Life In Adolescents Research Articles

Health-related quality of life in children and adolescents born very preterm and its correlates: a cross-sectional study

ObjectiveWe aimed to assess health-related quality of life (HRQOL) in a cohort of very preterm born children and adolescents (aged 5–16), and to compare it with their fullterm born siblings...

The relationship between perceived school stress and satisfaction with life among Norwegian school-based adolescents and the moderating role of perceived teacher care: a cross-sectional study

BackgroundPerceived stress from schoolwork and perceived teacher care are shown to influence adolescents’ life satisfaction. However, there is a need to further explore how levels of perceived school stress affect life satisfaction of Norwegian adolescents across gender and school levels using nationwide data, and whether this association is moderated by perceived teacher care. Hence, this paper sought to: (1) describe perceived school stress, perceived teacher care and satisfaction with life in Norwegian adolescents stratified by gender and school level, (2) examine the association between perceived school stress and satisfaction with life by testing perceived teacher care as a possible moderator and (3) explore the association between perceived teacher care and adolescents’ satisfaction with life.MethodsWe utilized cross-sectional data from the Norwegian Ungdata Survey from 2021, encompassing adolescents from lower and upper secondary school. Two-thirds of all Norwegian adolescents participated in the Ungdata Survey from 2021. All data is anonymous. The study variables are presented according to lower and upper secondary school as well as gender. Linear regressions were conducted and adjusted for socioeconomic status (SES) by using SPSS.ResultsIn total, 139,841 adolescents were included. Girls exhibited higher perceived school stress, lower perceived teacher care, and lower life satisfaction than boys in both lower and secondary school (all p < 0.01). Strong inverse associations on satisfaction with life were found in both genders in lower and upper secondary school among those who reported very frequent perceived school stress, with perceived teacher care moderating the relationship (B= -0.67; 95% CI [-0.70 to -0.65], P < 0.01]). Moreover, robust associations were unveiled between high and low levels of perceived teacher care and life satisfaction across gender and school level.ConclusionsHigher perceived school stress was strongly inversely associated with life satisfaction in Norwegian adolescents, in both girls and boys, and in both lower and secondary school. Teacher care was identified as a moderator and seems to play a crucial part in the everyday life of Norwegian adolescents. These implications extend to teacher education, practice, and policy, which should be aware of the pivotal role of perceived teacher care on Norwegian school-based adolescents‘ life satisfaction.

The rapid advancement of information and communication technology has significantly impacted the lives of children and adolescents. While social media offers numerous benefits, its irresponsible use can lead to risks of personal data abuse and cybercrime.

The rapid advancement of information and communication technology has significantly impacted the lives of children and adolescents. While social media offers numerous benefits, its irresponsible use can lead to risks of personal data abuse and cybercrime.

Associations between mother and father involvement with older adolescents: Mediating effects of parent‐adolescent and couple relationships

AbstractObjectiveThis study aims to illuminate the dynamic interplay among subsystems within the family context to understand how mother and father involvement in their adolescent children's lives may be related.BackgroundConsistent with different predictions offered by family spillover and by compensatory conceptual models, whether there is an association between mother and father involvement, as well as the direction of the association, is unclear thus far in the empirical literature. Whether more proximal dyadic relationships, such as parent–adolescent relationships, may mediate the association between mother and father involvement has also been underexamined.MethodThis study was conducted using the adolescent subsample drawn from Wave 3 of the Welfare, Children, and Families Project. A total of 463 ethnically diverse adolescents from low‐income households living with two biological parents were involved in this study.ResultsResults of a structural equation modeling analysis indicated that the total effect from mother involvement to father involvement was significant, but a direct association between them was not significant; closeness in parent–adolescent and coparental relationships mediated the relationship between the two. Study results also indicated that model fits and associations were roughly the same across adolescent sex and ethnicity groups.ConclusionThis study advanced the understanding of the father involvement process. The findings support that parental involvement interventions for parents from low‐income families should focus on developing culturally responsive strategies for promoting their parenting beliefs and healthy functioning.

Childhood poverty, social support, immigration background and adolescent health and life satisfaction: A population-based longitudinal study.

