Experiences Of Self-care Research Articles

Utilising musical microanalysis and phenomenology to enhance understanding of the impact of improvisational music psychotherapy on self-efficacy for a client with depression and anxiety

The purpose of this mixed methods study was to understand how a client’s self- efficacy, defined as their perception of their own capability to achieve goals, is impacted by improvisational music psychotherapy conducted using MIDI instruments. Data was collected from session transcripts, several interviews with the client (Sara), and musical data. The musical microanalysis used the Music Therapy, MIDI, and MIR toolboxes within MATLAB. The collaborative data analysis incorporated the client’s perspective. Results showed that the client’s self-efficacy was influenced through multiple experiences within music psychotherapy including experiences of self-awareness and self-care; being confident and ready for change; growth and expansion outside of therapy; development and use of coping skills; and mastery and joy. By using musical microanalysis, results also indicated that certain musical features were linked to the client’s imagery, mood states, and experiences of self-efficacy. The research gives an example of how to utilise musical microanalysis to enhance the understanding of therapeutic change and processes.

Recognition of symptoms, mitigating mechanisms and self-care experiences of type 2 diabetes patients receiving insulin treatment in North-East Ethiopia

Background: Compliance of patients with self-care practices is the mainstay of measures to manage diabetes. This study explored self-care practices of type 2 diabetes patients receiving insulin treatment in North-East Ethiopia. Methods: The study employed an interpretive phenomenological approach using purposive sampling. The data were collected from 24 (11 males and 13 females) participants (July 2019 to January 2020) using in-depth interviews till theoretical saturation. The data were analyzed thematically and organized using QDA Miner Lite v2.0.8. Results: The findings were categorized into: labeling diabetes, self-care maintenance experiences, recognition of symptoms, and mitigating mechanisms of symptoms. The self-care maintenance practice of patients was linked with diet input preferences and the effectiveness level of insulin. What guides the self-care behavior was the patients’ preferentiality of strictly adhering to their preferred dietary inputs. Barley and wheat were the most common preferential and non-preferential inputs, respectively. The patients strictly adhered to insulin treatment because they found it effective. The most common hyperglycemia symptoms to be managed by taking an additional dose of insulin, were frequent urination, increased thirst, and their consequences (dehydration). Excessive sweating (initial), shivering (middle), and falling (final), respectively in severity, were the most common symptoms of hypoglycemia which were perceived to be treated with sweet snacks. Originality: To our knowledge, this is the first research in Ethiopia to investigate the self-care experiences of type 2 diabetes patients receiving insulin using an interpretive phenomenological approach.

EXPLORING THE COMBINED USE OF SOLICITED DIARIES AND PHOTOGRAPHY BY OLDER PATIENTS IN THEIR PROCESS OF SELF-CARE WITH MEDICATION PACKAGING

AbstractDesign has the potential to include or exclude people, depending on how user needs are translated into products. Design exclusion has been vast in design for health care. Medication packaging design is a common example. It does a good job of protecting the product but can result in creating difficulties when used, especially for those who are older. Research in this area lacks an inclusive and user-centered approach because potential users have been studied outside of their context of living and with methods that limit participation. The aim of this study was to explore the combined use of solicited diaries and photography to engage and include older users in gathering data and reflecting on their day-to-day experiences of using multiple medications and the medication packaging. Our findings show key learnings of using this combined method, as well as related methodological challenges, and provide recommendations to tackle these challenges. The use of solicited diaries with photographs taken by participants is deemed to be relevant in interdisciplinary fields of research and practice, where designers and other professionals aim to better understand the reality of older people and create meaning in their experiences of self-care.

A simulated patient experience in the self-care aisle utilizing Flipgrid as a platform for sharing nonprescription product information

Background and purposeStudents visiting local pharmacies can enhance their learning about nonprescription products while improving their understanding of the patient self-care experience. This study was designed to examine student perceptions of an activity utilizing Flipgrid to share a simulated patient experience in the nonprescription aisle. Educational activity and settingStudent groups traveled to local pharmacies to review available products pertaining to a self-care scenario. Students submitted brief video recordings with product recommendations and counseling points via the Flipgrid platform. Following the activity, students submitted brief reflections. At course conclusion, students completed a questionnaire regarding perceptions of Flipgrid. FindingsSixty-eight students completed the activity. Response rates were 91.2% for the project reflection and 79.4% for the Flipgrid questionnaire. In the reflections (n = 62), the majority of students (87.1%) found it easy or extremely easy to locate pertinent nonprescription products; no student found it extremely difficult. All except four students indicated the assignment helped develop empathy, and all except two indicated a greater likelihood to help a patient in the aisle. In the Flipgrid questionnaire (n = 54), most students found the platform enjoyable (74.1%) and easy to use (79.6%). SummaryStudents perceived that the project increased empathy for assisting patients with selection of nonprescription products. Students found the Flipgrid platform enjoyable and easy to use. This activity can be utilized to simulate a patient self-care experience, and the Flipgrid platform is a novel way to share information between student groups in pharmacy education.

