Development Of Self-management Skills Research Articles

‘Being a patient the rest of my life’– The influence of patient participation during recovery after brachial plexus injury

Given the modest functional outcomes seen after surgical reconstruction and subsequent therapy, increasing attention is being directed to patient satisfaction and psychological aspects of recovery after brachial plexus injury (BPI). To better understand the recovery course after surgical reconstruction for BPI, we used qualitative interviews and focused on common points of frustration for patients. Qualitative, interpretive description study METHODS: We conducted semi-structured interviews with BPI patients who were 6+ months post-surgical reconstruction. The interview focused on the patients' experience with BPI, focusing on emotional aspects of recovery. Interviews were transcribed and independently coded by 2 researchers. We used inductive and deductive analysis to organize codes into themes. Once thematic saturation was reached, no additional interviews were conducted. We interviewed 15 BPI patients at median 13 months after surgery (range: 6-43 months). Our analysis revealed: (1) BPI patients expressed variable degrees of participation during recovery, with the indeterminate state of function making it difficult to adjust to life after BPI. (2) The uncertainty while waiting for improved function is frustrating to BPI patients, with many patients expressing concern for activities and moments they are missing due to injury. (3) While many BPI patients feel left out of decision-making, those who felt engaged in the process expressed less frustration and more acceptance of their status. Traumatic BPI patients those who felt engaged in decision-making were more receptive to adjustment to their new state of function. When coordinating multidisciplinary care, measures to encourage patients to feel agency over their outcome and to develop self-management skills have the potential to improve patient satisfaction.

PD Check-In: The development and trial of a supported self-management program for people with Parkinson's disease following intensive speech intervention.

Debilitating speech and communication changes in Parkinson's disease (PD) lead to diminished quality of life for people with PD and their communication partners. Maintenance of the long-term effects of treatment such as LSVT LOUD® remains equivocal. Development of supported long-term maintenance programs is warranted. This article describes the development and preliminary outcome data for PD Check-In, a supported self-management intervention for the maintenance of speech and social communication for people with PD following LSVT LOUD. A narrative literature review of the principles of self-management and social cognitive theory of self-regulation was conducted to develop the core elements of PD Check-In. PD Check-In was conducted in person by a speech and language therapist (SLT) for three participants at 6 and 12 weeks, and at 6, 12 and 24 months following LSVT LOUD. Outcome measures included vocal intensity (SPL) during monologue and the dysarthria impact profile (DIP). PD Check-In utilized semi-structured discussion to develop, evaluate, and support the self-efficacy and skill of the person with PD in maintaining speech and social communication. Six conceptual elements of PD Check-In were identified in the development phase: partnerships, self-reflection, maintenance issues, revision, goal-setting and maintenance strategies. Preliminary intervention data revealed monologue vocal intensity at 24 months post-LSVT LOUD was maintained above pre-treatment level, but below levels achieved post-treatment. The psychosocial impact of speech changes from pre-LSVT LOUD to 24 months post-treatment as measured by the DIP was variable. Qualitative statements reflected participant experiences underlying the clinical data. The theoretical and practical underpinnings of PD Check-In were defined. The impact of PD Check-In on three persons with PD was variable but positive. Further evaluation of the model is warranted. What is already known on the subject LSVT LOUD provides efficacious treatment for the speech disorder associated with PD. Long-term maintenance of speech post-treatment varies following self-managed and group therapy interventions. People with PD have an unmet expectation of long-term maintenance of speech and improved quality of life following intensive treatment. What this paper adds to existing knowledge This study describes the development of a novel clinic-based approach to long-term maintenance of speech in PD based on the principles of self-management and self-efficacy. It provides preliminary data to demonstrate the method and its effects on three participants with varying speech difficulty, self-management skill development and psychosocial impact. What are the potential or actual clinical implications of this work? The positive impact of PD Check-In on the maintenance of monologue vocal intensity above baseline 24 months post-intensive treatment was independent of the variable impact on the quality of life of the participants. Further exploration of PD Check-In is warranted to determine the efficacy of this approach.

Systematic Review of Self-Management Assessment Tools for Children With Inflammatory Bowel Disease.

