Family Involvement Research Articles

Facilitators and barriers to self-management in Iranian men with chronic obstructive pulmonary disease: a qualitative study

IntroductionSelf-management, as the most common method of chronic obstructive pulmonary disease (COPD) management, is not an isolated behaviour, but a set of physical, social, cultural, psychological and existential factors affecting...

Family Involvement in the Care of Hospitalized Older Adults: Protocol for a Qualitative Evidence Synthesis.

Older adults are frequently hospitalized. Family involvement during these hospitalizations is incompletely characterized in the literature. This study aimed to better understand how families are involved in the care of hospitalized older adults and develop a conceptual model describing the phenomenon of family involvement in the care of hospitalized older adults. We describe the protocol of a qualitative evidence synthesis (QES), a systematic review of qualitative studies. We chose to focus on qualitative studies given the complexity and multifaceted nature of family involvement in care, a type of topic best understood through qualitative inquiry. The protocol describes our process of developing a research question and eligibility criteria for inclusion in our QES based on the SPIDER (Sample, Phenomenon of Interest, Design, Evaluation, and Research type) tool. It describes the development of our search strategy, which was used to search MEDLINE (via Ovid), Embase (via Elsevier), PsycINFO (via Ovid), and CINAHL Complete (via EBSCO). Title and abstract screening and full-text screening will occur sequentially. Purposive sampling may be used depending on the volume of studies identified as eligible for inclusion during our screening process. Descriptive data regarding included individual studies will be extracted and summarized in tables. The results from included studies will be synthesized using qualitative methods and used to develop a conceptual model. The conceptual model will be presented to community members via engagement panels for further refinement. As of September 2023, we have assembled a multidisciplinary team including physicians, nurses, health services researchers, a librarian, a social worker, and a health economist. We have finalized our search strategy and executed the search, yielding 8862 total citations. We are currently screening titles and abstracts and anticipate that full-text screening, data extraction, quality appraisal, and synthesis will be completed by summer of 2024. Conceptual model development will then take place with community engagement panels. We anticipate submitting our manuscript for publication in the fall of 2024. This paper describes the protocol for a QES of family involvement in the care of hospitalized older adults. We will use identified themes to create a conceptual model to inform further intervention development and policy change. PROSPERO 465617; https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42023465617. PRR1-10.2196/53255.

Barriers to inclusion and equity: a mother-son critical reflection and lessons learned

This study is an exploration of DisCrit Mothering, of education, research, and activism, rooted in our radical love for our children facing barriers and injustices due to intersectional oppressions in schools. We employ critical duoethnography to discuss and analyze our experiences, understandings, and lessons learned in our mother-son educational journey through counter-storytelling of four pivotal events to counter implicit bias and majoritarian narratives. We identify patterns of racism, ableism, and exclusion in our stories and share our lessons learned. We identify the need for a better understanding of dis/ability, timely identification, a rejection of deficit-focused approaches, and student and family involvement in IEPs. We make ourselves vulnerable to share our stories, using our lessons learned to urge educators to question their perceptions of multiply-marginalized students and to focus on care and equity versus discipline.

A commentary on the article "Family caregiver outcomes after participating in a hospital-based family involvement program after major gastrointestinal surgery: a subgroup analysis of a patient preferred cohort study".

A commentary on the article "Family caregiver outcomes after participating in a hospital-based family involvement program after major gastrointestinal surgery: a subgroup analysis of a patient preferred cohort study".

Identification and characterization of the CRK gene family in the wheat genome and analysis of their expression profile in response to high temperature-induced male sterility.

Cysteine-rich receptor-like kinases (CRKs) play many important roles during plant development, including defense responses under both biotic and abiotic stress, reactive oxygen species (ROS) homeostasis, callose deposition and programmed cell death (PCD). However, there are few studies on the involvement of the CRK family in male sterility due to heat stress in wheat (Triticum aestivum L.). In this study, a genome-wide characterization of the CRK family was performed to investigate the structural and functional attributes of the wheat CRKs in anther sterility caused by heat stress. A total of 95 CRK genes were unevenly distributed on 18 chromosomes, with the most genes distributed on chromosome 2B. Paralogous homologous genes with Ka/Ks ratios less than 1 may have undergone strong purifying selection during evolution and are more functionally conserved. The collinearity analysis results of CRK genes showed that wheat and Arabidopsis (A. thaliana), foxtail millet, Brachypodium distachyon (B. distachyon), and rice have three, 12, 15, and 11 pairs of orthologous genes, respectively. In addition, the results of the network interactions of genes and miRNAs showed that five miRNAs were in the hub of the interactions map, namely tae-miR9657b-5p, tae-miR9780, tae-miR9676-5p, tae-miR164, and tae-miR531. Furthermore, qRT-PCR validation of the six TaCRK genes showed that they play key roles in the development of the mononuclear stage anthers, as all six genes were expressed at highly significant levels in heat-stressed male sterile mononuclear stage anthers compared to normal anthers. We hypothesized that the TaCRK gene is significant in the process of high-temperature-induced sterility in wheat based on the combination of anther phenotypes, paraffin sections, and qRT-PCR data. These results improve our understanding of their relationship.

