Family-centered Care Approach Research Articles

71 Development and validation of the COCINL scale assessing family resilience in the NICU among parents of preterm infants

Abstract Background Given the negative impact of parental distress on preterm infants and their families, examining the role of family resilience in the neonatal intensive care unit (NICU) is a promising avenue for promoting parental mental health while remaining consistent with family-centered care. A tool to assess NICU family resilience is essential to guide care and research, yet none specifically adapted for the neonatal context exists to date according to a recent systematic review. Objectives Therefore, the aim of this study was to develop and validate a new scale, the COCINL scale, designed to measure family resilience in the context of neonatal care among French-speaking parents of preterm infants. Design/Methods This methodological design study was carried out in four successive phases: (I) compilation of an item pool (II) mixed-method evaluation of content validity (clarity, relevance, representativeness) involving 12 experts, (III) pre-testing and electronic administration of the COCINL scale, along with a measure of psychological distress (Kessler-6) and an open-ended self-report question on family resilience to parents of preterm infants (n=88) and (IV) psychometric testing of the COCINL scale (internal consistency, construct validity, exploratory sensitivity and specificity). Parents of preterm infants and experts were recruited by convenience sampling from two urban, level III NICUs. Results From a pool of 112 items, 55 items were favorably evaluated after content validation (S-CVI>0.95). Based on preliminary interitem correlations and internal consistency results, the COCINL scale was shortened to 42 items and divided in four subscales. High internal consistency is also shown in subscales (0.796 to 0.908) and total scale (0.937) Cronbach’s alphas. The COCINL scale displays adequate construct validity, as determined by the Pearson correlation obtained between scores of family resilience and psychological distress (r=-0.236, p=0.027). Strong in between correlations of the four subscales and with the COCINL total score (0.732 to 0.851), further indicated good construct validity. Exploratory sensitivity and specificity analysis revealed the COCINL scale compares to participants' self-reported perception of family resilience (AUC 0.754). Conclusion The COCINL scale has shown strong evidence of validity and internal consistency. Thus, the scale can be recommended for research use as a measure of family resilience in the neonatal context. Still, additional evidence of its validity and reliability should be compiled before clinical use is considered. The COCINL scale could potentially support the development, evaluation and implementation of nursing interventions consistent with the family-centered care approach being promoted in NICUs across Canada and worldwide.

Care bundle for preventing intraventricular hemorrhage in premature infants: a best practice implementation project.

Intraventricular hemorrhages remain a major problem in neonatology, because their complications affect neonatal morbidity, mortality, and long-term neurodevelopmental outcomes. The aim of this project was to prevent intraventricular hemorrhage in premature infants during their first days of life in a neonatal intensive care unit (NICU). This pre- and post-implementation clinical audit project used the JBI Evidence Implementation Framework and was conducted in a tertiary-level Spanish NICU with a consecutive sample. A baseline audit was conducted using 13 audit criteria derived from JBI summaries of the best available evidence. This was followed by the implementation of an action plan, which included a care bundle and health care professionals' education. These improvement strategies were then evaluated using a follow-up audit. The baseline and follow-up audits evaluated 54 and 56 infants, respectively. The follow-up audit showed 100% improvement for Criteria 2, 3, 6, and 7, which covered sleep safety and noise. Criteria 12 and 13, which covered cord clamping and positioning the infant, improved by 25.99%. Criterion 9, on antenatal corticosteroids, showed a slight improvement of 5.56%. This study increased compliance with an evidence-based, family-centered care approach to preventing intraventricular hemorrhage in premature infants. This was achieved by conducting a baseline and follow-up audit, implementing a training program, and keeping more comprehensive nursing records. Further studies could assess the long-term effectiveness of interventions and/or the incidence of intraventricular hemorrhage and neurodevelopmental disorders in premature infants. http://links.lww.com/IJEBH/A262.

