Bad Days Research Articles

P085 First ever Juvenile Idiopathic Arthritis Awareness Week

Abstract Background/Aims During conversations with parents, children and adults living with JIA, a common theme kept coming up which is ‘why can’t people understand that JIA is a fluctuating condition?’ It can be very frustrating to keep explaining this. Some days, those living with JIA are able to do most things e.g. play football, cook, go for a run. However other days it can be a struggle to even get out of bed or climb the stairs at school/work. Due to the lack of understanding of this disease some children have had people asking them if they are faking it. They have said, ‘We need to help teachers to understand how diverse and fluctuating the disease is from day to day, I’m not lying about my symptoms, they change’. Therefore, following the success of NRAS’s RA awareness weeks, it was decided we would run the first ever JIA Awareness Week on the theme that no two days are the same living with JIA, and the hashtag #SameJIADifferentDay was created. Methods NRAS does not have the resources to do major TV adverts, so we decided to make this a social media campaign. We wanted to have films/photos and content to educate and inform people of what it is like to live with JIA and how no two days are the same. Six films were created, three were from a teenager and three from an adult, both living with JIA. This helps to highlight that adults can be living with JIA as well; it is does not become RA when you are an adult. We launched a different film each day that week (https://jia.org.uk/youtube) Throughout the week, events took place, including: JoinTogether JIA Parent/Carer online group meeting, a Facebook Live Session in which Chloe Umpleby and Ellie Farr from NRAS’s Young Voices Panel shared their experiences of what a good day and bad day looks like for them. Pam Duncan-Glancy MSP living with JIA, put in a motion to the Scottish Government and she helped raise awareness throughout the week. Results On average, NRAS’s social media platforms’ engagements went up by 189%. The highest was Facebook which had a 386.5% increase in profile visits. Some of the feedback we received included: “This is important recognition that a condition diagnosed in early childhood can continue to impact on your life as an adult.” “Simple video that speaks volumes.” “I’m loving the social media post for #SameJIADifferentDay, that is exactly what my child is like.” Conclusion This was a successful campaign, not only in terms of post engagement and website visits but, as seen in the feedback above, in using video as a powerful tool to get across common misconceptions about JIA. Disclosure D. Wilson: None.

Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the “Your Voice” study

BackgroundPatient-centered research has emerged as critically important for understanding the impact of treatments on key stakeholders. The subjective experience of quality of life (QOL) is increasingly recognized as fundamental to delineating treatment goals. The present study utilized content analysis of qualitative data and quantitative analysis to highlight important domains of disease burden and underlying reasons for their importance, and to characterize goals for new treatments for Duchenne Muscular Dystrophy (DMD).ResultsThe study sample reflected the perspectives of DMD patients and caregivers representing ambulatory, transitional, and non-ambulatory stages of disability progression (n = 20 per category). Open-ended interviews were content-analyzed and non-parametric statistical tests were used to compare ambulation groups. As patients progressed in disability, the noted DMD burdens reflected some differences in functional areas. While daily functioning and sports/recreation remained the most important priority areas across ambulation groups, “health” became less prominent as the disability progressed from ambulatory to transitional to non-ambulatory phases of disability; whereas relationships became more prominent as one progressed to the non-ambulatory phase from the ambulatory or transitional phases (Kruskall Wallis H = 12.24 and 5.28, p = 0.002 and 0.02, respectively). When asked why their burdens were important to them and how it impacted their or their child’s life, self-esteem/confidence was most important for ambulatory patients, and became less prominent for patients in the transitional and non-ambulatory phases of disability (Kruskall Wallis H = 9.46, p = 0.009). In contrast, independence was less important for ambulatory patients, and became increasing prominent for patients in the transitional and non-ambulatory phases of disability (Kruskall Wallis H = 7.35, p = 0.025). Emotional functioning was most prominent for all ambulation groups on their best and worst days. Goals for new DMD treatments focused on functional goals, general QOL goals, and concerns about safety, ease of use, and effectiveness.ConclusionThis study provides useful information about treatment goals for DMD from the perspective of patients and their caregivers. It highlights some consistent values across the disability trajectory, as well as introducing an evolution of priorities as the person with DMD becomes more disabled. Results provide a roadmap for patient-centered DMD drug development.

