Diary Entry Research Articles

75P Electronic patient-reported outcomes and machine learning in predicting unplanned visits and hospitalisation rates in cancer patients undergoing systemic therapy

Electronic patient-reported outcomes (ePRO) have shown the potential to improve clinical practice for cancer patients. The collection of ePRO via smartphone apps is becoming more wide-spread. Such data, comprising of symptom and diary entries, could conceivably be utilised to predict the occurrence of unplanned hospitalisation events via machine learning algorithms. 226 cancer patients (mainly breast cancer) using the consilium care ePRO app under systemic therapy. A diary entry is associated with an “unplanned visit” flag if such a visit or a hospitalization of the patient occurred on or within 3 days. We assume that on these days, an alarm raised to the patient or her/his physician would have been helpful. Out of 16,670 entries, only 166 (1%) were flagged. To implement an early warning system, we trained a rule-based ML algorithm to predict critical situations, which we made more sensitive to the few flagged entries by applying cost-sensitive classification, assigning a 10-fold higher cost to missing a critical situation as compared to a false alarm. Rules are using are based on the strengths of symptoms captured by the patients, their perceived wellbeing, drugs they were taking, as well as keywords derived from free-text notes of patients and from their diagnosis; e.g. one of our rules suggests that an unplanned visit is likely to occur if a patient reports pain on a level of 38 or more and a wellbeing of 60 or less (both out of 100) and uses the word “today” in his/her notes of the given day. We intentionally used algorithms that are potentially inferior in prediction quality to modern deep learning approaches, but have the advantage of being not only human-interpretable, but even directly “human-modifiable” so that we can incorporate medical expertise into the machine-learned model at a later stage. We discovered a set of 55 rules which, as a whole, were able to correctly predict 47 of the 166 critical situations (28.3% recall), while raising 267 false alarms (15.2% precision). Preliminary analysis of this study suggests that ML based prediction models trained on ePRO data can predict unplanned hospitalisation events within cancer patients.

Efficacy, Safety, and Tolerability of Adjunctive Eslicarbazepine Acetate in Focal Seizure Patients With Focal to Bilateral Tonic-Clonic Seizures at Baseline (P14-1.003)

<h3>Objective:</h3> Here we report the efficacy, safety, and tolerability of eslicarbazepine acetate (ESL) in patients who experienced baseline focal to bilateral tonic-clonic seizures (FBTCS). <h3>Background:</h3> ESL is approved for focal seizure treatment. FBTCS are the most severe form of focal seizures and place patients at increased risk of injuries and sudden unexpected death. <h3>Design/Methods:</h3> Pooled data from 3 randomized clinical trials of ESL in patients with focal seizures (N=1447) were analyzed. After an 8-week baseline, patients were titrated over 2 weeks to their maintenance dose (400, 800, or 1200 mg/day; 12 weeks). Efficacy was assessed in a patient subset with ≥1 baseline FBTCS and ≥800 mg/day ESL maintenance dose by comparing standardized seizure frequency (SSF, FBTCS/28 day) during the maintenance period with placebo. Adverse events (AEs) were collected and tabulated. <h3>Results:</h3> A total 438 patients, aged 16–69, met the subset criteria and 429 patients had ≥1 post-baseline seizure diary entry. Baseline characteristics were balanced among treatment groups. Baseline median FBTCS SSF was 2.5 (placebo), 2.5 (ESL 800mg), and 2.4 (ESL 1200mg). During maintenance, the FBTCS SSF was lower in ESL groups (800mg, 0.9; 1200mg, 0.8) compared to placebo (1.1), and was significant for ESL 1200mg (P=0.0395, ANCOVA). ESL 1200mg patients achieved ≥50% reduction in SSF (61.9%, P=0.005, Cochran-Mantel-Haenszel test) or ≥75% reduction in SSF (46.0%, P=0.0315) at greater rates versus placebo (≥50%, 45.6%; ≥75%, 33.3%). Time to first seizure was significantly longer in ESL groups than placebo (Kaplan-Meier). Incidence of AEs and AEs leading to discontinuation increased with ESL dose. <h3>Conclusions:</h3> Adjunctive ESL was well-tolerated and increased time to first seizure for patients with FBTCS. ESL 1200mg significantly improved 50% and 75% responder rates compared to placebo. ESL may be a useful treatment option for FBTCS. <b>Disclosure:</b> The institution of Dr. Chung has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for ucb pharma. Dr. Chung has received personal compensation in the range of $500-$4,999 for serving as a Consultant for SK Life sciences. Dr. Chung has received personal compensation in the range of $500-$4,999 for serving as a Consultant for eisai. Dr. Chung has received personal compensation in the range of $50,000-$99,999 for serving on a Speakers Bureau for eisai. Dr. Chung has received personal compensation in the range of $50,000-$99,999 for serving on a Speakers Bureau for ucb. Dr. Chung has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for SK Life sciences. Dr. Chung has received personal compensation in the range of $50,000-$99,999 for serving on a Speakers Bureau for sunovion. Samy Guirguis has nothing to disclose. Dr. Cantu has received personal compensation for serving as an employee of Sunovion Pharmaceuticals Inc.. Joana Moreira has received personal compensation for serving as an employee of BIAL. Luis Magalhaes has received personal compensation for serving as an employee of BIAL-Portela &amp; Cª, S.A.. Ms. Hall has received personal compensation for serving as an employee of Sunovion Pharmaceuticals Inc.. Ian Zhang has received personal compensation for serving as an employee of Sunovion Pharmaceuticals Inc.. Todd Grinnell, PhD has received personal compensation for serving as an employee of Sunovion Pharmaceuticals Inc..