Impact of family-centered Care on Parenting Role and Sense of Competence in Parents of Preterm Neonates: a quasi-experimental study

BackgroundImplementing a family-centered care approach can empower parents to care for their premature infants, positively influencing their sense of competence and parenting role. This study aims to investigate the impact of family-centered care within the context of newborn care on the sense of competence and parenting role of parents with preterm infants who were hospitalized in neonatal intensive care units (NICUs) in Iran. MethodsThis quasi-experimental study employed a design with two groups in neonatal intensive care units (NICUs) located in Kerman, Iran. The research sample consisted of 90 parents. The intervention group received training based on the principles of family-centered care and actively participated in caring for their infants in the intensive care unit. Both groups completed the Parenting Sense of Competence Scale and the Parenting Role Tasks Questionnaire before the intervention, seven days after the intervention, and three months after the intervention. ResultsFollowing the implementation of the family-centered care intervention, the experimental group exhibited a relatively higher increase in the sense of competence score (83.42±6.66) compared to the control group (57.60±9.45). Similarly, the experimental group had a higher mean parenting role score (87.95±6.45) than the control group (54.77±11.80). ConclusionThe study findings suggest that implementing the family-centered care program develops training packages based on the principles of family-centered care for nurses working in neonatal intensive care units. This training will help parents of hospitalized infants enhance their sense of competence and improve their parenting role.

Family-centered care for child cancer treatment in Ethiopia—A qualitative descriptive study

BackgroundFamilies are the primary source of support and strength in the care process of children with cancer. Family-centered care (FCC) is a healthcare delivery approach that considers parents as both partners and care recipients, characterized by providing care based on dignity and respect, information sharing, participation, and collaboration or partnership. AimThis study aimed to describe the delivery of care based on the family-centered care approach at the Tikur Anbessa Specialized Hospital pediatric cancer unit. MethodAn exploratory, descriptive qualitative study was conducted from March 2023 to August 2023. Eighteen participants (thirteen parents and five health care providers) were interviewed using a semi-structured interview guide. All interviews were audio-recorded, transcribed verbatim, and translated into English. The translated transcripts were used for inductive, data-driven thematic analysis. ATLAS.ti 9 software was used to assist the analysis process. ResultTwo themes have emerged during the analysis. These are (1) Information sharing, and (2) Enabling and partnership. Under the information sharing theme, we described parents' understanding of child cancer, parents' information-related expectations, the process of obtaining information, adequacy of information received, and factors inhibiting information sharing. Under the enabling and partnership theme, we presented family participation in childcare, discussion among parents, parents' communication with healthcare providers and psychosocial support. ConclusionSuboptimal implementation of family-centered care practice was identified at the pediatric oncology unit. Practice implicationsThe findings from this study indicate the need to strengthen the provision of child cancer-related information, improve communication, and strengthen family participation in childcare.

Instrumen Discharge Planning Berbasis Patient Family Centered Care

This study aims to develop a discharge planning instrument through an inpatient family centered care approach, to improve service quality. The method used was systematic review, a systematic search through the Scopus, Science Direct, and Pub Med databases published between 2018-2023. The results showed that discharge planning based on patient family centered care helps prepare patients and families for home care, increase knowledge and skills, and collaborate with other health workers. The conclusion of this study is that discharge planning has an influence on the success of patient care after being at home. The implementation of discharge planning is important in preparing patients and families with education by nurses related to the disease and patient care so as to increase knowledge and skills for home care. Improved quality of service at home and patient and family satisfaction. Keywords: Discharge Planning, Instrument Development, PFCC, Hospitalization, Hospital.

