Views of providers and clients on feedback and benefit sharing in studies using biological materials in Eldoret Kenya

Abstract

Abstract Context: The use of biological materials raises diverse ethical concerns and there is insufficient research into the views of stakeholders on these concerns. Aims: This study investigated healthcare providers’ (HCPs) and clients’ perspectives on giving feedback about biological samples that are used in research and sharing of subsequent benefits. Settings and Design: Using a qualitative in-depth interviewing approach, this study investigated perspectives on feedback and benefit sharing in studies using biological materials. We engaged HCPs (doctors, clinical officers, nurses, and laboratory technicians) and clients from the Moi Teaching and Referral Hospital, Kenya. Methods and Material: Vignettes and open-ended questions were used, and all sessions were audio recorded, transcribed, then coded and summarized thematically. Results: We found no substantive differences between the perspectives of HCPs and clients. Participants desired that sample donors were provided with feedback and support for their healthcare. Community-level feedback and initiation of health development projects were viewed as valuable. Participants lauded the global dissemination of findings and sharing of benefits ensuing from the research. Conclusions: Healthcare providers and clients in Eldoret Kenya appreciate the use of biological materials in research. They believe in feedback and benefit sharing at individual and community levels, and in broad dissemination of the research findings. All research stakeholders should be encouraged to plan and implement contextualized dissemination of research findings. In addition, feedback on research findings and equitable benefit sharing should be strengthened. Key-words: Biological material, research ethics, research benefits, in-depth interviews, Kenya