Community Programs Research Articles

Designing an impactful APRN residency program for rural communities.

Designing an impactful APRN residency program for rural communities.

Amplifying Youth Voices Using Digital Technology: A Case Study in Collaborative Research With Youth Service Organizations

This paper presents three participatory methods informed by design techniques for engaging youth and youth services providers in research activities online. We detail two data collection methods: 1) a priming activity completed before a focus group to prompt reflection before direct interaction with the research team; and 2) a focus group activity imagining future organizational goals. We also share our technique for collaboratively analyzing preliminary research findings with a focus group activity. We developed these methods as a part of a larger research project examining how teens and those who provide services to teens through community programs conceptualized success in their experiences, sense of community, and program implementation. This paper discusses work with five organizations in a mid-size community in the midwestern United States during the COVID-19 pandemic (July 2021–February 2022). We aimed to amplify the voices and perspectives of teens in both research and the organizations they engaged in, bringing their participation to our data collection and analysis and to the adults and decision-makers of community organizations. We wanted to understand how youth or teens, defined as 13–19 years old, describe successful experiences in these out-of-school settings, how adults define success, and to identify connections and differences between these two perspectives. This paper details the techniques we developed and tested, shares examples from our research, and discusses the impacts and implications of these methods for future participatory work. We contribute evidence for the value of drawing on design methods for participatory methods, articulate benefits and considerations for intentionally doing so online, and share techniques that emphasize voice in both research and organizational partners’ program development and management.

HOLISTIC RECONDITIONING FOR THE ELDERLY: EMBRACING INTEGRATIVE APPROACHES

The global aging population presents economic, social, and cultural challenges, accentuated by the rise of age-related chronic conditions. Physical activity emerges as a crucial component for elderly well-being, countering sedentary lifestyles and comorbidities. Motivation, habit formation, and cultural integration are key to sustaining exercise behavior. Practices like yoga, tai chi, and qigong, deeply rooted in tradition, offer holistic benefits for the elderly. Research underscores their positive impact on physical and mental health, particularly in improving balance and reducing falls. However, awareness of their advantages needs amplification. To foster adoption and sustainability, targeted awareness campaigns, community programs, healthcare integration, intergenerational involvement, and accessibility enhancements are proposed. By combining these strategies, therapeutic exercises can be seamlessly integrated into elderly lifestyles, promoting long-term health and well-being.

Effect of Corporate Governance on Corporate Social Responsibility: A Theoretical Review

The major points are summed up in this. Looking at the causal effects of these two forms of governance on CSR involvement, the goal of this work is to establish the empirical link between "corporate governance (CG) and corporate social responsibility (CSR)". Initially, delayed "Corporate Social Responsibility (CSR)" seems to have minimal effect on "Corporate Governance (CG)". On the other hand, delaying the CG variable favours corporate involvement in CSR projects. This is still the case when one takes into account other aspects unique to the company. We use a sizable and varied American sample. Agency theory and stakeholder theory are examined in connection to CFP and CSR. The purpose is to prioritise these three concepts. Despite endogeneity bias, CSR actions boost corporate CFP. The facts do not support stakeholder conflict-resolution theory or agency CSR overinvestment hypothesis. CFP growth is also driven by company diversification, worker, community, and environment programmes.

Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability - Sickle Cell Data Collection Program, 11 States, 2016-2020.

Sickle cell disease (SCD) remains a public health priority in the United States because of its association with complex health needs, reduced life expectancy, lifelong disabilities, and high cost of care. A cross-sectional analysis was conducted to calculate the crude and race-specific birth prevalence for SCD using state newborn screening program records during 2016-2020 from 11 Sickle Cell Data Collection program states. The percentage distribution of birth mother residence within Social Vulnerability Index quartiles was derived. Among 3,305 newborns with confirmed SCD (including 57% with homozygous hemoglobin S or sickle β-null thalassemia across 11 states, 90% of whom were Black or African American [Black], and 4% of whom were Hispanic or Latino), the crude SCD birth prevalence was 4.83 per 10,000 (one in every 2,070) live births and 28.54 per 10,000 (one in every 350) non-Hispanic Black newborns. Approximately two thirds (67%) of mothers of newborns with SCD lived in counties with high or very high levels of social vulnerability; most mothers lived in counties with high or very high levels of vulnerability for racial and ethnic minority status (89%) and housing type and transportation (64%) themes. These findings can guide public health, health care systems, and community program planning and implementation that address social determinants of health for infants with SCD. Implementation of tailored interventions, including increasing access to transportation, improving housing, and advancing equity in high vulnerability areas, could facilitate care and improve health outcomes for children with SCD.

