Arts-based Methodology Research Articles

The Autoimmune Library: An Arts-Based Approach to Women of Color’s (Counter)Narratives of Chronic Illness

ABSTRACT Guided by critical race theorizing (CRT) and arts-based methodologies (i.e., metaphor and pictorial narrative mapping [PNM]), the present study analyzed the healthcare (counter)narratives of 150 United States (U.S.) women of color (i.e., Black/African American, Hispanic/Latina, Native American/Alaska Native, and Multiracial) who have autoimmune disease. Sensitized by the metaphor of a library book, participants were asked to story their healthcare journey through identification of a title, chapters, genre, and book cover description (i.e., [Illness] Storybook Survey). Using critical thematic analysis, we first identified dominant and counter-narratives present in participant storybooks, categorized by literary supra-themes of characters (i.e., dominant narrative of me versus my body, counter-narratives of me versus the system and illness as lineal), plot (i.e., dominant narrative of a hero’s journey, counter-narrative of chaos), and tone (i.e., dominant narrative of inspiration, counter-narratives of tangible self-help and humor). Next, guided by PNM, a data visualization technique, each author illustrated one counter-narrative within each literary supra-theme. Our analysis interrogates how participants’ stories both reify and resist ideological and structural power at the intersections of their racial, gender, and illness identities. Collectively, this study offers unique contributions to critical, intersectional, and arts-based approaches to communication research, and forwards new methods for studying health narratives historically located in the margins.

‘We live to write, from our life, the best of stories’: exploring Colombian women’s embodied narratives of displacement through body mapping

Drawing on research conducted in June 2019, this article explores the narratives produced by eight Colombian women to examine the embodied nature of their experiences of displacement and trauma. We frame this examination both through recent feminist geographic scholarship on displacement, trauma, and the body, as well as through the concept of territorio cuerpo-tierra, which has recently emerged from Latin American feminist communitarianism. These narratives used in this research were produced through the process of body mapping conducted as a part of an eight-day workshop in which research participants engaged in multiple arts-based methodologies. The results of this research underscore how the concept of territorio cuerpo-tierra is materialized in the experiences of displaced women through a sustained connection of self and place. They also highlight the ways that displacement and trauma connect the body/territory; refuse to be spatially or temporally contained; and provide the resources for healing, emplacement, and spatial repossession.

‘After All the Years of Separation’: Musically Representing Author L.M. Montgomery’s Suspended Romances

Canadian author L.M. Montgomery did not set out to write stories about romance. As she indicated in her journals, she wrote character-driven stories of young girls navigating their way through girlhood. However, she understood that the public, and her publishers, expected these girls to experience romance that culminated in marriage, following the societal traditions of the time. Montgomery managed this dichotomy by having many characters experience a suspended romance, delaying the romantic aspect of the relationship for as long as possible. Arts-based practice is a mode of analysis and offers the opportunity to find a new way of understanding and communicating Montgomery’s type of suspended romance. Music is, in many ways, considered romantic, so it is an appropriate medium to communicate Montgomery’s romantic narrative structures. This paper investigates Montgomery’s use of suspended romance in her novels and how this delay provided her characters with time to develop other areas of their lives. An arts-based methodology was used to identify and analyse recurring themes in Montgomery’s work, as the question is not can Montgomery’s theme of romance be musically represented but how. The result of this creative experimentation is a new musical composition that articulates these suspended romances using six different musical devices. This creative work exemplifies the intertextual link that exists between Montgomery’s work and new musical compositions.

Eating Disorder and Autism Collaborative project outline: promoting eating disorder research embedded in a neurodiversity-affirming culture.

EDAC (Eating Disorders and Autism Collaborative) is an innovative project aiming to increase research capacity by supporting collaboration in the fields of eating disorders and autism. EDAC comprises four integrated workstreams to co-produce interdisciplinary research, directed by Autistic individuals with lived experience of eating disorders. Workstream 1 will outline best collaborative practices, informing the research network. Workstream 2 will use arts-based methodologies to set research priorities, with emphasis on the perspectives of underrepresented groups. Workstream 3 will support interdisciplinary collaborations to develop innovative research. Finally, workstream 4 will maximise knowledge mobilisation with the aim of reducing barriers to rapid incorporation of research into policy and clinical practice. A core aim of EDAC is to embed a neurodiversity-affirming culture within eating disorder research and to support the development of a new generation of researchers conducting innovative and meaningful research with the potential to improve clinical outcomes.

