Community Experience Research Articles

Ageing in place in a rural town in Aotearoa New Zealand: A Deweyan transactional perspective

Rural communities are ageing more rapidly than urban centres due to changing demographics and preference for ageing in familiar communities. Concurrently, ageing in place policies have progressively reinforced community living as the best option for most people. For ageing in place to be successful, understanding the relationship between the community environment and the functional ability of older adults is crucial. Yet, little is known about the relationship between older adults and their environment during their everyday experiences in diverse rural communities. This article reports on the findings from walking interviews with 15 older adults as they negotiated their physical environment in a rural community in New Zealand. Dewey's transactional perspective and theory of inquiry were utilised to view the everyday transactions these older adults were undertaking while being out and about doing what they value. A Deweyan perspective enabled a deep understanding of how participants negotiated and renegotiated their environment as they encountered indeterminate situations. The three main categories identified from the data: negotiating changing capabilities in a changing environment; negotiating the environment safely; and negotiating access within the environment, captured the holistic nature of the participants' everyday transactions and their continually changing relationship with their environment. The observations and discussions during the walks uncovered problem-solving and active citizenship as these older adults undertook their own ‘commonsense’ investigations of their environment. The findings highlight the valuable contribution rurally living older adults are making as active citizens during their everyday transactions. Understanding the resourcefulness these experienced older stakeholders bring to their rural communities is the first step in active collaboration at the local level. Mobile research methods are a useful means of capturing real-time experiential data in an inclusive and creative way.

Postdigital Literacies in Everyday Life and Pedagogic Practices

In this article, we contribute to literacy and education studies by proposing three overarching features (elements) of postdigital literacy events, informed by an ecological, relational, and sociomaterial framing of literacy. These features are: (1) entanglement, (2) digital materiality, and (3) spatiotemporality. Entanglement is about how learning entangles with our social, cultural, and material contexts through communicative acts, which include an understanding of media entanglements through interface seams(/seaminess) and transmediality. Digital materiality reminds us that digital media are also material, including notions of digital matter, instantiation, representation, and significance. The feature of spatiotemporality accounts for spatiotemporal flow and presence across online/offline environments, concerned with postdigital reconfigurations of time, space, and place. All three elements incorporate challenges around equity, power, and values. We also advance theory-in-practice by providing examples of how postdigital literacy features/elements manifest in pedagogy and everyday life, based on our experiences as academics working in diverse contexts. This work can support international research, teaching, and knowledge around how media practices interrelate through postdigital communication and literacy experiences, what that means, and with what effects, within a vision of education for mutually enriching planetary futures.

The development of a model for monitoring the quality of online psychological and educational services by using automated analysis of user reviews

Introduction. Digitalization of education and healthcare is an inevitable response to the demands of society. However, it is associated with the emergence of many risks, and the need for regulation and evaluation of new online practices is becoming increasingly important. Questions about the quality of online services are becoming more and more significant, as well as the search for new methods to monitor large amounts of publicly available data about online interactions with helping professionals. The purpose of this study is to develop a model for monitoring psychological and educational online services through automated analysis of user reviews and feedback. Materials and methods. The sample for the study consisted of a variety of reviews about online psychological and educational services. A total of 24,351 reviews of psychologists' work and 6,812 reviews of tutors' work were uploaded. These reviews were ranked in order to identify levels of user satisfaction. We used the following methods to collect and analyze the data: 1) Automated data parsing to extract relevant feedback using the GraphQL API; 2) The TF-IDF (term frequency-inverse document frequency) method to identify the most important linguistic markers in the reviews; 3) The LDA (latent Dirichlet allocation) method for thematic modeling of the reviews. The results of the study. An empirical study of online reviews of psychological and educational services in accordance with this model revealed their thematic structure in four main areas: assessment of interaction (19.8%), assessment of results (26%), organization of professional interaction (20.4%), and assessment of professional skills relevant to clients (29.1%).The main characteristics that users perceive in psychological online services are: the importance of comfortable communication (21.9%), inclusiveness (13.9%), and specialist experience (5.9%). Additionally, the ability to structure a request is also significant (19.8%). The result of evaluating the psychologist's work can be seen in user reviews. Some of the most common responses include: understanding the problem (18.5%), seeing the issue from a different perspective (6.7%), and feeling better (11.3%). Assessments of the quality of online education services include accessibility and clarity of presentation (29.5%), as well as confidence and flexibility in communication (6.1%). Additionally, finding a common language with students is also important (6.2%). Conclusion. The analysis of user feedback on educational and psychological online services can help to understand the directions for the development of work by helping specialists, create a system for monitoring non-specialized assistance, describe criteria for the training and retraining of specialists, and create educational programs for developing digital competence among psychologists and educators.

