Awareness Of Caregivers Research Articles

The Impact of Emotional Intelligence on Service Quality of Caregivers in Long-term Care Facilities : Focusing on the Mediated Effect of Empowerment

본 연구는 노인요양시설에 종사하는 요양보호사의 감성지능이 서비스 질에 미치는 영향력과 임파워먼트가 이들 간을 매개하는 지를 검증하는데 목적이 있다. 이를 위해 서울특별시와 경기도에 있는 16곳 노인요양시설의 요양보호사 296명을 대상으로 분석을 수행하였다. 자료분석은 SPSS 25.0 프로그램을 활용하였고, 매개효과 분석을 위해 다중회귀분석을 실시하였다. 연구결과는 첫째, 감성지능의 4가지 하위요인 중 요양보호사의 자기감성인식과 자기감성조절이 서비스 질에 정적(+)인 영향이 있는 것으로 나타났다. 둘째, 임파워먼트의 4가지 하위요인 중 요양보호사의 의미성, 역량감, 자기결정력은 감성지능의 하위요인인 자기감성조절과 서비스 질 간을 매개하는 것을 확인하였다. 셋째, 임파워먼트의 하위요인인 자기결정력은 감성지능의 하위요인인 자기감성인식과 서비스 질 간을 매개하는 것을 검증하였다. 이상의 연구결과를 토대로, 의미성, 역량감, 자기결정력 등 임파워먼트의 하위요인들의 향상을 통해 노인요양시설의 서비스 질을 높일 수 있는 방안과 제언을 하였다.The purpose of this study is to verify the influence of emotional intelligence on service quality of caregivers in long-term care facility and whether empowerment mediates between them. For this, an analysis has been conducted on 296 caregivers at 16 long-term care facilities in Seoul Metropolitan City and Gyeonggi Province. The results of the study were analyzed using SPSS 25.0 and multiple regression analysis for mediation effect. The results of the study showed as follows. First, among the four sub-factors of emotional intelligence self-emotional awareness and self-emotional control of caregivers have a positive(+) effect on the service quality. Second, meaningfulness, competence, and self-determination of caregivers among the four sub-factors of empowerment, mediate between self-sensitivity control and service quality which is a sub-factors of emotional intelligence. Third, self-determination, a sub-factor of empowerment, mediates between service quality and self-emotional awareness that is a sub-factors of emotional intelligence. Based on the results, this study provides how to improve the service quality of long-term care facilities for the elderly by improving the sub-factors of empowerment, such as meaningfulness, competence, and self-determination.

Development and co-construction of a therapeutic patient education program for albinism

BackgroundLong-term and ongoing support in accordance with the changing needs of patients and their families is one of the main components of patient care, including therapeutic patient education (TPE). ObjectiveTo co-construct a TPE program for albinism with all those involved in the management of albinism patients. MethodsEight steps have been defined for the co-construction process: 1) identify all the relevant experts and invite them to participate in the construction of a TPE program to improve care for and support of patients with albinism, 2) review and analyse all publications regarding TPE for albinism, 3) conduct semi-structured interviews with the patients’ parents, 4) conduct brainstorming meetings with the participating experts for an exchange of experience and expertise, 5) elaborate the program's concrete content with the experts, 6) draw up a TPE skills checklist, 7) create TPE educational tools to facilitate learning, 8) review and summarize each step of the co-construction protocol. ResultsCo-construction of a TPE program for children, adolescents, and young adults with albinism, and their parents. ConclusionStrengths and advantages of the co-construction process include: i) highlighting of the experiential knowledge mentioned in the repository, ii) multiplicity of points of view and perspectives, iii) rapid improvement in TPE training both for the association and the patients, iv) awareness of the shift caregivers’ position with regards to TPE and recognition of the polysemy of their discourse. The TPE program for albinism has been authorized since 2018.

Body-to-Body Intimacy: Transformation Through Love, Sex and Neurobiology

Body-to-Body Intimacy: Transformation Through Love, Sex and Neurobiology

Comparing protection-motivation theory-based intervention with routine public dental health care.

