Families Of Disabled Children Research Articles

Social Support among Families of Disabled Children at Ajloun Area Regarding to some Variables, the Type and the Degree of Disability of the Child

The study aimed to expose the level of the total social support among Families of children with learning disabilities according to some variables, the child disability type and the degree in Ajloun Area. In order to get the objectives of this study, the researcher used social support scale, which was built by Abdelalmaksoud and Al-Sarsi, and Arabized by Diab (2006) and the researcher reedit it to be suitable for the Jordanian area, and was modified to fit the study sample. and the validity and stability of this scale were found, and the sample constains of (38) of disabled children's' families who are selected intentionally, and the researcher analyzed the data by finding the correlation coefficients ,the arithmetic averages and standard deviations and finding the value of (t). The study shows that the total social support level among families of disabled children in Ajloun city is average. There aren't any statistically significant differences at the level (α≤ .05) of the level of total social support among Families of disabled children according to the variables( the gender, the age and the educational level for the family (the father, the mother), the type and the degree of disability and the economic level of the family of the disabled child's family). The results were also discussed in the light of the theoretical literature and previous studies, and some recommendations were suggested based on the results of the study.

THE SITUATION OF DISABLED CHILDREN IN FAMILIES AT RISK: A SOCIOLOGICAL ANALYSIS

The article is devoted to the study of the possibilities of a sociological research of the situation of child disability and family at risk. The author analyzes the growing indicators of child disability in Russia: the number of children with disabilities, distribution by sex and age, nosology, the level of disability in the regions of the Russian Federation, as well as indicators of inclusion (visiting educational organizations, leisure activities). The assessment of the indicators representing satiation of families at risk is carried out on the basis of the deprivation methodology of the Institute of Socio-Economic Problems of the Population of the Russian Academy of Sciences (income level, living conditions, pedagogical and social competence of parents, consumption of educational, medical, social services, psychological climate in the family). The author comes to the conclusion that a theoretical study of the position of a disabled child in a family at risk can be carried out within the framework of the structural-functional theory, structuralism theories, theory of social conflicts, symbolic interactionism, social constructivism, phenomenology and ethnomethodology, behaviorism, neo-Freudianism, etc., which provides wide opportunities for building a theoretical model of the mutual influence of family dysfunction and child disability. The article also presents the results of a secondary analysis of data from a public opinion survey on child disability obtained by questionnaire survey (N = 1618) and in-depth interviews (N = 16). The author presents the results of his own empirical research: a questionnaire survey of specialists working with families of disabled children (N = 101, respondents are employees of educational, medical, social organizations) and interviews of social workers (N = 9, respondents are employees of social service organizations). Based on the analysis of the collected data on the situation within the family, the author derives the modal characteristics of a family at risk and the position of a disabled child in it. As important factor of social exclusion, the author calls the isolation of the family, its closeness and obstruction of interventions by social protection institutions.

Corrigendum

Corrigendum

Effects of activity groups, in which art activities are used, on resilience and related factors in families with disabled children.

This study aims to examine the effects of activity groups using art activities on resilience and related factors in mothers with disabled children. This randomized controlled experimental design study was conducted with 33 mothers (18 in the control and 15 in the intervention group). A statistically significant difference was found between the intervention group's pretest and posttest mean scores on the Resilience Scale for Adults, the Satisfaction with Life Scale, Zarit Burden Interview, and 12-item General Health Questionnaire scales. The psychological activity groups that used art activities were found to increase psychological well-being and satisfaction with life among the families of disabled children with various types of distress (physical, psychological, economic, and social), as well as reducing their mothers' perceived caregiving burden.

WAYS TO IMPROVE THE PERSONAL SELF-REGULATION OF SOCIAL WORKERS

The article deals with the problem of improving the personal self-regulation of social workers. On the basis of the analysis of scientific literature, the specificity of changes in the sphere of self-regulation of a social worker is examined both during the period of adaptation to the profession and depending on the peculiarities of professional activity. The classification of mechanisms of self-regulation at different levels of psychical actions is given. The regularities of the influence of the social situation of parents of children with special needs on the sphere of self-regulation of this category of adults are determined. Emphasizes the need for social workers working with such clients to be aware of the specifics of the changes taking place in their psychological sphere. The following ways of improving the personal self-regulation of social workers are offered, such as mastering the skills of self-regulation in the process of training work. A program of training active social psychological training for specialists working with families of disabled children is presented. The place of this training in the educational process is determined. A list of expected practical results of the Personal Growth Training for specialists is given.The results of the study of the level of stress resistance of social workers before and after the training are presented. It emphasizes the effectiveness of this form of work with specialists, taking into account the specifics of the social situation of clients

The cost of mental and physical health disability in childhood and adolescence to families in the UK: findings from a repeated cross-sectional survey using propensity score matching

ObjectiveIn the UK, families of disabled children are entitled to receive disability benefits to help meet costs associated with caring for their child. Evidence of actual costs incurred is scant,...

Evaluating the playground: Focus group interviews with families of disabled children

Evaluating the playground: Focus group interviews with families of disabled children

Ilusões de escolha: experimentando testes pré-natais

Resumo: Os testes pré-natais para anomalia fetal fazem o que a medicalização frequentemente pratica: individualiza os problemas sociais, e coloca a responsabilidade de gerenciá-los sobre os ombros de mulheres individuais. Quando o diagnóstico revela que a criança nascerá com algum tipo de deficiência, recai sobre a mulher a responsabilidade da "escolha": interromper a gestação ou arcar com as responsabilidade de ter uma criança que não terá nenhum tipo de apoio e assistência para garantir a qualidade de vida desta criança.