” I have not been doing it because of my fear of something happening”. Exploring Perspectives on Healthy Dietary Behavior and Physical Activity in Mexican Pregnant Women and Healthcare Professionals – A Qualitative Study

Background: Mexico exhibits one of the highest prevalences of overweight and obesity globally, accompanied by a surge in non-communicable diseases, which in turn leads to elevated mortality rates. Existing efforts to address rising obesity rates have shown limited effectiveness. Maternal weight, diet, and physical activity during pregnancy affect the mother's and offspring's health. Despite the importance of obtaining and engaging in healthy behaviors during pregnancy, little is known about which factors impact these behaviors among pregnant women in Mexico. Aim: This study explored perspectives on factors impacting healthy dietary behaviors and physical activity in pregnancy from pregnant women and healthcare professionals in Mexico. Methods: We conducted semi-structured interviews with 11 pregnant women and 12 healthcare professionals working in prenatal care. Data were analyzed using qualitative content analysis in a stepwise inductive approach. Results: Three overall themes emerged; classifying factors at the 1) individual, 2) relational, and 3) healthcare system levels. At the individual level, challenges with lack of time and competing priorities, as well as knowledge of healthy dietary behaviors and physical activity were identified. On the relational level, influencing factors encompassed financial, social, and emotional support, along with descriptive norms. At the healthcare system level, guidelines for physical activity during pregnancy and the quality of care were discerned. Conclusion: The study identified factors impacting healthy dietary behaviors and physical activity in pregnancy in Mexico. Important considerations for future interventions include addressing socio-cultural norms around healthy dietary behavior and physical activity in pregnancy and involvement of the pregnant women's families, closest social networks, and the healthcare professionals working at the prenatal care unit.

Does Assisted Living Provide Assistance And Promote Living?

Assisted living has promised assistance and quality of living to older adults for more than eighty years. It is the largest residential provider of long-term care in the United States, serving more than 918,000 older adults as of 2018. As assisted living has evolved, the needs of residents have become more challenging; staffing shortages have worsened; regulations have become complex; the need for consumer support, education, and advocacy has grown; and financing and accessibility have become insufficient. Together, these factors have limited the extent to which today's assisted living adequately provides assistance and promotes living, with negative consequences for aging in place and well-being. This Commentary provides recommendations in four areas to help assisted living meet its promise: workforce; regulations and government; consumer needs and roles; and financing and accessibility. Policies that may be helpful include those that would increase staffing and boost wages and training; establish staffing standards with appropriate skill mix; promulgate state regulations that enable greater use of third-party services; encourage uniform data reporting; provide funds supporting family involvement; make community disclosure statements more accessible; and offer owners and operators incentives to facilitate access for consumers with fewer resources. Attention to these and other recommendations may help assisted living live up to its name.

The effect of family-centered care on unplanned emergency room visits, hospital readmissions and intensive care admissions after surgery: a root cause analysis from a prospective multicenter study in the Netherlands