Krleža’s Political and Psychotic Bestiary: An Example of Dramatic Menagerie on a Timeline from 1913/1914 to 1970

The paper interprets M. Krleža’s political and psychotic bestiary on the example of his plays, beginning with the first fragmental drama Saloma, which opens Krleža’s diary entries (dated 26 February 1914) from the First World War (this is his diary-memoir book Davni dani, subsequently published in 1956), and ends with the screenplay Put u raj (1970), by which Krleža completed his drama work. Focusing on that period (1914– 1970), the paper considers Krleža’s dominant zoo-metaphors in the framework of his negative anthropology. In Saloma, for instance, the zoo-lexeme dog is reflected as the dominant zoo-metaphor. Specifically, for Saloma, everything that happens on war-like Earth is determined by the dog’s existence as a subservient ingratiator toward all forms of power in the government. Instead of O. Wilde’s somewhat precious Secessionist ornamental language, Krleža’s Saloma begins with her aggressive nihilism and with Kyon-metaphors: “Nothing! You are as boring as wet dogs!” (Davni dani, diary entry dated 26 February 1914). This paper identifies Krleža’s dramatic political and psychotic bestiary on select examples (one play per dramatic period), taking into account the classification of Krleža’s dramatic work (18 plays) in five stylistic-generic cycles as part of Krleža’s negative anthropology.In the screenplay Put u raj, a cricket as the dominant zoo-metaphor discloses himself by his singing to the drama binomials (the ego and alter ego: Bernardo and Orlando) in the urinal, while they are urinating together (the male urinating topos) following their narcotic bliss. By combining two issues, the subject of meditation on the death from the novel Cvrčak pod vodopadom and the theme of the eternal repetition of Human Stupidity from the Finale (see the book of political essays Deset krvavih godina, 1937), Krleža rounds out his personal view of the global anti-utopia and dystopia in this anti-war requiem play.We conclude that Krleža’s political and psychotic bestiary which we have examined on select examples using the drama menagerie on a timeline from 1913/1914 to 1970 is consistent: within the framework of a permanent negative anthropology, Krleža’s preoccupation with documenting the all-powerful human stupidity of the man-ape who, when it learned to fly, bombs other apes, although in speciesist zoo-metaphors, we can say that Krleža does not find utopia in nature “as there is no justice even among flowers”, as the title of one of his ballads states. In short, by negating Feuerbach’s anthropological thesis Man with man – the unity of I and Thou – is God and by promoting the Ape to / as Man’s deputy, as Desmond Morris does with the cover of Naked Ape, Krleža shows that Man is at its core and being (the ontological structure of the human being) is not homo sapiens. Today’s pandemic picture of the world demonstrates all of this, or as Krleža would say in speciesist manner: man is still an ape, or as a non-speciesist statement: man is still man, the bloodiest animal.