Tooth brushing with fluoride toothpaste has a major effect on the reduction in dental caries. However, among young children, tooth brushing requires skill and motivation from caregivers and is not widely practised. To find a more effective way to train caregivers, Protection-Motivation Theory (PMT)-based educational programmes were compared with the basic one with regard to the incremental caries rate in children, caregiver's motivation and caregiver's awareness. In a quasi-experimental study, 9- to18-month-old children and their caregivers (N=102) were allocated to PMT or control groups. The PMT group received PMT-based oral health education programme while the control group received public hospital's current one. Children's caries status and motivation and awareness among caregivers were measured. Mann-Whitney U test was used to find out the difference between control and test groups. After 12months, the PMT group showed lower dmft, dmfs and incremental caries rate compared with control. Chi-square test showed the control group was at more risk of developing additional dental caries (RR 2.23, 95% C.I.: 1.41-3.54, p<0.001), and when early carious lesions were included (RR 2.40, 95% C.I.: 1.56-3.69, p<0.001). In terms of motivation and awareness among caregivers, the PMT group rated their perception of disease severity and belief in self-efficacy significantly higher than the control group. PMT-based education programmes encourage suitable motivation and awareness that changes oral healthcare behaviour of caregivers, relating to decreased incremental caries rate in infants and toddlers comparing with regular health education methods.

Perceptions of cancer patients and their caregivers regarding COVID-19 pandemic in Ethiopia.

e24116 Background: Limited research is available about COVID 19 pandemic in Ethiopia in general and in relation to cancer care in particular. Ethiopia reported the first COVID-19 in March, 2020. The number of cases is increasing, putting much pressure on oncology care. This study examines what the Ethiopian cancer patients and their caregivers knew about COVID 19 after the initial stages of the pandemic. It also assesses the information needs, psychological experiences as well as the impact of pandemic on oncologist-patient-caregiver communication and treatment process. Methods: A cross-sectional study was conducted among 200 participants (100 cancer patients and 100 caregivers) at the initial stage of pandemic (May 1 - June 30, 2020) at Tikur Anbessa Specialized Hospital (TASH), Addis Ababa, Ethiopia. Data was collected using a pre-tested, structured questionnaire to assess knowledge and perceptions on COVID-19. Ethics approval was obtained from the Ethical Review Board of TASH (04/14/2015) and the Ethical Review Board of Western Sweden (DNR 520-18). Results: The results indicate that though both cancer patients and their caregivers show a high awareness of and knowledge about COVID 19, they need more information about the risks specific to cancer patients. The respondents are also concerned about the risks of pandemic outbreak in Ethiopia and its impact on availability of cancer care treatments in the country. The respondents report experiencing psychological concerns in relation to the pandemic. The higher educated patients and caregivers report being more concerned than the lower educated respondents. Delays in appointments and therapy are the main concerns in relation to cancer care. Further, both patients and caregivers experience that the restrictions on the number of caregivers present during interactions with oncologists negatively influence communication, resulting in relatives being excluded and patients experiencing loneliness and lack of support. Conclusions: Getting a better insight into knowledge and awareness of COVID-19 among cancer patients and their caregivers is essential for managing the effects of pandemic in cancer care. To our knowledge, there was no similar study in Ethiopia. The results of the study contribute to insights into patient and caregiver awareness of COVID 19, essential for adoption of health care protective practices, providing information and managing oncologist-patient-caregiver communication.

Educating Anganwadi Workers to Enhance the Mother’s Knowledge and Awareness about Children Eye Health

Background: Blindness, visual impairment, and other eye problems in children are some of India’s major public health issues. In a state-operated integrated child development scheme (ICDS), the government engaged the Anganwadi workers and helpers. There is the advantage of integrating eye health within community health as active engagement of these local community workers spreads and also promotes an increase in the uptake of eye services. Purpose: The study intended to train Anganwadi workers working within the ICDS with knowledge about children’s eye health. The study also aimed to reach mothers or other primary caregivers of children and pro-vide them with knowledge to increase awareness about children’s eye health using the network of Anganwadi workers. Methods: A questionnaire-based study was undertaken to assess the cur-rent knowledge and awareness about children’s eye health among An-ganwadi workers and in randomly selected mothers and primary caregiv-ers of children from two blocks of the Saran District, Bihar, India. Com-prehensive training has been provided to Anganwadi workers through a validated training module which follows the structure of ICDS training modules, and each participant is asked to share the knowledge and edu-cate mothers or primary caregivers in their catchment area. After three months of imparted training, the mother’s or primary caregivers’ knowledge and awareness were assessed through a validated question-naire, and the results were compared. Results: A total of 274 Anganwadi workers participated in the interven-tional program, and 273 (99.6%) agreed that the training about” children’s eye health” was helpful to them. Furthermore, 230 mothers participated in the study, and 222 (96.5%) said that they had increased knowledge and awareness about children’s eye health from Anganwadi workers. Conclusions: A significant improvement was found in the knowledge and awareness of mothers or primary caregivers about children’s eye health as Anganawdi workers had educated them and made them aware of it. Edu-cating Anganawdi workers has a positive impact on spreading awareness in rural areas.