BackgroundOptimizing transitional care by practicing family-centered care might reduce unplanned events for patients who undergo major abdominal cancer surgery. However, it remains unknown whether involving family caregivers in patients’ healthcare also has negative consequences for patient safety. This study assessed the safety of family involvement in patients’ healthcare by examining the cause of unplanned events in patients who participated in a family involvement program (FIP) after major abdominal cancer surgery.MethodsThis is a secondary analysis focusing on the intervention group of a prospective cohort study conducted in the Netherlands. Data were collected from April 2019 to May 2022. Participants in the intervention group were patients who engaged in a FIP. Unplanned events were analyzed, and root causes were identified using the medical version of a prevention- and recovery-information system for monitoring and analysis (PRISMA) that analyses unintended events in healthcare. Unplanned events were compared between patients who received care from family caregivers and patients who received professional at-home care after discharge. A Mann-Whitney U test was used to analyze data.ResultsOf the 152 FIP participants, 68 experienced an unplanned event and were included. 112 unplanned events occurred with 145 root causes since some unplanned events had several root causes. Most root causes of unplanned events were patient-related factors (n = 109, 75%), such as patient characteristics and disease-related factors. No root causes due to inadequate healthcare from the family caregiver were identified. Unplanned events did not differ statistically (interquartile range 1–2) (p = 0.35) between patients who received care from trained family caregivers and those who received professional at-home care after discharge.ConclusionBased on the insights from the root-cause analysis in this prospective multicenter study, it appears that unplanned emergency room visits and hospital readmissions are not related to the active involvement of family caregivers in surgical follow-up care. Moreover, surgical follow-up care by trained family caregivers during hospitalization was not associated with increased rates of unplanned adverse events. Hence, the concept of active family involvement by proficiently trained family caregivers in postoperative care appears safe and feasible for patients undergoing major abdominal surgery.

Cash holdings decision‐making in Spanish family firms: Exploring the impact of heterogeneity

AbstractCash holding decision‐making is one of the main corporate challenges for family firms (FFs), with significant consequences for their growth and survival. It is closely connected to key financial decisions such as financing, investments, and dividends. The motivations behind adjusting cash holdings vary, encompassing precautionary, risk avoidance, opportunity cost considerations, and the spending hypothesis. In our study, we aim to integrate specific motivations for cash holding decisions that stem from the influence of family dynamics within these businesses since FFs have unique characteristics, which affect their financial choices. Therefore, we analyze the impact of family involvement in management and the generational stage of FFs on their level of cash holdings. The results of the partial least squares–structural equation modeling, which was estimated on a sample of 7269 unlisted Spanish FFs, show that the higher the level of family involvement in management, as well as the higher the generational stage, the higher the level of cash holdings, with this having a positive effect on the firm's performance. In addition, we find that the positive relationship between family involvement in management and the level of cash holdings is strengthened by family ownership and weakened by family governance. These findings are relevant for a better understanding of the complexity of cash holding decision‐making in FFs and have practical implications not only for the FFs themselves but also for the entities related to them due to the important links between a firm's liquidity and its risk of default and performance.

Entangled in complexity: An ethnographic study of organizational adaptability and safe care transitions for patients with complex care needs.

The aim of this study was to visualize vulnerabilities and explore the dynamics of inter-professional collaboration and organizational adaptability in the context of care transitions for patients with complex care needs. An ethnographic design using multiple convergent data collection techniques. Data collection involved document review, participant observations and interviews with healthcare and social care professionals (HSCPs). Narrative analysis was employed to construct two illustrative patient scenarios, which were then examined using the Functional Resonance Analysis Method (FRAM). Thematic analysis was subsequently applied to synthesize the findings. Inconsistencies in timing and precision during care transitions pose risks for patients with complex care needs as they force healthcare systems to prioritize structural constraints over individualized care, especially during unforeseen events outside regular hours. Such systemic inflexibility can compromise patient safety, increase the workload for HSCPs and strain resources. Organizational adaptability is crucial to managing the inherent variability of patient needs. Our proposed 'safe care transition pathway' addresses these issues, providing proactive strategies such as sharing knowledge and increasing patient participation, and strengthening the capacity of professionals to meet dynamic care needs, promoting safer care transitions. To promote patient safety in care transitions, strategies must go beyond inter-professional collaboration, incorporating adaptability and flexible resource planning. The implementation of standardized safe care transition pathways, coupled with the active participation of patients and families, is crucial. These measures aim to create a resilient, person-centred approach that may effectively manage the complexities in care transitions. The recommendations of this study span the spectrum from policy-level changes aimed at strategic resource allocation and fostering inter-professional collaboration to practical measures like effective communication, information technology integration, patient participation and family involvement. Together, the recommendations offer a holistic approach to enhance care transitions and, ultimately, patient outcomes. Findings are reported per the Consolidated Criteria for Reporting Qualitative research (COREQ). No patient or public contribution.