Ubytovali jsme se u Turka. Amandus Polanus a jeho návštěva rudolfinské Prahy v létě 1591

Amandus Polanus from Opava, later professor of theology at the University of Basel, visited Prague several times. In his diary, preserved in the University Library in Basel, he describes his visit to Prague in August 1591 in considerable detail. The diary entry informs us that Polanus stayed at Prague Castle at the inn of Hans Turek. He had a thorough tour of the castle with all its buildings and gardens, and he even had the opportunity to see Emperor Rudolf II coming out of the cathedral. Polanus also paid attention to the two royal game reserves, Stromovka and Hvězda. His descriptions of the Imperial Mill, which was being built at the time, and its surroundings are very useful for art-history research.

The Matrix of Poetry: James Schuyler’s Diary

In his essay Mikołaj Wiśniewski presents an unpublished 1962 diary entry and two chapters from an unfinished novel found by the author when conducting research in the James Schuyler archive of the Mandeville Special Collections Library at UCSD. Wiśniewski goes on to show how Schuyler experimented with the diary form long before he started keeping a diary in the late 1960s (the published Diary of James Schuyler starts with 1967) and how the practice always served him as a starting point or “training ground” for other projects, be it a novel or the late long poems of the 1970s and 1980s. The author also comments on Schuyler’s poetics of the quotidian and the boring, contrasting it with Frank O’Hara’s focus on moments of exceptional emotional and perceptual intensity.

S96 An Exploration of the Experience and Measurement of Fatigue in Adults With Crohn’s Disease

Background: Fatigue has a detrimental impact on health-related quality of life and functioning in patients with Crohn’s disease (CD). We aimed to confirm the relevance and importance of fatigue, establish the content validity of the Functional Assessment of Chronic Illness Therapy–Fatigue (FACIT-F), qualitatively explore meaningful change in fatigue experience, and assess the measurement properties of the FACIT-F in patients with moderate-to-severe CD. Methods: This was a mixed-methods observational study consisting of a cross-sectional qualitative interview (Part A) and a longitudinal 2-week daily diary pilot study (Part B) in participants aged ≥18 years with a clinical diagnosis of moderate-to-severe CD. Part A included open-ended questions related to the participant’s overall experiences with CD, fatigue, and impact on daily activities and a cognitive debriefing of several patient-reported outcomes (PROs), including the FACIT-F. Part B consisted of participants completing an electronic daily diary that included the FACIT-F and other PROs for 14 days. Item performance, test-retest reliability, and construct validity were assessed at baseline (Day 1), Day 7, and Day 14. Results: In Part A, thirty-five participants (mean age 45.1 years; 65.7% female) completed an interview. Ninety-one percent of the interview participants reported fatigue as a symptom attributed to CD. Participants indicated that fatigue had a major impact on their daily activities (e.g., recreation/ hobbies, work/school, yard work and housework), social activities, and emotional health. The FACIT-F was well understood by the interview participants. In Part B, seventy-6 participants (mean age 41.9 years; 66% female) completed at least the Day 1 diary entry. Potential floor and ceiling effects were observed for several FACIT-F items, but test-retest reliability and construct validity were all strong and within the ranges hypothesized a priori. Conclusion(s): The interviews indicate that fatigue is a frequent and bothersome symptom experienced by most patients with moderate-to-severe CD and support the content validity of the FACIT-F in this population. Daily diary study results indicate that the FACIT-F scale demonstrates adequate reliability and validity among patients with CD. These study findings suggest that the FACIT-F would be a reliable, valid, and useful measure of fatigue in patients with moderate-to-severe CD.