This study examined whether poverty (neighborhood and household) was associated with future health or life satisfaction outcomes and whether the association operated through social support (adult support at home, adult support at school, peer belonging), or differed by the immigration background (nonimmigrant family or immigrant family) of the family. This study utilized a retrospective, longitudinal, population-based cohort that included self-reported survey data from the Middle Years Development Instrument (MDI) completed by children at age 9 and age 12, linked to administrative records. Participants included 5906 children in British Columbia, Canada. Neighborhood and household poverty were observed at age 8. Social support from adults and peers was self-reported at age 9. Outcomes (overall health; life satisfaction) were self-reported at age 12. Adjusted multi-level multiple linear regression analyses and parallel mediation analyses were utilized. The interaction between poverty exposure and immigration background was also examined. Exposure to either poverty type was associated with lower levels of life satisfaction and overall health at age 12, though household poverty appeared to be associated with lower outcomes in comparison to neighborhood poverty. The indirect effects of poverty on outcomes appeared to operate primarily through adult support at home and peer belonging. Children in immigrant families had a larger negative association between neighborhood poverty and life satisfaction. Household poverty had a larger negative association to outcomes in comparison to neighborhood poverty. The association of poverty to outcomes differed by immigration background and operated partially through adult support at home and peer belonging.

Effects of a Long-Term Supervised Schroth Exercise Program on the Severity of Scoliosis and Quality of Life in Individuals with Adolescent Idiopathic Scoliosis: A Randomized Clinical Trial Study

Background and Objectives: Adolescent Idiopathic Scoliosis (AIS) affects individuals aged 10–18 years and is characterized by spinal deformity, three-dimensional axis deformation, and vertebral rotation. Schroth method exercises and braces have been shown to reduce the Cobb angle and halt spinal deformity progression. The aim of this study was to investigate the impact of a 12-month, supervised Schroth exercise program on scoliosis severity and quality of life in adolescents with AIS. Materials and Methods: Eighty adolescents with AIS (aged 10–17 years) were prescribed a brace and were divided into two groups. The intervention group followed a supervised Schroth exercise program three times a week for 12 months in addition to wearing a brace. The control group used only the brace. Outcomes included the Cobb angle of the main curvature and the sum of curves using radiography, the maximum angle of trunk rotation (ATR maximum, using a scoliometer), and quality of life with the Scoliosis Research Society-22 (SRS-22) questionnaire. Evaluations were conducted at baseline, after 12 months, and 6 months post-intervention. A multivariate analysis of covariance (MANCOVA) was used for statistical analysis (p-Value &lt; 0.05). Results: The intervention group showed statistically significant improvement compared to the control group in the 12th month in Cobb angle (mean differences, 95% CI: −3.65 (−5.81, −1.53), p-Value &lt; 0.001, Cohen’s d = 0.30), ATR maximum (mean differences, 95% CI: −3.05 (−3.86, −2.23), p-Value &lt; 0.001, Cohen’s d = 0.74), and SRS-22 score (mean differences, 95% CI: 0.87 (0.60, 1.13), p-Value &lt; 0.001, Cohen’s d = 0.58). Differences in ATR maximum and SRS-22 score remained significant at the 18-month measurement. No significant differences were found between groups in the sum of curves (p-Value &gt; 0.05). Conclusions: A 12-month supervised Schroth exercise program in AIS patients undergoing brace treatment significantly improves scoliosis severity (Cobb angle and ATR maximum) and quality of life. Improvements were greater than those in shorter-duration studies, suggesting a linear dose–response relationship. Further clinical studies are needed to clarify the impact of long-term Schroth programs.

