Parents Of Children Research Articles

Parental Voices on Screen Time Guidelines in Early Childhood

This article critically engages with the concept of screen time. We explore the screen time recommendations from the World Health Organization (WHO) and their application in the Swedish context. We also investigate the experiences and opinions on the recommendations and advice on screen time and screen media use in early childhood among parents of young children (0–3 yrs.) in Sweden. The study draws from qualitative semi-structured interviews during multiple home visits from a diverse sample of 16 families. Findings are discussed through the prism of the ‘moral economy’ of the household and the ‘social imaginaries’ underpinning this. We have identified two types of approaches to guidelines on screen time among parents, and based on our findings we recommend organizations in Sweden and beyond, to rethink and revise the current guidelines, including the WHO recommendations.

Parental experiences and perspectives of healthcare providers' genetic testing recommendations for their children diagnosed with autism spectrum disorder in the United States.

Although genetic testing is recommended for all children diagnosed with autism spectrum disorder (ASD) in the United States, it remains unclear how many parents have received and followed these recommendations. This study aimed to assess parental experiences and perspectives of healthcare providers' genetic testing recommendations. A total of 1043 parents of children with ASD from Simons Foundation Powering Autism Research for Knowledge completed an online survey. Only about one-third of the parents (34.2%) reported that their children's providers had recommended genetic testing. Factors associated with whether parents received these recommendations included the type of healthcare providers diagnosing ASD, parents' knowledge of genetic testing, the age of their children's diagnosis, and the presence of certain co-occurring medical conditions in their children. Our study also revealed that most parents (76.9%) who received recommendations had pursued genetic testing for their children. Adherence to the recommendations was associated with the characteristics of the parents (i.e., age and employment status) and children (i.e., gender), and their trust in the information from providers. The findings highlight the critical role of healthcare providers in facilitating genetic testing among families of children with ASD. Healthcare providers are recommended to increase their competencies and practice in providing genetic testing recommendations for ASD, assist parents in navigating testing challenges, and support parents through the testing process.

Parental attitudes and perceptions towards the recruitment of children to clinical trials: a cross-sectional survey.

Clinical trials (CTs) in children are critical for understanding and treating childhood diseases. However, there trials require prior permission from parents. We evaluated parental attitudes and perceptions regarding the recruitment of their children in CTs. We used a cross-sectional survey questionnaire targeting parents of children admitted to the neonatal and pediatric departments in two tertiary hospitals in Qatar. The survey was administered by investigators and was composed of two domains to assess the knowledge and attitude of parents regarding children's enrollment in CTs, in addition to the participant's demographics domain. Of the 167 questionnaires offered to parents, we received a total of 138 responses, resulting in a response rate of 82.6%, with the majority being women (72%). Many parents (75%) expressed willingness to enroll their children in CTs. However, 66% opposed new experimental treatments for their child, while 41% agreed to new treatments if they had previously been used in the medical field. Logistic regression analysis revealed key predictors influencing parents' decisions to include their children in CTs, including having a newborn (aOR = 17.651, p < 0.001), families with five or more members (aOR = 3.293, p = 0.012), collecting blood samples (aOR = 8.602, p = 0.003), performing additional tests on collected samples (aOR = 4.115, p = 0.046), belief in helping others (aOR = 8.744, p = 0.002), and the option of home therapy (aOR = 7.090, p = 0.004). Many parents are open to enrolling their children in CTs, particularly when treatments have been previously used. Factors like having a newborn, large family size, blood collection, additional tests, and home therapy influence their decisions. Clear communication can enhance recruitment in pediatric trials.

Parental Support in the Education of Their Children with Impairments: In the Case of North Wollo&amp;apos;s Primary Schools

This study aimed to explore parental support practices in the education of children with impairments in primary schools in north Wollo, Ethiopia. The study utilized a qualitative research approach and case study design, involving seven parents of children with impairments and four teachers. Data was collected through semi-structured interviews based on a parental involvement framework with six dimensions. Findings revealed that parents of children with impairments were more involved in parenting practices to support their education. However, communication between parents and teachers was limited, and while some parents provided learning support at home, many were unable to do so due to constraints such as lack of time, misconceptions, and inadequate skills. The study also noted that direct parental involvement in decision-making was limited, while indirect participation through parent-student-teacher associations was more substantial. Additionally, the study revealed that parents did not participate in volunteering or community activities to aid their children&amp;apos;s education. As a result, the schools should facilitate discussions and provide training to empower parents in fulfilling their diverse roles.

Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum.

Fatigue is associated with numerous harmful physical and mental health outcomes. Despite research indicating a relationship between fatigue and sleep, there has been a limited focus on how the variability of a person's sleep may be associated with fatigue. In addition, previous studies have not explicitly explored relationships among child sleep, parent sleep, and parent fatigue. Increasing knowledge about this area of research could be particularly relevant for families with autistic children with an increased likelihood of sleep disturbances. The current study used two weeks of objective sleep (actigraphy) data and subjective ratings of parent fatigue from 81 parents and their autistic children to examine associations among child and parent within-person sleep variability regarding average parent fatigue levels. Evidence was assessed for the role of parent sleep variability in hypothesized connections between child sleep variability and parent fatigue. We found that only greater variability in parents' total sleep time was associated with higher levels of parents' average daily fatigue rating over the two weeks. Child sleep variability was not significantly associated with parent sleep variability or average daily fatigue. In addition, average levels of child sleep were unrelated to parent total sleep time variability and fatigue. Although cautious interpretation is required, findings support the idea that variability in total sleep time may be a unique aspect of parental sleep's association with fatigue, independent of child sleep. In addition, sleep variability could be important to consider when examining sleep in addition to average levels of parameters like total sleep time.

Challenges of Polish families related to caring for a disabled child at home: a cross-sectional study

A family with a disabled child has major changes and challenges. The difficulties experienced by the whole family are of various natures and relate to emotional, psychological, caring, and financial problems. The aim of the study is to learn about the challenges and involvement of Polish families in caring for a disabled child in the home environment. A cross-sectional pilot study was conducted in a group of 103 parents of disabled children. The proprietary questionnaire and a standardized scale for the Generalized Self-Efficacy Survey (GSES) were used as a research tool. The material for the study was collected online, using Google Forms software, and statistically processed. Emotional contact with a disabled child turned out to be the most difficult aspect of care for almost half of the respondents (42.7%). The vast majority of respondents (75.7%) described the level of difficulty in caring for a disabled child as much higher than the level of difficulty in caring for a healthy child. Most parents (87%) spend between 10 and 20% of their family income on the treatment and rehabilitation of disabled children. A significant relationship was noted between the assessment of the family’s economic situation and place of residence (χ2P = 27.32; p < 0.0001; Vc 0.51). Parents of children with disabilities who live in rural areas and have less education are less well off financially. The average GSES score was 24.54 and was in 4 sten. The biggest care challenge for parents of disabled children turned out to be emotional contact with the child. The GSES index for parents of children with disabilities is lower than the average values obtained in Polish studies, which translates into worse coping with problems.

Suicidal risk among Chinese parents of autistic children and its association with perceived discrimination, affiliate stigma and social alienation

BackgroundCaring for autistic children becomes challenging and may lead to negative psychological outcomes, even increasing the suicide risk (SR). Researchers have studied the SR among parents of autistic children in Western nations, but little is known about it in China and how it relates to perceived discrimination (PD), affiliate stigma (AS), and social alienation (SA). The current study aimed to reveal the SR prevalence rate among Chinese parents of autistic children, and clarify whether AS and SA may play mediating roles in the association between SR and PD.MethodsA total of 645 Chinese parents of autistic children were recruited to complete a series of scales to evaluate SR, SA, AS, and PD using the Suicidal Behaviors Questionnaire-Revised (SBQ-R), Perceived Discrimination Scale for Parents of Children with Autism Spectrum Disorders (PDS-FP), Affiliate Stigma Scale (ASS), and General Social Alienation Scale (GSAS), respectively. Then, the SR prevalence rate among Chinese parents of autistic children was evaluated; and the multiple mediation analysis and structural equation modeling with the bootstrap method were conducted to test the mediating effects of AS and SA in the association between SR and PD.Results34.6% Chinese parents of autistic children had high SR. In particular, the incidence rate of suicide ideation, suicide plans, suicide attempts, and suicide likelihood during the previous year were 49.8%, 11.9%, 2.5%, and 13.8%, respectively. Additionally, PD was positively associated with SR (r = .40, p < .01); and AS and SA showed significant mediating effects on the association between PD and SR (p < .01).ConclusionsThe current study evaluated the SR prevalence rate among Chinese parents of autistic children, and clarified the mediating effects of AS and SA in the association between SR and PD. Findings might bring new insights and guidance for intervention of suicidality among Chinese parents of autistic children.