Excessive daytime sleepiness in older adults of a municipal physical activity program

Physical exercise has been shown to have a favorable impact on the health of the individual. Its combination with other healthy lifestyles can positively impact various areas, including sleep quality. To determine the frequency of excessive daytime sleepiness in older adults of a municipal physical activity program in Santiago de Cali, Colombia. Cross-sectional study that included 605 older adults from a community program of the Secretary of Recreation and Sports of the City of Cali, Colombia, during October 2018 and June 2019. To determine the presence of excessive daytime sleepiness, the Epworth Sleepiness Scale was used. 81.5% of the population was female with a mean age of 73±8 years. The prevalence of excessive daytime sleepiness was 10.5%. Significant differences were only found in the frequency of excessive daytime sleepiness by socioeconomic stratum, being more common in the low socioeconomic stratum (13% vs 4% P=0.03). Excessive daytime sleepiness is a phenomenon that affects older adults; however, its frequency may be lower in those who are physically active.

Kepatuhan Pasien pada Program Therapeutic Community

This research aims to determine the factors that influence the compliance of drug abuse patients in participating in therapeutic community programs at social drug rehabilitation institutions. This research is a systematic journal using the preferred item reporting method for systematic and meta-analysis (PRISMA) from online databases. Therapeutic community programs in social drug rehabilitation institutions do not all run smoothly, so it is necessary to know the factors that influence the compliance of patients who are victims of drug abuse in participating in therapeutic community programs in social drug rehabilitation institutions. The results of this research show that the factors that influence patient compliance in participating in a therapeutic community program include family factors, a counselor's skills in interacting with counselors, economic factors, peer factors, environmental factors including social support, social relationships and social interactions. The conclusion of this research is that there are factors that influence patient compliance in participating in the therapeutic community program in social drug rehabilitation. Keyword: Adherence, Drug Abuse, Therapeutic Community

Gender Inequality in Social Forestry Management of Baduy Farmers in Lebak Regency

Baduy are attached to the forest, and the environment depends on forest management. On the other hand, the role and involvement of Baduy women are no less important in forest management to encourage food security for them and their families. This research uses the theory of gender equality; it aims to capture the gender gap in forest management through social forestry programs in the Baduy community to encourage food security. By using a qualitative descriptive method, this research seeks to let reality reveal itself naturally. The study results show that gender inequality still exists in managing social forestry in the Baduy community. This gender inequality can be seen in the minimum absence of access for Baduy women involved in social forestry management. The domestic role of Baduy women dominates in food security efforts through social forestry, but the public role of Baduy women farmers is almost nonexistent. Women's control over social forestry is also limited to the domestic role in the household. In contrast, control in forestry is held by male farmers, with all decisions in the hands of men, making it difficult for women to be present and actively involved. However, this social forestry benefits both male and female farmers, whereas women obtain these benefits indirectly through their husbands, who are actively involved as managers of social forestry.

Adapting a youth suicide prevention program for rural communities in the United States: a feasibility study

Rural youth suicide represents a major source of mental health inequity in the United States (US). School-based suicide prevention programs may provide an effective avenue to address this mental health crisis among rural youth. This study’s primary goal is to demonstrate the feasibility and acceptability of a novel implementation approach (utilizing teachers from a neighboring school) for delivering the Youth Aware of Mental Health (YAM) program, an evidence-based, universal youth suicide prevention curriculum, to high school students in rural Montana. We will recruit approximately 1300 9th grade student in four Montana schools. Using a non-inferiority design, we will randomize classrooms in each school to be instructed by a teacher from another school (YAM-TE; experimental) or a traditional external instructor (YAM-EXT; control). We will assess program fidelity of both YAM training and implementation via independent observer and instructor-reporter ratings. Youth will complete measures of acceptability at post-YAM and outcome measures at pre-YAM, post-YAM, and 12 month follow-up. Standard and mixed linear and logistic regression models will be used to test the main hypothesis that the YAM-TE does not differ from YAM-EXT regarding fidelity (teachers) and acceptability (teachers and youth). Exploratory analyses will test moderation of the intervention effect (e.g., sex, poverty) and the mediating effect of mental health literacy, belongingness, and perceived burdensomeness on the intervention effect. Results of this pilot study will inform the development of subsequent, fully powered noninferiority trials. Our long-term goal is to scale YAM-TE for implementation across rural US communities or, if culturally appropriate, more globally.