12207 A Two-hit Model Of Pcb Exposure And Immune Challenge, And Effects On Behaviors In Rats

Abstract Disclosure: S.E. Khoury: None. A. Hynes: None. L.K. Davis: None. L. Thompson: None. K. Sanchez: None. L. Fonken: None. A.C. Gore: None. This study evaluated how two common life experiences: exposures to environmental endocrine-disrupting chemicals (EDCs), and immune challenges, can act independently or in combination to affect social and anxiety-like behaviors in rats. The class of endocrine-disrupting chemical (EDC) used was polychlorinated biphenyls (PCBs), a family of industrial chemicals that, despite their ban in the 1970s, are detectable in the body tissues of virtually all humans and animals today due to their persistence. Exposures to PCBs were given prenatally and in early postnatal life through feeding of rat dams, during hormone sensitive periods of brain development in the offspring. The immune challenge was given postnatally during adolescence through injection of lipopolysaccharide, to induce neuroinflammation. These challenges are individually associated with increased behavioral disorders in humans and rodent models, but how they interact is unknown. In this 2x2 design, rats received either PCBs or oil in early life, and LPS or saline in adolescence. The animals were then tested in a series of behavioral assays to assess for social and anxiety-like behaviors, including Open Field (OF), Juvenile Social Exploration (JSE), Three Chamber Social Test (TCST), Light Dark Box (LD), and Elevated Plus Maze (EPM). An effect of PCB was observed in OF center time. Interactions of EDC and LPS were found in aspects of EP, and TCST. Further work examining protein and gene expression in the hippocampus and hypothalamus is in progress and will help to elucidate the underlying biological mechanism of the observed behavioral changes. Presentation: 6/3/2024

Examination of the relationship between health promotion behavior and game addiction in adolescents

ObjectivesAdolescence is defined as the transition period from childhood to adulthood. The present study aimed to examine the relationship between health promotion behavior and game addiction in a sample of Turkish adolescents. MethodsThe sample consisted of 340 adolescents aged 10–14 years (50.70 % boys). We collected the data using the ‘Adolescent Health Promotion Scale’ and ‘Adolescent Game Addiction Scale’ (Short Form). ResultsIt was determined that 87.3 % of the adolescents played digital games. Adolescents with chronic diseases and poor health status had higher digital game addiction scale scores (p < 0.05). There is a significant difference between health promotion behaviors of adolescents according to age, mother's education level, income level, health perception, and duration of playing digital games (p < 0.05). There is a significant difference between the mean scores of adolescents' game addiction scale and life appreciation (p < 0.01), health responsibility (rSpearman = −0.290, p < 0.01), exercise (rSpearman = −0.154, p < 0.01), stress management (rSpearman = −0.122, p < 0.01), nutrition sub-dimension (rSpearman = −0.200, p < 0.01) and total mean scores (rSpearman = −0.257, p < 0.01). The results of the regression analysis showed that the adolescent's health promotion behaviors predicted digital game addiction (p < 0.01). In terms of self-esteem in children, only the health responsibility of the adolescents was a significant predictor (p < 0.01). ConclusionKnowing the factors affecting adolescents' health promotion behaviors and game addiction is very important for pediatric nurses to identify adolescents who are at risk for game addiction and take necessary precautions.

The Egyptian 24-h movement guidelines for children and adolescents: an integration of physical activity, sedentary behaviour, sleep and eating habits—by the Egyptian Academy of Bone and Muscle health

BackgroundThe objectives of this work were as follows: (1) to develop holistic recommendations for physical activity, sleep, sedentary behaviours and eating habits adapted to children and adolescent life stage (5–17 years) and targeting optimal metabolic cycle and achieving energy balance; (2) to provide evidence-based information that can be used by the government, policy makers, healthcare professionals, community, schools as well as families to endorse active, healthy, living in apparently healthy children and youth aged 5–17 years, and as a base for monitoring the activities, particularly the physical ones, on the people level. The Egyptian Academy of Bone and Muscle Health followed an established guideline development process to create the Egyptian 24-h movement clinical guideline for children and adolescents. Online databases (PubMed, Embase and Cochrane Library) were searched for relevant peer-reviewed studies that met the a priori inclusion criteria.ResultsA total of 41 studies met the inclusion criteria. Leveraging evidence from the review of the literature led to the development of 11 key questions covering 8 domains. Fifteen statements focus on the overall identified targets through integration of the movement activities and eating behaviour. Results revealed a major change in the previous basic understandings as it shifts away from segregated into integrated movement behaviour and dietary habit paradigm. Based on this, the final guideline was developed providing evidence-based recommendations for a “Healthy 24-h day”, for Egyptian children and adolescents.ConclusionThe 24-h composition of movement behaviours has principal implications for health at all ages. The developed guideline provides an up-to-date evidence-based recommendation towards a holistic approach for favourable daily life activities and adopts a feasible perspective by outlining these activities within a 24-h period. In addition, eating and dietary elements have been included to complete the energy cycle. Children and adolescents who meet the 24-h movement guidelines generally report more favourable health indicators than those who do not.

