Understanding Of Family Research Articles

Requesting Relatives' Consent for Intensive Care for Organ Donation: An Empirical Analysis of Spanish Transplant Coordinators' Practices.

Intensive care to facilitate organ donation (ICOD) involves the initiation or continuation of intensive care for patients with devastating brain injury for donation purposes. In the Spanish system, relatives undergo an early interview to request consent for this procedure. If they consent, a waiting time is agreed upon in the expectation that death by neurological criteria occurs and donation after brain death takes place. Otherwise, relatives can decide on donation after circulatory determination of death or withdrawal of life support. This study analyzes how Spanish transplant coordinators interact with relatives in early interviews and follow-ups on potential donation pathways. Semistructured interviews were conducted with a random stratified sample of 23 Spanish transplant coordination teams to explore strategies, practices, and perceptions of ICOD consent requests. The interviews were recorded, transcribed, and analyzed using content analysis. Previous coordination with other units and information retrieval regarding patient and relatives' situations is crucial. The development of early interviews includes an introduction to the family, identification of decision makers, empathizing with relatives and offering condolences, reaffirming the fatal prognosis, explaining the possibility of donating based on the patient's will, confirming the family's understanding and resolving doubts, and ensuring comfort and assessing family needs. Approaching families to obtain ICOD consent is a regular practice for Spanish coordination teams. It involves a highly professional and diversified set of strategies based on establishing a support relationship for relatives. Our study provides strategies that serve as a reference for obtaining ICOD consent from families in other settings.

Family-Based Early Intervention to Improve Motor Development of Child with Cerebral Palsy

This research is motivated by the lack of understanding of families, especially parents, on child development, in this study the development that will be discussed is motor development in children with cerebral palsy who have quite complex developmental delays. The purpose of this study is to increase the family's understanding of the development of children according to their age which is expected by parents to be able to intervene independently, therefore an early intervention program with family resources is needed for children with cerebral palsy. The method used in this study is a descriptive method with a qualitative approach using observation and interviews to explore data and objective conditions of the family.

The Lived Experience of Postpartum Intergenerational Conflict of Vietnamese American Women with their Vietnamese Immigrant Parents: It's A Generational Thing!

US-born Vietnamese women who are in their childbearing years are more likely to identify with "western" perspectives when compared to their immigrant mothers who were born in Vietnam. Still, a gap in knowledge exists of their intergenerational differences. The purpose of this study was to explore and better understand Vietnamese American women's experiences of postpartum intergenerational conflict. van Manen's methodological approach (1997) was used. The purposive sample included 11 US-born Vietnamese women who experienced postpartum intergenerational conflict with their parents. Data were transcribed verbatim and analyzed using thematic analysis. The researcher transcended the themes through music. Songs and lyrics were arranged for guitar to bring the phenomenon to life. Four themes were identified: (1) "It's a Generational Thing!" (Một điều thế hệ): Leaning both ways; (2) "To rebel or not" (Nổi loạn hay không): Weighing the evidence of postpartum cultural practices; (3) "Stand My Ground" (Giữ vững lập trường của tôi): Keeping my newborn safe and healthy; and (4) "See Me" (Nhìn con): My mental health overshadowed by my mother's thoughts. This study revealed that the intergenerational conflict was influenced by the family's understanding over the division of infant care tasks, disagreements over cultural practices, and generational differences such as age, consistent with previous research. Tailored interventions for Vietnamese American women should consider the family as a whole. Nurses can assess proactively in prenatal care if there are cultural issues such as family hierarchy, gender, and history influencing one's choices or maternal autonomy.

Bereavement Care Team: Improving ICU Nurses' Professional Bereavement and Patient Family Experience.

