Program Evaluation Research Articles

Optimize and Thrive: An Electronic Health Record Optimization Program Case Study.

Although electronic health record optimization programs are common in healthcare organizations, a dearth of published evaluations of these programs exists. Little is known about the ability of optimization programs to handle flooding requests for change and achieve their objectives of cost savings, value, quality of care, and efficiency. This program evaluation reviewed one organization's electronic health record clinical optimization program. The evaluation examines the implementation of the insulin dosing calculator project at five hospitals within a large nonprofit healthcare organization using interviews, project documents, reported insulin dosing errors, and workflow observation to determine if the program provides sufficient structure and processes to successfully implement large optimization projects and achieve the project's desired outcomes. This evaluation finds that the optimization program processes support the implementation of large projects. The program can improve the planning of human resources to increase productivity and reduce waste. A clearer definition of meaningful project outcomes at the onset would allow the program to measure and communicate its accomplishments across the organization.

A Fuzzy Neural Network Approach for Evaluation of Wetland Restoration Programmes

A Fuzzy Neural Network Approach for Evaluation of Wetland Restoration Programmes

Evaluation of Asian Students Exchange Program (ASEP) in The Range of Building A Generation of Youth with A Global Vision

The exchange of information and culture through student exchange programs is becoming increasingly important in this era of globalization. One of them is the Asian Students Exchange Program (ASEP), which aims to evaluate the Asian Student Exchange Program at Al Azhar Islamic Middle School 9 Kemang Pratama Bekasi. Research methodology using the CIPP. Methodology is carried out to analyze the effectiveness and sustainability of the program. Through the Context, Input, Process, and Product (CIPP) approach, the evaluation provides a comprehensive understanding of the various aspects of the program, from the initial context to its long-term impact. 2) The Input Aspect indicates that the implementation guidance, program management, and participant preparation have been done well. The guidelines are available complete and understandable, the management of the program is organized effectively with clear task division, and the participant is prepared with the required qualifications. 3) The Process Aspect, in which the ASEP (Asian Students Exchange Program) program implementation is generally good enough but still needs improvement in some aspects to provide optimal benefits. 4) The Product Aspects, ASEP Program found that the participants showed a good level of independence during their homestay in Taiwan and confidence in their English presentation. As for the conclusion of the research results based on analysis and interpretation that the implementation of the ASEP (Asian Students Exchange Program) program is generally good enough but still needs improvement in some aspects in order to provide optimal benefits for schools that have this excellent program.

Child Care Center Staff Readiness to Change in an Early Childhood Obesity Prevention Program.

The childcare center (CCC) setting has the potential to be a strong foundation that supports the introduction of sustainable healthy lifestyle behaviors to prevent childhood obesity. It is important to assess barriers and facilitators to healthy weight development initiatives via program evaluation, including measuring CCC staff readiness to change. The overall goal of this study was to assess the readiness level over 1 school year among CCC staff who participated in "Healthy Caregivers-Healthy Children" (HC2), a cluster randomized controlled trial that evaluated the effectiveness of a childhood obesity prevention program from 2015 to 2018 in 24 low-income, racially/ethnically diverse centers. A secondary outcome was to assess how a CCC's stage of readiness to change was associated with CCC nutrition and physical activity environment, measured via the Environment and Policy Assessment and Observation (EPAO) tool. Mixed-models analysis with the CCC as the random effect assessed the impact of readiness to change over time on EPAO outcomes. Eighty-eight CCC teachers and support staff completed the HC2 readiness to change survey in August 2015 and 68 in August 2016. Only teachers and staff randomized to the treatment arm of the trial were included. Readiness to change and the EPAO. Results showed the majority of CCC staff in advanced stages of readiness to change at both time points. For every increase in readiness to change stage over 1 year (eg, precontemplation to contemplation), there was a 0.28 increase in EPAO nutrition scores (95% confidence interval [CI], 0.04-0.53; P = .02) and a 0.52 increase in PA score (95% CI, 0.09-0.95; P = .02). This analysis highlights the importance between CCC staff readiness to change and the CCC environment to support healthy weight development. Future similar efforts can include consistent support for CCC staff who may not be ready for change to support successful outcomes.