Effects of Muay Thai Practice on Self-Esteem, Body Perception, and Quality of Life in Adolescents with Overweight/Obesity

ABSTRACT Introduction The aim of this study was to analyze the effects of 16 wk of Muay Thai practice on body perception, self-esteem, and quality of life in adolescents with overweight/obesity. Methods The sample consisted of adolescents with overweight/obesity, aged 10–17 yr. Overweight/obesity was confirmed using body mass index (BMI) and body fat (BF). Body mass and height were measured, from which BMI was calculated. BF was assessed using dual-energy x-ray absorptiometry. Body perception was measured using the Brazilian Silhouette Scale for Children, self-esteem was measured using the Rosenberg Self-Esteem Scale, and quality of life was measured using the 36-Item Short Form Health Survey. The Muay Thai intervention lasted 16 wk, with the initial 4 wk intended for adaptation and familiarization. Sessions were held three times per week on nonconsecutive days for 1.5 h. Protective equipment and devices, such as gloves, Thai pads, gauntlets, and head and rib protectors, were used. Training intensity was maintained between moderate and high according to the rate of perceived exertion scale. The control group did not perform any type of systematic training. Results There was a statistically significant group effect for self-esteem only (P &lt; 0.01; effect size (η 2) = 0.13). When analyzing η 2, there was a group × time interaction in the pain domain of quality of life (P = 0.07; η 2 p = 0.11) considered medium to large. Furthermore, increases were observed in the prevalence of healthy self-esteem (before, 65.0%; after, 73.1%) and satisfaction with body image (before, 0%; after, 3.8%) in the Muay Thai group. Conclusion Muay Thai led to increased prevalences of individuals satisfied with their body image and with healthy self-esteem, as well as an increase in the pain domain score of quality of life in adolescents with overweight/obesity.

Health-related quality of life of children and adolescents with sickle cell disease: An evolutionary concept analysis

The concept of Health-Related Quality of life (HRQOL) of children and adolescents with Sickle cell disease (SCD) is not clearly understood due to the lack of available studies. This review aimed to elucidate various attributes and related concepts of HRQOL in children and adolescents with SCD using Rodgers' (2000) concept analysis framework. A systematic search was performed to identify studies reporting the attributes, antecedents, consequences, surrogate terms, and related concepts of HRQOL in children and adolescents with SCD. The review included 75 articles, including 70 quantitative, two mixed-methods, and three qualitative studies. These were categorized into attributes, antecedents, consequences, surrogate terms, related concepts, and an exemplar of HRQOL in children and adolescents with SCD. The review identified nine important attributes. It includes multidimensional and dynamic concepts, acknowledging the illness, maintaining emotional balance and self-control, coping with the disease, pain management, stigma and discrimination, treatment burden, palliative care and personal resilience. The antecedents were knowledge and attitude toward the disease, self-efficacy, social support, spirituality and spiritual well-being, disease severity, access to healthcare, environmental factors, and financial considerations. The consequences were independence in personal life, improved physical health outcomes, psychological well-being, family and caregiver well-being, improved family, social and peer relationships and social interactions, improved school performance, and improved overall HRQOL and long-term outcomes. This analysis provides an overview of HRQOL concepts related to children and adolescents with SCD, guiding further research into nursing care and clinical practice.

