Abstract
BackgroundA growing interest has centered on digital storytelling in health research, described as a multi-media presentation of a story using technology. The use of digital storytelling in knowledge translation (KT) is emerging as technology advances in healthcare to address the challenging tasks of disseminating and transferring knowledge to key stakeholders. We conducted a scoping review of the literature available on the use of patient digital storytelling as a tool in KT interventions.MethodsWe followed by Arksey and O’Malley (Int J Soc Res Methodol 8(1):19–32, 2005), and Levac et al. (Implement Sci 5(1):69, 2010) recommended steps for scoping reviews. Search strategies were conducted for electronic databases (Medline, CINAHL, Web of Science, ProQuest dissertations and theses global, Clinicaltrials.gov and Psychinfo). The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews (PRISMA-ScR) was used to report the review process.ResultsOf 4656 citations retrieved, 114 full texts were reviewed, and twenty-one articles included in the review. Included studies were from nine countries and focused on an array of physical and mental health conditions. A broad range of interpretations of digital storytelling and a variety of KT interventions were identified. Digital storytelling was predominately defined as a story in multi-media form, presented as a video, for selective or public viewing and used as educational material for healthcare professionals, patients and families.ConclusionUsing digital storytelling as a tool in KT interventions can contribute to shared decision-making in healthcare and increase awareness in patients’ health related experiences. Concerns centered on the accuracy and reliability of some of the information available online and the impact of digital storytelling on knowledge action and implementation.
Highlights
Sharing stories of healthcare experiences has become an approach to gain insight into a person’s perspective about their healthcare interactions, rather than focusing solely on an illness or condition [1]
A summary of the findings reported in studies looking at digital storytelling as a way of sharing information in healthcare is needed
Various forms of digital storytelling were discussed in our findings including an interactive exchange of stories, published videos, and patient stories embedded in websites about health conditions
Summary
Sharing stories of healthcare experiences has become an approach to gain insight into a person’s perspective about their healthcare interactions, rather than focusing solely on an illness or condition [1]. Stories are a powerful tool for acquiring knowledge from patients about patients [2, 3]. Stories are created and shared digitally, as a form of dissemination to a larger audience. Narrative medicine focuses on individual relationships between the healthcare provider and others, namely patients, other healthcare professionals, and society [4]. As part of narrative medicine, have been used in clinical research and practice as a source of information, used as a tool for communication, engagement, persuasion, and health behavior change [5]. A growing interest has centered on digital storytelling in health research, described as a multi-media presentation of a story using technology. The use of digital storytelling in knowledge translation (KT) is emerging as technology advances in healthcare to address the challenging tasks of disseminating and transferring knowledge to key stakeholders. We conducted a scoping review of the literature available on the use of patient digital storytelling as a tool in KT interventions
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