Abstract
BackgroundIndividuals with mental health problems have many insufficiently met support needs. Across sociocultural contexts, various parties (e.g., governments, families, persons with mental health problems) assume responsibility for meeting these needs. However, key stakeholders' opinions of the relative responsibilities of these parties for meeting support needs remain largely unexplored. This is a critical knowledge gap, as these perceptions may influence policy and caregiving decisions.MethodsPatients with first-episode psychosis (n = 250), their family members (n = 228), and clinicians (n = 50) at two early intervention services in Chennai, India and Montreal, Canada were asked how much responsibility they thought the government versus persons with mental health problems; the government versus families; and families versus persons with mental health problems should bear for meeting seven support needs of persons with mental health problems (e.g., housing; help covering costs of substance use treatment; etc.). Two-way analyses of variance were conducted to examine differences in ratings of responsibility between sites (Chennai, Montreal); raters (patients, families, clinicians); and support needs.ResultsAcross sites and raters, governments were held most responsible for meeting each support need and all needs together. Montreal raters assigned more responsibility to the government than did Chennai raters. Compared to those in Montreal, Chennai raters assigned more responsibility to families versus persons with mental health problems, except for the costs of substance use treatment. Family raters across sites assigned more responsibility to governments than did patient raters, and more responsibility to families versus persons with mental health problems than did patient and clinician raters. At both sites, governments were assigned less responsibility for addressing housing- and school/work reintegration-related needs compared to other needs. In Chennai, the government was seen as most responsible for stigma reduction and least for covering substance use services.ConclusionsAll stakeholders thought that governments should have substantial responsibility for meeting the needs of individuals with mental health problems, reinforcing calls for greater government investment in mental healthcare across contexts. The greater perceived responsibility of the government in Montreal and of families in Chennai may both reflect and influence differences in cultural norms and healthcare systems in India and Canada.
Highlights
Individuals with mental health problems have many insufficiently met support needs
We developed and administered a novel measure, the Whose Responsibility Scale (WRS), to determine how patients, family members, and treatment providers think responsibility for meeting various support needs of persons with mental health problems should be apportioned among persons with mental health problems, families, and the government
Montreal patients had a lower age at onset, more severe positive symptoms, and were more likely to be single and have co-morbid substance use than patients in Chennai
Summary
Individuals with mental health problems have many insufficiently met support needs. Various parties (e.g., governments, families, persons with mental health problems) assume responsibility for meeting these needs. Key stakeholders’ opinions of the relative responsibilities of these parties for meeting support needs remain largely unexplored. This is a critical knowledge gap, as these perceptions may influence policy and caregiving decisions. Individuals with mental health problems have many support needs, such as for financial resources; accessing mental health and substance use services and covering their costs; starting or resuming work or school; and accessing safe, affordable housing [1, 2]. There is a need to raise awareness about mental health problems and reduce stigma [2]
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