News from the Muse: The Muse of Free Women

On June 24th, 2022, the Supreme Court hit the women of America with a gut-punch in Dobbs vs. Jackson Women’s Health Organization, which overturned Roe vs. Wade. This paper is a response to that ruling, which essentially decrees that women have no constitutional right to make personal decisions about their own bodies. The angry ghosts of women who died in back alley abortions howled in America’s soul. The Muse of Free Women went on retreat. Those who have taken their right to decide whether or not to bear a child for granted saw their world turned upside down. Those who remember the bad old days when abortion was illegal all over America watched the country pivot backwards. The Supreme Court has appropriated our wombs as vessels of the state. But when it comes to the work of tending the fruit of our wombs, those in the so-called “pro-life movement” are nowhere to be found. An underlying misogynist mother hate—an inability to empathize with the reality of women’s lives and bodies—reared its ugly head. Hadn’t we rid ourselves of that painful shadow with the Women’s Liberation of the 1960s and 1970s? Apparently not. The antidote comes in the form of Motherline stories, which flesh out the joys and agonies of being the bearers of new life. Myths about the Great Mother Goddess from many cultures in the world help women see themselves with more complexity and nuance and offer images of power and intelligence beyond the patriarchal paradigm.

Parliamentary Dress

Parliamentary Dress

"I Came Here, and it Got Worse Day by Day": Examining the Intersections Between Migrant Precarity and Family Violence Among Women with Insecure Migration Status in Australia.

While understanding the diversity of women's lived experiences is a key focus area in the international feminist literature on family violence, research with migrant women in Australia remains limited. This article seeks to contribute to the growing body of intersectional feminist scholarship that examines how immigration or "migration status" impacts the dynamics of migrant women's experiences of family violence. The article examines precarity in relation to migrant women's lives in Australia and focuses on the ways that their specific circumstances contribute to and are compounded by the experience of family violence. It also considers how precarity functions as a structural condition that has implications in terms of various forms or patterns of inequality that can heighten women's vulnerability to violence and undermine their efforts to ensure their safety and survival.

Dampak Relokasi Terminal Terboyo Semarang Bagi Pengguna Terminal

Terboyo Semarang Terminal is getting worse day by day due to tidal water that always inundates the terminal Terboyo Semarang. The existence of the terminal is needed by the community, so the government as a public servant continues to do various ways to make the terminal users feel comfortable. With the condition of the Terboyo terminal which is already less suitable for use as a passenger terminal, the Semarang City Government moved the Main Terminal located west of Semarang City, namely on Jl. Mangkang Raya Semarang in early 2016 with more complete facilities. With the passage of time, the Mangkang Terminal that has been provided by the government is not maximally used by traders, bus crews and passengers. In this study, the data from the research results were analyzed with qualitative methods by conducting direct observation or observation, interviews and documentation. from the results of interviews conducted by researchers, namely the bus crew and traders with the move of the terminal, the income received has decreased, which for the bus crew costs higher for diesel fuel and less time to rest. The use of this qualitative research aims to be more in-depth in understanding how much influence the terminal move has on traders, bus crews and passengers. The results of this research show an adverse impact, namely reduced income for bus crews, traders or sellers at the Terboyo terminal, while the impact on passengers is different, some feel benefited and some feel disadvantaged.

Career Aspirations for People With Serious Mental Disorders.

Career Aspirations for People With Serious Mental Disorders.