Self-care Experiences of Adolescents with Spinal Muscular Atrophy

PurposeWe examined the self-care experiences of adolescents with spinal muscle atrophy (SMA) and their perceptions of the interactions between their body and the environment. MethodsWe interviewed ten adolescents with SMA aged 13–18 years regarding personal care practices. Purposive sampling was conducted in two medical centers in northern Taiwan. Data were analyzed using the Giorgi analysis method. ResultsFour constitutions were identified: (1) limited space for independent development, (2) multiple reconstructions of self-image to improve physical ability, (3) self-care of disease, and (4) developing activity styles to accommodate social culture. ConclusionThe self-care lived experiences of patients reflect dynamic changes in the body and environment. Self-existence was exhibited by adjustment, practice, and creativity of physical activity to integrate into society. Nursing staff should understand the self-care experiences and needs of adolescents with SMA to develop a database of self-care skills. This study recommended that nursing staff improve their ability to guide patients in taking care of themselves by developing body awareness self-care courses and individual care plans in response to various stages of disability to help patients delay deterioration, realize their physical potential, and promote independence and social development.

Perspectives of Self-Care Experiences of Aging Individuals Living Independently: A Focused Ethnography in the Community Setting

Globally, aging individuals who live independently facing various problems in maintaining their health and well-being. Understanding the capability of personal well-being is an important consideration in promoting healthy behaviors and lifestyles in aging individuals. This paper aimed to more deeply explore, from self-care experiences of aging individuals living independently in the community, from their perspective. The study used the inductive approach of focused ethnography which is based on Orem’s Theory of Self-Care. Data collection consisted of participant observation with field notes and semi-structured interviews with 25 aging individuals living independently in the northern part of Thailand. Three themes were followed as protocol of the data collection plan and used the identification and classification of transcription, coding, and thematic analysis as perspectives of self-care experiences of aging individuals living independently in the community setting: 1) continuing habits of healthcare practices, 2) maintaining positive emotional adaptation, 3) and having reasonable social and life adjustments. These themes exemplified the practice of activities that aging individuals initiated and performed as their daily and routine activities with the intention of maintaining life health and well-being. Consideration of aging individuals living independently self-care experiences assisted nurses and provided greater perspectives in providing actual needs and reduced resources of nursing care and healthcare system.

Co-Creative Visual Poetic Inquiry for communicating lived experience of HIV self-management and self-care

We introduce our innovative analytic approach that draws from poetic and visual forms of inquiry: ‘Co-Creative Visual Poetic Inquiry’. We report on the development of this approach in the context of a design research project that explored individuals’ lived experiences of self-care practices for living well with HIV. We present a set of visual poems that were co-created between the research team members as a means to capture and communicate idiographic insights from this project. We aim to contribute methodological insights through a case study, about how Co-Creative Visual Poetic Inquiry can support the qualitative analysis and dissemination of research. We highlight the value of the approach for helping researchers co-define a research agenda early on in a project, in dialogue with members of the research population. We also show how poetic, visual and time-based forms of representation can be used in individual and collective analyses, for phenomenological engagement and to communicate insights to stakeholders in ways that retain emotional and performative qualities of expression. We conclude by critically reflecting on the scope and limitations of our novel combination of methods, and encourage other design researchers in health and wellbeing research to appropriate and develop this approach.

Unspeakable Conventionality: The Perversity of the Kindle

Abstract What has the rise of Amazon meant for the novel? This essay argues that in shifting the scene of innovation from the novel’s form to the ways and means of its distribution, the company has redefined authorship as the entrepreneurial provision of good service to readers and reading itself as a repeatable experience of erotic self-care. Conceived in this way, all fiction is “genre fiction,” including so-called literary fiction, which for Amazon is simply one modality of the perverse pursuit of customer satisfaction among others. As an occasion for felicitous repetition, genre fiction takes the lead in defining the situation of the novel now, suggesting a new set of emphases in the critical analysis of the contemporary literary field.

How to care without compromising your well-being

A nurse and author relates her experience of learning self-care and compassion alongside maintaining support for very ill patients and their families

Self-care Experiences of Advanced Prostate Cancer Survivors Who Underwent Androgen Deprivation Therapy.