Experiences and psychological issues affecting parents of children born with atypical genitalia in India.

Parents of children with differences of sex development (DSD) are known to suffer from psychological distress at the time of diagnosis and thereafter. We analyzed the prevalence of anxiety and depression in Indian parents of children with DSD and its associated risk factors, as well as their experiences, perceptions and expectations from the healthcare system. This cross-sectional study included parents of children aged ≤6 years with atypical genitalia. Data was collected through face-to-face semi-structured interview using specially designed questionnaire. Depression and anxiety have been assessed using PHQ9 (Patient health questionnaire) and GAD-7 (Generalized anxiety disorder scale), respectively. The current mean age of the 43 children (46,XY=26, 46,XX=16 and chromosomal DSD=1) was 36.5±21.4months with a median age of diagnosis of 5months (range- 0-60months). 68 parents (35 mothers and 33 fathers) were interviewed. The score was above the cut-off for clinically significant depression in 27.2 and 25.7 % of the fathers and mothers, respectively; and for clinically significant anxiety in 15.1 and 28.6 % of the fathers and mothers, respectively. The most significant factor associated with psychological distress was rearing a boy with lower EMS in fathers and lower literacy levels (with higher perception of stigma) in mothers. Absence of family support was associated with high levels of distress in both parents. There is a high level of depression and anxiety amongst Indian parents of children born with atypical genitalia and requirement for psychological support and counseling.

Parental Burnout-A Model of Risk Factors and Protective Resources Among Mothers of Children with/Without Special Needs.

Parents of children With Special Needs and Disabilities (W-SND) who require long-term healthcare are at high risk of Parental Burnout (PB). However, most studies have focused on PB among parents of children Without Special Needs (WO-SN). This study aimed to develop a new model explaining PB of mothers of children W-SND/WO-SN. The main hypothesis was that the nexus of correlations between risk factors of PB (severity of child's disability/challenge, perceived caregiver burden) and protective resources (social support, learned resourcefulness, deep emotion work) will explain the variance of PB of mothers of children W-SND and WO-SN. A questionnaire assessing PB, its risk factors, and protective resources was completed by 352 Israeli mothers of children W-SND (mean age 36.9) or WO-SN (mean age 32.3). The child's disabilities were communicative, physical, intellectual and developmental. The main results are that mothers of children W-SND reported higher PB, higher caregiver burden, and a higher severity of disability. About 50% of PB variance was significantly explained by the nexus of correlations between selected risk and protective factors. Among all mothers, the more social support they received, the higher their learned-resourcefulness. However, learned resourcefulness mediates the correlation between caregiver burden and PB among mothers of children W-SND. Accordingly, it is important to increase awareness among healthcare professionals regarding the risk factors and symptoms of PB, and to develop workshops on protective resources in order to prevent PB and promote mothers' well-being. Further research should be conducted among fathers and parents from diverse cultures.

Postnatal depressive symptoms in mothers of infants at high risk of cerebral palsy: the role of delayed infant communicative development

Purpose Recent diagnostic advantages enable detection of cerebral palsy (CP) in infants before five months of age. Parents of children with CP often face mental health problems, but specific knowledge for infancy is needed. In this study, depressive symptoms in mothers of 16-week-old infants and associations with infant development were investigated. Materials and methods This cross-sectional study involves 56 families, 22 high-risk and 34 infants without risk of CP. High-risk-CP was identified following international clinical guidelines. We assessed infant cognitive and language development using the Bayley-III and motor development using the Alberta Infant Motor Scale. Maternal depressive symptoms were self-reported using the Edinburgh Postnatal Depression Scale. Results Mothers of CP high-risk infants were 15.6 times more likely to experience risk of postnatal depression compared to mothers of infants without risk. Additionally, linear regression analyses showed that having an infant at high-risk of CP (β = .359, p = .006) and delayed language development (β = −0.510, p < .001) were associated with increased maternal depressive symptoms. Conclusions We recommend systematic screening of postnatal depressive symptoms following detection of high-risk-CP in infants. Early interventions could include a mother-infant interactional component to support caregivers in interpreting and responding to infant communicative cues.