Embracing Self-collecting cervico-vaginal Human Papilloma Virus testing for cervical cancer screening: An exploratory study of acceptability among women in Penang

Objective: This study aims to assess the acceptability and awareness of Penang women regarding self-collected cervico-vaginal specimens for HPV testing. Method: The study was conducted in Penang State throughout January to December 2020, in collaboration with the Penang West Hat Community Programme. The study's target population included women aged 25-60 from the Little Siradan, North West, Terenga, and Barat daya communities, who self-collected cervicovaginal samples using a cervicovaginal brush. Following sample collection, participants completed brief questionnaires to gauge their acceptance and perceptions of this self-sampling approach. They also received counseling and guidance at local health departments for Pap test follow-ups. Result: Vaginal microbiota examination revealed a significant correlation between baseline (W0) and twelve weeks later (W12) across various parameters, encompassing the Women's Health Questionnaire (WHQ), blood samples, fecal samples, distributed products to subjects, and vaginal samples (p < 0.001). Analysis of DNA concentration (VM) demonstrated a substantial difference in A260/280 ratios (p < 0.001), while A260/230 ratios showed no statistical significance (p=0.212). Additionally, the vaginal microbiome results displayed noteworthy distinctions between fecal and vaginal samples. Conclusion: The findings of this study hold promise for the initial community-wide implementation of HPV testing, which is anticipated to be introduced in Malaysia in the near future.

Strategi Pengembangan Desa Wisata Halal di Kabupaten Samosir

The study aims to analyze the development strategy of the halal tourist village in the district of Samosir. The research was conducted using qualitative descriptive methods. Data was collected through semi-structured interviews of 17 informants obtained through purposive sampling techniques, closed questionnaires, and non-participant observations. Data is analyzed using descriptive analysis techniques and SWOT using IFAS and EFAS matrices. The results of the research showed that the internal factors that are the strengths of the development of Samosir halal tourism village are the potential of nature, regional culture, hospitality of the community, accessibility, facilities, and prices. While internal factors which are weaknesses are the professional SDM, supporting infrastructure, digital promotion, financial support, public participation, as well as the coordination of stakeholders. External factors that become opportunities include global halal tourist trends, central government support, accessibleness and infrastructures, information technology and digital marketing, interests of investment in the halal Tourism sector, and the empowerment of the village tourism community programmes. While the threats faced are competition of halal travel destinations, local tourist interests, synergy between stakeholder, regulatory support and policy risks, social conflict and resilience of the society, and risks of health crises and natural disasters. Future development strategies need to focus on internal turn-around towards balanced and sustainable growth and stability through enhanced SDM capacity, accelerated infrastructure, optimized digital promotion, increased public participation, and strengthened stakeholder coordination. The next strategy that can be applied is horizontal integration, which is to develop and integrate existing halal tourism products and services to be more complete and attractive to tourists.

Abstract 4863: A retrospective study characterizing 1714 cases of epithelioid cell melanoma

