Caregiver Burden Scale Research Articles

Caregiver burden before heart transplantation and long-term mechanical circulatory support: Findings from the sustaining quality of life of the aged: Transplant or mechanical support (SUSTAIN-IT) study

Caregiving for heart failure (HF) patients is burdensome. We examined differences in caregiver burden for 3 groups of older advanced HF patients: (1) supported with mechanical circulatory support (MCS) before heart transplantation (HT MCS), (2) awaiting transplant without MCS (HT non-MCS), and (3) prior to long-term MCS and factors associated with burden. From October 1, 2015 to December 31, 2018, we enrolled 276 caregivers for HF patients from 13 U.S. sites: 85 HT MCS, 96 HT non-MCS, and 95 prior to long-term MCS. At enrollment, caregivers completed the Oberst Caregiving Burden Scale (15 items, 2 subscales: time (range=1-5; higher score=more time spent on task) and difficulty (range=1-5; higher score=higher difficulty of task) and other measures. Statistical analyses included descriptive statistics, ANOVA, chi-square tests, and linear regression. Overall, caregivers were aged 60.8 ± 9.8 years and predominantly white, female, spouses, well educated, and reported ≥1 comorbidities. Caregivers overall reported a moderate amount of time spent on tasks and slight task difficulty. Caregivers for HT non-MCS candidates reported significantly less perceived time spent on tasks than caregivers for HT MCS candidates and caregivers for patients prior to long-term MCS (2.2 ± 0.74 vs 2.4 ± 0.74 vs 2.5 ± 0.71, respectively, p=0.02) and less perceived difficulty of tasks (1.2 ± 0.33 vs 1.4 ± 0.53 vs 1.4 ± 0.54, respectively, p=0.01). Caregiver and patient factors were associated with caregiver burden. Prior to HT and long-term MCS, caregiver burden was low to moderate. Caregiver factors were predominantly associated with caregiver burden. Understanding caregiver burden and factors affecting caregiver burden may enhance preoperative advanced therapies discussions and guide caregiver support.

Religious Coping and Fatalism on Perception of Care Burden in Caregivers of Patients with Cerebral Palsy in Turkey: A Cross-Sectional and Correlational Study.

Providing care to a patient with cerebral palsy can have many negative impacts upon caregivers. This study was carried out to define caregiving burden in the caregivers of cerebral palsy patients and determine the relationships between religious coping, fatalism, and burden of care. This cross-sectional and correlational study included 132 caregivers. Data were obtained using the Religious Coping Scale, the Fatalism Scale, and the Caregiver Burden Scale. It was determined that 18.9% of the participants experienced a heavy care burden. The luck and pessimism dimensions of the Fatalism Scale were positively and weakly correlated with caregiving burden (p < 0.01), while there was no correlation between caregiving burden and positive or negative religious coping styles (p > 0.05). Perception of fatalism explained 10% of the total variance in caregiving burden (R = 0.329, R2 = 0.109, F = 5.195, p = 0.002). It is recommended that caregivers be supported by religious experts to strengthen positive religious coping styles and advisable fatalism perceptions.

Association Between Caregiver Burden and Patient Recovery After Left Ventricular Assist Device Implantation: Insights From Sustaining Quality of Life of the Aged: Heart Transplant or Mechanical Support.

