Family Communication Research Articles

Familial communication and cascade testing following elective genomic testing.

Familial communication of results and cascade genetic testing (CGT) can extend the benefits of genetic screening beyond the patient to their at-risk relatives. While an increasing number of health systems are offering genetic screening as an elective clinical service, data are limited about how often results are shared and how often results lead to CGT. From 2018 to 2022, the Sanford Health system offered the Sanford Chip, an elective genomic test that included screening for medically actionable predispositions for disease recommended by the American College of Medical Genetics and Genomics for secondary findings disclosure, to its adult primary care patients. We analyzed patient-reported data about familial sharing of results and CGT among patients who received Sanford Chip results at least 1 year previously. Among the patients identified with medically actionable predispositions, 94.6% (53/56) reported disclosing their result to at least one family member, compared with 46.7% (423/906) of patients with uninformative findings (p < 0.001). Of the patients with actionable predispositions, 52.2% (12/23) with a monogenic disease risk and 12.1% (4/33) with a carrier status reported that their relatives underwent CGT. Results suggest that while the identification of monogenic risk during elective genomic testing motivates CGT in many at-risk relatives, there remain untested at-risk relatives who may benefit from future CGT. Findings identify an area that may benefit from increased genetic counseling and the development of tools and resources to encourage CGT for family members.

The effect of family economic capital on the cognitive ability of migrant children in China

The scale of migrant populations and the prevalence of family-based migration in China have sparked concerns about migrant children. After moving to the city, compared to loacl children, migrant children are at a disadvantage in terms of access to external educational resources and internal family education. It is thus of great academic and practical importance to explore the factors affecting the cognitive abilities of migrant children. Using the CFPS database in 2014, 2016, and 2018, this study investigates the effects and mechanisms of family economic capital on the cognitive ability of migrant children. The findings show that family economic capital greatly enhances the Chinese and Math performance of migrant children and that there is heterogeneity in the effect of family economic capital on the cognitive ability of migrant children attending key schools and non-key schools. In addition, the mediating effect model shows that family economic capital mainly influences the Chinese and Math scores of migrant children through mediating variables such as family education expenditure and parental involvement. At the same time, the results of the hierarchical linear model show that the regional education level has a significantly positive moderating effect on family education expenditure, while the moderating effect on parental involvement is not significant. Therefore, assisting migrant families to increase their financial resources, family educational expenditure, and family communication can contribute to their children's human capital development.

Men with metastatic prostate cancer carrying a pathogenic germline variant in breast cancer genes: disclosure of genetic test results to relatives

Some patients with metastatic prostate cancer carry a pathogenic germline variant (PV) in a gene, that is mainly associated with an increased risk of breast cancer in women. If they test positive for such a PV, prostate cancer patients are encouraged to disclose the genetic test result to relatives who are at risk in case the carrier status changes the relatives’ medical care. Our study aimed to investigate how men who learned they carry a PV in BRCA1, BRCA2, PALB2, CHEK2 or ATM disclosed their carrier status to at-risk relatives and to assess the possible psychological burden for the carrier and their perception of the burden for relatives. In total, 23 men with metastatic prostate cancer carrying a PV completed the IRI questionnaire about family communication; 14 also participated in a semi-structured interview. Patients felt highly confident in discussing the genetic test result with relatives. The diagnosis of prostate cancer was experienced as a burden, whereas being informed about genetic testing results did in most cases not add to this burden. Two patients encountered negative experiences with family communication, as they considered the genetic test result to be more urgent than their relatives. This mixed-methods study shows that metastatic prostate cancer patients with a PV in genes mainly associated with increased risk of breast cancer feel well-equipped to communicate about this predisposition in their families. Carriers felt motivated to disclose their genetic test result to relatives. Most of them indicated that the disclosure was not experienced as a psychological burden.