Abstract Introduction: Epithelioid cell melanoma (ECM) is a variant of cutaneous melanoma (CM) typically characterized by large malignant cells with abundant, glassy cytoplasm and large nuclei. ECMs are aggressive neoplasms and tend to have worse prognosis than other subtypes of CM with a higher risk of metastasis1. Few studies have explored the demographic features of ECM and their effects on outcomes. Using data from the National Cancer Database (NCDB), we hope to fill this gap. Methods: This is a retrospective study of patients diagnosed with ECM(ICD-8771) between 2004 and 2020 in the National Cancer Database (NCDB) describing demographic features associated with and tumor characteristics of ECM (N = 1714). Descriptive statistics were collected for all patients with ECM and CM (N = 827623) and were compared using Pearson Chi-Square test. Overall survival was determined by the Kaplan-Meier test. Cox regression analysis was used to determine which factors led to decreased survival in ECM. All statistical tests were evaluated for a significance of P < 0.05. Exclusion criteria included missing data. Results: The cases of ECM were composed mainly of White (96%) males (58.9%), and most had private insurance as the primary payor at diagnosis (50.1%). Greater than half of ECM cases had a primary site of skin on the trunk, upper limbs, or shoulders. Cox regression analysis revealed that patients with ECM treated at integrated network cancer programs had a HR of 0.46 when compared to community centers (95% CI 0.257 - 0.831, P < 0.05). Those with ECM treated at academic programs and comprehensive community cancer programs had hazard ratios of 0.41 (95% CI 0.239 - 0.701, P < 0.05) and 0.49 (95% CI 0.288 - 0.845, P < 0.05) respectively when compared to community programs. Only patients with ECM who had private insurance as primary payor at diagnosis had better outcomes when compared to non-insured with an HR of 0.40 (95% CI 0.225 - 0.714, P < 0.05). In addition, patients with ECM were more likely to be treated at academic centers than patients with CM (55.48% vs 46.95%, P < 0.05). The mean survival of patients with ECM was 12.3 months less than those with CM (141.1 months versus 153.4 months.) Conclusion: Overall survival for patients was better at academic centers, integrated network cancer programs, and comprehensive community cancer programs when compared to community centers. In addition, only patients who had private insurance were found to have better outcomes than those who were uninsured. These findings help shed light on the effects of certain socioeconomic and factors on outcomes in ECM. We hope this study will be a launching point for further inquiry into the causal relationships these factors have on outcomes in this rare cancer. 1. (Russo A, Avitabile T et al. Iris Melanoma: Management and Prognosis. Appl Sci 2020; 10: 8766). Citation Format: Mohammed Al Kurnas, Xinxin Wu, Anusha Mubin, Peter T. Silberstein. A retrospective study characterizing 1714 cases of epithelioid cell melanoma [abstract]. In: Proceedings of the American Association for Cancer Research Annual Meeting 2024; Part 1 (Regular Abstracts); 2024 Apr 5-10; San Diego, CA. Philadelphia (PA): AACR; Cancer Res 2024;84(6_Suppl):Abstract nr 4863.

Towards local agency: critical reflections on community engagement programmes at Abkanisa/Amara West, northern Sudan

ABSTRACT Community engagement programmes are increasingly designed into archaeological projects in Sudan, largely prompted by the remit and funding of the Qatar-Sudan Archaeological Project (QSAP; 2013-present). This paper provides a critical reflection on how a British Museum project in northern Sudan instigated, evaluated and modified its community programme across twelve years, before, during and after QSAP funding. We outline the transition from western institutional project design and information sharing, to enhanced collaboration and local agency, within the context of specific local understandings of heritage (turath). The case study highlights the challenges, opportunities and some possible methodologies for archaeology projects within post-colonial environments.

Motivation-opportunity-ability-behaviour of community members and program implementers towards mass drug administration for lymphatic filariasis elimination in India: a systematic review and implementation priority.

Lymphatic filariasis (LF) is a significant public health issue in India. Despite 10-15 rounds of mass drug administration (MDA) in India, the global LF elimination target of 2030 appears challenging. To strengthen the program, community and provider perspectives on ways to bridge a gap in MDA are needed. Through the motivation-opportunity-ability-behaviour (MOAB) lens, we systematically reviewed the facilitators and barriers encountered in LF elimination in India. We followed Preferred Reporting Items for Systematic Review and Meta-Analysis guidelines. We searched PubMed, Embase, ProQuest and Google Scholar databases to explore factors related to MDA program implementation in India through 30 June 2021. We analysed the data using a thematic framework. We identified 576 studies; of these, 20 studies were included. This review revealed that the public health system for distributing MDA drugs in India created a better enabling environment, including zero out-of-pocket expenditure, door-step distribution of medicines and ample capacity-building training and follow-up. However, community members were unaware of the rationale for drug consumption, leading to a gap in drug distribution and consumption. Motivation is required among community members, which suggests capacity-building training for service providers to counsel the community.