Autism spectrum disorder: evaluation of community-based screening program

Autism spectrum disorder: evaluation of community-based screening program

Integration of equine assisted services and social-emotional learning: A preliminary evaluation of a life skills training program for at-risk youth

Abstract This study was a preliminary evaluation of a life skills training program conducted by the Equine Partnership Program (EPP) integrating Equine Assisted Services (EAS) with social emotional learning (SEL) competencies. SEL programs aim to foster character development, curb maladaptive behaviors, and enhance social skills in at-risk youth by promoting positive relationships and emotional regulation. Many youth still require more targeted or alternative approaches to effectively nurture these skills. EAS has the potential to enhance SEL through its experiential learning approach and use of horses as a bridge, which is believed to be effective because of the horse’s innate ability to mirror and respond to human emotion. The purpose of this study was to assess the impact of EAS on the social–emotional development of at-risk youth as measured by the Depression, Anxiety, Pain, and Stress (DAPS) visual analog tool. It was hypothesized that participants would demonstrate measurable improvements in emotional regulation post intervention. Data were collected before and after the EAS experience from 33 participants. Participants were asked to rate their levels of DAPS ranging from a high of 10 to a low of 1. Using t-test comparisons, statistically significant decreases in scores were found in depression (M = −0.67, p = 0.02), and anxiety (M = −1.18, p < 0.001). Emotional pain and stress also showed decreases, though not statistically significant. This intervention shows promise to serve as an effective modality in addressing resilience and pro-social skills necessary for improved outcomes in behavioral and emotional development, thereby improving future academic, career, and overall life success, including improved social relationships.

The challenges of integrating an immigrant population with chronic hepatitis B into long-term hepatology care: Lessons learned from a Bronx West African screening program

ObjectivesHepatitis B virus (HBV) is endemic in West Africa. Because of immigration to the United States, screening and transition to long-term care is a significant public health concern. We describe the challenges of integrating individuals identified in a screening program into long-term care and the spectrum of disease severity. MethodsBetween 2019 and 2023, 749 individuals were screened. Beginning 2022, all were offered a free serologic evaluation. Details of the previous diagnosis, HBV care, the serologic evaluation, aspartate aminotransferase to platelet ratio index, and Fibrosis index-4 scores were recorded. The results of transient elastography (TE) were correlated with the serologic evaluation. ResultsA total of 75 (10%) individuals were hepatitis B surface antigen–positive, including 58 (77.3%) previously and 17 (22.7%) newly diagnosed. Despite attempts at linkage to care, only 14 (37.8%) of those diagnosed before the offer continued and/or entered long-term care. A total of 63 of 75 (84%) returned for the evaluation. Among 56 HBV treatment-naïve individuals, 66.1% had a serologic profile consistent with the carrier state. A total of 10 (18.2%) individuals met the criteria for HBV therapy, and 10 (21.7%) had ≥F2 fibrosis on TE. There was no correlation between aspartate aminotransferase to platelet ratio index and Fibrosis index-4 scores and TE. Eight (29.6%) of 27 patients with a profile of the HBV carrier state had ≥F2 fibrosis. ConclusionIntegration of individuals with HBV from West Africa identified in a screening program into long-term care is challenging. Inclusion of a serologic evaluation in programs for immigrant communities should be considered. Up to 30% of individuals with a serologic profile consistent with the HBV carrier state may have ≥F2 fibrosis.

Progress Toward Tuberculosis Elimination and Tuberculosis Program Performance - National Tuberculosis Indicators Project, 2016-2022.