Androgen deprivation therapy is the primary treatment for advanced cases of prostate cancer, but its adverse effects may decrease prostate cancer survivors' quality of life. The aim of this study was to understand the self-care experiences of prostate cancer survivors before and while receiving androgen deprivation therapy. A qualitative study design with inductive content analysis was used. Semistructured interviews were conducted with 13 prostate cancer survivors in Taiwan treated with androgen deprivation therapy. Data collection and analysis proceeded simultaneously until data saturation was reached. The survivors' self-care experiences were categorized into generic categories: physical impacts, psychosocial impacts, lack of supporting information, changing lifestyle habits, coping with physical symptoms, relieving stress, and acquiring disease-related knowledge. These generic categories were then organized into 2 main categories: impacts and adjustments. This article describes the experiences of prostate cancer survivors in terms of the impacts of disease and its treatment and adjustments in self-care before and while receiving treatment. It was found that the information acquired by survivors and the adjustment strategies they used were not entirely appropriate or adequate. Healthcare providers should continually assess the self-care experiences of prostate cancer survivors receiving androgen deprivation therapy, provide them with appropriate information, and clarify their understanding. This will improve survivors' disease care-related knowledge, increase the success of their experience of self-care, alleviate their emotional distress, and strengthen their ability to adjust their self-care to cope with the impacts of the disease and its treatment.

Self-care of people with intestinal ostomy: beyond the procedural towards rehabilitation.

to interpret the self-care experience of people with intestinal ostomy registered in an ostomy program, based on the framework of the Social Model of Disability. qualitative exploratory research, with the participation of nine people with intestinal ostomy, based on the Social Model of Disability. majority were elderly, married, male with colostomy due to colorectal neoplasia. The self-care of these people was analyzed in two thematic groups: "Interdisciplinary assistance needed for people with intestinal ostomy" and "Self-care for the rehabilitation of the person with intestinal ostomy". It was proved that there was a need for a specialized health team, offering information on disabilities, teaching self-care and perioperative follow-up. when the social barriers of physical disabilities are overcome in the context of assistance for health and life, self-care will go beyond the reductionist vision of procedural care, towards comprehensive care, favoring the achievement of rehabilitation and the quality of survival.

Self-care experiences of Pakistani patients with COPD and the role of family in self-care: A phenomenological inquiry.

Self-care enables patients in improving quality of life and reducing hospital admissions. Research explored the experiences of patients about breathlessness, sleep problems and complication management in chronic obstructive pulmonary disease (COPD). However, the self-care experiences and the role of the family in self-care are underexplored. This study aimed to understand the self-care experiences of patients with COPD and explore the role of the family in self-care. An interpretive phenomenological inquiry was used, and 13 patients were interviewed in 2019 from two hospitals in Pakistan. The inclusion criteria were patients above 30years of age at any stage of COPD, who received a confirmed diagnosis of COPD and were receiving the treatment, and engaged in self-care at their homes or communities. The interviews lasted for 35-60min. Ricoeur's interpretation theory was used for data analysis comprising steps explanation, naive understanding and in-depth understanding. Self-care emerged as a complex individual and familial endeavour affected by personal, social and economic factors. Poverty was one of the core determinants of self-care. Patients emphasised the spiritual, cultural and traditional approaches to self-care. Future research is warranted to develop better understanding of spiritual and cultural self-care and how these dimensions of self-care affect patients' self-care behaviours.

Why Do Some Spanish Nursing Students with Menstrual Pain Fail to Consult Healthcare Professionals?

Dysmenorrhea is a problem that affects a large percentage of young women worldwide. Alarmingly, the majority of these women choose to self-medicate rather than consult a healthcare professional, despite the risks involved. The present study aimed to explore the reasons why undergraduate nursing students do not consult health care professionals regarding their menstrual pain. A qualitative study was conducted using an open question: “Why didn’t you consult a healthcare professional?” within the context of a research project on primary dysmenorrhea among nursing students at the University of Huelva, Spain. The responses of 202 women were analyzed using content analysis. Three categories were identified: assessment of the pain experienced, expectations, and experiences of professional care and selfcare. We found a striking normalization of the problem; notably, students downplayed the importance of the problem, considering that it was not worth consulting a physician. Furthermore, there was a notable degree of self-medication using non-steroidal anti-inflammatories (NSAIDs). These results may be useful for orienting policies to raise social awareness of this problem and for designing health education strategies aimed at women with primary dysmenorrhea.

Self-care training using the Tablo hemodialysis system.