Studying the context of psychoses to improve outcomes in Ethiopia (SCOPE): Protocol paper

Background Global evidence on psychosis is dominated by studies conducted in Western, high-income countries. The objectives of the Study of Context Of Psychoses to improve outcomes in Ethiopia (SCOPE) are (1) to generate rigorous evidence of psychosis experience, epidemiology and impacts in Ethiopia that will illuminate aetiological understanding and (2) inform development and testing of interventions for earlier identification and improved first contact care that are scalable, inclusive of difficult-to-reach populations and optimise recovery. Methods The setting is sub-cities of Addis Ababa and rural districts in south-central Ethiopia covering 1.1 million people and including rural, urban and homeless populations. SCOPE comprises (1) formative work to understand care pathways and community resources (resource mapping); examine family context and communication (ethnography); develop valid measures of family communication and personal recovery; and establish platforms for community engagement and involvement of people with lived experience; (2a) a population-based incidence study, (2b) a case-control study and (2c) a cohort study with 12 months follow-up involving 440 people with psychosis (390 rural/Addis Ababa; 50 who are homeless), 390 relatives and 390 controls. We will test hypotheses about incidence rates in rural vs. urban populations and men vs. women; potential aetiological role of khat (a commonly chewed plant with amphetamine-like properties) and traumatic exposures in psychosis; determine profiles of needs at first contact and predictors of outcome; (3) participatory workshops to develop programme theory and inform co-development of interventions, and (4) evaluation of the impact of early identification strategies on engagement with care (interrupted time series study). Findings will inform development of (5) a protocol for (5a) a feasibility cluster randomised controlled trial of interventions for people with recent-onset psychosis in rural settings and (5b) two uncontrolled pilot studies to test acceptability, feasibility of co-developed interventions in urban and homeless populations.

Exploring the interplay between individual and family functioning during the COVID-19 pandemic: a cross-sectional study

AbstractFamily relationships are central to an individual’s development and influence their emotional, relational, and social trajectories. Optimal family functioning, encompassing emotional connections, communication patterns, and coping mechanisms, is pivotal to the well-being of individual family members, especially during challenging periods such as the COVID-19 pandemic. From this perspective, this study, conducted during the second wave of the COVID-19 pandemic in Italy, assessed the interplay between individual and family functioning. Utilizing Hill's ABC-X model, we explored how the pandemic (stressor) impacted family dynamics (resources), perceived individual affectivity and family efficacy (perception), thereby influencing family quality of life (outcome). Four hundred and four participants completed a battery of standardized questionnaires to evaluate perceived individual affectivity during the pandemic, family quality of life, family dynamics (cohesion, flexibility, and communication), family conflict, family efficacy, and family coping strategies. Positive affectivity was associated with better family quality of life and more adaptive family coping strategies. The sample reported a low family quality of life and low family cohesion, flexibility, and communication during the pandemic. A positive sense of family cohesion, flexibility, and communication was associated with better individual well-being, better family quality of life and efficacy, and less conflict. Family communication was the strongest predictor of family quality of life in the study sample. In conclusion, our results emphasize the importance of strengthening family and individual resilience in transforming post-pandemic challenges into psychological and familial growth opportunities.

The Impact of Problematic Internet Use on Adolescent Loneliness-Chain Mediation Effects of Social Support and Family Communication.

To explore the relationship between adolescents' problematic Internet use and loneliness and the mediating roles of social support and family communication. A questionnaire survey of 2483 adolescents aged 12-17 years in 148 cities in China was conducted using the Problematic Internet Use Scale, the Collaborative Social Support Scale, the Family Communication Scale, and the Loneliness Scale. The data were statistically analyzed by SPSS 26.0 and validated by AMOS 28.0. Structural equation modelling (SEM) was conducted to test the effects of problematic Internet use on adolescents' loneliness and the mediating effects of perceptions of social support and family communication. There was a significant positive effect of adolescents' problematic Internet use on loneliness (B-0.471, P<0.001), and the mediating effects of perceptual social support (0.003, 0.012) and family communication (0.008, 0.019) were found to play a chain effect between adolescents' problematic Internet use and loneliness, respectively. Use and feelings of loneliness played a chain mediating role (0.002, 0.006). This study identified the effects of adolescent problematic Internet use on loneliness and its mechanism of action, emphasized the importance of social support and family communication, and provided practical insights for improving family parenting styles and preventing and intervening in adolescent loneliness problems.