The relapsing pattern of illness and diverse management strategies for children with inflammatory bowel disease (IBD) may inhibit their opportunities to develop self-management skills. Interventions focused on the development of these skills require population-specific outcome measures. We provide a comprehensive overview of self-management skills assessment tools that are available for children with IBD that target processes and behaviors outlined as beneficial for the development of these skills. Seven health literature databases were searched using terms related to self-management, transition, IBD, Crohn's disease, ulcerative colitis, and children. Identified studies underwent a process of title and then full text review. Included studies underwent data extraction using a priori quality assessment criteria related to self-management skills, health literacy, suitability for the target population, validity and reliability testing. The searches identified 523 papers, 123 of which underwent full-text review and 10 included in the final analysis. The assessment tools identified showed great diversity in their development approach, content, methodological rigor, and health literacy considerations. The most frequently included self-management skills were related to adherence, communication, attending clinic, and disease/treatment knowledge. None of the tools satisfied the criteria of selection for use in the target population. While many chronic diseases of childhood follow a predictable disease course with established treatment pathways, IBD presents a unique set of challenges. The development of self-management skills is vital for successful disease management, but these skills should be assessed by a tool appropriate for the population and their diverse needs.

The Development of iManage-PC, an Online Symptom Monitoring and Self-management Tool for Men With Clinically Localized Prostate Cancer.

Prostate cancer (PC) often impacts 4 major aspects of health-related quality of life (HRQL): urinary, sexual, and bowel dysfunction, and anxiety. Online tools may be helpful in supporting the development of self-management skills that can improve HRQL. The aim of this study was to develop and pilot-test an online symptom monitoring and self-management program, iManage-PC. A literature search, input from experts, and feedback from patients were used to develop iManage-PC. A 4-week, single-arm pilot study was conducted with 96 men with prostate cancer. We evaluated system usability, acceptance, and satisfaction and examined preliminary effects on patient-reported outcomes. Rates of retention (94.8%) and adherence to symptom monitoring (95.0%-97.0%) were high. Most participants rated the tool as satisfactory and acceptable (81.2%-94.3%). Related-samples Wilcoxon signed rank tests revealed that participants reported increased self-efficacy related to their ability to manage their adverse effects (T = 1772.0, P < .001, r = 0.39), physical discomfort (T = 1259.0, P < .001, r = 0.40), and stress and worry (T = 1108.5, P = .001, r = 0.34). Global mental and physical health also improved (T = 1322.0, P = .032, r = 0.23, and T = 1409.0, P = .001, r = 0.35, respectively). Future research with such tools should examine the potential role of cut-score-derived management interventions to improve engagement, symptom management self-efficacy, and HRQL. Our findings are consistent with a growing body of literature that supports the feasibility and acceptability of remotely delivered interventions.

Overview of Self-Management Skills and Associated Assessment Tools for Children with Inflammatory Bowel Disease

Self-management is a multi-modal approach for managing chronic conditions that encompasses a number of different elements; knowledge, adherence, self-regulation, communication, and cognitive factors. Self-management has been shown to be beneficial for adults with inflammatory bowel disease (IBD), and for children with IBD it may help them learn to take control of their complex treatment regimens and lead to positive disease outcomes. The development of self-management skills for children with IBD is vital in order to maximize their potential for health autonomy, but it is still an emergent field in this population. This review provides an over-arching view of the self-management elements specific to children with IBD, and highlights outcome measures that may be used to assess skills within each field as well as the efficacy of targeted interventions.