Nurse-mother communication and support: Perceptions of mothers in neonatal units

IntroductionHaving a hospitalized neonate is a stressful experience for parents, especially mothers. Thus, in recent years, a paradigm shift occurred in the neonatal units, focusing on the needs of parents and supporting them in addition to caring for neonates. The aim of this study was to evaluate the nurse-mother communication and support in neonatal units in Bushehr, Iran. MethodThis descriptive cross-sectional study was performed in neonatal units of 6 hospitals in Bushehr, Iran, in 2022. Using the census method, all eligible mothers who met the inclusion criteria were included in this study. Data collection tools included demographic information form, nurse-parent support tool and nurse-parent communication questionnaire. The collected data were analyzed by SPSS version 24 using descriptive statistics, independent t-test, one-way ANOVA and Pearson correlation test. ResultsThe total mean score of nurse-parent support tool was 3.72 ± 0.72 and the total mean score of nurse-parent communication questionnaire was 59/27 ± 12/82. Caregiving support had the highest mean score (4.07 ± 73 0.73) and emotional support had the lowest (3.42 ± 91 0.91). Also, a statistically significant difference was seen between the admitted unit variable and the mean score of nurse-mother communication and support. Additionally, there was a statistically significant difference between the mechanical ventilation status of the neonate and the mean score of nurse-mother support. A significant positive correlation was seen between the neonatal gestational age and the mean score of nurse-mother communication. ConclusionsThe total mean score of nurse-parent support and communication was moderate. Therefore, nursing support and communication need to be improved. Planning is needed to enhance the role of neonatal nurses and strengthen their support and communication skills in line with the family-centered care approach.

The efficacy of implementing family-centered care in child feeding practices

Nutrition is a basic need for a child to grow optimally. Improper child feeding practices are still found in the community, leading to malnutrition. The incidence of malnutrition has increased sharply in children aged 6 to 18 months in various countries, primarily due to ignorance and/or an inability to prepare food. The family plays a crucial role in the prevention and treatment of child nutrition problems. Families can provide education and practical supervision in addressing nutrition-related issues, including promoting healthy lifestyle patterns. The objective of this study was to determine the effectiveness of implementing family-centered care in changing child feeding practices. The research design employed was true experimental analysis with a pre-posttest group design. The population consisted of 130 respondents, infants aged 6 to 23 months, selected using a probability sampling technique with purposive random sampling. The research was conducted in Wonokromo, Surabaya, Indonesia, from March to June 2023. The measuring instrument utilized was a family-centered care-based child feeding guide. The independent variable in the study was family care, while the dependent variable was the change in the child's feeding practices. Test analysis was performed using the Mann-Whitney test. The results of the Mann-Whitney test indicated a significant difference in feeding practices before and after counseling with the family-centered care approach (p = 0.043). Thus, family-centered care was found to be effective in changing child feeding practices.

The Experience of Witnessing Resuscitation among Patients’ Families: A Phenomenological Study

Background: Understanding the experiences of patients’ family members witnessing resuscitation helps develop care plans. Accordingly, this study aimed to explore the experiences of witnessing resuscitation among the patients’ family members. Methods: A total of 15 patients’ family members were interviewed over a 4-month period (from April to July 2019). The participants were recruited through purposive sampling, and they were enlisted from three educational hospitals in Tabriz. Data were analyzed using Smith’s interpretative phenomenological analysis (IPA) via the MAXQDA12 software. Results: Data analysis led to the identification of four main themes and nine subthemes. The main themes included "the insistence on being present", "achieving calmness", "partnership and collaboration" and "hindrance". Conclusion: Although family members reported feelings of agitation towards the health professionals, there was also strong evidence of the benefits of witnessing resuscitation such as open communication, psychological support, and facilitating acceptance of the patient’s prognosis. The study highlighted the importance of developing formal policies based on a family-centered care (FCC) approach to observe family presence during resuscitation while maintaining the patient’s and family’s rights.

