British Journal of NursingVol. 29, No. 7 At A GlanceCare of children and young people who are dependent on technologyClaire Camara, Jane CallumClaire Camara(E-mail Address: [email protected])Graduate Tutor, Northumbria UniversitySearch for more papers by this author, Jane CallumSenior Lecturer, Northumbria University, Newcastle upon TyneSearch for more papers by this authorClaire Camara; Jane CallumPublished Online:11 Apr 2020https://doi.org/10.12968/bjon.2020.29.7.403AboutSectionsView articleView Full TextPDF/EPUB ToolsAdd to favoritesDownload CitationsTrack CitationsPermissions ShareShare onFacebookTwitterLinked InEmail View article References Brenner M, Larkin PJ, Hilliard C, Cawley D, Howlin F, Connolly M. Parents' perspectives of the transition to home when a child has complex technological health care needs. Int J Integr Care. 2015;15(3):e035. https://doi.org/10.5334/ijic.1852 Crossref, Medline, Google ScholarCarnevale FA, Alexander E, Davis M, Rennick J, Troini R. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics. 2006;117(1):e48–e60. https://doi.org/10.1542/peds.2005-0789 Crossref, Medline, Google ScholarCockett A. Technology dependence and children: a review of the evidence. Nurs Child Young People. 2012;24(1):32–35. https://doi.org/10.7748/ncyp.24.1.32.s23 Crossref, Medline, Google ScholarGiambra BK, Sabourin T, Broome ME, Buelow J. The theory of shared communication: how parents of technology-dependent children communicate with nurses on the inpatient unit. J Pediatr Nurs. 2014;29(1):14–22. https://doi.org/10.1016/j.pedn.2013.03.004 Crossref, Medline, Google ScholarHeaton J, Noyes J, Sloper P, Shah R. Families' experiences of caring for technology-dependent children: a temporal perspective. Health Soc Care Community. 2005;13(5):441–450. https://doi.org/10.1111/j.1365-2524.2005.00571.x Crossref, Medline, Google ScholarKirk S, Glendinning C, Callery P. Parent or nurse? The experience of being the parent of a technology-dependent child. J Adv Nurs. 2005;51(5):456-64. https://doi.org/10.1111/j.1365-2648.2005.03522.x Crossref, Medline, Google ScholarLooman WS, Hullsiek R, Pryor L, Mathiason MA, Finkelstien SM. Health-related quality of life outcomes of a telehealth care coordination intervention for children with medical complexity: a randomized controlled trial. J Pediatr Health Care. 2018;32(1):63-75. https://doi.org/10.1016/j.pedhc.2017.07.007 Crossref, Medline, Google ScholarMasten AS, Best KM, Garmezy N. Resilience and development: contributions from the study of children who overcome adversity. Development and Psychopathology. 1990;2(4):425–444. https://doi.org/10.1017/S0954579400005812 Crossref, Google ScholarMendes MA. Parents' descriptions of ideal home nursing care for their technology-dependent children. Pediatr Nurs. 2013;39(2):91–96 Medline, Google ScholarMesman GR, Kuo DZ, Carroll JL, Ward WL. The impact of technology dependence on children and their families. J Pediatr Health Care. 2013;27(6):451–459. https://doi.org/10.1016/j.pedhc.2012.05.003 Crossref, Medline, Google ScholarOkido ACC, Zago MMF, de Lima RAG. Care for technology dependent children and their relationship with the health care systems. Rev Lat Am Enfermagem. 2015;23(2): 291–298.https://doi.org/10.1590/0104-1169.0258.2554 Crossref, Medline, Google ScholarSobotka SA, Lynch E, Quinn MT et al.. Unmet respite needs of children with medical technology dependence. Clin Pediatr (Phila). 2019;58(11-12):1175–1186. https://doi.org/10.1177/0009922819870251 Crossref, Medline, Google ScholarSpratling R. Defining technology dependence in children and adolescents. West J Nurs Res. 2014;37(5:634–651. https://doi.org/10.1177/0193945914526002 Crossref, Medline, Google ScholarToly VB, Musil CM, Carl JC. A longitudinal study of families with technology-dependent children. Res Nurs Health. 2012;35(1):40–54. https://doi.org/10.1002/nur.21454 Crossref, Medline, Google ScholarToly VB, Blanchette JE, Sikorski S, Musil CM, Al-Hamed A. Maternal perspectives of well siblings' adjustment to family life with a technology-dependent child. J Fam Nurs. 2017;23(3):392–417. https://doi.org/10.1177/1074840717721705 Crossref, Medline, Google ScholarUS Congress, Office of Technology Assessment. Technology-dependent children: hospital v. home care—a technical memorandum. Washington, DC: Government Printing Office; 1987. https://ota.fas.org/reports/8728.pdf (accessed 16 March 2020) Google ScholarVarni JW, Limbers CA, Burwinkle TM. Impaired health related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales'. Health and Quality of Life Outcomes. 2007;5:43. https://doi.org/10.1186/1477-7525-5-43 Crossref, Medline, Google ScholarWang KWK, Barnard A. Technology-dependent children and their families: a review. J Adv Nurs. 2004;45(1):36–46. https://doi.org/10.1046/j.1365-2648.2003.02858.x Crossref, Medline, Google Scholar FiguresReferencesRelatedDetailsCited byHypothermia and cold injuries in children and young peopleClaire Camara, Chloe Watson18 August 2022 | British Journal of Nursing, Vol. 31, No. 15 9 April 2020Volume 29Issue 7ISSN (print): 0966-0461ISSN (online): 2052-2819 Metrics History Published online 11 April 2020 Published in print 9 April 2020 Information© MA Healthcare LimitedPDF download
Read full abstract