Facebook Community Research Articles

Congenital Colorectal Conditions: Caregiver Perspectives of Their Experience in the Neonatal Intensive Care Unit.

This study aimed to examine the experiences of children with colorectal conditions who spent time in the Neonatal Intensive Care Unit (NICU) and their caregivers. In March 2024, a 36-question survey was sent to the Colorectal Support Network Facebook community, to gather information from caregivers of children who have a congenital colorectal diagnosis and spent time in the NICU. Fifty-two families completed the survey. Most patients were diagnosed after birth (89.47%). Approximately half of respondents stayed in the NICU for one to two weeks (50.88%), lived less than 60 minutes away from the hospital (54.91%), and felt somewhat uncomfortable (28.07%) or very uncomfortable (21.05%) caring for their child's medical needs after discharge. Also 49.12% of caregivers were informed of their child's future bowel control prognosis. When asked for suggestions to improve care in the NICU, common themes included the importance of having colorectal congenital anomalies addressed by colorectal surgeons, and the need for families to be informed about support groups. Counseling families in the NICU with congenital colorectal conditions can be improved by providing additional information and support for families prior to discharge, informing them about their child's prognosis for bowel control, and connecting them with other families.

My Facebook Community

This article offers an autoethnographic account of the ways in which users of local Facebook groups in a U.S. suburb use the spaces to form community and personal identities. Through a reflection on my experiences of using local suburban Facebook groups, the article makes the argument that Facebook fails to offer a needed space for public discourse. However, it does provide a lens through which the negotiation and performance of a middle-class identity can be affirmed and contested. Through a reflection on the author’s experiences using local Facebook groups over a period of three years, the article aims to better understand how this platform fulfills this role in a suburban New Jersey community.

Identifying Patterns among Tourism-Oriented Online Communities on Facebook

The proliferation of social media has transformed how people engage in communication and community building, with platforms like Facebook becoming central to connecting individuals with shared interests. Despite the extensive formation of tourism-oriented online communities on these platforms, there is a notable lack of comprehensive studies examining their structural and managerial dynamics. This study addresses this gap by systematically analyzing fifty international tourism-focused Facebook communities to develop a novel typology based on the nature and type of information shared. The research identifies significant variations in community sizes, engagement levels, and management structures, highlighting that only 6% of these communities qualify as large, with membership exceeding one million. Contrary to common assumptions, a direct link between community size and engagement was not found, with qualitative factors like community purpose and content type being more influential. A notable correlation was observed between the number of administrators and moderators and the member count, emphasizing the importance of effective community governance. The study’s findings contribute to a deeper theoretical understanding of online community dynamics and offer practical implications for tourism marketers and community managers aiming to optimize engagement strategies on social media platforms. The research sets a foundation for future exploration of the interplay between virtual community management and tourism-related discourse.

Comparing the characteristics of firesetting and non-firesetting adults in a New Zealand un-apprehended community sample

This study examines the prevalence of deliberate firesetting in an un-apprehended New Zealand sample and factors that differentiate firesetting and non-firesetting individuals. An anonymous online survey assessing demographic and background characteristics, history of firesetting and psychological characteristics was advertised on Facebook community groups and pinboards across New Zealand. A total of 626 adults completed the survey. One-hundred and three participants (16.45%) self-reported having deliberately set at least one fire over the age of 14 years. When controlling for all other variables in a logistic regression model, having a high-school qualification as the highest level of educational attainment (odds ratio, OR = 2.24), history of a mental health diagnosis (OR = 1.91), fearful attachment style (OR = 1.16) and fire interest (OR = 1.05) showed the strongest unique association with un-apprehended firesetting. Further research is needed to examine the full range of behavioural and psychological characteristics associated with un-apprehended firesetting.