Global prevalence and risk factors of emergence delirium in pediatric patients undergoing general anesthesia: A systemic review and meta-analysis

ProblemEmergence delirium (ED) in children post-general anesthesia has been persistently underestimated, impacting the well-being of children, nurses, and even parents. This study employs integrated analysis to establish a comprehensive understanding of ED, including its occurrence and related risk factors, emphasizing the imperative for enhanced awareness and comprehension among pediatric nursing care providers. Eligibility criteriaA systematic review and meta-analysis were conducted using four electronic databases, namely PubMed, CINAHL via EBSCOhost, Embase via Elsevier, and ProQuest Dissertations and Theses. ResultsThis meta-analysis included 16 studies involving 9598 children who underwent general anesthesia. The pooled prevalence of ED was 19.2% (95% confidence interval [CI] = 0.12 to 0.29), with younger patients exhibiting a higher prevalence of ED. ED research is scant in Africa and is mostly limited to the Asia Pacific region and Northern Europe. Neck and head surgery (odds ratio [OR] = 2.34, 95% CI = 1.29 to 4.27) were significantly associated with ED risk. ConclusionsED should be monitored in children who receive general anesthesia. In this study, ED had a prevalence rate of 19.2%, and head and neck surgery were significantly associated with ED risk. Therefore, healthcare professionals should carefully manage and prevent ED in children undergoing general anesthesia. ImplicationsA comprehensive understanding of ED's prevalence and risk factors is crucial for enhancing nursing care. Adopting a family-centered care approach can empower parents with information to collaboratively care for their children, promoting a holistic approach to pediatric healthcare.

Research on Family-Centered Care in pediatric patients: A Bibliometric Analysis

ObjectiveThis study is conducted as a bibliometric analysis to determine the trends in studies related to family-centered care in children. Materials and methodsThe Web of Science database was used to collect study data. A search was conducted on Web of Science using the keywords “family-centered care”, “family centered care”, “family-centred care”, “family centred care”, “family-integrated care”, “family integrated care”, “patient and family centered care”, “patient- and family-centered care” and “child” or “pediatric” or “pediatrics” or “child” or “newborn” or “neonatal” or “adolescent” together. The VOSviewer program was used for data analysis and visualization. The analysis included the number of publications by year, distribution by journals, most cited studies, countries with the highest publication output, most frequently used keywords, and co-authorship dimensions, presented with visual maps. ResultsA total of 2525 studies conducted from 1980 onwards were analyzed. The analysis revealed that the initial publications related to the subject emerged in 1980, and the United States was identified as the country with the highest number of publications, based on the Web of Science database. The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) was determined as the journal with the highest number of publications, while the journal receiving the most citations was PEDIATRICS. ConclusionThe study found an increasing importance given to the Family-Centered Care Approach since the 1980s, with a majority of studies being descriptive in nature. It was determined that the studies were concentrated in the USA indicating a lack of global interest in the Family-Centered. Practical implicationsNursing researchers can build upon this study in the field of family-centered care by conducting more specific and in-depth investigations. This contributes to adding new information to the nursing literature and filling gaps in this area.

Coping strategies of fathers and siblings of children with cancer: a literature review

IntroductionsThe impact of paediatric cancer diagnosis on the family system is universally recognised, as well as the need for the family to find a new balance. Paediatric nurses, being promoters...

Perceived barriers of family-centred care in neonatal intensive care units: A qualitative study.

Family-centered care (FCC) approach in neonatal intensive care units (NICUs) has been shown to improve family satisfaction and quality of care. However, several contextual barriers influence its use in NICUs, and these barriers are understudied in Ghana. To describe FCC practice in Ghanaian NICUs in order to understand the contextual barriers. The study employed a descriptive qualitative design. The researchers used a structured interview guide to collect the data in 24 interviews and 12 focus group discussions. We engaged families (n = 42), nurses and midwives (n = 33), and doctors (n = 9) to describe their perspectives on the barriers to FCC in two public tertiary hospital NICUs. The data were mapped, triangulated, and aggregated to inform the findings. Thematic analysis and MAXQDA qualitative software version 2020 were employed to analyse the data. This qualitative study followed the COREQ guidelines and checklist. Perceived family barriers and perceived facility barriers to FCC were the two main themes. The perceived family barriers include family stress and anxiety, inadequate information sharing and education, culture and religion. The perceived facility barriers are inadequate space and logistics, workload and inadequate staff, restricted entry, and negative staff attitudes. The findings of this study shed light on the barriers to FCC practice in neonatal care in Ghanaian NICUs. Family stress and anxiety, a lack of information sharing, cultures and religious beliefs, NICU workload and staffing shortages, restrictions on family entry into NICUs, and staff attitudes towards families are all contextual barriers to FCC practice. Health facility managers and NICU staff may consider addressing these barriers to implement FCC in the NICU in order to enhance family satisfaction and quality neonatal care. The design of future NICUs should consider family comfort zones and subunits to accommodate families and their sick infants for optimal health care outcomes. The development of communication models and guidelines for respectful NICU care may aid in integrating families into ICUs and promoting quality health care outcomes.