When nurses care for dying patients, their compassion fatigue may increase and lead to burnout and feelings of professional bereavement. However, if a nurse perceives that the patient had a "good death," it may have a positive impact on them and reduce their emotional distress. The purpose of this project is to reduce nurses' feelings of professional bereavement by implementing a Bereavement Care Team (BCT) in the intensive care unit (ICU). This study is a pre-post quasi-experimental design. The Chen and Chow bereavement subscales Factor 1 and Factor 2 measured elements of a nurse's professional bereavement, and 5 items were statistically significant. Nurses felt a reduction in their exhaustion, frustration, and feeling fatigue in their job, reduced feelings about being nervous and worried about potential professional/patient conflicts, and nurses were moved by the patient's family's understanding of the patient's death. Implementing a BCT in the ICU provided an environment that created a "good death" for the patient and their loved ones. These findings supported the need for the BCT as they demonstrated an improvement in the ICU nurses' feelings of professional bereavement.

A qualitative exploration of the role of a palliative care pharmacist providing home-based care in the rural setting, from the perspective of health care professionals.

Pharmacists are often not recognised as a core part of palliative care teams, despite their ideal placement to assist with the burden of medication management. This study explored the role of pharmacists working in the rural palliative care team, in the home-based setting. Health care professionals working with palliative care patients in rural South Australia participated in semi-structured interviews. Data were analysed using thematic analysis. Data from 20 participants identified 10 themes. Theme 1: This model of care gives patients a choice. Theme 2: The pharmacist is a trusted source of support and information. Theme 3: Patient, carer and family distress is reduced. Theme 4: Enables patients to stay at home by improving medication knowledge and decreasing burden; 4.1-Patient, carer and family's understanding about medication management is improved, 4.2-Patient, carer and family travel is decreased, 4.3-Burden associated with getting to the doctor is decreased. Theme 5: Communication between all parties is enhanced; 5.1-Enhanced communication between the patient and health care team, 5.2-Enhanced communication within the health care team. Theme 6: Patient, carer and family burden of coordinating prescriptions and medications is reduced. Theme 7: Benefits health care professionals by improving medication knowledge, reducing workload and stress; 7.1-Understanding about medications and their management is improved, 7.2-Workload is reduced, 7.3-Work-related stress is reduced. Theme 8: The disparity of care between rural and urban patients is reduced. Theme 9: Helps to address rural workforce shortages. Theme 10: Challenges of this model of care; 10.1-A need for greater pharmacist capacity to meet demand, 10.2-A need for increased and sustained funding for the pharmacist role, 10.3-Large amount of travel to get to patients. Rural health care professionals are supportive of pharmacists working as part of the palliative care team in home-based settings and identified many benefits of this model of care.

Short-term professional bereavement reactions and their links with the meaning of patient death: Evidence from network analyses.

Taking a dimensional view, this study aims to understand, among professional caregivers after patient deaths, the symptom distribution and development of the short-term bereavement reaction (SBR) network and the node-level links between the meaning of patient death (MPD) and the SBR network. A cross-sectional secondary analysis was conducted with existing data from 220 Chinese urban hospital nurses and physicians who experienced the most recent patient death within a month. MPD was measured by the 10 formative items of the meaning of patient death model, and SBR was measured by the Short-term Bereavement Reactions Subscale of the Professional Bereavement Scale. Both Gaussian graphical network analysis and Bayesian network analysis were applied to the SBR network, and Gaussian graphical network analysis was used to estimate the MPD-SBR network. Frustrated and guilty are central nodes in the regularized partial correlation SBR network. Meanwhile, a traumatic event and failure at work are important bridge nodes between the MPD network and the SBR network. In the Bayesian SBR network, moved by the family's understanding, moved by the family's gratitude and sad mainly drive other nodes. After a patient death, nurses' and physicians' SBR networks feature professional-dimension symptoms at their core, while they follow 'personal to professional' and 'concrete to abstract' symptom development patterns. The personal meaning of a traumatic event and the professional meaning of a failure at work play key roles in bridging the MPD and SBR networks, and meanings of both the personal and the professional dimensions can link to professional-dimension reactions. The manuscript followed the STROBE checklist for reporting cross-sectional studies. No patient or public contribution.