Elimination of tuberculosis (TB) is defined as reducing TB disease incidence in the United States to less than 1 case per million persons per year. In 2022, TB incidence in the United States was 2.5 TB cases per 100,000 persons. CDC's TB program developed a set of national TB indicators to evaluate progress toward TB elimination through monitoring performance of state and city TB program activities. Examining TB indicator data enables state- and city-level TB programs to identify areas for program evaluation and improvement activities. These data also help CDC identify states and cities that might benefit from technical assistance. The 5-year period for which the most recent data were available for each of five indicators: 1) overall TB incidence (2018-2022), 2) TB incidence among non-U.S.-born persons (2018-2022), 3) percentage of persons with drug susceptibility results reported (2018-2022), 4) percentage of contacts to sputum acid-fast bacillus (AFB) smear-positive TB patients with newly diagnosed latent TB infection (LTBI) who completed treatment (2017-2021), and 5) percentage of patients with completion of TB therapy within 12 months (2016-2020). The National TB Indicators Project (NTIP) is a web-based performance monitoring tool that uses national TB surveillance data reported through the National TB Surveillance System and the Aggregate Reports for TB Program Evaluation. NTIP was developed to facilitate the use of existing data to help TB program staff members prioritize activities, monitor progress, and focus program improvement efforts. The following five indicators were selected for this report because of their importance in Federal TB funding allocation and in accelerating the decline in TB cases: 1) overall TB incidence in the United States, 2) TB incidence among non-U.S.-born persons, 3) percentage of persons with drug susceptibility results reported, 4) percentage of contacts to sputum AFB smear-positive TB cases who completed treatment for LTBI, and 5) percentage of patients with completion of TB therapy within 12 months. For this report, 52 TB programs (50 states, the District of Columbia, and New York City) were categorized into terciles based on the 5-year average number of TB cases reported to National TB Surveillance System. This grouping allows comparison of TB programs that have similar numbers of TB cases and allocates a similar number of TB programs to each category. The following formula was used to calculate the relative change by TB program for each indicator: [(% from year 5 - % from year 1 ÷ % from year 1) × 100]. During the 5-year period for which the most recent data were available, most TB programs had improvements in reducing overall TB incidence (71.2%) and increasing the percentage of contacts receiving a diagnosis of LTBI who completed LTBI treatment (55.8%); the majority of programs (51.0%) also had improvements in reducing incidence among non-U.S.-born persons. The average percentage of persons with drug susceptibility results reported in most jurisdictions (28 of 52, [53.9%]) met or exceeded the 5-year national average of 97% (2018-2022). The percentage of contacts to sputum acid-fast bacillus (AFB) smear-positive TB patients with newly diagnosed latent TB infection (LTBI) who completed treatment increased in 29 of 52 (55.8%) jurisdictions from 2017 to 2021, signifying that, for most jurisdictions, steps have been taken to enhance performance in this area. The average percentage of patients with completion of TB therapy within 12 months was at or above the national average of 89.7% in approximately two-thirds (32 of 52 [61.5%]) of jurisdictions. This report is the first to describe a 5-year relative change for TB program performance. These results suggest that TB programs are making improvements in activities that help identify persons with TB and LTBI and ensure patients complete treatment in a timely manner. Use of NTIP data from individual TB programs enables a more detailed examination of trends in program performance and identification of areas for program improvement. Assessing indicator trends by TB program provides an opportunity to gain a better understanding of program performance in comparison to other programs. It can also facilitate communication between programs regarding successes and challenges in program improvement. This information is valuable for TB programs to allocate resources effectively and provide additional context on TB control for public health policymakers.

Variability in public health programming and priorities to address health inequities across public health units in Ontario, Canada.

In 2018, Ontario Public Health Standards were updated to include the foundational Health Equity Standard to guide planning, implementation, and evaluation of public health programs and services. Public health units (PHUs), the regional public health bodies, are now required to address health equity through four requirements: (a) Assessing and Reporting; (b) Modifying and Orienting Public Health Interventions; (c) Engaging in Multi-sectoral Collaboration; and (d) Health Equity Analysis, Policy Development, and Advancing Healthy Public Policies. This qualitative descriptive study explored how the 27 participating PHUs (out of 34) serving urban (N = 10), mixed urban-rural (N = 15), and rural (N = 9) populations addressed the Health Equity Standard. Using document analysis, we inductively and deductively coded the content of 68 PHU Annual Service Plan and Budget Submissions from a 3-year period (2018-2020) received from the 27 PHUs. Emergent categories were organized into the four requirements and one additional emergent theme: Organizational Implementation of Health Equity. The approaches of embedding health equity into PHUs' activities varied across groups. Urban PHUs presented more diverse strategies, including working with a larger number of organizations, and participating in academic research projects. We found more process standardization and greater discussion of capacity building in urban and mixed urban-rural PHUs. Rural PHUs strategically addressed the needs of their diverse populations through relationship building with Indigenous communities. Findings suggest broad implementation of health equity approaches in public health independent of PHUs' geographic size and population dispersion, though strategies and key challenges differ across units.

