Gathering Feedback Research Articles

Viewpoint on Milestones for Fellowship Training in Movement Disorders.

Viewpoint on Milestones for Fellowship Training in Movement Disorders.

Building a hybrid virtual cardiac rehabilitation program to promote health equity: Lessons learned

Building a hybrid virtual cardiac rehabilitation program to promote health equity: Lessons learned

Corner Store Owner Perspectives on a Prototype Smartphone Application for Increasing Healthy Food Availability in Low-Income Neighborhoods

ObjectivesIn Baltimore, Maryland, there are over 600 independently owned small corner stores that often serve as a main source of food for low-income residents. Gaps in the local food system have caused the cost of healthy foods—like fresh produce—and their transportation to skyrocket, making it challenging for corner store owners to stock fresh foods. Currently, there is no supply-side mechanism to improve the availability of fresh foods at corner stores. To fill this need, the Baltimore Urban food Distribution (BUD) application (app) aims to improve the food distribution network among wholesalers, local farmers, and corner store owners. The aims of this study were to: 1) build trust with corner store owners via regular store visits and engagement and 2) gather feedback on the prototype to inform app development. MethodsMore than 50 formal and informal in-depth interviews (IDIs) and in store conversations were held from March 2021 to November 2021 to gather feedback on the BUD app prototype. A small sub-set of corner store owners received a longer demonstration of the BUD app prototype and various app features. This included creating an account, placing an order and in-app messaging to facilitate collective purchasing and delivery with nearby stores. Stores were visited weekly to build rapport with the store owners and conduct informal follow-up interviews. After each round of interviews, the BUD app was iteratively updated. ResultsThe BUD app was intuitive for users, visually appealing, and positively supported the inclusion of multiple languages. Most corner store owners requested several additional features, including product images and an expansion of products beyond fresh produce, e.g., bottled water and snack food. Multiple store visits helped build trust and long-term relationships with owners, two of which are participating in a pilot-test of the full app. ConclusionsDigital tools that are responsive to the needs of corner stores while also increasing healthy food availability in low-income neighborhoods are urgently needed. Building trust and long-term relationships—as was done in this study—was imperative to building a user-friendly and useful app. The results of this study will be used in the scale-up and pilot testing of a fully functional app in 2022. Funding SourcesNHLBI, NIH, award number R34HL145368.

Discovering the relevance of the personality of the destination brand - a literature review

Brand personality is highly significant for creating brand loyalty to withstand pressure in the highly competitive environment. Due to the cosmopolitanism and affordable traveling, people have become jaded and hard to surprise, thus, cities’ authorities must create smart destination brand personalities to attract more visitors. The aim of this paper is to gather the most popular city branding tools, trends and similarities through bibliometric study and present a broad view of the researches that have been conducted regarding destination brand personality. As a methodology, it uses a qualitative analysis which was made by exploring a scientific database. A common ground for all previous research on the topic tends to be the 5 Aaker’s Brand Personality Scale dimensions (1997) or extended to the 6 dimensions scale used in the most recent studies. The limitations of the research can indicate that there are still gaps in the literature connected to this topic, and the paper includes suggestions to fill them in. Most of the studies had focused on tourists’ perspective, and do not take residents’ views into consideration. As main results, we found that, research shows that young residents should be more involved into the destination’s branding process. Also, social media platforms as a marketing tool for promoting cities and gathering feedback from locals and tourists are understudied.

Improving mealtimes for patients and staff within an eating disorder unit: the next chapter

ObjectivesMealtimes are an integral part of treatment for patients in an eating disorder inpatient unit. However, they are often distressing and anxiety provoking for both patients and staff. A consequence...