The Students’ Assessment of Family Influences on their Academic Motivation

Family is the basic unit of the society where the child’s upbringing must start since his or her birth. The home is very pertinent and pertinent to a child’s well-being and development in later life. It is assumed to have significant influences over the students’ academic motivation and success. Researchers believed that the obligation of the family to a child at any given time cannot be exaggerated. Phenomenological research design was used by this qualitative paper to recognize the assessment and lived experiences of the respondents, categorically the students of Philippine School Doha, parallel to the central question: “How do the students assess the family influences on their academic motivation?” The researchers gathered the data through a robotfoto and twenty semi-structured interview questionnaires. The data were analyzed using an inductive approach. Findings have shown that familial background, familial expectation, familial interaction, and familial involvement between and among family members greatly influenced students’ academic motivation and success. For every student, they have their familial background, familial expectation, familial interaction, and familial involvement that work hand in hand that influenced their academic motivation and success. This paper suggests that future researchers to expand the number of respondents further to have a broader range of responses. The respondents chosen should be coming from different levels from different educational institutions to check whether all students would share the same type of responses.

Intersectoral Interventions in School to Develop Strategies to Prevent the Use of Alcohol and Other Drugs: A Scoping Review

It is important to prioritize intersectoral action at schools to prevent the use of alcohol and other drugs. This strategic act should be organized with multidisciplinary learning characteristics and with the involvement of different stakeholders. The aim of a recent scoping review was to identify the factors that benefit and hinder intersectoral actions at school resulting from the elaboration of policies to prevent drug use. It seems like the research study was a scoping review that used the P-population, C-context, and C-concept structure. The study searched for information in various databases like Embase, Proquest, Lilacs, Medline via Pubmed, PsycInfo, WHO-Iris, and PAHO-Iris on April 17, 2023. According to the results, there were 5 studies that were eligible to answer the research question. One of the advantages of intersectoral actions is the role of schools in creating a support network with different social actors, particularly with family involvement. On the other hand, one of the challenges is inconsistencies in legal regulations, which do not provide enough guidance to schools on how to prevent alcohol and drug use. While public and private schools may be affected differently by social and economic factors, it is essential to invest in developing policies that focus on drug prevention for children and adolescents who are learning in schools.

Family Income and Child Depression: The Chain Mediating Effect of Parental Involvement, Children's Self-Esteem, and Group Differences.

Family income is an important factor that affects depression in children and can indirectly be associated with children's development through family and individual factors. However, few studies have examined the mechanism of multiple risk factors. Therefore, this study focused on the relationship between family income and child depression, as well as the chain mediating the roles of parental involvement and children's self-esteem both in single-parent families and intact families. A total of 1355 primary school students completed questionnaires that assessed family income, parental involvement, children's self-esteem, and depression. The results showed that family income influenced child depression through both the mediating roles of parental involvement and children's self-esteem and the chain mediating role of parental involvement and children's self-esteem. Meanwhile, family income only influenced child depression through chain mediation in single-parent families. The group differences in the mechanism of depression provide a reference for empirical research on depression intervention in children from different family structures.

Family caregiver outcomes after participating in a Hospital-based family involvement program after major gastrointestinal surgery: a subgroup analysis of a patient preferred cohort study

Background: Engaging families in postsurgical care is potentially beneficial for improving cancer patient outcomes and quality of care. We developed a family involvement program (FIP) and in this study, we aim to evaluate the impact of the FIP on family caregiver burden and well-being. Moreover, we aim to assess the fidelity of the program. Materials and methods: This is a preplanned subgroup analysis of a patient-preferred prospective cohort study that included family caregivers of patients who underwent major oncological surgery for gastrointestinal tumors. Only patient-nominated family caregivers could participate in the FIP. Caregivers received structured training in fundamental caregiving tasks from healthcare professionals and then actively participated in these tasks. Caregiver burden and wellbeing were measured four times (at hospital admission, at hospital discharge, and at one and three months post-hospital discharge) using the Caregiver Strain Index+ (CSI+) and the Care-related Quality of Life instrument (CarerQoL-7D). The fidelity of the FIP was assessed by recording completion of care activities. In addition, family caregivers were asked whether they would participate in the FIP again. Results: Most of the 152 family caregivers were female (77.6%), and their mean age was 61.3 years (SD=11.6). Median CSI+ scores ranged between -1 and 0 and remained below the cutoff point of experiencing burden. CarerQoL-7D results indicated no significant differences in family caregivers’ well-being over time. Upon discharge, over 75% of the family caregivers stated that they would recommend the FIP to others. The highest compliance with all fundamental care activities was observed during postoperative days 2 to 4. Conclusion: The family caregivers of oncological surgical patients who participated in the FIP exhibited acceptable levels of caregiver burden and well-being. These findings suggest that the FIP is a valuable intervention to equip family caregivers with the skills to navigate the uncertain period following a patient’s hospital discharge.