The Impact of Pastoral Care on Students’ Religious and Psychological Well-Being in a Christian Tradition-Based Residential Hall in Hong Kong

This study investigates the impact of pastoral care on the religious and psychological well-being of students residing in St. John’s College, a Christian tradition-based residential hall in Hong Kong. The research employs a mixed-methods approach and comprises two complementary studies: a quantitative analysis (Study 1) involving 98 participants and a qualitative investigation (Study 2) with 26 participants. Study 1 utilised the Religious Commitment Inventory-10 (RCI-10) and the Warwick-Edinburgh Mental Well-being Scale (WEMWBS) to measure religious commitment and psychological well-being, respectively. Initial findings revealed significant correlations suggesting that higher levels of religious commitment engender improved psychological well-being. Study 2 explored these relationships further through semi-structured interviews, providing deeper insights into how pastoral care influences students’ religious practices and mental health. The qualitative data underscored the nuanced role of pastoral activities in fostering a supportive community atmosphere, enhancing both personal and communal religious experiences.

Monitoring climate change vulnerability in the Himalayas.

Longitudinal assessment of climate vulnerability is essential for understanding the complex factors affecting how people experience and respond to climate change. We report on the first longitudinal assessment of climate vulnerability in the Himalayan region, exploring the evolving landscape, perceptions, and experiences of communities of climate change impacts, vulnerability, and adaptation in Kashmir over an 8-year period from 2017 to 2024. We provide the Himalayan Re-study Framework (HRF) to monitor, characterise, and conceptualise climate change in the Himalayas. Utilising mixed methods, we showcase how climate change is affecting social, economic, political, and environmental dimensions, examining how the impacts of climate change and vulnerability evolve over time, shaping and reshaping how climate risks are experienced and responded to by communities. Our analysis reveals a nuanced understanding of vulnerability, highlighting the impact on communities' livelihoods and water security, differential impacts on marginalised communities, and the gendered nature of climate change. We examine how certain sections of the population face marginalisation, discrimination, and racism, and how climate change exacerbates these challenges. Kashmir's vulnerability to climate change extends beyond environmental factors, intertwining with culture, livelihoods, social dynamics, and politics. Climate change continues to compete for attention with immediate political and socio-economic challenges, highlighting the need for integrated approaches to address both environmental and societal issues in Kashmir.

Creating “Liminal Community”: Communal Liminal Experience and Identity Transformation Among Black Women Tech Founders in Detroit

Creating “Liminal Community”: Communal Liminal Experience and Identity Transformation Among Black Women Tech Founders in Detroit

Josiah Royce, William James, and the Social Renewal of the “Sick Soul”: Exploring the Communal Dimension of Religious Experience

In The Sources of Religious Insight, Josiah Royce assesses William James’ pragmatic evaluation of exalted, private religious experience, advanced in The Varieties of Religious Experience as inadequate to encompass the full range of religious experience. Among other contributions, Royce adds social and communal experience to James’ individualistic appraisal. Rather than tacking on to the familiar contemporary critical conversation about the Jamesian restriction to private experience, I argue that James and Royce are helpfully brought together through an understanding of religious conversion: James’ foundational predicament of the “sick soul” returned to health through religious conversion gains depth and coherence through the attention Royce gives to overcoming alienation through communal participation. In our time of dislocation and self-preoccupation, drawing together these two seminal models of religious experience provides an instructive account of the individual’s transformation by way of communal renewal.