Reframing Relationality as Cultural Work in the Global South: Moving History into the Present, and the Future.

The Global South was popularised during the 1970s in recognition of the greater economic and political power of the ‘Third World’ and as a reaction to pejorative expressions. Nevertheless, as a terminology it is formed within the colonial/modern world-system imagery and manifests multiple subaltern subjectivities and different articulations of power and resistances. In this chapter, we use the practice of talanoa as a decolonizing community arts-based methodology which is an integral part of Pacific dialogic engagement to re-narrate histories and experiences of oppression as we draw on the colonizing experiences of (hetero) gender and Whiteness shaped how these coloured our agencies. In this paper we put to work the practice and potential of talanoa as a heterodox decolonizing methodology that challenges the orthodoxies of the Global North who habitually rewards normative methodological processes. This paper located in part in the 1970s considers questions of how positionality, power and relationships are experienced and re-negotiated through the talanoa and also explores the relationship between voice and participation. Our experiences of participation articulated in this chapter take the form of narratives with an intent to interrupt, subvert and counter the orthodoxic use of analytical tools and theoretical frameworks habitually deployed and modelled across the academy in the Global North. We consider the power the talanoa has for re-negotiating cultural differences and histories situating affective intensities to guide, dis/connect, excite, divert, inspire, distract, startle, surprise, and re-orient thinking to move history into the present, and the future.

Envisioning futures through decolonised tacit knowledge: The In, Out and On method

This paper presents a method for future-building based on the journey we undertook as Design and Arts researchers in POR EL Páramo project (2021–2022) in our aim to bring closer the different actors involved in the Paramos (high Andean moorlands in Boyacá region, Colombia). We did this by understanding their everyday life better, and co-designing potential pathways towards holistic sustainable futures that serve the various communities’ needs. Through a series of social innovation workshops, we applied transdisciplinary approaches aimed at decolonising the methodologies used and its facilitation dynamics. The outcomes include our contribution to design and arts-based methodologies that aids continuity to the process of reflection: In(ward), Out(ward) and On(ward). In deploying this decolonisation-based methodology, a more powerful underlying principle came to light too: the use of arts mobilises forms of knowledge that are rather unconscious, but also extremely efficacious in generating proactive mindsets and generating bottom-up ideas. In this paper we build on and argue further, from an empirical perspective, for the utilisation of the tacit knowledge that can be transmitted through non-verbal means in social research dealing with contexts of conflict, reconciliation, and future building.

The Role of Technology in Enhancing Adaptive Behavior Skills for Students with Intellectual Disabilities

The current study documents key contributions in teaching students with intellectual disabilities using an integrative STEAM approach. This study aimed to understand the role of technology and arts-based methodologies in improving adaptive behavior skills for students with intellectual disabilities. The researcher used descriptive analytical methods to review, analyze, compare, and interpret related theories and literature. The study highlights how technology and arts-based approaches enhance adaptive skills and support development in self-care, mobility, educational skills, independence, performance, and community integration for these students. The promising finding is that an integrative STEAM approach, incorporating technology and arts-based learning, improves adaptive behavior skills for students with intellectual disabilities. Based on the results, the researcher recommends that the Ministry of Education provide guidance, counseling, seminars, and workshops for teachers on using assistive technology and arts-based methodologies due to their importance in rehabilitating and educating individuals with intellectual disabilities.