Upadacitinib Therapy Reduces Ulcerative Colitis Symptoms as Early as Day 1 of Induction Treatment

We evaluated the efficacy of once-daily (QD) upadacitinib 45 mg, an oral, reversible Janus kinase inhibitor, on early symptomatic improvement for ulcerative colitis (UC). Post hoc analyses were performed on pooled data from 2 replicate, phase 3, multicenter induction trials, U-ACHIEVE Induction and U-ACCOMPLISH, to determine the earliest time point of efficacy onset. Diary entry data through 14 days from the first dose of placebo or upadacitinib 45 mg QD were analyzed for daily improvement in UC symptoms (stool frequency, rectal bleeding, abdominal pain, and bowel urgency). Changes in inflammatory markers, high-sensitivity C-reactive protein (hs-CRP), and fecal calprotectin (FCP) were assessed at week 2 and quality of life (QoL) at weeks 2 and 8. Regression analysis determined the association between changes in UC symptoms and the likelihood of achieving clinical remission/response per Adapted Mayo score at week8. Overall, 988 patients (n= 328 placebo, n= 660 upadacitinib) were analyzed. Patients treated with upadacitinib demonstrated significant improvements vs placebo in all UC symptoms between days 1 and 3 and maintained through day 14. A >50% reduction from baseline in hs-CRP and FCP levels was achieved by 75.7% and 48.2% of patients, respectively (P < .001 vs placebo). Increased rates of clinical remission/response per Partial Mayo score from week 2 (26.9%/59.4% upadacitinib 45 mg QD vs 4.3%/22.3% placebo, P < .001) and significant improvements in QoL at weeks 2 and 8 were observed. Early improvement in stool frequency and bowel urgency by day 3 and reductions in hs-CRP and FCP by week 2 were significantly associated with clinical remission/response at week8. Upadacitinib 45 mg QD provided rapid relief of UC symptoms from day 1. gov: U-ACHIEVE Induction (NCT02819635) and U-ACCOMPLISH (NCT03653026).

NoteWordy: Investigating Touch and Speech Input on Smartphones for Personal Data Capture

Speech as a natural and low-burden input modality has great potential to support personal data capture. However, little is known about how people use speech input, together with traditional touch input, to capture different types of data in self-tracking contexts. In this work, we designed and developed NoteWordy, a multimodal self-tracking application integrating touch and speech input, and deployed it in the context of productivity tracking for two weeks (N = 17). Our participants used the two input modalities differently, depending on the data type as well as personal preferences, error tolerance for speech recognition issues, and social surroundings. Additionally, we found speech input reduced participants' diary entry time and enhanced the data richness of the free-form text. Drawing from the findings, we discuss opportunities for supporting efficient personal data capture with multimodal input and implications for improving the user experience with natural language input to capture various self-tracking data.

Nitinikiau Innusi: I Keep the Land Alive by Tshaukuesh Elizabeth Penashue (review)

