co-designed with people from each of these communities and with lived experience of obesity to build valuable knowledge about what preventive actions and interventions will work to reduce obesity rates. They call for evidence-based, tailored obesity prevention programs to address these historical disparities and improve health outcomes among some of Australia's disadvantaged populations.

The IDD Paradigm of Shared Citizenship: Its Operationalization, Application, Evaluation, and Shaping for the Future.

Changes in the field of intellectual and developmental disabilities (IDD) over the last 5 decades has resulted in the emergence of the shared citizenship paradigm. This paradigm is currently guiding the development of IDD-related policies and practices, and providing a framework for application, research-based inquiry, and evaluation. A shared citizenship paradigm is one that envisions, supports, and requires the engagement and full participation of people with IDD as equal, respected, valued, participatory, and contributing members of every aspect of society. The overall goals of the paradigm are to (a) further advance and focus on people with IDD as active agents in the change process, and (b) improve outcomes for people with IDD, including their access to and opportunity for shared citizenship. This article describes the paradigm's operationalization, application, evaluation, shaping for the future, and specific strategies to overcome implementation challenges.

Family-oriented practice in disability Services in Hong Kong: A cross-sectoral social work perspectives in the fields of intellectual disability and mental illness.

Supporting the families of people with disabilities has become a crucial aim of disability services. In disability services, where people with disabilities are usually positioned at the centre of service provision, family-oriented practice implies practice directions to work with clients' families in service delivery. The study aims at exploring how social workers in intellectual disability services and mental health services deliver a family-oriented practice in Hong Kong. We performed a qualitative analysis, using in-depth interview data collected from two broader studies about social workers' experiences in the fields of intellectual disability and mental illness respectively. Thirteen participants in intellectual disability settings and another 13 participants in mental health settings shared their understanding of and concern with family-oriented practice. Four themes were identified in the participants' accounts regarding the importance of family connectedness, family members' constructions of clients' identity, the scope of activities and the intervention space between individual and family. These findings reflect that family-oriented practice was jointly shaped by clients' family systems and disability service system, and shed light on the strategies for future service development at the broader systematic level.

Quality assessment, inclusive community development, and collective learning: An institutional perspective from Germany.

This article reviews the German discourse on quality of life, quality assurance, and outcome measurement in services for persons with intellectual disabilities. Following institutional assumptions of path dependencies in organizational development, it is argued that concepts such as quality assurance must be understood in the context of the national support system development. For the Federal Republic of Germany, it can be noted that previous approaches to quality assurance of services based on measurement and evaluation tools have not been the drivers of innovation for inclusion. The driving forces behind reforms in the field of disability originated from the three angles of the social service structure (people with disabilities, statutory welfare agencies, and service providers). Policies of key actors were not part of a consistent reform strategy. However, the main elements of the inclusive philosophies of the disability rights movement became hegemonial and led to national legislation that prioritizes person-centered support arrangements in inclusive settings. With regard to governance arrangements in Germany and the idiosyncrasies of local disability fields, it is suggested that there should be a conceptualization of quality assurance in a multilevel approach as “local quality dialogues for collective learning.”

Barriers to volunteering in the field of intellectual disability: a cluster analysis

This paper aims to characterise the profiles of individuals likely to feel discouraged to volunteer in the field of intellectual disability. The socio-emotional contours of intellectual disability hinder the involvement of volunteers in this field. There is evidence of the particular barriers to volunteering in activities involving intellectually disabled people, but there is a dearth of research on the characteristics of individuals that mention such barriers. A survey applied to 197 individuals allowed, through latent classes, to identify three clusters of individuals—assuming volunteering as having a negative impact; unawareness of the reality of intellectual disability; and no barriers to volunteering; and three groups of barriers to volunteering in the field of intellectual disability—characteristics of intellectually disabled people; awareness; introversion. Based on the characteristics of the clusters identified, the study addresses possible strategies to overcome the constraints, aiming at involving volunteers in activities targeting individuals with intellectual impairments and to better target the recruitment of volunteering actions in this field. The continuous understanding of barriers to donate time can allow institutions to minimise constraints and overcome hurdles by emphasising the value of experiences that meet the motivations of volunteers.

The Experiences of Public Transport Drivers with People with Disability in the City of Tshwane, South Africa

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

Integrating Traditional Bone-Setting and Orthopaedic Medicine Practices in the Management of Fractures in Nigeria: Community-Based Rehabilitation Model in Perspective

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

Content and Effectiveness of Community-Based Rehabilitation on Quality of Life in People Post Stroke: a Systematic Review with Meta-Analysis

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

A Rapid Review of the Roles of Community Rehabilitation Workers in Community-based Mental Health Services in Low- and Middle-Income Countries

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

Developing an Assessment Tool for Post-Surgical Paediatric Rehabilitative Care in Tanzania: an Interprofessional Approach

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

Power at your Fingertips to Empower Others!

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.

A Letter from DCIDJ's Editor-in-Chief

Disability, CBR and Inclusive Development aims to enhance knowledge in the field of disability and inclusive development, addressing the needs of practitioners, policy makers, DPOs and the scientific community.