Abstract P140: Using Group Model-Building to Understand and Address Type 2 Diabetes in Native Hawaiian Communities

Introduction: Native Hawaiians, the indigenous people of Hawai‘i, have a prevalence of type 2 diabetes more than twice that of non-Hispanic Whites. Risk factors and social determinants of health for type 2 diabetes are multilevel and interrelated including individual-level factors, household-level, community-level, and societal-level. To address this complex issue effectively, it is crucial to understand the structure of how these factors interrelate and result in prevalence of type 2 diabetes in Native Hawaiian communities. Group Model-Building (GMB) is a participatory method rooted in systems theory, which provides a conceptual framework to understand such complex systems. It engages stakeholders in a structured process that leverages local knowledge to create contextually relevant causal loop diagrams (CLDs).Purpose: To demonstrate the value of GMB in constructing a CLD that captures the relationships and feedback mechanisms underlying type 2 diabetes in a Hawaiian homestead region and identify potential targeted interventions and policies to address type 2 diabetes prevalence, morbidity and mortality. Methods: Prior to the GMB workshops, we identified and engaged key homestead stakeholders, aquired necessary materials, selected a meeting location, create and train a facilitation team, and create the GMB agenda. The workshops were held over two evenings and included structured activities: Hopes and Fears, Graphs over Time, Causal Loop Diagrams, and Action Ideas. Results: Hopes and fears themes included: decreasing prevalence, healing, health education, community programs, decreasing quality of life, death, and the impact on the family spectrum. Graphs over time depicted increases in behavioral risk factors for type 2 diabetes, increases in type 2 diabetes-related morbidity, changing access to care, and changing quality of life. Participants developed and revised a CLD illustrating balancing and reinforcing feedback structures. Finally, participants developed 13 intervention/program ideas to address type 2 diabetes including health-related policies, community programs, and addressing social determinants of health (eg., access to care and healthy food, employment services). Conclusion: GMB was seen as a valuable tool for visualizing the connections and interdependencies between factors which community understands intuitively but hasn’t seen represented on paper. The process revealed the extent to which community programs impact community members, and highlighted collaborations to foster to sustain these effects. The constraints of physical space limiting the programs they can offer were identified. GMB is a promising method for collaboration, knowledge sharing, and co-creating a comprehensive understanding of diabetes-related factors in Native Hawaiian communities.

Abstract P449: Closing the Gender Gap in Bystander Cardiopulmonary Resuscitation: Unveiling Disparities and Pathways to Equal Lifesaving

Introduction: Gender disparities in CPR persist, with women receiving CPR less frequently than men during out-of-hospital cardiac arrests. This abstract emphasizes the importance of addressing this disparity through awareness campaigns and offers innovative strategies for prevention, including gender-sensitive CPR training methods and a community program example from New Orleans. Methods: A comprehensive literature review was conducted to identify studies on gender disparities in bystander CPR. Factors contributing to these disparities were analyzed, including hesitations related to physical contact, challenges in recognizing cardiac arrest in women, and societal biases. Survival data were assessed to highlight the lifesaving potential of gender-equal CPR. Results: Research revealed that gender disparities in CPR provision are common, influenced by factors such as reluctance to perform chest compressions on women, difficulties in identifying cardiac arrest in female patients, and the perpetuation of gender stereotypes. These factors result in significantly different survival rates, with women facing a higher risk of worse outcomes. Discussion: Addressing gender disparities in bystander CPR provision requires a multifaceted approach, including community-based CPR training programs that emphasize gender sensitivity. These programs should feature anatomically correct CPR training dolls with breast attachments to ensure trainees are prepared to perform CPR on anyone. It is crucial that CPR course instruction also incorporate information on gender disparities to raise awareness among trainees. Public awareness campaigns should work to dispel myths and biases related to gender and CPR, promoting more equitable lifesaving practices. An exemplary program from New Orleans demonstrates the impact of community-based initiatives. In this effort, community members were trained in CPR using gender-inclusive materials, including CPR dolls with breast attachments. The training included statistical information on gender disparities, bias assessments, survivor testimonials, and discussions aimed at dispelling myths about providing CPR to women. This program successfully empowered the community with the knowledge and skills to overcome gender biases in CPR, promoting gender-equitable lifesaving measures. Conclusion: Preventing gender disparities in bystander CPR provision to women is essential to enhance survival rates for female cardiac arrest victims. Using public platforms to advocate for these initiatives and emphasizing the need for collaborative efforts to eliminate gender bias in lifesaving practices and CPR training is crucial. By illuminating the issue, proposing innovative solutions, and sharing successful community programs, a standard can be cultivated where every individual, regardless of gender, receives timely and effective CPR.