Maternal Needs and Priorities in Neonatal Intensive Care Environment: A Cros- sectional study in the UAE


 
 
 Background: HospitalizaBon of neonates in the Neonatal Intensive Care Unit (NICU) pre- sents significant stress and adaptaBon challenges for mothers. Understanding their needs is crucial for opBmal care, as unmet needs can adversely affect both maternal and infant health outcomes.
 Purpose: This study aims to systemaBcally assess the maternal needs and prioriBes in the NICU seRng, emphasizing the significance of maternal well-being in neonatal care.
 Methods: Employing a cross-secBonal survey design, we engaged 200 mothers of hospi- talized neonates in Al Qassimi Women and Children Hospital, Sharjah. The Maternal Needs Inventory, comprising 25 items across five dimensions (Assurance, Proximity, InformaBon, Support, and Comfort), was uBlized. Mothers rated their needs and listed their top five prioriBes.
 Results: Assurance needs emerged as paramount, with 87.2% of mothers highlighBng them as criBcal. Comfort needs were deemed least important (52.4%). A significant associaBon was noted between maternal needs and certain demographic variables, underscoring the diversity of maternal experiences in the NICU.
 Conclusion: The Maternal Needs Inventory proves to be an effecBve tool in recognizing and addressing mothers’ needs in the NICU. Addressing these needs is vital for fostering a family-centered care approach, crucial for both maternal and neonatal well-being.
 
 

Experiências vividas por cuidadores em terapia ocupacional por meio de telessaúde no meio de uma pandemia

Abstract Within the context of the COVID-19 pandemic, telehealth was seen to be a viable and alternative solution to provide occupational therapy services in the Philippines. This phenomenological study aimed to describe the lived experiences of Filipino parents and carers in receiving occupational therapy through telehealth for their children with disabilities. We interviewed 10 participants who were considered primary carers of a Filipino child with disabilities undergoing telehealth during the COVID-19 pandemic situation. An interpretative phenomenological analysis involving double hermeneutics was employed to analyze the interviews that yielded four themes: “dimensions of telehealth in occupational therapy”, “reinforcing family-centered occupational therapy”, “emphasizing an occupational therapist’s advocacy role”, and “telehealth in occupational therapy–today and tomorrow”. Our findings suggest that in order for telehealth to be a sustainable service, it should be seen not merely as an alternative in the occupational therapy service delivery process. Although telehealth remains to be an evolving concept and practice within health services, telehealth must be practiced within the principles of family-centered care approaches, interprofessional collaboration, and health accessibility and equitability. This study hopes to facilitate intersections between service providers and service users to cultivate a shared goal of bringing together experiences that will inform a more contextualized occupational therapy and telehealth practice at the tail-end of the pandemic. In conclusion, telehealth in occupational therapy shall not be an alternative, but an integrative tool that occupational therapists can maximize to transform occupational therapy access and equity.