ABSTRACTIntroductionRecently published results of the investigational device exemption (IDE) trial using the Tablo hemodialysis system confirmed its safety and efficacy for home dialysis. This manuscript reports additional data from the Tablo IDE study on the training time required to be competent in self‐care, the degree of dependence on health care workers and caregivers after training was complete, and participants' assessment of the ease‐of‐use of Tablo.MethodsWe collected data on the time required to set up concentrates and the Tablo cartridge prior to treatment initiation. We asked participants to rate system setup, treatment, and takedown on a Likert scale from 1 (very difficult) to 5 (very simple) and if they had required any assistance with any aspect of treatment over the prior 7 days. In a subgroup of 15 participants, we recorded the number of training sessions required to be deemed competent to do self‐care dialysis.FindingsEighteen men and 10 women with a mean age of 52.6 years completed the study. Thirteen had previous self‐care experience using a different dialysis system. Mean set up times for the concentrates and cartridge were 1.1 and 10.0 minutes, respectively. Participants with or without previous self‐care experience had similar set‐up times. The mean ease‐of‐use score was 4.5 or higher on a scale from 1 to 5 during the in‐home phase. Sixty‐five percent required no assistance at home and on average required fewer than four training sessions to be competent in managing their treatments. Results were similar for participants with or without previous self‐care experience.ConclusionsParticipants in the Tablo IDE trial were able to quickly learn and manage hemodialysis treatments in the home, found Tablo easy to use, and were generally independent in performing hemodialysis.

Self-care experiences of Indonesian adults with chronic disease living in Montreal

Abstract Background Self-care (i.e., the actions towards monitoring and managing chronic illness and maintaining health) is an essential aspect of chronic disease management. These experiences are shaped by culture and values, health literacy, support from others and access to care. We conducted a study to explore the chronic illness self-care experiences and various influencing factors among a minority immigrant group, Indonesians, living in Montreal, Canada. Methods We used a qualitative descriptive approach. Eight adult men and women living with various chronic illnesses were recruited. Data were collected via semi-structured interviews and thematically analyzed. Results Three broad themes were identified: What's helpful, Challenges and responses, and Expectations. What's helpful captured different sources of supports of that helped the participants manage and monitor their illness and feel well and healthy. Challenges and responses highlighted the key challenges that participants have faced while living with a chronic illness, and how they have adapted (or not) and responded to these. Expectations include participants' disappointments towards their own self-care and/or support from family, the community and healthcare professionals, and describes what participants wished was different about their situation. The multiple views and nuances of their experiences as well as the various influencing factors of pre- and post-migration were interwoven within the description of each theme. Conclusions The self-care experiences of Indonesians living in Montreal shaped by different sources that helpful, challenges they faced and their responses as well as their disappointments and wishes for their own self-care. Key messages The self-care experiences of Indonesians living in Montreal are vary and shaped by different factors and sources. Healthcare professionals should engage more and consider the helpful sources for them, their challenges and the responses, their disappointments and hopes shaping their self-care experiences.

Self-Care Experiences of Adults with Chronic Disease in Indonesia: An Integrative Review.

We conducted a literature review to document what is known regarding the self-care experiences and various influencing factors among adults living with chronic disease in Indonesia, from the perspective of those living with the illness. We searched CINAHL and Google Scholar to identify peer-reviewed research focused on men and/or women living with a chronic disease (the most prevalent) in urban or rural settings in Indonesia. Using a “Self-Care of Chronic Illness” framework as a guide, information on self-care experiences and how various factors influence these experiences, was extracted and synthesized. Nine studies were included (3 quantitative; 6 qualitative). Self-care involves maintaining well-being through different strategies (e.g., foot hygiene, seeking information/care, praying, diet, resting, and simplifying life), following prescribed treatments, and using traditional remedies. Religion sometimes serves as a means for taking care of one's health (e.g., prayer), or as a source of motivation to self-care, while in other instances, it results in a fatalistic attitude. Which treatments (conventional versus traditional) are sought, it is affected by an understanding of the disease and treatments, which is shaped by beliefs, values, emotions, health literacy, and SES. The literature shows that family, especially women, has a key role in providing support. Community organizations also play an important supportive role, particularly for patients in rural areas. Significant barriers to healthcare include costs and care not being well-adapted to the psychosocial needs and contexts of patients. The literature highlights a disconnection between the self-care experiences and how healthcare and support are delivered. To better support self-care, healthcare professionals should use a personalized approach; however, more research is needed to gain a better understanding of what patients want and expect regarding how religion, beliefs, life circumstances, and the use of alternative therapies should be addressed within the patient-professional dynamic.