"Because I Am a Female": Stigma and Safety Perspectives from Racially/Ethnically Diverse Women with Serious Mental Illnesses.

Individuals with serious mental illnesses (SMIs) face safety risks related to their mental health conditions that are often compounded by experiences of trauma, victimization, residence in impoverished neighborhoods, and histories of homelessness. Stigma and safety challenges significantly impact community integration for individuals with SMIs, particularly women, who often bear a disproportionate burden of vulnerability, gender-based stigma, violence, and other inequalities. This study investigates how women with SMIs engage in the meaning-making of their safety and stigma experiences that, in turn, influence their community integration. From a large multi-site study exploring community experiences of racially/ethnically diverse participants with SMIs, a subsample of 28 cis and trans-gender women, who reported experiencing gendered stigma and a lack of safety, were chosen for the current study. The interviews were analyzed using modified principles of Interpretive Phenomenological Analysis (IPA) to understand how women with SMIs made meaning of their safety and stigma encounters in their families, communities, and neighborhoods. IPA analysis resulted in the emergence of themes within a broad category of safety that represented participants' meaning-making about their physical safety and stigma experiences. Specifically, we used the broad themes from an existing framework of safety called 'Navigating Safety' model as sensitizing concepts for our analysis. Physical and psychological aspects of safety for this study were experienced in tandem whereby the women made sense of how their experiences of a lack of physical safety in multiple contexts shaped their sense of self, internalized stigma, and their social relationships. Within the broad theme of physical safety, participants described unsafe neighborhoods, exposure to domestic and intimate partner violence, and vulnerability to sexual violence. Additionally, under psychological safety, we identified how gender-based norms, race and ethnicity, sources of stigma (internalized, familial, and societal), and social isolation contributed to their mental health and social relationships (particularly with family). These findings highlight how the compounding influence of the intersection of multiple stigmatized identities exerts safety challenges on the lives and community experiences of women with SMIs. Focusing on access and affordability of appropriate gender-responsive resources for women, including trauma-informed care, could reduce hospitalizations, mental health symptoms, and stigma so they can safely integrate into their communities.

Moving from Second Sight to Critical Consciousness Building: Using Social Justice Youth Development and Youth Participatory Action Research to Promote Praxis in Out-of-School Time

Abstract Youth development programs offer flexible environments for healing and positive identity development for youth facing discrimination and oppression. Programs often occur in out-of-school time (OST), a context that is clearly positioned in tandem with the education system to create complex relationships that lead to challenges in OST spaces. Youth development programs occurring in OST settings have the potential for resisting or replicating oppressive practices toward youth occurring in the education system. This article highlights a youth participatory action research (YPAR) project within an OST program using photovoice, field trips, and arts-based strategies. Eleven youth participated in the project over the course of nine months. Thematic content analysis of weekly photovoice and critical consciousness resulted in a primary theme of peeling back the layers. This theme encompassed the evolution of youth understanding the interconnectedness between their individual-level experiences of racism and broader community and systems-level inputs. This article describes critical consciousness development of OST youth participants through intentional engagement in critical dialogue, experiential field trips, and reflective art making.

Karihwaientáhkwen: Conceptualizing Morality in Indigenous Consciousness

Many public institutions, including universities and colleges, have committed to Indigenous engagement – the institutional effort to engage with experiences, histories, and perspectives of First Nations, Inuit, and Métis peoples in meaningful ways. In many areas of institutional endeavour, these commitments have frequently included a focus upon spiritual orientations of Indigenous peoples as a central aspect of their knowledge and worldviews. In this study, we sought to acquire knowledge on moral understandings that were resident in the consciousness of Indigenous Elders and Knowledge Keepers situated at universities across Canada. Findings revealed that personal and communal experiences informed a developed sense of responsibility that may be situated in the unique manifestations of their respective knowledge systems, heritages, and consciousnesses. Although non-Indigenous orientations such as those of Christianity informed the narratives of some, a prevailing sense of traditional identity emerged from participants.