Age, Gender and Children Opinion with Social-Emotional Development among Preschool Children in Flood-Prone Areas

Background: Preschool children are at a risk of social-emotional problems at 58.8%, with 72.2% of post-flood disaster children experiencing emotional behavior problems. In flood-affected areas, the self-concept of preschool children shows poor self-image (53.4%), low self-esteem (56.8%), and a negative self-role (52.3%).Purpose: To understand the overview and factors correlation to the social-emotional development of preschool children in flood-prone areas.Methods: This research was designed as a descriptive cross-sectional study. A total of 125 preschool children living in flood-prone areas were the research subjects. The ASQ-SE questionnaire was used to measure the social-emotional development of children. Spearman tests were conducted to determine the correlation between respondent characteristics and social-emotional development.Result: This study shows 88% of preschool children living in flood-prone areas are at risk of experiencing social-emotional problems. The questions with the highest scores in the 36-month, 48-month, and 60-month questionnaires were related to children intentionally hurting themselves. Gender is significantly correlated with the social-emotional development of children in flood-prone areas (p 0.05).Conclusion: Preschool children in flood-prone areas are more likely to experience social-emotional problems. Gender plays a role in the social-emotional development of children. The results provide insight for pediatric nurses in developing interventions to prevent social-emotional problems in children with a family-centered care approach.

A SCOPING REVIEW: EXPLORING COLLABORATIVE GOAL SETTING AMONG AGING ADULTS AND CARE PARTNERS

Abstract Evidence suggests that goal setting and care partner support help aging adults improve their health. Less is known about how aging adults and care partners collaboratively participate in goal setting. The purpose of the current review was to describe the scope of the literature on this topic. A search was conducted in PubMed, CINAHL, SocINDEX, and PscyINFO. Reviewers screened 1,231 articles for the following inclusion criteria: 1) Participants included aging adults (50+ years) and care partners, 2) Goal setting was conducted, and 3) Articles were in English. Of the twenty-nine articles that were included, most (n=21) assessed goal setting for care partners and aging adults separately. Goal setting was primarily directed toward patient care, with only a few studies prompting care partner specific goals (n=4). Common goals reported by aging adults were independence, improving or maintaining functioning, addressing symptoms, and remaining socially active. Care partners listed similar goals but also identified accessing services and supports as important. This review is the first to describe goal setting with aging adults and their care partners, revealing concordant and discordant prioritization of goals within dyads. These findings illustrate the importance and potential complexity of including care partners in the goal setting process. We also found that collaborative goal setting and care partner directed goals are scarce, indicating the need for additional work in this area. Collaborative goal setting aligns with patient and family-centered care approaches and can contribute to better care plans that meet the needs of aging adults and their care partners.

An Integrative Review of Grandparents' Experiences in Childhood Cancer.

Background: While it is generally accepted that childhood cancer has a profound impact on the family unit, there has been little focus on the experiences of grandparents who are affected by the diagnosis. Grandparents play an integral role throughout the child's illness trajectory as they are called upon to provide support physically, spiritually, emotionally, and at times financially. This integrative review examines the current research specific to grandparents' experiences of childhood cancer. Method: CINAHL, PubMed, and Web of Science were searched using the key terms "grandparent*" AND "experience*" AND "child*" AND "cancer." Inclusion criteria used for this review were as follows: electronic full text, peer-reviewed, and published in English between 2012 and 2022. Results: Grandparents of children with cancer experience an emotional whirlwind, a double-whammy effect, the giving and receiving of support, a balancing act, and attempt to find meaning throughout the diagnosis. They feel unacknowledged and unsupported by the health care team. Discussion: It is difficult to deny the emotional and familial impact the child's cancer diagnosis has not only on the child and immediate family but also on grandparents. While the reports of grandparents are consistent across studies, there have been lackluster attempts to mitigate the suffering experienced by this group. Pediatric oncology nurses, with their family-centered care approach, are in a unique position to uncover and meet the specific needs of grandparents of children diagnosed with cancer.

Service Climate and Nurses' Collaboration with Families of Older Patients in the Care Process during Hospitalization.