A Qualitative Study on the Self-care Experiences of Child Counselors

A Qualitative Study on the Self-care Experiences of Child Counselors

Foot Self-Care Experiences Among Patients With Diabetes: A Systematic Review of Qualitative Studies.

The aim of this systematic review was to understand the gaps between the American Diabetes Association clinical recommendations on preventive foot self-care and perceptions of and actions taken by patients with diabetes and diabetic foot ulcers (DFUs). PubMed, the Cumulative Index of Nursing and Allied Health Literature, Cochrane Online Library, Psychological Information Database, and Google Scholar were systematically searched for qualitative research literature published in English from January 1, 2001, to October 21, 2016, using the MeSH terms diabetes mellitus, diabetic foot ulcers, foot care, experiences, and perception to examine the experiences of patients with diabetes regarding foot self-care practices. Publications were screened for inclusion according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses, and The Standard for Reporting Qualitative Research was used to appraise trustworthiness and publication bias. Publication details (author, year, title, country in which the study was conducted, and the type of publication), study aims, design (study methodology, method of sampling, and analysis method), and participant details were abstracted to Excel sheets for analysis of foot self-care experiences and to determine common themes (foot self-care issues) among patients with diabetes. Of the 14 publications identified, 9 (that included 113 patients with diabetes [95 with or history of DFUs and 18 with no DFUs] and 28 health care professionals [14 podiatrists, 8 physicians, and 6 registered nurses]) met the inclusion criteria for analysis. Research included 4 qualitative descriptive design studies, 2 descriptive phenomenology studies, 1 grounded theory study, 1 interpretive phenomenology study, and 1 exploratory qualitative design study. Four (4) studies were found to lack transparency, and 7 studies did not address trustworthiness. The common themes identified were the high clinical and lifestyle burden of DFUs, poor foot self-care knowledge, perception barriers and resistance, adoption of self-management practices, and discordance between patient and provider impressions and expectations. Several barriers to optimal foot care in persons with diabetes with and without foot ulcers were identified and may be explained and addressed by considering the Health Belief Model. Clinical interventions should be individualized to identify and address patient-specific barriers to optimal foot self-care. Future clinical studies are needed to examine the outcomes of individualized interventions.

Wavering Diabetic Diet: “I Break the Diet and Then I Feel Guilty and Then I Don’t Go Back to It, In Case I Feel Guilty Again”

This study aimed at understanding the experiences of maintaining good dietary self-care among people with type 2 diabetes mellitus and the meaning of negative emotions in the context of dietary self-care. Thirteen type 2 diabetes patients from an Endocrinology and Diabetes Department in the West Midlands region, United Kingdom, were interviewed to explore experiences of dietary self-care and negative emotions. Transcripts were analyzed using the interpretative phenomenological analysis approach. Three main themes emerged: (a) dietary self-care: a constant challenge, (b) negative emotions: a cause and a consequence, and (c) coping with negative emotions and living with “the diet.” Situations involving poor dietary self-care were identified to understand the context of negative emotions. Perceived dietary restrictions resulted in frustration, anger, and depression, while maintaining dietary self-care resulted in irritation, annoyance, regret, guilt, anger, and depression. The consequence of poor dietary self-care was frustration, depression, and anger, which further resulted in poor dietary self-care, creating a cycle of poor dietary self-care and negative emotions. This reflected the wavering nature of participants’ dietary maintenance. Coping with these negative emotions and poor dietary self-care involved rationalizing and/or acknowledging the importance of maintaining good dietary self-care. Findings showed negative emotions are perceived to impact dietary self-care and diabetes control. Health care providers should incorporate the understanding of experiences of negative emotions in dietary education and cognitive behavioral interventions should be offered to manage negative emotions.

The Wellness and Self-Care Experiences of Single Mothers in Poverty: Strategies for Mental Health Counselors

Poverty impacts holistic health and wellness, yet little research in counseling has been conducted exploring the holistic wellness and self-care of marginalized groups. Self-care and wellness are important components of overall mental health, and integrating strategies for self-care and wellness can support mental health counseling practice. A transcendental phenomenological design was used to explore and describe the wellness and self-care experiences of 10 single mothers in poverty. Data were collected using individual, face-to-face, semi-structured interviews, conducted for 45 to 60 minutes each. Major themes that emerged from the data include (a) barriers to wellness and self-care, (b) supports with wellness and self-care, (c) single mothers’ awareness of wellness and self-care, and (d) personal strengths of single mothers in poverty. Implications for clinical mental health counselors include utilizing strengths-based approaches, wellness, and advocacy interventions for single mothers in poverty.