Analysis of the ALMA Cycle 8 Distributed Peer Review Process

In response to the challenges presented by high reviewer workloads in traditional panel reviews and increasing numbers of submitted proposals, ALMA implemented distributed peer review to assess the majority of proposals submitted to the Cycle 8 Main Call. In this paper, we present an analysis of this review process. Over 1000 reviewers participated in the process to review 1497 proposals, making it the largest implementation of distributed peer review to date in astronomy, and marking the first time this process has been used to award the majority of observing time at an observatory. We describe the process to assign proposals to reviewers, analyze the nearly 15,000 ranks and comments submitted by reviewers to identify any trends and systematics, and gather feedback on the process from reviewers and Principal Investigators (PIs) through surveys. Approximately 90% of the proposal assignments were aligned with the expertise of the reviewer, as measured both by the expertise keywords provided by the reviewers and the reviewers’ self-assessment of their expertise on their assigned proposals. PIs rated 73% of the individual review comments as helpful, and even though the reviewers had a broad range of experience levels, PIs rated the quality of the comments received from students and senior researchers similarly. The primary concerns raised by PIs were the quality of some reviewer comments and high dispersions in the ranks. The ranks and comments are correlated with various demographics to identify the main areas in which the review process can be improved in future cycles.

Protocol for a type 2 hybrid effectiveness-implementation study expanding, implementing and evaluating electronic health record-integrated patient-reported symptom monitoring in a multisite cancer centre

IntroductionCancer symptom monitoring and management interventions can address concerns that may otherwise go undertreated. However, such programmes and their evaluations remain largely limited to trials versus healthcare systemwide applications. We...

Detecting Mental Health Behaviors Using Mobile Interactions: Exploratory Study Focusing on Binge Eating.

BackgroundBinge eating is a subjective loss of control while eating, which leads to the consumption of large amounts of food. It can cause significant emotional distress and is often accompanied by purging behaviors (eg, meal skipping, overexercising, or vomiting).ObjectiveThe aim of this study was to explore the potential of mobile sensing to detect indicators of binge-eating episodes, with a view toward informing the design of future context-aware mobile interventions.MethodsThis study was conducted in 2 stages. The first involved the development of the DeMMI (Detecting Mental health behaviors using Mobile Interactions) app. As part of this, we conducted a consultation session to explore whether the types of sensor data we were proposing to capture were useful and appropriate, as well as to gather feedback on some specific app features relating to self-reporting. The second stage involved conducting a 6-week period of data collection with 10 participants experiencing binge eating (logging both their mood and episodes of binge eating) and 10 comparison participants (logging only mood). An optional interview was conducted after the study, which discussed their experience using the app, and 8 participants (n=3, 38% binge eating and n=5, 63% comparisons) consented.ResultsThe findings showed unique differences in the types of sensor data that were triangulated with the individuals’ episodes (with nearby Bluetooth devices, screen and app use features, mobility features, and mood scores showing relevance). Participants had a largely positive opinion about the app, its unobtrusive role, and its ease of use. Interacting with the app increased participants’ awareness of and reflection on their mood and phone usage patterns. Moreover, they expressed no privacy concerns as these were alleviated by the study information sheet.ConclusionsThis study contributes a series of recommendations for future studies wishing to scale our approach and for the design of bespoke mobile interventions to support this population.

Understanding Mental Health Needs and Gathering Feedback on Transcutaneous Auricular Vagus Nerve Stimulation as a Potential PTSD Treatment among 9/11 Responders Living with PTSD Symptoms 20 Years Later: A Qualitative Approach.

Posttraumatic stress disorder (PTSD) remains one of the most prevalent diagnoses of World Trade Center (WTC) 9/11 responders. Transcutaneous auricular vagus nerve stimulation (taVNS) is a potential treatment for PTSD, as it can downregulate activity in the brain, which is known to be related to stress responses and hyperarousal. To understand barriers and facilitators to engagement in mental health care and the feasibility and acceptability of using the taVNS device as a treatment for PTSD symptoms, a focus group was conducted among patients from the Queens WTC Health Program who had elevated symptoms of PTSD. The focus group discussion was recorded, transcribed, and analyzed. Three themes and subthemes emerged: (1) the continued prevalence of mental health difficulties and systematic challenges to accessing care; (2) positive reception toward the taVNS device as a potential treatment option, including a discussion of how to increase usability; and (3) feedback on increasing the feasibility and acceptance of the research methodology associated with testing the device in a pilot clinical trial. The findings highlight the need for additional treatment options to reduce PTSD symptoms in this population and provide key formative phase input for the pilot clinical trial of taVNS.