Optimizing the level of disaster preparedness for coastal children in creating a disaster resilient generation

Indonesia is home to various natural disasters, including earthquakes and tsunamis, due to its location in the Ring of Fire. Jember Regency in East Java is one of the areas with a high risk of these disasters. Sabrang Village, bordering the South Coast of Jember, has the potential to become a disaster-resilient village. This program aims to increase disaster preparedness for children on the south coast, optimize partner empowerment in increasing child preparedness, and establish a Disaster Empowerment Center (DEC) in Sabrang Village. The DEC program was implemented over three months, involving coastal children. Methods included education, training, and empowerment through Communication, Information, and Education (IEC) and disaster simulation training. Program evaluation used a preparedness questionnaire covering participants' knowledge, attitudes, and skills. The DEC program succeeded in increasing disaster preparedness for children in Sabrang Village. Collaboration with the village government, public health center, and other partners was crucial to the program's success. DEC implementation can serve as a model for community empowerment in dealing with earthquakes and tsunamis.

Evaluation of the Expert Patient PANLAR self-management program in rheumatoid arthritis. A pilot study in Argentina, Colombia and Panamá

Education is a cornerstone of the comprehensive management of patients living with rheumatic and musculoskeletal diseases (RMSDs). It allows them to optimize their self-care for health maintenance. The objective of this study was to assess the effectiveness of the PANLAR Patient Expert (PE) program in optimizing self-care skills for physical activity, healthy eating, communication with professionals, therapeutic adherence and decision making.

Introducing double fortified salt in social safety net programmes in Madhya Pradesh and Gujarat in India: Success factors, challengesand lessons learned.

Double fortified salt (DFS; with iron and iodine) was introduced in social safety net programmes (SSNPs) in Madhya Pradesh (MP) and Gujarat states in 2018. Nutrition International (NI) provided critical support for the intervention. An impact evaluation in MP found high DFS uptake, exceeding 90%. Conduct a process evaluation of the DFS programmes in MP and Gujarat states to identify success factors, challenges, and recommend considerations for scale-up. Twenty-eight qualitative interviews were conducted with NI staff, national and state level government officials, and DFS producers in 2022. Enablingenvironmental factors included national-level support for food fortification, consensus that anaemia was essential to address, and institutional trust in NI for technical assistance. In programme implementation, the primary challenges were reports of black specks in DFS and the darkening of food cooked with DFS. NI supported the government in improving handling practices, ensuring a regular and stable supply, introducing quality monitoring effortsand launching targeted behaviour change communication (BCC) campaigns regarding the value of DFS. Long-term implementation of the programmes is a weak point, as DFS production is more expensive than iodised salt, there is no existing market outside of institutional demand, and BCC must be long-term, high-quality, and requires resourcing for continued high uptake among SSNP beneficiaries. Strong government buy-in and technical support along the supply chain to address quality issues and beneficiary acceptance were key factors for the successful introduction of DFS. Comparative studies of DFS programmes should be conducted to improve confidence in the success factors that lead to high DFS uptake.

Process evaluation of a data-driven quality improvement program within a cluster randomised controlled trial to improve coronary heart disease management in Australian primary care.

This study evaluates primary care practices' engagement with various features of a quality improvement (QI) intervention for patients with coronary heart disease (CHD) in four Australian states. Twenty-seven practices participated in the QI intervention from November 2019 -November 2020. A combination of surveys, semi-structured interviews and other materials within the QUality improvement in primary care to prevent hospitalisations and improve Effectiveness and efficiency of care for people Living with heart disease (QUEL) study were used in the process evaluation. Data were summarised using descriptive statistical and thematic analyses for 26 practices. Sixty-four practice team members and Primary Health Networks staff provided feedback, and nine of the 63 participants participated in the interviews. Seventy-eight percent (40/54) were either general practitioners or practice managers. Although 69% of the practices self-reported improvement in their management of heart disease, engagement with the intervention varied. Forty-two percent (11/26) of the practices attended five or more learning workshops, 69% (18/26) used Plan-Do-Study-Act cycles, and the median (Interquartile intervals) visits per practice to the online SharePoint site were 170 (146-252) visits. Qualitative data identified learning workshops and monthly feedback reports as the key features of the intervention. Practice engagement in a multi-featured data-driven QI intervention was common, with learning workshops and monthly feedback reports identified as the most useful features. A better understanding of these features will help influence future implementation of similar interventions. Australian New Zealand Clinical Trials Registry (ANZCTR) number ACTRN12619001790134.