Reviewed by: Nitinikiau Innusi: I Keep the Land Alive by Tshaukuesh Elizabeth Penashue Clifford G. Atleo (bio) Nitinikiau Innusi: I Keep the Land Alive by Tshaukuesh Elizabeth Penashue University of Manitoba Press, 2019 NITINIKIAU INNUSI is a collection of diaries of Tshaukuesh Elizabeth Penashue, an Innu woman well known for her opposition to low-level flying and bomb testing by NATO jets on Innu land in the 1980s and 1990s. Tshaukuesh's diary entries were originally written in Innu-aimun and were cotranslated and coedited for this book by friend and ally Elizabeth Yeoman, professor emerita from Memorial University. The book is divided into four parts and covers Tshaukuesh's years of environmental and cultural activism from 1987 to 2016. Tshaukuesh was given an Indspire (formerly National Aboriginal Achievement) Award for environmental activism in 2008. Her diaries provide a glimpse into her thoughts and feelings during this tumultuous time, including her fears, doubts, heartache as well as joys and hopes for the future. Tshaukuesh was happiest when we she was on the land, living the life of her ancestors. She writes, "I loved learning from my parents when we were in nutshimit. We were never impatient or dissatisfied . . . we're so healthy when we're in the bush" (58–59). Tshaukuesh's reflections on her experiences on the land are a mix of her descriptions of hard work, the happiness she felt, and the stark differences between a traditional Innu life and the rapidly changing realities of life in colonial Canada. What was simply life in the bush during Tshaukuesh's childhood, over the course of her lifetime, morphed into conscious efforts of cultural activism as she became a mother and grandmother. As modern living pulled her children and grandchildren away from the land for school and work, Tshaukuesh organized walks and canoe trips into nutshimit. She lamented the growing disconnect from the land that her people experienced over time. In a poignant diary entry about her daughter Kanani, she writes, I see you walk outside to your car. You're so well-dressed and elegant as you drive away. I want you to know how much I miss you since you took this job. Now you won't be able to go on the land, you who loved nutshimit so much and who used to help me do all the work that needed to be done. You won't be able to take your children to nutshimit, either. It seems you're always [End Page 127] working, and I'm afraid you've abandoned forever the way of life that you loved so much in nutshimit. (72) At times, she felt her community had given up protecting the land. Her son Peter, who was elected president of the Innu Nation and later, Member of Parliament and minister of intergovernmental affairs, negotiated land claims and ultimately supported the building of a dam that Tshaukuesh and others opposed. She stated, sadly, that "the people aren't united anymore, they're distracted and confused by money. The government paid us off so they could destroy our land" (170). In many ways, Nitinikiau Innusi reads as a tragedy of loss of traditional Indigenous ways due to living under settler colonialism, but Tshaukuesh's life, activism, and words are also an inspiration. Tshaukuesh traveled all over Canada, the United States, and Europe speaking out against NATO and many resource extraction projects. She spoke at Harvard, testified before the Human Rights Tribunal in the Hague, and even met the Queen of England. She also organized protests and occupations, often being sent to jail for her efforts. Through her experiences she developed a strong appreciation for the organizing power of Indigenous women. In 1988, Tshaukuesh wrote, "I had never known how strong women could be until then. Until then I thought it was up to the men to stand up to these forces, but since I spoke out, stood up to NATO, I will never again believe that there are any limits to what women can do" (17). Indigenous women remain at the forefront of cultural and environmental activism all over the world. Tshaukuesh writes, "We're very strong women; if we sit down together and...

Detection of Potential Arbovirus Infections and Pregnancy Complications in Pregnant Women in Jamaica Using a Smartphone App (ZIKApp): Pilot Evaluation Study.

BackgroundThere is growing evidence of the benefits of mobile health technology, which include symptom tracking apps for research, surveillance, and prevention. No study has yet addressed arbovirus symptom tracking in pregnancy.ObjectiveThis study aimed to evaluate the use of a smartphone app (ZIKApp) to self-report arbovirus symptoms and pregnancy complications and to assess compliance with daily symptom diaries during pregnancy in a cohort of women in an arbovirus-endemic, subtropical, middle-income country (Jamaica).MethodsPregnant women aged ≥16 years, having a smartphone, and planning on giving birth at the recruiting center were enrolled between February 2020 and July 2020. ZIKApp comprised a daily symptom diary based on algorithms to identify potential episodes of arbovirus infection and pregnancy complications. Sociodemographic, epidemiological, and obstetric information was collected at enrollment, with additional review of medical records, and users’ perception was collected through an exit survey. Descriptive analyses and logistic regression analysis of possible factors associated with diary adherence were performed.ResultsOf the 173 women enrolled, 157 (90.8%) used ZIKApp for a median duration of 155 (IQR 127-173) days until pregnancy end, 6 (3.5%) used the app for <7 days, and 10 (5.8%) exited the study early. For each successive 30-day period from enrollment up to 150 days after enrollment, of these 157 women, 121 (77.1%) to 129 (82.2%) completed their daily symptom diary; 50 (31.8%) to 56 (35.7%) did so on the same day. Overall, 31.8% (50/157) of the women had good adherence to diary reporting (ie, they completed the task on the same day or 2 to 3 days later for ≥80% of the days enrolled). There were 3-fold higher odds of good adherence for participants aged >34 years versus those aged 25 to 29 years (adjusted odds ratio 3.14, 95% CI 1.10-8.98) and 2-fold higher odds for women with tertiary versus secondary education (adjusted odds ratio 2.26, 95% CI 1.06-4.83). Of the 161 women who ever made a diary entry, 5454 individual symptom reports were made (median 17 per woman; IQR 4-42; range 0-278); 9 (5.6%) women reported symptom combinations triggering a potential arbovirus episode (none had an adverse pregnancy outcome) and 55 (34.2%) reported painful uterine contractions or vaginal bleeding, mainly in the month before delivery. Overall, 51.8% (71/137) of the women rated the app as an excellent experience and were less likely to be poor diary adherers (P=.04) and 99.3% (138/139) reported that the app was easy to understand and use.ConclusionsThis pilot found a high adherence to ZIKApp. It demonstrated the feasibility and usability of the app in an arbovirus-endemic region, supporting its future development to contribute to surveillance and diagnosis of arbovirus infections in pregnancy and to optimize maternal care.