Analisis Perilaku Komunikasi Anggota Komunitas Meme Comic Indonesia Di Facebook

This research is motivated by the proliferation of memes, which have become a new trend in communication on social media, including Facebook. Meme Comic Indonesia (MCI) is one of the popular Facebook groups for sharing memes, with its members consisting of hundreds of thousands of individuals from various regions. The aim of this research is to analyze the communication behavior of meme-sharing among the members of the Meme Comic Indonesia group on Facebook. The study employs a qualitative approach with data collection techniques such as observation, interviews, and documentation. The theoretical framework used in this research is the theory of symbolic interactionism, which comprises three main concepts: mind, self, and society. The results of the research indicate that, in the mind concept, group members share relatively similar motivations and thought patterns in interpreting and using memes as a means of self-expression and entertainment. In the self concept, members shape their online identities and self-images through shared memes to gain acceptance within their Facebook community. In the society concept, simultaneous interactions among Facebook members contribute to a shared understanding of evolving memes over time. The communication behavior of Meme Comic Indonesia group members includes interactions through comments, likes, and the exchange of information through memes. Social interactions among group members in interpreting memes contribute to a shared understanding that can evolve with the passage of time..

Bonsai's Marketing Strategy Centers on Creating Customer Value

This paper contributes to a different marketing approach on how to describe value from the customer's perspective. This research examines value-based pricing by highlighting a customer-centric approach with a focus on customer value creation to explore what this literature can convey in achieving success. The research locus is the research object of the Jombang Bonsai Community FB community which has 16,645 members. with consideration: Members of the Jombang Bonsai Facebook Community Trust; Own a bonsai plant business; Join the community for at least 2 years. The qualitative approach carried out through the data analysis technique used is the Manual Data Analysis Procedure (MDAP), from the results of interviews accompanied by triangulation of sources and theories to produce findings on customer-centred approach marketing strategies including Price Formation: Product and Services, Authorization Use, Resource Access, Benefit Claim Rights, Buyer Type, Availability, Use, Results, Economic Success. As well as Mechanism Policies: Quantity, Price Formation, Price Conditions, Price Discrimination, Product Characteristics, Customer Identity, Transaction Forms, Market Laws.

Can Facebook's community standards keep up with legal certainty? Content moderation governance under the pressure of the Digital Services Act

AbstractContent moderation by social media companies is a challenge for regulators around the world. The European Union is trying to tackle this challenge with its Digital Services Act (DSA). Notably, Article 14 DSA aims to impose language requirements based on the principle of legal certainty to social media companies' terms and conditions, of which community standards (CS) are a part. The principle of legal certainty is one of the building blocks of international human rights law, and its inclusion in the DSA illustrates the human rights‐based approach anchored in this European regulation. Based on a content analysis of Facebook's CS, this paper shows that their standards do not meet European requirements for legal certainty and argues that important changes in content moderation governance would be needed for proper compliance. Such changes could generate a domino effect beyond the European Union and on Facebook's content moderation governance itself. At the same time, the DSA could also generate a boomerang effect on the legal certainty principle as such. From this perspective, the paper contributes to the literature on regulatory governance studies, and on international human rights law in social media studies from a European Union perspective.

Communication Typology of Betawi People in The Virtual Community

Inter-ethnic mixing in Jakarta means the existence of Betawi culture is no longer intact and eliminates the distinctive values of Betawi culture, causing the Betawi people to adapt by using internet technology to interact. This study aims to explain how the Betawi people use virtual communities to represent their original culture to other heterogeneous cultures. This study uses a qualitative method with a netnography approach based on the typology of communication initiated by Alan Rubin (1981). The study population is every form of communication, whether text, images, or videos, uploaded by each community member to the Persatuan Betawi Facebook group. The study results portray that Betawi people utilize the virtual Facebook community through a communication typology consisting of passing time, companionship, escape, enjoyment, social interaction, relaxation, information, and excitement. The study results also show that the presence of virtual communities also influences the social empathy of community members in the real world.

Sharing as displaying: parents’ sharenting practices within conflictual separations

The emergent practice of sharing textual and audiovisual content concerning underage children online by their parents or guardians, also known as ‘sharenting’, is part of emerging digital cultures, which are enabled by affordances provided by new media technologies. Based on data from a passive virtual ethnography of Facebook communities, this article analyses the sharenting practices of parents involved in judicial litigations. While contributing to wider debates on doing and displaying family and controversial sharenting activities, the results of this article show how sharenting is addressed in online communities by administrators and other users; how the privacy vs openness paradox about sharing information and content concerning children’s involvement in judicial litigations is negotiated by parents and administrators; and how online and offline parenting cultures affect sharenting as a practice.

Social Media Campaigns: A Game Changer for the Prevention of Breast Cancer in Romania.