Convergent Caregiving: Exploring Eldercare in Families of Children with Disabilities

This study explores eldercare in families of disabled children. Qualitative analysis of interviews with eight mothers simultaneously caring for elders and children with extended care needs suggests that (a) elders who need care may have previously been a critical source of support; (b) resources needed for one type of care may be depleted by the other; (c) family members may feel mothers are too burdened to care for elders; (d) the skills acquired in the process of parenting children with disabilities can transfer to eldercare; and (e) bonds between children with disabilities and elders may help mothers cope with convergent caregiving.

Meeting the Information Needs of Families of Children with Chronic Health Conditions

Families of disabled children 1 have many questions about their child’s condition, prognosis, and effective treatments and therapies. This commentary considers how researchers and clinicians can respond appropriately, by providing families with reliable information and enable them to make informed decisions about health care for their child. First, we consider some of the ways in which we can identify what questions and information families are interested in; then we consider some of the ways in which these information needs might be addressed. We reflect on our experiences and some of the lessons learned at the Peninsula Cerebra Research Unit (PenCRU), University of Exeter Medical School, Exeter, UK. PenCRU seeks to work in partnership with families of disabled children, consistent with the idea of “Family-centered research” (Rosenbaum, 2011).

Family and Disability: An Example of Behavioural Parent Training

The aim of this paper is to focus on adaptation processes that families of disabled children must realize for a correct beginning of the entire system. In particular, difficulties that parents must face in order to manage maladaptive and non compliant behaviours were analysed. A Behavioural Parent Training was proposed to parents of non compliance children with intellectual disabilities and to parents of non compliance children but with a typical development. Of course, we won't to compare these different family contexts but underline that, in both situations, it is possible to give adequate support to parents and help them on management children behaviours.

A Unique Child: inclusion - Doing Christmas differently

Families of disabled children can find the festive period less stressful if they take take a different approach to typical Christmas celebrations. Rachael Clark and Katherine Runswick-Cole, both parents of disabled children, explain how

Un Modelo de Trabajo con Padres de Niños Discapacitados en Base a la Teoría de Duelo

In this paper, the difficult moments and processes that parents and families of handicapped children have to go through are understood as phases related to the ones described by the traditional bereavement theory (Kubler- Ross, 1969). A model based in this conceptualization is described for working with these families, highlighting the psychologist's role regarding holding and discovery of personal and familiar resources that may enable the family elaborate the situation.

A Unique Child: Inclusion - Parent champions

Support services are available for families of disabled children, but parents need to be helped to access them. Mary Evans hears how.

Disabling Able

Disabling Able

Creating Visible Children?

Creating Visible Children?

Better support and more choice for families of disabled children

Better support and more choice for families of disabled children

Key worker services for disabled children: what characteristics of services lead to better outcomes for children and families?

Research has shown that families of disabled children who have a key worker benefit from this service and recent policy initiatives emphasize the importance of such services. However, research is lacking on which characteristics of key worker schemes for disabled children are related to better outcomes for families. A postal questionnaire was completed by 189 parents with disabled children who were receiving a service in seven key worker schemes in England and Wales. Path analysis was used to investigate associations between characteristics of the services and outcomes for families (satisfaction with the service, impact of key worker on quality of life, parent unmet need, child unmet need). The four path models showed that key workers carrying out more aspects of the key worker role, appropriate amounts of contact with key workers, regular training, supervision and peer support for key workers, and having a dedicated service manager and a clear job description for key workers were associated with better outcomes for families. Characteristics of services had only a small impact on child unmet need, suggesting that other aspects of services were affecting child unmet need. Implications for policy and practice are discussed, including the need for regular training, supervision and peer support for key workers and negotiated time and resources for them to carry out the role. These influence the extent to which key workers carry out all aspects of the key worker's role and their amount of contact with families, which in turn impact on outcomes.

Challenging statutory limitations on children's education rights: a re-examination of the Canadian Supreme Court Decision inAuton

The 2004 Supreme Court of Canada decision in Auton concerns the right of autistic children to access services held by their parents to be essential to their children's ability to participate as members of a democratic society. It is argued that the child's right to have his or her basic developmental needs met is a constitutionally protected one. Having those developmental needs met engages both education and health rights. In Auton the parents had sought funding for the service at issue from the Ministry of Health, the Ministry of Children and Families (which dealt with mental health services and other particular support programs for the families of disabled children) as well as from the Ministry of Education. The case raises central questions regarding the very nature of education and the constitutionality of a discretionary power of government to set out statutory limitations upon fundamental human rights including education rights.

Preliminary validation of a parental adjustment measure for use with families of disabled children in rural India.

Parental adjustment is an important outcome in child disability interventions, as well as an important mediating variable for other child and family outcomes. This is just as true in developing countries using models of community-based rehabilitation. Previous experience with Western instruments indicated that an appropriate new measure was required. A questionnaire containing 34 attitude statements rated on a five point scale was administered to the mothers of 46 children with epilepsy in a treatment programme in rural West Bengal, India. Factor analysis was performed on the dataset. Mothers reported feelings of rejection, low self-esteem and guilt. Four domains were derived from the factor analysis. All these attitudes are consistent with previous indian studies on childhood disability. These preliminary findings have implications for social support and counselling intervention. Further research is necessary to validate this instrument for field studies of intervention.