The Structural Pattern of Family Functioning Based on Religious Orientation in Working Men and Women of Hamedan City with the Role of Resilience as a Mediator

Introduction: Family functioning refers to the effectiveness of family members in emotional communication, family rules, family communication and coping with external events. Aim: The present study was conducted with the aim of investigating the structural pattern of family functioning based on religious orientation in working men and women of Hamedan city with the role of mediator of resilience. Method: The current research was descriptive-correlation based on structural equation modeling. The research population included all married men and women working in government organizations in Hamadan city in 1400-1401. The sample size was 335 working men and women available by non-random sampling method. Family functioning questionnaire (FAD), religious orientation scale (ROS) and resilience scale (RISC) were used. Data analysis software was SPSS-21 and AMOS-24. Results: The results showed that religious orientation (β = -0.518 and p = 0.001) and resilience (β = -0.236 and p = 0.001) have a direct effect on family functioning and religious orientation mediates resilience on Family performance was also significant at 0.1 level. In the following, the indirect relationship of the proposed model was investigated, and a significant value was obtained for the approximation index of goodness of fit (PCLOSE) of 0.001 and the RMSEA index equal to 0.073, which indicated the fit of the model. Conclusion: The results showed that religious orientation can explain the functioning of the family with regard to the role of resilience, so psychologists are recommended to strengthen the functioning of the family and strengthen the foundations of families by holding psychological workshops centered on religion and spirituality. With the help of resilience training to administrative staff. These people help.

Returning actionable genetic results to participants in the biobank at the Colorado Center for Personalized Medicine and UCHealth

PurposeTo describe our process for returning genetic results to participants in the Colorado Center for Personalized Medicine biobank. MethodsEnrollment in the biobank is open to all adult UCHealth patients. Participants who provided a sample that was genotyped and signed the proper consent were eligible to receive results. Genetic data were generated using a custom genotyping array and confirmed via Sanger sequencing. We used 2 models for returning results and conducted interviews with participants to assess satisfaction with our process, follow-up care, and family communication. ResultsAs of July 2022, 73,313 participants had provided a sample and proper consent. Of these, 10,489 samples were genotyped, 137 (1.3%) had initial results, and 62 were confirmed and eligible for return. We returned results to 51 participants, 33% for cardiac risk, 31% cancer, 15% familial hypercholesterolemia, and 21% for other conditions (11 participants refused or did not respond). Less than half of participants had a relevant family history. The majority of participants were glad to receive results and satisfied with our process. ConclusionAlthough array-based genotyping has known limitations that reduce its accuracy, we were able to identify persons with underlying genetic risk who were previously unaware. It is important to establish a process for returning results that follows clinical guidelines, protects participant autonomy, and is amenable to all participants.

Use of an Augmented Exposure and Response Prevention Procedure in the Treatment of Obsessive-Compulsive Disorder: A Case Report

This case report describes the assessment and treatment of a 21-year-old male with obsessive-compulsive disorder (OCD) using an intensive exposure and response prevention (ERP) treatment program. The patient and his father received daily 2-hour ERP sessions delivered across 10 consecutive weekdays, and monthly follow-up appointments. In addition to the condensed treatment schedule, ERP procedures were augmented to address ongoing family conflict and depressive symptoms. To the best of the our knowledge, this is the first study to include such treatment adaptations within the context of intensive ERP for an adult with OCD. Results indicated target behaviors decreased over the 2-week intensive treatment phase and were maintained during 4 months of follow-up. Ancillary outcomes reported by the patient and his father included more frequent engagement in activities of daily living and improved family communication. Outcomes of this study provide an important step toward establishing recommendations regarding ERP session frequency, especially among patients with comorbid disorders.

