Experiences Of Survivors Research Articles

Experiences of unemployed and/or work-disabled cancer survivors who have pursued to return to paid employment: a focus group study.

To explore experiences of unemployed and/or work-disabled cancer survivors who have pursued to return to paid employment. Four digital focus group interviews were conducted with 16 cancer survivors (< 10 years post-diagnosis) who have pursued to return to work within the last 2 years. Interview topics included motivations, facilitators of and barriers to job seeking, and returning to and maintaining paid employment. Interview audio recordings were transcribed verbatim and analyzed using conventional content analyses. Participants were mostly female (94%), and the majority had successfully returned to paid employment (56%). Both intrinsic factors (e.g., sense of purpose, social interactions) and extrinsic factors (e.g., financial necessity) motivated their return to paid employment. During job seeking, participants experienced facilitators including support, personal qualities (e.g., life experience), and trial workplaces. Barriers included inadequate support, perceived employer discrimination, and work ability uncertainty. Returning to and maintaining employment was facilitated by flexible work, supportive colleagues, and intrinsic drive, while barriers included side effects (e.g., fatigue) and overly demanding work. Unemployed and/or work-disabled cancer survivors are generally motivated to return to paid employment by both intrinsic and extrinsic factors, but uncertainty about their ability and inadequate support may hinder this. These findings highlight the need for trial workplaces, support during every phase of return to paid employment, and a flexible, supportive workplace. Tailored interventions addressing the needs identified in this study are urgently needed. The recommendations provided offer strategies for various stakeholders to enhance support for unemployed and work-disabled cancer survivors.

Sero-Kinship: How Young People Living With HIV/AIDS Survive in Southeast Nigeria.

Research on the lived experiences of HIV survivors, including young people living with HIV, has primarily emphasized broader sociocultural concerns, such as stigmatization and cultural attitudes toward sexuality and gender, while giving less attention to the interconnectedness of these issues with the mental well-being of those affected by the illness. This study, drawing on relational ethnography including observations and interviews at four antiretroviral-administering healthcare facilities in Enugu State, southeast Nigeria, explores how young people living with HIV strive toward viral suppression and how they develop collaborative psychosocial support along with the global efforts in eradicating the HIV epidemic. We found that, in and between themselves, young people living with HIV weave for themselves a network of relationships, though discreetly, to foster and encourage survivorship. Such relatedness, where mutual trust and support have emerged and rebuilt HIV survivors' faith in a livable life, forms what we conceptualize as "sero-kinship." That is, sero-kinship, which focuses on how people create and change meanings in their everyday lives that ultimately contribute to controlling HIV and treatment management, forms an essential foundation on which a life with HIV becomes thinkable, bearable, then manageable, and acceptable.

The Emotional Aftermath of Surviving an Attempted Intimate Partner Homicide.

While the issue of intimate partner homicide (IPH) has gained increasing focus, research that pinpoints the experiences of women who survived an attempted IPH is limited. Specifically, studies that aim to understand the aftermath of surviving such incidents are scarce. Thus, the aim of the present study was to explore the emotional experience of IPH survivors following the attack. An interpretive phenomenological analysis was used to analyze the narratives of 11 women who had survived an attempted homicide by their partner. Four major themes emerged: Living between dichotomies: A fragmented identity; Embodied fear: A fear that will not go away; The loss of future: A life divided; and The loneliness of surviving the "unsurvivable." Utilizing the ambiguous loss theory to examine the emotional ramifications of IPH indicates that survivors navigate persistent confusion and struggle to comprehend the loss. This involves challenges in moving forward and achieving resolution, conflicting emotions related to the loss, minimal recognition of the grief, and limited support from the social environment.