Ode to a Bad Day by Chelsea Lin Wallace

Reviewed by: Ode to a Bad Day by Chelsea Lin Wallace Kate Quealy-Gainer, Editor Wallace, Chelsea Lin Ode to a Bad Day; illus. by Hyewon Yum. Chronicle, 2023 [48p] Trade ed. ISBN 9781797210803 $16.99 Reviewed from digital galleys R 4-7 yrs A morning of soggy cereal and itchy clothes is just the start of our pouty protagonist’s misery, and the day doesn’t get much brighter from there. The youngster laments their troubles as a hurried rush to school results in a skinned knee, a case of the hiccups interrupts playtime, and a missing pudding cup ruins lunch. An afternoon errand trip makes for some especially dramatic woes: “Oh, Boredom,/I thought you’d left. Bye-bye. Shoo-shoo!/You’re back again with more nothing to do./A chore at the store?/I fall to the floor!/Snorrrrrrrrrre.” Kiddo makes it through a yucky dinner and the ever-arduous bedtime prep, ending the day with a snuggle with their caretaker and a hope that perhaps tomorrow will be better. The poetic structure and regal cadence lend the child’s voice a sense of polite formality, bringing ironic humor to her bad day histrionics, but the joke does not necessarily come at the youngster’s expense. Rather, repetitive address of the day’s various disappointments (“Oh you Ouchy,” “Oh you Hiccup”) acknowledges the plain old awfulness of the situation. Illustrations have a childlike draftsmanship, with dot-eyed faces and scribbly linework in colored pencil and watercolor, and the misery of our put-upon protagonist, with a constant frown and occasional wide-mouthed moan, is cleverly matched with bits of visual humor, including an expressive little cricket that follows the child through their travails. The book ends with hard-earned wisdom that even adults could use: “All day long/my way went wrong./I’m annoyed . . . /but not destroyed.” [End Page 237] Copyright © 2023 The Board of Trustees of the University of Illinois

Farmers in the Maze of Problems

India has been an agricultural country since ancient times. About 70 percent of India's population lives in villages. Most of this population is dependent on agriculture. Agriculture sector has given India a special reputation in the international arena. About 30 percent of India's total national income comes from agriculture. The organization of Indian society and the joint family system retains its importance in today's age only because of agriculture. Surprisingly, despite agriculture being the main and important occupation of the majority of people in our country, it is very backward and unscientific. Unless Indian agriculture improves, there is no possibility of improvement in the condition of the Indian peasantry, and the development of Indian villages is unthinkable before the improvement of the condition of the Indian peasantry. There is a huge difference between Indian agriculture and agriculture in other countries. Reason : Farming in other countries is done in modern scientific manner, while Indian agriculture is unscientific and underdeveloped. Indian farmers do not want to do modern farming and are based on traditional farming. Apart from this, the nature of Indian agriculture is unorganized as agriculture here depends on the bounty of nature. If there is rain in the right amount at the right time, the crop will grow well, otherwise, if there is a drought, the entire crop will be destroyed. Thus, Indian agriculture is not economically viable for the common farmer due to its dependence on the uncertainties of nature. The condition of agriculture and farmers in India is getting worse day by day due to which many farmers are forced to commit suicide. Even today 60% to 70% of people in India depend on agriculture. Every government is aware of this problem but there are no proper solutions. The condition of Indian farmers is very bad, people just argue, politicize and forget about it. But no effective solution has been found for this.

More than just a bad day? Traumatic life events and self-control in old age.

The behavioral economics literature suggests that exposure to traumatic events shifts preference features including risk aversion and time preference. In this study, we examined the association between traumatic life events and self-control in old age. Data were obtained from the Health and Retirement Study, which offers retrospective data on trauma exposure and early life characteristics. The results showed that experiences of serious physical attacks or assaults is associated with a 3.1% reduction in self-control, adjusted for demographic and childhood socioeconomic characteristics. The attacks or assaults were experienced approximately 30 years prior to the survey, indicating that traumatic life events exert a lasting influence on self-control. Further analyses found no difference in the association between the experience of serious physical attacks or assaults and self-control according to the timing of occurrence. Our findings are consistent with the evidence that experiences of natural disasters or armed conflicts increase impatience among survivors.

Usability of self-reported assessment of work functioning in municipal occupational rehabilitation teams: A qualitative study.