After left ventricular assist device (LVAD) implantation, caregivers may experience increasing burden because of new roles and responsibilities. We examined the association between caregiver burden at baseline and patient recovery after long-term LVAD implantation in patients ineligible for heart transplantation. Between October 1, 2015, and December 31, 2018, data from 60 patients with a long-term LVAD (age, 60-80 years) and caregivers through 1 postoperative year were analyzed. Caregiver burden was measured using the Oberst Caregiving Burden Scale, a validated instrument used for measuring caregiver burden. Patient recovery post-LVAD implantation was defined by change in Kansas City Cardiomyopathy Questionnaire-12 (KCCQ-12) overall summary score and rehospitalizations over 1 year. Multivariable regression models (least-squares for change in KCCQ-12 and Fine-Gray cumulative incidence for rehospitalizations) were used to assess for association with caregiver burden. Patients were 69.4 ± 5.5 years old, 85% men, and 90% White. Over the first year post-LVAD implantation, there was a 32% cumulative probability of rehospitalization; 72% (43/60) of patients had an improvement of ≥5 points in KCCQ-12 scores. Caregivers were 61.2 ± 11.5 years old, 93% women, 81% White, and 85% married. Median Oberst Caregiving Burden Scale Difficulty and Time scores at baseline were 1.13 and 2.27, respectively. Higher caregiver burden was not significantly associated with hospitalizations or change in patient health-related quality of life during the first year post-LVAD implantation. Higher caregiver burden at baseline was not associated with patient recovery in the first year after LVAD implantation. Understanding the associations between caregiver burden and patient outcomes after LVAD implantation is important as excessive caregiver burden is a relative contraindication for LVAD implantation.

The Effect of Altruistic Behaviors on Psychological Resilience and Care Burden in Caregivers

Objective:&#x0D; This study was conducted to investigate the predictive effect of altruistic behaviors on psychological resilience and care burden in caregivers of cancer patients.&#x0D; Matherials and Methods:&#x0D; The study consisted of 194 caregivers of 194 patients with cancer who were treated at the Hematology-Oncology Service, Day Treatment Center and General Surgery Service of Dokuz Eylül University Hospital. The study data were collected by using four data collection tools, namely Patient and Caregiver Information Form, Altruism Scale, Resilience Scale for Adults, and Clinically Adapted Zarit Caregiver Burden Scale. The mean score of caregivers was 74.96±12.02 on the total Altruism Scale, 129.86±23.72 on the total Resilience Scale for Adults and 30.20±13.05 on the total Zarit Caregiver Burden Scale.&#x0D; Results:&#x0D; A statistically significant and positive correlation was found between caregivers’ scores on the altruism scale and resilience scale (p

Caregiver burden among parents of children with chronic diseases: A cross-sectional study.

This study aimed to assess the perceived caregiver burden among parents of chronically ill children in Jordan. Although there are few studies on the accurate prevalence of chronic diseases among Jordanian children, there are a few on the burden of caregiving, which is important because most children with chronic illness rely on their caregivers to perform their daily tasks. In Jordan, little is known about the caregiver burden associated with caring for children with chronic diseases. A cross-sectional design was reported in line with the STROBE guidelines. The Katz Index of Independence was used to determine the children's level of dependence, and the Burden Scale for Family Caregivers was used to measure the caregivers' level of burden. Nearly, 49.3% of caregivers had a very severe burden, 31.2% of children had a severe functional impairment, 19.6% had a moderate impairment, and 49.3% had full functionality. Based on their children's dependency, caregivers' subjective burden varied greatly (p< .001). Fully functional children had a far lower disease burden than severely and moderately disabled children (p< .001). The caregiver burden score differed significantly across chronic disease categories (p< .001). Unemployed caregivers had a far higher subjective burden than working caregivers (p= .009), and single (divorced/widowed) caregivers had higher burdens than married caregivers. Various factors can increase caregiver burden. Therefore, healthcare providers must plan holistic and family-centred interventions to reduce the caregiving burden. There is a need to establish support programs to help reduce the level of burden among caregivers of children with chronic diseases.

Parental Stress, Familial Burden and Quality of Life in Parents of Children with Down Syndrome

The current study was conducted to explore the severity of parental stress, familial burden and how it effects on quality of life of those parents having children with Down Syndrome in Pakistan. Correlational research design was used to recruit the sample. The participants N= 110 (M=55; F=55) were recruited through purposive sampling from different institutes of special education and outpatient departments of psychiatry hospitals. Those who completed the inclusion criteria participated in the study by signing written informed consent. Parental Stress Scale (Berry &amp; Jones, 1995) was used to determine the stress level. Burden Scale for Family Caregivers (Grau et al., 2014) was used to analyze the burden severity, and Family Quality of Life Scale (Hoffman et al., 2006) was used to determine their effected life due to having children with Down Syndrome. The results found a negative relationship between parental stress (r=-.20, p &lt; .05), and familial burden against quality of life among parents having children with Down syndrome. Also, there is significant positive relationship among parental stress and familial burden (r = .37, p &lt; .001), that shows the parental stress increases with the increase in familial burden. However, independent samples t test showed fathers to have high stress and burden as compared to mothers. The study has implications in the field of clinical psychology. The results will be able to help practitioners to consider the proliferating factors of stress and burden among the parents of children having Down Syndrome.