Application of Range of Motion in Stroke Patients with Impaired Physical Mobility

Stroke is one of the serious diseases and can cause impaired physical mobility in patients. This impaired physical mobility can negatively impact the patient's daily life, including the ability to walk, stand, or perform other physical activities. The study aims to find out how the application of a range of motion in stroke patients with impaired physical mobility. Descriptive qualitative research design with a case study approach. The results of the application of passive ROM techniques carried out on non-hemorrhagic stroke patients with weaknesses in extremities are effective and ineffective, this is because the first patient and family are very enthusiastic and eager to move independently while the second patient and family lack motivation and surrender to the disease. It can be concluded that the response of the two patients is different due to the psychological factors of the patient and the family's understanding of the range of motion exercise given

Family-Based Early Intervention to Improve Motor Development of Child with Cerebral Palsy

This research is motivated by the lack of understanding of families, especially parents, on child development, in this study the development that will be discussed is motor development in children with cerebral palsy who have quite complex developmental delays. The purpose of this study is to increase the family's understanding of the development of children according to their age which is expected by parents to be able to intervene independently, therefore an early intervention program with family resources is needed for children with cerebral palsy. The method used in this study is a descriptive method with a qualitative approach using observation and interviews to explore data and objective conditions of the family.

Analisis Manajemen Keuangan Rumah Tangga Keluarga Nelayan Di Kota Pariaman

Knowledge of financial and budget management is not only an activity that is only carried out in industrial companies, trade or the like, but has made it mandatory for all households to be able to do it, because it needs to be realized that a household in which there is a husband, wife and children is a small company unit. The purpose of this study was to determine the understanding of family household management, to determine the application of management to budgeting, to find out the obstacles in the application of family financial management and to see whether there is an influence of internalization on the financial management of fishermen's families in Pariaman City, whose income depends on the catch produced. influenced by natural conditions, especially wind, waves, and ocean currents. This form of research uses descriptive research with a qualitative approach. Research using descriptive method is research that is directed to provide accurate and systematic symptoms, facts or events regarding the characteristics of a particular population and area. The results showed that the family's understanding of management was very simple. There is no management application to family budgeting. The obstacles that occur are uncertain income and low education knowledge. There is no influence of internalization on family financial management.

What parents want: A qualitative analysis of a parent-implemented intervention for autistic children.

Guidelines regarding social cognitive interventions for autistic children suggest incorporating a holistic approach. This includes increasing the family's understanding of difficulties associated with autism, integrations of natural environments, and parents as active agents in the intervention while being supported for their well-being. The current availability of holistic parent-implemented interventions for autistic children is limited, with no qualitative understanding of how parents view the benefits for themselves or their children. The current study expands the literature regarding holistic approaches through a qualitative understanding of parent perceptions of a parent-implemented social communication intervention for autistic children (TalkAbility™), which incorporates a 6-month follow-up. This study sought to gain a deeper understanding from parents on their perceptions of a holistic approach, including the impact on themselves, their families, and their autistic child. Following Braun and Clarke's model of thematic analysis, data was coded into four themes: (a) communication difficulties, frustrations, and progress, (b) social relationships and concerns, (c) communication strategies, and (d) thoughts and emotions surrounding TalkAbility™. Parents report that many components of a holistic approach are instrumental in encouraging social communication in their autistic child. Results highlight the importance of considering parent experiences regarding interventions for their child's social communication skills through a qualitative viewpoint. Knowing the intervention aspects that parents view as most valuable allows targeted program modifications that reflect actual parent needs. Further understanding regarding the influence of holistic parent-implemented social communication interventions on child communication skills, parenting frustrations, and parent-child relationships is needed.