Implementasi Evaluasi Program Pendidikan yang Holistik dan Berkelanjutan untuk Memastikan Kualitas Pendidikan yang Optimal

This study aims to identify weaknesses in the education program that has been carried out, formulate concrete improvement recommendations, and implement these corrective measures to improve the quality of education produced. The research method in the preparation of this article is to use data obtained by researchers through journal references, e-books, and other information media that support the title that the researcher raises or that is relevant to the problem raised by the researcher. The results show that conducting a thorough evaluation will help educational institutions to identify the strengths and weaknesses of existing educational programs, so that continuous improvement and improvement can be made. The results of this study also highlight that holistic evaluation of educational programs involves various important aspects such as curriculum, teaching methods, teaching staff, learning, facilities, and student support.

Awareness and implementation confidence of free higher education program under UNIFAST among HEIs in Sulu, Philippines

Accessible higher education is a critical determinant of a nation's competitiveness in the global knowledge economy. By investing in human capital through free tertiary education, countries can cultivate a skilled workforce capable of driving innovation, attracting foreign investment, and remain to be competitive on the international stage. This quantitative study analyzed the perceptions of students (n=200) about the implementation of Unified Financial Assistance System for Tertiary Education (UNIFAST) in Sulu, Philippines. The students were purposively sampled from four (4) universities in the province. A standardized Likert-scale was used to elicit the perceptions of students based on three (3) implementation metric (i) institutions’ awareness of UNIFAST, (ii) application and disbursement process, and (iii) evaluation of UNIFAST outcomes. Findings indicated that the higher education institutions (HEIs) in Sulu often implemented the provisions of the law. Additionally, inferential analysis revealed that student’s demographic profile (i.e., gender, parental education attainment, family income) could influence their general evaluation of UNIFAST implementation. Notably, this could be attributed to their perception of the program as a substantial source of assistance in pursuing higher education. Likewise, the assessment of UNIFAST implementation by students may be influenced by emotional elements, such as feelings of relief and contentment. The program may receive higher ratings from students because of the emotional relief it offers, especially for individuals who are experiencing financial limitations. Future studies might consider developing a more rigorous analysis relating human emotions scaling up their overall evaluation of the UNIFAST program.

Evaluation of renewable energy subsidy programs in Croatia during a 5-year period based on a LCoH analysis

Evaluation of renewable energy subsidy programs in Croatia during a 5-year period based on a LCoH analysis

Performance of Pit Latrines and Their Herd Protection Against Diarrhea: A Longitudinal Cohort Study in Rural Ethiopia.

In sanitation policies, "improved sanitation" is often broadly described as a goal with little rationale for the minimum standard required. We conducted a secondary analysis of data collected as part of a cluster randomized controlled trial in rural Ethiopia. We compared the performance of well-constructed and poorly constructed pit latrines in reducing child diarrhea. In addition, we explored whether having a well-constructed household latrine provides indirect protection to neighbors if cluster-level coverage reaches a certain threshold. We followed up children aged younger than 5 years (U5C) of 906 households in rural areas of the Gurage zone, Ethiopia, for 10 months after community-led total sanitation interventions. A study-improved latrine was defined as having all the following: pit of ≥2 m depth, slab of any material, drop-hole cover, wall, roof, door, and handwashing facilities (water and soap observed). U5C in households with a study-improved latrine had 54% lower odds of contracting diarrhea than those living in households with a latrine missing 1 or more of the characteristics (adjusted odds ratio [aOR]=0.46; 95% confidence interval [CI]=0.27, 0.81; P=.006). Analyses were adjusted for child age and sex, presence of improved water for drinking, and self-reported handwashing at 4 critical times. The odds of having diarrhea among those with an improved latrine based on the World Health Organization/UNICEF Joint Monitoring Program (JMP) definition (i.e., pit latrines with slabs) were not substantially different from those with a JMP-unimproved latrine (aOR=0.99; 95% CI=0.56, 1.79; P=.99). Of U5C living in households without a latrine or with a study-unimproved latrine, those in the high-coverage villages were less likely to contract diarrhea than those in low-coverage villages (aOR=0.55; 95% CI=0.35, 0.86; P=.008). We recommend that academic studies and routine program monitoring and evaluation should measure more latrine characteristics and evaluate multiple latrine categories instead of making binary comparisons only.