Analysis of the factors that influence caregiver burden in adolescents with dual diagnosis

IntroductionSerious mental illness in adolescence that not only has a significant impact on the patient but also on other contexts such as their family. Caregivers assume almost all of the care. This responsibility exposes caregivers to intense overload with negative consequences.ObjectivesTo evaluate and quantify the overload of the primary caregiver in children and adolescents with severe mental disorders.MethodsA prospective study was designed using structured interviews in caregivers of patients between 11 and 18 years of age with severe mental disorders and substance use who were evaluated in the psychiatric emergency service for 2 months. The Zarit Caregiver Burden Scale was used for quantitative assessment. Diagnosis, main caregiver, socio-health resources were recorded.ResultsOf a total of 35 patients with serious mental illness between 11 and 16 years of age, the following was observed: intense caregiver burden in 42.2% of cases, moderate in 21%. Being the main caregiver the mother. 27.5% had adequate use of socio-health resources, while 42.7% had not requested them. The greatest need detected was economic and rehabilitation.ConclusionsSerious mental disorder present since adolescence leads families to significant destabilization of the family nucleus and comorbidity of psychiatric disorders in caregivers. Good orientation and evaluation of individual cases are necessary to guide families about the resources available in the social and health network, thus avoiding a high overload of caregivers and improving the quality of life of families.Disclosure of InterestNone Declared

Caregiving Burden of Caregivers of Hemodialysis Patients and Related Factors

Objective: This study was conducted to evaluate the caregiving burden of caregivers of patients receiving Hemodialysis (HD) treatment. Methods: The research was conducted with 107 caregivers of patients receiving HD treatment at State Hospital and Private Dialysis Center. The entire population was intended to be reached by avoiding the use of samples. The universe has been explored to an extent of 89%. Between 1 June and 1 July 2022, the researchers visited HD centers and conducted in-person interviews to gather the data. The demographic data of both patients and caregivers were collected using a 16-item “Descriptive Information Form” and the “Zarit Caregiver Burden Scale (ZCBS)”. Results: The mean caregiving burden score of the participants was 47.53 ±13.87. Among the patients, 39.3% were between the ages of 41-60 and 40.2% were between the ages of 61-80. 85.7% of caregivers were 60 years old or younger. 75.7% of caregivers were women. There was a significant relationship between patient education level and caregiver burden. Caregivers with university degrees had a lower caregiving burden. The degree of caregiver burden was found to vary greatly depending on the caregiver’s age, marital status, occupation, and closeness to the patient. The caregiver burden was found to be favorably influenced by age and relationship with patient in the regression analysis of the caregivers’ demographic data. Conclusion: It was determined that the caregivers had a moderate level of caregiving burden.

Opioids and constipation therapy in the last week of life: Their impact on patients, caregivers, and the location of death.

The use of opioids to control pain at the end of life may cause constipation, a symptom that can negatively influence the well-being of patients and caregivers. The main aim of this study was to evaluate the impact of constipation on symptomatic control and patients' overall quality of life at this stage. A particular focus was placed on opioids. We also intended to investigate whether constipation and caregiver fatigue is related to the place of death (hospital vs home). The approach of 121 patients followed in 2021 in their last week of life by a home team specialized in palliative care was analyzed in an observational, retrospective, non-interventional study. The patients were followed up for an average of 39.7 days. A total of 82.6% wished to die at home, which occurred in 74% of the cases. The constipation prevention protocol reduced constipation by 55.1%. It seems that morphine is more related with constipation and tapentadol seems to reduce constipation induced by opioids. Patients tended to die in hospitals when their caregivers were exhausted; however, it was not possible to determine a cutoff point using the Zarit scale, which was used to assess caregiver burden. Constipation in the last week of life does not seem to influence the well-being of patients or their caregivers significantly and the individualization of intensive treatment of constipation is needed. Different opioids have different probabilities of causing adverse effects such as constipation. Future special support mechanisms can be created and activated for the most tired caregivers to avoid exhaustion and promote death at home, if that is the patient's will.