Using Arts-Based Methodologies: Facilitating First-Year Pre-Service Teachers' Collaborative Teaching of Cell Biology

Even with well-prepared lectures, some of my students still struggled to understand some of the concepts of cell biology. I therefore wondered if an exploration of teaching methods involving the arts would help them to engage with the subject content in ways that made it more accessible, and help them to understand the concepts better. Building on earlier approaches of using collaborative learning, I requested students to discuss, plan, and present to each other on cell biology concepts using arts-based teaching methods. In groups of 4-6 members, they could use any strategy such as dance, drama, music, poetry, and drawing to teach the concepts. The students collaboratively prepared content for a concept of their choice and presented it using their chosen and developed teaching strategy. Some of the strategies that students seemed to enjoy using included rapping the concepts, songs, dance, role play, and poetry. A few students resorted to individual PowerPoint presentations. The hope was that the enjoyment would translate into students' familiarisation with and understanding of the concepts better than through traditional teaching. Although the approach demonstrated that students could teach these concepts in versatile and fun ways, it did not assess their understanding of the concepts presented.

Using Arts-Based Methodologies: Facilitating First-Year Pre-Service Teachers' Collaborative Teaching of Cell Biology

Using Arts-Based Methodologies: Facilitating First-Year Pre-Service Teachers' Collaborative Teaching of Cell Biology

What Got Us Here Won't Get Us There: Critical History in Radical Black Re-imaginations of Canadian Nursing Histories.

As a "foursome" of nursing history students and scholars, upcoming, junior, and seasoned, we presented a panel on new work and possibilities related to histories of Blackness and Black nurses in Canadian nursing history. Our presentation was the 2023 keynote Hannah Panel Presentation for the joint Canadian Society for the History of Medicine (CSHM-SCHM) and the Canadian Association for the History of Nursing (CAHN-ACHN) conference. Reflecting and expanding our perspectives, we share the relevance and significance of engaging with histories of Canadian Blackness and (in)visibility of Blackness in nursing history. This paper considers the overarching question of how does engaging with histories of Canadian Blackness serve as an anti-racist strategy when examining, analyzing and understanding the history of nursing and health care? A core tenant of this work aims at acknowledging how institutional relationships of power are reproduced within scholarship unless there is space for radical re-imaginations. The disruption to power is achieved by exploring the connections between nursing and history from the perspective of Black nurses' history or Black feminist thought. We also disrupt power by our form, in challenging expectations of scientific inquiry as the only format of valid knowledge production within the discipline. Possibilities of arts-based methodology as a site for democratization in nursing knowledge are evoked through the metaphoric language (water, fire, air and earth) interwoven within the text. We highlight how each of us engages with nursing history, further complicating previous narratives of our collective Canadian past. In publishing our thoughts on historical inquiry in a nursing journal, we hope to provoke more curiosity and interest in history within our discipline as a site for liberation!

Animating migration journeys from Colombia to Chile: expressing embodied experience through co-produced film

ABSTRACT This paper analyses the process of co-producing an animated film about the migration journeys of Colombian women resident in Antofagasta, Chile. It first establishes the relationship between feminist epistemologies and arts-based methodologies, which hinges on embodiment. It then turns to a detailed discussion of using film co-production as a research method for accessing and expressing embodied experiences of migration. This discussion highlights how moments of discomfort (Gokariksel, Hawkins, Neubert, and Smith, 2021) experienced by the researcher motivated the search for a more collaborative methodological approach that was better attuned to lived experience. This included striving towards more inclusive practices with respect to recruitment, anonymity, and confidentiality. Moments of discomfort also revealed how care and caring responsibilities are entangled with research, and how they gender possibilities of participation and production for community co-producers and artists, as well as for researchers. Finally, through discomfort, lessons were learned about the politics of representing experiences of migration, violence, and endurance, as well as joy. The paper concludes that, whilst by no means a panacea, collaborative arts-based research methods can offer an innovative toolset for exploring embodied experience and for navigating the relational and representational complexities attendant to research.