Longitudinal evolution of the HIV effective reproduction number following sequential expansion of treatment as prevention and pre-exposure prophylaxis in British Columbia, Canada: a population-level programme evaluation

Treatment as prevention and pre-exposure prophylaxis (PrEP) are key strategies in the control of HIV/AIDS. We aimed to characterise the longitudinal effects of antiretroviral therapy (ART), followed by treatment as prevention and the addition of PrEP, on the HIV effective reproduction number (Re) in British Columbia, Canada. This population-level programme evaluation used data from the Drug Treatment Program of the British Columbia Centre for Excellence in HIV/AIDS (Vancouver, British Columbia, Canada). We also used estimates of HIV incidence and prevalence from the Public Health Agency of Canada, data on the number of new HIV diagnoses per year from the British Columbia Centre for Disease Control, and mortality data from the British Columbia Vital Statistics Agency. Data were obtained from 1985 until 2022, depending on the database source. Outcomes were the annual HIV prevalence, HIV incidence, number of new HIV diagnoses, number of people living with HIV on ART, HIV/AIDS-related and all-cause mortality rates, the HIV incidence-to-all-cause-mortality ratio, and Re. We calculated the modified effective reproduction number (Rme) using two thresholds of viral suppression and compared these values with Re. We found a 95% decline in HIV/AIDS-related mortality and a 91% decrease in HIV incidence over the study period. The Re progressively declined from 1996 to 2022; however, from 1996 to 2017, Rme remained stable (>1) when calculated for people living with HIV with unsuppressed viraemia, suggesting that treatment as prevention reduces HIV incidence by decreasing the pool of individuals who are potentially able to transmit the virus. From 2018 to 2022, a decline in the estimated Re and Rme (<1) was observed regardless of whether we considered all people living with HIV or only those who were virologically unsuppressed. This finding suggests that PrEP decreases HIV incidence by reducing the number of susceptible individuals in the community, independently of viral suppression. Our results show the synergy between generalised treatment as prevention and targeted PrEP in terms of decreasing HIV incidence. These findings support the incorporation of longitudinal monitoring of Re at a programmatic level to identify opportunities for the optimisation of treatment-as-prevention and PrEP programmes. British Columbia Ministry of Health, Health Canada, Public Health Agency of Canada, Vancouver Coastal Health, Vancouver General Hospital Foundation, Genome British Columbia, and the Canadian Institutes of Health Research.

Training Health Professional Students as Social Risk Advocates

Recognizing the intersection of cultural competency and social determinants of health is a pivotal aspect of enhancing health outcomes. In this retrospective cohort study, we sought to assess the influence of a 2-year leadership program on participants’ knowledge and self-confidence in utilizing social risk-targeted care to advocate for individual health and well-being. From 2018 to 2022, 318 health profession students completed the comprehensive 2-year program, and completed the program evaluation, which gauged the program’s impact on their knowledge and confidence to utilize social risk advocacy for those they serve. The data analysis revealed a statistically significant positive change between the pre-test and post-test phases regarding students’ self-reported comprehension of how an individual’s culture or background can impact their overall health and healthcare choices. There was a notable improvement in self-efficacy related to catering to the unique needs of individuals in rural and underserved settings as well as an increased intent to practice in underserved communities. The findings underscore the affirmative influence of affording students the opportunity to engage in tailored didactic training and community-based learning designed to cultivate the self-confidence necessary to advocate for health equity within their communities.

Virtual leadership program for adolescents with muscular dystrophy: a process evaluation

ABSTRACT Children with muscular dystrophy go through the challenge of moving into adolescence compounded with the challenge of living with a debilitating muscle disease. This paper describes the process evaluation of a group leadership program for adolescents with muscular dystrophy. A five-day online program was conducted for 14 participants, 12 males, and 2 females, between 13 and 18 years, beneficiaries of Mobility in Dystrophy (MIND) trust, Kerala, India. The sessions, which lasted around one and a half hours each, focused on self-discovery through a participatory strength-based approach. The participants’ feedback was thematically analyzed. The process evaluation parameters, fidelity, dose delivered and received, reach, and context were found to be effective. The 100% attendance of the participants and their perceived improvement in self-confidence, self-awareness, friends circle, skills-set, and leadership were identified as positive outcomes. Psychosocial intervention programs through the online platform, with structured follow-ups for adolescents with life-limiting conditions would be beneficial.