By-Laws and Social Relations: Shaping the Societal Behaviour

Objective - Local governments in Malaysia are regulated under the Local Government Act 1976 and each has its power to enact by-laws under their respective administration area. By-law is a formulation of the law under the jurisdiction of local government in performing its duties and functions covering the administrative area that has been identified by the state government. The objectives of this study are to review the extent and the impact of the by-laws implemented by the local government in Kelantan in influencing and shaping the behavior of the local societies and has been conducted as an empirical study. Methodology/Technique - Purposive sampling was used in selecting the targeted respondents in gathering their feedback towards the by-laws implementation and managed to get 76 respondents. Finding - The feedback gathered shows that the local communities are well exposed and giving good responses to the by-laws implementation impact. Kota Bharu Municipal Council of Islamic City (MPKB-BRI) has succeeded in becoming the pioneer in the implementation and enforcement of by-laws that emphasized the teachings of Islamic values and were followed and emulated by other local governments in Kelantan. Novelty - Besides that, the good practice also has been followed by some other local governments in other states such as Terengganu, Kedah, and Melaka. By-laws implemented by the local government in Kelantan is very much different compared to local governments in other states in Malaysia which are the provisions of the by-laws that focus on the Islamic approach which somehow do give some impact to the local communities. Type of Paper - Empirical Keywords: Local Government; By-Laws; Islamic Approach; Jurisdiction; Behavior. JEL Classification: A13, D1.

A Patient Outcomes-Driven Feedback Platform for Emergency Medicine Clinicians: Human-Centered Design and Usability Evaluation of Linking Outcomes Of Patients (LOOP).

BackgroundThe availability of patient outcomes–based feedback is limited in episodic care environments such as the emergency department. Emergency medicine (EM) clinicians set care trajectories for a majority of hospitalized patients and provide definitive care to an even larger number of those discharged into the community. EM clinicians are often unaware of the short- and long-term health outcomes of patients and how their actions may have contributed. Despite large volumes of patients and data, outcomes-driven learning that targets individual clinician experiences is meager. Integrated electronic health record (EHR) systems provide opportunity, but they do not have readily available functionality intended for outcomes-based learning.ObjectiveThis study sought to unlock insights from routinely collected EHR data through the development of an individualizable patient outcomes feedback platform for EM clinicians. Here, we describe the iterative development of this platform, Linking Outcomes Of Patients (LOOP), under a human-centered design framework, including structured feedback obtained from its use.MethodsThis multimodal study consisting of human-centered design studios, surveys (24 physicians), interviews (11 physicians), and a LOOP application usability evaluation (12 EM physicians for ≥30 minutes each) was performed between August 2019 and February 2021. The study spanned 3 phases: (1) conceptual development under a human-centered design framework, (2) LOOP technical platform development, and (3) usability evaluation comparing pre- and post-LOOP feedback gathering practices in the EHR.ResultsAn initial human-centered design studio and EM clinician surveys revealed common themes of disconnect between EM clinicians and their patients after the encounter. Fundamental postencounter outcomes of death (15/24, 63% respondents identified as useful), escalation of care (20/24, 83%), and return to ED (16/24, 67%) were determined high yield for demonstrating proof-of-concept in our LOOP application. The studio aided the design and development of LOOP, which integrated physicians throughout the design and content iteration. A final LOOP prototype enabled usability evaluation and iterative refinement prior to launch. Usability evaluation compared to status quo (ie, pre-LOOP) feedback gathering practices demonstrated a shift across all outcomes from “not easy” to “very easy” to obtain and from “not confident” to “very confident” in estimating outcomes after using LOOP. On a scale from 0 (unlikely) to 10 (most likely), the users were very likely (9.5) to recommend LOOP to a colleague.ConclusionsThis study demonstrates the potential for human-centered design of a patient outcomes–driven feedback platform for individual EM providers. We have outlined a framework for working alongside clinicians with a multidisciplined team to develop and test a tool that augments their clinical experience and enables closed-loop learning.