Exploring Family Understanding of Schizophrenia: A Qualitative Study Among Rural Families in East Java, Indonesia

Introduction: Families who care for schizophrenia patients will experience various challenges, which are influenced by the family's knowledge and understanding of schizophrenia. This study aims to explore the family's understanding of schizophrenia in their families in rural families in Indonesia in 2020.Methods: This study uses a qualitative research design with a phenomenological approach, which was conducted in East Java Provincial Health Office from July to October 2020. The study participants were five family members who cared for a schizophrenia patient at home. Researchers conducted semi-structured in-depth interviews with participants and analyzed using interpretative phenomenological analysis.Results: Based on the thematic analysis, three main themes were found, including 1) Family doesn't understand schizophrenia; 2) Family ignorance about how to care for the patient; and 3) Schizophrenia patients are considered a burden.Conclusions: The family's ignorance about schizophrenia risks causes their inaccuracy in treating patients. Nurses need to provide education about basic knowledge about schizophrenia and its treatment so that they can provide optimal care and be able to manage the burden they experience.

Optimizing family's understanding and attitude about malnutrition and antropometry measurement based on family centered nursing

This programmatic community service activity for families with toddlers was conducted out in Sungai Tuan Ilir Village, Astambul District, Banjar Regency. In order to avoid cases of malnutrition in the family and community, increased understanding of malnutrition and anthropometric measurements must be optimized. Socialization in the form of group and individual health counseling in the family environment with a family centered nursing approach about malnutrition and anthropometric measurements, training on anthropometric measurements, and the application of growth curve measurements are among the activities carried out in community service. Community service can help families comprehend and adjust their views, especially when it comes to preventing malnutrition while doing family tasks and functions.

Paediatric asthma education: Implementation of video-based education for families.

To understand the impact of an asthma education video resource introduced to the short stay unit (SSU) of a tertiary paediatric hospital on: (i) parental understanding of and confidence in managing their child's asthma; (ii) the impact of this resource on nurse-led education practices; and (iii) readmission rates. A mixed methods study was conducted in the SSU over an 18-month period using quantitative survey data from parents and nursing staff and qualitative data from nursing staff focus groups. Of 117 parents surveyed, 94% reported an increase in their understanding of asthma. Following the introduction of the resource, there were fewer nurse-led education sessions delivered (1.91 vs. 1.54, P=0.04) and a trend towards reduction in time spent delivering this education (27.24 vs. 24.98 min, P=0.47). Nursing staff confidence in the family's understanding of asthma education was similar pre- and post-implementation (4.22 vs. 4.30, P=0.97). Readmission rates dropped by 25% (readmissions within 1month) and by 33.3% (readmission within a week) in the post-intervention cohort. Our asthma education video resource was demonstrated to be an acceptable and effective way of delivering asthma education to families. It created efficiency and consistency for nursing education and practice in our SSU. This resource was viewed by nursing staff as a useful adjunct to their education, enabling consistent messaging and helping structure education delivery. It has been incorporated into hospital systems and national resources which we hope will translate to a reduction in burden of asthma across the community.

RASIONALITAS KONSUMSI DI MASA PANDEMI PERSPEKTIF ISLAM

Income in a family determines consumption or expenditure in meeting primary, secondary and tertiary needs. Good Muslim consumption is consumption that has the purpose of the world and the hereafter which is aligned with the income received. The Changes of regional conditions in the form of disasters have an impact on the value of income and consumption priorities for families. The imposition of restrictions on economic activities as well as face-to-face activities echoed by the government has the effect of changing the economic order of the community. Families who are affected by the pandemic are experiencing economic and mental impacts. Such conditions require individuals to behave rationally in their economic activities and be adjusted to Islamic religious guidelines. So that it will form the soul / personality of a pious Muslim. This article uses a descriptive qualitative method. Informants come from communities which are affected by COVID 19 who are in the Education area such as kindergarten, elementary, junior high, high school, and college in Rejomulyo Village. The process of collecting data is done by means of interviews, documentation and observation. Data analysis was done by data triangulation. The results of the study illustrate that rationality in economic activities and the application of Islam includes: changing household consumption during the pandemic along with changes in the income of the head of the family. In addition, the family's understanding of the pandemic is based on the belief that Allah SWT gives a test in the direction of increasing piety. Keywords: Pandemic, The rationality of Islamic consumption, Family