Effectiveness of self‐management programmes for adolescents with a chronic illness: A systematic review

To assess what is known about the effectiveness of face-to-face self-management programmes designed specifically for adolescents (10-19years) with a chronic illness. A systematic review and synthesis without meta-analysis (SWiM). Six international web-based reference libraries were searched with a date range of 1946 to July 2020. The PRISMA statement and SWiM guideline were used for reporting the methods and results. The PICO format was used to develop a focused clinical question and the eligibility criteria of our review. Quality assessment of the included studies was performed using the Cochrane Effective Practice Organisation of Care criteria. Eight studies (four randomized controlled trials and four descriptive designs) met the inclusion criteria and were published between 2003 and 2017. Results of the review: Three studies demonstrated measures of illness control which showed initial improvements in adherence as a result of the interventions but failed to demonstrate sustained adherence over time. Booster sessions were identified as an effective strategy to improve adherence, but were often omitted. There is a limited body of evidence on the effectiveness of self-management programmes specifically developed for adolescents with a chronic illness, an important but under researched area. Future research lies in the development of more rigorous studies that focus on quantitative outcome measures for evaluating the effectiveness of self-management programmes to guide the development of future programmes. It is crucial for adolescents with a chronic illness to develop independence and the self-management skills required to effectively manage their chronic condition as they transition to adulthood. On current evidence, in planning future self-management interventions should include booster sessions. Nurses with additional training and experience have a key role in supporting adolescents with a chronic illness to develop self-management skills as they assume responsibility for their own healthcare.

Computer-supported collaborative learning (CSCL) system research - Edutab box

Collaborative/active learning has proven to be an effective educational method. It involves groups of two or more learners working together to solve a problem or complete a task and the benefits are numerous. For example, it enhances problem-solving skills, inspires critical thinking, improves social interactions and helps in the development of self-management skills and oral communication skills, to name but a few. There is potential to further enhance these benefits using information and communications technology (ICT). Professor Hirotaka Takahashi has spent his career looking at a wide range of topics, including adaptive data analysis methods, information theory, gravitational wave physics and astronomy. His current work centres around computer-supported collaborative/active learning (CSCL) systems, which he is seeking to further develop by collaborating with experts in data science, ICT system development and education. Specifically, Takahashi is working with experts to develop a CSCL system/software called the 'Edutab Box'.

Computer-supported collaborative learning (CSCL) system research - Edutab box

Collaborative/active learning has proven to be an effective educational method. It involves groups of two or more learners working together to solve a problem or complete a task and the benefits are numerous. For example, it enhances problem-solving skills, inspires critical thinking, improves social interactions and helps in the development of self-management skills and oral communication skills, to name but a few. There is potential to further enhance these benefits using information and communications technology (ICT). Professor Hirotaka Takahashi has spent his career looking at a wide range of topics, including adaptive data analysis methods, information theory, gravitational wave physics and astronomy. His current work centres around computer-supported collaborative/active learning (CSCL) systems, which he is seeking to further develop by collaborating with experts in data science, ICT system development and education. Specifically, Takahashi is working with experts to develop a CSCL system/software called the 'Edutab Box'.

Assessment of Impact of a mHealth Self-Management Intervention for Children with Sickle Cell Disease