Impacto da protetização auditiva na qualidade de vida do adulto com deficiência auditiva: revisão de escopo

ABSTRACT Purpose To verify the benefits of hearing aids in the quality of life of adults with hearing loss. Research strategy Scoping review guided by PRISMA recommendations. Selection criteria with the help of the keywords “hearing aids”, “hearing aid”, “cochlear implant”, “speech therapy”, “hearing impairment”, “hearing loss”, “quality of life”, and their respective in English and Spanish in the virtual databases: LILACS, SciELO, PubMed, SCOPUS, Web of Science and Open Grey. Qualitatively analyzed. Results 1,312 records were identified and six articles were selected, with a hearing aided population from 18 to 92 years old, from both genders, cochlear implant and individual sound amplification device users. Questionnaires were used (assessment of expectations of adults/elderly users of hearing aids, International Outcome Inventory For Hearing Aids, Nijmegen Cochlear Implant, Satisfaction, Caregiver Strain Questionnaire, Relative to the Index, World Health Organization Quality of Life-bref, Glasgow Health Status Inventory, Abbreviated Profile of Hearing Aid Benefit, Cochlear Implant Quality of Life and scales (Care Giving Burden Scale), Denver Quantified and visual analog). The results indicated a better quality of life in the domains tested, both in the view of deaf adults and their partners. Conclusion Despite the heterogeneity of the quality of life protocols used in the selected studies, it was possible to verify that hearing aids increase the quality of life of adults with hearing loss.

A longitudinal study of burden among spouse and non-spouse caregivers of older adults with stroke-induced-dependency.

to assess the burden of spouse and non-spouse caregivers of older adults with stroke-induced-dependency after discharge from a university hospital's Specialized Care Stroke Unit in southern Brazil. a longitudinal survey. The sample consisted of 48 consenting caregivers, among which 20 were spouse caregivers. Data were collected between May 2016 and July 2018. One week after discharge, caregivers completed a sociodemographic profile, the Functional Independence Measure, and the Caregiver Burden Scale. Burden was also measured two months after discharge. Data were analyzed using Multivariate Analyses of Variance. regarding time 1, non-spouse caregivers experienced greater burden with respect to social isolation (p = .01). Along with a persistently greater sense of isolation (p=.04), non-spouse caregivers felt far greater general strain (p =.01). statistically significant differences in burden over time highlight the importance of assessing caregiver burden after discharge and the need for a formal support program.

Analysis of the current status of hospice care needs and factors influencing them among family caregivers of patients with advanced cancer

OBJECTIVE To understand the current status of the needs of patients receiving hospice services and their caregivers and the factors influencing them. METHODS A convenience sampling method was used to survey 120 family members caring for patients with advanced cancer in 1 hospital with hospice care in Ningxia from April to June 2022 as study subjects using the Barthel Index Rating Scale of Self-Care, the Caregiving Burden Scale, and the Caregiver's Need for Hospice Care Scale. RESULTS Caregivers' scores for each dimension of hospice service needs were, in descending order, social support needs  information needs  physiological needs  psychological needs  spiritual needs  health care behavioral needs; multiple linear regression analysis The results showed that education, patient relationship, willingness to receive hospice care, and burden of caregiving capacity entered the regression model (P&lt;0.05) with R2=26.2%. CONCLUSION The level of education of caregivers, relationship with patients, willingness to receive hospice care, and the burden of caregiving ability are the main influencing factors of caregivers' demand for hospice services. The diversified needs of caregivers should be met by strengthening publicity and social support, establishing a new model of hospice care, and taking advantage of interprofessional teamwork.