RASIONALITAS KONSUMSI DI MASA PANDEMI PERSPEKTIF ISLAM

Income in a family determines consumption or expenditure in meeting primary, secondary and tertiary needs. Good Muslim consumption is consumption that has the purpose of the world and the hereafter which is aligned with the income received. The Changes of regional conditions in the form of disasters have an impact on the value of income and consumption priorities for families. The imposition of restrictions on economic activities as well as face-to-face activities echoed by the government has the effect of changing the economic order of the community. Families who are affected by the pandemic are experiencing economic and mental impacts. Such conditions require individuals to behave rationally in their economic activities and be adjusted to Islamic religious guidelines. So that it will form the soul / personality of a pious Muslim. This article uses a descriptive qualitative method. Informants come from communities which are affected by COVID 19 who are in the Education area such as kindergarten, elementary, junior high, high school, and college in Rejomulyo Village. The process of collecting data is done by means of interviews, documentation and observation. Data analysis was done by data triangulation. The results of the study illustrate that rationality in economic activities and the application of Islam includes: changing household consumption during the pandemic along with changes in the income of the head of the family. In addition, the family's understanding of the pandemic is based on the belief that Allah SWT gives a test in the direction of increasing piety.

Percepções de adolescentes a respeito do impacto da gravidez em suas relações sociais

Most pregnant teenagers, even wanting their pregnancy and being insured by public policies, face difficulties in their relationships with their family and partner, tending to suffer from the disruption of their lives. Thus, this work aims to understand the perceptions of primiparous teenagers about the impact of pregnancy on their social relationships. This is a qualitative study based on the theoretical framework of Morin's Complex Thinking. The study was carried out with 17 primiparous adolescents followed up at the Adolescent Prenatal Outpatient Clinic of the School Health Center in Santo André, State of São Paulo, Brazil. Data were collected through the Interview Technique and processed through Content Analysis. As a result, three categories were obtained - the partner's reaction to the pregnancy, the family's understanding of pregnancy, and the change in their social network after pregnancy. Many teenagers relate pregnancy to the idealization of becoming an adult and respected for the fact of becoming a mother. Partners do not always have this dream of being a father and keeping a family. The family, on the other hand, remains the first choice in the support of teenage couples, but some pregnant women did not demonstrate enough freedom to dialogue with their family members. It is noticed that teenage pregnancy generates social changes, especially with regards to school dropouts and social withdrawal. Thus, it is noted that teenage pregnancy generates difficult biopsychosocial transformations, such as dropping out of school and moving away from their social circle, demonstrating a suffering on the part of the teenagers.

CHD4 slides nucleosomes by decoupling entry- and exit-side DNA translocation

Chromatin remodellers hydrolyse ATP to move nucleosomal DNA against histone octamers. The mechanism, however, is only partially resolved, and it is unclear if it is conserved among the four remodeller families. Here we use single-molecule assays to examine the mechanism of action of CHD4, which is part of the least well understood family. We demonstrate that the binding energy for CHD4-nucleosome complex formation—even in the absence of nucleotide—triggers significant conformational changes in DNA at the entry side, effectively priming the system for remodelling. During remodelling, flanking DNA enters the nucleosome in a continuous, gradual manner but exits in concerted 4–6 base-pair steps. This decoupling of entry- and exit-side translocation suggests that ATP-driven movement of entry-side DNA builds up strain inside the nucleosome that is subsequently released at the exit side by DNA expulsion. Based on our work and previous studies, we propose a mechanism for nucleosome sliding.

Quality of Life in Schizophrenia: What is Important for Persons with Schizophrenia in India?

