Identifying what cultural factors motivate family members to become caregivers can augment existing knowledge regarding family caregiving. This includes development of supportive services that are more culturally sensitive to family caregivers from distinct (Black) communities providing care for someone with Alzheimer’s disease or a related dementia. This paper reports on a study that found a reluctance among family caregivers in the Black community to utilize formal services. Twelve Black caregivers caring for family members with Alzheimer’s were interviewed. Seven received formal services and five were waitlisted for services. Questions included: (1) How does the experience of caregiving impact your sense of identity? (2) How does the experience of caregiving impact your motivation to continue providing care? (3) What types of supportive services do you believe would better meet your needs as a caregiver? Using a Heideggerian phenomenological approach, information garnered was interpreted, reviewed, and coded. Notable distinctions between caregivers waitlisted for supportive services versus those in receipt of services were identified. Recognizing how these distinctions related to the ability to adjust to changing care recipient needs while transitioning from having primarily a familial identity to a caregiver identity is crucial in applying services in line with the caregiver’s lived experiences.
Read full abstract