Utilizing Large Language Models in Ophthalmology: The Current Landscape and Challenges.

A large language model (LLM) is an artificial intelligence (AI) model that uses natural language processing (NLP) to understand, interpret, and generate human-like language responses from unstructured text input. Its real-time response capabilities and eloquent dialogue enhance the interactive user experience in human-AI communication like never before. By gathering several sources on the internet, LLM chatbots can interact and respond to a wide range of queries, including problem solving, text summarization, and creating informative notes. Since ophthalmology is one of the medical fields integrating image analysis, telemedicine, AI, and other technologies, LLMs are likely to play an important role in eye care in the near future. This review summarizes the performance and potential applicability of LLMs in ophthalmology according to currently available publications.

A Qualitative Exploration into How Teachers Understand and Practice Forgiveness

Forgiveness, though hard for many to simply define in concrete terms, is not necessarily a foreign concept or practice for the average individual. In an attempt to further understanding of forgiveness, the present study gathered the thoughts, opinions, and experiences of a specific community of individuals, public school teachers. Using a series of six focus group interviews, analysis of data produced insights and conclusions related to how teachers understand forgiveness in theory and practice, how they practice forgiveness within their jobs, and their thoughts on forgiveness or virtue education within schools. Thematic analysis is presented with quotational support and a discussion of application to both forgiveness theory and future forgiveness education pursuits is offered in summation. Due to the many mental, emotional, and physical health benefits associated with forgiveness, the value of exploring forgiveness and forgiveness education is readily evident. This study provides a glimpse into the experiences of a community of individuals who practice forgiveness regularly within the context of their jobs as public school educators.

Healthcare providers’ communication experience in the pediatric intensive care unit: a phenomenological study

BackgroundHealthcare providers must effectively communicate with other professionals, multidisciplinary teams, and parents of patients in pediatric intensive care units (PICUs) to improve outcomes in children and satisfaction levels of parents. Few studies have focused on healthcare providers’ communication experiences, which are crucial for identifying current problems and suggesting future directions. This phenomenological study was conducted to address this gap.MethodsA qualitative study using online and face-to-face interviews was conducted from January to June 2021 by a trained researcher in PICUs of two tertiary hospitals. Participants were five physicians and four registered nurses who worked in the PICUs and had over five years of clinical experience. The interviews were audio recorded with the participant’s consent and analyzed by the researchers using Colaizzi’s seven-step method.ResultsHealthcare providers’ communication experiences revealed four categories: facing communication difficulties in PICUs, communication relying on individual competencies without established communication methods, positive and negative experiences gained through the communication process, and finding the most effective communication approach.ConclusionsWithout adequate support or a systematic training program, healthcare providers often have to overcome communication challenges on their own. Therefore, support and training programs should be developed to facilitate better communication in the future.

Interdisciplinary provider visits attenuate relationship between patient concerns and distress in older adults with cancer.

This study examined the relationship between multidimensional patient concerns and anxiety and depression in a national sample of older adults with cancer (OACs ≥ 65years) and the buffering effect of visiting providers across disciplines (e.g., oncology, allied health, primary care, mental health) on these relationships. Participants completed a cross-sectional survey through the Cancer Support Community's Cancer Experience Registry (CER), an online community-based research initiative. Eligible participants were 65years and older and diagnosed with cancer in the past five years. Participants completed self-report measures of (1) the severity of their concerns across multiple domains, (2) anxiety and depression, and (3) whether they received care for "symptoms and side effects" from various providers. The sample consisted of 277 OACs; 45% endorsed elevated anxiety and 31% endorsed elevated depression. The most severe concerns were in the domains of body image and healthy lifestyle and symptom burden and impact. More severe concerns were associated with higher levels of anxiety and depression. The relationship between concern severity and distress was weaker in OACs who saw a palliative care, mental health, physical or occupational therapy provider, pharmacist, or primary care provider relative to OACs who did not. A visit with an oncology provider did not moderate most relationships between concerns and distress. The relationship between OACs' concerns and distress was attenuated by treatment with a specialty provider. Interdisciplinary team care may be a vital component of comprehensive patient-centered care for OACs.