Background:Quality of life (QOL) is a multidimensional construct and is increasingly recognized as an important outcome measure. Schizophrenia runs a chronic course and is a disabling mental disorder. Assessment of QOL using currently available scales for schizophrenia may not be culturally relevant.Methods:In phase one, patients with schizophrenia using psychiatric rehabilitation services, caregivers, and mental health professionals were interviewed qualitatively to identify factors that are important for QOL of patients. In phase two, 40 patients with schizophrenia were recruited consecutively from the outpatient department and asked to rate the importance/relevance of the above items for QOL on a Likert scale.Results:Themes that emerged were work, family's understanding about illness, stigma, financial issues, social life, social standing, religion and spirituality, medications, physical health, mental health and symptoms, recreation and leisure, and independent living. Work and family's understanding of illness were considered as moderately or very important by all patients in phase two.Conclusions:Work is very important for all patients with schizophrenia for their QOL. The themes derived from this study could guide the development of a scale for QOL that is relevant to the Indian context.

Information needs and information seeking behaviors of patients and families in acute healthcare settings: a scoping review

The objective of this scoping review was to explore the information needs and information seeking behaviors of patients and families from healthcare providers in acute healthcare settings in existing literature. A well-informed family can be crucial to a patient's capacity to cope with their diagnosis and hospital care during acute or chronic illness. Information is therefore critical to both the patient's and family's understanding of the illness and healthcare process. Providing appropriate and timely information can empower patients and families with knowledge and alleviate the anxiety and stress associated with a hospital admission. However, acutely ill patients and families in different acute care settings have considerable and differing information needs. This scoping review included studies undertaken in acute healthcare facilities where patients were over 18 years of age and family members were of any sex, culture and ethnicity. Family was defined as anyone connected to the patient by blood, marriage or other significant relationship. Healthcare provider perspectives of family and patient information needs were excluded. Concepts related to type of information, timing of information, preferences for who delivers the information and method of information delivery. Qualitative and quantitative study designs published from 2010 to 2017 in English were included. Multiple databases were searched to find published and unpublished studies. A three-step search strategy was utilized. A charting table was developed for the data extraction process to record data relating to the review objectives. Specific data extracted included details on research design, geographical location, year of publication, characteristics of study population, research aims and outcomes as well as key findings related to patient and family information needs. The scoping review included 109 studies from across 34 countries. Of these studies, 68 used quantitative research designs, 29 were qualitative in nature and 12 included studies reported using mixed methods. One study used an action research methodology. Nine studies were specific to family information needs. A majority of studies were conducted in the cancer care context, with other acute settings comprising intensive care units, surgical settings and individual medical or surgical units/wards within and across the hospital. While most of the included studies addressed the type of content patients and/or families prefer, a few studies explored the timing of information provision. The international literature on information needs of patient and families comprises multiple published studies on differing aspects of the topic and situated within various acute care contexts. Despite the broad nature of the research, studies suggest that preferences regarding information content, timing of information delivery and choices regarding who delivers information vary across contexts and according to the patient/family member. The complexity behind this variation and strategies to address tailoring information delivery requires further in-depth research.

A Descriptive Study of Decision-Making Conversations during Pediatric Intensive Care Unit Family Conferences.

Little is known about how decision-making conversations occur during pediatric intensive care unit (PICU) family conferences (FCs). Describe the decision-making process and implementation of shared decision making (SDM) during PICU FCs. Observational study. University-based tertiary care PICU, including 31 parents and 94 PICU healthcare professionals involved in FCs. We recorded, transcribed, and analyzed 14 PICU FCs involving decision-making discussions. We used a modified grounded theory and content analysis approach to explore the use of traditionally described stages of decision making (DM) (information exchange, deliberation, and determining a plan). We also identified the presence or absence of predefined SDM elements. DM involved the following modified stages: information exchange; information-oriented deliberation; plan-oriented deliberation; and determining a plan. Conversations progressed through stages in a nonlinear manner. For the main decision discussed, all conferences included a presentation of the clinical issues, treatment alternatives, and uncertainty. A minority of FCs included assessing the family's understanding (21%), assessing the family's need for input from others (28%), exploring the family's desired decision-making role (35%), and eliciting the family's opinion (42%). In the FCs studied, we found that DM is a nonlinear process. We also found that several SDM elements that could provide information about parents' perspectives and needs did not always occur, identifying areas for process improvement.