The pandemic of ‘the other half’: Patriarchy, capitalism and technology during COVID-19

This essay explores how patriarchy, capitalism and technology intersected during the COVID-19 pandemic: an ‘extreme contest’, thus able to provide especially sharp insights into empirical phenomena as well as theoretical conversations. Conceptualising patriarchy and capitalism as two dominant, intersecting societal logics, I consider their embedment into gendered processes of digital technology production, use and distribution, and how these specifically played out during the pandemic crisis. The essay starts with a set of vignettes capturing the heterogenous experiences of digital gender-based violence survivors, female tech workers and women lacking access to digital resources in COVID-19 times. I then move on to consider the extent to which existing theoretical accounts of the relationship between gender, technology and capitalism can illuminate such developments, and propose an original conceptualisation of how patriarchal and capitalistic injustices shape technological interactions. In so doing, I contribute to trans-disciplinary debates on oppressive societal logics, feminist and critical approaches to digital capitalism and techno-feminist perspectives on digital processes.

Post-traumatic Growth Experiences of Breast Cancer Survivors: A Grounded Theory Approach

Post-traumatic Growth Experiences of Breast Cancer Survivors: A Grounded Theory Approach

“If you do not have Black futures in mind…then what’s guiding the steps”: anti-racist recommendations for traumatic brain injury rehabilitations’ investments in hopeful Black futures

Purpose The need for specialized rehabilitation considerations to address racial health disparities and optimize functional outcomes such as participation in daily life for Black people with traumatic brain injury (TBI) has been acknowledged. This study uses anti-racism as an entry point for addressing institutional racism by examining what the experiences of Black survivors of TBI, rehabilitation providers, and family caregivers tell us about imagined possibilities for rehabilitation to promote Black futures. Material and methods A constructivist-informed narrative inquiry using critical race theory and in-depth narrative interviewing was applied across ten women and four men. Reflexive thematic analysis within and across groups of participants led to conceptualizing two main themes and five sub-themes. Results Conceptualized themes captured requirements for TBI rehabilitations’ investments in Black futures: (1) the need for critical information and specialized educational supports and particular requirements for supporting participation in meaningful life situations, and (2) responsibilities of delivering rehabilitation care for Black service users. Conclusion TBI rehabilitation must be tailored to the realities of living while being Black, integrate personal values, beliefs, interests, and equitable supports to maximize optimal functioning and participation if the goal of rehabilitation is community integration for all persons living with the impacts of TBI.

Experiences of women sexual assault survivors with police in the early aftermath of assault: Results from a large-scale prospective study.

Over 100,000 women present for emergency care after sexual assault (SA) annually in the United States. To our knowledge, no large prospective studies have assessed SA survivor experiences with police. Women SA survivors enrolled at 13 sites (n = 706), and 630 survivors reported on their police interactions. Most women were interested in speaking with police, spoke with police, and reported positive experiences. Latinas and women with lower education and income were less likely to speak with police. Trauma and posttraumatic stress symptoms were associated with more negative experiences. Qualitative comments provide key points for police to consider when speaking with survivors.

Survivor Experiences Living in an Intimate Partner Violence Shelter in the United States in 2022: Implications for the COVID-19 Endemic and Beyond

Survivor Experiences Living in an Intimate Partner Violence Shelter in the United States in 2022: Implications for the COVID-19 Endemic and Beyond

Exploration of Black/African American College Survivors of IPV During COVID-19 Utilizing Descriptive Analysis.

The last few decades have ushered in an increase in scholarship focused on campus-based violence, specifically sexual violence, sexual assault, and unwanted sexual experiences. This rise in sexual violence scholarship has promoted the examination of current campus-based interventions, resources, and response systems. However, there exists a dearth of research exploring the experience of intimate partner violence for college students within college/university settings. In this descriptive analysis, we capture the prevalence of intimate partner violence for a nationwide sample of 1,035 college students across diverse college and university campuses within the United States. Researchers utilized a sociodemographic questionnaire and the Intimate Partner Violence Screening Questionnaire to capture and measure college students' experiences of intimate partner violence during the COVID-19 pandemic. To analyze the data, the Statistical Package for Social Sciences (SPSS 28) was used. Univariate analyses and cross-tabulation analyses were conducted to examine the data. Specifically, due to the majority of research focusing on cisgender, White heterosexual women respondents, we focus our analysis on the experiences of Black and/or African American survivors of intimate partner violence on college campuses, in hopes of capturing the prevalence of intimate and relationship violence for Black/African American college students across colleges and universities. Results of this study revealed the prevalence of all types of intimate partner violence and abuse such as emotional/psychological, physical, and sexual violence within Black/African American college students. Findings from this database study produce implications for college/university campuses to consider capacity to address enduring psychological concerns and outcomes tied to intimate partner violence within college/university campuses, while also considering culturally responsive prevention and intervention efforts.