245 Drawing on Arts-Based Methodologies to Elicit Transgender and Gender Diverse (TGD) Children’s Experiences in Health Care

OBJECTIVES/GOALS: Understand how prepubescent TGD children experience pediatric care with a dual purpose of informing clinical practice and presenting alternative methods for research with children. Centering their perspectives is critical to improving care for this age group, ultimately improving TGD health. METHODS/STUDY POPULATION: A participatory arts-based study involving drawing, photo elicitation, and narrative interviews with prepubescent TGD children (n=15) in the Pacific Northwest. Participants will make photos and draw a picture of their most recent pediatric visit. Participants guide the analysis and interpretation of their artwork, informing subsequent interviews. Interviews are coded and interpreted using inductive thematic analysis at the semantic level, and verified by participants and near-peer community partners. The combination of multiple data sources that represent both stimuli and verifiers of perceptions provide methodological triangulation. RESULTS/ANTICIPATED RESULTS: Early pilot data with community partners suggest that TGD children do not feel sufficiently supported in pediatric settings, which impacts their sense of safety and agency in the clinical context. Findings will inform changes to clinical practice to improve gender affirmation for prepubescent children, positively impact child-caregiver relationships, and ultimately improve health care and wellbeing for TGD people. Observations related to the implementation of novel methodologies will inform future research practices intended to include younger children as active agents in the knowledge production process. DISCUSSION/SIGNIFICANCE: There are missed opportunities to positively impact children’s health and caregiver-child relationships when gender affirming care is overlooked in the pediatric context. This study provides first-hand multi-media perspectives to inform improvements in prepubescent gender affirming pediatric care.

Towards attentive, playful arts-based methodology with children

This paper shares methodological insights from our research which sought to centre children in the production of knowledge during the 2020 global pandemic to consider how this can inform research with children beyond the crisis. Drawing on our longitudinal participatory arts-based research with 30 children aged 9–12 during 2020–22, the paper illustrates our response to the shifting research landscape which included navigating social restrictions to develop child-centred ways of working with socially distanced arts-based methods and technologies. The paper sets out key principles focused on foregrounding children’s ways of knowing and attentive seeing which underpinned our reframing of the research encounter from one in which adults are intent on extracting children’s ready-made thoughts to a space in which knowledge generation is recognised as a process of co-construction and engagement with children. Central to this process is our commitment to feminist care ethics and the application of principles from early childhood research and pedagogy which prioritise attentiveness to younger children’s rhythms and pace. Our aim, in setting out an approach which makes a space for playfulness with older children, is to elaborate the potential of slower, attentive methods and to offer a methodological framework to address to wider questions about what arts-based methods do.

Portraits of Resistance: Exploring Intra-personal, Social, and Institutional Resistances through the Use of Arts-Based Research among Racialized Parents of Autistic Children and Youth

The lives of children who live at the intersectional nexus between childhood autism and race may be considered as “shadow stories” that have remained silenced in autism literature. We explored the experiences of racialized parents who provide care to autistic children. We drew on a theoretical framework known as DisCrit and decolonizing arts-based methodologies. Racialized parents of autistic children demonstrated resistance along various themes, including fighting the system, protecting my child, and creating cultural communities. We join black girlhood studies, critical race theory, and disabled children’s childhood studies by continuing the journey of decentering Whiteness in childhood disability research. We demonstrate how disabled racialized communities engage in activism and social justice while forming powerful counter-discourses.

Exploring fathers’ experiences of caring for a child with complex care needs through ethnography and arts-based methodologies

BackgroundAlthough the number of children living with complex care needs (CCN) is increasing worldwide, there is limited data on the experience of fathers caring for children with CCN. This paper reports on findings specific to fathers’ experiences of caring for their child with CCN and highlights recommendations provided for parents of children with CCN, service providers, and policymakers. The findings emerged from a larger study designed to examine how Canadian families of children with CCN participate in society.MethodsWe used the qualitative research approach of ethnography and arts-based methodologies (ecomaps and photovoice) as well as purposive and snowball sampling techniques. Four parents were engaged as advisors and twenty-nine fathers participated in interviews (all were married or in a relationship; age range of 28 to 55 years). In line with an ethnographic approach, data analysis involved several iterative steps including comparing data from the first, second, and third set of interviews and refining themes.ResultsOne overarching theme, striving to be there for the child with CCN, was identified. Five supporting themes further exemplified how fathers strived to be there for their child: 1) contributing to the parental team through various roles; 2) building accessibility through adaptation; 3) engaging in activities with the child; 4) expressing admiration and pride in their children; and 5) meaning making. Recommendations for parents included making and nurturing connections and asking for help while recommendations for healthcare and social service providers included communicating authentically with families and listening to parents. Fathers also indicated that leadership and funding for programs of families of children with CCN should be priorities for policymakers.ConclusionsIn addition to documenting fathers’ active involvement in their child’s care and development, our findings provide new insights into how fathers make participation in everyday life accessible and inclusive for their children. Study findings also point to 1) priority areas for policymakers (e.g., accessible physical environments); 2) factors that are critical for fostering collaborative care teams with fathers; and 3) the need for complex care teams in the adult health care system. Implications for those providing psychosocial support for these families are noted as well as knowledge gaps worthy of future exploration such as the role of diversity or intersectionality in fathering children with CCN.