A Pilot Study of a Family Management Program for Parents of Children with Acute Lymphoblastic Leukemia

ObjectivesThe aim of this completed pilot study was to evaluate the feasibility of implementing a family management program (FMP) for parents of children with acute lymphoblastic leukemia (ALL). Data SourcesA convenience sample of 11 parents of preschool-aged children with ALL were recruited from an ambulatory chemotherapy-care clinic at a tertiary hospital in Thailand. Participants received three FMP sessions over 3 weeks. The FMP is based on two established family programs (ie, FMP-style framework and building on family strengths) and reviewed literature. The following measures were used to evaluate parents’ responses at baseline, postintervention, and follow-up: Family Management Measure, Beach-Center Family Quality-of-Life Scale, and Pediatric Quality of Life Inventory. Data were analyzed using one-way repeated-measures analysis of variance. ConclusionThe study results provide promising evidence that the FMP is feasible and improves family management and quality of life for parents of enrolled children with ALL. Implications for Nursing PracticeEducating pediatric oncology nurses and other healthcare professionals to replicate the FMP may help to provide better family management, and child quality of life support to future parents and other family members of young children diagnosed with ALL. This support should focus on educating parents about the potential effects of caring for a child with ALL on the family and fostering positive relationships within the family and offering guidance on effective family communications and decision-making processes.

KOMUNIKASI KELUARGA ANTARA ORANG TUA DALAM MENDAMPINGI PROSES BELAJAR HYBRID PADA MAHASISWA FAKULTAS PSIKOLOGI UNIVERSITAS GUNADARMA

The purpose of this study was to find out how family communication between parents and students in accompanying the hybrid learning process in Gunadarma University students. The method used in this study was that researchers use qualitative descriptive methods. Data collection techniques that researchers do in the form of online virtual interviews and observations of sources and informants. This research uses the theory of Cognitivism by Jean Piaget. Based on the results of observations and interviews, researchers concluded that family communication has been successfully carried out in the form of a close relationship and mutual communication between parents and children in trust, motivating children in learning, and parental assistance will increase interest in learning in children to stay focused on learning goals.

Language maintenance in the family to maintain family harmony: A case study of mixed marriages between Sundanese women and French men

This research aims to scrutinize the use of language in intermarried families between Sundanese women and French men living in France. Using ethnographic research with a qualitative and descriptive methodology, the data in this study were gathered via observations, interviews with informants, and written sources in the form of notes from the French embassy in Indonesia. The purpose was to collect information regarding languages used in their families. The results of this study reveal that the families of Sundanese-French couples living in France practice multilingual interactions in their family. They use French, English, Indonesian, and Sundanese languages as a medium for family communication. The use of each language varies according to its functions. In these families, the children understand Indonesian and a little bit of Sundanese, but they prefer to speak French or English. After growing up, their inner attachment to their mothers led them to look for their cousins in Indonesia.

Patterns of Family Upbringing and their Relationship to Social Isolation among Adolescent Orphan Students

The study aimed to identify the nature of the relationship between family upbringing patterns and social isolation among adolescent orphan students. The sample consisted of (370) male and female adolescent orphans. To achieve the objectives of the study, two scales were developed (the family upbringing patterns scale, and the social isolation scale), and their psychometric properties were verified. The results of the study showed: that the prevailing pattern of family upbringing among adolescent orphan students is the pattern of neglect, and that the level of all patterns was at medium level, and the results indicated that the level of social isolation was at medium level among the study sample. There was a positive, statistically significant relationship between the patterns of family upbringing (authoritarianism, overprotection, neglect and social isolation), while there was a negative relationship between the "democratic" family upbringing pattern and social isolation. In light of the results, the researchers suggested a number of recommendations, the most important of which are: The need to rebuild family communication channels for families of adolescent orphans, by activating psychological counseling programs for adolescent orphans by associations interested in their care, to reduce the level of social isolation to its lowest levels, and protect them from psychological and behavioral disorders.