Caregiving, care burden and awareness of caregivers and patients with dementia in Asian locations: a secondary analysis

BackgroundThis study investigated the differences in caregiver activity, caregiver burden, and awareness of both caregivers and patients with Alzheimer’s disease (AD) across different Asian locations.MethodsThis was a secondary analysis of a multi-national cohort study that aimed to assess caregiver activity and caregiver burden using the Caregiver Activity Scale (CAS) and Zarit Burden Interview (ZBI), respectively. Patients’ awareness of their dementia diagnosis was assessed by asking the following yes/no question: “Do you have dementia?” Caregivers’ awareness of the patient’s dementia diagnosis was assessed by asking the following yes/no question: “Does your patient have dementia?”ResultsIn total, 524 caregivers of patients with AD from China, Hong Kong, South Korea, the Philippines, Singapore, Thailand, and Taiwan participated. The CAS and ZBI score were significantly different across most locations (p < 0.001 and p = 0.033, respectively). Overall, 56.6% of caregivers and 37.5% of patients had awareness of the dementia diagnosis, and the proportion of patients and caregivers with awareness were also different between each location (all, p < 0.001).ConclusionsCaregiving, caregiver burden, and the awareness of caregivers and patients were different across many Asian locations. With understanding of cultural differences, further public education on dementia could help increase the awareness of patients and caregivers and reduce caregiver burden.Trial registrationClinicalTrials.gov, NCT02262975. Registered 13 October 2014,

A study about clinic-epidemiological pattern of acute poisoning in pediatric age group

Background: Poisoning is one of the most common causes for emergency hospitalization and mortality in children. Mostly it is accidental in nature and can be prevented by awareness in caregivers. Recently due to increased use of many new chemicals in homes and agriculture clinic etiological profile of poisoning is also changed.&#x0D; Aims and Objectives: To study clinic-epidemiological pattern of acute poisoning in hospitalized children and To evaluate association of clinicodemographic factors to age of intoxicated children to evaluate association of clinicodemographic factors to age of intoxicated children.&#x0D; Material and Methods: A cross sectional study was conducted from October 2019 to February 2020 in pediatric department of a tertiary care center. Child admitted with alleged history of poisoning included in study. Type and amount of poison, clinical presentation, outcome and demographic profile were recorded from medical records of patients.&#x0D; Results: Study was conducted among 50 patients of poisoning. 74% patients were under 5 year of age while 56% were boys and 44% were girls. Patients admitted due to ingestion of Insecticides and pesticides (18%), hydrocarbons (14%), medicines (12%) and agricultural products (8%), plant products ((16%) and others. Maximum number of patients intoxicated with household products (56%). Age was significantly associated with residence (p = 0.02) and place of exposure (p = 0.01) and nature of poisoning (p = 0.05).&#x0D; Conclusion: In children below 5 year of age incidences of poisoning are more frequent, most of the cases are accidental in nature and easily preventable. Proper care in this tender age is very important in order to prevent morbidity and mortality due to poisoning.

Family experiences of caregiving to patients with Alzheimer

PurposeThis paper aims to describe and understand the family experience of caregiving to their Alzheimer patients and to explore the impact of caregiving on the family’s caregiver well-being.Design/methodology/approachThe study involved eight family caregivers from the outpatient department, specifically from the neurology-medical clinic. A descriptive phenomenological approach was used for data collection through in-depth semi-structured interviews.FindingsFour themes emerged: caregiver perception, tension, the sense of duty and commitment and altruism and sacrifice. The experience of family caregivers was different from their experiences with other chronic illnesses.Originality/valueThe family caregivers experience new life when providing care to their patients with Alzheimer's. The impact of the process of caregiving on whole life appeared in both positive and negative aspects. The perception and awareness of family caregivers toward Alzheimer’s disease were poor.