A ‘forced holiday’ or ‘no escape route’? Contrasting experiences of survivors and perpetrators of domestic abuse during COVID-19

Drawing on a nested qualitative study within REPROVIDE, a randomised controlled trial examining the effectiveness of a group-based domestic abuse perpetrator programme, this article explores accounts of domestic abuse during the COVID-19 pandemic from the perspectives of victims/survivors and perpetrators. Based on interviews with male perpetrators and female survivors, including with partner/ex-partner dyads, our study reveals the gendered effects of the pandemic on abusive perpetrator behaviour. Findings are presented through themes addressing the different experiences of victims/survivors and perpetrators during the pandemic. Through an exploration of victim/survivor attempts to ameliorate intensified abuse through compliance (Theme 1), the way perpetrators put on a masculine ‘front’ (Theme 2), the gendered burden of domestic responsibilities (Theme 3) and highlighting the importance of continued specialist support (Theme 4), this article contributes to an understanding of gender inequalities underpinning pre-pandemic domestic violence and abuse and how perpetrators utilised inequalities during COVID restrictions. Some dyads reported relationships feeling more settled in the first UK lockdown, however, this was associated with increased opportunities for control that lockdown provided perpetrators. Both parties experienced changes in service responses. We articulate implications for safe working with perpetrators and families during future pandemics or social crises.

Survivorship Experiences of Allogeneic Hematopoietic Stem Cell Transplantation Survivors: A Qualitative Systematic Review.

The number of allogeneic hematopoietic stem cell transplantation (allo-HSCT) survivors is increasing globally. Although qualitative studies in this population are reported, clear understanding of how allo-HSCT survivors experience survivorship is lacking. This study aimed to identify, appraise, and synthesize evidence from qualitative research on survivorship experience among allo-HSCT survivors. A qualitative systematic review was conducted. A literature search of 9 databases and OpenGrey, Google Scholar, and Google was performed from inception to February 2023. Two reviewers independently screened and assessed the eligibility of each study. Descriptive information was extracted from the studies by one reviewer and checked by another. Findings were extracted and analyzed using thematic synthesis. Seventeen articles were included. Four themes and 12 subthemes regarding allo-HSCT survivors' experiences emerged: (1) recovery as being a longer process than they thought (influenced by long-term physical symptoms, disturbed by survivorship uncertainty); (2) experiencing a restricted survivorship life (shrunken social world, forced dietary limitations, centered around hospitals); (3) suffering from stigma and discrimination (perceived as a burden, seen differently by others, difficulties establishing and maintaining romantic relationships and marriage, limited opportunities in work); and (4) realizing something positive obtained during survivorship (enriched survivorship self-management skills, enhanced personal growth, developed positive relationships). The findings reveal the challenges, needs, and growth that allo-HSCT survivors experienced during survivorship. Some understudied areas were identified, which warrant further exploration. Targeted survivor-centered care should be provided to allo-HSCT survivors, and interventions to resolve issues experienced during survivorship should be developed.

The Lived Experience of Cardiac Arrest Survivors: A Scoping Review.