Social media can be used to raise awareness about health issues, especially concerning the importance of periodical screening. The present study aims to identify the role of social media awareness campaigns in the early detection of breast cancer, with a focus on Romania, a country with a high female mortality due to this disease. The research is performed using a survey, based on an online questionnaire, which was self-administered by the respondents included in two samples selected from a Facebook community of Romanian women. Sample A was composed of 1945 women who were not exposed to periodic campaigns regarding the importance of screening for the prevention and early detection of this type of disease, and Sample B was composed of 289 women who were exposed to such annual campaigns within the last 5 years. The results outline several differences among respondents from the two samples regarding their awareness of prevention necessity, as well as the frequency and chosen methods for breast cancer screening. The findings hold important implications for public authorities, which must intensify their efforts in raising women's awareness regarding the importance of screening for the early detection and prevention of breast cancer.

Cognitively testing Aotearoa’s food security questionnaire in the modern context

The eight well-known food security indicators were developed in 1997 using a stepwise process that involved five focus group interviews (one Māori, one Pakeha, two Pacific, and one mixed ethnicity) of 8-16 people, all of whom were either on a low income or were government beneficiaries(1). As part of the development of the tools and methods for a future New Zealand National Nutrition Survey, these eight indicators were considered for inclusion. The Māori and Technical Advisory Groups convened for the development of the National Nutrition Survey foresaw issues with the interpretation of some of the questions given the changes in the food environment and sources of food assistance in the last 25 years and recommended that cognitive testing should be conducted to see if changes were required. Participants were recruited through two community organisations, a local marae, and community Facebook pages. Participants were given the option of participating in a one-on-one interview or as part of a focus group. During each session, participants were asked five (three original and two new) questions relating to food security (running out of basics, use of food assistance, household food preparation and storage resources). After each question, the participants were asked a series of additional probing questions to ascertain whether they had interpreted the question as intended. All interviews were audio recorded and transcribed, and a qualitative analysis was performed on the transcripts to determine areas of concern with each question. A total of 46 participants completed the cognitive testing of the food security questions, including 26 aged 18-64 years, and 20 aged 65+ years. Participants also spanned a range of ethnicities including 8 Māori, 15 Pasifika, 15 Asian, and 8 New Zealand European or Other. Just over half of the participants (n=24) reported themselves to be financially secure, 16 participants reported that their financial security was borderline, 1 participant reported that they were not at all financially secure, and 5 participants declined to answer. Variable interpretations of terms by participants were found in all questions that were tested. Therefore, answers to the food security questions may have not reflected the actual experience of participants. This study also identified other dimensions of food security not assessed by the current eight indicators (e.g., lack of time, poor accessibility). These findings indicate that the food security questions need to be improved to ensure they are interpreted as intended and that new questions are needed that considers all dimensions of food insecurity (i.e., access, availability, utilisation, and stability). These new and amended questions should be cognitively tested in groups that are more likely to be experiencing food insecurity.

English Language Variation on Indonesian Register of Photography to Characterize the Community Identity

This research aims to describe the linguistics form, meaning, and functions under the phenomenon of English language variation used by Indonesian photography enthusiasts. The influence of the English register in lexical categories mostly has undergone a shift in meaning. So, the analysis of English register in the photography context is fascinating to be examined. The method of this research is qualitative descriptive with a sociolinguistics approach. The data are restricted to words and phrases taken from the daily posting of the Facebook community group. The procedure of data collection was conducted by observing and noting the English register among photography enthusiasts. The data were analyzed based on the formation process, the contextual meaning, and identifying the functions and sociolinguistics aspects. This research revealed that the use of English as a foreign language in the conversation of Indonesian photography enthusiasts was largely formed in a 'word' that represent an intended meaning without explain it in a long way. Those terms are functioned to tell the information, experiences, facts, techniques in photography. The involvement of English in the photography register was assumed because several terms do not have equivalent sense in Indonesian language, so it better to use them in English. This research has also showed that the intention of using English in photography community as the characteristics to labeling their social identity, also increasing the speaker's social value, particularly in creating feelings of pride and prestige.

Bystander Intervention in Coercive Control: Do Relationship to the Victim, Bystander Gender, and Concerns Influence Willingness to Intervene?