Effect of a Home Safety Supervisory Program on Occurrence of Childhood Injuries: A Cluster Randomized Controlled Trial

To evaluate the effect of home safety supervisory program on improvement in childhood safety, self-reported home hazard of caregivers, and caregivers' supervisory attitude. Randomized controlled trial. Caregivers of children between 2 to 5 years of age residing in selected villages in Karnataka. Intervention group was administered Home safety supervisory program (HSSP), whereas the control group received teaching on child care. The intervention group had a significant reduction in the frequency of childhood injuries when compared with the control group [MD (95% CI) 8.96 vs 3.37], after the administration of Home safety supervisory program. There was a significant difference in the mean baseline scores of caregivers self-reported home hazard practices between the two groups (P<0.001), and improvement in the supervisory attitudes of caregivers in the intervention group (P<0.001). Appropriate and effective home hazard reduction teaching reduces home injuries in children. The improved awareness of caregivers in child safety, and child supervision emphasizes the importance of this program.

Malnutrition, rehabilitation, and family or caregiver awareness regarding interaction in a patient with cerebral palsy

Cerebral palsy (CP) is a common motor disorder observed during childhood. Malnutrition and dysphagia are common in children with CP. Overdose of medication and seizures may cause aspiration via its influence on the conscious swallowing movement. Some children may experience aspiration because of gastro esophageal reflux. Management of patients with swallowing problems requires the coordinated efforts of healthcare professionals. Patients with CP require appropriate nutritional education and nutritional support. Focusing on improving the nutrition of children with CP in early life offers families and caregivers an opportunity to provide effective intervention that may improve patient outcomes. Family-centered biopsychosocial interventions, rather than technical and short-term rehabilitation interventions that focus only on the pediatric patient, are important for ensuring the rehabilitation of the patient and improving and maintaining his/her health. In the present case, attention was drawn to the influence of caregiver practices on the nutritional status and health of the patient and the importance of family or caregiver rehabilitation.

Emotional expression in conversations about advance care planning among older adult home health patients and their caregivers

ObjectivesTo examine patient and caregivers’ differences in emotional expression and explore topics associated with emotional expression during advance care planning (ACP) discussions. MethodsOlder adult home health patient-caregiver dyads participated in video-recorded ACP conversations as part of a collaboration-focused intervention study. Recordings were coded in Noldus Observer XT, analyzed with descriptive statistics, Cochran-Mantel-Haenszel and Breslow-Day test, and integrated with qualitative content analysis. ResultsEighteen patient-caregiver dyads were purposively recruited. Participants were mostly female (11 patients; 13 caregivers). Mean ages were 68.22 (SD = 9.64) for patients and 61.28 (SD = 13.60) for caregivers. Emotional expression (depth of emotion, positive and negative valence) was similar across patients and caregivers. Conversations centered on positive and negative decisional, relational, and existential topics. ConclusionsThis study explored emotional expression and identified topics associated with emotion for patients and caregivers during collaborative ACP. Findings suggest that collaboration in ACP can have positive relational aspects for patient-caregiver dyads, while negative emotions can also be distressing. Practice implicationsThis study describes the range of emotions that are common during patient and caregiver ACP discussions. Clinical implications for the assessment of caregiver support and awareness of the interdependent nature of decision making is discussed.

Awareness of infant safe sleep messages and associated care practices: findings from an Australian cohort of families with young infants

ObjectiveTo investigate primary infant caregiver awareness of the current national public health safe sleep messages and the associations of awareness with care practices.Design and settingA cross-sectional survey in Queensland, Australia....