This study aimed to explore (1) whether self-reported assessment on work-related functioning, workability, return-to-work (RTW) self-efficacy, and expectation was useful in the professionals' assessment of sick-listed workers and could guide referral to interventions and (2) whether self-reporting in addition to "usual practice" could improve the RTW dialog and involvement in case management. The qualitative study took place in two municipal job centers in 2021. The assessment was based on the Work Rehabilitation Questionnaire, RTW-Self-efficacy Scale-19, and single items of self-rated health, workability, and RTW expectations. Sick-listed workers (n = 36) were interviewed by telephone. Three focus-group interviews were conducted with professionals who had used the questionnaire. Data were coded and analyzed thematically. Three themes with seven subthemes emerged: (1) accessibility; (2) one tool in the RTW toolbox (subthemes: a supplementary tool, a tool for reflection, facilitating interdisciplinary communication, and enhancing active participation); and (3) the value of "ticking boxes" (subthemes: good days, bad days, the issue of power, and the cultural meaning of words). The professionals would not recommend the present questionnaire for use during their rehabilitation team meeting for assessment, interdisciplinary communication, or choice of interventions. However, using the parts assessing RTW self-efficacy and expectation combined with a dialog may be of value early in the RTW process. The self-reporting assessment tool was perceived to be meaningful to some sick-listed workers, as it provided reflections on important aspects of the RTW process. Some workers believed that it might contribute to the rehabilitation team, and thus, it could improve their involvement.

Impact of the war in Ukraine on the global stock market

This article focuses on and analyzes how the full-scale invasion of Russia on the territory of Ukraine on February 24, 2022, affected and continues to affect the part of the global capital market where securities are issued, bought and sold, namely the stock market. It is determined what any price changes are based on here; how stock markets can reflect the expectations of a certain group of people, in this case investors around the world, during a period of war; sanctions and pressure on the stock market. Also, the average response of twenty companies included in the Top-500 best stocks in the Center for Research in Security Prices database to percentage changes in the weighted commodity price index was evaluated. That is, we estimated how much a 1% change in the commodity price index would change the share prices of each of the 20 companies. It is determined separately how the military conflict affected the securities of American companies operating in various industries; for whom the war helped to increase capitalization, and for whom it contributed to the deterioration of the general financial condition. How the ranking of the best-performing S&P 500 stocks has changed in 2022. Why on September 13, the share prices of many global companies decreased, and the three main stock indexes (Dow Jones Industrial Average, Nasdaq Composite and S&P 500) had their worst day since June 2020. Forecast of their further changes. Separately, in addition to the American one, the changes that took place in the stock markets of Eastern countries, using the example of China, Thailand, India and Indonesia, are highlighted. Expected changes in the Russian stock market and the possibility of its complete disappearance due to sanctions imposed by various countries of the world are described. The situation on the market of Ukraine itself and the options of what exactly to invest in for domestic investors during the period of active military operations were considered. In addition to all this, the solution to problems related to the volatility of the stock market is highlighted. Thus, the question of the influence of the war between Ukraine and Russia on the state of the world stock markets, in modern realities, is paid a lot of attention not only by Ukrainian scientists, but also by foreign ones. This is not surprising, since it is impossible to ignore that the recent events have caused a chain effect, affecting firstly the prices of goods, the volume of exports, and subsequently the capitalization and growth or decline of the prices of securities of companies around the world.

JCD Editorial—January 2023

It is hard to believe that we are already in 2023—it is astonishing to me how fast time seems to be moving these days! First, we want to wish everyone a Happy and Healthy New Year and may we all find peace and happiness as we move into 2023. We all have had many challenges over the past several years. We hope that the worst days of the pandemic are all behind us as we look forward with renewed energy and excitement, and from all of us at JCD, we hope that 2023 will be a fantastic year for everyone. JCD is your cosmetic and aesthetic go-to journal, and we hope this continues into the New Year. We have worked extremely hard behind the scenes since we took control of the journal to ensure that we publish the best articles and research studies in our field from all over the world. We are convinced that we have achieved this goal. When people think of journals in dermatology and where they want to see their research, JCD is always in that conversation. To that end, we are grateful to each one of you. We will not stop working to improve the journal as we will continue to bring to you, each month, the best of the best. There is a change starting with this issue of JCD. All the articles that are published here, and going forward, will all be Open Access. This is a Wiley policy that has been in the works for JCD for several months and now is in effect. What that means is that all articles that are published will be available for all to access, making that process easier for those wishing to read your excellent contributions to the literature. The fee associated with this Open Access policy has been established by Wiley. They are convinced that we will see even higher quality submissions and articles coming to our journal. If you have any questions about the Open Access policy, please let us know. Again, we want to wish everyone a Happy and Healthy 2023—and we want to continue to be your go-to journal for everything aesthetic and cosmetic in dermatology.