Survival rates after cardiac arrest have steadily increased over the past few decades because of the adoption of cardiopulmonary resuscitation, public access to automated external defibrillators, and an increase in public education on how to perform cardiopulmonary resuscitation. The lived experiences of post-cardiac arrest survival have been underexplored. The themes that resulted from the analysis in this scoping review can inform clinical practice and propose strategies to improve the patients' quality of life. The objective of this scoping review was to map out qualitative literature that explores the lived experience of individuals who have survived cardiac arrest. In this scoping review, the authors examined peer-reviewed qualitative studies identified in the PubMed, CINAHL, and MEDLINE databases. Arksey and O'Malley's methodological framework for conducting a scoping study was followed. The search yielded 174 articles, with 16 meeting inclusion criteria for this scoping review. Initially, 14 articles were selected, and 2 additional articles were identified through references. Themes extracted from these 16 articles include the need for support and information, emotional challenges, and acceptance of a new reality. Cardiac arrest survivors often experience loss of control, vulnerability, and insecurity. These emotional changes can be significant and may include physical challenges, cognitive impairments, and psychological distress, which can cause individuals to reevaluate their perspectives on life and accept a new reality, potentially leading to changes in their future outlook.

Disclosing Domestic Violence to Survivors’ Churches: Experiences of Survivors

Disclosing Domestic Violence to Survivors’ Churches: Experiences of Survivors

Lived experiences of people impacted by gun violence: qualitative analysis of the prescriptions for repair project

BackgroundRestorative justice interventions can help address the harm created by gun violence, although few restorative justice programs focus solely on survivors or loved ones of victims of gun violence. Our...

"Just for pregnant women, not for you": a qualitative evaluation of the sexual and reproductive healthcare experiences of transgender and gender diverse cancer survivors.

To identify opportunities to improve sexual and reproductive health (SRH) care for transgender and gender diverse (TGD) cancer survivors by describing (1) challenges experienced when navigating SRH care and (2) strategies to help overcome these challenges. We enrolled a purposive sample of 17 adult TGD cancer survivors and 5 co-survivors. We aimed for a diverse sample across cancer experience, age, racial/ethnic background, sexual orientation, and gender identity. We conducted 90-min individual interviews via videoconference and used reflexive thematic analysis, guided by a focus on three social determinants of health. Themes describing challenges were as follows: (1) Cancer treatment's impact on sexual health was insufficiently addressed by cancer care providers; (2) fertility-related information and conversations were complicated by gendered expectations and ultimately did not meet survivors' needs; (3) feeling excluded and uncared-for in healthcare settings due to gendered language and lack of supportive services that met their needs; and (4) TGD survivors commonly reported high financial burden, negatively impacting their access to care. Strategies to overcome these challenges were (1) a solid social support network that can be integrated into the care team to meet the unique SRH needs of TGD survivors and (2) gender-affirming healthcare providers and environments to address SRH care needs and concerns. TGD survivors and co-survivors desire improved access to gender-affirming SRH care in cancer survivorship. Key opportunities to improve gender-affirming SRH care in cancer survivorship include fostering and engaging TGD survivors' support networks and implementing system-level changes in cancer care settings.

Characterization of chronic pain, pain interference, and daily pain experiences in adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.

Although survivors of childhood cancer are at an increased risk, little is known about the prevalence of chronic pain, associated interference, and daily pain experiences. Survivors (N = 233; mean age = 40.8 years, range 22-64 years; mean time since diagnosis = 32.7 years) from the Childhood Cancer Survivor Study completed pain and psychosocial measures. Survivors with chronic pain completed 2-week, daily measures assessing pain and psychological symptoms using mHealth-based ecological momentary assessment. Multivariable-modified Poisson and linear regression models estimated prevalence ratio estimates (PR) and mean effects with 95% confidence intervals (CI) for associations of key risk factors with chronic pain and pain interference, respectively. Multilevel mixed models examined outcomes of daily pain and pain interference with prior day symptoms. Ninety-six survivors (41%) reported chronic pain, of whom 23 (24%) had severe interference. Chronic pain was associated with previous intravenous methotrexate treatment (PR = 1.6, 95% CI 1.1-2.3), respiratory (PR = 1.8, 95% CI 1.2-2.5), gastrointestinal (PR = 1.6, 95% CI 11.0-2.3), and neurological (PR = 1.5, 95% CI 1.0-2.1) chronic health conditions, unemployment (PR = 1.4, 95% CI 1.0-1.9) and clinically significant depression and anxiety (PR = 2.9, 95% CI 2.0-4.2), as well as a diagnosis of childhood Ewing sarcoma or osteosarcoma (PR = 1.9, 95% CI 1.0-3.5). Higher pain interference was associated with cardiovascular and neurological conditions, unemployment and clinical levels of depression and/or anxiety, and fear of cancer recurrence. For male, but not female survivors, low sleep quality, elevated anxiety, and elevated depression predicted high pain intensity and interference the next day. A substantial proportion of childhood cancer survivors experience chronic pain and significant associated interference. Chronic pain should be routinely evaluated, and interventions are needed.