Oral Health Awareness and Practices of Special Needs Caregivers in Qatif, Saudi Arabia

Background: Adequate oral health awareness and practices of special needs caregivers play a pivotal role in maintaining the optimal oral health of their dependents. Objectives: The current study aimed at assessing the level of oral health awareness and practices of special needs caregivers in Qatif, the Eastern Province of Saudi Arabia. Methods: The current cross-sectional descriptive study collected information by a self-administered questionnaire about awareness and practices of oral health in caregivers. The questionnaire consisted of four parts covering the caregiver demographic information, the awareness of oral health habits and conditions, awareness of dental visits and treatments, and knowledge and sources of information. Statistical analyses included descriptive and bivariate analysis using the Chi-square test, where P-values &lt; 0.05 were considered statistically significant. Results: There was an overall response rate of 27% (n = 186 out of 700). The majority (64.5%, n = 120) of the caregivers were female, 70.4% (n = 121) were educated up to a minimum of high school level. Up to 81.2% (n = 151) of the caregivers reported that dependents routinely brushed their teeth. Also, 84.9% (n = 158) of the caregivers knew about fluoride, and 77.8% (n = 123) understood that it helps prevent tooth decay. About three-quarters of the caregivers (n = 142) had taken their dependents to the dentist; 35.9% (n = 51) reported dental visits within the last six months. The most predominant information resources were dentists (54.6%, n = 83), TV and media (47.4%, n = 72), and the Internet (46.1%, n = 70). Caregivers' level of education was the only factor that had a significant relationship with oral health awareness (P = 0.018). Conclusion: The majority of the caregivers have a good awareness of proper oral health practices. Given the significant influence of the educational level of caregivers in oral health awareness, it is essential to ensure that they have any relevant education to improve their dependents’ oral health.

Risk Factors, Epidemiology and Outcome of Acute Kidney Injury among Pediatric Admissions in a Primary Health Facility in Cameroon

Background and aim: Little is known about what happens in primary health structures without nephrology care, especially in the paediatric population. We sought describe the epidemiology of AKI in children at risk in district hospitals in Cameroon. Methods: We prospectively screened consenting children aged 2-18 years of age in paediatric wards of 3 large urban district hospitals over a period of 4 months. Participants with AKI were then followed up till discharge. Outcomes of interest were need and access to dialysis, and renal recovery on hospital discharge. Written assent was obtained from parents or caregivers. Results: Among the 211 children admitted during the study period, 82% (n=173) were at risk of AKI, of whom 19 (11%) did not consent. Of the 154 children included 54.5% were males and the median age was 6 years [IQ 3-10]. Sepsis and volume depletion were the most common risk factors of AKI. The incidence of AKI was 12.3% (n=19). AKI was mostly community acquired and 47.4% (n=9) patients were in KDIGO stage 3. Pre-renal AKI and acute tubular necrosis accounted for 63.2% and 36.8% respectively. Gastro-intestinal losses, malaria, bacterial sepsis and nephrotoxins were the common aetiologies of AKI. On discharge, 71.7% of AKI had complete recovery renal function. Conclusion: Risk factors of AKI are very common in children on admission in general district hospitals in Cameroon. Efforts should be made to raise awareness of primary health caregivers about risk assessment, prevention, early recognition and management of AKI in children.

Knowledge and Awareness of Caregivers about Diabetic Ketoacidosis among Type-1 Diabetic Children and Their Action and Response in Riyadh City

Objectives: Diabetic ketoacidosis (DKA) is a life-threatening metabolic disorder in which its complications can be avoidable. The purpose of this study is to identify and measure the level of knowledge and awareness of caregivers about the symptoms of DKA in children in Riyadh city. Setting and Participants: This cross-sectional study design was conducted in Riyadh city in Saudi Arabia. A sample size of at least 412 was required. The total number of respondents that were included in the analysis was 414. The method of collection of data done by data collectors. Results: Two hundred and sixty-eight (64.7%) of the participants reported that they know about DKA, yet it was still a concerning figure since 35.3% did not know about it, which necessitating diabetes self-management education at national levels in Saudi Arabia. Conclusion: This study showed that the majority of type-1 diabetic caregivers had knowledge and awareness regarding DKA in Riyadh, Saudi Arabia. Further studies would assess more factors to enhance the level of knowledge and awareness, and increase the effectiveness toward the right action and response regarding DKA.

Awareness and Attitudes of Primary Caregivers toward End-of-Life Care in Advanced Cancer Patients: A Cross-Sectional Study.