A qualitative study for co-designing the future of technology to support physical activity for adolescents living with type 1 diabetes

Aim: The aims of this study were to (i) understand what adolescents (and their parents) identify as positive and negative experiences with technology for engaging in physical activity (PA) when living with type 1 diabetes (T1D) and (ii) identify possible future design considerations for supporting or enabling technologies for this population. Methods: Nine online collaborative workshops (n = 25 people) were held over a month with participants who were either adolescents attending with (n = 22) or without (n = 3, aged 16 and over) parents. Each workshop involved (1) a training activity, (2) a design task involving describing a good day vs. a bad day, and (3) a design task asking people to consider future design changes for technology to support them in engaging with physical activity. Results: The following key themes emerged from the first design task: (1) Wearable factors; (2) Social acceptance & identity; (3) Negative emotions; (4) Glycaemic stability offers positive emotions and PA Enjoyment; and (5) Presence, preparation & prevention. The second design task identified the following additional key themes: (6) Improve attachment experiences; (7) Connected devices reduce user burden; (8) Improve accuracy; (9) Personalisation of devices; (10) Funding and policy changes – health equity. Conclusion: Technology can reduce the burden and improve PA support, but there are still gaps in how these technologies can be better designed to consider the psychosocial and emotional factors of both adolescents and their parents as co-users.

DISCOVER THE REAL TRUTH THROUGH POWER OF SPIRITUALITY: CHANGE OF ATMOSPHERE FOR THE NEW WORLD

The present human civilization is moving forward along with many backward motions, generation after generation. At the same time, in the running society amidst a lot of conventional ordinary zero-point or negative works, few giant steps are taken for the good of the people in the long run. Mental capacity of common people is not so powerful to catch the negative vibrations against the deeds taken for granted, today; and, hence, in majority cases, solution does not come. We blame one another and the situations become worse day by day. We always try to rationalize the irrationals by our own judgments, introducing falsehood, mistrust and selfishness; and, hence, in no way the problems reduce. Rather, the whole society is being entangled in a variety of mental turbulences in which we all have been captured directly or indirectly. Actually, we have lost our inner power as a result of forgetting our original spiritual identity. The right knowledge and understanding of soul, Supreme Soul and World Cycle, and self-realization and God-realization made clear the universal concept of One-World -Family in the sense that every human being is the spiritual child of God Father Shiva irrespective of the differences of castes, colours, creeds, cultures, faiths, religions, languages, genders, nationalities, places of birth, etc.

Green Marketing:- A Step Towards Sustainability

With the ecological issues getting worse day by day and sustainability becoming major concern, the time has come when we need to focus our thoughts and action son reviving our resources and utilizing the existing ones in a much more sensible manner.It is a need of an hour to work towards sustainability and safeguard our MOTHEREARTH. Environmentalists, business units, corporates, and people all need to work toward the cause. In this, a shift to GREEN MARKETING is a holistic approach. Marketers and consumers today are well aware of the importance of the GO-GREEN concept. Green marketing and green product development can be recognized as a paradigm in such a situation. This paper addresses the importance in such a scenario. Although the concept is still in its infancy stage, but the start toward a better and sustainable move is there. This paper is an attempt in identifying the concerns about selling and buying green products, consumers changing attitudes, and the promising benefits

A K-means clustering model for analyzing the Bitcoin extreme value returns

Bitcoin prices are highly volatile and have extreme upper tails of the return distributions. One important component of Bitcoin price jumps is that it does not follow a normal distribution. This present study aims to reduce the extreme value data available on Bitcoin into simple clusters based on extreme value returns. The study first measures the excessive volatility and then estimates the extreme value returns of Bitcoin between November 2013 and August 2022 to achieve this objective. For robustness checks, extreme value returns are estimated using both the Rogers and Satchell (RS) and the Variance Ratio (VRatio) estimators that embed jumps in the model. Further, K-means clustering is used to form clusters based on the estimated Bitcoin’s extreme value returns as the probable good days (extreme days), medium days, and bad days. The study observes that K-means clustering can explain 65 percent point return variability. The study findings will be highly useful for crypto investors, policymakers, and future studies in data mining.