With rates of coercive control (CC) increasing, there is a need to ensure that intervention programs are underpinned by evidence-based research. Current interventions are scarce, with their efficacy rarely established. Most current interventions appear to rely on victims seeking support from formal sources/agencies, despite suggestions that victims are more likely to confide in people they know, such as their friends. Researchers suggest that a victim's friends may provide an effective source of support and intervention. The aim of this study was to fill the gap in the literature exploring whether the closeness of the relationship to the victim, bystander gender, and bystander concerns influenced attitudes toward intervening in CC situations. The study used an experimental design, whereby participants were randomly allocated to read a vignette depicting a CC scenario involving a friend, colleague, or stranger, and quantitative methods were used to examine bystanders' willingness and concerns about intervening. The sample was 340 Australian participants (229 female, 111 male), recruited from social media, namely community Facebook groups. The results indicated that friends were significantly more willing to intervene than colleagues or strangers, while strangers reported the highest concerns about intervening. Females reported significantly higher willingness to intervene than men despite also reporting higher concerns. Exploratory analysis of concerns about intervening revealed that the participants were most concerned about risk of harm and their beliefs in their ability to successfully intervene. These findings have implications for bystander intervention programs and campaigns, including offering a range of potential directions to enhance intervention program content.

STRATEGY IN SAMPRADAYA DISCOURSE ON FACEBOOK

Background: The term sampradaya is used to denote the Hindu spiritual community in Bali with new traditions and ways originating in India starting in 1980. The debate about sampradaya also took place on social media, resulting in contesting discourses. Research on sampradaya discourse on social media is still very poorly conducted. Based on this, the study aims to determine the strategy of sampradaya discourse in the battle of discourse about sampradaya on Facebook. Methods: This research uses a combination of critical di methods Teun Van Dijk model and netnographic methods. Research data in the form of discourse was collected by copying communication between participants in the Facebook community environment. Result: Based on research, the strategies used by discourse in combat are symbolic capital strategies, reproduction strategies, distinctive strategies, rejection and exclusion strategies, and transformation strategies. Conclussion: The strategies employed in the discourse battles of the Sampradaya on Facebook encompass symbolic capital, reproduction, distinction, rejection and exclusion, and transformation strategies. The use of these strategies in discourse battles aims to maintain and, in some cases, alter the distribution of symbolic resources in relation to power hierarchies, thereby influencing the online community.

The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis.

Social media has the potential to provide social support for rare disease communities; however, little is known about the use of social media for the expression of medical uncertainty, a common feature of rare diseases. This study aims to evaluate the expression of medical uncertainty on social media in the context of dyskeratosis congenita, a rare cancer-prone inherited bone marrow failure and telomere biology disorder (TBD). We performed a content analysis of uncertainty-related posts on Facebook and Twitter managed by Team Telomere, a patient advocacy group for this rare disease. We assessed the frequency of uncertainty-related posts, uncertainty sources, issues, and management and associations between uncertainty and social support. Across all TBD social media platforms, 45.98% (1269/2760) of posts were uncertainty related. Uncertainty-related posts authored by Team Telomere on Twitter focused on scientific (306/434, 70.5%) or personal (230/434, 53%) issues and reflected uncertainty arising from probability, ambiguity, or complexity. Uncertainty-related posts in conversations among patients and caregivers in the Facebook community group focused on scientific (429/511, 84%), personal (157/511, 30.7%), and practical (114/511, 22.3%) issues, many of which were related to prognostic unknowns. Both platforms suggested uncertainty management strategies that focused on information sharing and community building. Posts reflecting response-focused uncertainty management strategies (eg, emotional regulation) were more frequent on Twitter compared with the Facebook community group (χ21=3.9; P=.05), whereas posts reflecting uncertainty-focused management strategies (eg, ordering information) were more frequent in the Facebook community group compared with Twitter (χ21=55.1; P<.001). In the Facebook community group, only 36% (184/511) of members created posts during the study period, and those who created posts did so with a low frequency (median 3, IQR 1-7 posts). Analysis of post creator characteristics suggested that most users of TBD social media are White, female, and parents of patients with dyskeratosis congenita. Although uncertainty is a pervasive and multifactorial issue in TBDs, our findings suggest that the discussion of medical uncertainty on TBD social media is largely limited to brief exchanges about scientific, personal, or practical issues rather than ongoing supportive conversation. The nature of uncertainty-related conversations also varied by user group: patients and caregivers used social media primarily to discuss scientific uncertainties (eg, regarding prognosis), form social connections, or exchange advice on accessing and organizing medical care, whereas Team Telomere used social media to express scientific and personal issues of uncertainty and to address the emotional impact of uncertainty. The higher involvement of female parents on TBD social media suggests a potentially greater burden of uncertainty management among mothers compared with other groups. Further research is needed to understand the dynamics of social media engagement to manage medical uncertainty in the TBD community.

