Towards An Ordinary Life: Insights from a British story of social transformation, 1980–2001

Abstract

AbstractBackgroundIn 2006, the United Nations agreed the Convention On the Rights Of Persons With Disabilities. Article 19, ‘Living independently and being included in the community’ sets out the ‘equal rights of all persons with disabilities to live in the community, with choices equal to others…’ A generation earlier, a small group of activists had come together at the invitation of the King's Fund—a major United Kingdom charity—to produce (in February 1980) the first pamphlet in an extensive series of contributions to improving the lives of people with learning disabilities. This became the An Ordinary Life initiative. I choose the generic word ‘initiative’. This was not a government policy change—in England we had to wait until 2001 for the White Paper Valuing People to catch up with progressive practice. It was not a project as usually understood, although it inspired many local projects across the country. Rather this first pamphlet became the common currency for the emergence of a social movement aspiring to end the institutionalisation of disabled people (in 1980 there were still more than 50,000 people with learning disabilities living their lives in British institutions and many more at risk of this when no longer able to rely on parental support) and ensure their right to live like others in the community.The NarrativeMy narrative here, writing as a participant, focuses on the period 1980–2001. It tells the story of how these activists—energised by scandal, international innovation and most importantly by personal experience—created a compelling vision of this better future, communicated this vision and helped to mobilise widespread action to deliver progress. It describes how good people were inventive in finding better ways of listening to people with learning disabilities and arranging ordinary housing and support to meet their aspirations. It considers how regional and national agencies created mutually‐reinforcing elements in the infrastructure necessary to strengthen the local capacities required for success.LessonsMy account also offers an interpretive commentary on how transformative change was achieved. There was no grand plan. Emerging leaders, who appreciated the urgent need for change, inspired and learned from each other in ever‐expanding networks. Serendipity often played a part, strategy developed through experience and change proceeded by what has been called ‘scaling across’. Effectively the King's Fund and its allies created a system for continuous learning to support vision‐driven innovation. There are lessons here for meeting the unfinished business of achieving An Ordinary Life in the 2020s.