Heart rate changes associated with autonomic dysreflexia in daily life of individuals with chronic spinal cord injury.

Secondary data analysis. To characterize heart rate (HR) changes during autonomic dysreflexia (AD) in daily life for individuals with chronic spinal cord injury (SCI). University-based laboratory/community-based outpatient. Cardiovascular data, previously collected during a 24-h ambulatory surveillance period in individuals with chronicSCI, were assessed. Any systolic blood pressure (SBP) increase ≥20 mmHg from baseline was identified and categorized into confirmed AD (i.e., diarized trigger), unknown (i.e., no diary entry), or unlikely AD (i.e., potential exertion driven SBP increase) groups. SBP-associated HR changes were categorized as unchanged, increased or decreased compared to baseline. Forty-five individuals [8 females, median age and time since injury of 43 years (lower and upper quartiles 36-50) and 17 years (6-23), respectively], were included for analysis. Overall, 797 episodes of SBP increase above AD threshold were identified and classified as confirmed (n = 250, 31.4%), unknown (n = 472, 59.2%) or unlikely (n = 75, 9.4%). The median number of episodes per individual within the 24-h period was 13 (8-28). HR-decrease/increase ratio was 3:1 for confirmed and unknown, and 1.5:1 for unlikely episodes. HR changes resulting in brady-/tachycardia were 34.4%/2.8% for confirmed, 39.6%/3.4% unknown, and 26.7%/9.3% for unlikely episodes, respectively. Our findings suggest that the majority of confirmed AD episodes are associated with a HR decrease. Using wearable-sensors-derived measures of physical activity in future studies could provide a more detailed characterization of HR changes during AD and improve AD identification.

Diary Entry #5: Self-Portrait as Revelations, and: A Hundred and Then None

Diary Entry #5: Self-Portrait as Revelations, and: A Hundred and Then None

The Prettiest Star

The Prettiest Star

“O My Mother”: Mormon Fundamentalist Mothers in Heaven and Women's Authority

“O My Mother”: Mormon Fundamentalist Mothers in Heaven and Women's Authority

Natural History of Abortive Medication Withdrawal in the Management of Pediatric Medication Overuse Headache.

The objective of this study is to document pain scores during withdrawal of abortive medication in patients diagnosed with medication overuse headache. Cross-sectional study. Children's National Hospital's Headache Program. Patients 6-18 years of age who presented to the Headache Clinic at Children's National Hospital with presumed medication overuse headache between March 2017 and March 2019 were invited to participate. Patients were instructed to abruptly discontinue overused medications and record their headache characteristics daily in a diary for 8 weeks. Fourteen diaries were returned and analyzed at a 4-week follow-up visit. Ninety-three percent of the patients were females, with a median age of 14.9 years (standard deviation [SD] = 2.0). The average headache intensity upon study entry was 4.7 out of 10 (SD = 2.5), and the average headache intensity upon study completion was 3.1 (SD = 2.5). Of the patients, 57% had daily headaches upon study entry, 71% had improved pain intensity from the first diary entry to the last diary entry, and 57% had complete headache resolution at an average of 7.6 days from medication discontinuation (SD = 5.1). Ibuprofen was the most overused medication (71%). Our findings suggest that medication overuse headache will improve in the majority of pediatric patients who abruptly stop the offending medication(s) in an average of 8 days from withdrawal. Average pain intensity was reduced by more than one point among all patients who stopped taking abortive medications. Further larger-scale studies on medication withdrawal in pediatric patients with medication overuse headache could help us better understand whether this management strategy is effective.