Mental health and health-related quality of life in adolescents surgically treated for hypospadias in childhood

BackgroundThere is limited research and conflicting results on the mental health and health-related quality of life of individuals surgically treated for hypospadias in childhood. Furthermore, the significance of patient-reported outcomes (PRO) in hypospadias is growing. More research is necessary on these topics, particularly in adolescents. ObjectiveWe aimed to compare mental health, health-related quality of life, body satisfaction, self-esteem, penile appearance, and sexual function outcomes in 16-year-old adolescents who had surgery for hypospadias in childhood with a healthy comparison group. Study designThe study involved 16-year-old adolescents who had surgery for hypospadias in one Norwegian hospital. An age-matched comparison group of healthy adolescents was previously recruited. The study assessed self-reported outcomes on mental health using the Strengths and Difficulties Questionnaire, health-related quality of life using the Pediatric Quality of Life Inventory, body satisfaction and self-esteem using the Self-Perception Profile for Adolescents, and genital perception and sexual function using the Pediatric Penile Perception Score and a non-validated structured interview. ResultsIn total, 117 adolescents operated for hypospadias and 61 healthy adolescents were included. The outcomes for mental health and health-related quality of life were not statistically different between groups. However, 18 (16%) hypospadias patients were classified as cases/borderline on mental health outcomes, compared to 2 (3%) in the comparison group (p=0.01). Patients classified as cases/borderline on mental health reported lower health-related quality of life, self-esteem, and more stressful life events. Self-reported penile appearance and sexual function were comparable between groups, however the proximal hypospadias group displayed lower satisfaction. DiscussionAlthough the present study had generally positive outcomes, a significant finding was that a higher number of adolescents who had previously undergone hypospadias surgery during childhood were classified as cases or borderline cases with respect to mental health issues. Hypospadias surgery in childhood may pose challenges for some patients during adolescence, particularly in the proximal group. Regular monitoring by healthcare professionals is crucial in providing necessary support. A limitation is the small size of the subgroups. ConclusionMost patients report good mental health, quality of life, and self-esteem even though patients with hypospadias report more mental health issues than the comparison group. Proximal hypospadias were less satisfied with penile appearance and sexual function. However, due to the small sample size, conclusions about this group should be treated cautiously. Assessing self-reported outcomes in follow-ups is important to identify adolescents who had hypospadias surgery and are at risk for reduced mental health.

Weight loss and health status 10 years after laparoscopic adjustable gastric band insertion in adolescents: a follow-up report from Teen-LABS

BackgroundMetabolic and bariatric surgery is a safe and effective treatment strategy for severe childhood obesity, affecting 10% of US adolescents. ObjectivesThis prospective observational study addresses knowledge gaps related to changes in weight, cardiometabolic risk, and weight-related quality of life (WRQOL) in adolescents 10 years after laparoscopic adjustable gastric band (LAGB) insertion. SettingFive Teen-Longitudinal Assessment of Bariatric Surgery (Teen-LABS) US centers. MethodsAnthropometric, micronutrient, cardiometabolic risk, and WRQOL data were collected on 274 adolescents undergoing metabolic and bariatric surgery, of which 14 participants underwent LAGB insertion (2008–2011). Descriptive analyses compared outcomes from baseline to 10 years. ResultsParticipants were mostly female (86%), White (71%), with a median age of 18.5 years and preoperative median BMI of 49. Baseline prevalence of type 2 diabetes, hypertension, and dyslipidemia were 1 of 14 (7%), 8 of 14 (57%), and 8 of 13 (62%), respectively, versus 10-year prevalence of 1 of 8 (13%), 4 of 10 (40%), and 3 of 9 (33%), respectively. Two participants underwent LAGB removal (years 2 and 3), whereas two converted from LAGB to Roux-en-Y gastric bypass (years 2 and 6). Following initial BMI reduction (−10%) at year 1, 10-year median BMI in the LAGB retention group was 51, representing a 9.2% increase versus baseline. Micronutrient abnormalities and WRQOL remained similar between baseline and 10 years. One participant (1 of 14) withdrew from the study at year 7. ConclusionsLong-term follow-up of this cohort reveals that LAGB had minimal impact on BMI, cardiometabolic risk factors, and WRQOL among adolescents. These results confirm the limited efficacy of LAGB in the pediatric population.

Social Support and Social Adjustment Among Chinese Secondary School Students: The Mediating Roles of Subjective Well-Being and Psychological Resilience.