PS-C18-12: STRESS AND COPING STRATEGY AMONG CAREGIVERS OF HYPERTENSIVE PATIENTS UNDERGOING HEMODIALYSIS- A PROSPECTIVE STUDY

Objective: To find out the level of burden/stress, and quality of life (QoL) among caregivers of hypertensive patients undergoing hemodialysis. And, to access the coping strategies used by caregivers. Design and Methods: This was a prospective observational study of caregivers of hypertensive patients undergoing hemodialysis having a history of caring for hemodialysis patient for at least 3 months and who had more than or equal to 18 years of age. A scheduled interview was arranged for each participant to complete the validated inventory questionnaire; Caregivers burden (CGB) Scale, WHO-QOL-BREF scale, and COPE inventory questionnaire to measure the level of stress, QoL and coping strategies used by the caregivers. Results: A total of 100 caregivers of hypertensive patients undergoing hemodialysis were enrolled in the study. Age varied from 20 to 76 years (mean 39.66 ± 12.74 years). The majority of the participants were male (62.9%) married (83.5%), employed (68%), and literate (95.8%). Around half (50.5%) of the patients had reimbursed the cost of dialysis from the Government schemes. Around half of the caregivers reported medium to high (medium, high; 40.21%, 10.31% respectively) levels of stress on utilizing the CGB scale. Using the WHOQOL-BREF questionnaire, it was found that participants had an overall good QoL (Table 1). Most of the caregivers adopted turning to religion, seeking social support, positive reinterpretation, planning, and acceptance as a coping strategy (Table 1). Conclusion: In view of moderate to high levels of stress among caregivers of hypertensive patients undergoing hemodialysis, there may be recommendations for developing a practicing guideline to address the caregiver assessment, education, and provision of referral to support services.

The Effect of Psychopathology and Cognitive Functions on Caregiver Burden in Patients with Schizophrenia.

The caregiver burden in the relatives of patients with schizophrenia increases mental health problems in patients, complicates coping with the illness for families, and adversely affects the course of the illness. This study aims to investigate the effects of patients' psychopathology severity and cognitive functions on caregiver burden. Forty-four patients diagnosed with schizophrenia according to DSM-5 and their primary caregivers were included in this cross-sectional descriptive study. The severity of the caregiver burden in the relatives of the patients was evaluated using the Zarit Caregiver Burden Scale (ZCBS). Symptom severity of the patients was evaluated with the Scale for the Assessment of Positive Symptoms (SAPS) and the Scale for the Assessment of Negative Symptoms (SANS). Wisconsin Card Sorting Test (WCST), Stroop Test, Trail Making Test (TMT), and Rey Auditory Verbal Learning Test (RAVLT) were applied to assess the cognitive functions of the patients. The mean ZCBS score was 47.7±26.9 in the primary caregivers of the patients. There was a significant negative correlation between ZCBS and patients' education level, time since recent hospitalization, and RAVLT scores, and a significant positive correlation between TMT, Stroop Test, and SANS scores. To reduce the caregiver burden, psychosocial interventions for cognitive dysfunction and negative symptoms involving patients and their families should be considered a priority.

Evaluation of Psychiatric Symptomatology, Quality of Life, and Caregiver Burden in Mothers and Children with Primary Immunodeficiency.