Design Thinking: A Review Paper

Design thinking is an analytic and creative process in which a person is encouraged to experiment, create and prototype models, gather feedback, and redesign. The literature has identified several characteristics (e.g., visualisation, creativity) that a good design thinker should have. Design and design thinking have been recognised as valuable contributions to business and management, and the number of higher education programmes teaching design thinking to business students, managers, and executives is increasing. Multiple definitions of design thinking, as well as a variety of perspectives, have led to some confusion about possible paths. Design, like problem solving, is a natural and widespread human activity. A design process begins with a need and discontent with the present situation, as well as a determination that something must be done to fix the problem. Many scientists, in this opinion, have been creating and behaving as designers throughout their careers, while not always being aware of or realising that they are doing so..

Liverpool LASER Talks: A Community “Studio-Laboratory”?

Abstract Liverpool LASER talks encourage artists, researchers and the public to question the work carried out by artists and scientists in transdisciplinary art-science spaces by recognizing shared aims, examining processes and constructing a shared language. In this paper, the authors reflect upon their first year as LASER hosts and propose that Liverpool LASER events—supported by an accessible network of leading artists and scientists—act as community “studio-laboratories,” spaces where speakers and publics engage in two-way conversations, present and gain confidence in their ideas, gather feedback on new concepts and outputs, and facilitate knowledge transfer.

Climatic disasters within a flood-prone coastal slum in Lagos: coping capacities and adaptation prospects

PurposeClimate impacts are a significant challenge in slums and informal settlements, most of which are located along the coast. This article aims to show coping strategies and flood adaptation opportunities through the case study of a coastal slum in Lagos, Nigeria.Design/methodology/approachA mixed-method approach is used in Idi-Araba settlement, Oworonshoki, Lagos – the case study area. Data collection involved semi-structured interviews with 15 purposively selected residents and a survey (sample size = 300 residents). A town hall meeting was convened to disseminate the findings and gather feedback from the community.FindingsBeing an informally developed settlement, flooding affects the poor-quality buildings – a situation made worse by absence of infrastructure and services. Coping with flooding involves structural strategies (raising building’s foundation, re-roofing, sand-filling the surrounding, etc.), failed attempt through green infrastructure, nonstructural measures through dietary pattern, dressing, etc. These measures emanate from self-help and community efforts, attesting to notable social capital in the study area. They are minimally effective and limited, which highlights adaptation gaps and opportunities.Research limitations/implicationsThis study calls for transformative adaptation, beyond the current coping and maladaptation. It argues that local strategies need to meet with innovative substantive external initiatives from the state and third sector.Originality/valueThis study considers the single case of a coastal settlement in Lagos. This focus allowed detailed examination within a representative settlement, much unlike city-wide, cross-settlement considerations in many other studies. It provides additional empirical evidence on limitations of self-help flood coping measures and adaptation prospects in the often overlooked low-income, informal urban sector.

A208 ASSESSING FEASIBILITY AND ACCEPTABILITY OF AN ONLINE MIND-BODY WELLNESS PROGRAM FOR PRIMARY BILIARY CHOLANGITIS

BackgroundPersons with primary biliary cholangitis (PBC) experience significantly higher rates of fatigue, stress, anxiety, depression, and impaired health related quality of life (HRQOL) as compared to the general population. While online wellness programming has been shown to be effective in decreasing fatigue and improving mental wellness in a variety of chronic disease populations, limited data is available for PBC.AimsThis pilot study aimed to assess the hypothesis that a 12-week, online, mind-body wellness program would be feasible (assessed through adherence and retention) and acceptable in people with PBC. We also aimed to explore indicators of impact on measures of wellbeing.MethodsPersons with PBC were recruited across Alberta and British Columbia in January 2021. The program included a 20–30 minute video containing low intensity mindful movement, meditation, and breathwork (goal 2–3 times/week) as well as a weekly behaviour change tip, PBC tip from a physician, and PBC nutrition tip. The online programming was accompanied by brief (10-minute) once weekly phone check-ins from a member of the study team, and optional once monthly zoom group sessions hosted by the Canadian PBC Society. Satisfaction and adherence were assessed at the end of the study using a survey. The pre-post exploratory efficacy assessment included: fatigue (Modified Fatigue Impact Scale), perceived stress (Perceived Stress Scale), anxiety and depression (Hospital Anxiety and Depression Scale), and HRQOL (PBC-40). Using a qualitative descriptive approach, we conducted semi-structured interviews at the end of the study to explore experiences with the intervention, and gather feedback for improvement.ResultsParticipants (N = 32) completed baseline surveys and 29 (91%) were retained to end-of-study. Twenty-five (86%) adhered to the program goal of carrying out the mind-body practice at least 2–3 days per week. Comparing baseline to end-of-study, significant reductions were observed in fatigue (13%, p=0.004), anxiety (30%, p=0.005), and depression (28%, p=0.022), and significant improvements were observed in the PBC-40 itch (22%, 0.043), fatigue (13%, 0.005), cognitive (17%, 0.006), and emotional (18%, 0.001) domains. Eleven individuals participated in qualitative interviews, reporting an increase in energy, a more positive outlook, and increased knowledge of PBC. Feedback supported acceptability (satisfaction score of 90%), with fatigue cited as the primary barrier to increased program participation.ConclusionsThese findings suggest that a 12-week online mind-body intervention is feasible and acceptable to persons with PBC and has promising impact on efficacy. Recognizing the limitations of a single-arm study with a small sample size, a future RCT will be designed using this feedback.Funding AgenciesMITACS Accelerate, Canadian PBC Society

