Voluntary organizations supporting patients with cancer: A qualitative exploratory study into their experiences

Abstract

Purpose: Both the incidence of cancer and cancer survival rates are increasing. Cancer patients can experience distress and have higher needs for psychosocial care. While voluntary organizations can support cancer patients’ needs, many patients have little awareness of them. We aimed to explore the experiences of cancer voluntary organizations in one region of the Netherlands, how familiar they are with each other’s efforts, and how eager they are to collaborate with each other. Methods: Thematic analysis of three one-to-one semi-structured interviews and two focus group discussions (FGDs) with members of seven cancer voluntary organizations. Results: The main themes identified were: (1) objectives of the participating cancer voluntary organizations, (2) patients’ and healthcare professionals’ familiarity with the existence of the voluntary organizations and their reach, (3) challenges recruiting volunteers, (4) messages to healthcare providers, and (5) eagerness to collaborate. Participants shared many tips and ideas during the FGDs, and demonstrated a wish to collaborate. Conclusions: The prime objective of cancer voluntary organizations is to decrease the impact of cancer on the personal life of patients and their loved ones. However, awareness of what they can offer is poor amongst both patients and their clinicians. Participants became keen to collaborate, which may result in both the sharing of ideas and expertise, and an increased use of these cancer support services.