Within the scope of secondary education, social adjustment among students signifies their ability to effectively engage in social activities and adapt to shifting social environments. Extensive research across diverse geographical and sociocultural landscapes has demonstrated a positive correlation between social support and social adjustment; nonetheless, the specific mechanisms that facilitate this correlation among secondary school students remain largely unexplored. This study examines the roles of subjective well-being and psychological resilience as potential mediators in the connection between social support and social adjustment. To achieve this, a descriptive correlation design was employed with four measures, including Social Support Scale, Social Adjustment Diagnosis Scale, Adolescent Students' Life Satisfaction Scale, and the Chinese version of Mental Toughness Inventory (MTI). A total of 1537 valid responses from secondary school students across Zhejiang province (China) were collected, of which 786 were boys (51.1%) and 751 girls (48.9%), with average age of 16.89 years (SD = 0.79). This research demonstrates that social support, along with subjective well-being and psychological resilience, significantly and positively influences social adjustment. It was observed that both subjective well-being and psychological resilience, whether occurring simultaneously or in succession, partially mediate the influence of social support on social adjustment. The implications of this research suggest that enhancing social adjustment among secondary school students can be achieved by increasing their levels of social support, thereby boosting subjective wellbeing and fortifying psychological resilience. Within the environment of secondary schools, augmenting social support leads to improved social adjustment; furthermore, enhancing subjective wellbeing and reinforcing psychological resilience are crucial for supporting students' positive adaptation to dynamic social environments. Teachers and educational policymakers could implement training programmes, provide psychological counselling, and bolster home-school collaboration as strategies to foster better social adjustment among students.

The association between experiences of unfair treatment in school and adolescent adjustment over 5 years.

This study investigates how high-school experiences of unfair treatment connect to adolescents' higher education enrollment and life satisfaction 5 years later. We utilized four waves of data at ages 14 years (T1), 16 (T2), 18 (T3) and 19 (T4) in the UK (N = 13,065; 51% Male, 49% Female, 70% White, 11% Black, 19% South-Asian). Perceived teacher unfairness at T1 predicted lower university aspirations (T2) and subsequently lower enrollment in higher education (at T3 and T4) and life satisfaction (T4). Experiences with T1 teacher ethnic discrimination also predicted lower life satisfaction. The effects were similar across historically minoritized and majority-background pupils, but historically minoritized adolescents experienced more ethnic discrimination in school. Our findings highlight the importance of fair treatment for all pupils.

QUALITY OF LIFE IN CHILDREN AND ADOLESCENTS WITH CONGENITAL ADRENAL HYPERPLASIA

BACKGROUND: Congenital Adrenal Hyperplasia (CAH) is a hereditary endocrine condition, defined by insufficiency of enzymes that cause abnormalities in adrenal steroidogenesis, resulting in adrenal insufficiency and hyperandrogenism. In adults, Congenital Adrenal Hyperplasia has been linked to a lower quality of life (QoL). However, research in children has yielded inconsistent results. Therefore, this study was conducted to investigate the impact of CAH on the quality of life of children and adolescents. OBJECTIVE: To assess the Quality of Life of children and adolescents with Congenital Adrenal Hyperplasia (CAH). METHODS: It was a descriptive cross-sectional study with six months duration. We enrolled all children and adolescents in the range of 8 to 18 years of age who have been diagnosed with CAH. The World Health Organization Quality of Life-BREF (QOL-BREF) instrument was used for data collection. Four health domains including physical, psychological, social, and environmental areas were assessed, with higher transformed scores indicating better QOL. Data was entered on SPSS Version 23. RESULTS: Our study population comprised of 30 children and adolescents with a mean age of 12.75 ±3.23 years. Mean transformed scores of physical, psychological, social, and environmental health domains were 31.37±12.15, 45.13±12.50, 34.8±20.49 and 37.6± 12.06 respectively. CONCLUSION: The quality-of-life score in our population was relatively low in the physical and social domains of health as compared to psychological and environmental health domains. Larger community-based studies are required to further elaborate the causes and remedies of poor quality of life in children and adolescents.

Research on the Impact of Internet Environment on Adolescent Gender Role Identity and Analysis of Countermeasures

With the popularization and development of the Internet, the network environment has become an important part of the daily life of adolescents. The network environment, with its unique information dissemination mode, social mode, and value concept, has an impact on the formation of adolescents’ gender role identity concept. Research at home and abroad shows that the vividness and visualization of gender information and gender imitation objects in the network environment are more likely to affect individual gender identity. The purpose of this paper is to deeply explore the influence of the Internet environment on adolescents’ gender role identity through the method of interview and observation and to analyze certain countermeasures, to provide a useful reference for further research and education.