Piloting creative engagement strategies to explore themes of parenthood with fathers

IntroductionThe role of the arts in health is increasingly recognised, with participatory arts-based approaches facilitating public engagement. However, little is known about men's involvement in art-based participatory research. We aimed to investigate how men who are fathers may be engaged creatively to explore experiential aspects of fathering and parenthood.MethodsFathers collaborated with an artist, sharing individual perspectives around fatherhood by telephone and email, leading up to creative representations of fatherhood. Initial conversations were prompted by images from a 2020 exhibition catalogue entitled “Masculinities” (Barbican Centre, London) inviting participants' responses to the photographic curation. The catalogue served as an artistic reference to gauge a sense of participants' creative predispositions, as well as a foundation to facilitate spontaneous dialogue about personal meanings of fatherhood. Fathers' experiences of contemporary arts varied greatly; yet all fathers confidently shared responses ranging from photographers' representation of masculinity and fatherhood and perceptions of what was excluded or privileged within this very specific curation. These discussions further led to conversations around representations of fatherhood and highlighted particular areas of interest in terms of fathers' involvement in research and public engagement. The artist provided reflections to each participant by email with links to arts resources building on the initial conversations. Two further shorter sessions followed as fathers' key messages emerged, and the final forms of their own creative expressions crystallised.ResultsThe final pieces included a musical composition around sharing vulnerability as a new father, a word cloud to represent gendered language of parenthood, an animated graphic image representing the bond between father and child, a combination of short poetic stanzas highlighting assumptions around fatherhood, an experiential photographic record of a father and a son in the early years, and a cartoon strip around emotional intelligence in parenting.DiscussionArts-based participatory engagement enabled to capture deep-rooted experiences of being a father in modern society, illuminating common cultural and intergenerational perspectives, while also tapping into unique individual experiences. The richness and diversity of these unique responses suggest that arts-based methodology can facilitate public engagement with men and lead to deep reflections on complex and socially constructed phenomena such as fathering and parenthood.

“I’ma put the lil homies on next”: mixtape methodology and mapping Black men’s college experiences

In recent years, many studies have attempted to explore the experiences of historically marginalized populations within higher education; especially Black men. While most studies expand the discourse about the Black male experience in higher education, few incorporate arts-based methodologies that uniquely speak to the cultural sensibilities of Black men. This study remixes traditional qualitative methodologies through an arts-informed, hip-hop pedagogical perspective by inviting participants to write and record original music in response to a prompt related to an original research question: What does the creation of a Hip-Hop mixtape by Black, male, college-educated emcees, reveal about Black men’s experiences in higher education? Together, this curated collection of songs formed a mixtape, which was made available across multiple streaming platforms, and introducing the counternarratives of Black male hip-hop collegians to audiences beyond the academy. The resulting mixtape offers practical implications for revolutionizing the way educators’ may center cultural knowledge as means of collecting data that captures the nuance of marginalized students’ experiences within (and beyond) the context of school.