Introduction: Children with sickle cell disease (SCD) frequently experience pain beginning in early childhood progressing throughout the lifespan. SCD-related pain during childhood is associated with decreased physical, psychological, social, and quality of life (QOL) outcomes. As a chronic, multi-organ condition, treatment for SCD may require complicated preventive health and acute treatment regimens necessitating development of self-management strategies for children and their families. mHealth may be an ideal mechanism for implementation of self-management strategies. A mHealth self-management intervention was developed with an end-user-based approach (Voice Crisis Alert V2) and guided by the Pediatric Self-Management model. Initial feasibility testing was conducted. This abstract describes preliminary impacts of the Voice Crisis Alert V2 intervention on symptoms and QOL. Methods: The characteristics and names of application (app) components such as "Crisis Care" and "I'm in Pain" are outlined in Table 1. Targeted sample size was 60 dyads of children with SCD up to age 18 and the parent/caregiver. For assessment of impact, data sources included app use, child and parent/caregiver surveys at baseline, mid-intervention, end-of intervention and post-intervention. Survey instruments included the PROMIS SF for anxiety, fatigue, depressive symptoms, pain interference, pain intensity and sleep disturbance, and the PedsQL and Sickle Cell Disease Module (SCDM) for health-related quality of life (HRQOL). Data analysis was conducted using descriptive statistics, t-tests, Wilcoxon Signed Rank test, and Spearman's rho. Independent variables were number of times and length of time (minutes) using the app and individual app components. Dependent variables were pre-post differences in scores for total PedQL, school functioning, total SCDM, and subscales: pain and hurt, pain intensity, pain management, and treatments. Results are reported with 95% CIs. Results: The most substantial pre- to post-intervention differences in symptoms and QOL scores were noted in children ages 8 - 17. Pre-post-intervention differences in scores demonstrated improvement for all symptoms outcomes except anxiety, with clinically significant improvements in depressive symptoms, fatigue, and pain interference. Improvement in total scores and all subscale scores on the PedsQL and SCDM instruments were also noted from pre- to post-intervention. The majority of correlations had CIs that crossed zero, indicating either negative or positive associations may be observed in the population. Thus, overall, frequency and length of app use was not correlated with degree of improvement in outcomes. Negative correlations were observed between the number of times the Crisis Care component was used and treatment score (rs = -.46, 95% CI [-.75, -.00]), the number of minutes the Crisis Care component was used and the treatment score (rs = -.54, 95% CI [-.80, -.11]), and the number of minutes the Crisis Care component was used and the total SCDM score (rs = -.48, 95% CI [-.77, -.03]). These correlations suggest more frequent and longer use of the Crisis Care component was associated with less substantial improvement in SCDM total score and treatments score. Conclusions: Greater improvement in scores for children ages 8 - 17 compared to children less than 8 years suggests the intervention may be particularly useful in older children with SCD. Changes in scores from pre- to post-intervention and their CIs suggest intervention use may lead to improvement in the following domains: fatigue, pain interference, HRQOL, physical functioning, social functioning, pain and hurt, pain impact, pain management, and treatments. While improvements in scores from pre- to post-intervention were noted in nearly all areas, few meaningful correlations were observed between app use and differences in outcome scores. Improvement in symptoms and QOL outcomes may be attributable to individual characteristics, such as disease severity, or the amount and type of app use required to develop self-management skills may be individualized. Sample sizes were small and future efficacy testing is warranted with a larger sample. Disclosures Kanter: AGIOS: Membership on an entity's Board of Directors or advisory committees; BEAM: Membership on an entity's Board of Directors or advisory committees; NHLBI Sickle Cell Advisory Board: Membership on an entity's Board of Directors or advisory committees; SCDAA Medical and Research Advisory Board: Membership on an entity's Board of Directors or advisory committees; Cowen: Honoraria; Wells Fargo: Honoraria; bluebird bio, inc: Consultancy, Honoraria; Novartis: Consultancy; Sanofi: Consultancy; Medscape: Honoraria; Guidepoint Global: Honoraria; GLG: Honoraria; Jeffries: Honoraria.

The impact of practical aspects of communication and thinking skills formation on improving self-management skills in university students

Introduction. The universities around the world attach great importance to acquiring self-management skills for students while training at the university. Recent studies have proven that these skills have a major role in the development of human personality and academic competencies. Communication and thinking skills are considered to be one of the most important skills that have become taught and have been included in the curricula in almost all Saudi universities. This process involves both theoretical and practical aspects, aiming to provide the student with the necessary knowledge to deal with the other, to use new technologies, to be able to think positively, and to solve problems.The aim of the present research is to assess the impact of communication and thinking skills formation on the development of self-management skills among male and female students of the preparatory year in Northern Border University (Arar, Saudi Arabia).Methodology and research methods. In the course of the research, the survey method was applied. The survey received responses from 400 students of eight faculties from the Northern Border University (200 male and 200 female students). To draw comparisons between male and female students’ perspectives, the Student’s t-test was used. The research hypotheses were validated, and the obtained data were statistically processed.Results. The survey results indicate that there is a substantial difference in male and female student perspectives regarding the impact of communication and thinking skills. It was found out that male students had a much more positive perspective while considering its impact on self-development, on the development of successful social circles, and the ability to teamwork. On the other hand, according to the female students, the development of communication and thinking skills has a positive impact on problem-solving ability, mental ability, intellectual development, creative thinking, and practical life application or life realism of students.Scientific novelty. The present study confirms the importance of the implication of academic programmes aimed at students’ self-development; as such training programmes allow students to cope with the challenges of the era of technology and remote communication. In addition to training programmes directed to positive thinking in the light of the challenges facing the world such as terrorism, extremist ideology, and racism, this study comes as an important step towards enhancing self-development skills in the field of communication and human reasoning for undergraduate students.Practical significance. The authors formulated the recommendations to reform the system of particular educational services, to improve their quality due to the fastest, synchronous implementation of technological innovations and modern equipment, and to support teachers’ competencies at the proper level. The importance of media education development actualises the creation of academic programmes at universities for the training of qualified teachers in the field of specific education, especially for countries, which do not have the same experience of training, since media education is becoming compulsory in the contemporary world, increasingly affecting the formation of individuals, culture, and society. Several proposals have been made to promote further research in this direction.