Mindful With Your Baby/Toddler: A Single Case Design (SCD) Study.

Transitioning to motherhood comes with new and intensive tasks that may cause parental stress, low parental self-efficacy, and internalizing problems. This can in turn negatively affect the mother-child relationship. Mindful with your Baby/Toddler (MwyB/T) is a mindfulness-based intervention for parents of young children experiencing parental stress and internalizing problems. Previous evaluative studies showed promising results, but methodology of these studies was limited. The current study used a single case design, including a baseline, intervention, posttest, and follow-up phase, to evaluate the effectiveness of MwyB/T. Ten participants were included and completed daily administered personalized items and validated questionnaires measuring mindfulness, mindful parenting, parental self-efficacy, internalizing problems, and parental stress, for 10 participants. Personalized items were first coded into themes and then assessed using visual analysis and descriptive effect size measures. Reliable change indices were computed for the questionnaires. All mothers improved on personalized items, with most improving on most (or all) of their items. On the questionnaires the majority of mothers improved. Results indicate that MwyB/T could benefit mothers with various intervention goals. More research is needed on the role of personalized items, both as a research measure and an as a possible additional element of interventions.

A pilot study of Chinese parents’ perceptions of friendships in autistic children

Objectives Previous research has reported that parental perceptions and expectations regarding friendship for their autistic children varies across different cultural contexts, but investigations of parents’ attitudes towards their autistic children’s friendships in eastern cultures are scarce. Settled in the unique collectivistic culture in China, the purpose of this study was to explore Chinese parents’ perceptions and expectations of friendships for their autistic children. Methods A qualitative research method was adopted in this pilot study. Semi-structured interviews were conducted with 11 parents regarding their perceptions, expectations, and perceived barriers to friendship development in their autistic children (n = 11, age mean = 9.18). Thematic analysis was employed to interpret the data. Results The results revealed that Chinese parents generally perceived a low level of their children’s friendship status and that they hold low expectations for their children’s friendship development. Additionally, cognitive and environmental barriers were identified as the major obstacles to friendship development for children with autism. Conclusions This pilot study investigated how Chinese parents of autistic children perceive their children’s friendship and identified social and cultural barriers to the development of their autistic children. It highlighted the need for cultural investigations in future research to promote efficient friendship development in autistic children.

STRATEGIES FOR IMPROVING CHILD WELFARE THROUGH MULTIFACTOR INTERVENTIONS TO ADDRESS STUNTING IN MAKASSAR CITY, SOUTH SULAWESI

ABSTRACTStunting is a chronic nutritional problem frequently occurring in children, with factors such asfood access, nutritional intake, social factors, and economic conditions playing significant rolesin its manifestation. This study aims to identify effective strategies to reduce stunting ratesamong children in Makassar City, South Sulawesi. Utilizing a quantitative approach, the studyconducted household surveys with structured questionnaires involving 180 respondents, whowere parents of children under five experiencing stunting. Data analysis was performed usingstructural path analysis with SmartPLS4. The findings indicate that strengthening socialprotection systems, improving access to quality food, nutrition education, health educationprograms, and family empowerment are crucial factors in preventing stunting. These resultsprovide significant contributions to the development of targeted and sustainableinterventions to address chronic nutritional issues in South Sulawesi, particularly in Makassar City.