Developing the Diary-Interview Approach to Study the Embodied, Tacit and Mundane Nutrition Information Behaviours of People with Type 2 Diabetes

This article discusses the development and use of the solicited unstructured diary-interview method to explore the everyday tacit and mundane nutrition information activities (NIA) of people who have type 2 diabetes. Diary completion was followed by individual qualitative interviews with individuals (n = 18) and one couple. Diary entry styles ranged from succinct daily logs of their NIA to extensive prose reflecting on the nutrition information they used and associated practices. Development of the method incorporated piloting and advice from lay groups who checked acceptability and understanding of the research tools, and highlighted the need for regular contact between the researcher and participants throughout the diary completion phase. Participants engaged positively with the diary approach. The findings highlight the extent to which the everyday NIA is mundane and thus unavailable for academic exploration. The diary-interview method exposed these practices to both the researcher and participant, and supported them to reflect on the practices they engage in every day in order to self-manage their type 2 diabetes. Although this article draws on an example from health, the article demonstrates how the diary-interview method has utility for researchers exploring other everyday tacit and mundane experiences.

Józef Kowalewski’s Diary Entry on Secret Societies in China in the Beginning of the 19th Century.

The article provides a bibliographic commentary on O.M. Kovalevsky&amp;apos;s entry in the Diary of Activities for 1832 regarding secret societies in China. This is one of the earliest mentions of this scientific problem in Russian Sinology. The source of the record is defined as a message in the missionary magazine Indo-Chinese Gleaner for 1818, which is an English translation of the text from the official Qing Peking Gazette for 1817. The author substantiates the attribution of the translation to the preacher of the London Missionary Society, W. Milne. His independent authorship should belong to the second part of the journal message listing the secret societies that existed and a short comment on their practice. We refer only to one of his entries in the Diary of Activities for 1832, dedicated to secret societies in China. A small entry in the available editions of this diary has remained without comment. This topic became popular in the middle of the XIX century on the eve of the Taiping Uprising and remains so in modern Chinese studies. The entry of Józef Kovalevski not only testifies to his keen sense of regional studies, but also points to possible, albeit not realized at the time, trends in future Chinese studies education. Kovalevski&amp;apos;s record, in fact, introduces into scientific use a problem that really attracted the attention of domestic sinologists only in the XX century. The Indo-Chinese Gleaner original text source for Kowalewski’s diary record is attached.

Make a Picture of Yourself: Indigenous Portrayals in the Reservation Diaries of Abby Williams Hill