Mothers’ Perceptions of the Impact of COVID-19 on Family Communication and Children’s Play

Mothers’ Perceptions of the Impact of COVID-19 on Family Communication and Children’s Play

Mức độ tàn tật ở bệnh nhân phong tại tỉnh Bình Thuận và một số yếu tố liên quan

Objectives: Determine the level of disability in leprosy patients in Binh Thuan province and some related factors. Methods: Cross-sectional study was conducted on 369 disabled leprosy patients in Binh Thuan province in 2022. Results: The rate of level 2 disability in leprosy patients is very high (90.5%) and there are many diverse types of disability. Education level is inversely proportional to the rate of level 2 disability; Patients with a low standard of living had a 1.25 times higher rate of level 2 disability (95% CI: 1.10 - 1.42). Stigma from family members increases the odds of disability by 1.16 times (95% CI: 1.08 - 1.24) and discrimination by people around increases the odds by 1.18 times (95% CI: 1.10 - 1.1 times). ,25). Inadequate knowledge of hand disability care is 1.43 times higher (95% CI: 1.18 - 1.74); Incorrect knowledge of foot disability care was 1.32 times higher (95% CI: 1.16 - 1.50). Conclusions: The rate of grade 2 disability in leprosy patients is high; Stigma from family members, the community, and low patient knowledge are factors related to grade 2 disability. Therefore, it is necessary to promote communication for families and the community to reduce stigma. for leprosy patients. Improve the consulting skills of commune-level leprosy specialists to care for, advise and improve knowledge of leprosy patients in disability care. Keywords: Leprosy disability, leprosy management, leprosy disability in Binh Thuan.

Family religiosity and climate: the protective role of personal interiorized religiosity in deviance propensity among justice-involved juveniles.

According to the literature, religious commitment could be a protective factor against dangerous behaviors, such as criminal offending, unsafe sex, and substance use. Our study aims to investigate the influence of Family Religiosity and climate on anger dysregulation and deviance propensity in a sample of 214 justice-involved boys from Italian Youth Detention Centers (range 14-25). The sample was divided into religious (n = 102) and non-religious (n = 112) justice-involved juveniles. Participants filled in the following questionnaires: Deviant Behavior Questionnaire, Aggression Questionnaire, Family Communication Scale, Moral Disengagement Scale, and the Multidimensional Scale of Perceived Social Support. We used a partial least square structural equation modeling (PLS_SEM) method to build our model and we found that Family Religiosity was positively associated with Family Climate which was negatively associated with Anger Dysregulation and Deviance Propensity, and Anger Dysregulation was positively related to Deviance Propensity. The multigroup analysis confirmed that for justice-involved juveniles who interiorized religious discipline and beliefs, Family Religiosity showed a positive association with Family Climate, which had a negative relationship with Anger Dysregulation, which strongly predicted Deviance Propensity. This result could be useful to promote new development goals and preventive activities and interventions based on positive religiosity values in juveniles' behavior.

Psychosocial barriers and facilitators for cascade genetic testing in hereditary breast and ovarian cancer: a scoping review.

Despite increased awareness and availability of genetic testing for hereditary breast and ovarian cancer (HBOC) syndrome for over 20years, there is still significant underuse of cascade genetic testing among at-risk relatives. This scoping review synthesized evidence regarding psychosocial barriers and facilitators of family communication and/or uptake of cascade genetic testing in relatives from HBOC families. Search terms included 'hereditary breast and ovarian cancer' and 'cascade genetic testing' for studies published from 2012-2022. Through searching common databases, and manual search of references, 480 studies were identified after excluding duplications. Each article was reviewed by two researchers independently and 20 studies were included in the final analysis. CASP, RoBANS 2.0, RoB 2.0, and MMAT were used to assess the quality of included studies. A convergent data synthesis method was used to integrate evidence from quantitative and narrative data into categories and subcategories.Evidence points to 3 categories and 12 subcategories of psychosocial barriers and facilitators for cascade testing: (1) facilitators (belief in health protection and prevention; family closeness; decisional empowerment; family support, sense of responsibility; self-efficacy; supportive health professionals); (2) bidirectional concepts (information; perception of genetic/cancer consequences; negative emotions and attitude); and (3) barriers (negative reactions from family and negative family dynamics). Healthcare providers need to systematically evaluate these psychosocial factors, strengthen facilitators and alleviate barriers to promote informed decision-making for communication of genetic test results and uptake of genetic testing. Bidirectional factors merit special consideration and tailored approaches, as they can potentially have a positive or negative influence on family communication and uptake of genetic testing.

Structural equation modeling for the effects of family dysfunctions and communication on perceived mental health status among under/graduate students in the U.S.