Rehabilitation services for childrenwith disabilities during the COVID-19 pandemic in the United Arab Emirates: Experiences of parents

Introduction: The Covid -19 pandemic brought changes in professional practice across the globe. Children with disabilities received rehabilitation services remotely throughout the lockdown periods to contain the virus in the United Arab Emirates. This paper explores the experiences of parents of children with disabilities who received remote rehabilitation services during the Covid-19 pandemic.Methods: A survey was developed by the study team in English and Arabic. Demographic data, characteristics of children, family circumstances, access to rehabilitation, use of assistive tools, financial and psychological implications on parents and children, and future use of remote therapy. It was deployed to the parents through the rehabilitation centers and was analyzed using descriptive statistics with frequencies and percentages.Results: The survey was completed by 239 parents whose children with disabilities received the rehabilitation services remotely mainly through telerehabilitation. The pressure and psychological impact on parents were high, reporting frustration (44.8%), and anxiety (59.8%), although (70.3%) recognized the importance of continued care for the child.Conclusion: Telerehabilitation was the means during the pandemic to ensure continued care in the UAE. In the future, remote rehabilitation will be appropriate in specific situations when there is limited or no access to the center. Future research should explore thecontinued use of telerehabilitation and its effectiveness.

Assessing the Parenting Stress Index-Short Form (PSI-SF) for Latinx Parents of Children with Intellectual and Developmental Disabilities Within Exploratory Structural Equation Modeling and Structural Equation Modeling-Based Generalizability Theory Frameworks

Although the Parenting Stress Index-Short Form (PSI-SF) is widely applicable, there has been a dearth of research on the psychometric properties and item wording effects associated with the cultural sensitivity of the instrument. This study investigated the psychometric properties, the factor structure, and the negative and positive item wording effects of PSI-SF for 96 Latinx parents of children with intellectual and developmental disabilities in the United States within exploratory structural equation modeling, and structural equation modeling-based generalizability theory frameworks. This study produces the following noteworthy findings. First, the ESEM bifactor model with negatively and positively phrased items best captured the theoretical frameworks underlying the structure of the PSI-SF. Second, adding method factors enhanced the model fits of all the factor models. Third, this study discovered several items with great proportions of method factors. This study recommended that the items with high proportions of method factors, which may likely be culturally insensitive to Latinx parents, be examined further and refined. With the use of accurately assessed PSI-SF scores, practitioners will be better able to support and empower Latinx parents of children with IDD and better meet their needs through the FIRME program, a parent advocacy initiative.

Parents' experiences of their children's obesity management at the children's hospital on Reunion Island.

Parents' perspectives on their child's obesity (BMI >IOTF-30) management are essential to ensure positive outcomes. This study explored parents' experiences in managing their children's obesity and investigated the sociocultural and environmental factors influencing such management on Reunion Island, a French overseas department in the Indian Ocean. This qualitative study used a general inductive analysis approach. Semi-structured telephone interviews were conducted from France, between January and April 2019, with nine parents of children treated in the Childhood Obesity Unit of the Children's Hospital on Reunion Island. The interviews were analysed by using thematic analysis until data saturation. Four main themes emerged reflecting the stages of parents' experiences during treatment: a life history with feelings of justification and guilt, acceptance, involvement and activism. Cultural food traditions were a barrier to implementing healthier habits. Support and advice from the healthcare services alleviated feelings of isolation and motivated parents to be more proactive in their children's obesity management. Parents' involvement motivated their children and improved their relationships. Parent's involvement is essential in managing children's obesity. To maximise treatment outcomes, tailored interventions that address parents' unique family dynamics and sociocultural perspectives are key.

Brand Trust, Perceived Quality, and Parental Decision-Making: A Study of International School Selection in Chiang Mai

Background and Aim: This research investigates the factors influencing parents' decision-making process when choosing international schools in Chiang Mai Province, Thailand. With the increasing popularity of international education in Thailand, understanding the key determinants of school choice is crucial for both parents and educational institutions. This study focuses on the impact of brand trust and perceived brand quality on parental decision-making, aiming to provide valuable insights for school operators and stakeholders to develop competitive strategies and enhance educational services. Materials and Methods: The study employs a quantitative research design with a convenience sampling technique. Data is collected from parents of children attending or considering 21 international schools in Chiang Mai through a structured online questionnaire. The questionnaire assesses brand trust, perceived brand quality, and their influence on the school choice decision-making process. Multiple regression analysis is used to examine the relationships between these variables. Results: The findings reveal that both brand trust and perceived brand quality significantly influence parental decision-making. Brand trust emerges as the strongest predictor, indicating that parents prioritize the credibility and reputation of international schools. Perceived brand quality also plays a crucial role, as parents associate high-quality brands with superior educational outcomes. The study demonstrates that these two factors collectively account for a substantial portion of the variance in parental choices. Conclusion: This research confirms the importance of brand management for international schools in Chiang Mai Province. By focusing on building brand trust and enhancing perceived brand quality, schools can effectively attract and retain students. The study's findings offer valuable guidance for school administrators and marketers in developing targeted strategies to meet the evolving needs and expectations of parents in the international education market.