The impact of practical aspects of communication and thinking skills formation on improving self-management skills in university students

Introduction. The universities around the world attach great importance to acquiring self-management skills for students while training at the university. Recent studies have proven that these skills have a major role in the development of human personality and academic competencies. Communication and thinking skills are considered to be one of the most important skills that have become taught and have been included in the curricula in almost all Saudi universities. This process involves both theoretical and practical aspects, aiming to provide the student with the necessary knowledge to deal with the other, to use new technologies, to be able to think positively, and to solve problems.The aim of the present research is to assess the impact of communication and thinking skills formation on the development of self-management skills among male and female students of the preparatory year in Northern Border University (Arar, Saudi Arabia).Methodology and research methods. In the course of the research, the survey method was applied. The survey received responses from 400 students of eight faculties from the Northern Border University (200 male and 200 female students). To draw comparisons between male and female students’ perspectives, the Student’s t-test was used. The research hypotheses were validated, and the obtained data were statistically processed.Results. The survey results indicate that there is a substantial difference in male and female student perspectives regarding the impact of communication and thinking skills. It was found out that male students had a much more positive perspective while considering its impact on self-development, on the development of successful social circles, and the ability to teamwork. On the other hand, according to the female students, the development of communication and thinking skills has a positive impact on problem-solving ability, mental ability, intellectual development, creative thinking, and practical life application or life realism of students.Scientific novelty. The present study confirms the importance of the implication of academic programmes aimed at students’ self-development; as such training programmes allow students to cope with the challenges of the era of technology and remote communication. In addition to training programmes directed to positive thinking in the light of the challenges facing the world such as terrorism, extremist ideology, and racism, this study comes as an important step towards enhancing self-development skills in the field of communication and human reasoning for undergraduate students.Practical significance. The authors formulated the recommendations to reform the system of particular educational services, to improve their quality due to the fastest, synchronous implementation of technological innovations and modern equipment, and to support teachers’ competencies at the proper level. The importance of media education development actualises the creation of academic programmes at universities for the training of qualified teachers in the field of specific education, especially for countries, which do not have the same experience of training, since media education is becoming compulsory in the contemporary world, increasingly affecting the formation of individuals, culture, and society. Several proposals have been made to promote further research in this direction.

Self-management and HeAlth Promotion in Early-stage dementia with e-learning for carers (SHAPE): study protocol for a multi-centre randomised controlled trial

BackgroundWith an increasing number of people with dementia worldwide and limited advancement in medical treatments, the call for new and cost-effective approaches is crucial. The utility of self-management has been proven in certain chronic conditions. However, very little work has been undertaken regarding self-management in people with dementia.MethodsThe SHAPE trial will include 372 people with mild to moderate dementia to evaluate the effectiveness and cost-effectiveness of an educational programme combining approaches of self-management, health promotion, and e-learning for care partners. The study is a multi-site, single-randomised, controlled, single-blinded trial with parallel arms. The intervention arm is compared with treatment as usual. The intervention comprises a 10-week course delivered as group sessions for the participants with dementia. The sessions are designed to develop self-management skills and to provide information on the nature of the condition and the development of healthy behaviours in a supportive learning environment. An e-learning course will be provided for care partners which covers similar and complementary material to that discussed in the group sessions for the participant with dementia.DiscussionThis trial will explore the effect of the SHAPE group intervention on people with mild to moderate dementia in terms of self-efficacy and improvement in key health and mental health outcomes and cost-effectiveness, along with carer stress and knowledge of dementia.Trial registrationClinicalTrials.gov Identifier: NCT04286139, registered prospectively February 26, 2020, https://clinicaltrials.gov/ct2/show/NCT04286139

The American Psychiatric Association Practice Guideline for the Treatment of Patients With Schizophrenia.