Moving out of the silo: trialling a work-based education intervention to mobilise professional identity in integrated teams

Background/Aims Research on professional identity has largely focused on students, with limited knowledge of how professional identity is mobilised among integrated team members, especially in relation to how this might be achieved through education and training. This study aims to trial a work-based education intervention to mobilise professional identity and gather feedback on the impact on healthcare practitioners. Method This multi-method interventional study was centred around 2.5-hour workshops delivered for multidisciplinary teams, aiming to discuss and increase understandings of professional identity and its impact. Participants (n=61) completed a pre-workshop survey to gauge their views of professional identity, teamwork and cognitive flexibility. Data from observation and workshop activities were recorded, and participants completed an evaluation survey at the end of the workshop to identify areas for improvement. Results Participants generally welcomed the opportunity to discuss professional identity and the workshop was evaluated well overall. Most participants had a strong sense of professional identity. The design of the workshop needs to be reviewed to ensure that enough time is allowed for action planning. Conclusion Managers need to identify opportunities to regularly discuss professional identity and identify the support required for new members of staff joining existing, well-formed integrated teams.

Reviewing the User-Centered Design Process for a Comprehensive Gastroesophageal Reflux Disease (GERD) App.

The objective of this study was to design a user-centered mobile health (mHealth) application for individuals with gastroesophageal reflux disease (GERD) and evaluate its design features and effectiveness for use by doctors. Prior to designing, our team undertook a discovery process that involved creating personas, conducting a competitor analysis and heuristic evaluation of existing apps, along with interviews with acid reflux patients. Then, we created a low-fidelity prototype, which was revised on the basis of several rounds of user testing. During the design phase, each round of user testing included a mix of surveys, concurrent think-alouds, and interviews to gather user feedback on the prototypes. Lastly, an evaluation phase consisting of gathering feedback on the user-centered design approach from user experience experts and medical doctors specialized in GERD was conducted. Overall, the final GERD app includes important features for tracking symptoms and triggers, analytics, data export, and community information, while promoting individualization, accessibility, and usability. The documentation of the design process of this app serves as a reference point for future medical app developers as it followed an empirically supported user-centered design strategy and resulted in an app which received positive feedback from users and human factors experts. We also intend to share some of the limitations due to the constrained resources, as well as potential ways to strengthen the design process for mHealth applications.

"Acquiring the Skills Needed to Communicate What Is in Our Teams' Heart: Love, Compassion and Partnership": Qualitative Analysis of Intact Multidisciplinary Teams' Experience of Relationship-Centered Communication Training.

