Characteristics Of Informal Caregivers Research Articles

The impact of informal care-giving networks on adult children's care-giver burden

Previous research on the care-giver burden experienced by adult children has typically focused on the adult child and parent dyad. This study uses information on multiple informal care-givers and examines how characteristics of the informal care-giving network affect the adult child's care-giver burden. In 2007, 602 Dutch care-givers who were assisting their older parents reported on parental and personal characteristics, care activities, experienced burden and characteristics of other informal care-givers. A path model was applied to assess the relative impact of the informal care-giving network characteristics on the care-giver burden. An adult child experienced lower care-giver burden when the informal care-giving network size was larger, when more types of tasks were shared across the network, when care was shared for a longer period, and when the adult child had no disagreements with the other members of the network. Considering that the need for care of older parents is growing, being in an informal care-giving network will be of increasing benefit for adult children involved in long-term care. More care-givers will turn into managers of care, as they increasingly have to organise the sharing of care among informal helpers and cope with disagreements among the members of the network.

Patients on the waiting list for liver transplantation: Caregiver burden and stress

Over the last few decades, informal caregivers of patients with chronic diseases have received more attention, and there is a growing volume of studies demonstrating high rates of burden, stress, and mental disorders in this group of individuals. The objective of this study was to evaluate the burden, stress, and psychosocial characteristics of informal caregivers of liver transplantation candidates. Participants were assessed by individual evaluations with the following instruments: a semistructured interview, the Caregiver Burden Scale, the Inventário de Sintomas de Stress para Adultos de Lipp, and the Beck Depression Inventory. The Mann-Whitney test was used for statistical analysis with a significance level of 0.05. The characteristics of the study group (n = 61) were similar to those of groups in other studies with respect to gender (82% were women), kinship (64% were spouses), and age (the mean age was 47.6 years). The main stressors identified by the participants were as follows: doubts about ways to react in a crisis or in emergency situations (42.6%), mood swings of the patient (29.5%), and care involving food and medications (27.9%). Approximately 25% of the caregivers reported that they felt unprepared to adequately perform their roles. Data analysis indicated a greater burden overall on caregivers when the patient's Model for End-Stage Liver Disease score was greater than or equal to 15 points (P = 0.041). Furthermore, caregivers of patients with alcoholic liver disease showed higher depression (P = 0.034) and overall burden scores (P = 0.031) versus caregivers of patients with liver disease due to other etiologies. In conclusion, the participants showed significantly high levels of burden, stress, and depression. Support measures and caregiver preparation should be implemented by health care providers.

Preferences for place of care and place of death among informal caregivers of the terminally ill

(1) To determine informal caregivers perceptions about place of care and place of death; and (2) to identify variables associated with a home death among terminally ill individuals who received in-home support services in a publicly funded home care system. A total of 216 informal caregivers participated in a bereavement interview. Data collection included care recipient and informal caregiver characteristics, the use of and satisfaction with community services, and preferences about place of death. Most caregivers reported that they and the care recipient had a preferred place of death (77 and 68%, respectively) with over 63% reporting home as the preferred place of death. Caregivers had a greater preference for an institutional death (14%) than care recipients (4.7%). While 30% of care recipients did not die in their preferred location, most caregivers (92%) felt, in retrospect, that where the care recipient died was the appropriate place of death. Most caregivers reported being satisfied with the care that was provided. The odds of dying at home were greater when the care recipient stated a preference for place of death (OR: 2.92; 95% CI: 1.25, 6.85), and the family physician made home visits during the care recipients last month of life (Univariate odds ratios (OR): 4.42; 95% CI: 1.46, 13.36). The ethic of self-control and choice for the care recipient must be balanced with consideration for the well being of the informal caregiver and responsiveness of the community service system.

Informal caregiver characteristics and subsequent hospitalization outcomes among recipients of care

It is reasonable to surmise that informal caregivers might influence access and use of health services among disabled older adults, although this relationship has not been well studied. The objective of this research was to examine caregiver attributes with respect to recipients' hospitalization experiences. Generalized estimating equations were used to generate population-average logistic regression models for the risk of incurring inpatient hospitalization or being delayed in discharge from hospital. Data come from a sample of 420 women aged 65 or older receiving informal care, who participated in both the Women's Health and Aging Study and its accompanying Caregiving Survey. Individuals whose primary caregivers were characterized by feelings of competence in their role were 40% more likely to experience an inpatient hospitalization (p<0.05) but 48% less likely to be delayed in discharge from the hospital (p<0.05). Measures related to caregiver overload and personal gain were not found to be related to the likelihood of either incurring an inpatient admission or being delayed in hospital discharge, although individuals whose primary caregivers were characterized by role captivity (a measure related to perceived burden) were more than twice as likely to be delayed in discharge from the hospital (p<0.05) without controlling for other characteristics (p<0.10 in the multivariate model). Individuals whose primary caregivers reported being involved with recipients' medical professionals were 50% more likely to incur an inpatient hospitalization (p<0.01). These findings suggest that primary caregiver attributes have relevance to recipients' hospitalization experiences.

Understanding the Influence of the Complex Relationships among Informal and Formal Supports on the Well-Being of Caregivers of Persons with Dementia

This study examined the direct and indirect relationships between caring for a person with dementia and caregiver health. A conceptual model of the caregiver stress process considered informal caregiver characteristics, sources of caregiver stress, and the influence of informal and formal support on the well-being of the caregivers of persons with dementia. Structural equation modeling was used to test specific hypotheses in a sample of 327 caregivers of people with dementia who were living in the community, as part of the first wave of the Canadian Study of Health and Aging. Our findings show that the negative impact of the increasing disability of the care recipient on the psychological well-being of the caregiver was mediated mostly by the use of informal support systems and marginally by the use of formal support systems. The use of informal support by caregivers was associated with a decreased use of formal supports. The relationship between caregiver characteristics and their psychological health was mediated by the use of formal support but not by the use of informal support systems.

Do characteristics of informal caregivers affect the length of hospital stay for frail elders?

Studies examining the length of hospital stay for the very old rarely include characteristics of the informal caregiver as potentially explanatory variables. This study expanded a frequently used conceptual model of health services use to include caregiving factors as enabling variables. Data were collected from a representative sample of frail elders who had been hospitalized in the previous 18 months (n = 181) and their primary informal caregivers. The findings indicate that elders whose primary caregiver was a coresiding offspring had shorter hospitalization than elders whose offspring caregiver lived in different households. These data indicate that the amount of variance explained by this conceptual model is increased when social factors are included as explanatory variables.

Informal Home Care for Frail Black Elderly

Inadequate financial resources to cover the cost of long-term care services is common among chronically disabled elderly. For many elderly, particularly Blacks, family caregivers are the primary source of long-term care, including medical services and all types of informal assistance. Using national data from Mathematica Policy Researchers' National Long Term Care Demonstration Project, this article identifies descriptive and unique characteristics of informal caregivers to the frail Black elderly. The analysis indicates a fundamental role of nonimmediate family members in the care of Black elderly. The employment status, living arrangements, education, and marital status of the caregiver, as well as the disability level of the elderly care recipient are key factors that influence the number of hours of informal care provided. Extensive hours spent in providing informal care are associated with a reduction in leisure time and physical and emotional strain for caregivers. The article concludes with policy suggestions pertaining to the use of consistent definitions of family by policymakers and the population they desire to serve, equitable tax policy, and family leave policy.