Abstract

BackgroundAs the worldwide prevalence of chronic illness increases so too does the demand for novel treatments to improve chronic illness care. Quantifying improvement in chronic illness care from the patient perspective relies on the use of validated patient-reported outcome measures. In this analysis we examine the psychometric and scaling properties of the Patient Assessment of Chronic Illness Care (PACIC) questionnaire for use in the United Kingdom by applying scale data to the non-parametric Mokken double monotonicity model.MethodsData from 1849 patients with long-term conditions in the UK who completed the 20-item PACIC were analysed using Mokken analysis. A three-stage analysis examined the questionnaire’s scalability, monotonicity and item ordering. An automated item selection procedure was used to assess the factor structure of the scale. Analysis was conducted in an ‘evaluation’ dataset (n = 956) and results were confirmed using an independent ‘validation’ (n = 890) dataset.ResultsAutomated item selection procedures suggested that the 20 items represented a single underlying trait representing “patient assessment of chronic illness care”: this contrasts with the multiple domains originally proposed. Six items violated invariant item ordering and were removed. The final 13-item scale had no further issues in either the evaluation or validation samples, including excellent scalability (Ho = .50) and reliability (Rho = .88).ConclusionsFollowing some modification, the 13-items of the PACIC were successfully fitted to the non-parametric Mokken model. These items have psychometrically robust and produce a single ordinal summary score. This score will be useful for clinicians or researchers to assess the quality of chronic illness care from the patient's perspective.

Highlights

  • As the worldwide prevalence of chronic illness increases so too does the demand for novel treatments to improve chronic illness care

  • The Patient Assessment of Chronic Illness Care (PACIC) is a relatively brief 20-item questionnaire designed to assess the extent to which care is aligned with the Chronic Care

  • Stage one The Mokken automated item selection procedure (AISP) indicated that a single meaningful factor was present, which included all of the items within the dataset

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Summary

Introduction

As the worldwide prevalence of chronic illness increases so too does the demand for novel treatments to improve chronic illness care. Quantifying improvement in chronic illness care from the patient perspective relies on the use of validated patient-reported outcome measures. In this analysis we examine the psychometric and scaling properties of the Patient Assessment of Chronic Illness Care (PACIC) questionnaire for use in the United Kingdom by applying scale data to the non-parametric Mokken double monotonicity model. Improving the quality of care for long-term conditions including arthritis, diabetes and coronary heart disease is a global healthcare priority. The chronic care model (CCM) has been widely accepted as a suitable framework for improving the care of patients with long-term (‘chronic’) conditions such as diabetes or arthritis. A short version for cardiovascular disease patients has been developed using factor analysis [8, 9] but despite the scale’s popularity, no analysis has been performed using modern test theories, including either parametric and non-parametric item response theory [10]

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