The Partnership Enhancement Program (PEP) is a 6-hour relationship-centered communication training for intact cystic fibrosis (CF) teams. The aim of this study was to analyze qualitative responses from survey participants regarding their takeaways from the training. A total of 210 professionals participated in 20 pilot workshops at 19 care centers in the United States from November 2018 to December 2019. After the workshop, qualitative feedback was captured by PEP facilitators during a feedback gathering session or submitted immediately in writing by participants. The manuscript team used grounded theory and qualitative methods of coding to identify recurring themes across participant responses. Thematic analysis revealed 5 primary themes and a web of interconnected subthemes. Primary themes include the acquisition of skills to improve communication, strengthened patient/provider connection, improved quality of communication, improved team building, and the ability to change and enhance practice. Participants who completed PEP training endorse acquiring communication skills that increase coproduction of care with patients and caregivers as well as improve relationships across the healthcare system.

Human-centred design of a new microneedle-based hormonal contraceptive delivery system

Background: It is estimated that 225 million women worldwide have an unmet need for family planning, and more than half live in low- and middle-income countries. Increasing the choice of contraceptive methods available can reduce this unmet need. Microneedle drug delivery systems represent a new technology for minimally invasive self-administration of contraceptives. We explored stakeholders' views on different aspects of a proposed microneedle-based hormonal contraceptive delivery system. The feedback was used to iteratively develop this delivery system. Methods: Focus group discussions and semi-structured interviews were conducted with potential stakeholders (women and trans males of childbearing age, their partners, and health professionals and organisations that provide family planning advice and contraception services) in Uganda, The Gambia, Malawi, and the UK, exploring concept acceptability and gathering feedback on different aspects of design and usability of the proposed delivery system. Results: Participants viewed the concept of a new, microneedle-based contraceptive favourably. In Uganda, participants were presented with 7 different prototype applicators and identified desirable features of a preferred delivery device; their input reducing the number of prototypes that were subsequently evaluated by stakeholders in The Gambia and the UK. Participants in these countries helped to identify and/or confirm the most desirable characteristics of the applicator, resulting in design consolidation into a refined concept applicator. The final, optimised applicator prototype was validated during user research in Malawi. This human-centred design approach was also used to iteratively develop an information leaflet for the device. During these user studies, other preferred aspects of a contraceptive delivery system were also evaluated, such as anatomical site of application, duration of action, and return to fertility. Conclusions: A new microneedle-based contraceptive delivery system was iteratively developed using a human-centred design approach and was favourably received by potential stakeholders. The product is now being refined for testing in pre-clinical studies.

Study participant self‐installed deployment of a home‐based digital assessment platform for dementia research

AbstractBackgroundThe Oregon Center for Aging & Technology (ORCATECH) has developed, refined, and deployed to hundreds of diverse older adults a home‐based research platform for providing assessment of cognition and multiple domains of function. The pandemic has brought to the forefront the necessity of this type of remotely conducted research. Even absent a pandemic, there are millions of people who are shut‐out of participating in research because of limitations of mobility, distance, and study partner support. Hence, work is being done to make the ORCATECH platform fully self‐installable by research participants in their homes using Self‐installation Instruction Modules (SIMs) which consist of video tutorials, images, and step‐by‐step instructions.MethodWe developed and sent seven older adults residing in seven separate residences a web‐link to the SIMs. The participants were enrolled in the Aging Well Study which utilizes the ORCATECH platform’s hub computer and electronic pillbox to remotely assess cognition and function. Time to complete installation was captured within the SIMs interface. Labeled and activated technologies were sent to participants’ homes prior to the link being distributed. A survey was sent to participants after the completion of installation for the purpose of gathering feedback about the SIMs experience.ResultThe seven participants include two married and five single person homes (age 73.9(SD=7.1) years, education 17(SD=3) years, 5 women, 5 mild cognitive impairment (MCI)(Clinical Dementia Rating=0.5)). All participants successfully installed their technologies using the SIMs. The SIMS were viewed on four different device types (tablet, smart phone, laptop, desktop). Mean time to install both technologies was 20.0(SD=13.7) minutes for those with MCI; 23.7(SD=10.9) minutes for healthy controls. Participants reported the SIMs was easy to read, hear, and navigate.ConclusionResults suggest that it is feasible for older adults of varying ages and cognitive function to install technologies for the purpose of remote data collection without any study personnel being physically present in the home. Further studies are necessary to better understand the impacts of diverse residence and resident characteristics (e.g., home layout, technical proficiency, physical abilities) on a volunteer’s ability to self‐install the technology.