The present study aimed to evaluate the quality of life, depression, and anxiety scores of children with primary immunodeficiency (PID) and depression, anxiety scores, and the caregiving burden of their mothers. A total of 149 children aged 2-18 years and their mothers were included in the present study, along with 125 healthy children and their mothers as a control group. The Pediatric Quality of Life Inventory (PedsQL), Child Depression Inventory (CDI), and Screening for Child Anxiety-Related Emotional Disorders (SCARED) questionnaire were used based on the views of children and their mothers. The Beck Depression Inventory (BDI), Beck Anxiety Inventory (BAI), Temperament Evaluation of Memphis, Pisa, Paris, San Diego Autoquestionnaire (TEMPS-A), and Zarit Caregiver Burden Scale (ZCB) were used for the mothers. According to children and their mothers, the scores of the PedsQL were lower than that of the control group (P < 0.05). In addition, according to the views of children and mothers, we found that PID children had higher depression and anxiety scores than healthy children (P < 0.05). The depression and anxiety levels of mothers in the patient group were also significantly higher than those in the control group (P = 0.05 and P = 0.001). Statistically, we found significantly lower psychosocial health summary scores and total scale score levels from the subclass of PedsQL in the patient group than in the control group. According to the views of both children and mothers, we observed that PID children had higher depression and anxiety scores than healthy children. It was also found that the BDI and BAI values in case of mothers in the patient group were significantly higher than those in the control group.

Validity and Reliability Study of the Prolonged Grief Disorder- Caregiver Turkish Form.

The aim of this study was to adapt the Prolonged Grief Disorder - Caregiver Form (PG-12), which is used to measure grief symptoms of caregivers providing care to their relatives with a chronic diseases that cause functional disability to Turkish and to investigate its psychometric properties. We also aimed to investigate the prevalence of prolonged grief disorder in the caregiver sample. The sample consisted of 120 adult participants (70.8% female) who acted as caregivers. The participants were administered Prolonged Grief Disorder-Caregiver Form, Zarit Caregiver Burden Scale, Beck Depression Inventory and Life Satisfaction Scale. The results of confirmatory factor analysis showed that the single-factor structure of PG-12, consistent with the original form, was supported. PG-12 scores showed a positive correlation with depression and caregiver burden scores and a negative correlation with life satisfaction scores. The internal consistency coefficient of the scale was 0.85. The prevalence of prolonged grief disorder calculated using PG-12 was found to be 31.66%. The results showed that PG-12 is a valid and reliable tool for assessing the grief symptoms of people who provides care for a relative. In addition, the prevalence of prolonged grief disorder in our study population was high. Additional studies are needed in Turkey to confirm this rate and develop new strategies for caregivers.

A Study to Assess Burden on Caregivers of Opioid Use Disorder

Abstract Background: Substance use disorder is global problem associated with significant socio-occupational dysfunction. It has been increasingly realized that it should be conceptualized as affecting a family and not just an individual. This study aimed at assessing the caregivers’ burden in opioid dependence in a Tertiary Care Teaching Hospital in Punjab. Materials and Methods: This was a cross-sectional study where the sample comprised 50 patients diagnosed with opioid dependence, as per the International Classification of Diseases-10 criteria and their 50 caregivers. The caregivers’ burden was assessed with the help of the Montgomery Borgatta Caregiving Burden Scale, which is a subject-rated scale. Results: Most of the patients (54%) as well as the caregivers (30%) were 21–30 years of age, with male predominance and belonged to rural area, were unmarried, living in a nuclear family, and had a middle socioeconomic status. Most of the patients (88%) reported consuming “Heroin” and 64% reported using two or more than two substances. The mean age of first use of opioid was found out to be 21.8 years, the mean duration of the illness was 8.04 years, and the mean number of relapses was 2.94. About 58% of caregivers had moderate objective burden, 98% had severe subjective burden, and 78% had severe subjective demand burden. Conclusions: There is an urgent need to target the community awareness programs at the adolescent age group and a need to focus on the family rather than the individual patient, in the backdrop of the findings of this study.

Care burden and burnout levels of individuals caring for homecare patients

Aging is an important problem. Nowadays life conditions have become more sophisticated. Homecare services include people with old age, disabilities, chronic illnesses, or individuals in recovery. We all have to support our elderly people’s life feel more comfortable but should not forget the difficulties of caregivers in life. In this study, we aimed to evaluate that may occur in our elderly population as well as their relatives. This is a descriptive cross-sectional study. The sociodemographic characteristics of the participants, the General Health Questionnaire – 28 (GHQ-28), Maslach Burnout Inventory (MBI), and Zarit Caregiver Burden Scale (ZCBS) were analyzed. SPSS 24.0 program was used for the analysis. Of the 150 caregiving people included in the study, 67.3% of the caregivers were first-degree relatives. The main disease of 65.3% of the patients who were cared for was neurological. Caregivers who performed care over two years had higher scores on the ZCBS and MBI, but it was only ZCBS that was statistically significant in this group (p=0.16). It may be a support method for both parts to reduce the burden of care of individuals who care for their patients at home and to contribute to their social lives.