Perceived Social Stigma, Family Support and Mental Health Issues in Individuals Living with HIV/AIDS

Background: In Pakistan, the HIV/AIDS epidemic is compounded by significant socio-economic challenges and a pervasive stigma that undermines effective treatment and prevention strategies. The psychological impacts of HIV/AIDS, such as anxiety, depression, and stress, further complicate disease management, affecting patients' willingness to adhere to treatment and disclose their status. Objective: This study aimed to assess the prevalence of mental health issues among individuals living with HIV/AIDS in Pakistan and explore the relationships between perceived social stigma, family support, and mental health outcomes. Methods: A cross-sectional study was conducted involving 150 diagnosed HIV/AIDS patients from Nankana Sahib and Faisalabad districts. Participants were selected using purposive sampling. Data were collected through validated Urdu versions of the Depression Anxiety Stress Scales (DASS), a discrimination scale, and a family support scale. Statistical analysis was performed using SPSS version 25, focusing on descriptive statistics, correlation coefficients, and linear regression models. Results: The results indicated that the mean scores for depression, anxiety, and stress were significantly high at 66.6980 ± 17.56598. A strong positive correlation was observed between perceived discrimination (DISC) and DASS scores (r = 0.890, p < 0.01), while perceived family support (PFS) was negatively correlated with DISC scores (r = -0.166, p = 0.043). Regression analysis showed that increased family support significantly mitigated mental health issues, reducing the mean stress, anxiety, and depression scores among participants. Conclusion: The study highlights the critical role of family support in reducing mental health issues among HIV/AIDS patients in Pakistan. Enhancing family involvement and reducing social stigma could improve treatment adherence and overall health outcomes.

Staff Support for Families of Youth Involved in Juvenile Justice System in Residential Treatment Programs

This study used a convenience sample of 51 employees of a mid-sized, Midwest residential treatment facility for children involved in juvenile justice system. Overall, the findings suggest that staff members support family involvement and recognize the link between a child’s return home and the activities designed to involve family during placement but are constrained by limited resources. The findings also indicate that family members are not treated as partners but rather as passive participants in the treatment milieu.

Co-production of an intervention facilitating informal caregivers to support adults at risk of suicide and serious self-harm: a brief report

The recovery model in mental healthcare increasingly recognises suicidal behaviour as an interpersonal issue, with caregivers seen as essential in prevention. In the UK, as in other parts of the world, there is growing consensus in policies, guidelines and academic research towards carer involvement in a person’s mental healthcare, yet inconsistency in practice remain commonplace.
 In response to the theme of poor family involvement consistently identified in reports into deaths by suicide in Devon (UK), Devon Partnership NHS Trust has developed Stronger Together, a training programme for carers of suicidal adults. The programme, co-produced with carers and service users, also includes a collaborative learning component with healthcare staff.
 This report explores the programme's co-production and my personal involvement. Co-production shaped Stronger Together, aligning it with national policy and research findings. Its co-delivery and co-learning approach uniquely addresses carers' needs and fosters staff-carer collaboration. Learning from this initiative could help other mental health trusts foster a culture of carer collaboration, potentially improving patient safety, reducing caregiver burden and enhancing support for patients and families to reduce deaths by suicide. It also strengthens the case for co-production of training that effectively meets the needs of participants and delivers on its outcomes.

Social capital in the management of breast cancer in Lagos, Nigeria.

Breast cancer is the most common cancer in women worldwide, necessitating substantial social support during diagnosis and treatment. This study examines the role of social capital in breast cancer management, focusing on the experiences of patients. The objective of the study was to explore the role of social capital in breast cancer management among women living with breast cancer in Lagos, Nigeria. Using a qualitative design, the study recruited 23 women with breast cancer receiving treatment at a teaching hospital in Lagos, Nigeria. Data were content analyzed to identify themes related to social capital. The study found that social capital, crucial for breast cancer patients' emotional and instrumental support, stems from various sources such as relatives, immediate family, spouses, places of worship, friends, and neighbors. Effective coping and management of the condition were facilitated through this support network. However, assistance from places of worship, friends, and neighbors was only accessible to those who openly acknowledged their health conditions and had established connections with these social groups. Relationships led to support only when there was a disclosure of the health condition. (1) This finding reinforces the importance of integrating social support mechanisms including family, friends, and community networks into breast cancer management programs. (2) The study identifies diverse sources of social capital, including relatives, family, spouses, places of worship, friends, and neighbors, stressing the need for tailored support networks. (3) Research reveals the link between health condition disclosure and support accessibility from groups like places of worship and friends, and it emphasizes creating stigma-free environments for patients to disclose health status comfortably. (4) The study highlights family involvement in breast cancer management as crucial for effective coping. Healthcare professionals should prioritize interventions strengthening family support systems. (5) Findings of stress community support for better breast cancer outcomes, advocating for initiatives like support groups and awareness campaigns to boost social capital and aid affected individuals. The study emphasizes the significance of involving family members in the breast cancer management process and highlights the need for support systems within families and communities to facilitate better outcomes for breast cancer patients.