Exploring the oral health status of children living with hypoxic ischemic encephalopathy (HIE): A caregiver described self-report.

Hypoxic Ischemic Encephalopathy (HIE) is a birth complication due to loss of oxygen flow, resulting in a wide range of physical and cognitive differences often requiring support from multidisciplinary healthcare teams. Despite this population's increased need, little is known about their oral health status and the role of the dentist as a member of the care team. A 32-item oral health questionnaire was shared to 8700 members within the patient advocacy non-profit, Hope for HIE's, Facebook group. The survey assessed caregiver-reported oral health status and facilitators and barriers to receiving dental care. Two hundred sixty-two individuals responded to the survey. The majority were white (90%, 177/196) parents of children with HIE (99%, 259/262) that lived in the U.S. (76%, 148/195) and cared for children under 3 (42%, 106/251). 36% (85/236) reported cavity experience, 81% (180/223) reported visiting the dentist for a dental check-up, however, 58% (147/255) considered the dentist to be a member of their child's care team. Children diagnosed with HIE likely experience similar oral health status as their peers, however, qualitative developmental work is necessary to assess facilitators and barriers to receiving dental care, and how to integrate the dentist into the care team.

Parenting Stress of Challenged and Non-Challenged Children: A Comparative Perspective

This study examines parenting stress among parents of challenged and non-challenged children, focusing on dimensions i.e. financial, social, family, and emotional stress. Conducted in Hooghly; Paschim Medinipur; and Kolkata, West Bengal, India, the study involved 200 parents (100 of challenged children and 100 of non-challenged children) across diverse occupations using a survey-based cross-sectional design through conveniently. Findings reveal significant gender and occupational differences in stress levels. Fathers of non-challenged children report higher financial stress, while mothers of challenged children experience greater social stress. Occupational factors influence stress differently across groups; for instance, service professionals report higher family stress among parents of non-challenged children, while farmers of challenged children report the least social stress. Age-related analyses suggest that while financial stress decreases with parenting age in non-challenged groups, emotional and overall stress increase in parents of challenged children as they age. This comparison underscores the specific stressors unique to each parenting context, offering insights into potential areas for support and intervention. The study contributes to understanding how child developmental status, gender, occupation, and age intersect to shape parental stress, thereby informing tailored approaches for alleviating stress and promoting family well-being in varied caregiving contexts.

Parental views on language choice and its impact on bilingual families of children with autism spectrum disorder: a qualitative study

ABSTRACT India is known for its linguistic and cultural diversity, and is one amongst the most multilingual countries of the world. Yet only little is known about bilingualism in families of children with autism spectrum disorder (ASD). This study, thus, aimed to explore the parental views on language choice and their impact on bilingual families of children with ASD, in India. The study employed a descriptive qualitative research design using in-depth interviews on 12 parents of children with ASD having English as their second language. The data obtained was subjected to inductive thematic analysis. Results revealed four major themes and corresponding subthemes, namely, parental opinion on language approach, language choice and practice, factors determining language choice, and their impact. Parents presented mixed views on bilingualism. Despite having positive opinion regarding bilingualism, parents demonstrated a mismatch between the opinion on language choice and practice. Although parents wish to practice bilingualism, several factors influenced their use of languages with their children with ASD. Some of these factors involved the child’s ability, family factors, the role of English and advice received from professionals and fellow parents. The parental language practice showed impact on the family, education, and intervention of the child. Results of our study support the existing literature and highlight specific factors supporting bilingualism in the Indian context.