Piloting a Virtual Arts-Based Methodology to Explore Children’s Experiences of Chronic Pain: Methodological Insights and Lessons Learned

In the field of childhood pain, the knowledge and expertise of children has long been overlooked. Instead, adult knowledge has been privileged over child knowledge, despite contemporary understandings that the experience of pain is subjective in nature and can only be fully appreciated by the person experiencing it – regardless of age, stage, or status. In this paper, we report on a pilot study that combined virtual semi-structured interviewing methods with arts-based research methods (drawing or painting, produced offline in the time between virtual interviews) to explore children’s experiences of chronic pain from their own perspectives. We use this study as a backdrop to make visible the ‘behind the scenes’ methodological work of arts-based research with children, paying particular attention to the ways in which our methodological approach created time and space for reflection, supported the co-production of knowledge, provided a means through which to visualize the effect of broader social influences on knowledge production, and provoked novel lines of analysis and inquiry. All these affordances call for deeply reflexive research practices. We suggest the methodological approach described in this paper can help amplify and add value to research with young children. The richness of the children’s accounts concerning chronic pain add to the body of evidence demonstrating that ‘even’ young children have knowledge, expertise, and insights that should be elicited to expand understandings of children’s pain and other similarly abstract topics, phenomenon, and lines of inquiry in health.

DEVELOPING THE PROFESSIONAL COMPETENCE OF FUTURE SOCIAL PEDAGOGUES THROUGH ART TECHNOLOGIES

The evolution of pedagogy necessitates a robust foundation in professional competence for future social pedagogues. This article explores the transformative potential of integrating art technologies to enhance the expertise and capabilities of aspiring social pedagogues. By examining theoretical frameworks and practical applications, this study delineates the profound impact of art-based methodologies on shaping multifaceted skills crucial for the contemporary role of social pedagogues. The analysis encompasses innovative approaches, empirical insights, and recommendations aimed at harnessing the full potential of art technologies in molding adept and responsive social pedagogical practitioners. In contemporary educational contexts, the multifaceted responsibilities of social pedagogues demand a holistic skill set encompassing empathy, critical thinking, communication, and creativity. Literature reveals the pivotal role of art technologies—encompassing visual arts, music, drama, and digital platforms—in developing these essential competencies. It underscores the transformative potential of arts-based methodologies in nurturing empathy, enhancing communication skills, fostering creativity, and fostering a holistic understanding of diverse societal challenges among aspiring social pedagogues. Advocating for the integration of art technologies in educational curricula, this article emphasizes their pivotal role in nurturing professional competence among future social pedagogues. Leveraging art-based methodologies is proposed as a fundamental approach to cultivating socially responsive and adept pedagogical practitioners for the evolving educational landscape.

Exploring Autoethnographic and Arts-Based Approaches to Planetary Health: Honoring Diversity through Creativity, Indigenous Knowledge Systems and Loving Relationships

The complexity of contemporary global challenges concerning biosocial–political wellbeing comprises humanity’s actions on many scales. Planetary Health and One Health are examples of broad fields emerging in the last decade to address these complexities. Scientific research has been focusing mainly on the biological aspect of the problem, and the role of indigenous knowledge systems (IKS) as drivers of change in Planetary Health is poorly explored. Transdisciplinary approaches are needed, and, thus, it is essential to highlight the social–political side of this reality by integrating social sciences and humanities in these research communities. The Africa Community of Planetary Partners for Health and Environment (ACOPPHE), through its Art and Indigenous action team, seeks to explore this integration by interrogating and engaging in research using self-study methodologies and arts-based research methods. In traditional scientific research, it is common practice that the researcher is positioned outside of their research. The results are expected to offer complex scientific answers that are often not useful for communities in need of solutions. Frequently, the arts have not received sufficient exploration as a means for research. Another aspect of this problem is that the indigenous peoples of many places in the world have often had their knowledge of human and planet health marginalized because it was practice-based and passed down through the embodiment of knowledge and not through modern-day written knowledge. Autoethnographic and arts-based methodologies have great potential here in bridging the communication between the scientific world and the lived experience of the communities through their cultural and traditional practices. They make room for intersectionality, as well as making the knowledge from research findings valuable and explicit to the layman. Self-study methodologies offer the space for sharing lived experiences, critical dialogue, and possible solutions for the biosocial and political issues that our world faces today.