Considerations for Evaluating Older Adults with Cancer for Depression: A Qualitative Survey of Experts

ABSTRACT Objectives The objective of this study was to engage national experts in geriatric psychiatry and oncology in qualitative interviews to develop consensus regarding how older adult cancer survivors (OACS) experience depressive symptoms, and how best to assess OACs for depression. Methods Expert clinicians in geriatric oncology disciplines were interviewed about approaches to assessing depression in OACs. Interviews were audio-recorded and transcribed, and conducted until thematic saturation was achieved. Thematic Content Analysis was utilized to identify key themes. Results Experts (N = 8) were board certified geriatric psychiatrists and oncologists with specialization in geriatric medicine. Two conceptual domains were identified: Key indicators of depression in OACs (e.g. anhedonia; loss of meaning and purpose; loneliness and social withdrawal) and unique considerations for depression assessment in OACs (e.g. alternative phrasing to “depression,” disentangling mood and cancer or treatment-related side effects). Conclusions The approaches identified tended to depart from traditional diagnostic criteria for depression. Clinical implications Results provide additional insight into the limitations of existing depression measures for OACs. The themes and practices identified in the present study suggest that a revised measure of depression for OACs may be useful. Future research will continue to shed light on best practices for depression assessment in OACs.

Sexual Assault Survivors’ Individual and Group Therapy Experiences at Rape Crisis Center

Survivors of sexual violence often experience short-and long-term mental and physical health conditions due to the victimization. Rape Crisis Centers are community-based advocacy organizations that provide free supportive services to survivors of sexual assault, such as 24-hour crisis hotlines, medical advocacy, individual and group therapeutic services, and victim advocacy services for those with cases within the criminal justice system. However, the efficacy of these services in assisting survivors is not well known, often due to researchers’ lack of access to clients. In this paper, we investigate the experiences of survivors directly from the survivors receiving psychotherapy services from a Rape Crisis Center in an urban jurisdiction in the Midwestern United States. We qualitatively interviewed nine survivors who attended individual and/or group therapy. In-depth analysis showed that four themes emerged regarding their experiences. Two themes pertain to positive outcomes—emotional processing and group therapy dynamics. One theme concerns obstacles. The final theme relates to suggestions for service improvement. The discussion includes summaries of the reflective findings and recommendations for future practice. This research contributes to informing and improving practices and policies to better serve survivors of sexual assault.

Understanding the Retrospective and Current Health Care Needs and Service Experiences of Adult Survivors of Minor Sex Trafficking

Minor sex trafficking is an urgent public health problem, but we lack data about how such experiences impact health and health care access. Utilizing data collected from in-depth interviews with 35 adult survivors of minor sex trafficking across the U.S. we explored the physical and psychological healthcare access and healthcare experiences of adult survivors of minor sex trafficking. Negative healthcare experiences before, during, and following sex trafficking foster a lack of trust and confidence in healthcare systems as adults. Recommendations are provided to help overcome barriers to meeting healthcare needs and improving health care experiences for survivors of minor sex trafficking.

A study on quality of life and lived experiences of cad survivors in Narayan Medical College and Hospital, Jamuhar, Sasaram, Bihar

A study on quality of life and lived experiences of cad survivors in Narayan Medical College and Hospital, Jamuhar, Sasaram, Bihar