Shallow Engagement in Highly Engaged Pages. The Influence of Perceived Value, Content Reliability, and Homophily on Disseminating Information on Valencia Bonita Facebook Community Page

Shallow Engagement in Highly Engaged Pages. The Influence of Perceived Value, Content Reliability, and Homophily on Disseminating Information on Valencia Bonita Facebook Community Page

Acculturating again: Taiwanese migrants' enduring COVID-19 coping paradox in the UK

PurposeThe COVID-19 pandemic has caused severe challenges to ethnic minorities in the UK. While the experiences of migrants are both complex and varied depending on individuals' social class, race, cultural proximity to the host country and acculturation levels, more in-depth studies are necessary to fully understand how COVID-19 affects specific migrant groups and their health. Taiwanese migrants were selected because they are an understudied group. Also, there were widespread differences in pandemic management between the UK and Taiwan, making this group an ideal case for understanding how their acculturation journey can be disrupted by a crisis.Design/methodology/approachQualitative data were collected at two different time points, at the start of the UK pandemic (March/April 2020) and six months on (October/November 2020), to explore migrant coping experiences over time. Theoretically, the authors apply acculturation theory through the lens of coping, while discussing health-consumption practices, as empirical evidence.FindingsBefore the outbreak of the pandemic, participants worked hard to achieve high levels of integration in the UK. The pandemic changed this; participants faced unexpected changes in the UK’s sociocultural structures. They were forced to exercise the layered and complex “coping with coping” in a hostile host environment that signalled their new marginalised status. They faced impossible choices, from catching a life-threatening disease to being seen as overly cautious. Such experience, over time, challenged their integration to the host country, resulting in a loss of faith in the UK’s health system, consequently increasing separation from the host culture and society.Research limitations/implicationsIt is important to note that the Taiwanese sample recruited through Facebook community groups is biased and has a high level of homogeneity. These participants were well-integrated, middle-class migrants who were highly educated, relatively resourceful and active on social media. More studies are needed to fully understand the impact on well-being and acculturation of migrants from different cultural, contextual and social backgrounds. This being the case, the authors can speculate that migrants with less resource are likely to have found the pandemic experience even more challenging. More studies are needed to fully understand migrant experience from different backgrounds.Practical implicationsPublic health policymakers are advised to dedicate more resources to understand migrants' experiences in the host country. In particular, this paper has shown how separation, especially if embraced temporarily, is not necessarily a negative outcome to be corrected with specific policies. It can be strategically adopted by migrants as a way of defending their health and well-being from an increasingly hostile environment. Migrants' home country experience provides vicarious learning opportunities to acquire good practices. Their voices should be encouraged rather than in favour of a surprising orthodox and rather singular approach in the discussion of public health management.Social implicationsThe paper has clear public health policy implications. Firstly, public health policymakers are advised to dedicate more resources to understand migrants' experiences in the host country. Acknowledging migrants' voice is a critical first step to contribute to the development of a fair and inclusive society. Secondly, to retain skilful migrants and avoid a future brain-drain, policymakers are advised to advance existing infrastructure to provide more incentives to support and retain migrant talents in the post-pandemic recovery phase.Originality/valueThis paper reveals how a group of previously well-integrated migrants had to exercise “coping with coping” during the COVID crisis. This experience, over time, challenged their integration to the host country, resulting in a loss of faith in the UK’s health system, consequently increasing separation from the host culture and society. It contributes to the understanding of acculturation by showing how a such crisis can significantly disrupt migrants' acculturation journey, challenging them to re-acculturate and reconsider their identity stance. It shows how separation was indeed a good option for migrants for protecting their well-being from a newly hostile host environment.