EXERCISE BEHAVIOR IS DETERMINED BY PANDEMIC DISTRESS AND TASK BURDEN AMONG CAREGIVERS OF OLDER ADULTS

Abstract Background Caregivers who have dependents with dementia are at a much higher risk of heart disease and mental illnesses compared with non-dementia caregivers. Consequently, these outcomes have been exacerbated by societal barriers that resulted from the pandemic. Engaging in regular physical activity at a moderate-to-vigorous level (MVPA) is beneficial for caregivers has it has been shown to prevent several adverse health outcomes. However, pandemic-related (COVID-19) distress likely worsened caregiver burden which in turn compromised their MVPA levels. The purpose of this study was to understand how caregiving burden impacts MVPA when accounting for physical activity determinants from an augmented Theory of Planned Behavior (TPB) model. Methods Participants (n=127) were caregivers for older adults (65+) who have dementia. Participants completed measures of MVPA (behavior), TPB, pandemic-related distress (COVID Caregiver Risk Index) and burden scale for family caregivers. The study was investigated using a structural equation model. Results Participants were 45.5 (SD=3.4) years old, 76.4% female. Attitudes (β=.22, p=.012) and perceived behavioral control (β=.19, p&amp;lt;.001) predicted intention. Attitudes and perceived behavioral control mediated the relationship between past behavior and intention (β=.17, p=.02). Covid distress predicted caregiver burden (β=.35, p&amp;lt;.001), and caregiver burden mediated the effects between distress and behavior (β=-.12, p=.01). Conclusions Caregiver burden findings suggest that societal changes and demographic-specific burdens related to caregivers need to be considered for caregivers with dependents who have dementia. Taken together, exercise programs that focus on traditional behavioral determinants also need to include specific approaches to buffer caregiving burden experienced in this demographic.

CAREGIVING BURDENS OF TASK TIME AND TASK DIFFICULTY AMONG PAID AND UNPAID CAREGIVERS OF PERSONS LIVING WITH DEMENTIA

Abstract Demands of caregivers of persons living with dementia (PLWD) are often influenced by the context of their caregiving situation. This study examines factors associated with caregiving burden in terms of task time and task difficulty among paid and unpaid caregivers of PLWD. Cross-sectional baseline survey data were analyzed from 110 paid and unpaid caregivers of PLWD participating in a larger NIH-funded study assessing the feasibility of using a novel in-situ sensor system. Oberst Caregiving Burden Scale constructs of task time and task difficulty served as dependent variables. Two least squares regression models were fitted, controlling for contextual items related to the caregiver, care recipient, and caregiving logistics. Caregivers whose care recipients were female (B=-0.29, P=0.006), had more chronic conditions (B=0.31, P=0.011), and had lower Mini-Mental State Exam scores (B=-0.20, P=0.015) reported higher task time burdens. Caregivers whose care recipients had other paid caregivers (B=0.30, P=0.031) and spent more months/years caring for their care recipients (B=0.28, P=0.004) reported higher task time burdens. Caregivers’ task time burden was positively associated with their emotional stress level (B=0.30, P=0.020). Caregivers’ task difficulty burden was positively associated with their emotional stress (B=0.30, P=0.029) and depressive symptomatology (B=0.32, P=0.002). Results reinforce the relationship between caregiver burden and mental health. While the care recipient’s disease profile and needs were drivers of task time burden, which may also require coordination with other paid caregivers, task difficulty was emotionally driven. Findings highlight the importance of caregiver support services and programming for mental health.