Make a Picture of Yourself:Indigenous Portrayals in the Reservation Diaries of Abby Williams Hill Tiffany Aldrich Macbain In the summer of 1902, an artist named Abby Williams Hill (1861–1943) camped with her children at Trout Lake, Washington, not far from their home in Tacoma. A few days into their stay, Hill found herself drawn to a large group of Yakama people who had established an encampment nearby. She approached the camp, according to her diary, with the twin desires to experience "Indians" not living "among the whites" and to sketch them in their "national costume[s]" (Journal, Aug. 1902, 304). In this account we find the romantic language and sympathies Hill typically reinscribes when writing in her diaries about Indigenous people. Her common recourse to received ideas about "the Indian" imposes cultural, emotional, and intellectual distance between her and her Native American subjects and signals the dominant cultural assumptions that shaped her artistic vision. Another diary entry from Trout Lake typifies these conventions of representation and, written early during what would be a decade of travels, provides a baseline understanding of the contradictory ways Hill imagined herself in relation to Native people:1 The next day we tramped back again to see / temporary camps + picturesque enough we found them—Unlike our Indians, satisfied with a 50 ct calico wrapper, these Indian women wear a national costume made of a strip of very gay calico with a hole in / middle, gores on / sides + a straight piece over / sleeves which are fastened to some undergarment. [Hill includes a sketch.] It sets off their sturdy forms well[.] They were all made by hand[.] They wore many bead ornaments, handsomely made usually a bead belt with purse attached[.] I priced one, it was 3 dollars (/purse)[.] I did not buy. I asked a handsome squaw sitting in her wigwam door if I might sketch her. I had passed chocolate freely + thot [sic] myself on pretty good terms but she persistently refused however a young brave consented[.] (Journal, Aug. 1902, 304)2 [End Page 22] Evident here are Hill's cultural biases and practices—her insistence on stereotyping Native American people and romanticizing and appropriating their lived experience. Her emphasis on clothing signals her preoccupation with white women's dress reform and her abiding opinion that traditional Native attire was preferable to the frippery and changing fashions of her own culture.3 Elsewhere in the diaries she acknowledges Western clothing as a function of forced assimilation, but here she holds the Puyallup people—"our Indians" in Tacoma—responsible for moving away from tradition. In relation to the Yakama encampment at Trout Lake, Hill positions herself as surveyor of a scene that satisfies her aesthetic preferences. Though aloof from her surroundings, she also wishes to claim elements of the culture before her, like images of the women she entices with chocolate or the "national costume" that might suit her own "sturdy form." Laying bare Hill's colonial impulses and enriching the diary's status as a historical record is the confounding performance of one Native American woman who—by way of Hill's own documentation—disrupts the stock narrative of cultural contact and draws attention to Hill's part in the exchange. As Hill completes a sketch of "a young brave," another figure, whom she refers to as the "/ chief woman of / camp," approaches and watches "with an ever deepening frown." Through an interpreter the woman commands Hill: "You make picture of yourself!" Hill's clumsy use of dialect does not diminish the significance of the interruption; the woman's disapproval adds friction to the smooth workings of the artist's colonial vision. Hill puts her off with the excuse, "I can not see myself," at which point the woman leaves, only to return moments later with a hand mirror. "Now," says the woman, "you make picture of yourself." In holding a mirror to Hill's face, the woman obstructs Hill's perspective and imposes a new image for her to behold: Hill as both artistic (and colonial) subject and object. The moment reads as one of forced self-recognition, for Hill must regard herself in the mirror as the imperial "I" and the...

Evaluating the Feasibility and Efficacy of a Pediatric Intensive Care Unit Diary.

As the progress of critical care medicine has improved the survival rate of critically ill patients, comorbidities and long-term health care have attracted people's attention. The terms "post-intensive care syndrome" (PICS) and "PICS-family" (PICS-F) have been used in non-neurocritical care populations, which are characterized by the cognitive, psychiatric, and physical sequelae associated with intensive care hospitalization of survivors and their families. An intensive care unit (ICU) diary authored by the patient's family members may alleviate the psychological distress of the patient and his or her family. This quality improvement project focused on the development and implementation of the pediatric intensive care unit (PICU) diary in the pediatric critical care setting. The project aims to evaluate the feasibility and the potential efficacy of the PICU diary, measured through parental acceptance and satisfaction. Seventeen families of critically ill children admitted to the PICU received the PICU diary during the implementation period. Twenty-four parents completed the weekly follow-up, and 15 subsequently completed the diary entry evaluation. The use of the diary in the PICU setting is feasible and considered beneficial by families of critically ill children.

ЭКСТАЗ СОПРИЧАСТНОСТИ. ЧЕЛЮСКИНСКИЙ ДНЕВНИК ОДНОЙ УЧИТЕЛЬНИЦЫ ГЕОГРАФИИ

In the article, the interconnection of modern subject with temporality is considered through the source of the historical present – the diary that the Moscow geography teacher and one of the Soviet leading supervisor in geography, Vera Rausch, kept in the first days after the sinking of the Chelyuskin steamer in the Arctic (around February 1934). Presenting a unique ego-document of the Soviet era, the researcher solves three problems. First, he describes the indirect, confusing, and incomplete relations between Rausch's biography and her archive, writing and curation in terms of the archival self. Second, he analyzes the diary, focusing in its multiple temporality. After revealing three layers of heterochronic corrections, recycling of the diary entry into a scholarly fiction becomes visible and localized in the biographical timescape. Finally, he explores the discursive and affective background that allowed the geography teacher to carry out a special kind of mediation through rejecting her “self”. Rausch shortens the distance to the Arctic event and shares the experience with her pupils. She uses school physical geography as a resource for mastering the position of the Soviet subject. Her experience of participation is described in the article against the background of the diaries of contemporaries, reflecting the Chelyuskin epic.