Phantoms of Faith—Experiences of Rupture and Residue of Amputated Religiosity among Norwegian Ex-Charismatic Christians

This article explores non/religious emotions and experiences among a group of high-cost Christian charismatic disaffiliates in Norway. It is a case study of members of the Facebook community “The Journey” (no. “Reisen”). With a qualitative approach, it uses lifestory interviews from 24 ex-Charismatics to describe their experiences of what I call phantoms of faith. The article gives thick descriptions of the disaffiliates’ negotiations between current and past emotions and experiences and the explanations they have for these. It uses the metaphor of phantom to explore embodied and emotional religiosity, for which the analysis is inspired by the conceptual framework of Pagis and Winchester’s somatic inversions. The analysis shows how phantom faith experiences create ruptures and dissonance in the disaffiliates’ everyday lives and thus produce interpretative demands. The article argues that leaving charismatic Christianity, in this material, on an embodied and emotional dimension is much more complex than the cognitive and social dimensions of disaffiliation. Scholarly understandings of this phenomenon have implications for the disaffiliates who experience them, as well as the scholarly constructions of the spaces and categories between religion and non-religion. It argues that such experiences have been somewhat understudied in the literature and that current conceptualizations should be further developed.

Shaming behavior in online communities: exploring a new configuration of digital conversations

PurposeThis research aims to conceptualize online shaming discourse in virtual communities and to serve as a practical guide for online community managers and members.Design/methodology/approachThis conceptual study explores the construction of meanings in human interaction in online communities by presenting a conceptual model, “The Triple-Responsibility Model in Online Communities,” that is based on Kantian ethics.FindingsThe model includes characterizing the roles of core participants in online communities: writer, reader and group manager; and delineating four ethical principles – truth, necessity, proportionality and caution – that can help society find the golden mean between social change and respecting human dignity and concern for an individual’s public image and provide a theoretical contribution and practical guidelines.Research limitations/implicationsIt addresses shaming in virtual communities by suggesting a balance of several key principles, including truth, necessity, proportionality and caution. This is a new conceptualization of online shaming relevant to today's digital arena.Practical implicationsThe guidelines can contribute to the ongoing political debate over what constitutes appropriate and justified regulation. Moreover, Facebook community leaders are responsible for formatting the group’s identity, the technical facets of group management and for setting group boundaries and determining the rules of participation. The posited rules may affect social media group managers, as they are called upon to leverage their privileged position and channel their media power into influencing online discourse.Social implicationsThe current study provides insights into how shaming can be used as a legitimate tool in society by implementing an ethical approach, resulting in guidelines that restrict online discourse for participants in virtual communities and affect the work of social media group managers and policymakers.Originality/valueBy presenting a new conceptual model, the authors suggest that ethics are a helpful tool and offer insights into how online communities' participants and managers should use their voice and balance between shaming and maintaining the dignity of the individual.

How click-like and online trust matter across generations of bank customers

PurposeThis article aims to explore the impact of interpersonal relationship stimuli and click-like on purchase intention across different generations of bank customers, with a focus on the moderating effect of online trust.Design/methodology/approachThe sample consists of 435 online bank customers from the Facebook community and the data collection was conducted using an online survey method. The model estimation utilized the partial least squares technique, along with multigroup analysis and importance-performance map analysis.FindingsThe empirical evidence supports the hypothesized relationships between interpersonal relationship stimuli, click-like and purchase intention, but varies across different generations and is contingent upon online trust. The analysis reveals commonalities in how Generation Z, Millennials and Generation X respond to interpersonal relationship stimuli while exhibiting distinct responses to click-like.Research limitations/implicationsThe empirical evidence confirms the hypothesized relationships between interpersonal relationship stimuli, click-like and purchase intention. However, these relationships exhibit variations across different generations and are contingent upon the level of online trust. The analysis highlights shared responses to interpersonal relationship stimuli among Generation Z, Millennials and Generation X, while also revealing distinct reactions to click-like within these generational groups.Originality/valueThis research investigates the collective impact of interpersonal relationship stimuli and click-like on purchase intention, taking into account the moderating role of online trust within various generational cohorts in the banking sector.