Indigenous land-based practices for climate crisis adaptions

Indigenous communities across Canada persist at the forefront of environmental and climate-related challenges, necessitating a concerted effort to integrate traditional Indigenous land-based knowledge and practices that inherently promote environmental protection and resilience. Using a decolonial feminist theoretical framework, this research centers on Indigenous community perspectives on the climate crisis and their land-based adaptions. Such an approach empowers Indigenous communities to reclaim agency over their narratives and shape research agendas congruent with their lived realities and aspirations. The study concludes by promoting the imperative of revitalizing traditional Indigenous land-based knowledge, practices and relationships with their ancestral lands. Despite emerging recognition within the scientific literature and international agreements, such as the Paris Agreement, of the significance of traditional Indigenous land-based knowledge, many climate mitigation and adaptation initiatives continue to overlook Indigenous participation at various decision-making junctures. Hence, this paper advocates the necessity for international frameworks to acknowledge and integrate traditional knowledge systems and Indigenous participation across national borders, fostering inclusive climate crisis solutions that resonate with Indigenous communities' perspectives and experiences.

Assessing childhood community experiences

AimsCommunity-level childhood experiences make up important aspects of early life that are associated with long-term health outcomes. However, to date, there have been no validated measures that assess community-level experiences during childhood. Thus, we aimed to develop and validate a measure that would assess community-level experiences associated with both risk and resilience. MethodsData were collected from 577 undergraduate participants (68.7% female). Exploratory and confirmatory factor analytic strategies were used to examine the factor structure of the Childhood Community Experiences Scale (CCES) comprised of the Community Risk Scale and the Community Protective Scale. Convergent validity and predictive utility of the CCES with existing measures of individual risk and resilience and adult psychosocial functioning were also examined. ResultsResults indicated a 5-factor solution for the Community Risk Scale and a 6-factor solution for the Community Protective Scale to fit the data best. Further, results suggest the convergent validity and predictive utility of the CCES with measures of adult psychosocial functioning.This measure allows for a brief, self-report assessment that can be used to assess childhood community-level risk and protective factors.

Aphasia and acute care: a qualitative study of healthcare provider perspectives

ABSTRACT Background Poor communication between patients with aphasia and healthcare providers has many adverse consequences. Training healthcare providers to support communication not only improves skill in communicating with people with aphasia, but also potentially avoids adverse incidents. However, families have reported negative communication experiences for their relatives with aphasia during early acute hospitalization and healthcare providers in acute hospitals have reported multiple barriers to managing people with aphasia. Aims To gather information from healthcare providers about their experiences and needs relative to managing people with aphasia in the acute hospital setting as part of a larger implementation project designed to 1) improve acute care staff communication with patients with aphasia, and 2) help staff provide support to families of people with aphasia. Methods Qualitative methods were employed to gather perspectives of stroke team staff regarding the management of aphasia in early acute care. Methods for collecting data from staff in a large metropolitan hospital in Ontario, Canada included open-ended surveys, observations on acute stroke units, interviews, and focus groups. Data were transcribed and analyzed to identify themes that defined staff experiences and needs relative to caring for people with aphasia in the acute setting. Results The overall finding was that staff found communication and caring for people with aphasia and their families in the acute context to be challenging and frustrating. Themes included identification of the following barriers: fast-paced context with competing priorities; limited staff familiarity with communication access or support; priority given to swallowing by speech-language pathologists; and difficulty in addressing the pressing need to provide support and information to family members of patients with aphasia. In addition, a pervasive need for communication with patients with aphasia as part of staff responsibilities was also identified as a theme. Conclusions Findings demonstrate the need for healthcare systems to support acute care staff in their efforts to provide care for people with aphasia. Finding effective ways to influence system change is a priority and is in line with the rationale for the larger implementation project designed to improve staff and patient/family experiences in acute care.