Atmospheric Linke Turbidity Index over Deukhuri Valley, Dang

The aim of this project is to study Atmospheric Linke turbidity index over Deukhuri Valley, Dang (27°50’32.2" N, 82°45’41.9" E and 445 m a. s. l.). The atmospheric Linke Turbidity index is calculated from solar radiation measurements of NASA satellite for period of 4 years (2015, 2016, 2017, 2018). The annual average clearness index (KT ), Linke turbidity index (LT ) and visibility are 0.55 ± 0.12, 2.5 ± 1.1 and 10.4 ± 3.8 km respectively. Atmospheric Linke turbidity index is used on agriculture, hydrology, climate change and energy harvesting. In study period, number of good days (visibility > 15 km) and number of bad days (visibility < 5 km) are found to be 188 and 94 respectively. This research work is beneficial for the further identification, impact and analysis of atmospheric turbidity at different places.

Influence of ambient relative humidity on horizontal visibility in the two cities of western Nepal having contrasting urban-cum-industrial backgrounds and study of long-term variation

Atmospheric visibility, a measure of horizontal distance one can distinctly see with unaided eye, is affected by the scattering and absorption of visible light by the tiny particles (aerosols), or different gases present in the atmosphere. Thus, visibility is commonly considered a proxy for ambient air quality. The long-term trend of visibility may reflect the change in the air quality of a place over the period. In our study, we have analyzed historic climatological data (1977-2020) from the National Oceanic and Atmospheric Administration (NOAA) global hourly archive, for the two cities of west Nepal, namely, Bhairahawa (BWA, 27.506 °N, 83.416 °E) and Surkhet (SKH, 28.6 °N, and 81.617 °E). We have found that both of the synoptic stations exhibited persistent degraded visibility. BWA had poorer visibility conditions (poor air quality) than that of SKH since the beginning of the study period. Since 2014, the ‘annual good day’ (V ≥ 10 km ) at BWA is steadily near 0%, and the ‘annual bad day’ (V < 5 km) is ≈ 60%, suggesting a degraded air quality. Similarly, we observed a notable decline in the 50th percentile of visibility in the mid-1980s at SKH, and a sharp decline of ‘good day’ since 2011. Meteorology modifies the optical properties of aerosol/ gaseous in the atmosphere, thereby, resulting in a change in visibility. In our study, we have investigated the influence of relative humidity (RH) on prevailing visibility. Although the relationship between them exists in both of the stations, it is more distinctly visible at BWA. We observed lower visibility conditions (V ≤ 3 km) occurring at an RH level as low as 50% at BWA. This indicates an abundance of specific hygroscopic aerosols, whose light extinction thresholds are as low. At BWA, the impact of RH is evident during the dry season. In contrast, the threshold value of RH is quite high (80%) at SKH and the relationship is prominent during the wet season. This alarmingly poor air quality at both stations requires a serious concern because of its adverse impact on various sectors like aviation, tourism, and public health.

“We’re all one bad day away”: Impacts on Food Access in Buffalo, New York during the COVID-19 pandemic

ABSTRACT When COVID-19 arrived in Buffalo, New York in March 2020, there was already significant food insecurity in the region. However, barriers to food access were greatly exacerbated by the pandemic. This study assesses the pandemic’s impact on food access in Buffalo through 75 surveys and 30 qualitative interviews conducted with users of food pantries. Results show that, while the pandemic did contribute to food insecurity, many food pantry users were already experiencing chronic food access issues. Specifically, issues related to transportation, stigma, and chronic poverty must be addressed for food insecure households to better endure emergency events like pandemics.