(Reprinted with permission from The American Journal of Psychiatry 2020; 177:868-872).

The American Psychiatric Association Practice Guideline for the Treatment of Patients With Schizophrenia

The American Psychiatric Association Practice Guideline for the Treatment of Patients With Schizophrenia

Development and Validation of a Self-management Skills Assessment Tool for Children With Inflammatory Bowel Disease: The Inflammatory Bowel Disease-Skills Tasks and Abilities Record (IBD-STAR).

For children with inflammatory bowel disease (IBD), the development of self-management skills has the potential to improve disease outcomes. No assessment tools are aimed at measuring self-management skills in this population. A tool was developed called the IBD-Skills Tasks and Abilities Record (IBD-STAR) which measures children's allocation of responsibility for specific skills. IBD-STAR contains 18 items, scored whether completed independently (score 2), with help (score 1) or not at all (score 0). Children with IBD completed IBD-STAR; one parent and a gastroenterologist completed a series of visual analogue scales that corresponded with each IBD-STAR section. Children's IBD-STAR scores were examined against independent variables and compared with the parent and clinician visual analogue scale scores. Reliability was calculated using Cronbach's alpha. Twenty-five Cronbach's alpha with IBD participated, mean age 14 years (standard deviation (SD) 1.7), 14 (56%) were boys, and 21 (84%) had Crohn's disease. The mean IBD-STAR score was 27.1 (SD 5.7), equivalent to a score of 75%. Age was the only independent variable significantly associated with scores (P = 0.017). Parents consistently underestimated their children in all sections, but clinician assessments were more closely aligned. Reliability for IBD-STAR was good with an overall Cronbach's alpha of 0.84. IBD-STAR reports the allocation of responsibility for self-management skills with good agreement between children and clinician, and with comprehensible differences with their parents. Such a tool may be used to identify children with IBD in need of support or to measure the efficacy of targeted interventions.

Некоторые аспекты динамического наблюдения пациентов с артериальной гипертензией

One of the leading risk factors for the development of DCS is hypertension, which is a global public health problem and causes the burden of heart disease, stroke and kidney failure, as well as contributes to premature death and disability, and therefore remains relevant in particular for the population of low-and middle-income countries and weak health systems. In Kazakhstan, in accordance with the State program for health development «Densaulyk» for 2016-2019 of the Republic of Kazakhstan, as part of the modernization and priority development of PHC, a gradual transition from dispensary to management of major chronic diseases at the outpatient level has been implemented through the introduction of a disease management program (DMP), which includes the fight against behavioral risk factors in patients covered by dynamic monitoring, achieving full interaction between patients and medical workers, developing self-management skills in patients. Work continued on the implementation of integrated disease management programs based on diagnostic and treatment protocols at all levels and monitoring with the Central coordinating role of PHC workers. When fully implemented in clinical practice, DMP allows optimizing the interaction between medical professionals and patients on joint planning of disease management strategies, patient training and further involvement in the treatment process, evaluating its results, solving psychological and economic problems, and self-management in order to further develop measures to improve the quality of life.

Improving Positive Attitudes through Cooperative Learning

The study examined the practice of cooperative learning and working in groups have improved attitudes towards group work, communication, interpersonal skills and achievement of students. Objectives of the study are to develop positive attitude towards Social studies, to enhance the teamwork of students and achieve better productivity and to develop self-management skills. To achieve the objectives of the study the Grade 5A class has been selected and thirty-five students have participated in the study. Random sample have been used to select the respondents and both primary and secondary data collection methods have used. Data collection techniques were questionnaire and interviews for students and observations and reflective report of the teacher researcher. Study found that working in groups also can change the attitude of the students. The study revealed that there is a slight increase in attitude towards Social Studies after group work. Further the students appreciated working with one another on solving problems. Particularly when the students were in groups they feel more confident to do the work. Study revealed that cooperative learning helps to develop self-management skills since when the student gains more confident they will be able to manage themselves better.