Entrepreneurship orientation in family business: Decision process structure & succession planning

Family firms play a significant role in economies worldwide, contributing substantially to wealth generation and employment opportunities. Particularly prevalent in rural and remote areas where larger enterprises may struggle to operate effectively, these firms are crucial for both economic growth and social development. Entrepreneurship, characterized by innovation, courage, and strategic planning, is fundamental for driving economic development and instigating substantial changes within market economies. Previous research has identified various factors influencing entrepreneurial development in response to evolving business environments.This paper aims to investigate the capacity of enduring family firms to maintain an entrepreneurial orientation while also prioritizing strong family ties and effective governance structures. Building upon existing theoretical frameworks in the realms of family business and entrepreneurship, this study examines the prevalence of entrepreneurship within family businesses. Additionally, it explores the significance of entrepreneurial orientation in succession planning and the decision-making processes within family firms.The conceptualization presented here integrates insights from existing literature and proposes a research agenda for further exploration in this field. By reviewing relevant literature and outlining a research methodology, this paper seeks to shed light on the intersection of family business dynamics and entrepreneurial behavior. Understanding the interplay between entrepreneurial orientation, family involvement, and governance structures is crucial for informing strategic decision-making processes within family firms.In summary, this paper contributes to the broader understanding of the role of entrepreneurship within family businesses and its implications for succession planning and decision-making. By elucidating the complex dynamics at play in these firms, it offers insights that can inform both academic research and practical management strategies for sustaining and enhancing the entrepreneurial spirit within family-owned enterprises.

“Let them be”: Family members' perspectives on the participation of advanced cancer patients in nursing research: A qualitative descriptive study

BackgroundRecruiting advanced cancer patients is crucial for nursing research in cancer care. However, nurse researchers often face various socio-cultural challenges, particularly in mainland China, where cultural taboos around death pose significant obstacles. An unexplored constraint in this context is the pivotal role Chinese family members play in patients' healthcare decision-making. This research gap underscores the need for a deeper understanding of Chinese family members' perspectives on the engagement of advanced cancer patients in nursing research. ObjectiveTo explore the perceptions and concerns of family members regarding the recruitment and participation of advanced cancer patients in nursing research. DesignA qualitative descriptive study was conducted. SettingsThree cancer hospitals in mainland China. ParticipantsA purposive sample of 18 family members, consisting of children or spouses of advanced cancer patients, was recruited as participants. MethodsSemi-structured interviews were conducted to collect data between September 2022 and January 2023. The thematic analysis method was used to analyze the data. ResultsThree themes were identified: The absence of prior participation, Family members' reluctance to facilitate patient involvement, and Strategies to encourage patients' future participation. Family members were hesitant to allow their relatives with advanced cancer to engage in nursing research, primarily due to concerns about distressing patients, the use of potential sensitive language, stigma, and the risks involved in participation. To address these concerns, they emphasized the importance of gaining family approval prior to patient enrolment. They highlighted the need of family involvement on behalf of sick relatives in research, advocating for the inclusion of a wide range of patients rather than targeting specific subgroups. They also reiterated the significance of choosing the right time for participation and avoiding using sensitive terms such as ‘cancer’, ‘dying’, and ‘death’ when engaging with patients. Moreover, they proposed the recruitment of patients by trusted professionals, shortening the duration of research activities and simplifying research procedures. ConclusionsThis study provides fresh insights into the perspectives of family members concerning the recruitment and engagement of advanced cancer patients in nursing research. It emphasizes the importance of addressing their concerns and recommendations, aiding nurse researchers in developing culturally sensitive recruitment strategies and fostering the inclusive participation of advanced cancer patients in nursing research within the context of family-centered care and cultural taboos surrounding death.