This study focuses on the concrete role of the presence of a ward's service climate in cultivating nurses' collaboration with family members. Accordingly, this study examined the moderating role of the service climate in the link between nurses' attitudes toward the family and their collaboration with family members in the care process. This is the second article of a series of studies we conducted among health staff in Israeli public hospitals. Relying on the patient- and family-centered care approach and using a cross-sectional study of 179 nurses from 13 internal medicine, surgical and geriatric wards at a large public hospital in Israel, we conducted a multiple regression analysis to test the contribution of all relationship variables to predicting nurses' collaborative behavior with the family in the care process during elderly hospitalization. The findings indicate that service climate had a conditional moderating effect on the relationship between nurses' perception of the family as a burden and their collaboration with the family in nursing care. Namely, in the absence of a targeted service climate, nurses form perceptions about the families as a burden, which in turn affects their distinct non-collaboration, and vice versa.

Including families in schizophrenia treatment: a systematic review

The family as one of system support for schizophrenia treatment in the primary care setting has been a challenge in integrating family services into mental health. This study aimed to review the urgent of family involvement during the treatment of schizophrenia in health mental services using the Family-Centered Care approach. A systematic review was performed using the population, intervention, comparison, outcome, study design (PICOS) framework within Scopus (27 articles), ProQuest (151 articles), Science Direct (93 articles), EBSCO (124 articles), and Springer (149 articles) published databases in the last five years using the keywords of “Family- Centered Care, nursing, AND Schizophreni*”. The articles were empirical quantitative, qualitative, or mixed-methods studies published within 2017- 2021 where study participants were clinically diagnosed with schizophrenia and intervention approaches were within the scope of family involvement. Twenty-four articles met the inclusion criteria for review. Evidence supports a professionally engaged relationship between patients, families, and providers with open knowledge exchange, communication, and collaboration. Family-centered care requires empathy, understanding, respect, and empowerment to choose, control decisions, and empower in the treatment of schizophrenia. This study concludes the importance of family involvement in the treatment of schizophrenia from the start. Health care providers help families through the admissions process.

Understanding Family-centered Care and Related Factors From the Perspective of Mothers of Children With Autism Spectrum Disorder

Introduction: Autism spectrum disorder (ASD) presents numerous challenges for families with affected children due to communication and social interaction difficulties. Adopting a family-centered care approach can enhance the quality of care and increase the satisfaction of families seeking medical services for children with ASD. Objective: This study aims to assess the status of family-centered care and its related factors among mothers of children with ASD in Rasht City, Iran. Materials and Methods: A cross-sectional analytical study was conducted on 183 mothers of children with ASD in Rasht, utilizing a census approach at Guilan Welfare Centres in September 2020. Data collection tools involved questionnaires on individual-family characteristics and the measure of processes of care, a 20-item questionnaire, which was validated and reliable. Descriptive and inferential statistics, including the Pearson test, independent t-test, analyses of variance, and multiple linear regression, were used for data analysis. Results: Out of 183 participants (69.31%), met the study criteria most mothers held a diploma (41%) and were housewives (74.3%). The scores for “empowerment and partnership” and “general information” aspects were below mean score, while “specific information”, “comprehensiveness and coordination” of services, and “respect and support” aspects received scores above mean score. The aspect of “specific information” received the highest score (55.4±16.2), while the “general information” aspect received the lowest (45.3±88.1). The regression model revealed that the child’s gender (B=-0.58, 95% CI, -1.07% to 0.001%, P=0.001), sufficiency of health insurance (B=-1.19, 95% CI, -2.17% to -0.21%, P=0.017), and severity of ASD (B=-1.25, 95% CI, -2.46% to -0.04%, P=0.042) significantly influenced empowerment and participation, general information, and specific information aspects. The family residence also impacted the aspect of respect and support (B=-1.24, 95% CI, 0.57% to 1.17%, P=0.001). Conclusion: The study findings revealed that mothers’ understanding of family-centered care in empowerment/participation and general information was below mean score. This finding highlights the importance of focusing on family-oriented approaches while providing services and care to families with children with ASD.