Project completion and exist strategy plans: A case study of world bank supported community and social development programme AF (CSDP-AF) in Nigeria

Most programs' ultimate goal is to achieve significant long-term benefits, or results that can be maintained and/or improved after the livelihood support organization has left. In theory, this means indefinite sustainability, but in practice, it can be helpful to project out enough years after exit (project completion) to be able to make some predictions about long-term change long enough to illustrate whether the project appears to be sustainable. Considering resource constraints and multiple livelihood assistance needs, many livelihood support organizations are increasingly realizing that they cannot fund and sustain any one initiative continuously. We should be able to quit responsibly once we've met our objectives, sure that our livelihood support results will not be jeopardized. To accomplish this, we must prepare for long-term sustainability as we design and implement programs.

Ways to Improve Uptake of Tier 2 Weight Management Programmes in BAME Communities in Medway

Overweight and obesity is usually determined by Body Mass Index (BMI). Twelve BAME adults participated in the interviews: six were female, ten were first-generation migrants, three were retirees, none lived with a disability, and all were concerned about their excess weight. There were four themes from the data and eight subthemes obtained. To improve the uptake of the weight management service provided in Medway, the participants recommended the use of strategies such as indigenous food labelling, BAME-led clinics, the use of translated leaflets, the recruitment of local weight management champions, better coordination of services, appropriate communication strategies, and further research. This study investigated a small sample of English-speaking participants, which may not represent all people from BAME backgrounds in Medway and across the United Kingdom (UK). This study investigated the perspectives of residents who are overweight or obese, as well as weight management concerns among ethnically diverse adults. It also investigated how to increase the use of weight management services in Medway, England. In Medway, 69.2% of adults are living with overweight or obesity, which is considerably higher than the national average of 62%. Indigenous food labelling, BAME-led clinics, the use of translated leaflets, the recruitment of local weight management champions, better coordination of services, appropriate communication strategies, and further research are essential ingredients that can be used to improve access to and uptake of weight management programmes in BAME communities.

Effect of a 12-Week Multi-Exercise Community Program on Muscle Strength and Lipid Profile in Elderly Women.

This study targeted elderly women over 60 years old (109 persons), divided them into an exercise group and a control group, and implemented a 12-week physical activity program for the exercise group. Body composition, muscle, blood tests, depression, quality of life (QoL), nutritional status, and physical strength were compared and analyzed. The physical activity program was organized through a consultative body of experts, was performed for about 60 min each time in the type and order of exercise appropriate for elderly women, and consisted of a combination of exercise using a band, gymnastics, and stretching. Changes in the muscle index and muscle mass before and after the program were selected as the primary efficacy evaluations. In the exercise group, waist circumference significantly decreased, and the muscle index significantly increased compared to the control group. The number of subjects who showed sarcopenia with a muscle index of 5.4 or less in the exercise group significantly decreased from 22 (38.6%) before program implementation to 13 (22.8%). According to the results of secondary effectiveness evaluation, high-density lipoprotein cholesterol and apolipoprotein (Apo) A were significantly increased in the exercise group compared to the control group, and Apo B, triglyceride, and c-reactive protein showed a significant decrease. Regular physical activity is very important for improving the health and QoL of elderly women, and as a result of applying a customized program, effects such as increased muscle index, improvement of sarcopenia, and improvement of blood lipid status were confirmed. Therefore, it is believed that the physical activity program developed through this study can be applied as a community program for elderly women.

A Look at Traumatic Brain Injury Community Programs in British Columbia: Barriers and facilitators of implementation

ABSTRACT Research Objectives 1) Characterize the delivery of programs that support acceptance and resiliency for people with brain injury in the healthcare sector; 2) Understand the barriers and facilitators in implementation of programs to support self-acceptance and resiliency for people with brain injury Design Participatory focus groups were used to explore experiences of conducting brain injury programs and knowledge of the barriers and facilitators to their implementation. Focus group data were analyzed with manifest content analysis to minimally deviate from broad and structural information provided by participants. Setting Four focus group sessions were conducted online through a video calling platform. Participants 22 individuals from community associations conducting programs for people with brain injury. Participants were recruited from a public brain injury organization database. Results Systemic challenges such as access to and allocation of funding require navigation support. Resource consistency and availability, including stable program leaders and a welcoming atmosphere, are important for program implementation and sustainability. Shared experiences promote connection with the community and personal development. Conclusions This study informs individual- and community-level approaches to promote meaningful life after brain injury. Findings highlight existing resources and support future programming for people with brain injury.