Abstract
BackgroundResearch is scarce on patient and parent satisfaction with family-based treatment for adolescent anorexia nervosa (AN), especially family-based treatment adapted to inpatient settings. The purpose of this study was to describe and compare patient and parent satisfaction with an inpatient family-based treatment program for adolescent AN, and to investigate whether the level of satisfaction with treatment was associated with eating disorder outcome.MethodsFormer patients and their parents were contacted approximately five years (4.5 ± 1.7, range: 1.3–7.0) after discharge from family-based inpatient treatment. Ninety-four participants (patients: n = 34, mothers: n = 40, fathers: n = 20) from 46/58 (79.3%) families took part in the study. Former patients and both parents completed treatment satisfaction questionnaires. Outcome at follow-up was assessed by the Eating Disorder Examination Questionnaire and body mass index (kg/m2).ResultsOverall, mothers and fathers reported a high level of satisfaction with treatment, while the former patients’ satisfaction was moderate. There were no significant differences between treatment satisfaction scores for mothers and fathers. However, the former patients’ treatment satisfaction scores were significantly lower than the parents’ scores on several of the items. Correlations between eating disorder outcome parameters and treatment satisfaction were small, except for fathers’ satisfaction with treatment and weight outcome at follow-up.DiscussionFamily-based treatment adapted to inpatient settings is a novel treatment approach for adolescents with AN that require hospitalization. Inclusion and empowerment of parents are considered crucial in outpatient family-based treatment, but may be just as important in inpatient programs. Mothers and fathers alike reported high levels of satisfaction with treatment, which may constitute an important factor in the success of family-based treatment.ConclusionFamily-based inpatient treatment for adolescents with severe AN who have failed to respond to outpatient treatment seemed to be highly valued by parents and viewed by adolescents as acceptable. Parental satisfaction with their child’s treatment is likely to be an important factor for treatment implementation and adherence both in outpatient and inpatient settings.
Highlights
Assessment of patient experiences is important for the evaluation and improvement of health services [1,2,3]
Plain English summary Knowledge of patients’ and parents’ satisfaction with treatment is important to improve treatment for families affected by serious illnesses such as adolescent anorexia nervosa
Clinical implications and conclusion A clinical implication from this study is that family-based inpatient treatment for adolescents with anorexia nervosa (AN) may be a useful option when outpatient treatment has proven insufficient
Summary
Assessment of patient experiences is important for the evaluation and improvement of health services [1,2,3]. Satisfaction with health services is likely to influence the patient’s engagement in treatment and collaboration with the staff, as well as treatment adherence. Ambivalence to treatment is a major challenge in anorexia nervosa (AN). Research is scarce on patient and parent satisfaction with family-based treatment for adolescent anorexia nervosa (AN), especially family-based treatment adapted to inpatient settings. The purpose of this study was to describe and compare patient and parent satisfaction with an inpatient family-based treatment program for adolescent AN, and to investigate whether the level of satisfaction with treatment was associated with eating disorder outcome
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