Many of the college students expressed experiencing moderate or severe psychological distress. In their emergence as adults, college students encounter significant periods of drastic change. Family functions play a crucial role in determining individuals' mental health status. The first objective of this study was to investigate whether family communication mediates the relationships between family dysfunctions and perceived mental health status among under/graduate students. The second objective was to investigate whether the mediation effects of family communication on the relationships between family dysfunctions and perceived mental health status differ by gender. The current study applied Minuchin's Structural Family Theory with under/graduate students (N = 348) in Ohio. Structural Equation Modeling was conducted to examine the effects of family dysfunctions and communication on perceived mental health status among under/graduate students. Disengaged family function significantly influenced family communication, which, in turn, significantly impacted perceived mental health (mediation effect). Enmeshed family function did not show a significant relationship with family communication, whereas family communication had a significant impact on perceived mental health (no mediation effect). The model comparison test indicated that there were differences between males and females: the structural weights of the current path models were consistent with the full models, and there was a significant difference in the effect of parents' marital status on perceived mental health, with males being significantly impacted in both models. Practitioners should recognize that improving positive communication skills within the family unit can be a realistic approach to supporting the perceived mental health of under/graduate students. Colleges/universities should offer regular education programs to promote an understanding of the relationship between family communication strategies and the mental health of under/graduate students.

Impact of sociodemographic factors, stress, and communication on health-related quality of life in survivors of pediatric cancer.

While most research has largely focused on medical risks associated with reduced health-related quality of life (HRQOL) in survivors, sociodemographic and family factors may also play a role. Thus, we longitudinally examined sociodemographic factors and family factors associated with survivor HRQOL, including adolescent's cancer-specific stress, mother's general stress, and mother-adolescent communication. Mothers (N=80) and survivors (ages 10-23, N=50) were assessed 5years following initial diagnosis. Mothers completed measures regarding sociodemographic background adolescent's cancer-specific stress, mother's general stress, mother-adolescent communication, and adolescent HRQOL. Survivors also reported on their own HRQOL. Two hierarchical multiple regressions examined predictors of (a) mother's report of adolescent HRQOL, and (b) survivor's self-report of HRQOL. The final model predicting mother-reported adolescent HRQOL was significant, F(5,74)=21.18, p<.001, and explained 59% of the variance in HRQoL. Significant predictors included adolescent stress (β=-.37, p<.001), mothers' stress (β=-.42, p<.001), and communication (β=.19, p=.03). The final model predicting survivor-reported HRQOL was also significant, F(5,44)=5.16, p<.01 and explained 24% of the variance in HRQOL. Significant predictors included adolescent stress (β=-.37, p=.01) and communication (β=-.31, p=.04). Sociodemographic factors were not a significant predictor of HRQOL in any model. Family stress and communication offer potential points of intervention to improve HRQOL of pediatric cancer survivors from mother and survivor perspectives. While additional research is needed, healthcare professionals should encourage stress management and strong mother-child communication to enhance survivors' long-term HRQOL. Such interventions may be complimentary to efforts targeting the known sociodemographic factors that often affect health.

HUBUBNGAN ANTARA KOMUNIKASI INTERPERSONAL TERHADAP KEPUASAN PERKAWINAN PADA KELUARGA YANG HIDUP DI PEDESAAN

Marital satisfaction is a subjective feeling perceived by married couples regarding thehappiness in their marriage, influenced by background factors and current circumstances. Interpersonal communication is an individual's ability to listen, understand others, express oneself, and the willingness to communicate honestly. This research aims to examine the relationship between interpersonal communication and marital satisfaction in rural families, utilizing a quantitative research method. Questionnaires were distributed through social media platforms to married families in Lempong Village, Karanganyar, Central Java. Data analysis involved statistical testsfor assumptions, correlation, and effective contribution. The research aimed to understand the relationship between interpersonal communication and marital satisfaction in families living in rural areas. The research findings revealed a correlation coefficient (r) of -0.421 with a significance value of 0.000 (p &lt; 0.05), indicating a negative relationship between interpersonal communication and marital satisfaction in rural families. The effective contribution of interpersonal communication to marital satisfaction was 17.7%.