Introduction:Awareness of end-of-life care (EOLC) has been at grass root level in our country. The caregivers are clueless about the concept of comfort care and that terminally ill cancer patients need care at home rather than the paraphernalia of the hospital ward. The basic aim of the study was to assess the awareness of the EOLC in the caregivers of the advanced cancer patients.Methods:After Ethics Committee approval, this prospective cross-sectional observational study was conducted among primary caregivers of patients receiving palliative care for advanced cancer. The primary caregiver was identified and written informed consent was obtained. The questionnaire for assessing awareness and attitudes of primary caregivers toward EOLC in advanced cancer patients was prepared and validated. The standardized study questionnaire was completed by the primary caregiver assisted by the researcher. The categorical data were analyzed using Fisher's exact test and Chi-square tests. The intergroup correlation was done using the Chi-square and nonparametric tests.Results:The results showed that only mere 26% of caregivers were aware of the term palliative care. The female population was more knowledgeable about EOLC, with 68% of them willing to initiate the same. The rural population was more willing to adopt palliative care (47%) and was more receptive about discontinuing aggressive definitive therapy.Conclusion:We conclude that the awareness about EOLC remains poor in caregiver if patients with advanced cancer in spite of good awareness of the disease. The consequences of the outcome of disease, EOLC understanding, futility for definitive care, acceptability, and understanding of palliative care lacked in most of the caregivers.

Caregivers’ awareness and perception of palliative care at Najran University Hospital, Najran region, Saudi Arabia

Caregivers’ awareness and perception of palliative care at Najran University Hospital, Najran region, Saudi Arabia

The evaluation of disease awareness, caregiver burden, and workday loss in caregivers of COPD patients

Our aim is to determine the caregiver burden of chronic obstructive lung disease (COPD) patient's caregivers, and to determine whether there is a work day loss. 252 COPD patients and their caregivers were included. Disease information of the patients were recorded and a questionnaire was applied. Socio-demographic characteristics of the caregivers were recorded and a questionnaire consisting of 24 questions including COPD disease, treatment and loss of working days and Zarit Scale were used. 128(50.8%) of the patients according to GOLD were group-D. 97(38.5%) of the patient's relatives were working. 62(24.7%) were not able to go to work for 1-14 days. 125(57.1%) spent outside the home from 1 to 14 nights, because those accompanied to patients. In univariate analysis were detected modified medical research council (mMRC) (p<0.001), CAT(p<0.001), the number of comorbidities of patients (p=0.027), forced expiratory volume in 1 FEV1cc(p=0.009), FEV1%(p<0.001), the presence of long term oxygen therapy (LTOT) and the number of comorbidities of the patient's relatives (p=0.06) increased the care load. In multipl linear regression analysis, age (p=0.03), COPD assessment test (CAT) score (p=0.001), FEV1%(<0.068) and the number of comorbidities of patients (p=0.01) and the number of comorbidities of caregivers (p=0.003) increased the caregiving burden. In COPD increases caregiving burden. This burden is greater in symptomatic patients and when comorbidities are present. Psycho-social and legal regulations should be investigated and solutions should be produced for the caregivers of COPD patients.

Assessment of awareness and barriers to clubfoot treatment in the Indian scenario.

Background:We undertook this study to evaluate the awareness of the Primary Caregivers of children with clubfoot aka Congenital Talipes Equino Varus (CTEV) and their familiarity with the disease, their beliefs, knowledge and compliance to treatment, and barriers encountered during the treatment process.Settings and design:Cross-sectional, analytical study.Materials and methods:A standard questionnaire in the local vernacular language was prepared, on which 108 respondents were interviewed. Data were analyzed by using Statistical Package for the Social Sciences (SPSS) software program, version 21.0. Chi-square test was applied wherever suitable as a parametric test.Results:Approximately 57.40% of participants had no prior knowledge of clubfoot at all, till they had a child born of the deformity in the family. Superstitions like lunar eclipse (37.96%), punishment from God (37.03%), solar eclipse (34.26%) and black magic (26.85%) were widely prevalent as the perceived cause of the deformity. Only 25% of the participants believed that any kind of treatment should be started immediately after birth and 20.37% of the study population felt the first line of treatment should be a visit to a spiritual healer or to a shrine of a saint. Approximately 68.52% of the study participants were satisfied with the explanation of the disease process and treatment plan offered by the treating doctor. Approximately 52.77% perceived social stigma as an obstacle to treatment, whereas 58.33% had difficulties adjusting to change of home or workplace routines.Conclusion:The awareness level regarding clubfoot in the primary caregivers in the Indian scenario is low and has an implication on successful treatment and compliance.