Functional Programming in Financial Markets (Experience Report)

We present a case-study of using functional programming in the real world at a very large scale. At Standard Chartered Bank, Haskell is used in a core software library supporting the entire Markets division -- a business line with 3 billion USD operating income in 2023. Typed functional programming is used across the entire tech stack, including foundational APIs and CLIs for deal valuation and risk analysis, server-side components for long-running batches or sub-second RESTful services, and end-user GUIs. Thousands of users across Markets interact with software built using functional programming, and over one hundred write functional code. In this experience report we focus on how we leverage functional programming to orchestrate type-driven large-scale pricing workflows. The same API can be used to price one trade locally, or millions of trades across thousands of cloud nodes. Different parts of the computation can be run and inspected individually, and recomputing one part triggers recalculation of the dependent parts only. We build upon decades of research and experience in the functional programming community, relying on concepts such as monads, lenses, datatype generics, and closure serialisation. We conclude that the use of functional programming is one of the main drivers of the success of our project, and we see no significant downsides from it.

Rural Natural Disaster Stress: A Survey of Community Resource Use and Effect

ABSTRACT Objective This study identified rural community experiences and preferences related to available resources and their effects on stress following tornadoes and floods. Methods The Rural Natural Disaster Stress and Recovery survey was distributed from December 2021 to February 2022 in rural disaster-affected communities. Within the analysis sample (N = 159) of self-selected participants representing both agricultural and non-agricultural occupations, 125 responded to the Resource Use and Effect survey component that evaluated the effects of 22 resources on post-disaster stress. Additional qualitative questions provided further data. Results The most frequently used resources post-disaster were found to be talking about the event (98.3%), friends and neighbors (97.6%) and family (97.6%). Using a derived Impact per Use score, groups from the neighboring community and personal faith activities most often reduced stress. Resources that increased stress were identified as FEMA or other government organizations; repairing, replacing, or rebuilding property; and following news or social media. Participants reported help from their community (35.8%) or things they did for themselves (31.2%) most effectively decreased disaster stress. Family, friends, faith, neighbors, and community were top choices to decrease stress in a future disaster. Conclusion Rural residents identified available resources for reducing disaster stress, but some common post-disaster activities were found to increase stress. Rural emergency management should adapt response and recovery plans and activities to leverage readily accessible people, groups, and activities to mitigate negative mental and emotional health effects.

Maternal birthplace and experiences of perinatal healthcare in Belgium: Evidence from a cross-sectional survey

BackgroundPatient experience is an important part of perinatal care quality. Migrant women in high-income countries often report more negative experiences than non-migrants, but evidence in Europe is patchy. In this study, we compared the experiences of two migrant populations with non-migrants, taking into account socioeconomic characteristics. MethodsWe surveyed mothers born in Belgium, North-Africa, and Sub-Saharan Africa (n = 877) using an adapted version of the Migrant-Friendly Maternity Care Questionnaire. Two patient experience scores were created using multiple correspondence analyses: a) information and communication with healthcare professionals and overall satisfaction with pregnancy care, and b) patient-centred aspects and satisfaction with delivery care. Through descriptive analyses and multivariable logistic regressions we estimated the associations of maternal characteristics with each score. ResultsOverall, positive experiences were reported in terms of communication (83 %) and patient-centred care (86 %). North African immigrants with low language proficiency had higher odds of negative communication experience (especially problems understanding information) (ORa: 2.30, 95 %CI 1.17–4.50), regardless of socioeconomic position. Among women with language barriers, 88 % were never offered a professional interpreter, relying on family members for translation. Patient-centred care was not associated with maternal birth region but was rated more negatively by older mothers, those with longer residence in Belgium, and higher majority-language proficiency. ConclusionIn Belgium, perinatal care experiences were generally positive, although communication with immigrants was suboptimal. Language barriers, single motherhood, and unstable housing increased communication issues. Our findings underline the necessity to improve information-exchange with immigrants and socioeconomically vulnerable women.