Deciphering programs for optimal self-management of persistent musculoskeletal-related pain and disability – Clinical implications for PTs

ABSTRACT The prolonged disability associated with musculoskeletal (MSK) pain represents an enormous health burden, for individuals as well as society. Promoting pain and disability management for patients with persistent MSK-related conditions can be very challenging for rehabilitation professionals. These often-complex conditions require the adoption of a biopsychosocial perspective in order to assess and address a vast array of potential factors affecting the patient. Fortunately, a self-management (SM) approach has been deemed effective in enhancing patients’ control over their symptoms and disabilities. However, given the many different existing SM approaches, rehabilitation professionals would benefit from a clearer definition of SM and a better understanding of the basics of a SM program in order to facilitate their patients’ development of SM skills, as this can lead to better outcomes. This narrative review explores the various components of an intervention program intended to facilitate patients’ SM of their symptoms and disabilities resulting from a persistent MSK condition. It does so by drawing on a body of published work on pain and disability management, conceptual frameworks underlying SM programs, essential skills associated with optimal SM, and examples from the persistent low back pain (LBP) literature.

Developmentally appropriate patient education during transition: A study of healthcare providers’ and parents’ perspective

Introduction:Patient education is recommended to improve the transition from paediatric to adult care for young people with chronic conditions. But a consensus has not been reached regarding a particular model. This study aimed to understand how to prepare for the implementation of a Developmentally Appropriate Patient Education during Transition (DAPET), which would revolve around the young person’s psychosocial development.Method:Three focus groups were organised with healthcare providers and two focus groups took place with the parents of young people with chronic conditions. We used activity theory to explore practices and to identify obstacles to the implementation of DAPET, as well as to recognise which resources might be available to implement DAPET.Results:Healthcare providers agreed on the need to engage in an educational approach centred on the psychosocial development of young people during transition. However, study findings highlight the following obstacles to doing so: a lack of competencies in adolescent and young adult medicine and a lack of available resources to meet these goals. Furthermore, parents wanted to redefine their role in the transition process and to allow their children to develop self-management skills.Conclusion:Healthcare providers and parents considered the implementation of DAPET to be acceptable and even advisable. However, the programme’s feasibility was questioned due to perceived shortfalls in the hospital system as it currently stands and the ways in which an educational approach would be applied. An environment that facilitates healthcare providers’ educational initiatives and encourages the participation of parents is required.

A model of cancer survivorship care within a community health setting: the Good Life Cancer Survivorship program.

This study aimed to establish and evaluate the referral pathway from a hospital-based oncology service to a multidisciplinary community-based health service supporting survivors to engage in self-management. The evaluation involved understanding patterns of health service utilisation and health professionals' perspectives on the implementation of the community-based model of survivorship care, the Good Life Cancer Survivorship (GLCS) program. Survivors referred to GLCS were undergoing or had completed cancer treatment and unable to participate in intensive ambulatory oncology rehabilitation. Health service utilisation was tracked over 5 months, and the perspectives of health professionals referring to and involved in the GLCS program were recorded using semi-structured interviews. The oncology service made 25 referrals. The most accessed services at Carrington Health were physiotherapy with 18 appointments, followed by psychology (12) and dietitian services (11). Four themes emerged from the interviews: (1) Allied health services are relevant to people with cancer; (2) Education and information needs; (3) Communication gaps; (4) A one-stop multidisciplinary and holistic care model. This project demonstrated that community health may be a valid setting to support cancer survivors in managing their health. Supporting ongoing awareness, education and understanding of services across both community and acute care settings will foster care coordination and strengthen referral pathways. Accessing appropriate community-based allied health services can support cancer survivors in developing self-management skills to manage their own health and improve their health outcomes and wellbeing in the survivorship phase.