La educación física, el deporte y la actividad física a lo largo del curso de vida: implicaciones para la salud y el bienestar

Dear Readers: The research journal Cuerpo, Cultura y Movimiento, in its purpose of disseminating scientific knowledge resulting from research and reflection exercises at national and international level, on this occasion is aimed at those interested in deepening the theory and practice on issues related to physical education aimed at improving the quality of life of children and adolescents, physical activity and health, and sport and its planning processes. In this editorial it is important to understand that life is a continuum of interactions that occur over time and at specific moments; however, human development and health outcomes depend on the experiences and situations that each individual faces in the family, social, economic, environmental and cultural context. In this sense, sport, physical activity, physical exercise, physical education and health become fundamental factors to improve the quality of life in differential populations; this combination of elements throughout all stages of life creates a solid foundation for the integral development of the human being. Hence, health promotion is crucial for individual and collective wellbeing, necessary for the construction of healthier communities.

Health-Related Quality of Life of Adolescents With Non-transfusion-Dependent Thalassemia in Basrah, Iraq.

Thalassemia is a chronic inherited disease with the potential for serious clinical and psychological effects. In the case of thalassemia, a cure is not currently accessible, and lifelong treatment is required. Health-related quality of life (HRQoL) is considered a crucial health outcome. This study aims to assess the HRQoL of children and adolescents with non-transfusion-dependent thalassemia (NTDT) and compare it with that of beta-thalassemia major (β-TM) and healthy subjects. This case-control study included 88 patients with NTDT and 153 age- and gender-matched healthy children and adolescents. In addition, we included 70 registered patients with β-TM. We used the short-form health survey questionnaire to assess HRQoL. Of the 88 patients, 41 were diagnosed with alpha-thalassemia intermedia (α-TI; hemoglobin H disease), and 47 were with beta-thalassemia intermedia (β-TI). HRQoL domains were significantly higher in healthy children and adolescents compared to NTDT patients (P<0.001); the role emotion domain was the most affected in NTDT patients (51.92 ± 3.37), followed by general health (52.72 ± 3.05) and role physical (53.59 ± 3.13). α-TI patients had significantly higher HRQoL domains than patients with β-TI. The study also indicated that NTDT patients had significantly better QoL scores compared to β-TM patients (P<0.001) across all domains. NTDT patients have a lower HRQoL compared to healthy controls. However, their HRQoL scores are significantly better than those of patients with β-TM. Among NTDT patients, those with α-TI have significantly better HRQoL scores compared to patients with β-TI.

Proxy- and self-report evaluation of quality of life in cerebral palsy: Using Spanish version of CPQOL for Children and adolescents

BackgroundPromoting quality of life (QoL) is one of the main goals in interventions carried out with children and adolescents with cerebral palsy (CP). AimsThe aim of this study was to analyze the determinants of QoL in children with CP, including evaluations by the children themselves and their parents, and to identify discrepancies between evaluators. Methods and proceduresThe adapted Spanish version of the Cerebral Palsy Quality of Life (CP-QOL) for children and adolescents (self-report and primary caregiver-reports versions) was applied to a sample of 74 children with CP and their respective parents (totaling 222 participants), as well as instruments to measure functioning (i.e., GMFCS, MACS, CFCS and EDACS). The average age of the children was 12.50 (SD=4.07), with a higher number of boys (55.7 %). Outcomes and resultsThe lowest QoL levels were found in the Functional dimension in both assessments (Mchildren/adolescents=70.21, Mparents=58.14). For children, the highest rated dimension was Social Well-being (M=74.54), while for parents it was School (M=71.03). The degree of agreement between evaluators was low in almost all dimensions (ICC≤.40). More satisfactory predictive models were constructed from the evaluations carried out by parents, except in the case of the Access to Services dimension, with functioning measures being the main predictors of QoL levels. Conclusions and implicationsThe CP-QOL in its two available versions is a useful and specific instrument for assessing QoL in children with CP in both research and professional fields.